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In a message dated 09/05/2002 3:09:52 PM Eastern Daylight Time, deejaysplace@... writes:

Just 6 weeks of taking MILK THISTLE

What type of Milk Thistle does the list recommend? Please help me find a great brand....In health Cosy

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--- deejaysplace@... wrote:

My

> body

> regected the therapy after I had responded. I was in real bad shape

> and the

> HepC also came back with a vengence. Alt levels higher than before

> therapy and a higher virus load.

I just wanted to let you know that this jump in ALT and viral load

when treatment is stopped in non-responders or relapsers is NORMAL.

It scared me to death when it happened to me! Doctors have said they

believe it is a situation similar to going through acute HCV again.

Fortunately it does NOT cause any permanent damage, and your viral

load will gradually return to about pre-treatment levels. My ALT,

which had been normal during treatment, immediately jumped up, and my

viral load went from 50,000 to over a million. Before treatment it

had been 110,000. A year or so later it was back down to about

190,000. And the best thing was that I no longer had ANY fibrosis

left, and it has not come back either. I just wanted to let you know

that this is a normal occurance - it can be really scary when it

happens to you.

The milk thistle is great. I'd also take a vitamin E supplement. I

think these have helped keep my fibrosis from returning.

Good luck,

Claudine

__________________________________________________

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Maximum Milk Thistle

Re: [ ] Thanks to you all

In a message dated 09/05/2002 3:09:52 PM Eastern Daylight Time, deejaysplace@... writes:

Just 6 weeks of taking MILK THISTLE What type of Milk Thistle does the list recommend? Please help me find a great brand....In health Cosy

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Hallo Claudine intexas

Yes I will add vitamin E to my diet

I would like to add that I stopped therapy last year in June. My ALT , AST and viral load have been up since then. I never realy recovered from the therapy. I´v read some things on the net that claim the chance of bilding antibodies to PEG are alot smaller, but after the last therapy I must say that I was not looking forward to trying it.

All that makes the MILK THISTLE look like a down right wonder to me. To think that the German doctor that had put me on therapy said not to take the MILK THISTLE. I´m glad the my doctor is on my side and behind me all the way.

Bless all of you from Deejaysplace

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--- deejaysplace@... wrote:

> Hallo Claudine intexas

> Yes I will add vitamin E to my diet

> I would like to add that I stopped therapy last year in June. My

> ALT , AST

> and viral load have been up since then.

I stopped treatment in January 1998. My viral load wasn't back down

until July of 1999. Don't worry about your viral load - it's not

really very important except as a marker as to whether or not you are

responding to treatment. This is one disease where a high viral load

does NOT mean a more severe form of the disease or more damage being

done. The ALT/AST are not reliable either. Did you have much fibrosis

before you went on treatment? If not, then just sticking with a good

brand of milk thistle and vitamin E should help keep your liver

stable and hopefully reduce inflammation (and NOT needing to spend

tons of money!) If you did have significant damage there are other

things you might want to add, like colostrum and/or alpha lipoic

acid. I think some of that depends on what you can afford too.

Good luck - It sounds like you are definitely on the right track!

Claudine

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  • 8 months later...
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In a message dated 5/13/2003 10:22:47 PM Central Daylight Time,

Rodie66@... writes:

> Hey everyone,

> Thanks to everyones good thoughts and prayers, I have been

> APPROVED by my insurance.. I am the newest " soon to be " DS'er.. I

> can't wait.. so Thank you.. Thank you.. Thank you..

> Janice

>

Yea Janice...Let us know when you have a date for sure!!

in Bama

http://hometown.aol.com/mdl1031/myhomepage/profile.html

Surgery- RNY to DS revision on12/6 -377.5

12/17 - 346.5 ( minus 31lbs)

01/15- 338.1 (minus 39.1lbs)

02/12-330.0 (minus 47.5 lbs)

04/06- 324.3 (minus 53.2 lbs)

05/02- 311 (minus 66.5 lbs)

05/12- 304.8 (minus 72.7 lbs)-BMI now 48

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In a message dated 5/13/2003 8:25:59 PM Pacific Daylight Time,

Rodie66@... writes:

> APPROVED

Are there sweeter words in the English language? Probably not! LOL

Congratulations, Janice, I'm thrilled for you!

Hugs and blessings, Ann

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Whoooo Hoooo!!!!! Congrats Janice!!!!!

Cinda :)

> Hey everyone,

> Thanks to everyones good thoughts and prayers, I have been

> APPROVED by my insurance.. I am the newest " soon to be " DS'er.. I

> can't wait.. so Thank you.. Thank you.. Thank you..

> Janice

> Grover Beach

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congrats on your approval

Amber In Hawaii

gastric stapling 1989 lost 40#

D.S. July 8th 2002

starting wt 287 size 26

wt at 10 months 172 size 14

starting BMI 48 NOW 29

Thanks to you all

Hey everyone,

Thanks to everyones good thoughts and prayers, I have been

APPROVED by my insurance.. I am the newest " soon to be " DS'er.. I

can't wait.. so Thank you.. Thank you.. Thank you..

Janice

Grover Beach

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> In a message dated 5/13/2003 8:25:59 PM Pacific Daylight Time,

> Rodie66@a... writes:

> > APPROVED

>

>

> Are there sweeter words in the English language? Probably not!

LOL

> Congratulations, Janice, I'm thrilled for you!

>

> Hugs and blessings, Ann

>

Ann,

I do believe you are right....what I wouldnt give to hear my

insurance say that to me....well, maybe after they get my appeal

letter. and more gross pics, and lots of papers and letters...ect.

ect. ect. lol

we shall see, but the surgery is on for the 23rd irregardless.

Sharon in Onyx

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In a message dated 5/14/2003 8:10:12 AM Pacific Daylight Time,

roseofsharon_ps121@... writes:

> Ann,

> I do believe you are right....what I wouldnt give to hear my

> insurance say that to me...

Sharon sweetie, my best wishes and heartfelt prayers go with your appeal.

Hugs and blessings, Ann

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Congratulations Janice and welcome to the family!

Kind regards,

Kinsey

> Hey everyone,

> Thanks to everyones good thoughts and prayers, I have been

> APPROVED by my insurance.. I am the newest " soon to be " DS'er.. I

> can't wait.. so Thank you.. Thank you.. Thank you..

> Janice

> Grover Beach

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> Sharon sweetie, my best wishes and heartfelt prayers go with your

appeal.

>

> Hugs and blessings, Ann

Thank you, Ann

It is in the mail to them already, so keep those prayers going that

they will see the necessity of this so I can afford the " cosmetic "

fixings later....lol

At any rate, I am walking into Delano regional next Friday and

allowing Dr K & Dr Bae to skin me!lol Dr K is reeal excited about

this surgery. He loves a good challenge and has that gleem in his

eyes. Dee said that is all he talked about yesterday...and last

evening he said it was going to be very interesting..

So here we go

Sharon in Onyx

who had to laugh at my DH when I told him about all this, " He asked,

well since Dr K is going to enjoy this so much will he be giving us

a discount? " lol

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Hi Sharon!

I WILL keep those prayers going for your approval and while I am at it, I

will pray for an uneventful and successful surgery (or being " skinned " --

whichever you prefer)! LOL Now, your DH has a great idea, since Dr. K enjoys

his work -- maybe he should pay us for the pleasure????!!!!! LOL

(Okay everybody, put down the weapons -- IT WAS A JOKE -- I love Dr. K, too,

and think he is worth every penny he charges!)

Hugs and blessings, Ann

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>

> Thank you, Ann

> It is in the mail to them already, so keep those prayers going that

> they will see the necessity of this so I can afford the " cosmetic "

> fixings later....lol

> At any rate, I am walking into Delano regional next Friday and

> allowing Dr K & Dr Bae to skin me!lol Dr K is reeal excited about

> this surgery. He loves a good challenge and has that gleem in his

> eyes. Dee said that is all he talked about yesterday...and last

> evening he said it was going to be very interesting..

> So here we go

> Sharon in Onyx

~~~~~~~~~~~~~~~~~~`

Sharon,

Now you know they will take pictures,so are you going to get

a camera and have pictures taken???

You are going to do soooo good

You have the greatest Physician with you along with the second

best,dr.k and dr.bae. Prayers are with you

Good luck and God bless

Pat

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Yeeeehaaaa! Congratulations on the approval, Janice!

Tracey

> Hey everyone,

> Thanks to everyones good thoughts and prayers, I have been

> APPROVED by my insurance.. I am the newest " soon to be " DS'er.. I

> can't wait.. so Thank you.. Thank you.. Thank you..

> Janice

> Grover Beach

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Sharon, I'm sorry your insurance is being so poopy. Does this mean

you're going to self-pay in the meantime?

Hugs!

Tracey

> Ann,

> I do believe you are right....what I wouldnt give to hear my

> insurance say that to me....well, maybe after they get my appeal

> letter. and more gross pics, and lots of papers and letters...ect.

> ect. ect. lol

> we shall see, but the surgery is on for the 23rd irregardless.

> Sharon in Onyx

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> Sharon, I'm sorry your insurance is being so poopy. Does this

mean

> you're going to self-pay in the meantime?

>

> Hugs!

> Tracey

Hi Tracey

Yep, I am self paying until the appeal comes thru. Then when they

approve me I will be reimbursed, and put the money back into our

retirement fund.

Only one week away until I voluntarily walk into the hospital and

get skinned alive.....:)

I am not nervous, no not me, Iam not nervous....

Big hugs,

Sharon in Onyx

who is going to take a pic of her pond to show you...the wind blew

the flowers off tho...

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I voluntarily walk into the hospital and

> get skinned alive.....:)

> Sharon in Onyx

=======================

Geez Sharon you make it sound soooo appealing...everyone is going to

want to do it now!

How many days are they anticipating you being in the hospital? Darn-

it I'm going to be out of town....I want to come visit you and view

the skinning! Since your self-pay and gambling that the insurance

will pitch in I hope you are sprung early...but if you haven't

managed to break out by Tues. then I'm going to try to get to Delano

and visit you....And if my Cell phone have reception then I will be

calling.

Praying for an easy recovery

Praying insurance sees how hideous your pics are and its not

cosmetic! (evil smile...I didn't think you looked hideous...but I

don't think its just a matter of cosmetics..truely praying insurance

sees the light)

Jo

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Hi Sharon,

Awe! I'm sorry to hear the wind blew the flowers off your pond

garden. But DO send me a picture! I'd love to see it!

Well, good for you for not letting the insurance delay your plans!

I'm praying for you that those idiots get their act together and

approve you. In the meantime, you will be on my mind all day on

Friday. And hey, there's nothing to be nervous about! You're going

to be just fine! You've got the best in the country workin' on you

and the prayers and good thoughts of this entire group behind you!

All that good karma is gonna take care of you, sweetie!

BIG HUG!

Tracey

>

> Hi Tracey

> Yep, I am self paying until the appeal comes thru. Then when they

> approve me I will be reimbursed, and put the money back into our

> retirement fund.

> Only one week away until I voluntarily walk into the hospital and

> get skinned alive.....:)

> I am not nervous, no not me, Iam not nervous....

> Big hugs,

> Sharon in Onyx

> who is going to take a pic of her pond to show you...the wind blew

> the flowers off tho...

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> I voluntarily walk into the hospital and

> > get skinned alive.....:)

>

> > Sharon in Onyx

> =======================

> Geez Sharon you make it sound soooo appealing...everyone is going

to want to do it now!

::I know, but it is not going to be as fun as it sounds..lol

>

> How many days are they anticipating you being in the hospital?

Darn-it I'm going to be out of town....I want to come visit you and

view the skinning! Since your self-pay and gambling that the

insurance will pitch in I hope you are sprung early...but if you

haven't managed to break out by Tues. then I'm going to try to get

to Delano and visit you....And if my Cell phone have reception then

I will be calling.

::My surgery is at 1pm on friday and Dr. K said I will be ther until

Tues, the earliest and possibly Wed, depending on how it goes. I

will probably be ready by then to be sprung, or at least have

visitors to walk with. It will ok to call too. Just so you all

know my last name is , and Sharon really is my first name (lol_

that is for you Nick! LOL). I have given permission to give out

info to any one who calls the office for info if they know my

name..lol Dont know what the hospital will do, but at least you all

have it.

>

> Praying for an easy recovery

> Praying insurance sees how hideous your pics are and its not

> cosmetic! (evil smile...I didn't think you looked hideous...but I

> don't think its just a matter of cosmetics..truely praying

insurance sees the light)

:: Thanks Jo, I really do need all the prayers I can get. I do

believe that the power of prayer is the best gift you can give

someone, so thank you, my friend.

Sharon in Onyx

who remembers Jos first visit to me when I had the ds- and she

warned me of the evil drain pull, so I took vicadin, but it still

hurt like He@@! And I will have 6 drains this time...ooowwwie!

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On Mon, 19 May 2003 19:02:45 -0000, roseofsharon_ps121 wrote:

>

>::My surgery is at 1pm on friday and Dr. K said I will be ther until

>Tues, the earliest and possibly Wed, depending on how it goes. I

>will probably be ready by then to be sprung, or at least have

>visitors to walk with. It will ok to call too. Just so you all

>know my last name is , and Sharon really is my first name (lol_

>that is for you Nick! LOL). I have given permission to give out

>info to any one who calls the office for info if they know my

>name..lol Dont know what the hospital will do, but at least you all

>have it.

Just a reminder.. Under the new federal guidelines, unless the visitor

knows your full name, the hospital staff cannot allow them to visit you.

It's a bummer and we're not supposed to be emailing full names back and

forth on the support list for the same basic reason, viloation of the new

prtient privacy guidelines.

However, that doesn't preclude someone sending a private email to a friend

with that same info.

Just a thought,

Jerry (who works for the Fed and is always having to find legal ways around

stupid regs.) ;-))

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