Re: Re: Gamma Strep....... Pandas????

[Guest guest]

I have the same test result Gamma-strep 4+, if someone can explain, i will really appreciate.Subject: Re: Gamma Strep....... Pandas????To: mb12 valtrex Date: Monday, August 11, 2008, 4:21 AM

I don't know... we are still trying to figure it all out.

If you find anything out, would you please email me, and I wll do the

same for you. It will be a few weeks before we have our phone

consultation.

>

> My son's stool analysis came back with 3+ gamma strep too - what

exactly

> does that mean? He has tiny white bumps on the backs of his upper

arms too.

> He used to have them on his legs - but mostly on his arms.

>

>

>

> "Three grand essentials to happiness in this life are something to

do,

> something to love, and something to hope for..."

>

> _____

>

> From: mb12 valtrex@ yahoogroups. com

[mailto:mb12 valtrex@ yahoogroups. com] On

> Behalf Of mvpoppins

> Sent: Sunday, August 10, 2008 10:14 PM

> To: mb12 valtrex@ yahoogroups. com

> Subject: Gamma Strep....... Pandas????

>

>

>

> In my son's stool analysis, gamma strep was found. Is this the same

> strep that causes PANDAS? In the past, before taking out the gluten

> and dairy in his diet, he has had bad cases of perseverating

thought

> and arguing. He was a horder and displayed many OCD symptoms. It

was

> very difficult to reason with him. Most of that went away with diet

> change a year ago, but every once in awhile he goes a little OCD on

us.

> He had bumps on his arms that someone once told me could be strep,

but

> the culture on them was negative. Will the gamma strep go away on

it's

> own........ Something new to worry about. Oh, what fun.

>

[Guest guest]

it's a strep strain that you want at 2 or below so it's probley in inbalence. this CAN be related to those who have PANDAS but doesn't mean you do have it. means you might want to have the titers pulled for it. IF you have both ASO and the B antinase *likly spelling that wrong< and also see OCD flares with it, you will want to take some precausiongs, get the strep line probotics out if you are using them in your protical, look at doing some OLE to get numbers now, strengthen immune systems ect.

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Gamma Strep....... Pandas????> > > > In my son's stool analysis, gamma strep was found. Is this the same > strep that causes PANDAS? In the past, before taking out the gluten > and dairy in his diet, he has had bad cases of perseverating thought > and arguing. He was a horder and displayed many OCD symptoms. It was > very difficult to reason with him. Most of that went away with diet > change a year ago, but every once in awhile he goes a little OCD on us.> He had bumps on his arms that someone once told me could be strep, but > the culture on them was negative. Will the gamma strep go away on it's > own........ Something new to worry about. Oh, what fun.>No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.0/1602 - Release Date: 8/9/2008 1:22 PM

[Guest guest]

I am in the process of getting titers pulled

to see if my son is a candidate for antivirals.  Before I have this bloodwork

drawn – can you give me specifics as to what should be pulled?  The lab

request from my DAN says the following:  Cytomegalovirus IGG, EB Virus Panel,

Herpes Simplex IGG, HHV6 – should there be something more?  How do I know

if he has both ASO and the B antiase?  What does that mean actually?  And what

line of strep probiotics should I not be using?  He currently is getting ProBio

Gold.  Is there a simple test to run for PANDAS?  Sorry for all the questions. 

I’m in a slight panic this AM….

" Three

grand essentials to happiness in this life are something to do, something to

love, and something to hope for... "

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Christel King

Sent: Monday, August 11, 2008

12:45 AM

To: mb12 valtrex

Subject: Re: Re:

Gamma Strep....... Pandas????

it's a strep strain that you want at 2 or

below so it's probley in inbalence. this CAN be related to those who have

PANDAS but doesn't mean you do have it. means you might want to have the

titers pulled for it. IF you have both ASO and the B antinase *likly

spelling that wrong< and also see OCD flares with it, you will want to take

some precausiongs, get the strep line probotics out if you are using them in

your protical, look at doing some OLE to get numbers now, strengthen

immune systems ect.

Recovering from Autism is a marathon

NOT a sprint, but FULLY possible!

Read more about it on my BLOGs at

http://www.myspace.com/christelking

http://foggyrock.com/MyPage/recoveringwishes

http://www.facebook.com/profile.php?id=677063169

Gamma Strep....... Pandas????

>

>

>

> In my son's stool analysis, gamma strep was found. Is this the same

> strep that causes PANDAS? In the past, before taking out the gluten

> and dairy in his diet, he has had bad cases of perseverating

thought

> and arguing. He was a horder and displayed many OCD symptoms. It

was

> very difficult to reason with him. Most of that went away with diet

> change a year ago, but every once in awhile he goes a little OCD on

us.

> He had bumps on his arms that someone once told me could be strep,

but

> the culture on them was negative. Will the gamma strep go away on

it's

> own........ Something new to worry about. Oh, what fun.

>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.0/1602 - Release Date: 8/9/2008 1:22 PM

[Guest guest]

probio gold does contain strep strains in it

PANDAS, is an abbreviation for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. The term is used to describe a subset of children who have Obsessive Compulsive Disorder (OCD) and/or tic disorders such as Tourette's Syndrome, and in whom symptoms worsen following strep. infections such as "Strep throat" and Scarlet Fever. The children usually have dramatic, "overnight" onset of symptoms, including motor or vocal tics, obsessions, and/or compulsions. In addition to these symptoms, children may also become moody, irritable or show concerns about separating from parents or loved ones. This abrupt onset is generally preceeded by a Strep. throat infection.

PANDAS is similar to that of Rheumatic Fever, an autoimmune disorder triggered by strep. throat infections. In every bacterial infection, the body produces antibodies against the invading bacteria, and the antibodies help eliminate the bacteria from the body. However in Rheumatic Fever, the antibodies mistakenly recognize and "attack" the heart valves, joints, and/or certain parts of the brain. This phenomenon is called "molecular mimicry", which means that proteins on the cell wall of the strep. bacteria are similar in some way to the proteins of the heart valve, joints, or brain

One part of the brain that is affected in PANDAS is the Basal Ganglia, which is believed to be responsible for movement and behavior. Thus, the antibodies interact with the brain to cause tics and/or OCD

clinicians use 5 diagnostic criteria for the diagnosis of PANDAS (see below). At the present time the clinical features of the illness are the only means of determining whether or not a child might have PANDAS. Q. What are the diagnostic criteria for PANDAS? A. They are:

Presence of Obsessive-compulsive disorder and/or a tic disorder Pediatric onset of symptoms (age 3 years to puberty) Episodic course of symptom severity Association with group A Beta-hemolytic streptococcal infection (a positive throat culture for strep. or history of Scarlet Fever.) Association with neurological abnormalities (motoric hyperactivity, or adventitious movements, such as choreiform movements)

Q. What is an episodic course of symptoms? A. Children with PANDAS seem to have dramatic ups and downs in their OCD and/or tic severity. Tics or OCD which are almost always present at a relatively consistent level do not represent an episodic course. Many kids with OCD or tics have good days and bad days, or even good weeks and bad weeks. However, patients with PANDAS have a very sudden onset or worsening of their symptoms, followed by a slow, gradual improvement. If they get another strep. infection, their symptoms suddenly worsen again. The increased symptom severity usually persists for at least several weeks, but may last for several months or longer. The tics or OCD then seem to gradually fade away, and the children often enjoy a few weeks or several months without problems. When they have another strep. throat infection the tics or OCD return just as suddenly and dramatically as they did previously. Q. Are there any other symptoms associated with PANDAS episodes? A. Yes. Children with PANDAS often experience one or more of the following symptoms in conjunction with their OCD and/or tics:

ADHD symptoms (hyperactivity, inattention, fidgety) Separation anxiety (Child is "clingy" and has difficulty separating from his/her caregivers. For example, the child may not want to be in a different room in the house from his/her parents.) Mood changes (irritability, sadness, emotional lability) Sleep disturbance Night- time bed wetting and/or day- time urinary frequency Fine/gross motor changes (e.g. changes in handwriting) Joint pains

here is another list from another site

Red flagsThe biggest difference between regular OCD and PANDAS OCD is the sudden onset. OCD usually develops slowly over weeks, months or even years; however, PANDAS OCD seems to come out of the blue with parents saying one day their child woke up a different kid. There are also other symptoms that help differentiate the 2 types of OCD. PANDAS OCD is also characterized by:

Choreiform movements: involuntary or irregular writhing movements of the legs, arm or face

Presence of tics and/or hyperactivity

Irritability, temper tantrums, or mood lability

Nighttime difficulties

Severe nightmares and new bedtime rituals or fears

Separation anxiety

Age regression: going back to younger developmental stage

New handwriting problems, loss of math skills, sensory sensitivities

Q. My child has had strep. throat before, and he has tics and/or OCD. Does that mean he has PANDAS? A. No. Many children have OCD and/or tics, and almost all school aged children get strep. throat at some point in their lives. In fact, the average grade-school student will have 2 – 3 strep. throat infections each year. PANDAS is considered when there is a very close relationship between the abrupt onset or worsening or OCD and/or tics, and a preceding strep. infection. If strep. is found in conjunction with two or three episodes of OCD/tics, then it may be that the child has PANDAS

What to do if you suspect your child has PANDAS

Contact your pediatrician. Advocate for your child by being clear about what you want your doctor to do. In some cases, you may have to find a sympathetic doctor who is willing to learn about PANDAS. The PANDAS Clinic at NIMH may be willing to consult with doctors.

Have your pediatrician do a throat culture of group A B-hemolytic strep. Ask that the specimen be cultured, not just the rapid test.

Your doctor may also do a blood test to assess elevated streptococcal antibodies (Anti-DNAse B and Antistreptolysin titers (ASO)).

You and/or your doctor can get information and treatment guidelines from the National Institute of Mental Health (www.nih.gov); type in PANDAS to access the appropriate link.

Contact the OC Foundation to help locate an expert in OCD in your area.

Have your child retested if there is a resurgence in OCD symptoms.

yes my son and best friend both have PANDAS< my son had scarlet fever and strep throat and deteriorated what felt like over night almost 2 years ago, which we have then seen a pattern with 3 other episodes, which gives him the dx of PANDAS, he gets very OCD over letter and turns extreamly hyperlexic, his hand writting goes, he has melt downs over nothings, lots of tantrums, gets mean and will hurt his sisters for no reason ect. my aspie friend well get really depressed, and emotional, have melt downs, becomes unfunctionable, her immune system crashes and she will over night new allergies to the place she can bearly eat. (she is an adult and it looks a bit different) she was previously dxed with tourettes which I pushed her to get tested as I saw it come and go like my son with his PANDAS flares and sure enough she tested possitive, so now with treatment OLE (olive leaf extract) she is tic free as well. she has the history of tons of strep infection as a child and being on spectrum as well but wasn't caught till this last year. so her peices are coming together now.

I hope this helps you some with examples of both a child and an adult, If I can help you futher please don't hesitate to contact me agian

christel king

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Gamma Strep....... Pandas????> > > > In my son's stool analysis, gamma strep was found. Is this the same > strep that causes PANDAS? In the past, before taking out the gluten > and dairy in his diet, he has had bad cases of perseverating thought > and arguing. He was a horder and displayed many OCD symptoms. It was > very difficult to reason with him. Most of that went away with diet > change a year ago, but every once in awhile he goes a little OCD on us.> He had bumps on his arms that someone once told me could be strep, but > the culture on them was negative. Will the gamma strep go away on it's > own........ Something new to worry about. Oh, what fun.>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.0/1602 - Release Date: 8/9/2008 1:22 PM

No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.0/1602 - Release Date: 8/9/2008 1:22 PM