Very practical advice

[Guest guest]

When I was questioning what to do, if anything - like you are, I

asked my friend,

" What should I do? I am praying for my son to be healed and I don't

know what God wants me to do, I hear of all these things that might

help but I am wondering if they will really work or am I just wasting

money. "

She replied,

" Liz, God wants you to do everything you can to help , faith

without works is dead. "

I will never forget it and I will never stop doing everything I can

to help .

So that said, follow your heart, look at your son's symptoms and

research them. When you find out what lots of people say helps that

symptom, do it.

Liz

>

> I am new to this group and also new to the whole biomed treatment.

My

> 4.5 year-old was diagnosed with sensory issues last summer and then

> with Asperger's earlier this year (by the school district). We saw

a

> developmental specialist last fall who said he has ADHD and possible

> bipolar (which is not accurate at all). I'm finally past my anger

> about getting a new diagnosis/opinion everywhere we go and did my

own

> research and I agree with our school district -- that he has AS,

which

> explains the hyperactivity, focus deficits and the sensory issues.

He

> has echolalia and is very interested in memorizing factual

information

> about animals. He carries around an animal encyclopedia. Pretty

much

> textbook Aspie except he's extroverted and quite social (albeit

awkward).

>

> We are 4 months in to antiviral treatment through Dr. Kendal

> in Austin, TX (we live in Dallas). I had hoped to see improvement

by

> now, but we haven't. We just went back for testing a few weeks ago

> and he was worse (sensory-wise), but they did find out from his

> labwork that his homocysteine is low (4). So we're now doing

> l-methionine, gaba, kid's chelate (although heavy metal testing

> revealed only moderate levels of about 8 things), methylated B

vitamin

> complex, digestive enzymes, super-potent B complex (Rx absorbed in

the

> bloodstream and not water soluble), nasonex, zyrtec, acylcovor and

> amantadine. The Dr. wanted us to get SAMe in him, but we can't get

a

> tablet in him and it's enteric coated so you aren't supposed to

crush it.

>

> We have not done the GFCF diet. He is constipated and suffers from

> reflux if we don't do the enzymes, but he doesn't have other

digestive

> issues that we can tell. He's a big kid (50 lbs.) and an extremely

> picky eater (will eat only about 4 unhealthy foods). He has dark

> circles under his eyes and is very pale (both parents are olive

> skinned). I also just noticed this weekend that he has a few gray

> hairs. Very strange, but I'm sure it's related. We don't notice

any

> changes when he does or doesn't have wheat or dairy. Dr.

> doesn't think he has gut issues.

>

> I am just beside myself right now with doing all these things and

> seeing no results. Dr. wants us on the antivirals for

another

> 6 weeks. I hate not knowing if I'm doing the right thing for my

> child. I feel like my sensitive child doesn't deserve to be

> experimented on, but at the same time, I don't want to not try

> something that might be what makes him better.

>

> Any advice for us?

>