Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Hi Holly, and all =) " Ghost Lump " is my name for lumps that USED TO be there, but have gone away. There's still a bruise where it was, or an indentation . . . but every once in a while I'll get that familiar pain there, as if the lump is back. I feel around for one, but it's not there . . . so I call it a 'ghost lump'. How's that? M =) > > Hope everyone had a good holiday. It was a stressful time here. I > noticed yesterday that my calf was kinda sore..like aching, then last > night I thought I could feel a new lump starting..then this am and > right now I AM SOOOOOO TIRED. I checked my leg again and now I don't > feel any new lump!? This is odd. Has anyone else experienced this? > > I also wanted to know if someone could define, " ghost lump " . Is this > where a lump once was or where there is still a lump under the skin > when it has appeared that it has healed? > Mine never really " go away " . > > Holly H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 Hi (like your moniker) Welcome to the group and sorry you have to be here. Is there any way that your mom can stay home with in-home help before making the leap to AL? I say this because you mentioned that your mom has lost so much in the last year. Either way, I think you should put some thought into getting some help (do you have siblings) so that you can have a life and make sure that mom is safe at all times. Hang in there, Courage garagefullofcrap wrote: > > Hi, my name is . My Mom was diagnosed with LBD last week and I > found this group from one of the many websites that I've read the > last 5 days! > > My Mom has had all of the classic symptoms of LBD starting in 2000 > but the doctors did all the tests possible (and I mean all) and > couldn't find anything " wrong " . But she was falling, stumbling, > having hallucinations at night (walking dreams). I only wish I had > found out about LBD earlier I might have been able to get her on > meds before so much of her memory and had gone. > > My Dad died in May and Mom has just gone down hill fast from there. > The hallucinations are so frightening and she is getting lost all > the time. She is living alone in a one floor condo, which is nice, > but I'm worried about her being alone. > > Looking for suggestions: re when do I get firm and make her move > into assisted living?? I'm so afraid she'll hurt herself but it > just tears at my heart to make her move after she's lost so much > this year. > > She started Reminyl on Wednesday and she is going on another drug > (Numada????) in 3 months. > > Thanks for reading! > > > > > > > > > Welcome to LBDcaregivers. > > > > > --------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 Hi , like someone else mentioned - sorry you have to be here. My dad is in year 3 of his diagnosis but symptoms had been there for a long time before. We nursed him for 2 years at home FULL ON I have one sister and my mother lived with him at home. However at 78 my mother was only a 'figurehead' as carer really as me & my sister did everything, we were with them both every single day on alternate days at their home, and at times we had crisis pile on top of crisis. We eventually were more or less forced by social services to have some help at home....and for a time it worked and worked well but my dad always had my mum there in the nights etc. Finally in March last year we had an incident where he put himself and my mum in danger and we had to then initiate permanent care. He is in a local hospital in a speicalist dementia unit. So I don't thing there's any way to 'guess' when your mom would need assisted living etc. it's very hard and different from one patient to the next. However all I can say is I DID get to almost having a breakdown with the strain of home care and last year I had to have a lot of help to get on my feet again - the strain builds up without you realising it and before you know it you get ill yourself. Use every available help that you can and your instincts from then on in should guide you as and when your mom needs different accommodation or hospital or whatever, all you can do is your best so no-one will EVER judge you for that. Hang on in there, there's many of us in the same boat. Kathleen. Hi Everyone Hi, my name is . My Mom was diagnosed with LBD last week and I found this group from one of the many websites that I've read the last 5 days! My Mom has had all of the classic symptoms of LBD starting in 2000 but the doctors did all the tests possible (and I mean all) and couldn't find anything " wrong " . But she was falling, stumbling, having hallucinations at night (walking dreams). I only wish I had found out about LBD earlier I might have been able to get her on meds before so much of her memory and had gone. My Dad died in May and Mom has just gone down hill fast from there. The hallucinations are so frightening and she is getting lost all the time. She is living alone in a one floor condo, which is nice, but I'm worried about her being alone. Looking for suggestions: re when do I get firm and make her move into assisted living?? I'm so afraid she'll hurt herself but it just tears at my heart to make her move after she's lost so much this year. She started Reminyl on Wednesday and she is going on another drug (Numada????) in 3 months. Thanks for reading! Welcome to LBDcaregivers. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 I also posted this on the other group but I wanted to get everyone together for dinner sometime soon. So far, I have Marta and Don and I would love to get a group of us to go. Pearl, I know you live in Fresno so I would love to see you- we never had lunch. I have known many of you for 6 years but have never met some. It is about time, dontcha think. Tell me what you guys think and I would love to set something up. Hugs, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Oh, I don't know Vicki, I sort of enjoy being the " mystery man " in your life. J From: DS_Friends_Keshishian [mailto:DS_Friends_Keshishian ] On Behalf Of vicki Sent: Wednesday, November 19, 2008 7:22 AM To: DS_Friends_Keshishian Subject: Hi everyone I have known many of you for 6 years but have never met some. It is about time, dontcha think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Vicki My heart is willing to join you all for a meal! But here lately I seem to be busier than ever before...heck over half the time I'm not even in Bakersfield as I'm spending a whole bunch of time at Pismo. So it would just all depend on Which town I'm in and what else I have going on at the time...but if you set a time and date I will Try to join you if it is possible. Hugs Jo Quote Link to comment Share on other sites More sharing options...
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