Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Hi Bj. Yes, the zoloft seems the same as celexa, in terms of an immediate response. It's hard to know whether it's the mood that is affected or the OCD, since boosting either makes coping easier. It seems to me that it might be more the mood that is affected and then he is able to cope better, but the edginess about contamination stuff is less too. He is more of his silly, annoying self, more talkative too, what used to only annoy we now are so happy to see! Now of course I'm watching to see if this will slide into hypomania if we up the dose...hard not to be apprehensive given past experience. Both his psychiatrist and psychologist are away for 2 weeks now. I swear this happens every time we make a drug change! It's almost like they don't want to be around for any fall out (I'm not this paranoid really), it's uncanny though. He is only at 50mg and I'm trying to decide whether to increase to 75mg or 100mg. We were given no instructions, not even a refill, had to call and ask secretary to ask the replacement doctor and just told them the dose of 50mg, so now I can go to the pharmacy and ask them to give me 25mg capsules so I can control the dosing. So it goes around here where you figure it out on your own. I know it's not that they don't care at all, they are just so busy and really don't know what to do half the time anyway. We are enjoying the relatively peaceful time and hoping this will be a positive gain. brushed his teeth for the first time in a year(?), ok, I did the brushing...but he let me! At least we might avert having his teeth fall out or worse. Such is life living with OCD when you celebrate being able to brush your 16 yr olds teeth! Thanks for asking! Glad you are out in the garden enjoying sunshine. So good to have spring! Hugs! Barb > > ************* > We are at > the point where we will now tell our doctor what we are prepared to > do re medication. Our experience is that they are way too cavalier, > after all they don't have to come home and live with our kids! > ************* > > I hear you, Barb! So very true. We have to be our kid's advocate. > We finally started seeing improvements and positive results when we > became knowledgeable and was driving the bus, so to speak. > > How's your son doing on the new meds? Noticing anything yet? I > remember he reacted to the Celexa as a low dose, rather quickly. Is > he doing the same on the Zoloft? > > My thoughts and prayers are with you. > > Hugs, > BJ > > > > > > Hi Diane. I have responded to two strands below. > > > > > My daughter will have terrible meltdowns if she wants something and > > > can't have it immediately. It's like she gets locked-in. And once > > > the meltdown is over, she often will never mention it again. Is > > this > > > OCD????? > > > > Yes! Exactly as you say " she get's locked in " . There is actually a > > really good book that describes this phenominon well, " Brain Lock " , > > Schwartz. Our son is the same, and was impossible when younger. He > > is also what I would call " intense " , somewhat like his mother...not a > > good combo! > > > > if the Strattera could be causing more of this. She gets very > > > aggressive, and will hit and throw things at me. It is very hard. > > > Intellectually, I know it's not her fault, but emotionally I feel > > > attacked, abused... > > > > Again, in my unprofessional opinion, yes on both counts. We deal > > with the aggressive stuff here too. I know how hard and upsetting > > this is Diane. Even though you know they are not well, since it is > > directed at you it is hard to not take it personally. It is really > > important that you have boundaries around this, remain as calm and > > neutral as possible(believe me I know this is hard), and have a plan > > for next time. > > > > If you are able to discuss what the triggers are for your daugther > > that make her " go off " you can try asking her to cue you(with a word) > > when it happens so you can stop doing whatever, and perhaps give her > > space, or ask her to take some space for herself. If you can put the > > problem solving into her hands so she has a sense of control over it > > (not sure what age you are dealing with), but since it is a loss of > > control that sets off the rages, any way they can take back some > > control is helpful. > > > > It's really important to get a handle on this, your daughter cannot > > be allowed to be abusive toward you, no matter how sick she is. You > > can be firm and compassionate and say I am going to help you to not > > do this, we need to find a better way to deal with this. You need to > > be " in control " where she cannot. We have lived this road for almost > > 2 years, it is not fun I know, and finding answers is a process. > > > > Re Strattera - I find without medication, or enough of it the OCD is > > worse and there is anger and aggression because of the inability to > > cope; and I find with too much, or wrong medication we get more, and > > more severe aggressive behavior. So, our answer has been to stay on > > a lower dose of ssri to " take the edge off " , because high dose just > > causes more problems. > > > > At the moment we are trying a new ssri, so we'll see how it goes, but > > intend to stay on the lower end. My, again, unprofessional opinion > > is that since these kids seem to have hypersensitive nervous systems > > they can have big reactions to changes of any kind, including > > medications, finding that " magic " dose and combo is an artform. > > > > I think many doctors don't know how to dose these kids, so it's good > > to really keep a record and watch and decide for yourself. We are at > > the point where we will now tell our doctor what we are prepared to > > do re medication. Our experience is that they are way too cavalier, > > after all they don't have to come home and live with our kids! > > > > Hang in there! > > Hugs! > > Barb > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 How inconvenient, Barb, to have them gone right after he started new meds. Yikes! It's nice to have someone you can call if things fall apart. It makes me think of the holidays. It seems every time Josh gets really sick, it is over a holiday when you cannot get a hold of a doc. FRUSTRATING! Hoping for you. It is great to have spring. Chirks your spirits up to see the sun. Hugs, BJ > > > > ************* > > We are at > > the point where we will now tell our doctor what we are prepared to > > do re medication. Our experience is that they are way too cavalier, > > after all they don't have to come home and live with our kids! > > ************* > > > > I hear you, Barb! So very true. We have to be our kid's advocate. > > We finally started seeing improvements and positive results when we > > became knowledgeable and was driving the bus, so to speak. > > > > How's your son doing on the new meds? Noticing anything yet? I > > remember he reacted to the Celexa as a low dose, rather quickly. Is > > he doing the same on the Zoloft? > > > > My thoughts and prayers are with you. > > > > Hugs, > > BJ > > > > > > > > > > Hi Diane. I have responded to two strands below. > > > > > > > My daughter will have terrible meltdowns if she wants something > and > > > > can't have it immediately. It's like she gets locked-in. And > once > > > > the meltdown is over, she often will never mention it again. > Is > > > this > > > > OCD????? > > > > > > Yes! Exactly as you say " she get's locked in " . There is > actually a > > > really good book that describes this phenominon well, " Brain > Lock " , > > > Schwartz. Our son is the same, and was impossible when younger. > He > > > is also what I would call " intense " , somewhat like his > mother...not a > > > good combo! > > > > > > if the Strattera could be causing more of this. She gets very > > > > aggressive, and will hit and throw things at me. It is very > hard. > > > > Intellectually, I know it's not her fault, but emotionally I > feel > > > > attacked, abused... > > > > > > Again, in my unprofessional opinion, yes on both counts. We deal > > > with the aggressive stuff here too. I know how hard and > upsetting > > > this is Diane. Even though you know they are not well, since it > is > > > directed at you it is hard to not take it personally. It is > really > > > important that you have boundaries around this, remain as calm > and > > > neutral as possible(believe me I know this is hard), and have a > plan > > > for next time. > > > > > > If you are able to discuss what the triggers are for your > daugther > > > that make her " go off " you can try asking her to cue you(with a > word) > > > when it happens so you can stop doing whatever, and perhaps give > her > > > space, or ask her to take some space for herself. If you can put > the > > > problem solving into her hands so she has a sense of control over > it > > > (not sure what age you are dealing with), but since it is a loss > of > > > control that sets off the rages, any way they can take back some > > > control is helpful. > > > > > > It's really important to get a handle on this, your daughter > cannot > > > be allowed to be abusive toward you, no matter how sick she is. > You > > > can be firm and compassionate and say I am going to help you to > not > > > do this, we need to find a better way to deal with this. You > need to > > > be " in control " where she cannot. We have lived this road for > almost > > > 2 years, it is not fun I know, and finding answers is a process. > > > > > > Re Strattera - I find without medication, or enough of it the OCD > is > > > worse and there is anger and aggression because of the inability > to > > > cope; and I find with too much, or wrong medication we get more, > and > > > more severe aggressive behavior. So, our answer has been to stay > on > > > a lower dose of ssri to " take the edge off " , because high dose > just > > > causes more problems. > > > > > > At the moment we are trying a new ssri, so we'll see how it goes, > but > > > intend to stay on the lower end. My, again, unprofessional > opinion > > > is that since these kids seem to have hypersensitive nervous > systems > > > they can have big reactions to changes of any kind, including > > > medications, finding that " magic " dose and combo is an artform. > > > > > > I think many doctors don't know how to dose these kids, so it's > good > > > to really keep a record and watch and decide for yourself. We > are at > > > the point where we will now tell our doctor what we are prepared > to > > > do re medication. Our experience is that they are way too > cavalier, > > > after all they don't have to come home and live with our kids! > > > > > > Hang in there! > > > Hugs! > > > Barb > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 Hi BJ. Ok, what does " chirks " mean, is this another term I'm not familiar with? I'm thinking it's a cross between perks and cheers?! Not familiar with this up here in Canada, EH? Couldn't resist! Yes, last drug change was made just before Christmas when the doctors would be unavailable for 2 weeks, and then our son stopped last medication on his own as he was discharged from the hospital program with no plans for them to see him again... Hard not to be a bit suspicious...don't blame them really, if I could escape the fall out I would too. Think I'll book my vacation next time they suggest a change, HA! Hugs! Barb > > > > > > ************* > > > We are at > > > the point where we will now tell our doctor what we are prepared to > > > do re medication. Our experience is that they are way too cavalier, > > > after all they don't have to come home and live with our kids! > > > ************* > > > > > > I hear you, Barb! So very true. We have to be our kid's advocate. > > > We finally started seeing improvements and positive results when we > > > became knowledgeable and was driving the bus, so to speak. > > > > > > How's your son doing on the new meds? Noticing anything yet? I > > > remember he reacted to the Celexa as a low dose, rather quickly. Is > > > he doing the same on the Zoloft? > > > > > > My thoughts and prayers are with you. > > > > > > Hugs, > > > BJ > > > > > > > > > > > > > > Hi Diane. I have responded to two strands below. > > > > > > > > > My daughter will have terrible meltdowns if she wants something > > and > > > > > can't have it immediately. It's like she gets locked-in. And > > once > > > > > the meltdown is over, she often will never mention it again. > > Is > > > > this > > > > > OCD????? > > > > > > > > Yes! Exactly as you say " she get's locked in " . There is > > actually a > > > > really good book that describes this phenominon well, " Brain > > Lock " , > > > > Schwartz. Our son is the same, and was impossible when younger. > > He > > > > is also what I would call " intense " , somewhat like his > > mother...not a > > > > good combo! > > > > > > > > if the Strattera could be causing more of this. She gets very > > > > > aggressive, and will hit and throw things at me. It is very > > hard. > > > > > Intellectually, I know it's not her fault, but emotionally I > > feel > > > > > attacked, abused... > > > > > > > > Again, in my unprofessional opinion, yes on both counts. We deal > > > > with the aggressive stuff here too. I know how hard and > > upsetting > > > > this is Diane. Even though you know they are not well, since it > > is > > > > directed at you it is hard to not take it personally. It is > > really > > > > important that you have boundaries around this, remain as calm > > and > > > > neutral as possible(believe me I know this is hard), and have a > > plan > > > > for next time. > > > > > > > > If you are able to discuss what the triggers are for your > > daugther > > > > that make her " go off " you can try asking her to cue you(with a > > word) > > > > when it happens so you can stop doing whatever, and perhaps give > > her > > > > space, or ask her to take some space for herself. If you can put > > the > > > > problem solving into her hands so she has a sense of control over > > it > > > > (not sure what age you are dealing with), but since it is a loss > > of > > > > control that sets off the rages, any way they can take back some > > > > control is helpful. > > > > > > > > It's really important to get a handle on this, your daughter > > cannot > > > > be allowed to be abusive toward you, no matter how sick she is. > > You > > > > can be firm and compassionate and say I am going to help you to > > not > > > > do this, we need to find a better way to deal with this. You > > need to > > > > be " in control " where she cannot. We have lived this road for > > almost > > > > 2 years, it is not fun I know, and finding answers is a process. > > > > > > > > Re Strattera - I find without medication, or enough of it the OCD > > is > > > > worse and there is anger and aggression because of the inability > > to > > > > cope; and I find with too much, or wrong medication we get more, > > and > > > > more severe aggressive behavior. So, our answer has been to stay > > on > > > > a lower dose of ssri to " take the edge off " , because high dose > > just > > > > causes more problems. > > > > > > > > At the moment we are trying a new ssri, so we'll see how it goes, > > but > > > > intend to stay on the lower end. My, again, unprofessional > > opinion > > > > is that since these kids seem to have hypersensitive nervous > > systems > > > > they can have big reactions to changes of any kind, including > > > > medications, finding that " magic " dose and combo is an artform. > > > > > > > > I think many doctors don't know how to dose these kids, so it's > > good > > > > to really keep a record and watch and decide for yourself. We > > are at > > > > the point where we will now tell our doctor what we are prepared > > to > > > > do re medication. Our experience is that they are way too > > cavalier, > > > > after all they don't have to come home and live with our kids! > > > > > > > > Hang in there! > > > > Hugs! > > > > Barb > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 LOL, Barb, never thought about it, just have always used it (chirks). You are probably right, . . .Sounds like it could be a cross between perks and cheers. Clever of you to figure that out. Funny how we share the same language, (Canada, England, Australia, USA), but we have these little difference in our languages. It always cracks me up. I used to work with a woman from England and the first time I heard her say aluminum, we both had a good laugh. :oD BJ > > > > > > > > ************* > > > > We are at > > > > the point where we will now tell our doctor what we are > prepared to > > > > do re medication. Our experience is that they are way too > cavalier, > > > > after all they don't have to come home and live with our kids! > > > > ************* > > > > > > > > I hear you, Barb! So very true. We have to be our kid's > advocate. > > > > We finally started seeing improvements and positive results > when we > > > > became knowledgeable and was driving the bus, so to speak. > > > > > > > > How's your son doing on the new meds? Noticing anything yet? I > > > > remember he reacted to the Celexa as a low dose, rather > quickly. Is > > > > he doing the same on the Zoloft? > > > > > > > > My thoughts and prayers are with you. > > > > > > > > Hugs, > > > > BJ > > > > > > > > > > > > > > > > > > Hi Diane. I have responded to two strands below. > > > > > > > > > > > My daughter will have terrible meltdowns if she wants > something > > > and > > > > > > can't have it immediately. It's like she gets locked-in. > And > > > once > > > > > > the meltdown is over, she often will never mention it > again. > > > Is > > > > > this > > > > > > OCD????? > > > > > > > > > > Yes! Exactly as you say " she get's locked in " . There is > > > actually a > > > > > really good book that describes this phenominon well, " Brain > > > Lock " , > > > > > Schwartz. Our son is the same, and was impossible when > younger. > > > He > > > > > is also what I would call " intense " , somewhat like his > > > mother...not a > > > > > good combo! > > > > > > > > > > if the Strattera could be causing more of this. She gets > very > > > > > > aggressive, and will hit and throw things at me. It is > very > > > hard. > > > > > > Intellectually, I know it's not her fault, but emotionally > I > > > feel > > > > > > attacked, abused... > > > > > > > > > > Again, in my unprofessional opinion, yes on both counts. We > deal > > > > > with the aggressive stuff here too. I know how hard and > > > upsetting > > > > > this is Diane. Even though you know they are not well, since > it > > > is > > > > > directed at you it is hard to not take it personally. It is > > > really > > > > > important that you have boundaries around this, remain as > calm > > > and > > > > > neutral as possible(believe me I know this is hard), and have > a > > > plan > > > > > for next time. > > > > > > > > > > If you are able to discuss what the triggers are for your > > > daugther > > > > > that make her " go off " you can try asking her to cue you(with > a > > > word) > > > > > when it happens so you can stop doing whatever, and perhaps > give > > > her > > > > > space, or ask her to take some space for herself. If you can > put > > > the > > > > > problem solving into her hands so she has a sense of control > over > > > it > > > > > (not sure what age you are dealing with), but since it is a > loss > > > of > > > > > control that sets off the rages, any way they can take back > some > > > > > control is helpful. > > > > > > > > > > It's really important to get a handle on this, your daughter > > > cannot > > > > > be allowed to be abusive toward you, no matter how sick she > is. > > > You > > > > > can be firm and compassionate and say I am going to help you > to > > > not > > > > > do this, we need to find a better way to deal with this. You > > > need to > > > > > be " in control " where she cannot. We have lived this road for > > > almost > > > > > 2 years, it is not fun I know, and finding answers is a > process. > > > > > > > > > > Re Strattera - I find without medication, or enough of it the > OCD > > > is > > > > > worse and there is anger and aggression because of the > inability > > > to > > > > > cope; and I find with too much, or wrong medication we get > more, > > > and > > > > > more severe aggressive behavior. So, our answer has been to > stay > > > on > > > > > a lower dose of ssri to " take the edge off " , because high > dose > > > just > > > > > causes more problems. > > > > > > > > > > At the moment we are trying a new ssri, so we'll see how it > goes, > > > but > > > > > intend to stay on the lower end. My, again, unprofessional > > > opinion > > > > > is that since these kids seem to have hypersensitive nervous > > > systems > > > > > they can have big reactions to changes of any kind, including > > > > > medications, finding that " magic " dose and combo is an > artform. > > > > > > > > > > I think many doctors don't know how to dose these kids, so > it's > > > good > > > > > to really keep a record and watch and decide for yourself. > We > > > are at > > > > > the point where we will now tell our doctor what we are > prepared > > > to > > > > > do re medication. Our experience is that they are way too > > > cavalier, > > > > > after all they don't have to come home and live with our > kids! > > > > > > > > > > Hang in there! > > > > > Hugs! > > > > > Barb > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 So it really is a word? I thought it was a typo. Too funny! > > > > > > > > > > ************* > > > > > We are at > > > > > the point where we will now tell our doctor what we are > > prepared to > > > > > do re medication. Our experience is that they are way too > > cavalier, > > > > > after all they don't have to come home and live with our kids! > > > > > ************* > > > > > > > > > > I hear you, Barb! So very true. We have to be our kid's > > advocate. > > > > > We finally started seeing improvements and positive results > > when we > > > > > became knowledgeable and was driving the bus, so to speak. > > > > > > > > > > How's your son doing on the new meds? Noticing anything yet? I > > > > > remember he reacted to the Celexa as a low dose, rather > > quickly. Is > > > > > he doing the same on the Zoloft? > > > > > > > > > > My thoughts and prayers are with you. > > > > > > > > > > Hugs, > > > > > BJ > > > > > > > > > > > > > > > > > > > > > > Hi Diane. I have responded to two strands below. > > > > > > > > > > > > > My daughter will have terrible meltdowns if she wants > > something > > > > and > > > > > > > can't have it immediately. It's like she gets locked- in. > > And > > > > once > > > > > > > the meltdown is over, she often will never mention it > > again. > > > > Is > > > > > > this > > > > > > > OCD????? > > > > > > > > > > > > Yes! Exactly as you say " she get's locked in " . There is > > > > actually a > > > > > > really good book that describes this phenominon well, " Brain > > > > Lock " , > > > > > > Schwartz. Our son is the same, and was impossible when > > younger. > > > > He > > > > > > is also what I would call " intense " , somewhat like his > > > > mother...not a > > > > > > good combo! > > > > > > > > > > > > if the Strattera could be causing more of this. She gets > > very > > > > > > > aggressive, and will hit and throw things at me. It is > > very > > > > hard. > > > > > > > Intellectually, I know it's not her fault, but emotionally > > I > > > > feel > > > > > > > attacked, abused... > > > > > > > > > > > > Again, in my unprofessional opinion, yes on both counts. We > > deal > > > > > > with the aggressive stuff here too. I know how hard and > > > > upsetting > > > > > > this is Diane. Even though you know they are not well, since > > it > > > > is > > > > > > directed at you it is hard to not take it personally. It is > > > > really > > > > > > important that you have boundaries around this, remain as > > calm > > > > and > > > > > > neutral as possible(believe me I know this is hard), and have > > a > > > > plan > > > > > > for next time. > > > > > > > > > > > > If you are able to discuss what the triggers are for your > > > > daugther > > > > > > that make her " go off " you can try asking her to cue you (with > > a > > > > word) > > > > > > when it happens so you can stop doing whatever, and perhaps > > give > > > > her > > > > > > space, or ask her to take some space for herself. If you can > > put > > > > the > > > > > > problem solving into her hands so she has a sense of control > > over > > > > it > > > > > > (not sure what age you are dealing with), but since it is a > > loss > > > > of > > > > > > control that sets off the rages, any way they can take back > > some > > > > > > control is helpful. > > > > > > > > > > > > It's really important to get a handle on this, your daughter > > > > cannot > > > > > > be allowed to be abusive toward you, no matter how sick she > > is. > > > > You > > > > > > can be firm and compassionate and say I am going to help you > > to > > > > not > > > > > > do this, we need to find a better way to deal with this. You > > > > need to > > > > > > be " in control " where she cannot. We have lived this road for > > > > almost > > > > > > 2 years, it is not fun I know, and finding answers is a > > process. > > > > > > > > > > > > Re Strattera - I find without medication, or enough of it the > > OCD > > > > is > > > > > > worse and there is anger and aggression because of the > > inability > > > > to > > > > > > cope; and I find with too much, or wrong medication we get > > more, > > > > and > > > > > > more severe aggressive behavior. So, our answer has been to > > stay > > > > on > > > > > > a lower dose of ssri to " take the edge off " , because high > > dose > > > > just > > > > > > causes more problems. > > > > > > > > > > > > At the moment we are trying a new ssri, so we'll see how it > > goes, > > > > but > > > > > > intend to stay on the lower end. My, again, unprofessional > > > > opinion > > > > > > is that since these kids seem to have hypersensitive nervous > > > > systems > > > > > > they can have big reactions to changes of any kind, including > > > > > > medications, finding that " magic " dose and combo is an > > artform. > > > > > > > > > > > > I think many doctors don't know how to dose these kids, so > > it's > > > > good > > > > > > to really keep a record and watch and decide for yourself. > > We > > > > are at > > > > > > the point where we will now tell our doctor what we are > > prepared > > > > to > > > > > > do re medication. Our experience is that they are way too > > > > cavalier, > > > > > > after all they don't have to come home and live with our > > kids! > > > > > > > > > > > > Hang in there! > > > > > > Hugs! > > > > > > Barb > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Either it is, or I made it up, which is possible. Rofl Okay, had to look it up and dictionary.com to make sure I didn't make it up <giggling>. The other possibility was that I picked it up from my Dad. He always had these weird little expressions, phrases, and words that he used, that I find coming out of my mouth at times. Funny, how that happens. Whew! It is a word. lolol chirk, chirked, chirk·ing, chirks To make or become cheerful. Too funny for sure. :oD BJ > > > > > > > > > > > > ************* > > > > > > We are at > > > > > > the point where we will now tell our doctor what we are > > > prepared to > > > > > > do re medication. Our experience is that they are way too > > > cavalier, > > > > > > after all they don't have to come home and live with our > kids! > > > > > > ************* > > > > > > > > > > > > I hear you, Barb! So very true. We have to be our kid's > > > advocate. > > > > > > We finally started seeing improvements and positive results > > > when we > > > > > > became knowledgeable and was driving the bus, so to speak. > > > > > > > > > > > > How's your son doing on the new meds? Noticing anything > yet? I > > > > > > remember he reacted to the Celexa as a low dose, rather > > > quickly. Is > > > > > > he doing the same on the Zoloft? > > > > > > > > > > > > My thoughts and prayers are with you. > > > > > > > > > > > > Hugs, > > > > > > BJ > > > > > > > > > > > > > > > > > > > > > > > > > > Hi Diane. I have responded to two strands below. > > > > > > > > > > > > > > > My daughter will have terrible meltdowns if she wants > > > something > > > > > and > > > > > > > > can't have it immediately. It's like she gets locked- > in. > > > And > > > > > once > > > > > > > > the meltdown is over, she often will never mention it > > > again. > > > > > Is > > > > > > > this > > > > > > > > OCD????? > > > > > > > > > > > > > > Yes! Exactly as you say " she get's locked in " . There is > > > > > actually a > > > > > > > really good book that describes this phenominon > well, " Brain > > > > > Lock " , > > > > > > > Schwartz. Our son is the same, and was impossible when > > > younger. > > > > > He > > > > > > > is also what I would call " intense " , somewhat like his > > > > > mother...not a > > > > > > > good combo! > > > > > > > > > > > > > > if the Strattera could be causing more of this. She > gets > > > very > > > > > > > > aggressive, and will hit and throw things at me. It > is > > > very > > > > > hard. > > > > > > > > Intellectually, I know it's not her fault, but > emotionally > > > I > > > > > feel > > > > > > > > attacked, abused... > > > > > > > > > > > > > > Again, in my unprofessional opinion, yes on both counts. > We > > > deal > > > > > > > with the aggressive stuff here too. I know how hard and > > > > > upsetting > > > > > > > this is Diane. Even though you know they are not well, > since > > > it > > > > > is > > > > > > > directed at you it is hard to not take it personally. It > is > > > > > really > > > > > > > important that you have boundaries around this, remain as > > > calm > > > > > and > > > > > > > neutral as possible(believe me I know this is hard), and > have > > > a > > > > > plan > > > > > > > for next time. > > > > > > > > > > > > > > If you are able to discuss what the triggers are for your > > > > > daugther > > > > > > > that make her " go off " you can try asking her to cue you > (with > > > a > > > > > word) > > > > > > > when it happens so you can stop doing whatever, and > perhaps > > > give > > > > > her > > > > > > > space, or ask her to take some space for herself. If you > can > > > put > > > > > the > > > > > > > problem solving into her hands so she has a sense of > control > > > over > > > > > it > > > > > > > (not sure what age you are dealing with), but since it is > a > > > loss > > > > > of > > > > > > > control that sets off the rages, any way they can take > back > > > some > > > > > > > control is helpful. > > > > > > > > > > > > > > It's really important to get a handle on this, your > daughter > > > > > cannot > > > > > > > be allowed to be abusive toward you, no matter how sick > she > > > is. > > > > > You > > > > > > > can be firm and compassionate and say I am going to help > you > > > to > > > > > not > > > > > > > do this, we need to find a better way to deal with this. > You > > > > > need to > > > > > > > be " in control " where she cannot. We have lived this road > for > > > > > almost > > > > > > > 2 years, it is not fun I know, and finding answers is a > > > process. > > > > > > > > > > > > > > Re Strattera - I find without medication, or enough of it > the > > > OCD > > > > > is > > > > > > > worse and there is anger and aggression because of the > > > inability > > > > > to > > > > > > > cope; and I find with too much, or wrong medication we > get > > > more, > > > > > and > > > > > > > more severe aggressive behavior. So, our answer has been > to > > > stay > > > > > on > > > > > > > a lower dose of ssri to " take the edge off " , because high > > > dose > > > > > just > > > > > > > causes more problems. > > > > > > > > > > > > > > At the moment we are trying a new ssri, so we'll see how > it > > > goes, > > > > > but > > > > > > > intend to stay on the lower end. My, again, > unprofessional > > > > > opinion > > > > > > > is that since these kids seem to have hypersensitive > nervous > > > > > systems > > > > > > > they can have big reactions to changes of any kind, > including > > > > > > > medications, finding that " magic " dose and combo is an > > > artform. > > > > > > > > > > > > > > I think many doctors don't know how to dose these kids, > so > > > it's > > > > > good > > > > > > > to really keep a record and watch and decide for > yourself. > > > We > > > > > are at > > > > > > > the point where we will now tell our doctor what we are > > > prepared > > > > > to > > > > > > > do re medication. Our experience is that they are way > too > > > > > cavalier, > > > > > > > after all they don't have to come home and live with our > > > kids! > > > > > > > > > > > > > > Hang in there! > > > > > > > Hugs! > > > > > > > Barb > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Ok, I'm going to adopt this word now, and I'm going to try and be more chirky today! (not feeling very so just now...) Barb I > > > > > > > > > > > > > > ************* > > > > > > > We are at > > > > > > > the point where we will now tell our doctor what we are > > > > prepared to > > > > > > > do re medication. Our experience is that they are way too > > > > cavalier, > > > > > > > after all they don't have to come home and live with our > > kids! > > > > > > > ************* > > > > > > > > > > > > > > I hear you, Barb! So very true. We have to be our kid's > > > > advocate. > > > > > > > We finally started seeing improvements and positive results > > > > when we > > > > > > > became knowledgeable and was driving the bus, so to speak. > > > > > > > > > > > > > > How's your son doing on the new meds? Noticing anything > > yet? I > > > > > > > remember he reacted to the Celexa as a low dose, rather > > > > quickly. Is > > > > > > > he doing the same on the Zoloft? > > > > > > > > > > > > > > My thoughts and prayers are with you. > > > > > > > > > > > > > > Hugs, > > > > > > > BJ > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi Diane. I have responded to two strands below. > > > > > > > > > > > > > > > > > My daughter will have terrible meltdowns if she wants > > > > something > > > > > > and > > > > > > > > > can't have it immediately. It's like she gets locked- > > in. > > > > And > > > > > > once > > > > > > > > > the meltdown is over, she often will never mention it > > > > again. > > > > > > Is > > > > > > > > this > > > > > > > > > OCD????? > > > > > > > > > > > > > > > > Yes! Exactly as you say " she get's locked in " . There is > > > > > > actually a > > > > > > > > really good book that describes this phenominon > > well, " Brain > > > > > > Lock " , > > > > > > > > Schwartz. Our son is the same, and was impossible when > > > > younger. > > > > > > He > > > > > > > > is also what I would call " intense " , somewhat like his > > > > > > mother...not a > > > > > > > > good combo! > > > > > > > > > > > > > > > > if the Strattera could be causing more of this. She > > gets > > > > very > > > > > > > > > aggressive, and will hit and throw things at me. It > > is > > > > very > > > > > > hard. > > > > > > > > > Intellectually, I know it's not her fault, but > > emotionally > > > > I > > > > > > feel > > > > > > > > > attacked, abused... > > > > > > > > > > > > > > > > Again, in my unprofessional opinion, yes on both counts. > > We > > > > deal > > > > > > > > with the aggressive stuff here too. I know how hard and > > > > > > upsetting > > > > > > > > this is Diane. Even though you know they are not well, > > since > > > > it > > > > > > is > > > > > > > > directed at you it is hard to not take it personally. It > > is > > > > > > really > > > > > > > > important that you have boundaries around this, remain as > > > > calm > > > > > > and > > > > > > > > neutral as possible(believe me I know this is hard), and > > have > > > > a > > > > > > plan > > > > > > > > for next time. > > > > > > > > > > > > > > > > If you are able to discuss what the triggers are for your > > > > > > daugther > > > > > > > > that make her " go off " you can try asking her to cue you > > (with > > > > a > > > > > > word) > > > > > > > > when it happens so you can stop doing whatever, and > > perhaps > > > > give > > > > > > her > > > > > > > > space, or ask her to take some space for herself. If you > > can > > > > put > > > > > > the > > > > > > > > problem solving into her hands so she has a sense of > > control > > > > over > > > > > > it > > > > > > > > (not sure what age you are dealing with), but since it is > > a > > > > loss > > > > > > of > > > > > > > > control that sets off the rages, any way they can take > > back > > > > some > > > > > > > > control is helpful. > > > > > > > > > > > > > > > > It's really important to get a handle on this, your > > daughter > > > > > > cannot > > > > > > > > be allowed to be abusive toward you, no matter how sick > > she > > > > is. > > > > > > You > > > > > > > > can be firm and compassionate and say I am going to help > > you > > > > to > > > > > > not > > > > > > > > do this, we need to find a better way to deal with this. > > You > > > > > > need to > > > > > > > > be " in control " where she cannot. We have lived this road > > for > > > > > > almost > > > > > > > > 2 years, it is not fun I know, and finding answers is a > > > > process. > > > > > > > > > > > > > > > > Re Strattera - I find without medication, or enough of it > > the > > > > OCD > > > > > > is > > > > > > > > worse and there is anger and aggression because of the > > > > inability > > > > > > to > > > > > > > > cope; and I find with too much, or wrong medication we > > get > > > > more, > > > > > > and > > > > > > > > more severe aggressive behavior. So, our answer has been > > to > > > > stay > > > > > > on > > > > > > > > a lower dose of ssri to " take the edge off " , because high > > > > dose > > > > > > just > > > > > > > > causes more problems. > > > > > > > > > > > > > > > > At the moment we are trying a new ssri, so we'll see how > > it > > > > goes, > > > > > > but > > > > > > > > intend to stay on the lower end. My, again, > > unprofessional > > > > > > opinion > > > > > > > > is that since these kids seem to have hypersensitive > > nervous > > > > > > systems > > > > > > > > they can have big reactions to changes of any kind, > > including > > > > > > > > medications, finding that " magic " dose and combo is an > > > > artform. > > > > > > > > > > > > > > > > I think many doctors don't know how to dose these kids, > > so > > > > it's > > > > > > good > > > > > > > > to really keep a record and watch and decide for > > yourself. > > > > We > > > > > > are at > > > > > > > > the point where we will now tell our doctor what we are > > > > prepared > > > > > > to > > > > > > > > do re medication. Our experience is that they are way > > too > > > > > > cavalier, > > > > > > > > after all they don't have to come home and live with our > > > > kids! > > > > > > > > > > > > > > > > Hang in there! > > > > > > > > Hugs! > > > > > > > > Barb > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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