Multiple Sclerosis

[Guest guest]

I just came upon this webpage:

MS - Natural Strategies to Enhance Quality of Life

<http://www.vrp.com/newsletter.aspx?newsdate=7-1-2007#2117>

It has several ideas. I hope that helps.

-Colin

>

> The soon-to-be-wife of one of my best friends was just diagnosed with

> MS yesterday. She had been havind double vision off and on for a few

> weeks and had an MRI to check it out. She has several brain lesions,

> one of which is pushing against her optic nerve.

>

> Does anyone have any experience in nutritional support or treatment

for

> MS? Any directions that you can point me in? I have known people

with

> MS before but this is the closest it has hit home.

[Guest guest]

Nice find!

" **Alpha lipoic acid (ALA) is an antioxidant and coenzyme required for

several biochemical pathways. Several studies indicate that supplementation

with ALA in animal models of MS suppresses disease progression as well as

decreases demyelination and T-cell infiltration into the CNS.13 Additional

research indicated that not only does ALA decrease T-cell migration, but it

also stabilizes the dysfunctional blood-brain barrier and inhibits

permeability caused by reactive oxygen species.14 Human studies indicate

that ALA is well tolerated and decreases markers for MS inflammation as

well.15 "

Just be careful with ALA, it isn't supposed to be used if you still have

mercury fillings in your teeth since it can pull metals from them. There's

also a 3 month reccomended rest from your last exposure to heavy metals

before using ALA.

-Lana

On 8/4/07, williamcolinwood <.to.cwood@...> wrote:

>

> I just came upon this webpage:

>

> MS - Natural Strategies to Enhance Quality of Life

> <http://www.vrp.com/newsletter.aspx?newsdate=7-1-2007#2117>

>

> It has several ideas. I hope that helps.

>

> -Colin

>

[Guest guest]

In a message dated 8/4/07 7:04:02 AM Central Standard Time,

lana.m.gibbons@... writes:

>

>

Is that the stuff in walnuts? I like nuts and walnuts. No MS in my family

though.

</HTML>

[Guest guest]

I have found some sites in the past that deal with a diet that uses a

high fat (good fats) low carb diet. I can't seem to find the

particular site again that went into great detail about how this

certain doctor did his research to try and find the cause and he

talked about diet and a Philippine Island that had no incidence of MS

and then after the war an army base was placed on the island and then

MS began to show up among the native people there. He reasoned that

the only change was the processed food brought in by the US Army.

But anyway he claimed to have 100% cure if he could start his

patients on this diet before the MS had done too much permanent

damage. The below links are not the ones I had found before but they

are using a high fat diet and claiming the same results that the

best success is if the diet is started early on in the disease but

positive results are claimed even if complete remission can't be

achieved.

COPING WITH MS

COPING WITH MULTIPLE SCLEROSIS NATURALLY

BY STEPHEN BYRNES, ND, RNCP

http://homodiet.netfirms.com/otherssay/coping_ms.htm

http://homodiet.netfirms.com/diet/optimaldiet1.htm

[Guest guest]

Hi ,

The only thing I ever have to contribute to this list is references to

Dr Hoffman's Health Talk radio show. He recently had a guest,

Ann Boroch, who has written a book called Healing Multiple Sclerosis

(http://www.amazon.com/Healing-Multiple-Sclerosis-Nutritional-

Makeover/dp/0977344606/ref=pd_bbs_sr_1/104-2814043-2234330?

ie=UTF8 & s=books & qid=1186364254 & sr=1-1). If you would like to listen to

the pod cast of this show go to http://www.wor710.com/pages/48794.php,

scroll down to July 18 and click on download, then open. It will

automatically start playing. Another one to listen to may the segment

on vitamin D (Health talk July 25).

Rene

>

> The soon-to-be-wife of one of my best friends was just diagnosed with

> MS yesterday. She had been havind double vision off and on for a few

> weeks and had an MRI to check it out. She has several brain lesions,

> one of which is pushing against her optic nerve.

>

> Does anyone have any experience in nutritional support or treatment

for

> MS? Any directions that you can point me in? I have known people

with

> MS before but this is the closest it has hit home. Right now, the

only

> thing I can suggest is to get pregnant and stay pregnant as pregnancy

> reduces MS systems, possibly because parts of a woman's immune system

> are suppressed so she won't reject the baby.

>

>

>

[Guest guest]

Hi All,

This is the reply I received from Jelina.

With best wishes for Christmas and the New Year,

Dudley Delany

dudley_delany

Re: Multiple Sclerosis

First of all the comments that so Offended you were

written in 2002 and before you go criticizing me for

not updating let me point out that the treatment

history of MS using LDN by stops in 2004. At the same

time the LDN website touts the fact that MS Society

was going to start a study in late 2007. I do thank

you for your e-mails had you and your fellow group

members not e-mailed me I may have never known about

that study.

I also thank you for being a champion of the cause of

LDN

and leading the charge to straighten me out in your

group. Yes this is not such a civil

e-mail. because you and everyone else who chose to

post the website and the e-mail address were in direct

violation of the rules set down by your LDN

group leader. If you bothered to read the whole

website you would find that I encourage all people to

be proactive in the treatment of their disease,

educate themselves, challenge their doctors. The MS

Society does not endorse my website nor does the MS

association, or the MS foundation. If you notice the

MS logo is nowhere to be found on the alternative

treatments page... reason being they did not like the

fact that I wrote about medical marijuana and

requested I remove their log from that page. You see I

have no qualms about alternative treatments the use of

or the study of. If you read the part about bee sting

therapy I do not discount it or its effectiveness. If

you click on this link of the website you will see I

am also attempting to do my part.

http://www.jelinab-mswalk.net/Brake-Well.html

Finally since none of you were on the phone when I

spoke to Dr.Bihari in 2002 when I was approached about

a link to the LDN website from ours you have no idea

of the content of the conversation. Also it was the

LDN website that touted a 98% success rate in the

treatment of MS as well as a host of other illnesses

and diseases. I researched the validity of his claims

by calling the National Multiple Sclerosis Research

Institue in Torrey Pines California as well as the

Eastern Paralyzed veterans Association. They are the

ones who published the MS Quarterly review when I

first put the website up and where the majority of my

information came from about the Crab drugs.

As for my association with the MS Society I only

asscoiate with them in the form of participating in

the Challenge Walks each year. I choose to particpate

in their fund raisers and donate to them because they

have the lowest administration costs of the big 3

previously mentioned MSF and MSA.

I wish you continued success with your LDN and will do

more research into the status of LDN and its studies.

--- Dudley Delany <dudleydelany@...> wrote:

> Hi,

>

> Naltrexone is a medication approved by the U.S. Food

> and Drug Administration for treating heroin and

> opium addiction. In very low doses, it is proving to

> be amazingly effective in treating multiple

> sclerosis--with minimal side effects and at a price

> anyone can afford

>

> For more information about Low Dose Naltrexone in

> the treatment of MS, visit

>

> http://tinyurl.com/2boot2

>

> With best wishes,

>

> Dudley Delany, R.N., M.A., D.C.

>

> dudley_delany

>

>

[Guest guest]

Please send your stories to the email listed. Thank you.

LDN AWARENESS DAY

Wednesday 21 October 2009

We need your help, please……….. !

We are planning a UK LDN Awareness Day and need the help of as many people as

possible who use LDN, wherever they live in the world.

This of course includes help and support from all those people living in the UK

who use LDN to treat any of the very wide range of conditions which it can help.

If you are situated outside the UK, we would appreciate it enormously if you

were to contact your local media, and keep us posted. All media coverage will be

added to the website.

What we need from you:

We need you to e-mail us with your LDN story. I doesn't matter how long you

text is, or whether spelling or grammar are not your 'thing', because it will be

edited for inclusion in a Press article. You will, of course, be sent a proof

before submission. Together with your story we you need to include your full

name, address and permission to be contacted by your local paper, radio and/or

TV station.

What we will do:

We will contact the media in your area, submit your story and our Press Release

for the LDN Awareness Day. Hopefully the media will follow it up with an

interview.

We will contact the national media once we have enough local stories.

We really do need everyone's input for our endeavour to be a success, and if you

wish to help raise awareness of LDN, here is your chance to become involved.

Please really do need your help, so please, please do help us!

Please contact me by e-mail with your story - contact @ ldnresearchtrust. org

–as soon as possible. We must to act NOW!!!

Would you like a free LDN car window sticker?

Thank you

>

> my story

> i was diagnosed with ms in 2001,in virginia beach, va..the neurologist, dr.

goldberg, had told me also that i had cervical disk degeneration, and to have

C1-C4 replaced before he would make a diagnosis. he sent me to see an orthopedic

surgeon at obici hospital, who agreed with him, and was making arrangements,

until he noticed my insurance and told me i'd have to go elsewhere, he did not

accept tri-care insurance. the insurance i had then, and still do, is through my

husband for the military, tri-care. there are practically no orthopedic surgeons

in virginia beach who will accept it, and chiropractic isn't even a part of the

vocabulary.

> i had to go to portsmouth naval hospital(nmcp), and they told me there was

nothing they were going to do but diagnose me with relapsing/remitting multiple

sclerosis. when i went back to dr. goldberg with nmcp's answer, he said " oh

really " and told me he had no choice but diagnose me with rrms, since nothing

would be done about the cervical disk degeneration.

> i tried for quite some time to see an orthopedic surgeon after this, but did

not have the $500 to $600 required for an initial visit.

> in 2002, i had an ms exacerbation that was treated with iv solumedral

> at nmcp by a dr. wagner, head of neurolgy, after which i used a walker and had

problems with my lelt arm. following this he put me on avonex(by the way, when i

told my husband i had ms, he said " well i didn't sign up for this, your on your

own " ).

> while on the avonex, my left leg became so i could not use it, i could not

feel it, it didn't even feel like it belonged to me. in late 2003, unable to

walk and having to use a wheelchair, i came home to florida, and told my mother

i felt the problem with my leg was due to the avonex and i wanted to go off of

it. she agreed but wanted me to be on something else. that is when i discovered

the ldn website.

> it was appealing to me because it did not require shots, of which i had no one

to help me with, since the sites must be rotated and there are 3 sites i cannot

get to, the hips and right arm. i went off of the avonex and my leg got where i

could feel it and use it. i got my primary care physician to prescribe ldn and

started taking it march of 2004. since ldn was not ms approved, dr. wagner at

nmcp, would do no mri's(i was not seeing dr. goldberg at this time because nmcp

had sent me a letter that they could see me now and i no longer had a refferal

to see an outside physician, which was what dr. goldberg was.

> the reason i had gone to him in the first place was nmcp did not have doctors

that listened to you, and i thought he would be different).

> i had no ms axacerbations in 2004,2005,2006. in early 2007 i had found a way

to see dr. goldberg, and had gone to see him. he told me to go off ldn and do

the shots for rebif(even though there were only 4 sites i could get to)i did

this around march.i discovered while on the rebif, that each time i had a shot,

the muscles in my legs were like jello for approximately 24 hours. in september

of 2007 i had an ms axecerbation that left me in a wheelchair. i continued with

the rebif for several months, but quit taking it because of the problems with my

legs, and my being on my own.

> in september of 2008, my parents went to virginia and brought my son and i

to florida. in 2005 my husband and i seperated(not divorced, so i could have the

insurance) and my 9 yr old son came with me. i had always tried to keep the ms

from affecting his life. i did not realize until coming here and joining the

coral springs chapter for ms, that ms affects everyone around you.

> shortly after getting here to florida, i had a pulmonary embolism, and now

take a blood thinner, coumadin. i recenly went to my neurologist here, dr.

steingo, who had started me on copaxone about 5 months ago(i have not

experienced any of the problems with my legs that i experienced on the avonex or

the rebif) and saw a nurse practitioner. she gave me a prescription for 3.0 mg

of ldn, but told me to take it in conjunction with the copaxone. i received the

ldn today but am reluctant to take it with the copaxone. avonex and rebif are

interferone betas, copaxone is not.

>

[Guest guest]

shows again how stupid doctors are,and you were not so clever to listen to the

doctor when evrything was going fine on ldn.

people needs the doctor to tell them what to do.

>

> my story

> i was diagnosed with ms in 2001,in virginia beach, va..the neurologist, dr.

goldberg, had told me also that i had cervical disk degeneration, and to have

C1-C4 replaced before he would make a diagnosis. he sent me to see an orthopedic

surgeon at obici hospital, who agreed with him, and was making arrangements,

until he noticed my insurance and told me i'd have to go elsewhere, he did not

accept tri-care insurance. the insurance i had then, and still do, is through my

husband for the military, tri-care. there are practically no orthopedic surgeons

in virginia beach who will accept it, and chiropractic isn't even a part of the

vocabulary.

> i had to go to portsmouth naval hospital(nmcp), and they told me there was

nothing they were going to do but diagnose me with relapsing/remitting multiple

sclerosis. when i went back to dr. goldberg with nmcp's answer, he said " oh

really " and told me he had no choice but diagnose me with rrms, since nothing

would be done about the cervical disk degeneration.

> i tried for quite some time to see an orthopedic surgeon after this, but did

not have the $500 to $600 required for an initial visit.

> in 2002, i had an ms exacerbation that was treated with iv solumedral

> at nmcp by a dr. wagner, head of neurolgy, after which i used a walker and had

problems with my lelt arm. following this he put me on avonex(by the way, when i

told my husband i had ms, he said " well i didn't sign up for this, your on your

own " ).

> while on the avonex, my left leg became so i could not use it, i could not

feel it, it didn't even feel like it belonged to me. in late 2003, unable to

walk and having to use a wheelchair, i came home to florida, and told my mother

i felt the problem with my leg was due to the avonex and i wanted to go off of

it. she agreed but wanted me to be on something else. that is when i discovered

the ldn website.

> it was appealing to me because it did not require shots, of which i had no one

to help me with, since the sites must be rotated and there are 3 sites i cannot

get to, the hips and right arm. i went off of the avonex and my leg got where i

could feel it and use it. i got my primary care physician to prescribe ldn and

started taking it march of 2004. since ldn was not ms approved, dr. wagner at

nmcp, would do no mri's(i was not seeing dr. goldberg at this time because nmcp

had sent me a letter that they could see me now and i no longer had a refferal

to see an outside physician, which was what dr. goldberg was.

> the reason i had gone to him in the first place was nmcp did not have doctors

that listened to you, and i thought he would be different).

> i had no ms axacerbations in 2004,2005,2006. in early 2007 i had found a way

to see dr. goldberg, and had gone to see him. he told me to go off ldn and do

the shots for rebif(even though there were only 4 sites i could get to)i did

this around march.i discovered while on the rebif, that each time i had a shot,

the muscles in my legs were like jello for approximately 24 hours. in september

of 2007 i had an ms axecerbation that left me in a wheelchair. i continued with

the rebif for several months, but quit taking it because of the problems with my

legs, and my being on my own.

> in september of 2008, my parents went to virginia and brought my son and i

to florida. in 2005 my husband and i seperated(not divorced, so i could have the

insurance) and my 9 yr old son came with me. i had always tried to keep the ms

from affecting his life. i did not realize until coming here and joining the

coral springs chapter for ms, that ms affects everyone around you.

> shortly after getting here to florida, i had a pulmonary embolism, and now

take a blood thinner, coumadin. i recenly went to my neurologist here, dr.

steingo, who had started me on copaxone about 5 months ago(i have not

experienced any of the problems with my legs that i experienced on the avonex or

the rebif) and saw a nurse practitioner. she gave me a prescription for 3.0 mg

of ldn, but told me to take it in conjunction with the copaxone. i received the

ldn today but am reluctant to take it with the copaxone. avonex and rebif are

interferone betas, copaxone is not.

>

[Guest guest]

I'm very confussed as to why you stopped LDN. By your time line you were doing

well on it. Why would you allow a Dr to take you of something that was working?

I'm also confessed as to why a Dr can not still have a MRI done just to track

the course of your MS. Sounds like ago thing " do it my way or I wont do your

necessary yearly exams.

- In low dose naltrexone , " lindaearlyt101 " <lindabarnett101@...>

wrote:

>

> my story

> i was diagnosed with ms in 2001,in virginia beach, va..the neurologist, dr.

goldberg, had told me also that i had cervical disk degeneration, and to have

C1-C4 replaced before he would make a diagnosis. he sent me to see an orthopedic

surgeon at obici hospital, who agreed with him, and was making arrangements,

until he noticed my insurance and told me i'd have to go elsewhere, he did not

accept tri-care insurance. the insurance i had then, and still do, is through my

husband for the military, tri-care. there are practically no orthopedic surgeons

in virginia beach who will accept it, and chiropractic isn't even a part of the

vocabulary.

> i had to go to portsmouth naval hospital(nmcp), and they told me there was

nothing they were going to do but diagnose me with relapsing/remitting multiple

sclerosis. when i went back to dr. goldberg with nmcp's answer, he said " oh

really " and told me he had no choice but diagnose me with rrms, since nothing

would be done about the cervical disk degeneration.

> i tried for quite some time to see an orthopedic surgeon after this, but did

not have the $500 to $600 required for an initial visit.

> in 2002, i had an ms exacerbation that was treated with iv solumedral

> at nmcp by a dr. wagner, head of neurolgy, after which i used a walker and had

problems with my lelt arm. following this he put me on avonex(by the way, when i

told my husband i had ms, he said " well i didn't sign up for this, your on your

own " ).

> while on the avonex, my left leg became so i could not use it, i could not

feel it, it didn't even feel like it belonged to me. in late 2003, unable to

walk and having to use a wheelchair, i came home to florida, and told my mother

i felt the problem with my leg was due to the avonex and i wanted to go off of

it. she agreed but wanted me to be on something else. that is when i discovered

the ldn website.

> it was appealing to me because it did not require shots, of which i had no one

to help me with, since the sites must be rotated and there are 3 sites i cannot

get to, the hips and right arm. i went off of the avonex and my leg got where i

could feel it and use it. i got my primary care physician to prescribe ldn and

started taking it march of 2004. since ldn was not ms approved, dr. wagner at

nmcp, would do no mri's(i was not seeing dr. goldberg at this time because nmcp

had sent me a letter that they could see me now and i no longer had a refferal

to see an outside physician, which was what dr. goldberg was.

> the reason i had gone to him in the first place was nmcp did not have doctors

that listened to you, and i thought he would be different).

> i had no ms axacerbations in 2004,2005,2006. in early 2007 i had found a way

to see dr. goldberg, and had gone to see him. he told me to go off ldn and do

the shots for rebif(even though there were only 4 sites i could get to)i did

this around march.i discovered while on the rebif, that each time i had a shot,

the muscles in my legs were like jello for approximately 24 hours. in september

of 2007 i had an ms axecerbation that left me in a wheelchair. i continued with

the rebif for several months, but quit taking it because of the problems with my

legs, and my being on my own.

> in september of 2008, my parents went to virginia and brought my son and i

to florida. in 2005 my husband and i seperated(not divorced, so i could have the

insurance) and my 9 yr old son came with me. i had always tried to keep the ms

from affecting his life. i did not realize until coming here and joining the

coral springs chapter for ms, that ms affects everyone around you.

> shortly after getting here to florida, i had a pulmonary embolism, and now

take a blood thinner, coumadin. i recenly went to my neurologist here, dr.

steingo, who had started me on copaxone about 5 months ago(i have not

experienced any of the problems with my legs that i experienced on the avonex or

the rebif) and saw a nurse practitioner. she gave me a prescription for 3.0 mg

of ldn, but told me to take it in conjunction with the copaxone. i received the

ldn today but am reluctant to take it with the copaxone. avonex and rebif are

interferone betas, copaxone is not.

>

[Guest guest]

This is being promoted by the LDN Research Trust, I don't believe the group is

connected to LDN Now and the petition that Jayne Crocker's group is promoting.

> Great initiative.Is this the same event being organized by Jayne Crocker and

Tommy > > > Harraghy etc? as I thought that was a uK September date.

> Nuala

> Please send your stories to the email listed. Thank you.

>

>

>

> LDN AWARENESS DAY

>

> Wednesday 21 October 2009

>

> We need your help, please……….. !

>

> We are planning a UK LDN Awareness Day and need the help of as many people as

possible who use LDN, wherever they live in the world.

>

> This of course includes help and support from all those people living in the

UK who use LDN to treat any of the very wide range of conditions which it can

help. If you are situated outside the UK, we would appreciate it enormously if

you were to contact your local media, and keep us posted. All media coverage

will be added to the website.

>

> What we need from you:

>

> We need you to e-mail us with your LDN story. I doesn't matter how long you

text is, or whether spelling or grammar are not your 'thing', because it will be

edited for inclusion in a Press article. You will, of course, be sent a proof

before submission. Together with your story we you need to include your full

name, address and permission to be contacted by your local paper, radio and/or

TV station.

>

> What we will do:

>

> We will contact the media in your area, submit your story and our Press

Release for the LDN Awareness Day. Hopefully the media will follow it up with

an interview.

>

> We will contact the national media once we have enough local stories.

>

> We really do need everyone's input for our endeavour to be a success, and if

you wish to help raise awareness of LDN, here is your chance to become involved.

Please really do need your help, so please, please do help us!

>

>

> Please contact me by e-mail with your story - contact @ ldnresearchtrust. org

–as soon as possible. We must to act NOW!!!

>

> Would you like a free LDN car window sticker?

>

> Thank you

[Guest guest]

Hi,

Just to clarify – the LDNNow is most focussed on raising

awareness re LDN through promoting petitioning the UK Govt. We very much

support the LDN Research Trust and I myself work alongside at LDN

Research Trust mostly on a daily basis and she is a pleasure to work

with. We are both supporting one another’s efforts.

As LDN Research Trust is a charity and LDNNow isn’t,

does have to be careful what/how she says things and to whom incase of any come

backs ie she has her trustees to answer to along with the charities

commission. We at LDNNow operate as individuals but exchange emails/ideas/information

as to how to best go about doing things. All things LDNNow has/is doing

is informed of.

The Sept 12th day is merely focussing on people

around the UK to get signatures for our petition. LDN Awareness Day (Oct

21st) is a wonderful follow up 5 weeks later to bring some stories

to the press and hopefully report on the progress we’ve made with the

petition.

In a nutshell LDNNow is more of a political body and LDN

Research Trust is a charity with a great website for discussions. LDNNow

is more of a website to point people in the direction of resources which we

have found helpful and who can do a much better job at this sort of thing than

us.

Sorry if this has caused any confusion – I hope this makes

sense.

Jayne

Please sign the petition to the UK Govt to fund trials for LDN

http://www.ldnnow.com/

From: low dose naltrexone

[mailto:low dose naltrexone ] On Behalf Of mike3kit

Sent: 12 July 2009 15:05

low dose naltrexone

Subject: [low dose naltrexone] Re: multiple sclerosis

This is being promoted by the LDN Research

Trust, I don't believe the group is connected to LDN Now and the petition that

Jayne Crocker's group is promoting.

> Great initiative.Is this the same event being organized by Jayne Crocker

and Tommy > > > Harraghy etc? as I thought that was a uK September

date.

> Nuala

> Please send your stories to the email listed. Thank you.

>

>

>

> LDN AWARENESS DAY

>

> Wednesday 21 October 2009

>

> We need your help, please……….. !

>

> We are planning a UK LDN Awareness Day and need the help of as many people

as possible who use LDN, wherever they live in the world.

>

> This of course includes help and support from all those people living in

the UK who use LDN to treat any of the very wide range of conditions which it

can help. If you are situated outside the UK, we would appreciate it enormously

if you were to contact your local media, and keep us posted. All media coverage

will be added to the website.

>

> What we need from you:

>

> We need you to e-mail us with your LDN story. I doesn't matter how long

you text is, or whether spelling or grammar are not your 'thing', because it

will be edited for inclusion in a Press article. You will, of course, be sent a

proof before submission. Together with your story we you need to include your

full name, address and permission to be contacted by your local paper, radio

and/or TV station.

>

> What we will do:

>

> We will contact the media in your area, submit your story and our Press

Release for the LDN Awareness Day. Hopefully the media will follow it up with

an interview.

>

> We will contact the national media once we have enough local stories.

>

> We really do need everyone's input for our endeavour to be a success, and

if you wish to help raise awareness of LDN, here is your chance to become

involved. Please really do need your help, so please, please do help us!

>

>

> Please contact me by e-mail with your story - contact @ ldnresearchtrust.

org –as soon as possible. We must to act NOW!!!

>

> Would you like a free LDN car window sticker?

>

> Thank you

[Guest guest]

Hi - I started taking 3mg on 21 Sept 2009 and then increased to 4mg on 1 Dec

2009.

Didn't really notice any improvement of my symptoms if I'm honest. I did

experience a few sleep problems at the beginning but now I think

I have a better and deeper night's sleep than I did before starting the LDN. The

dreams can be a bit weird sometimes but nothing scary..!

Maybe some of us are expecting too much from this drug? As for progression of my

disease, I'm not likely to find out as having MRI scans

in England is not something which is readily available on request unless maybe

if I wanted to pay a lot of money for it.

The only other slight improvement is perhaps less urgency/frequency to go to the

toilet. On a negative though, if I do happen to fall from

the diet, ie as I did at Christmas and sometimes when I have the occasional meal

out, the Candida returns with a vengeance which is a real

nuisance.

I know I haven't been taking it for a long time yet so I am prepared to keep

going in the hope that it will stop my symptoms from getting

any worse.

Not sure if that's any help - we all seem to have different responses from this

drug so it could well make a real difference to you.

(with Secondary Progressive MS)

========================================

Message Received: Jan 10 2010, 02:44 PM

From: " art_ldn " <rtee54@...>

low dose naltrexone

Cc:

Subject: [low dose naltrexone] Re: Multple Sclerosis

Art

My MS/LDN story/1988 - 2010

http://ldn.proboards.com/index.cgi?board=personal & action=display & thread=867

>

> Hello everyoe,

> I'd lke to hear from anyone who is already on LDN for MS. What

> improvements have there been and how long is it before you see these

> improvements. I start taking LDN next week.

>

> Roseann

>

[Guest guest]

if you do not get candida good under control,you will never see the full benefit.

diet,supplements agains candida and if needed diflucan.

[Guest guest]

Yes, yes and yes, on controlling yeast/candida, actually LDN seemed to lower my CBC numbers until after two months, I began treating my yeast infection.

It was then that I began to notice a difference in how I felt. I have read test for yeast can be done via a stool sample, but a urine sample is bestus.

I recently chatted with a Research MD, envolved in developing drugs. He tells me, if you are ill from whatever, there is a ninety nine percent chance you will develope yeast/candida, as illness changes body ph downward towards acidic, and that brings on yeast/candida. As to why LDN seems to bring on more yeast, he had no clue.

Unfortunely he was not familiar with LDN.

stay well, and keep yeast under control, david a

RE: [low dose naltrexone] Re: Multiple Sclerosis

if you do not get candida good under control,you will never see the full benefit.

diet,supplements agains candida and if needed diflucan.

[Guest guest]

Hi MMSr's

I have a friend with MS.

Besides the feedback on Jim's site, are there any person's here, who could share their own experiences treating this disease? Protocols, duration of treatment, etc...

Some believe a virus causes it. If this is so then the Aid's protocol should be the right one. Correct?

Just trying to help friends.

Arie

[Guest guest]

Thanks for your e-mail. I want help for my wife, Gunjan, aged 40 yrs, she has recently been diagnosed with MS. She suddenly got some irritation in her left eye on waking up on the morning of 8th March, 2010. To her horror she discovered that the vision in her left eye was totally blurred. Initially we thought it may be due to sudden dryness and advised her to wash eyes and out some locally available eye-drops. When this did not work we rushed to an opthalmologist. He declared that she is having acute bulbar neuritis in her affected left eye and advised eye drops and some steroid. After a day of this treatment, when we did not get any results we went for MRI and MS was diagnosed. The Neurophysician immediately advised 1 mg intravenous

Solu-medrol for 5 days, administered with 100 ml of Saline drip. After that, three weeks of oral tapering of this steroid and supplemented with other vitamins and calcium. However, after almost a month there is no improvement in her vision. Her genral condition is also not good. She is having severe depression and also not very comfortable while walking. She had been an active aerobics hobbyist and instructur for last two years but now she doesn't find strength to move though she is trying very hard to continue her aerobics instruction classes, her some old faithful friends are still coming. Someone out there please help. What to do? We are based in India, a small city Jhansi, in UP, about 225 km from Agra (the Taj city) and about 400 km from New Delhi. Presently she is only taking Calcium, Vit B Complex and Neurobione.

Regards.

Rajeev Agarwal

Jhansi, India

Tel: 0091-510-2441471

Cell: 0091-9453001111

From: Terri <slogul3000@...> Sokolin <anna_sokolin@...>Cc: low dose naltrexone Sent: Wed, April 7, 2010 7:15:34 PMSubject: Re: [low dose naltrexone] Glyconutrients and Zyflamend?

thanks for that info ...i didnt know that.

Terri> I often wondered if my RA might also be complicated by a bacterial > infection???> I am taking 3 mg LDN and working good, much less pain in joints..!!! had > an intestional problem and doctor has me on cipro..which I see if for > bacteria..wonder if this would also help RA?Does your doctor think you have some kind of bacterial infection in your gut? What kind of "intestinal problem" are we talking about? (LDN helps for intestinal problems. I have Crohn's disease and it certainly helps for that. And my arthritis; and asthma.)

I'm a little surprised Cipro would be prescribed to someone who has joint problems. Don't want to scare you, but the warning that comes with the drug (which I imagine you read!) says "Fluoroquinolones, including CIPRO®, are associated with an increased risk of tendinitis and tendon rupture in all ages. This risk is further increased in older patients usually over 60 years of age." I realize tendons are not joints. But joints are surrounded by tendons; and if tendons get messed up they cannot protect the joints.

Unless your doctor knows you have a specific infection, you would be far better off, I would think, taking some good probiotics for your intestinal problem -- or just plain yogurt aand something like S. boulardii. NOT bifidus -- it colonizes too readily in people with gut problems. And avoid eating sugar like you'd avoid the plague. And starches.

n

____________ _________ _________

A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublis hing.com

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.800 / Virus Database: 271.1.1/2793 - Release Date: 04/05/10 11:32:00

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.800 / Virus Database: 271.1.1/2794 - Release Date: 04/05/10 23:32:00

[Guest guest]

you must buy the 50 mg talets of naltrexone and prepare the ldn yourself.

crystal keeps a list of prescribing doctors,but i doubt it if you will have one near you

[Guest guest]

MS is being treated with antibiotics at Vanderbilt Universities MS Clinic because they test positive for Chlamyedia pneumoniae.

This infection is a common co-infection with Lyme disease. The problem is there is no 100% accurate test for Lyme disease...you have to find a doctor who is familiar enough to rule out Lyme with a clinical diagnosis. I know the doctors in the US that can do this, but not in India. I am sorry about that.

LDN will be helpful, but antibiotics are critical to help in the battle against this stealth pathogen. Lyme hides from the immune system...hiding in the patients DNA...and it changes it's form (shape)to survive. Also, it is rarely just about Lyme disease...Bartonella, Anaplasmosis, tularemia, Q Fever, EBV, CMV, Babesiosis, Rocky Mountain Spotted Fever, Mycoplasma fermentens, Mycolplasma pneumoniae, Mycoplasma hominis, Mycoplasma penetrans, Toxoplasmosis, Hepatitis A/B/C, HHV-6, Parvo Virus, and H. Pylori...these are the most common co-infections that need to be ruled out depending on the symptoms, which an experienced Lyme literate doctor will know.

To learn more about Mycoplasma infections go to www.immed.org

Your wife is so fortunate to have such a loving supportive husband. Unfortunately, chronic illness marriages, especially with Lyme disease, put a strain on relationships.

Take care-

Re: Multiple Sclerosis

Posted by: "Rajeev Agarwal" ra_jhs@... ra_jhs

Sat Apr 10, 2010 10:29 am (PDT)

Thanks for your e-mail. I want help for my wife, Gunjan, aged 40 yrs, she has recently been diagnosed with MS. She suddenly got some irritation in her left eye on waking up on the morning of 8th March, 2010. To her horror she discovered that the vision in her left eye was totally blurred. Initially we thought it may be due to sudden dryness and advised her to wash eyes and out some locally available eye-drops. When this did not work we rushed to an opthalmologist. He declared that she is having acute bulbar neuritis in her affected left eye and advised eye drops and some steroid. After a day of this treatment, when we did not get any results we went for MRI and MS was diagnosed. The Neurophysician immediately advised 1 mg intravenous Solu-medrol for 5 days, administered with 100 ml of Saline drip. After that, three weeks of oral tapering of this steroid and supplemented with other vitamins and calcium. However, after almost a month there is noimprovement in her vision. Her genral condition is also not good. She is having severe depression and also not very comfortable while walking. She had been an active aerobics hobbyist and instructur for last two years but now she doesn't find strength to move though she is trying very hard to continue her aerobics instruction classes, her some old faithful friends are still coming. Someone out there please help. What to do? We are based in India, a small city Jhansi, in UP, about 225 km from Agra (the Taj city) and about 400 km from New Delhi. Presently she is only taking Calcium, Vit B Complex and Neurobione.Regards.Rajeev AgarwalJhansi, IndiaTel: 0091-510-2441471Cell: 0091-9453001111

[Guest guest]

Rajeev,

I am 60, have had MS for 10 yrs., and started with optic neuritis, just like your wife. The last 5 yrs. I have entered the "primary progressive" stage, getting slightly worse each year. Although I still walk with a cane, I was getting very concerned with the glacially slow deterioration and worsening of symptoms. Recently, however, It appears that I have arrested the slow negative progression and am taking/doing the following:

* Copaxone-daily injection (1 yr.); has the least side effects of the traditional MS drugs, but it seems benign, and I am not convinced it affects me one way or another. If I continue to improve, I will drop this expensive drug

* LDN 4.5 MG (1 a day, at night)...been taking only 2 weeks, but seen a big difference; increases endorphin levels daily

* Pregnenolone 50 MG (1 in AM)...." " " " " " " " " " ; strengthens immune system, increases energy, sense of well being

* Assortment of vitamins and supplements: Vit. D3, B-complex, Vit. C, Saw Palmetto (offsets affect on prostate of pregnenolone), Omega-3 oil, Reservatrol, and Alpha Lipoic Acid

* diet of low saturated fat, low gluten, low sugar, lean protein, lots of fruits and veggies, and no-fat high quality yogurt; I "cheat" on this diet, usually on the weekends!

* exercise at least every other day

* positive mental attitude

I now have more energy, stamina, and a lessening of my MS symptoms. I noticed an immediate change when I started taking the Low dose Naltraxone and Pregnenolone. I am currently getting tested for CCSVI and that may be the final piece of the puzzle. LDN may require an MD's prescription (although I understand, not in India); Pregnenolone is over-the-counter.

I think everyone with MS has to find their own optimal mix of therapies...these are working for me. While I used to have good and bad days, I am now having consistently good days.

Good Luck!

Tom

--- Re: [low dose naltrexone] Glyconutrients and Zyflamend?

thanks for that info ...i didnt know that.

Terri> I often wondered if my RA might also be complicated by a bacterial > infection???> I am taking 3 mg LDN and working good, much less pain in joints..!!! had > an intestional problem and doctor has me on cipro..which I see if for > bacteria..wonder if this would also help RA?Does your doctor think you have some kind of bacterial infection in your gut? What kind of "intestinal problem" are we talking about? (LDN helps for intestinal problems. I have Crohn's disease and it certainly helps for that. And my arthritis; and asthma.)

I'm a little surprised Cipro would be prescribed to someone who has joint problems. Don't want to scare you, but the warning that comes with the drug (which I imagine you read!) says "Fluoroquinolones, including CIPRO®, are associated with an increased risk of tendinitis and tendon rupture in all ages. This risk is further increased in older patients usually over 60 years of age." I realize tendons are not joints. But joints are surrounded by tendons; and if tendons get messed up they cannot protect the joints.

Unless your doctor knows you have a specific infection, you would be far better off, I would think, taking some good probiotics for your intestinal problem -- or just plain yogurt aand something like S. boulardii. NOT bifidus -- it colonizes too readily in people with gut problems. And avoid eating sugar like you'd avoid the plague. And starches.

n

____________ _________ _________

A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublis hing.com

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.800 / Virus Database: 271.1.1/2793 - Release Date: 04/05/10 11:32:00

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.800 / Virus Database: 271.1.1/2794 - Release Date: 04/05/10 23:32:00

[Guest guest]

In April 2000 my left eye had a burning feeling. In the next six days a gray

shield was pulled up and over my left eye vision. The vision in my left eye

went from 20/20 to 20/400+ I was diagnosed with optic neuritis by an

ophthalmologist.

Being a very avid outdoors-man, I suspected Lyme disease. My family physician

said since I had not been to one of two specific areas on the east coast of the

United States and did not have a bulls-eye rash, I could not have Lyme disease.

I persisted and got the Lyme disease blood test. The test indicated I did not

have Lyme disease.

Mentally and emotionally this freed me to pursue an MS diagnosis. In April 2004

I was diagnosed with MS and started Rebif. The Rebif made me worse, so I

started LDN. The LDN was much much kinder than the Rebif. Even thinking about

the difference darn near brings a tear of joy to my eyes. Still, I was getting

weaker.

I hired a Lyme Literate Medical Doctor (LLMD) and was diagnosed with Lyme

disease in 2008. Lyme disease is a " stealth " disease. It hides in various

organs of our bodies. I feel that it takes antibiotics to erradicate the many

bacteria and co-infectons the disease has. (I have 6 co-infections) Symptoms

will randomly and intermittently appear and disappear. This REALLY confounds

the diagnosis process. Depending how we present on a given day is the diagnosis

we end up with. Once we get a diagnosis, it is darn near impossible to get away

from that diagnosis.

My time with this LDN board and taking LDN was critical to me being able to

change my disease mind-set. To this, I am eternally grateful.

This LDN board has a WONDERFUL search feature that can be used to search the

thousands of messages from fellow LDNers here on the LDN board. The search can

be tailored to dates, topic, persons, etc.

I sleep a lot. Feel free to email me directly to wake me up.

To consume some valuable band width, here are some Lyme disease videos:

For symptoms (button on left side of screen):

www.CanLyme.com

 

United States

Lyme disease documentary - " Under Our Skin " (UOS) trailer

Lyme Expose' by Chronicle (bundled with a piece on Low Dose Naltrexone)

http://vimeo.com/2354218

 

Norway

Norwegian Lymie, Lyme Disease " What is going on? " , US Lyme physicians featured

 

Canada

Canadian Television Lyme Expose'

The two (2) part series is called Out of the Wild. View it here:

http://tinyurl.com/yl666t7

 

or (both links go to same place)

http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20091113/w5_lyme_091114/2009\

1114?s_name=W5

>

> Thanks for your e-mail. I want help for my wife, Gunjan, aged 40 yrs, she has

recently been diagnosed with MS. She suddenly got some irritation in her left

eye on waking up on the morning of 8th March, 2010. To her horror she

discovered that the vision in her left eye was totally blurred. Initially we

thought it may be due to sudden dryness and advised her to wash eyes and out

some locally available eye-drops. When this did not work we rushed to an

opthalmologist. He declared that she is having acute bulbar neuritis in her

affected left eye  and advised eye drops and some steroid. After a day of this

treatment, when we did not get any results we went for MRI and MS was diagnosed.

The Neurophysician immediately advised 1 mg intravenous Solu-medrol for 5 days,

administered with 100 ml of Saline drip. After that, three weeks of oral

tapering of this steroid and supplemented with other vitamins and calcium.

However, after almost a month there is no

> improvement in her vision. Her genral condition is also not good. She is

having severe depression and also not very comfortable while walking. She had

been an active aerobics hobbyist and instructur for last two years but now she

doesn't find strength to move though she is trying very hard to continue her

aerobics instruction classes, her some old faithful friends are still coming.

Someone out there please help. What to do? We are based in India, a small

city Jhansi, in UP, about 225 km from Agra (the Taj city)  and about 400 km

from New Delhi. Presently she is only taking Calcium, Vit B Complex and

Neurobione.

>

> Regards.

>

> Rajeev Agarwal

> Jhansi, India

> Tel: 0091-510-2441471

> Cell: 0091-9453001111

>

>

[Guest guest]

Dear Sir Tom,

Thanks a lot for your email and information you have provided. Can you please tell how was your optic neuritis diagnosed and what symptoms were there. My wife is still not having vision in her left eye and after taking the full course of Solu-medrol she is feeling very week and depressed as there has been no improvements and only side effects of the drug is what she is feeling which have made her worse. Did you also suffer from loss of vision? How is your experince with LDN.

She is feeling weeker day by day but she does some exercise, thanks to her aerobic classes. What helped you in optic neuritis and in your energy levels. What is CCSVI? Which fruits help more and being from somewhat rural India she is a pure vegetarian, does not even take chicken, eggs or fish. I am trying to find LDN from our local medical shops since they do not know about this drug and as you rightly said MD's prescription for LDN is not a problem in this part of the world. Please help with sharing more of your experience it may make all the difference for us.

Thanks again kind regards.

Rajeev AgarwalJhansi, India

From: "tomellis@..." <tomellis@...>Rajeev Agarwal <ra_jhs@...>Cc: low dose naltrexone ; Terri <slogul3000@...>; Sokolin <anna_sokolin@...>Sent: Sun, April 11, 2010 9:07:39 PMSubject: RE: [low dose naltrexone] Multiple Sclerosis

Rajeev,

I am 60, have had MS for 10 yrs., and started with optic neuritis, just like your wife. The last 5 yrs. I have entered the "primary progressive" stage, getting slightly worse each year. Although I still walk with a cane, I was getting very concerned with the glacially slow deterioration and worsening of symptoms. Recently, however, It appears that I have arrested the slow negative progression and am taking/doing the following:

* Copaxone-daily injection (1 yr.); has the least side effects of the traditional MS drugs, but it seems benign, and I am not convinced it affects me one way or another. If I continue to improve, I will drop this expensive drug

* LDN 4.5 MG (1 a day, at night)...been taking only 2 weeks, but seen a big difference; increases endorphin levels daily

* Pregnenolone 50 MG (1 in AM)...." " " " " " " " " " ; strengthens immune system, increases energy, sense of well being

* Assortment of vitamins and supplements: Vit. D3, B-complex, Vit. C, Saw Palmetto (offsets affect on prostate of pregnenolone), Omega-3 oil, Reservatrol, and Alpha Lipoic Acid

* diet of low saturated fat, low gluten, low sugar, lean protein, lots of fruits and veggies, and no-fat high quality yogurt; I "cheat" on this diet, usually on the weekends!

* exercise at least every other day

* positive mental attitude

I now have more energy, stamina, and a lessening of my MS symptoms. I noticed an immediate change when I started taking the Low dose Naltraxone and Pregnenolone. I am currently getting tested for CCSVI and that may be the final piece of the puzzle. LDN may require an MD's prescription (although I understand, not in India); Pregnenolone is over-the-counter.

I think everyone with MS has to find their own optimal mix of therapies...these are working for me. While I used to have good and bad days, I am now having consistently good days.

Good Luck!

Tom

--- Re: [low dose naltrexone] Glyconutrients and Zyflamend?

thanks for that info ...i didnt know that.

Terri> I often wondered if my RA might also be complicated by a bacterial > infection???> I am taking 3 mg LDN and working good, much less pain in joints..!!! had > an intestional problem and doctor has me on cipro..which I see if for > bacteria..wonder if this would also help RA?Does your doctor think you have some kind of bacterial infection in your gut? What kind of "intestinal problem" are we talking about? (LDN helps for intestinal problems. I have Crohn's disease and it certainly helps for that. And my arthritis; and asthma.)

I'm a little surprised Cipro would be prescribed to someone who has joint problems. Don't want to scare you, but the warning that comes with the drug (which I imagine you read!) says "Fluoroquinolones, including CIPRO®, are associated with an increased risk of tendinitis and tendon rupture in all ages. This risk is further increased in older patients usually over 60 years of age." I realize tendons are not joints. But joints are surrounded by tendons; and if tendons get messed up they cannot protect the joints.

Unless your doctor knows you have a specific infection, you would be far better off, I would think, taking some good probiotics for your intestinal problem -- or just plain yogurt aand something like S. boulardii. NOT bifidus -- it colonizes too readily in people with gut problems. And avoid eating sugar like you'd avoid the plague. And starches.

n

____________ _________ _________

A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublis hing.com

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.800 / Virus Database: 271.1.1/2793 - Release Date: 04/05/10 11:32:00

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.800 / Virus Database: 271.1.1/2794 - Release Date: 04/05/10 23:32:00

[Guest guest]

this is indian chemist

https://www.alldaychemist.com/search.php?search_query=naltrexone

[Guest guest]

Hi Joan, With 5 MS patients active right now, my experience of them is a fairly standard cat II (assuming no influential trauma) with cranial distortion expected of that configuration. Each of them has responded well.....and each of them is compliant with minerals, Cs, Bs A D & water. My questions before adjusting would be to review the MRI: just where is the lesion and how big it is. Abducens regulates lateral rectus so appears not to be performing at this time. My approach would be to lift the sphenoid .... that will lift the parietals. In almost every case of vertigo, a parietal is found inferior. Sometimes I have to lift the parietal as well but often addressomg the sphenoid alone will accomplish that. Lifting that and balancing the cranium has, in every instance so far, immediately eliminated the vertigo. In doing that work, you will be effecting CN VI indirectly. See what you get. Changing the vertigo alone will be a boon for her .... had one a couple of weeks ago from trauma at the age of 9 (pt was now 51) with a medial rectus spasm occurring about 1 - 3 jerks every 1 - 3 seconds. Resetting the cranial floor resolved it completely, immediately. It still blows me away when these types of changes result. The jerking did reestablish within about 3 days but to a lesser and slower degree. Unfortunately the patient was from Seattle and we were unable to continue together. Would have LOVED to h ave kept going on that one. Good luck: lift that sphenoid ... could be that lesion is just a type of ganglion. Let us know how it goes. Sunny Sunny Kierstyn, RN DC Fibromyalgia Care Center of Oregon 2677 Willakenzie Road, 7CEugene, Oregon, 97401541- 654-0850; Fx; 541- 654-0834www.drsunnykierstyn.com From: joanschultze@...Date: Tue, 20 Sep 2011 21:29:27 -0700Subject: Multiple Sclerosis

A lady in her 50's has a lesion on cranial nerve 6,

double vision, an eye that wants to go inward, balance problems

etc. She has now had an MD diagnose her with MS. Considering that

this is a correct diagnosis, what do you recommend?

Joan Schultze, DC

Lake Oswego