Re:

[Guest guest]

Hi -

Job well done. This saved dignity, and got the POA in place.

Sandie

-- Re: Social Security/Representative Payee

cbhillman wrote:

> Sandie recalled:

>

> My POA also gave me full rights to decisions of my dad. It was my

decision

> on all financial and medical issues.

>

> ******************

>

> Thank goodness you knew about LBD and your dad's particular situation. It

> is SO much harder - and believe me - I know whereof I speak! - when the

POAs

> think they know way more than they really do and/or are actually in

denial!

>

> (sigh)

> carol

The way I got my POA for my dad was that my mom said " wouldn't this be a

good idea, I'm going to do it and you should too - just in case

something happens " . That way it didn't seem like we were suggesting

that something was wrong currently (since he was DEEP in denial), just a

sort of insurance policy for the future.

[Guest guest]

Hi Sharon, My mom was also given Roximol. I was affraid that we overdosed her

but I guess not. I too talk to my mom every day. She was my best friend also.

We have such good memories. She was a big part of my life. It is so good to

talk to someone who feels the same way.

Thank you,

Sharon G wrote:

Hi -

My heart goes out to you.

I have those same feelings as you said " i want my mommy back "

I too am thankful she no longer has to deal with LB which robbed her

of so much yet some days it hurts so bad. At one point after she

passed away, i wanted her back even with her LB, just so i could

touch her again.

My mom's last days were very peaceful. They were giving her a liquid

morphine (Roximal it was called i think?) and she showed no signs of

pain or suffering.

I was told that when they are ready to die, to give them or try to

force them to eat is like when you or i would be sick and we don't

feel like eating..... i'm told that's what it would be like for then

so really i don't feel or i don't want to feel she starved....she

refused food and was ready to beat LB.

Your mom wouldn't want you to feel guilty so please don't think

you did anything wrong. You loved your mom and she knows that.

I know she wants me to be happy and so does your mom.

My mom always worried about our feelings and didn't want us to be sad

or down. I would be the same way if i passed away, i don't want my

kids to sad and down alot so i really try not to let the thought of

her not here with me anymore get to me and think of the good times we

had together. I still talk to her everyday. I hope she can here me.

It helps me some.

You sound like you were a wonderful daughter . I'm sure your mom

was proud of you and she wouldn't wasnt you to feel guilty about

anything.

I'm just so sorry this disease exist.

Take care and i'm sending you my prayers.

Hugs-

Sharon G.

Welcome to LBDcaregivers.

[Guest guest]

,

Had saved your message and was wondering what happen to your Mom? Has

the hospital closed and did you find a placement for your Mom?

Donna R

Do you want to read more about Lewy Body? You can also read the

Thistle, the LBD Newsletter. Just click on:

http://www.lewybodydementia.org

[Guest guest]

>

> ,

>

> Had saved your message and was wondering what happen to your Mom?

Has

> the hospital closed and did you find a placement for your Mom?

>

> Donna R

>

> Do you want to read more about Lewy Body? You can also read the

> Thistle, the LBD Newsletter. Just click on:

>

> http://www.lewybodydementia.org

Thank you for asking Donna

No information as been given to any of the relatives concerning a

closure date or what is too happen, regarding the patients. Those we

have been told to ask say " they do not know " it is a real farce.In

my opinion it was announced near to Christmas to stifle any debate

on the issue. with all the pen pushers off on an early holiday.

to repeat my self, many thanks for asking and i will let you know

any developments.

take care

john. Blackpool. England.

[Guest guest]

Dear

Sending you heartfelt thoughts, our sincerest condolences

and keeping you in our prayers.

Sandie and

-- mom died

Mom died unexpectantly this morning. As you may remember from my recent

posts she was having lots of congestion and chanting and praying aloud alot.

Now I understand it.

Thank you for your support and bless you all down this difficult road,

[Guest guest]

, have you kept a diary of what you eat to perhaps show the doc, now

its doctor Z, but just to show them and perhaps that way maybe they can help

you pinpoint what is going on with you. Just keeping a simple journal of what

happens and what you ate will give you an idea of what to avoid, plus give

the doc and idea. I know it is a pain to keep, but when you are having

problems, sometimes that is the best a person can do.

I am glad things are working out better for you. Glad you worked through it

and I know what it is to have bad days. I have had clinical depression and

used to be on meds for it, now I have different things I do to get through it

when I have my bad days, but mostly to remind myself that, " this too shall

pass. " Get as much natural light as possible in my house or around me and

realize that every day cannot be perfect. Maybe even curse under my breath if

it

comes to that, but just know it will go away.

Do you do protein drinks? I am horrible able doing as many as I feel I

should, so I am not going to get on a soapbox about that, just that sometimes

it

helps some people. As I have said, I have been truly blessed in that I have

been able to pretty much eat everything. I do try to eat healthy though. I

think I actually am more aware of what I put in my mouth now than at any other

time of my life. I want the best for myself. I am finally making a point of

making myself important. I raised five daughters, and they were always the most

important. Now I only have the one home, and of course she is my most

important thing, but I am at least second now.

Pearl

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

[Guest guest]

Pearl,

No, but I can do make a list of what I ate. I can at least go over this

week, as I pretty much remember what's went on. Before that, who knows?

I'm pretty much a creature of habit, and if something works to eat, I

generally tend to eat it often, since there's so little that seems to

agree with me these days.

Protein drinks are good. I do a Revival soy drink in the morning, and if

I can get one down, one at night before bed. I pretty much get most of

my protein in that way, I think. I was making smoothies with Unjury

protein powder and a Weight Watchers Smoothie mix, but I ran out and

haven't been able to replace it yet. Since I had the Revival drinks

(even though I don't like them a whole lot), I decided not to waste a

valuable resource and have been drinking them.

As far as depression goes, it's hereditary and organic in my case. 3 of

the 4 medications I'm on are psych meds, and they mostly work really

good. I am quite stable most of the time. That's why I couldn't figure

out what all played into me doing the spin when I found out Dr. K

couldn't see me. I very rarely get as upset as I was on Monday. I work

really hard on having a positive attitude because I think it helps in

all kinds of ways. Oh, well, I just had a bad couple of days, and they

passed, too.

Well, I'm off to rest. Take care of yourself and let me know how you are

doing.

Thanks for all the help.

Love and blessings,

< Re:

, have you kept a diary of what you eat to perhaps show the doc,

now

its doctor Z, but just to show them and perhaps that way maybe they can

help

you pinpoint what is going on with you. Just keeping a simple journal of

what

happens and what you ate will give you an idea of what to avoid, plus

give

the doc and idea. I know it is a pain to keep, but when you are having

problems, sometimes that is the best a person can do.

I am glad things are working out better for you. Glad you worked through

it

and I know what it is to have bad days. I have had clinical depression

and

used to be on meds for it, now I have different things I do to get

through it

when I have my bad days, but mostly to remind myself that, " this too

shall

pass. " Get as much natural light as possible in my house or around me

and

realize that every day cannot be perfect. Maybe even curse under my

breath if it

comes to that, but just know it will go away.

Do you do protein drinks? I am horrible able doing as many as I feel I

should, so I am not going to get on a soapbox about that, just that

sometimes it

helps some people. As I have said, I have been truly blessed in that I

have

been able to pretty much eat everything. I do try to eat healthy though.

I

think I actually am more aware of what I put in my mouth now than at any

other

time of my life. I want the best for myself. I am finally making a point

of

making myself important. I raised five daughters, and they were always

the most

important. Now I only have the one home, and of course she is my most

important thing, but I am at least second now.

Pearl

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

( http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002

<http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002>

)