Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Noelle, There is so often confusion about carnitine, carnosine carnAware CarnOware. The hot one in autism at the moment seems to be Carnosine(which is in Carnaware). This is something I posted recently just in case it is the one you were after. Jon. carnitine Someone posted an article about carnitine and I cannot find it. Could whoever it was send it to me please? I'd really appreciate it. thanks, Noelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Co-Investigator, 1997 until spent, " Mitochondrial Function in Patients with Autism. " Cure Autism Now (CAN) Research Grant. S. DiMauro, M.D., PI. Total costs: $30,000. (ABSTRACT). ----------------------------------------------------------------------- I would imagine they finished the study by now. Bear in mind that alot has changed since 1997. The info below relates to the abnormalities discussed in the Canadian CFS paper I just posted. As you'll see, the body is under oxidative stress in CFS. It's one of the problems that comes with a chronic illness. Cheryl Some of the info presented at...... AACFS Sixth International Conference on CFS, FM and Related Illnesses January 30 – February 2, 2003 The biannual scientific conference of the AACFS was attended by over 190 physicians and professionals from more than 14 countries. Dr. Bob Suhadolnik of Temple University (Philadelphia) headed up the session on biochemistry and genes. He began with an excellent overview of biochemistry -- nitric oxide formation, peroxynitrate, oxidative stress, elevated levels of RNaseL and PKR, decreased acyl carnitine, and increased glutamate in persons with CFS. SNIP>> Infection and Immunology was headed by Dr. Jon Hay, SUNY/Buffalo. Dr. Maher (University of Miami Medical School) described the molecular basis of immunological defects found in CFS, including activated T cells, elevated cytokines and immunoglobulins, reduced NK cell activity, and poor delayed skin hypersensitivity. His studies concluded that perforin and granzymes (used by T-cells for killing other sick or infected cells), was depressed in the T cells of persons with CFS. Also, activation of T cells is correlated with increased IL4 and decreased IL6, as typically seen in CFS. Dr. Suhadolnik (see above) described the 2'-5' OAS / RNaseL antiviral system and how the enzyme RNaseL is markedly and persistently increased in CFS but not in control or depressed persons. _________________________________________________________________ Help STOP SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 > Is anyone familiar with this supplement? My sons OAT test came back, > and this was one of the many things recommended....yet the only one > Iv never heard of. Thanks It is an amino acid, and I have heard it can be helpful for kids with low muscle tone problems. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 Karyn - I'm really bad at keeping track of websites but you can just plug in carnaware and Lake Bluff Illinois and you'll come up with the official website from the dr who developed carnaware. Sherry Karyn <KissmeKaate@...> wrote: anyone have information on carnitine/carnaware? I have a friend with a 9 yo autistic child, I had some information but very little. Any help is appreciated. ~karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 Thanks, Sherry.......I had it somewhere, too, but heck if I can find it. Thanks for your help~ ~karyn Re: [ ] carnitine Karyn - I'm really bad at keeping track of websites but you can just plug in carnaware and Lake Bluff Illinois and you'll come up with the official website from the dr who developed carnaware. Sherry Karyn <KissmeKaate@...> wrote: anyone have information on carnitine/carnaware? I have a friend with a 9 yo autistic child, I had some information but very little. Any help is appreciated. ~karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 hey would anyone happen to have an extra bottle of carnitine they are not using Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Lori, It is an amino acid which is used by the body to transport long chain fatty acids to the mitochondria in your cells, where they are burned for energy On Sep 14, 2004, at 5:19 PM, Lori Getz wrote: > What exactly is Carnitine? > > Lori Getz > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 What exactly is Carnitine? Lori Getz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 i'm new, but i once had a doc who recommended carnaware- i don't know why- but i just saw that autismcoach.com carries carnaware and talks about its benefits. i'm interested to hear what others have to say > > Anyone use/have anything to share about this supplement and who stocks > it. > Thanks > Aileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 We use it. I've bought a few different brands now. NOW brand is quite reasonable at my healthfood store, and Thorne has one also (I buy from www.illnessisoptional.com ). There is also a prescription form of it called Carnitor. We use it to help with energy level, and also another form, called Acetyl-carnitine is supposed to be similar, but helpful with the brain. We're using some of both -- can't really tell if it's helping, but it seemed like a really good thing the first few days when we started it. It's not that expensive, and seems to be quite safe, from my reading. I'll know more when I stop it for a week, to see what changes then. Terri At 03:14 PM 3/29/2005, you wrote: >Anyone use/have anything to share about this supplement and who stocks >it. >Thanks >Aileen > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 I give one of my sons Acetyl-L-Carnitine from Klaire Labs. I don't know if I see anything. I added this along with co-q10 because I heard it helps with mito. problems. > > Anyone use/have anything to share about this supplement and who stocks > it. > Thanks > Aileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Carnaware is carnosine , not carnitine....two entirely different things. On Mar 29, 2005, at 3:25 PM, catriella1 wrote: > > > > i'm new, but i once had a doc who recommended carnaware- i don't know > why- but i just > saw that autismcoach.com carries carnaware and talks about its > benefits. i'm interested to > hear what others have to say > >> >> Anyone use/have anything to share about this supplement and who stocks >> it. >> Thanks >> Aileen > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 What is mito? Carnitine helps fatty acid oxidation disorders. I was wondering if any one had usedit and saw improvement in muscle tone. Aileen > > > > Anyone use/have anything to share about this supplement and who > stocks > > it. > > Thanks > > Aileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Haven't used it as i'm reluctant to spend money on things without knowing they are needed. My son 'appeared' to have low muscle tone before we put him on the enzymes. After 2-3 months on them, his energy level increased and the problem disappeared. Had him assessed and the therapist told me he definitely didn't have low muscle tone, perhaps some difficulty focusing only. AJ Re: Carnitine What is mito? Carnitine helps fatty acid oxidation disorders. I was wondering if any one had usedit and saw improvement in muscle tone. Aileen > > > > Anyone use/have anything to share about this supplement and who > stocks > > it. > > Thanks > > Aileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Aileen, Fatty acid oxidation occurs in the mitochondria of cells, hence " mito " . My daughter takes acetyl-l-carnitine, which crosses the BBB and is useful for brain disorders, but she does not take l-carnitine, which I have indeed heard can be useful for muscle tone issues. On Mar 30, 2005, at 11:41 AM, stepbystep67 wrote: > > > What is mito? Carnitine helps fatty acid oxidation disorders. I was > wondering if any one had usedit and saw improvement in muscle tone. > Aileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 > > Anyone use/have anything to share about this supplement and who stocks > it. It can be helpful for low muscle tone. It is part of the mito cocktail for kids with mito issues. It also helps certain kids tolerate EFAs. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 my son has taken it since he has been 2 years old he is now 6 years old. It helps him with his energy level because he has such low muscle tone he tires fast.. We tired to take him off to see if it made a difference and it did a huge difference.. -------------- Original message -------------- > > Anyone use/have anything to share about this supplement and who stocks > it. It can be helpful for low muscle tone. It is part of the mito cocktail for kids with mito issues. It also helps certain kids tolerate EFAs. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 > > > i'm new, but i once had a doc who recommended carnaware- This is carnosine [not carnitine] plus zinc. It helps some kids with language and behaviors. I used it [carnosine plus zinc, not Carnaware] for about 6 months for my son. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 We had Madison's blood tested to see if she was low in carnitine and she was not. I was quite suprised becasue her tone is very low, infact the developmentalist said she was the lowest tonedbaby she ever saw (at 3 months).Would anyone recommend giving her the carnitine? I just don't want to keep adding more stuff as I don't know anything about interactions. Sharon dianaextein <dianaextein@...> wrote: I want to thank whoever posted about the interaction between carnitine and EFAs. I searched the archives but couldn't find it. Ever since I read that I started giving them at different times of the day. What a difference! I've never heard so much talking out of my son. You never know if it's just a coincidence but I've had a lot of " coincidences " when I've tweaked something. I just wanted to know if anyone knows how far or close I can space the supplements so that they don't interact. Anyone? --------------------------------- Expecting? Get great news right away with email Auto-Check. Try the Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2007 Report Share Posted August 26, 2007 /message/64370 posted this article about Creatine Synthesis Disorders /message/61959 Article: natural sources of CARNITINE /message/61196 Re: Carnitine Deficiency /message/51003 carnitine is so vital that the impact on heart and key functions of fatty metabolism etc may not be obviously clinically measurable by just watching your child - ie in changes in speech or coordination. My son doesn't have any obvious low tone, and his levels were slightly low. I believe for him it has to do with the role between EFAs and carnitine. Here is what I pieced together: http://www.dyspraxiafoundation.org.uk/professionals/rs_ajr.php The predisposition to dyspraxia and related conditions may involve mild constitutional inefficiencies of fatty acid metabolism that increase the usual dietary requirements for HUFA. These could include (a) poor EFA-HUFA conversion, ( difficulties in incorporating HUFA into brain cell membranes and/or © unusually high rates of HUFA breakdown and loss, although there are other possible mechanisms. Carnitine deficiency wrote: " In addition to impacting tone (potentially)...it is a very important component of normal fatty acid metabolism on the mitochondria level - without which energy level will be low, and there are other consequences...particularly to heart health, not to mention neurodevelopment! " Hope this helps some, Tina > > > > >I understand where you're coming from. The speech related topics are > > >few and far between. I hesitated a couple of days ago to refer a mom > > >to the group because she would probably feel like she is in the wrong > > >place. I read very few posts anymore. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2007 Report Share Posted August 26, 2007 The article I posted was on creatine, not carnitine. Is that what you meant? > > > > > > >I understand where you're coming from. The speech related topics > are > > > >few and far between. I hesitated a couple of days ago to refer a > mom > > > >to the group because she would probably feel like she is in the > wrong > > > >place. I read very few posts anymore. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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