Elle and any interested- IBS? Bowel talk-Yuck!

[Guest guest]

Hey,

I just want to know if you have tried any oral steroids as part of your

diarrhea problem? I have just had a dose pack of dexamethasone as a trial for

the numbness in my fingers. I have not had a decrease in my numbness at all,

but as an interesting side effect, My diarrhea has absolutely disappeared. I

have almost normal, almost constipated sometimes, BMs. As a matter of fact,

I ate some spinach dip and sausage balls with no explosive diarrhea. As

spunach dip is a lot of mayo and sour cream, I figured at least some diarrhea,

But had slightly softer bm (dare I say normal?) with oil in the water. OMG, it

has been so long since I saw the oil slicks, Usually having the pudding to

watery diarrhea. I don't know how long this will last but wonder if this might

be a sign tha there is an inflammatory process happening that isn't part of

the ds experience?

As a side note. I have a friend who has not had weight loss surgery. She

has recently been diagnosed with sarcoidosis. Like me she has had a huge

problem with diarrhea that worsened after her GB was removed. (My mother had

diarrhea and always blamed it on her GB being gone so I assumed it was the same

for me. ) So when they put her on oral prednisone, I was shocked to get a

phone call wanting to know what was the natural remedy for constipation! So

Maybe she was IBS also?? Maybe not so much the ds but maybe inflammation from

the loss of the GB, or just plain old IBS?

Any thought are appreciated

Mel.

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[Guest guest]

Mel

I want to thank you for bringing up the relationship with GB removal

and IBS. Never knew there may be a correlation between IBS and GB.

The next time I go to my PCP, I will bring this up. To a Doctor,

this is probably so obvious, it could be overlooked.

Before my DS, I suffered with IBS, but afterwards, OMG. I now wear

Depends as I can't make it to the restroom, even if it is next to

me. As a matter of fact, I have been checking out going on permanent

disability as I can't control it.

When I go back to my PCP I am definitely going to ask about

prednisone and dexamethasone.

Anything to help with the uncontrollable IBS.

Mel, thank you again for this info to folks like me, this info is

worth its weight in gold.

[Guest guest]

The oproblem is that if the problem responds to prednisone, The side effects

are so bad that a doc prescribing it long term are practically nil. It will

be interesting how long my bowels will be " normal " . As yesterday was my last

dose. Although if my tests come back like I suspect, I may have to go on it

for a longer period. We will see......

Mel

In a message dated 12/22/2008 12:39:07 P.M. Central Standard Time,

lkornoff@... writes:

When I go back to my PCP I am definitely going to ask about

prednisone and dexamethasone.

Anything to help with the uncontrollable IBS.

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[Guest guest]

Mel.. Sorry for taking so long to respond. I have not taken any oral

steroids. I tried to get the doctor recently to prescribe some as an

aggressive treatment for the lichens sclerosa (recommended treatment in the

handout the doctor at my clinic gave me)... but they refused. It would have

been nice to see what it would have done.

I am much much better, but it has taken me a couple of months to get here.

It has been a very hard fall with the kids and I have been distressed almost

beyond my capabilities. Finally, I have pretty much resolved that I will

just be as good a mother as I can be... and the rest is in God's hands.

Things are better here... and I am better both physically and emotionally.

In our last town I was involved in everything, but here I am involved in

very little. Partly that depresses me, but then I have less to distress me

because I have few commitments here.

Christmas was pretty good. It can be a difficult time for adopted children,

and it was for our Kayla... but all in all it was a good day. I do think

next year that I will focus more on the kids giving rather than just

receiving. We usually do more -- like with a giving tree, but I just didn't

get it together this year.

As always, Bobbe was so thoughtful with my kids again. They have no

Grandparents, so it is such a delight for them when they get their card and

gift from Bobbe. You are such a delight Bobbe to my family, Bobbe.

Much love in this holiday season to you all. A belated Merry Christmas, and

may 2009 bring you happiness and health!

Elle **

----- Original Message -----

From: MDL1031@...

Hey,

I just want to know if you have tried any oral steroids as part of your

diarrhea problem? I have just had a dose pack of dexamethasone as a trial

for

the numbness in my fingers. I have not had a decrease in my numbness at all,

but as an interesting side effect, My diarrhea has absolutely disappeared. I

have almost normal, almost constipated sometimes, BMs. As a matter of fact,

I ate some spinach dip and sausage balls with no explosive diarrhea. As

spunach dip is a lot of mayo and sour cream, I figured at least some

diarrhea,

But had slightly softer bm (dare I say normal?) with oil in the water. OMG,

it

has been so long since I saw the oil slicks, Usually having the pudding to

watery diarrhea. I don't know how long this will last but wonder if this

might

be a sign tha there is an inflammatory process happening that isn't part of

the ds experience?

As a side note. I have a friend who has not had weight loss surgery. She

has recently been diagnosed with sarcoidosis. Like me she has had a huge

problem with diarrhea that worsened after her GB was removed. (My mother had

diarrhea and always blamed it on her GB being gone so I assumed it was the

same

for me. ) So when they put her on oral prednisone, I was shocked to get a

phone call wanting to know what was the natural remedy for constipation! So

Maybe she was IBS also?? Maybe not so much the ds but maybe inflammation

from

the loss of the GB, or just plain old IBS?

Any thought are appreciated

Mel.

[Guest guest]

Why do they resist oral steroids? At least a dose pack at the worst. My pain

docs usually allow me one or two a year. I know they are bad stuff, but

given the alternative, the side effects for a short period would not be

horrible.

FYI, My diarrhea has returned. Christmas or the dose pack ended?

Mel

In a message dated 12/27/2008 7:40:47 P.M. Central Standard Time,

e1@... writes:

I tried to get the doctor recently to prescribe some as an

aggressive treatment for the lichens sclerosa (recommended treatment in the

handout the doctor at my clinic gave me)... but they refused. It would have

been nice to see what it would have done.

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[Guest guest]

In a message dated 12/27/2008 7:40:47 P.M. Central Standard Time,

e1@... writes:

I am much much better, but it has taken me a couple of months to get here.

It has been a very hard fall with the kids and I have been distressed almost

beyond my capabilities. Finally, I have pretty much resolved that I will

just be as good a mother as I can be... and the rest is in God's hands.

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[Guest guest]

Elle,

One other thing....If the illness you described is autoimmune, any

autoimmune problems are exacerbated with stress. I do know IBS is made lots

worse

with stress. Try to relax as much as possible with the kids. I know how it is

to deal with kids and no grandparents. Both mine and Toms momma's died when

they were 5 and 3 yrs old. Not only is it harder at Christmas and holidays

but you also have no one to take the kids and give you a rest. Your amazing to

take in those kids. I know I couldn't do it.

Mel

In a message dated 12/27/2008 7:40:47 P.M. Central Standard Time,

e1@... writes:

I am much much better, but it has taken me a couple of months to get here.

It has been a very hard fall with the kids and I have been distressed almost

beyond my capabilities. Finally, I have pretty much resolved that I will

just be as good a mother as I can be... and the rest is in God's hands.

**************One site keeps you connected to all your email: AOL Mail,

Gmail, and Yahoo Mail. Try it now.

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