Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Hello all, my ll year old son was just diagnosed with OCD. My son has been wearing band aids on his fingers for the past 3 years. At one time or another he had cuts or peeling skin under those band aids but has been unable to take them off for any length of time. He says it feels funny without them. He has other obsessive behaviors as well. He sharpens his pencils to excess. He has to have all his favorite things in a specific order and he has a favorite toy when he is at home that if he can't find it he can't deal. We havent' put him on meds yet. The Dr. wants to explore all avenues first. I So I have questions for this community. Here it goes... 1) has anyone here checked into PANDAS? My son has had many cases of streph throat 2) Has anyone had success with Luvox? This is the med we are considering putting him on. 3) has anyone's child had Sensory Integration issues as well as OCD? I am currently in the process of getting him an OT eval. Also any books you all recommend. We really want to come together as a family to support him. Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 My daughter was diagnosed with PANDAS over 6 years ago. If your son has had a lot of strep and is showing OCD symptoms or tics, it is really important to rule out pANDAS. Have you noticed an increase in symptoms around the time he has had strep? A lot of children with PANDAS do NOT show many physical symptoms with strep so it is easy to have strep and not know it. I see only behavioral symptoms when my daughter has strep. She rarely has any physical symptoms (fever, sore/red throat). > > Hello all, my ll year old son was just diagnosed with OCD. My son > has been wearing band aids on his fingers for the past 3 years. At > one time or another he had cuts or peeling skin under those band aids > but has been unable to take them off for any length of time. He says > it feels funny without them. He has other obsessive behaviors as > well. He sharpens his pencils to excess. He has to have all his > favorite things in a specific order and he has a favorite toy when he > is at home that if he can't find it he can't deal. We havent' put > him on meds yet. The Dr. wants to explore all avenues first. I So I > have questions for this community. Here it goes... > > > 1) has anyone here checked into PANDAS? > > My son has had many cases of streph throat > > 2) Has anyone had success with Luvox? > > This is the med we are considering putting him on. > > 3) has anyone's child had Sensory Integration issues as well as OCD? > > I am currently in the process of getting him an OT eval. > > Also any books you all recommend. We really want to come together as > a family to support him. > > Thanks so much! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 He has had a lot of streph infections. One really really bad case when he was 5. It had spread to his nose and ears and he had to miss a whole week of school. I didn't notice if the symptoms began after a case of streph. He has been suffering from OCD symptoms since about 6 years old but wasn't diagnosed until just recently. In fact he just got over a streph infection last week. His symptoms were about the same. I had a counselor telling me he didn't meet the criteria. That counselor left the agency we go to and the new counselor disagreed with her assesment. Last week we visited the psychiatrist who officially diagnosed him. She wants me to look into PANDAS and he has to have some blood work. Some antibody test. Is that how your child was diagnosed with PANDAS? > > > > Hello all, my ll year old son was just diagnosed with OCD. My son > > has been wearing band aids on his fingers for the past 3 years. At > > one time or another he had cuts or peeling skin under those band > aids > > but has been unable to take them off for any length of time. He > says > > it feels funny without them. He has other obsessive behaviors as > > well. He sharpens his pencils to excess. He has to have all his > > favorite things in a specific order and he has a favorite toy when > he > > is at home that if he can't find it he can't deal. We havent' put > > him on meds yet. The Dr. wants to explore all avenues first. I So > I > > have questions for this community. Here it goes... > > > > > > 1) has anyone here checked into PANDAS? > > > > My son has had many cases of streph throat > > > > 2) Has anyone had success with Luvox? > > > > This is the med we are considering putting him on. > > > > 3) has anyone's child had Sensory Integration issues as well as > OCD? > > > > I am currently in the process of getting him an OT eval. > > > > Also any books you all recommend. We really want to come together > as > > a family to support him. > > > > Thanks so much! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Welcome, Barb. Are you in Redmond, Washington? Just curious, because of the redmond after your name. We live near the capital city of Olympia, in Washington. So glad you found us and that you are here. This is a great group. In answer to your questions. .. . There is a titre test that can be done to check for PANDAS. It is done through a blood test. Our son also dealt with repeated strep, when he was young. He was on antibiotics for months and couldn't get rid of it. After a few months, where they kept going to stronger and stronger antibiotics, he finally tested negative. We always wondered what role that played in his OCD. So, it's always a good idea to go ahead and have the titre test done, if strep has been a problem. There are a few in here that have used Luvox with success. I'm sure there will be some who used it who can share their experiences with you. Our son is on Celexa. We chose that because other family members had used it with success. And since it worked for him, we've stayed with it. Many have sensory issues along with their OCD. Our son also does. Occupational therapy is the way to address that. We've not done that because it's not in our budget, but some in here have and have had improvement. Some great books are: What to do when your Child has Obsessive-Compulsive Disorder by Aureen Pinto Wagner Ph.D. Freeing Your Child from Obsessive-Compulsive Disorder by Tamar E. Chansky Helping Your Child With Ocd: A Workbook for Parents of Children With Obsessive-Compulsive Disorder by Lee Fitzgibbons and Cherry Pedrick Talking Back to OCD by March The last two are workbooks that walk you through CBT and ERP Reading and learning about OCD is VERY helpful. Knowing what you are dealing with and treatments that work, will give you hope. We all need that. Finding a qualified therapist can be tricky and hard, but very worth it. Our son is seeing a specialist for the first time, and it is making a world of difference. They must know ERP (Exposure and Response Prevention) and CBT (Cognitive Behavioral Therapy) that is specific to OCD. Family support is sooooooo important. OCD affects the whole family, so it's important all understand it. You are on the right track. :-) BJ > > Hello all, my ll year old son was just diagnosed with OCD. My son > has been wearing band aids on his fingers for the past 3 years. At > one time or another he had cuts or peeling skin under those band aids > but has been unable to take them off for any length of time. He says > it feels funny without them. He has other obsessive behaviors as > well. He sharpens his pencils to excess. He has to have all his > favorite things in a specific order and he has a favorite toy when he > is at home that if he can't find it he can't deal. We havent' put > him on meds yet. The Dr. wants to explore all avenues first. I So I > have questions for this community. Here it goes... > > > 1) has anyone here checked into PANDAS? > > My son has had many cases of streph throat > > 2) Has anyone had success with Luvox? > > This is the med we are considering putting him on. > > 3) has anyone's child had Sensory Integration issues as well as OCD? > > I am currently in the process of getting him an OT eval. > > Also any books you all recommend. We really want to come together as > a family to support him. > > Thanks so much! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2011 Report Share Posted July 18, 2011 Thanks for the info, .I am new too & I am also thinking about Chartered school.My son which has autism.He is consider high function, his comprehension & socialSkill are still delay.He was lack of sense of surrounding & what others perception.He was 12. By paper he know what is right or wrong but he is stll doing the talking alone, giggle, jumping & sitting appropriately, tend to slouch instead of sitting straight. After an event fromAfter schoolProgram for cleaning the environment, he started to have this habit: picking stuff from aspalt, taking out bubble gum from wall & many others. His peer think he is weird & they are avoiding him cause his behavior.I'd love to hear some feedback from others more about social skills in real life. He has social story from speech but I dont know whether he use the skill in other setting.FloSent from my iPhone I would join a homeschooling online group in your area. I can tell you that unlike popular belief that if the Mom makes socialization a priority these children socialize just fine. My neighbor homeschools her kids and the kids get together at least once a week, well twice actually. Once on Sunday's for church (and they usually do something after like a picnic, etc) and usually once during the week. The Mom's get together in Aug. at someones house and plan activities and field trips for the entire year!! It's so awesome!! Have you looked into cyber schools? To: autism-aspergers Sent: Sun, July 17, 2011 11:15:25 PMSubject: New to the group Hi there,I'm new to the group. From what I can tell so far, this group is so full of amazing information. I have 2 sons, one is 7 and the other is 4 months. My 7 yo was diagnosed with Aspergers and Sensory Integration Dysfunction in June 2011 at Kluge Children's Research facility in Charlottesville, VA. They also did not rule out ADHD and suggested ADHD medication if necessary. I was very shocked. I didn't expect Aspergers at all (although I've always suspected my dad as well as my mother's cousin of having it). I had quite a few preconceived notions about Aspergers that I have since found out are not always true. My ds is smart, funny, athletic and generally fun to be around. You put him in a public school setting and he just disintegrates. All I heard the entire past year was how much he hates school (over and over and over). He had a couple blow-up/episodes with a couple children in his class at the beginning of the school year (he says horrible things when he gets mad including "I'm going to blow up the school, I'm going to electricute you, etc.") I put him on the Feingold diet per recommendation by his pediatrician and we had almost instantanious results with hyperactivity. I found out he is very sensitive to artificial colors. Many other smaller health issues also went away (stomachaches, constipation, headaches). His intense negative attitude toward school continued throughout the school year. It would get so bad he would be throwing up on Sunday night before he had to go back to school. I volunteered in his classroom to get a feel for what is going on. He was always completely bored and looked completely sullen when I was there. I'm now considering homeschooling for 2nd grade. This child plows through material and loves it. I taught him to read at 4 with "Teach your child to read in 100 easy lessons." I'm just afraid of losing out on the social aspects of school that Aspies really need. He does taikwondo, boys gymnastics, swim team, soccer, cub scouts and plays with the girls in our neighborhood (there are no boys). Is this enough socialization?I would love to hear from others about homeschooling their Aspergers children.Thanks,Kristy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.