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In a message dated 3/24/01 11:28:07 PM US Eastern Standard Time,

almostturner@... writes:

<< Lately my right ear feels like it has water in it (you know, like when you

get out of the pool or something and there's some floating around in your

ear), but it doesn't, or at least, I can't find proof of it. Also, at night

when I'm very still I can hear my heartbeat REALLY loud in that ear. >>

Sounds like that could be an ear infection - I'd go see your primary

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I had a problem with that a little over a year ago. Turned out to be

a huge clump of wax that was blocking the canal. I had both my ears

flushed out by my doctor and the problem went away.

Hope this helps

>

> Hello all. I've got a question about something that I've just

noticed

> recently. I'm not sure if it has anything to do with the PA or

not, but I

> thought I'd check to see if anyone else has it. Everything with us

PAers

> seems to be related anyway...

>

> Lately my right ear feels like it has water in it (you know, like

when you

> get out of the pool or something and there's some floating around

in your

> ear), but it doesn't, or at least, I can't find proof of it. Also,

at night

> when I'm very still I can hear my heartbeat REALLY loud in that

ear. It's

> strange and increasingly annoying, especially when you're trying to

sleep.

>

> Any suggestions?

> Sinead

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

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I had the same exact thing - also was ear wax. I would recommend NOT doing

the over the counter remedy for ear wax; only makes the problem worse.

[ ] Re: Ear question

> I had a problem with that a little over a year ago. Turned out to be

> a huge clump of wax that was blocking the canal. I had both my ears

> flushed out by my doctor and the problem went away.

>

> Hope this helps

>

>

>

>

>

> >

> > Hello all. I've got a question about something that I've just

> noticed

> > recently. I'm not sure if it has anything to do with the PA or

> not, but I

> > thought I'd check to see if anyone else has it. Everything with us

> PAers

> > seems to be related anyway...

> >

> > Lately my right ear feels like it has water in it (you know, like

> when you

> > get out of the pool or something and there's some floating around

> in your

> > ear), but it doesn't, or at least, I can't find proof of it. Also,

> at night

> > when I'm very still I can hear my heartbeat REALLY loud in that

> ear. It's

> > strange and increasingly annoying, especially when you're trying to

> sleep.

> >

> > Any suggestions?

> > Sinead

> > _________________________________________________________________

> > Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

>

>

>

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  • 2 years later...
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Becky,

has had tubes since 2 years old , and she is now 11 years old with a

current set that is about 6 months old. s ears have drained her entire

life. She has had many many bloody pillows in the morning where the drainage was

blood tinged. I was told that when the tube is intact and the tissue around the

tube becomes irritated for many reasons, this can cause blood tinged drainage.

There are two types of blood that I have seen. 1)Full blown blood dripping down

the side of her face (sorry to be so graphic), 2) Blood tinges , meaning just

clear drainage with tinges of blood. I am not sure what causes the different

types or amounts of blood. Just FYI, is not IGA def, so I don't think it

is related. I have recently learned that when she is refluxing badly, her ears

flare up very bad!!! has never ever been able to keep her tubes for

more than 2 years as her ears are so occluded that the tubes are non-functional

and need to be replaced. The tube is a small hole, and if there is sooo much

drainage and yuk in their ear canal, the tube cannot due its job to drain. For

it was necessary to insert new tubes and clean her messy messy ears about

every two years. She also gets them suctioned regularly at the ENT. Today we

go to the ENT for the 1st time, since being on new meds for reflux. I cannot

wait to see what he says when he looks in s ears. He always cringes when

he looks in there, because they are always such a mess. This visit will be a

nice surprise. I am also very interested in hearing his reaction to her Reflux

diagnosis, and the connection to her ears. He never ever once mentioned that

this may be a remote possibility. He knew complained of stomach aches,

because he did a thorough history before every exam. I told any doctor who

would listen about her stomach ache, and it all fell on deaf ears until her new

immunologist correctly diagnosed her. This ENT is considered one of the best in

the State and I truly do not believe he knows about reflux/ear infections

connection. Maybe I am wrong, we will see today. Oh also, it definitely

affects there hearing!!! Before s last set of tubes she was lip reading

her hearing was so bad. I am ashamed to say I did not even know my daughter was

doing it. Her ENT told me. I thought he was crazy. knew it and just

naturally assumed this is what people did to hear. It was such a gradual thing

that it just happened gradually. Looking back , there were sooo many signs ,

that I did not pick up on. She always had closed caption turned on her tv. When

I would ask her why, she always replied, I like to read what they are saying. I

thought she meant, I like to read the script. How dumb can I be!! Looking

back she would always have to be in my face all the time when I would be talking

to her. And so many mornings I would be talking to her from the other room, and

she never responded back. I would get so aggravated because I would yell ,

LAUREN ARE YOU LISTENING TO ME, GET YOUR BOOK BAG AND LETS GO. Here I thought

she was just being stubborn and not listening . I Feel very foolish now. I have

since apologized to her for all the times she got into trouble for not obeying

her mom and dad when she was told to do something. That is all in the past now,

thank our heavenly father.

Have a great day

Sharon

s mom

Ear question

I have a question and am searching for some opinions..Maddie has had 3 ear

infections in the last month and a half. She has tubes and we have had quite a

bit of drainage. She just finished zithromax and the infection seems to have

cleared, but when we were at the ent today he said he noticed some blood in her

ear canals. He did not seem concerned, but I am. He said her tubes are still

in, and would see us again in 6 months, unless another infection happens. He

said that when tubes have been in for more than 2 years-ours are only 1 year

old-that they tube itself can cause infections. I was just wondering if because

of the IgA def. if she might be more susceptible to that type of infection. We

have never had tubes last this long and as long as we have had tubes in we have

never had any problems. Her speech teacher at school said that Maddie seems to

be at a standstill and not progressing anywhere.

I am wondering if it is time to get another opinion or play the wait and see

game.

Becky in IN-mom to Maddie, age7, IgA def, mitochondrial myopathy, cp, gerd,

asthma..

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  • 1 year later...
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In a message dated 8/4/04 5:56:33 PM Pacific Daylight Time,

beckymcclure825@... writes:

Has anyone ever used the eardrops called ciprodex?

Yes, we've used them--they're Cipro and Bri is not allergic to it. Also, it

doesn't hurt him like some of the other drops. I hope they work for you;

Maddie deserves some relief. Still keep in mind the Rocephin, just in case.

Sandi, Mom to , age 11. Immune deficiency, Tetrology of Fallot,

Pulmonary valve transplant, Mitral valve stenosis, severe allergies, chronic

ear, nose

and throat infections, asthma and Carnitine deficiency. Suspected Di

Syndrome.

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Just a thought which may or may not have anything to do with your case. My

little boy (3 years old) has had an " ear infection " for over 2 months. The

doctor swabed it about 2 weeks ago to determine what type of bacteria was

growing to determine which antibiotic might help. As is turns out, he has a

yeast

infection in his ear????

Pam mom to Micheal - Selec Iga Def

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I thought my child was the only one with a yeast infection in her ear!!!! I

begged the ped. and the ENT to do an ear culture. They refused. I took her to

Childrens in Philadelphia, and they did one. She had a yeast infection. They

medications they were using were making it worse. She was a baby at the time.

She is now 11 and I will never forget it.

L.

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In a message dated 8/4/04 8:38:16 PM Pacific Daylight Time,

pamannmoran@... writes:

As is turns out, he has a yeast

infection in his ear????

has had yeast, but it wasn't painful like an ear infection. It did

itch, though.

Sandi, Mom to , age 11. Immune deficiency, Tetrology of Fallot,

Pulmonary valve transplant, Mitral valve stenosis, severe allergies, chronic

ear, nose

and throat infections, asthma and Carnitine deficiency. Suspected Di

Syndrome.

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In a message dated 8/5/04 8:47:02 AM Pacific Daylight Time, Nanashmar@...

writes:

I thought my child was the only one with a yeast infection in her ear!!!!

--

Nope!! Although the Ped looked in Bri's ear and was confused at what he

saw. I realized with all of the abx, it could be yeast. We tried Diflucan (Bri

was miserable with itching and we didn't want to wait for a culture) and it

cleared right up!!! My son also manages to get swimmer's ear from the shower,

I've never known another child to do that!!! For about a year, he had to wear

a headband to make sure to keep the water out, it was fantastic. Now, he can

just wear his ear plugs, which is good because the headband made it difficult

for him to wash his hair.

Sandi, Mom to , age 11. Immune deficiency, Tetrology of Fallot,

Pulmonary valve transplant, Mitral valve stenosis, severe allergies, chronic

ear, nose

and throat infections, asthma and Carnitine deficiency. Suspected Di

Syndrome.

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In a message dated 8/4/2004 8:56:34 PM Eastern Daylight Time,

beckymcclure825@... writes:

I forgot how miserable ear infections are. I hope this is not a sign of

things to come with school.

Oh, they are awful!!

I am worried about school also. I have to get with them about a sick plan. It

is a brand new school, with a brand new principle and new nurse.

I just hope she is well enough to go. i hope all our kids that go to school

are!!!!!!!!!

Janet, mom to Brittany, CVID, age 13

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Hi-my son Bradley was given Ciprodex. The ENT told us that it is usually well

managed by kids. The first drop in my kid screamed bloody murder...his ear got

bright red. I tried the next morning one more time and it was the same

reaction. $40 and wasted. I think he may have had a scratch inside his ear. I

hope that you find something to work......ear infections are NO fun.

Good luck and God bless.

Amy ( mom to Bradley 2 years old, IGA Def/partial antibody def, and 6

years old going on 13)

Amy

Ear question

Has anyone ever used the eardrops called ciprodex? after 3 days of another

ear drop and 5 doses of cefzil, Maddie's ear was still bleeding and full of pus.

I called the other dr-and she changed her to biaxin and these new drops. Our

pharmacist siad they are new and designed for infections in kids with ear tubes.

all I know is they are very expensive-as we still do not have insurance

numbers-luckily our pharmacist talked to our insurance and was able to give me

the biaxin to get me thru until the insurnace gets our numbers in the system on

Friday.

I forgot how miserable ear infections are. I hope this is not a sign of

things to come with school.

Becky in IN-mom to Maddie, age 8, IgA def, gerd, asthma, mild cp, ........

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In a message dated 8/5/2004 1:43:18 PM Eastern Daylight Time,

sassykay59@... writes:

My son also manages to get swimmer's ear from the shower,

I've never known another child to do that!!!

Sandi, Britt has!!!!!!!!!

Janet, mom to Brittany, CVID, age 13

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  • 5 years later...
Guest guest

Hello ,

You might suggest using the sodium chlorite and gel separately.

You can mix up 5 ml (1 teaspoon) of 5% sodium chlorite and add 5 ml of 10%

citric acid to it. Let this mixture activate for 10 minutes, then put it into

500 ml of water.

Next take a cotton ball and saturate it with the solution and hold it in contact

with the lesion for 10 minutes. Let the area air dry for a couple of minutes,

then apply the gel.

This solution has about 300 PPM available chlorine dioxide and about 30 PPM of

that as free chlorine dioxide. The chlorine dioxide will disinfect the lesion.

The gel will protect the area from future infection.

The next step would be to boost the immune system to promote healing.

The PH of this solution will be a little acidic. If stinging is observed, put

1/4 teaspoon baking soda into the solution to raise the PH.

Tom

>

> There's a person on another list that has a lesion on the inner curve of his

> ear. He's put iodine on it, to no effect, though where the iodine has

> dripped skin has peeled off!

>

> He's gotten some DMSO gel and is going to put a few drops of MMS1 into an

> amount of gel and try that.

>

> Any idea how many drops would be good to use? I suggested unactivated,

> perhaps only 2 drops into a separate amount of the gel, say a tablespoon

> size of gel, to be used throughout the day.

>

> He also plans on suing the AMMS orally.

>

>

> Samala,

>

> www.eamega.com/RPainManageEnt

> Chronic pain does NOT belong in your body. The Am Wand helps

> You get rid of it quickly and easily. Get the wand here

>

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It the MMS1 does not work, try coconut oil with lavander oil and swab the wound

several times a day. This heals my ears when i knick it while cleaning.

Antibiotics never worked, somehow perplexing.

--- > >

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