Re: Beware Nystatin prescriptions

[Guest guest]

We get our Nystatin at a compounding pharmacy for that reason. It

costs the same as a regular prescription. We have to give the

pharmacist a few days notice as it is time consuming to get the

powder into the capsules. This can be done in a regular compounding

pharmacy it doesn't have to be one with special equipment.

Patty

[Guest guest]

Patty, I have heard that from several people AFTER THE FACT. It is

quite deceiving to read of all these people saying Nystatin works,

get Nystatin, but don't mention HOW they get it compounded or that if

you don't, this is what you get, a bunch of crap in it.

I am not trying to say anything negative against you, rather I want

all to know that my purpose for this post is to inform others that

this is what you get when you ask for a Nystatin prescriptions and

don't know any better to ask for the special favor of compouding it

without anything else in it. So, for the record...

Thank you for your response.

>

> We get our Nystatin at a compounding pharmacy for that reason. It

> costs the same as a regular prescription. We have to give the

> pharmacist a few days notice as it is time consuming to get the

> powder into the capsules. This can be done in a regular

compounding

> pharmacy it doesn't have to be one with special equipment.

>

> Patty

>

[Guest guest]

I'm so sorry to hear that your son is suffering so.

We have our nystatin compounded and flavored/sweetened with xylitol--

some compounding pharmacies use stevia. Do you have access to (and

insurance that will pay for) a compounded script?

>

> My son has been screaming (high pitched - over everything) ever

since

> I gave him the Nystatin with crap in it (a week ago). I have

avoided

> everything artificial for TWO YEARS and then this. I am really

> pissed, I can't believe the ingredients aren't required to be on

the

> bottle/information pamphlet, i can't believe I didn't check them.

>

> Here are the inactive ingredients:

>

> alcohol (less than 1%)

> artificial wild cherry flavor

> artificial banana flavor

> D & C yellow #10

> FD & C red #40

> glycerin

> magnesium ALUMINUM silicate

> methylparaben

> potassium phosphate dibasic

> propylene glycol

> propylparaben

> purified water

> sucrose

> may also contain citric acid

>

> Active ingredient: Nystatin.

>

> However long it takes this to clear his system is too long, I could

> really beat myself up over this, we are all suffering.

>

[Guest guest]

Our is compounded as well--our local compounding pharmacy doesn't

process insurance--so it's OOP for us--but it's $33.00 for 2 months.

So sorry you had to find out after the fact---

> >

> > My son has been screaming (high pitched - over everything) ever

> since

> > I gave him the Nystatin with crap in it (a week ago). I have

> avoided

> > everything artificial for TWO YEARS and then this. I am really

> > pissed, I can't believe the ingredients aren't required to be on

> the

> > bottle/information pamphlet, i can't believe I didn't check them.

> >

> > Here are the inactive ingredients:

> >

> > alcohol (less than 1%)

> > artificial wild cherry flavor

> > artificial banana flavor

> > D & C yellow #10

> > FD & C red #40

> > glycerin

> > magnesium ALUMINUM silicate

> > methylparaben

> > potassium phosphate dibasic

> > propylene glycol

> > propylparaben

> > purified water

> > sucrose

> > may also contain citric acid

> >

> > Active ingredient: Nystatin.

> >

> > However long it takes this to clear his system is too long, I

could

> > really beat myself up over this, we are all suffering.

> >

>

[Guest guest]

Sorry your DAN or whoever wrote this script for you didn't make this

clear.... I don't think anyone intentionally deceived you when they

said to try Nystatin as your anti-fungal. Whoever you got your script

from is who I would take issue with, especially if they are a DAN or

know your child is on a restrictive diet - THEY are the ones who

should have informed you of this.

The compounders where we live do not automatically make the alternate

version of Nystatin unless you ask them to. They classify ASD

supplements as " SCD legal " there. They remove the sugar, arificial

sweetners, and dyes to make it diet compliant. Overseas Nystatin is

sold OTC with all that junk in it. So the compounded form is not the

traditional way to make it.

It's good you posted this, I agree - some others might not know

either to very specifically ask for the ASD common variety of these

things.

> >

> > We get our Nystatin at a compounding pharmacy for that reason. It

> > costs the same as a regular prescription. We have to give the

> > pharmacist a few days notice as it is time consuming to get the

> > powder into the capsules. This can be done in a regular

> compounding

> > pharmacy it doesn't have to be one with special equipment.

> >

> > Patty

> >

>