Re: New to Group, looking for advice and info.

[Guest guest]

I just want to say thank you to all of you who have responded so

quickly and with such compassion. I feel like I am finally getting a

handle on things, and the more I talk to people, the more encouraged I

am getting.

We have not had an MRI yet, although I suspect that will be one of the

first things we schedule at our first appointment. I am anxious to

see the specialist and get a plan of action in place.

And thank you so much, Tasha, for speaking with me earlier. I can't

tell you how much it meant to me. I will be sure to keep ya'll

updated as we find out more about sweet Rowan's progress.

Thanks,

>

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> Subject: New to Group, looking for advice and

info.

> To: infantile_scoliosis

> Date: Wednesday, November 26, 2008, 7:37 PM

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> Hi everyone! My name is , and my 3 month old daughter was just

> diagnosed on Monday with scoliosis. We are not sure what type, what

> the angle of her curve is, or anything else specific right now. My

> pediatrician was a bit dumbfounded to see the " s " shape on the x-ray.

> She said she'd never seen scoliosis in a baby this young.

>

> At any rate, we are being referred to the ish Rite Children's

> Hospital in Dallas, and will hopefully be seeing a specialist in a few

> weeks. I noticed one other mom whose son is being treated there...I

> just wanted to know what we can expect from this first visit?

>

> From looking at her x-ray and comparing it to what I've seen on the

> internet, I would guess her larger curve is at least 30 degrees, but

> of course that would just be a shot in the dark....

>

> It seems from what I've read that there are several different

> treatment options out there, but I haven't seen much on treating

> babies as young as mine. I am intrigued by the treatment pioneered by

> Dr. Mehta, and the more I read about it, the more encouraged I am. I

> would love it if any of you would be able to share your experiences

> with me, since my family and I are still a bit shell-shocked by this

> news. Rowan (my baby) is my 4th child, and this is the first time

> we've ever had any type of serious situation. She has no other health

> problems, although at about 7 weeks she was sent for an ultrasound of

> her lumbar spine due to a sacral dimple...the results of that

> ultrasound were totally normal, they told me she was not tethered at

> that time.

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> Are there any specific things I should keep in mind while talking to

> the specialist? From what I've read, it sounds like early treatment

> in small infants is the best chance at complete correction.. .I have

> downloaded and begun reading Dr. Mehta's article and I plan to start

> there.

>

> I thank in advance anyone who made it through this long post. It

> still feels a little like this is all a bad dream or something.

>

> Thanks,

>

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