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At 10:31 AM 10/3/2004, you wrote:

>I am sorry if I have sounded cruel or unfelling here it is not my

>intention, nor is it the way I feel, but it seems now I am

>experienceing both sides of the coin and that is truly confusing to

>me. I want to be good and do right till the end of my days, but I

>know that it is inevitable no matter how hard I try there are those I

>am going to hurt. God be with you all....Hugs...Patti

You don't sound cruel or unfeeling at all, Patti! I welcome your

input. Sometimes the frustration of dealing with things you don't

understand (and some you do understand too well!) just builds up to the

point where you have to blow off some steam. I understand that the brain

is strange, and I'm trying hard to cope with the fact that my mother can

have violent tremors when lifting a spoon, so that she has to be fed, but

can then pick up a cup the next moment and be perfectly steady. Or can put

her hand right on the box of Kleenex and be told that's it, that's what

she's looking for, and say, " I can't find it, you'll have to give it to

me. " I don't know why those things happen, but I'm trying hard not to

assume they're purposeful. And I do so appreciate your voice here because

it reminds me that I'm not seeing the whole picture. None of us are.

I've said it before and I will continue to say that I think your

bravery in coming here and talking to us with such candor is nothing short

of phenomenal. Thank you so very much.

dargie

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Thank you Dargie,

I am so glad you understood what I was trying to say. I appreciate

your support and understanding....Hugs...Patti

> >I am sorry if I have sounded cruel or unfelling here it is not my

> >intention, nor is it the way I feel, but it seems now I am

> >experienceing both sides of the coin and that is truly confusing to

> >me. I want to be good and do right till the end of my days, but I

> >know that it is inevitable no matter how hard I try there are

those I

> >am going to hurt. God be with you all....Hugs...Patti

>

> You don't sound cruel or unfeeling at all, Patti! I

welcome your

> input. Sometimes the frustration of dealing with things you don't

> understand (and some you do understand too well!) just builds up to

the

> point where you have to blow off some steam. I understand that the

brain

> is strange, and I'm trying hard to cope with the fact that my

mother can

> have violent tremors when lifting a spoon, so that she has to be

fed, but

> can then pick up a cup the next moment and be perfectly steady. Or

can put

> her hand right on the box of Kleenex and be told that's it, that's

what

> she's looking for, and say, " I can't find it, you'll have to give

it to

> me. " I don't know why those things happen, but I'm trying hard not

to

> assume they're purposeful. And I do so appreciate your voice here

because

> it reminds me that I'm not seeing the whole picture. None of us

are.

> I've said it before and I will continue to say that I

think your

> bravery in coming here and talking to us with such candor is

nothing short

> of phenomenal. Thank you so very much.

> dargie

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Hello Donna R.,

You know your mother I do not and would not presume to make any kind

of a decision. I only know that with my mother and even with myself

some timeswe can do things and a few minutes later we may not be able

to do that thing at all.

I am sure you have experienced times when you could easily remember

someones name and then anoter time may not be able to remember it at

all even though you know who they are. I think everyone does this on

occasion due to stress or preoccupation.

That is the way this disease works. you never know one moment to the

next what you are going to be able to do all I can do is try and I

feel if I do that then I have done my best.

I am sure that there are those that like they did when they were

children use things just to get attenetion. Perhaps out of fear or

other reasons. I just think that this should be monitored and the

patient given the benefit of the doubt as it could be what is

happening in the brain. We operate daily with a damaged brain and I

think depending on what part of the brain is affected most is why we

get the differences in actions.

I am sorry if I offended you as that was not my intention. Please

forgive me.....Hugs...Patti

> Patti, and others,

>

> I want to clear up what I said about " faking it " I do not mean

that LBD

> people fake it. I mean that what lots of caregivers think so

because

> sometimes they can do exactly what they need to and the next minute

they

> can not do the very same thing. Especially they are good with

doing the

> things they like to do or eat something they like.

>

> I, in no way wanted to imply they are actually faking it. It is a

> refrain many caregivers talk about.

>

> Sorry Patti to imply any thing else.

>

> Donna R

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Patti,

You have not offended me. I was trying to say it only appears as

faking. I believe you are right and sometimes I can and sometimes I

cannot do the same thing.

I did not not mean to offend you.

Donna R

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At 02:23 AM 10/4/2004, you wrote:

>Patti, and others,

>

>I want to clear up what I said about " faking it " I do not mean that LBD

>people fake it. I mean that what lots of caregivers think so because

>sometimes they can do exactly what they need to and the next minute they

>can not do the very same thing. Especially they are good with doing the

>things they like to do or eat something they like.

Exactly! I know it's just paranoia on my part to think it, and to

be honest I do have sufficient reason to believe it of my mother who used

to fake all sorts of things when she was well. This irony is not lost on

me, but I do know better. It's just sometimes very hard not to get

snappish about it because you never know where you're at. Just this

morning I turned around for, literally, like five seconds to get her

insulin out, and when I turned back there was orange juice all over everything!

And then, you just pray that one day they'll smile and say, " You

got me. Yeah I've been yanking your chain all this time. " and you'll be

pissed, but you'll have your LO back. Believing in " faking it " is

sometimes the way we deny the loss we're feeling and the greater one we

sense just around some as yet unturned corner.

d.

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Dargie noted:

And then, you just pray that one day they'll smile and say, " You got me.

Yeah I've been yanking your chain all this time. " and you'll be pissed, but

you'll have your LO back.

********************

Uh huh - right before you win the lottery! <g>

carol

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  • 3 years later...

Welcome back Melodie... I'm more off than on the group... so busy with my

four young'uns. This week Kayla turns 7, which means for a couple of weeks

that I am the mother of four who are 7, 8, 9 & 10! (Tony turns 11 in

October)

Elle *^_^*

----- Original Message -----

From: rjsmagic

Hey group; Melodie in Colusa here. Been off the boards for awhile and came

back on cuz I missed all the conversations about WLS. -- Melodie in Colusa

(6 years post op in June 2008.)

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