Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 ............................................................................. .......................................................................... HI, I HAVE BEEN DIAGNOSED WITH SICCO SYNDROME NEUROPATHY - 1 - 100,000 HAVE THE STRAIN. DOCTORS THOUGHT IT MAY HAVE BEEN MS, I HSTARED HAVING TINGLING IN MY FINGERS BUT THINGS PROGRESSED TO EXTREME PAIN AND THEN NUMBNESS I NOWHAVE NO SENSATION IN RIGHT ARM SIDE FACE, PARTIAL LEFT ARM LEG, SO WALKING AND EVERYDAY TASKS ARE DIFFICULT, PREVIOSLY I WORKED IN AN OFFICE DOING GENERAL WORK, TYPING, 80WORDS A MINUTE NOW I CAN MANAGE ONLY WITH 2 FINGERS ON MY LEFT HAND. THE DOC. SAID IF YOU GET ONE AUTOIMMUNE DISORDER YOU SRE MORE LIKELY TO GET ANOTHER DURING BLOIOD TESTS THEY DISCOVERED I HAD AIH, IT ALSO TRANSPIRES THAT I HAVE A HOLMES AIDIE PUPIL WHICH I HAVE HAD WITH NO BOTHER FOR ABOUT 12 YEARS WERE MY PUPIL DOES NOT REACT, SO YOU WONDER ONCE THEY START LOOKING THEY FIND ALLSORTS. BUT WHAT IT ALL MEANS I DONT KNOW. CATHY (SCOTLAND)) [ ] Multiple Sclerosis > Hi Everyone, > > I was wondering if folks out there who have MS can give me some info > about : > (a) What kind of symptoms did you have prior to diagnosis? > ( How long before onset of your symptoms before you were diagnosed > with MS? > © Did you have a CAT Scan done, and it came back negative, but you > were diagnosed later with MS anyway. > > I am not trying to find out for myself, but for my friend, who > already has Hashimoto's autoimmune thyroiditis, fibromyalgia, asthma, > and irritable bowel syndrome. And sometimes she gets " neurological " > type symptoms, like tingling in the hands and feet, sometimes loss of > balance, lazy eye, any and all of which could be due to something > else besides MS. Once she went for a CAT Scan (something the > hospital did whilst she was being seen for something else) and it > came back negative. > > But she is still very very worried about having MS, and she knows > it's a disease which can take years before it's diagnosed, and I > offered to ask our group members who have it to shed some light. > Sorry this is not a liver-related question, but whatever info people > can provide personally would be greatly, greatly appreciated. > > Thanks, and enjoy your day, > > aisha > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Hi Aisha, I have M.S. and yes it takes along time to get the diagnosis. I had an MRI which is the typical test run for M.S. I also had a spinal tap and they did an EEG test as well. The MRI was negative, but Dr. Herndon by his examination of me determined that my lesions were below the line where it wouldn't show on the MRI, especially at the brain stem area. My presenting symptoms was numbness in my feet, hands and arms. I also was extremely tired, and had bladder problems, and muscle spasms. I had electrical shocks that will jolt me from a sitting position to a standing position, not fun! At the same time I had the liver symptoms come with high elevated enzymes, and I also had underactive thyroid show up as well. I had three diseases come all at the same time. I also forgot to mention I had nystagmus, which is where your eyes jump when you switch focus. I hope this helps. Love, Ruth aishayeoh wrote: Hi Everyone,I was wondering if folks out there who have MS can give me some info about :(a) What kind of symptoms did you have prior to diagnosis?( How long before onset of your symptoms before you were diagnosed with MS?© Did you have a CAT Scan done, and it came back negative, but you were diagnosed later with MS anyway.I am not trying to find out for myself, but for my friend, who already has Hashimoto's autoimmune thyroiditis, fibromyalgia, asthma, and irritable bowel syndrome. And sometimes she gets "neurological" type symptoms, like tingling in the hands and feet, sometimes loss of balance, lazy eye, any and all of which could be due to something else besides MS. Once she went for a CAT Scan (something the hospital did whilst she was being seen for something else) and it came back negative.But she is still very very worried about having MS, and she knows it's a disease which can take years before it's diagnosed, and I offered to ask our group members who have it to shed some light. Sorry this is not a liver-related question, but whatever info people can provide personally would be greatly, greatly appreciated.Thanks, and enjoy your day,aisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Hi I am so sorry tohear about your health problems I have looked in all my books and things and can find nothing about Sicca Syndrome Neuropathy anywere it must be very frustrating for you. Do you have good doctors in Scotland. I have had a couple of strokes this last year which has left me with no feelings in my left hand side so I know how it feels to some extent. Just think if they put you and me together we would make a perfect team me with only a right hand side working and you with a left hand side working. Please get as much rest and help that you cad and please feel free to mail me personaly me addredd is Jeanette_cuk@... I would be pleased to hear from you. Jeanette UK AIH dx 1998 Cirrhosis dx 2001 Bell <arthur.bell1@...> wrote: .....................................................................................................................................................HI,I HAVE BEEN DIAGNOSED WITH SICCO SYNDROME NEUROPATHY - 1 - 100,000 HAVE THESTRAIN. DOCTORS THOUGHT IT MAY HAVE BEEN MS, I HSTARED HAVING TINGLING INMY FINGERS BUT THINGS PROGRESSED TO EXTREME PAIN AND THEN NUMBNESS I NOWHAVENO SENSATION IN RIGHT ARM SIDE FACE, PARTIAL LEFT ARM LEG, SO WALKING ANDEVERYDAY TASKS ARE DIFFICULT, PREVIOSLY I WORKED IN AN OFFICE DOING GENERALWORK, TYPING, 80WORDS A MINUTE NOW I CAN MANAGE ONLY WITH 2 FINGERS ON MYLEFT HAND.THE DOC. SAID IF YOU GET ONE AUTOIMMUNE DISORDER YOU SRE MORE LIKELY TO GETANOTHER DURING BLOIOD TESTS THEY DISCOVERED I HAD AIH, IT ALSO TRANSPIRESTHAT I HAVE A HOLMES AIDIE PUPIL WHICH I HAVE HAD WITH NO BOTHER FOR ABOUT12 YEARS WERE MY PUPIL DOES NOT REACT, SO YOU WONDER ONCE THEY START LOOKINGTHEY FIND ALLSORTS.BUT WHAT IT ALL MEANS I DONT KNOW.CATHY (SCOTLAND)) [ ] Multiple Sclerosis> Hi Everyone,>> I was wondering if folks out there who have MS can give me some info> about :> (a) What kind of symptoms did you have prior to diagnosis?> ( How long before onset of your symptoms before you were diagnosed> with MS?> © Did you have a CAT Scan done, and it came back negative, but you> were diagnosed later with MS anyway.>> I am not trying to find out for myself, but for my friend, who> already has Hashimoto's autoimmune thyroiditis, fibromyalgia, asthma,> and irritable bowel syndrome. And sometimes she gets "neurological"> type symptoms, like tingling in the hands and feet, sometimes loss of> balance, lazy eye, any and all of which could be due to something> else besides MS. Once she went for a CAT Scan (something the> hospital did whilst she was being seen for something else) and it> came back negative.>> But she is still very very worried about having MS, and she knows> it's a disease which can take years before it's diagnosed, and I> offered to ask our group members who have it to shed some light.> Sorry this is not a liver-related question, but whatever info people> can provide personally would be greatly, greatly appreciated.>> Thanks, and enjoy your day,>> aisha>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Hi Ruth, It was very kind of you to reply so quickly with so much info. May I ask you one more question: Was bladder dysfuntion/incontinence one of your symptoms as well? And if it was, did it come and go? (meaning, you had it for a few weeks, then it stopped a few weeks, then it came again...) My friend's bladder dysfunction was in the form of frequent urination, especially at night, and leaking to the point she had to wear pads every day, but the urologist did tests and ruled out infection. Thanks so much, and God Bless, aisha Re: [ ] Multiple Sclerosis Hi Aisha, I have M.S. and yes it takes along time to get the diagnosis. I had an MRI which is the typical test run for M.S. I also had a spinal tap and they did an EEG test as well. The MRI was negative, but Dr. Herndon by his examination of me determined that my lesions were below the line where it wouldn't show on the MRI, especially at the brain stem area. My presenting symptoms was numbness in my feet, hands and arms. I also was extremely tired, and had bladder problems, and muscle spasms. I had electrical shocks that will jolt me from a sitting position to a standing position, not fun! At the same time I had the liver symptoms come with high elevated enzymes, and I also had underactive thyroid show up as well. I had three diseases come all at the same time. I also forgot to mention I had nystagmus, which is where your eyes jump when you switch focus. I hope this helps. Love, Ruth aishayeoh wrote: Hi Everyone,I was wondering if folks out there who have MS can give me some info about :(a) What kind of symptoms did you have prior to diagnosis?( How long before onset of your symptoms before you were diagnosed with MS?© Did you have a CAT Scan done, and it came back negative, but you were diagnosed later with MS anyway.I am not trying to find out for myself, but for my friend, who already has Hashimoto's autoimmune thyroiditis, fibromyalgia, asthma, and irritable bowel syndrome. And sometimes she gets "neurological" type symptoms, like tingling in the hands and feet, sometimes loss of balance, lazy eye, any and all of which could be due to something else besides MS. Once she went for a CAT Scan (something the hospital did whilst she was being seen for something else) and it came back negative.But she is still very very worried about having MS, and she knows it's a disease which can take years before it's diagnosed, and I offered to ask our group members who have it to shed some light. Sorry this is not a liver-related question, but whatever info people can provide personally would be greatly, greatly appreciated.Thanks, and enjoy your day,aisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Glad to help Aisha. Yes I have incontinence, I wear pads. The bladder test they ran on me showed I have a spastic bladder which means it won't empty as it should. It is easy to get bladder and kidney infections. I take oxybutynin, twice daily. If I didn't take one at night, I would get up to use the bathroom about 8-10 times. I also fall easily because of balance problems especially when I overdo. Becoming overheated totally drains me and I am sensitive to cold as well. I have numbness in the back of my mouth and throat so I choke on food and have trouble taking pills. I feel that my liver problems has been more difficult than the M.S., because of the pain and nausea, and itching is almost constant whereas the M.S. is remitting. I have the remitting kind of M.S. where I can go into remission and relapse. The bladder problems are always there along with the fatigue. I sure hope your friend can get answers and help soon. I highly recommend that she get in a support group very quickly, that is what I should have done when I was first diagnosed. I became very depressed and felt very alone. My sister in law died from M.S. complications, my brother is in a wheelchair so when I found out I had M.S., it really frightened me as our son was only a year old at the time, our daughter was 3 1/2 years old so I was very worried about being there for my little ones. M.S. hasn't been easy, but it hasn't been the awful scary diseae I thought it would be. The hardest part was having the extreme fatigue and people would assume I was okay and that I was capable of doing much more than I did. My problem is my AIH symptoms were there than so I had more than one disease process going on. Now the jigsaw puzzles fit, I can see why I felt so bad than and it has shown my family how sick I was and that they are more supportive now. Doctors now have a total different attitude towards me, for years they treated me like a hypochondriac. I should say not all did, but a neurologist once had me in tears, I knew what was going on in my body, but the tests weren't confirming it until much later. I call that medical limbo, I think it is the worst time for a patient because you feel sick but no one believes you. Aisha if your friend needs someone to talk to, I am here should she need it. Love, Ruth > Hi Everyone, > > I was wondering if folks out there who have MS can give me some info > about : > (a) What kind of symptoms did you have prior to diagnosis? > ( How long before onset of your symptoms before you were diagnosed > with MS? > © Did you have a CAT Scan done, and it came back negative, but you > were diagnosed later with MS anyway. > > I am not trying to find out for myself, but for my friend, who > already has Hashimoto's autoimmune thyroiditis, fibromyalgia, asthma, > and irritable bowel syndrome. And sometimes she gets " neurological " > type symptoms, like tingling in the hands and feet, sometimes loss of > balance, lazy eye, any and all of which could be due to something > else besides MS. Once she went for a CAT Scan (something the > hospital did whilst she was being seen for something else) and it > came back negative. > > But she is still very very worried about having MS, and she knows > it's a disease which can take years before it's diagnosed, and I > offered to ask our group members who have it to shed some light. > Sorry this is not a liver-related question, but whatever info people > can provide personally would be greatly, greatly appreciated. > > Thanks, and enjoy your day, > > aisha > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 My Dear Ruth, I have just read your mail and I didn't realise just how many problems you have. You are such a brave lady and so strong and caring for every one. You have got such a fantastic atitude I really admire you. My problems seem so small in comparison just keep up the good work. Love and Hugs Jeanette UK hrby97111 <hrby97111@...> wrote: Glad to help Aisha. Yes I have incontinence, I wear pads. The bladder test they ran on me showed I have a spastic bladder which means it won't empty as it should. It is easy to get bladder and kidney infections. I take oxybutynin, twice daily. If I didn't take one at night, I would get up to use the bathroom about 8-10 times. I also fall easily because of balance problems especially when I overdo. Becoming overheated totally drains me and I am sensitive to cold as well. I have numbness in the back of my mouth and throat so I choke on food and have trouble taking pills. I feel that my liver problems has been more difficult than the M.S., because of the pain and nausea, and itching is almost constant whereas the M.S. is remitting. I have the remitting kind of M.S. where I can go into remission and relapse. The bladder problems are always there along with the fatigue. I sure hope your friend can get answers and help soon. I highly recommend that she get in a support group very quickly, that is what I should have done when I was first diagnosed. I became very depressed and felt very alone. My sister in law died from M.S. complications, my brother is in a wheelchair so when I found out I had M.S., it really frightened me as our son was only a year old at the time, our daughter was 3 1/2 years old so I was very worried about being there for my little ones. M.S. hasn't been easy, but it hasn't been the awful scary diseae I thought it would be. The hardest part was having the extreme fatigue and people would assume I was okay and that I was capable of doing much more than I did. My problem is my AIH symptoms were there than so I had more than one disease process going on. Now the jigsaw puzzles fit, I can see why I felt so bad than and it has shown my family how sick I was and that they are more supportive now. Doctors now have a total different attitude towards me, for years they treated me like a hypochondriac. I should say not all did, but a neurologist once had me in tears, I knew what was going on in my body, but the tests weren't confirming it until much later. I call that medical limbo, I think it is the worst time for a patient because you feel sick but no one believes you. Aisha if your friend needs someone to talk to, I am here should she need it.Love,Ruth > Hi Everyone,> > I was wondering if folks out there who have MS can give me some info > about :> (a) What kind of symptoms did you have prior to diagnosis?> ( How long before onset of your symptoms before you were diagnosed > with MS?> © Did you have a CAT Scan done, and it came back negative, but you > were diagnosed later with MS anyway.> > I am not trying to find out for myself, but for my friend, who > already has Hashimoto's autoimmune thyroiditis, fibromyalgia, asthma, > and irritable bowel syndrome. And sometimes she gets "neurological" > type symptoms, like tingling in the hands and feet, sometimes loss of > balance, lazy eye, any and all of which could be due to something > else besides MS. Once she went for a CAT Scan (something the > hospital did whilst she was being seen for something else) and it > came back negative.> > But she is still very very worried about having MS, and she knows > it's a disease which can take years before it's diagnosed, and I > offered to ask our group members who have it to shed some light. > Sorry this is not a liver-related question, but whatever info people > can provide personally would be greatly, greatly appreciated.> > Thanks, and enjoy your day,> > aisha> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Oh, man - I'm so sorry Jodi. If it were ME I'd see a homeopath immediately. If she goes the doctor route it will be drugs, drugs and more drugs........mark my words. Get to a homeopath EARLY............What can I say. Also get the mercury amalgams out of her mouth at a quality dentist who knows how and start taking tons of Vitamin C (sodium ascorbate version) and NO diet sodas, aspartame/nutrasweet. Sometimes just the last few things along reverse things. But she has got to get to a homeopath. Otherwise, I just see palliation and drugs........ Sheri > > My mom was just diagnosed with MS. They say she is in the early stages. I > am trying my hardest to convince her to stay away from doctors because they > just seem to be making her worse. She is very open to alternative > treatments but she is in such pain that she keeps going back for different > meds practically every week. She did see a homeopath (in bold on Sheri's > list) about a year ago for her migraines. This was before she found out > about the MS. She was too impatient and didn't go back. She has tried > acupuncture, a chiropractor, and herbal remedies and has pretty much tried > everything. She used to get the flu shot every year but I convinced her not > to do that this year. I am having trouble convincing her to go see the > homeopath again. I really think that could help her if she would just be > more patient. She mainly wants pain relief and if she had that, she would > be more willing to wean herself away from these doctors. I am looking for > suggestions on effective non-drug pain relief and also if anyone knows how > well homeopathy can work with MS or are there other alternative methods out > there that would work better. > Thanks, > Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2002 Report Share Posted December 5, 2002 I collected some MS info here http://www.whale.to/w/ms.html john Multiple Sclerosis > > My mom was just diagnosed with MS. They say she is in the early stages. I > am trying my hardest to convince her to stay away from doctors because they > just seem to be making her worse. She is very open to alternative > treatments but she is in such pain that she keeps going back for different > meds practically every week. She did see a homeopath (in bold on Sheri's > list) about a year ago for her migraines. This was before she found out > about the MS. She was too impatient and didn't go back. She has tried > acupuncture, a chiropractor, and herbal remedies and has pretty much tried > everything. She used to get the flu shot every year but I convinced her not > to do that this year. I am having trouble convincing her to go see the > homeopath again. I really think that could help her if she would just be > more patient. She mainly wants pain relief and if she had that, she would > be more willing to wean herself away from these doctors. I am looking for > suggestions on effective non-drug pain relief and also if anyone knows how > well homeopathy can work with MS or are there other alternative methods out > there that would work better. > Thanks, > Jodi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2002 Report Share Posted December 5, 2002 Thanks Sheri. I did read everything about MS on your website and forwarded it on to my mom. I am especially getting on her case about drinking diet soda, especially because she admits how horrible it is for you. I think she is finally going to give it up. Now convincing her to take out her amalgams is another story. Jodi " vaccineinfo1234 " <vaccineinfo@btin Vaccinations ternet.com> cc: Subject: Re: Multiple Sclerosis 12/04/02 06:55 PM Please respond to Vaccinations Oh, man - I'm so sorry Jodi. If it were ME I'd see a homeopath immediately. If she goes the doctor route it will be drugs, drugs and more drugs........mark my words. Get to a homeopath EARLY............What can I say. Also get the mercury amalgams out of her mouth at a quality dentist who knows how and start taking tons of Vitamin C (sodium ascorbate version) and NO diet sodas, aspartame/nutrasweet. Sometimes just the last few things along reverse things. But she has got to get to a homeopath. Otherwise, I just see palliation and drugs........ Sheri > > My mom was just diagnosed with MS. They say she is in the early stages. I > am trying my hardest to convince her to stay away from doctors because they > just seem to be making her worse. She is very open to alternative > treatments but she is in such pain that she keeps going back for different > meds practically every week. She did see a homeopath (in bold on Sheri's > list) about a year ago for her migraines. This was before she found out > about the MS. She was too impatient and didn't go back. She has tried > acupuncture, a chiropractor, and herbal remedies and has pretty much tried > everything. She used to get the flu shot every year but I convinced her not > to do that this year. I am having trouble convincing her to go see the > homeopath again. I really think that could help her if she would just be > more patient. She mainly wants pain relief and if she had that, she would > be more willing to wean herself away from these doctors. I am looking for > suggestions on effective non-drug pain relief and also if anyone knows how > well homeopathy can work with MS or are there other alternative methods out > there that would work better. > Thanks, > Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 Listees: Does that mean we are all just a little bit off-center? A while back I posted a request for information concerning the treatment of multiple sclerosis as I have a cousin suffering from the disorder. The following is a compilation of the answers I received. , I believe you were the one asking for such so if anyone objects, IT'S SCOTT'S FAULT!!! A few suggested allergy testing and treatment via NAET, NMT, and through Great Smokies (GSDL.com). Inflammation from e.g. infection and from food allergies can mimic or aggravate the condition. Supplementation recommendations included a bioflavinoid product by the name of Isotonix OPC-3, vitamin C, anti-oxidants, vitamin E, vitamin B12, Co-enzyme Q10 and antibiologics like Avonex. Dietary recommendations included a reduction of fats and cholesterol, large protein meals, red meats and saturated fats. Reduction in exposure to heat, stress and anxiety rated high. Exercise, eg. swimming, is important. A number of books were recommended including: " Reversing Multiple Sclerosis; 9 Effective Steps to Recover Your Health " by Celeste Pepe, DC, ND " Solving the MS Mystery; Help, Hope and Recovery " by Hal A. Huggins, DDS, MS " MS, Something Can Be Done And You Can Do It " by Penelope Grenoble, PhD. and Dr. ? Soll Thanks for all contributions. Of course I have recommended to my cousin that she starts getting adjusted on a regular basis. J. Holzapfel, D.C. Albany, OR. kjholzdc@... http://docman.chiroweb.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 She sounds like a good candidate for the LapBand so she would not have any malabsorption and it could easily be reversed and re-filled as needed. Multiple Sclerosis I am currently evaluating a patient desiring RYGB surgery who has recently been diagnosed with MS. She is currently not on any of the therapies--is still in the process of deciding which therapy to choose. I was concerned that postop assessment may be difficult identifying symptoms of MS progression vs. nutrition deficiencies, and also how malabsorption may effect the therapy if immunosuppressive. Does anyone have any experience or thoughts related to this? Thanks in advance. Amy M. , RD, LD/NNutrition ServicesBaptist Hospital1000 W. MorenoPensacola, FL 32501office: (850)-469-5810 pager: (850)-494-8545email: amy.hughes@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Dear , I'd seen a 35 y.o. male for the past 6 month with M.S. and it seems that the NFB training keep him in better shape that before the training. He felt more energetic and better mood. All this help him to confront much better his painfull condition. So I think NFB is very useful fot all this cases. Wish best luck with yours. JR P.S. remember that I always work with an assessment results, in this specific case I obtain a Tone (Temporal+ Limbic system) activation pattern with some F/B & L/R reversal. --- Agbayani <cynthiaagbayani@...> wrote: > Is anyone using neurofeedback to treat symptoms of > MS? If so, could you please tell me how well (or > not) it is working? I have a friend who was > recently diagnosed and is looking for alternative > treatments to the shots. Thanks. > R/ > Agbayani > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Dr. of Dallas has a protocol for use with MS clients and I've found it alleviates some symptoms as long as the training is ongoing. His articles are available through the Society for Neuronal Regulation site. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Have a look at: http://www.direct-ms.org/ Dr. Garry Gordon (http://www.gordonresearch.com/) claims he has got every MS patient he has treated in the past 30 years into remission. The two main pillers of his treatments involve reducing total heavy metal burden and reducing total chronic infection burden. Blake Multiple Sclerosis Anyone have an opinion as to where to get the best info on MS, or what are the most promising treatments? (I know about Mercury and Vitamin D. Not sure what else is common such as is glutathione low? My friend's daughter was just diagnosed. Thanks Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Hello group, I am reletavely new to the qx device, and it is most certainly an interesting and educational journey . I'd like to thank all of you here also as I am learning much from you all and your wonderful advice. I have lived with relapsing remitting ms for almost 8 yrs now. Have always treated it naturally, and have explored many avenues. Of course our device is also one of my allies! So far, how ever bad the attack, I recover without any residue symptoms, I beleive that an education in the natural, non invasive therapies is a contributing factor to results I've had thus far. Of course, learning about ms and treating it drug free is a challenging procedure, and the information out there is infinate i'm sure. Any advice or protocols from anyone is much welcomed, and as a sufferer and therapist, I'd be happy to share advice with anybody who is interested in the natural treatment options in the complex world of multiple sclerosis... You can contact me at amathystone@... Mant thanks, Namaste >From: " jadespring2003 " <jadespring2003@...> >Reply-qxci-english >qxci-english >Subject: Re: coma, ms >Date: Mon, 07 Aug 2006 00:35:33 -0000 > >MS patients oftentimes have a hard time moving forward. They may not >like to drive or depend on others to get them where they need to go. >It's worth considering. > >For coma patients, use the NLP program. Keep asking unconccious >therapy what the person needs. > > >is Rotella, M.Ac., CNC > > > > Hello group, > > does any one have experience with treating a coma patient? I am > > asked to come to a young boy who is in coma after an accident. > > > > Also like to know what experience you have with multiple sclerosis? > > Thanks, > > > > Bert van Aalst > > The Netherlands > > > > > > > > > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 Cleo, Bill Code M.D. was doing seminars on how he reduced the progress of his MS with diet and detox; however, on being introduced to cold-processed whey and the science behind it, he seized it like the missing ingredient it was in his own regime. The scientific information is posted here; scroll down to Multiple Sclerois: http://members.shaw.ca/duncancrow/glutathione-references.html Dr. Code has now stopped the progress of his MS, and the cold- processed whey he added to his regime is now a focus of his seminars. The cold-processed whey is part of a neurodgenerative illness protocol on my site that employs biologically supportive principles. The protocol, which supplies references, has been successful in stopping fatal autoimmune disorders. Because you're still concerned about MS after eight years, I'll bet there are at least two things in it that you are missing that could be pivotal in stopping its progress. In addition you's probably be interested in the regeneration of myelin sheaths and neurons that the HGH therapy on its own has been shown to promote. Electromedicine is useful, but nutition and detoxification are essential components of a health regime and as such can not be overlooked. Duncan Crow http://members.shaw.ca/duncancrow/ > Posted by: " Cleo Christou " amathystone@... aygul_h > Date: Thu Aug 17, 2006 11:07 am (PDT) > > Hello group, > I am reletavely new to the qx device, and it is most certainly an > interesting and educational journey . I'd like to thank all of you > here also as I am learning much from you all and your wonderful > advice. I have lived with relapsing remitting ms for almost 8 yrs now. > Have always treated it naturally, and have explored many avenues. Of > course our device is also one of my allies! So far, how ever bad the > attack, I recover without any residue symptoms, I beleive that an > education in the natural, non invasive therapies is a contributing > factor to results I've had thus far. Of course, learning about ms and > treating it drug free is a challenging procedure, and the information > out there is infinate i'm sure. Any advice or protocols from anyone > is much welcomed, and as a sufferer and therapist, I'd be happy to > share advice with anybody who is interested in the natural treatment > options in the complex world of multiple sclerosis... You can contact > me at amathystone@... > > Mant thanks, > > Namaste > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 look if there something in this attached doc. Have a nice day, Noël. Cleo Christou <amathystone@...> wrote: Hello group,I am reletavely new to the qx device, and it is most certainly an interesting and educational journey . I'd like to thank all of you here also as I am learning much from you all and your wonderful advice. I have lived with relapsing remitting ms for almost 8 yrs now. Have always treated it naturally, and have explored many avenues. Of course our device is also one of my allies! So far, how ever bad the attack, I recover without any residue symptoms, I beleive that an education in the natural, non invasive therapies is a contributing factor to results I've had thus far. Of course, learning about ms and treating it drug free is a challenging procedure, and the information out there is infinate i'm sure. Any advice or protocols from anyone is much welcomed, and as a sufferer and therapist, I'd be happy to share advice with anybody who is interested in the natural treatment options in the complex world of multiple sclerosis...You can contact me at amathystonehotmailMant thanks,Namaste>From: "jadespring2003" <jadespring2003 >>Reply-qxci-english >qxci-english >Subject: Re: coma, ms>Date: Mon, 07 Aug 2006 00:35:33 -0000>>MS patients oftentimes have a hard time moving forward. They may not>like to drive or depend on others to get them where they need to go.>It's worth considering.>>For coma patients, use the NLP program. Keep asking unconccious>therapy what the person needs.>>>is Rotella, M.Ac., CNC> >> > Hello group,> > does any one have experience with treating a coma patient? I am> > asked to come to a young boy who is in coma after an accident.> >> > Also like to know what experience you have with multiple sclerosis?> > Thanks,> >> > Bert van Aalst> > The Netherlands> >>>>>>>>__________________________________________________________Express yourself instantly with MSN Messenger! Download today it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 look for hhv5-6-ebv and lymes. hg and other toxins. rogernoel van der Mullen <nvdmullen@...> wrote: look if there something in this attached doc. Have a nice day, Noël. Cleo Christou <amathystonehotmail> wrote: Hello group,I am reletavely new to the qx device, and it is most certainly an interesting and educational journey . I'd like to thank all of you here also as I am learning much from you all and your wonderful advice. I have lived with relapsing remitting ms for almost 8 yrs now. Have always treated it naturally, and have explored many avenues. Of course our device is also one of my allies! So far, how ever bad the attack, I recover without any residue symptoms, I beleive that an education in the natural, non invasive therapies is a contributing factor to results I've had thus far. Of course, learning about ms and treating it drug free is a challenging procedure, and the information out there is infinate i'm sure. Any advice or protocols from anyone is much welcomed, and as a sufferer and therapist, I'd be happy to share advice with anybody who is interested in the natural treatment options in the complex world of multiple sclerosis...You can contact me at amathystonehotmailMant thanks,Namaste>From: "jadespring2003" <jadespring2003 >>Reply-qxci-english >qxci-english >Subject: Re: coma, ms>Date: Mon, 07 Aug 2006 00:35:33 -0000>>MS patients oftentimes have a hard time moving forward. They may not>like to drive or depend on others to get them where they need to go.>It's worth considering.>>For coma patients, use the NLP program. Keep asking unconccious>therapy what the person needs.>>>is Rotella, M.Ac., CNC> >> > Hello group,> > does any one have experience with treating a coma patient? I am> > asked to come to a young boy who is in coma after an accident.> >> > Also like to know what experience you have with multiple sclerosis?> > Thanks,> >> > Bert van Aalst> > The Netherlands> >>>>>>>>__________________________________________________________Express yourself instantly with MSN Messenger! Download today it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ All-new - Fire up a more powerful email and get things done faster. Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 hope it is useful Regards Branco LCPH MARH FBIH London Consulting in Energetic Medicine since 1985 Tel.: +49 30 30101163 email: sciosubspace@... http://spaces.msn.com/brancofernando This e-mail is confidential and may contain privileged information. If you are not the addressee it may be unlawful for you to read, copy, distribute, disclose or otherwise use the information in this e-mail. If you are not the intended recipient please notify us immediately. From: "deweycoetzee" <heleen@...>Reply-qxci-english To: qxci-english Subject: Multiple sclerosisDate: Sat, 21 Oct 2006 05:44:52 -0000 I have been asked to treat a lady who has MS. She is totally paralyzed, even has difficulty speaking. Is there a protocol I can follow for treatment of MS. I was also wondering whether it would be possible to treat her with the new stem cell additions to Clasp32 and is there a protocol for use of the stemcells yet? Can anybody help me? Thanks Heleen Be the first to hear what's new at MSN - sign up to our free newsletters! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 There are three diseases that cause amyloidal plaques in the brain: MS, Lyme and Alzheimer's. So consider checking her for all of these. Many people with MS and Alzheimer's are finding they were misdiagnosed and that Lyme bacteria in the brain is the underlying cause of their symptoms. Kelley Multiple sclerosis I have been asked to treat a lady who has MS. She is totally paralyzed, even has difficulty speaking. Is there a protocol I can follow for treatment of MS. I was also wondering whether it would be possible to treat her with the new stem cell additions to Clasp32 and is there a protocol for use of the stemcells yet? Can anybody help me? Thanks Heleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 I think this advice is contrary to what we have learned about keeping the mother in optimal health before conception. Some of the improvements that pregnancy causes in the mother can come about because they are dumping toxins into the fetus, which reduces the mother's body burden of metals. My mother got much better after she had me... because I inherited her arsenic toxicity! Great for her, not so good for me... I'd suggest hair testing for heavy metal poisoning. The whole planet is pretty toxic nowadays and depending on where and what she has worked with she could have accumulated some metals. Does she have metal fillings? Mercury can cause MS-like symptoms, among several other neurological problems. The list is a great resource for metal toxicity info. Also, parasites, such as Lyme can be linked to MS. She should get tested for that too. If she comes up positive, there's the Salt/C protocol that she could follow. The Lymestrategies group is a good resource for the Salt/C protocol. -Lana Right now, the only > thing I can suggest is to get pregnant and stay pregnant as pregnancy > reduces MS systems, possibly because parts of a woman's immune system > are suppressed so she won't reject the baby. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 Find a good acupuncturist. ---- nrscase <nrscase@...> wrote: > Does anyone have any experience in nutritional support or treatment for > MS? Any directions that you can point me in? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 > > thing I can suggest is to get pregnant and stay pregnant as pregnancy > > reduces MS systems, possibly because parts of a woman's immune system > > are suppressed so she won't reject the baby. On 8/3/07, Lana Gibbons <lana.m.gibbons@...> wrote: > I think this advice is contrary to what we have learned about keeping the > mother in optimal health before conception. Some of the improvements that > pregnancy causes in the mother can come about because they are dumping > toxins into the fetus, which reduces the mother's body burden of metals. When I looked at abstracts on pubmed, the consensus expressed within them that this phenomenon was due to hormone concentrations, and there was some experimental support for this with animals. There is apparently some protective effect of estrogen but it isn't quite that simple. Anyway, vitamin D deficiency is associated with MS. I would have 25(OH)D checked and introduce appropriate supplementation if it is low. I think with any autoimmune disease, one should consider lectins: http://www.bmj.com/cgi/content/full/318/7190/1023 The most offensive is generally wheat. I would try removing it, or at least supplementing with D-mannose and N-acetyl-glucosamine (NAG) when she eats wheat. However, a more comprehensive look at lectins and possibly supplementing with an essential sugar complex like Ambratose or Lectin Lock may help. This is speculative, but it's better to do something speculative than nothing. Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 I've heard of 3 things that are known to cause MS - MSG/aspartame, mercury, and lyme disease. If she is a heavy user of diet foods and processed foods, she should try very hard to quit, and the MS may go away just from that. I was just having a conversation with someone else about the mercury causing MS. It could be from amalgam fillings, and more information can be found at www.saynomercury.org , www.mercurypoisoned.com and www.toxicteeth.org Sadly, a story on the mercury poisoned site was about a daycare that was housed in an ex-mercury thermometer factory! It made me think of my mom's stories about playing with the mercury out of thermometers when she was a kid, and about the tube-type fluorescent lights that can cause a biohazard when broken. You just can't know where you could be getting contaminated with mercury. Also mercury in sink traps releases vapors. In Europe they're using specially trained dogs to sniff out the mercury in drains so they can get it all out. Lyme disease is a pretty well-known cause of MS, and when the lyme is treated by a lyme literate MD, or LLMD, which you can find by joining a local lyme support group, the MS symptoms often improve and even disappear. She can read on www.canlyme.com about the symptoms of lyme and the best tests, because getting diagnosed can be tricky. Mycoplasma, m. fermentans or m. incognitus (I think they're the same thing) has also been linked to MS, and is contagious but doesn't cause the same symptoms in everybody. A lot of soldiers are coming back from the Gulf with it, so some think it may be either a contaminant of the vaccines they got or some biowarfare agent they were exposed to. Dr. Garth Nicholson in CA is testing people for it and treating them. Mostly people who have regular contact with soldiers and people working in hospitals are the ones who catch it, but it is spreading. > > The soon-to-be-wife of one of my best friends was just diagnosed with > MS yesterday. She had been havind double vision off and on for a few > weeks and had an MRI to check it out. She has several brain lesions, > one of which is pushing against her optic nerve. > > Does anyone have any experience in nutritional support or treatment for > MS? Any directions that you can point me in? I have known people with > MS before but this is the closest it has hit home. Right now, the only > thing I can suggest is to get pregnant and stay pregnant as pregnancy > reduces MS systems, possibly because parts of a woman's immune system > are suppressed so she won't reject the baby. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2007 Report Share Posted August 3, 2007 > I've heard of 3 things that are known to cause MS - MSG/aspartame, > mercury, and lyme disease. If she is a heavy user of diet foods and > processed foods, she should try very hard to quit, and the MS may go > away just from that. Another one to add would be celiac disease. http://www.celiac.com/st_prod.html?p_prodid=126 & p_catid= & sid=91hH9H1ke7f5AQN-421\ 07010459.52 KerryAnn www.cookingTF.com - Nutrient-Dense Menu Mailer Quote Link to comment Share on other sites More sharing options...
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