Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Welcome. Our son also suffers from OCD and GAD. He is 16. He is taking Celexa and seeing a psychologist who specializes in the treatment of OCD. He's been working for almost a year with this psychologist, and making good progress, using ERP and CBT. Is your son on medication? Our son had to go back on medication to get the OCD and anxiety under control enough to make it to therapy. How is the therapy helping him? Does his therapist use ERP and CBT? It's the only thing proven to help with OCD. Although the GAD is treated differently. If you haven't yet, reading some books on OCD will help tremendously. Knowing what you are dealing with, will help you understand what your son is going through. It helped me learn how to communicate with our son, concerning his OCD and anxiety. In our family, as I learned, I taught my husband. He doesn't totally get it, but at least he doesn't scream at our son anymore, when he gets stuck with OCD. Here are the names of some good books, if you are interested: What to do when your Child has Obsessive-Compulsive Disorder by Aureen Pinto Wagner Ph.D. Freeing Your Child from Obsessive-Compulsive Disorder by Tamar E. Chansky Helping Your Child With Ocd: A Workbook for Parents of Children With Obsessive-Compulsive Disorder by Lee Fitzgibbons and Cherry Pedrick Talking Back to OCD by March The last two are workbooks that not only have great information, but can also walk you through CBT and ERP. Glad you found us. BJ > > Hi! Just wanted to share what I have experienced with my son in the > past year. He is 11 and has GAD along with some OCD. I am having > trouble communicating with him. I am at a loss for what to say at this > point. He is getting help but for me without support from other family > members it makes it that much harder as time goes on. I'm glad to share > with you and to be a part of this group. > > Be Well > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Hi everyone! My daughter hasn't officially been diagnosed with OCD, but there is no doubt she is suffering from a mild case. As a preschooler we dealt with the sock seams, tags, etc. When she started school it turned into the need for perfection-reading an entire story over if she missed the last word on the last page, using white-out to remove red correction marks left by the teacher, making holes in her paper from erasing mistakes, etc. I took her to see a LCSW in our hometown. She taught her some techniques to calm down and become less stressed. We only saw her for a couple of months and everything seemed better. We didn't deal with much other than a few sensory issues-socks and underwear just not feeling " right " , etc through her 2nd, 3rd, and 4th grade years. Now that she is in 5th grade the OCD is much worse. The academic stress combined with changing hormones must be the culprit! She was also diagnosed with premature adrenarche during her 3rd or 4th grade year. At this point I am avoiding medication because I want to try CBT first. She feels she has to blink a certain amount of times or something bad will happen to someone in the family. She developed a vocal tic back in September after choking on popcorn. She was constantly clearing her throat to " make sure " the popcorn was gone. This lasted for about 4 months. She has since replaced the throat clearing with taking deep breaths (she's afraid her body will forget to breathe on its own.)She also touches things a certain number of times, needs things on the nightstand (eye glasses, cup) to be touching so they won't feel lonely, etc. There are several more that I am forgetting, but wanted to give everyone a quick history of our experience. What I really want to know-does anyone know of where I could take her for CBT near Knoxville, Tennessee? Thanks for listening to me ramble!!! Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Welcome, Penny. Yes, CBT specific to OCD, and ERP is the treatment that can help. Have you tried searching the OCFoundation.org website? They have therapists listed there for different states. But, be prepared to interview them, since not all listed there are specialists. Still, it is a place to start. ) Also try anxiety clinics. They often treat OCD too, since it is an anxiety disorder. And find OCD support groups. Call and email them and ask them for suggestions of therapists. Our son is 16 and we have dealt with OCD for years. Just this last year he relapsed hard. He went back on meds and started therapy with a specialist, for the first time. He had done therapy for years, but the wrong kind that did not help. He is making progress now and we are very encouraged. He has overcome most of the obvious physical rituals and is working on contamination stuff now. There is hope. Glad you are here, Penny. BJ > > Hi everyone! > My daughter hasn't officially been diagnosed with OCD, but there is > no doubt she is suffering from a mild case. As a preschooler we dealt > with the sock seams, tags, etc. When she started school it turned > into the need for perfection-reading an entire story over if she > missed the last word on the last page, using white-out to remove red > correction marks left by the teacher, making holes in her paper from > erasing mistakes, etc. I took her to see a LCSW in our hometown. She > taught her some techniques to calm down and become less stressed. We > only saw her for a couple of months and everything seemed better. We > didn't deal with much other than a few sensory issues-socks and > underwear just not feeling " right " , etc through her 2nd, 3rd, and 4th > grade years. Now that she is in 5th grade the OCD is much worse. The > academic stress combined with changing hormones must be the > culprit! She was also diagnosed with premature adrenarche during her > 3rd or 4th grade year. > At this point I am avoiding medication because I want to try CBT > first. She feels she has to blink a certain amount of times or > something bad will happen to someone in the family. She developed a > vocal tic back in September after choking on popcorn. She was > constantly clearing her throat to " make sure " the popcorn was gone. > This lasted for about 4 months. She has since replaced the throat > clearing with taking deep breaths (she's afraid her body will forget > to breathe on its own.)She also touches things a certain number of > times, needs things on the nightstand (eye glasses, cup) to be > touching > so they won't feel lonely, etc. > There are several more that I am forgetting, but wanted to give > everyone a quick history of our experience. > What I really want to know-does anyone know of where I could take her > for CBT near Knoxville, Tennessee? > Thanks for listening to me ramble!!! > Penny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Welcome, Penny! I'm sorry I don't have any advice except that it certainly sounds like OCD and treatment with the right professional is invaluable! I'm Beth, mom to Kate (8 yrs old) who was diagnosed with mild OCD earlier this year. She is doing phenomenally now, thanks to quick treatment and her own willingness to get past the OCD. She still has some quirky habits, of course, and struggles with distracting thoughts but it is no longer all-consuming. This group has been so valuable to me as I try to parent my little girl. I'm sure you will find great advice and, more importantly, a place to vent and ask questions from lots of moms who have been right where you are! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Welcome Penny, The great thing about this group is hearing that our children are not alone in their struggles. It just stopped me in my tracks to read about your daughter throat-clearing and taking " deep breaths " . I went to several doctors and specialists to find out what was wrong with my daughter, until we finally ruled everything out and diagnosed it as anxiety-related. I kept e-mailing our pediatrician and telling him that my daughter keeps feeling that she can't breath! She was afraid to go to sleep, fearing that she would stop breathing. When I would ask to describe it, she would say " it feels like the air isn't going through " . She was only 8 years old, when it started. She would also have runs of tachycardia. We finally found a psychologist, who after several meetings, did some testing for ADHD and found that she had attention issues. Over the months, she started exhibiting OCD, which we are dealing with as well. It is not too severe, but one thing that has continued over the past year is the " deep breaths " . She has such a mix of things going on that it is hard to pinpoint causes. Do you think that the deep breaths " are OCD with your daughter? We had always attributed it to general anxiety. The throat clearing has calmed down, but we thought we would go bananas for a while. It was non-stop! Perhaps we can exchange some ideas. I would like to hear more of your thoughts on the breathing issue! Best, Dianne > She developed a > vocal tic back in September after choking on popcorn. She was > constantly clearing her throat to " make sure " the popcorn was gone. > This lasted for about 4 months. She has since replaced the throat > clearing with taking deep breaths (she's afraid her body will forget > to breathe on its own.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 I too have the " feeling of not being able to breathe " from my anxiety, and as an adult it is horrible. I can't imgaine an 8 yr old child dealing with this. Hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Hi Penny and welcome! Reading your post reminded me of our son when he was younger, the eraser marks and sensory stuff in particular. At one point our son was alternating afraid to breath the air, and then afraid he could not breath. I remember thinking it would be ok, he would pass out and start breathing either way. This OCD stuff sure brings many challenges with it. You mention stress and hormones as a factor with your daughter's OCD. Our son's OCD came on with severity and suddenly at 15, just before starting highschool. He was really stressed about going to highschool,fears of being bullied, coupled with hormonal changes I think tipped the load. It's hard to say whether the illness brought on the fears or vv. They do say stress is a big factor with this illness though. I am not familiar with premature adrenarche, can I ask what this is? If your daughter is on the milder side of OCD they do recommend starting with CBT first. Medication is only an assist in any case, as they do need to learn how to combat the OCD themselves. I hope you are able to find someone who is qualified. I think BJ made some suggestions on this. If you check the " files " and " links " on this site you will find much useful information. I think there are questions to ask a potential psychologist too. Again, welcome and keep posting! Warmly, Barb Ontario, Canada Son, 16yrs, OCD, LD, poss. other stuff??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2008 Report Share Posted April 24, 2008 I am so thankful to have found this group!! It has made me more aware of some things my daughter is doing that are OCD related and I thought she was just over sensitive or sentimental (she has every stuffed animal that has ever been given to her-maybe hoarding?). Barb, to answer your question about the premature adrenarche-my daughter started growing pubic hair in the 1st grade and by 2nd grade she was starting to have some vaginal discharge. Our pediatrician referred her to a pediatric endocrinologist. After blood work and bone scans it was determined her adrenal glands were producing spikes of hormones at certain times. The amount was normal for a child entering puberty, but not for a 7 year old. I have read that these are the stress hormones called cortisol. I can't help but think this is definitely part of the problem! Dianne,I do think the deep breaths are OCD related. She always picks a new thing to replace an old " habit " (that's what she calls it). I guess she was ready to replace the throat clearing about the time she heard on the news that a woman had died on an airplane. The woman had stopped breathing and the oxygen mask didn't work. This made my daughter think about the fact that your body may just stop breathing unless you think to do it. I explained how God made our bodies special and our heart beating and lungs breathing happen without us having to make it happen. This of course wasn't enough reassurance. I told her the woman had some health issues that caused her problems. But just to be on the safe side-she is very aware of her breathing pattern! We try not to have a news program on when she is in the room- too much bad stuff to worry about. I have another theory about what sparked her onset of OCD, in addition to the hormonal stuff. I really remember her being more high maintanence about sensory stuff right after September 11. She was only 4 when this happened, but at the time I didn't turn the tv off when she was around. I didn't realize what a " sponge " she was. That may have triggered some anxiety. I guess I am grasping to figure out why this has happened to her! Sorry for such a long post! > > Hi Penny and welcome! Reading your post reminded me of our son when > he was younger, the eraser marks and sensory stuff in particular. At > one point our son was alternating afraid to breath the air, and then > afraid he could not breath. I remember thinking it would be ok, he > would pass out and start breathing either way. This OCD stuff sure > brings many challenges with it. > > You mention stress and hormones as a factor with your daughter's > OCD. Our son's OCD came on with severity and suddenly at 15, just > before starting highschool. He was really stressed about going to > highschool,fears of being bullied, coupled with hormonal changes I > think tipped the load. It's hard to say whether the illness brought > on the fears or vv. They do say stress is a big factor with this > illness though. > > I am not familiar with premature adrenarche, can I ask what this is? > > If your daughter is on the milder side of OCD they do recommend > starting with CBT first. Medication is only an assist in any case, > as they do need to learn how to combat the OCD themselves. I hope > you are able to find someone who is qualified. I think BJ made some > suggestions on this. > > If you check the " files " and " links " on this site you will find much > useful information. I think there are questions to ask a potential > psychologist too. > > Again, welcome and keep posting! > > Warmly, > Barb > Ontario, Canada > Son, 16yrs, OCD, LD, poss. other stuff??? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 Welcome to the group. Sounds like you are off to a good start by finding a psychologist who uses CBT/ERP. That is the most effective treatment for OCD. The medication can help calm down the OCD enough so that your daughter will be able to do the ERP. Plus the medicine will help with the depression. We definitely saw that with our 17 yr old son with OCD. The medication really helped with the depression. Our son was just diagnosed this past fall. After reading and learning more about OCD, I was able to look back and see that our son had symptoms when he was younger. Another good book to read is 'Freeing Your Child From Obsessive Compulsive Disorder' by Dr. Tamar Chansky. Take care Connie > > hi, my 15 yr old daughter just got diagnosed with ocd and premenstrual > dysfunction dysphoria three months ago. This is so confusing and > overwhelming to me. She is seeing a psychologist who is knowledgeable > in CBT and ERP and she is taking prozac 12.5 mg and taking birth > control pills to balance her hormones for the premenstrual > dysfunction. She mainly has obsessive-instrusive thoughts and > depression and sadness with the premenstrual dysfunction. Her ocd is > so much worse the week of and week after her period. So we have a good > two weeks each month right now! ugh! > I read the book What to do when your child has OCD by Aureen Wagner. > Very helpful. But I think I'm in denial. But when I look back to her > younger years I see so many things that were ocd behavior in her > thinking. She has always told me her every thought etc. Anyway, I'm > glad to have found this support group. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Hey, welcome! Well I'm glad you have an experienced psychologist, those can be hard to find! And as to the premenstrual stuff -- well, LOL, I recall I used to say I only had 2 good weeks a month too, guess maybe I had same/similar to your daughter, only no OCD thrown in! Just depression and tears, a bit of " touchy " emotions. And a week of eating! Once we have learned about OCD, a lot of us parents can look back over the years and see a few " quirks " our children had that we can now look at as part of OCD. I can with my son. However, the full *disorder* for my son began in 6th grade. OCD popped up full-time, 24/7 with lots of behaviors he didn't have before. But when younger he used to do a bit of the erasing/rewriting, tracing over letters, asking reassurance questions.... Glad you found us. Teenage years can be hard enough without OCD thrown into the emotions/hormones! > > hi, my 15 yr old daughter just got diagnosed with ocd and premenstrual > dysfunction dysphoria three months ago. This is so confusing and > overwhelming to me. She is seeing a psychologist who is knowledgeable > in CBT and ERP and she is taking prozac 12.5 mg and taking birth > control pills to balance her hormones for the premenstrual > dysfunction. She mainly has obsessive-instrusive thoughts and > depression and sadness with the premenstrual dysfunction. Her ocd is Quote Link to comment Share on other sites More sharing options...
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