Plan of attack

January 13, 2003

I love your name by the way!

I have to lose 100 - 130 lbs. and if someone told me that I had to

do that much cardio a week I would sit down and cry. I am feeling

so good off of just doing the BFL way. Tell that guy not to rain on

your parade. Stick to the BFL plan first and tweak later. I

think your plan sounds good.

Carey

June 15, 2010

I need feedback on what I'm doing, where I'm going and input from anyone who

knows about pain origination.

I have celiac's disease which has been part of the problem. Gluten destroys the

lining of the intestine which is probably why I ended up with systemic fungus.

The lining of the intestine protects. Strip it away and it puts out the welcome

mat. Now that I know I have celiac's I don't eat any gluten so my intestines

are continuing to heal.

I used to have a pain in my abdomen at my waist toward the left that

corresponded to a really unhappy pancreas. I cut a lot of sweets out of my diet

and it improved greatly. Then I cut fruit out as well and it went away

completely. I haven't had it in a couple years. Stop overloading the pancreas

and watch things improve! Yea me. At its worst I had granuloma on the inside

of my upper left arm. Cut the sugar/sweets/fruit and it went away with the

pain. Welcome abstinence the wonder drug.

I've got a new " ouch " (last rib on the left front and back) and the return of

what I can only assume is more granuloma at the end of the rib where it joins

the sternum. I can't actually see this bout of whatever it is as it's in a spot

I can only check in the mirror. If you can see your rib cage directly under

your breast, you're built differently than I. The mirror is as close as I can

lay my eyeballs on this one. I don't know what organ this spot corresponds to.

Do you? Once I figure out how to search for the answer I'll hit Google.

So here's what I've been doing. I've been putting 2 drops of unactivated sodium

chlorite in every tall glass of water I drink. I try and drink 4 glasses a day

but usually only manage 2 or three. I used to drink 4 drops of activated sc but

got to the point where I didn't feel I was getting any additional improvement.

The unactivated 2 drops x 2, 3 or 4 spread through day and night seems to be the

ideal dose for me.

I am also doing maple syrup/baking soda (hard candy) twice a day. I ran out

half a week ago and just got more made last night.

Other than the itch of the (assumed) granuloma and the pain from the rib, I feel

awesome. My brain works great. Long time damaged parts of my body are healing

and I'm able to exercise more. <happy dance> I did go to the chiro to let him

smack my rib around but the improvement wasn't great which tells me it's a sign

of other things. I can manage the discomfort with heat front and back. I don't

feel discomfort if I can keep moving. I program for a living so that's not

going to work.

Because I don't eat any form of sugar other than the maple syrup I have in my

coffee in the morning, I'm assuming this go-'round is not my pancreas (unless

the fungus die-off is a factor). I think it may be my liver getting gummed up

with all the dead fungus. Do you have another idea?

I think I can't go wrong doing a liver cleanse.

http://elfnori.com/Colonix/LiverCleanse.doc I haven't done one in over a year

and I probably have stuff piled up and gumming up the works. It can't hurt.

Have you got any additional feedback? Thoughts? Ideas?

Thanks.

Nori

September 9, 2010

Tame, Again I'm so sorry Dr K's nurse said no. Even though I know it is not my fault I still feel guilty. There is another doctor listed on the website, Dr D, that is at Children's in Birmingham. I'm not sure if he actually cast patients because I've never heard anyone say they see him. He's in the same group as Dr K so maybe that is an option. You said once before that the syndrome your son has causes rapid growth, did you tell Dr K's nurse that b/c that might be the reason that they don't want to try at his age b/c they don't think he will grow enough to warrant the effects of the cast. I would send the images anyway. It can't hurt to keep trying. Again I'm sorry. If it was up to me I would do it!AlyssaSent from my iPhone 4On Sep 8, 2010, at 9:25 PM, "Tame" <dazies2001@...> wrote:

Hello to all and thanks in advance for any input you can give ...

Tomorrow my ortho surgeon will be in so he's filling out the recomendation I need for ish rite. I hope to finally get the package mailed tomorrow! When I called the hospital they said they only accept non Texas residence for learning programs. I am sending the packet anyway. I included the MRI and xrays, a letter from my family giving a little background (aka a plea fir help), recommendation from my pediatrition and ortho. And a photo of my son..... Also I had 2 Louisiana masons sign the bottom of the form. What do you suppose my chances are of someone even looking at it? Who should I address it to? The doctor? I'm scared they will see the outa state address and not even look at it. I know they treat out of state kids. Even ones with scoliosis. Will they call me? Should I call them? I am going to over nite the pkg. My ortho will call in a referral next Thursday (part of priceedure) I also got 4 more disks of MRI s and xrays made but can't pick them up until Friday. I'm sending one to Austin and one to Birmingham. Burmingham said they wouldn't accept him due to age since he's 3 1/2 but maybe if I can just get someone to LOOK at his info I can get in on a wing and a prayer? I read before u should call before sending records but if I keep getting denied on the phone and taking the "standard policy" laying down then I will get no closer to helping Ben. There are exeptions to every policy. His curves aren't nearly as bad as they could be.... I am not getting my hopes up since it was distressing when burmingham hands down said no... But still I think we should persue treatment in mehta casting.

Uggggh! I wanna pull my hair out somedays. I wish I didn't have to work AND had a personal helicopter with a big fat bank account to options didn't feel so limited sometimes. Today at school I was observing a student who has some pretty serious issues. He hasn't had any early intervention, he's barely speaking, he drools alot and has decayed teeth... Not to mention obvious delays. I'm watching him thinking thus could be ben Iif we had not have worked our butt off with him since he was small. I wondered how the mom could let this little boy come to school in a learning enviro that doesn't suit his needs. I felt sorry for him. He's getting help as far as evaluations ect since it's obvious there are issues... After watching him in my library I kinda got a little mad. Not at him, since it isn't his fault. But the whole screwy mess. Wth who are his pediatritions and what kind of drugs are they on? Maybe his mom asked for help and no one listened maybe she didn't know any better and didn't push. I just don't get people or big beurocratic systems and I am sick of jumping through all these hoops. I wanna help my baby and ot shouldn't be so hard. I'm a mom not a doctor. Sorry, I'm now rambling : ) okay Tame stuff it already. Gosh that's the longest I've ever typed on my iPhone! Stress can do that to you.

Tame

September 9, 2010

Sending you a big hug today. It just feels as if you need one.... I hope you hve a better day! Deep breathing.ChrissyMom to Nat, Cam and ( break with #4- 24 from 35 Chgo Dhriners)On Sep 8, 2010, at 9:25 PM, "Tame" <dazies2001@...> wrote:

Hello to all and thanks in advance for any input you can give ...

Tomorrow my ortho surgeon will be in so he's filling out the recomendation I need for ish rite. I hope to finally get the package mailed tomorrow! When I called the hospital they said they only accept non Texas residence for learning programs. I am sending the packet anyway. I included the MRI and xrays, a letter from my family giving a little background (aka a plea fir help), recommendation from my pediatrition and ortho. And a photo of my son..... Also I had 2 Louisiana masons sign the bottom of the form. What do you suppose my chances are of someone even looking at it? Who should I address it to? The doctor? I'm scared they will see the outa state address and not even look at it. I know they treat out of state kids. Even ones with scoliosis. Will they call me? Should I call them? I am going to over nite the pkg. My ortho will call in a referral next Thursday (part of priceedure) I also got 4 more disks of MRI s and xrays made but can't pick them

up until Friday. I'm sending one to Austin and one to Birmingham. Burmingham said they wouldn't accept him due to age since he's 3 1/2 but maybe if I can just get someone to LOOK at his info I can get in on a wing and a prayer? I read before u should call before sending records but if I keep getting denied on the phone and taking the "standard policy" laying down then I will get no closer to helping Ben. There are exeptions to every policy. His curves aren't nearly as bad as they could be.... I am not getting my hopes up since it was distressing when burmingham hands down said no... But still I think we should persue treatment in mehta casting.

Uggggh! I wanna pull my hair out somedays. I wish I didn't have to work AND had a personal helicopter with a big fat bank account to options didn't feel so limited sometimes. Today at school I was observing a student who has some pretty serious issues. He hasn't had any early intervention, he's barely speaking, he drools alot and has decayed teeth... Not to mention obvious delays. I'm watching him thinking thus could be ben Iif we had not have worked our butt off with him since he was small. I wondered how the mom could let this little boy come to school in a learning enviro that doesn't suit his needs. I felt sorry for him. He's getting help as far as evaluations ect since it's obvious there are issues... After watching him in my library I kinda got a little mad. Not at him, since it isn't his fault. But the whole screwy mess. Wth who are his pediatritions and what kind of drugs are they on? Maybe his mom asked for help and no one listened maybe she

didn't know any better and didn't push. I just don't get people or big beurocratic systems and I am sick of jumping through all these hoops. I wanna help my baby and ot shouldn't be so hard. I'm a mom not a doctor. Sorry, I'm now rambling : ) okay Tame stuff it already. Gosh that's the longest I've ever typed on my iPhone! Stress can do that to you.

Tame

September 9, 2010

Tame,

I totally feel your pain. If you want to address your packet to a specific dr

at scottish my dr is daniel sucato.

I don't understand why middle class can't get any services. Our ins won't cover

anything for autism and we don't qualify for medicaid so we are just left out

with no help. Its so not fair!

Good luck!

Tame <dazies2001@...> wrote:

>Hello to all and thanks in advance for any input you can give ...

>Tomorrow my ortho surgeon will be in so he's filling out the recomendation I

need for ish rite. I hope to finally get the package mailed tomorrow! When

I called the hospital they said they only accept non Texas residence for

learning programs. I am sending the packet anyway. I included the MRI and xrays,

a letter from my family giving a little background (aka a plea fir help),

recommendation from my pediatrition and ortho. And a photo of my son..... Also I

had 2 Louisiana masons sign the bottom of the form. What do you suppose my

chances are of someone even looking at it? Who should I address it to? The

doctor? I'm scared they will see the outa state address and not even look at it.

I know they treat out of state kids. Even ones with scoliosis. Will they call

me? Should I call them? I am going to over nite the pkg. My ortho will call in a

referral next Thursday (part of priceedure) I also got 4 more disks of MRI s and

xrays made but can't pick them up until Friday. I'm sending one to Austin and

one to Birmingham. Burmingham said they wouldn't accept him due to age since

he's 3 1/2 but maybe if I can just get someone to LOOK at his info I can get in

on a wing and a prayer? I read before u should call before sending records but

if I keep getting denied on the phone and taking the " standard policy " laying

down then I will get no closer to helping Ben. There are exeptions to every

policy. His curves aren't nearly as bad as they could be.... I am not getting

my hopes up since it was distressing when burmingham hands down said no... But

still I think we should persue treatment in mehta casting.

>Uggggh! I wanna pull my hair out somedays. I wish I didn't have to work AND had

a personal helicopter with a big fat bank account to options didn't feel so

limited sometimes. Today at school I was observing a student who has some pretty

serious issues. He hasn't had any early intervention, he's barely speaking, he

drools alot and has decayed teeth... Not to mention obvious delays. I'm watching

him thinking thus could be ben Iif we had not have worked our butt off with him

since he was small. I wondered how the mom could let this little boy come to

school in a learning enviro that doesn't suit his needs. I felt sorry for him.

He's getting help as far as evaluations ect since it's obvious there are

issues... After watching him in my library I kinda got a little mad. Not at him,

since it isn't his fault. But the whole screwy mess. Wth who are his

pediatritions and what kind of drugs are they on? Maybe his mom asked for help

and no one listened maybe she didn't know any better and didn't push. I just

don't get people or big beurocratic systems and I am sick of jumping through all

these hoops. I wanna help my baby and ot shouldn't be so hard. I'm a mom not a

doctor. Sorry, I'm now rambling : ) okay Tame stuff it already. Gosh that's the

longest I've ever typed on my iPhone! Stress can do that to you.

>Tame

>

September 9, 2010

HEY TAME! I HAVE BEEN WORKING VERY CLOSE WE DR. K NURSE T. WE TALK WEEKLY. SHE IS HELPING WITH OUR FIGHT WITH BCBS INSURANCE. I DO HAVE HER DIRECT # IF YOU WANT TO SEND ME YOUR # OR E-MAIL. WHEN WE WERE IN BIRMINGHAM CHILDRENS ON AUG. 12TH FOR SIERRA'S CAST. DR. K TOLD ME PERSONALLY IN OUR ROOM THAT HE IS NOT THE ONLY DR. THERE AT CHILDRENS THAT DOES THE MEHTA CAST. THAT HE HAD TRAINED ANOTHER DR. IN HIS GROUP. I WOULD DO WHAT ALYSSA SAID & SEND IT ANYWAY. OUR PED. CALLED DR. K PERSONALLY & WE WERE IN TO SEE HIM IN LESS THAN A WEEK AFTER SIERRA'S 1ST X-RAY. I DID NOT HAVE TO SEND THEM ANYTHING. I WOULD THINK THAT YOUR CHILD'S AGE SHOULD NOT MATTER. BELIEVE ME..STRESS...I FEEL LIKE I HAVE AGED 5 YEARS SINCE THIS STARTED IN APRIL! GIVE ME A CALL OR E-MAIL ME IF YOU WANT.

KRISTI MOMMY TO SIERRA 16 MO. 3RD CAST 34 DEGREES DOWN TO 17 DEGREES IN CAST. CASTED IN B'HAM WITH DR. K

MY CELL 251-228-0431

kristij@...

From: Alyssa

Sent: Thursday, September 09, 2010 7:29 AM

infantile scoliosis treatment

Subject: Re: Plan of attack

Tame,

Again I'm so sorry Dr K's nurse said no. Even though I know it is not my fault I still feel guilty. There is another doctor listed on the website, Dr D, that is at Children's in Birmingham. I'm not sure if he actually cast patients because I've never heard anyone say they see him. He's in the same group as Dr K so maybe that is an option. You said once before that the syndrome your son has causes rapid growth, did you tell Dr K's nurse that b/c that might be the reason that they don't want to try at his age b/c they don't think he will grow enough to warrant the effects of the cast.

I would send the images anyway. It can't hurt to keep trying.

Again I'm sorry. If it was up to me I would do it!

AlyssaSent from my iPhone 4

On Sep 8, 2010, at 9:25 PM, "Tame" <dazies2001@...> wrote:

Hello to all and thanks in advance for any input you can give ...Tomorrow my ortho surgeon will be in so he's filling out the recomendation I need for ish rite. I hope to finally get the package mailed tomorrow! When I called the hospital they said they only accept non Texas residence for learning programs. I am sending the packet anyway. I included the MRI and xrays, a letter from my family giving a little background (aka a plea fir help), recommendation from my pediatrition and ortho. And a photo of my son..... Also I had 2 Louisiana masons sign the bottom of the form. What do you suppose my chances are of someone even looking at it? Who should I address it to? The doctor? I'm scared they will see the outa state address and not even look at it. I know they treat out of state kids. Even ones with scoliosis. Will they call me? Should I call them? I am going to over nite the pkg. My ortho will call in a referral next Thursday (part of priceedure) I also got 4 more disks of MRI s and xrays made but can't pick them up until Friday. I'm sending one to Austin and one to Birmingham. Burmingham said they wouldn't accept him due to age since he's 3 1/2 but maybe if I can just get someone to LOOK at his info I can get in on a wing and a prayer? I read before u should call before sending records but if I keep getting denied on the phone and taking the "standard policy" laying down then I will get no closer to helping Ben. There are exeptions to every policy. His curves aren't nearly as bad as they could be.... I am not getting my hopes up since it was distressing when burmingham hands down said no... But still I think we should persue treatment in mehta casting.Uggggh! I wanna pull my hair out somedays. I wish I didn't have to work AND had a personal helicopter with a big fat bank account to options didn't feel so limited sometimes. Today at school I was observing a student who has some pretty serious issues. He hasn't had any early intervention, he's barely speaking, he drools alot and has decayed teeth... Not to mention obvious delays. I'm watching him thinking thus could be ben Iif we had not have worked our butt off with him since he was small. I wondered how the mom could let this little boy come to school in a learning enviro that doesn't suit his needs. I felt sorry for him. He's getting help as far as evaluations ect since it's obvious there are issues... After watching him in my library I kinda got a little mad. Not at him, since it isn't his fault. But the whole screwy mess. Wth who are his pediatritions and what kind of drugs are they on? Maybe his mom asked for help and no one listened maybe she didn't know any better and didn't push. I just don't get people or big beurocratic systems and I am sick of jumping through all these hoops. I wanna help my baby and ot shouldn't be so hard. I'm a mom not a doctor. Sorry, I'm now rambling : ) okay Tame stuff it already. Gosh that's the longest I've ever typed on my iPhone! Stress can do that to you. Tame

September 9, 2010

is 8 months. He is very easy going. It is hard having to repeat everything to my husband. Sent from my BlackBerry® wireless handheldFrom: Tame Olson <dazies2001@...>Sender: infantile scoliosis treatment Date: Thu, 09 Sep 2010 04:03:21 -0700 (PDT)infantile scoliosis treatment <infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Plan of attack is younger right? You will do fine by yourself I bet. I took to all appointment solo including MRIs when they put him under. He was fairly easy to handle. Now that he's older I can't handle him alone, some of that is due to his size and some because of behavioral issues related to sotos. Good luck! You can do it:)Sent from my iPhoneOn Sep 9, 2010, at 3:40 AM, kfaul@... wrote:I feel for your student. I see it here too, I teach. Some parents here just see a GP and no pediatrician. I find that lots gets missed and then parents have difficulty accepting that there may be something medically and physically wrong with there children. My thoughts and prayers are with you, your child and your student. I hope that all works out. My orthos secretary left me a message today about casting . She doesn't feel that it is necessary. I am not sure why when his curvature is so high. Hopefully we get in for that second opinion soon. goes for hernia surgery Monday. I am going alone with him and am very nervous.Sent from my BlackBerry® wireless handheldFrom: Tame <dazies2001@...>Sender: infantile scoliosis treatment Date: Thu, 09 Sep 2010 02:25:49 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Plan of attack Hello to all and thanks in advance for any input you can give ...Tomorrow my ortho surgeon will be in so he's filling out the recomendation I need for ish rite. I hope to finally get the package mailed tomorrow! When I called the hospital they said they only accept non Texas residence for learning programs. I am sending the packet anyway. I included the MRI and xrays, a letter from my family giving a little background (aka a plea fir help), recommendation from my pediatrition and ortho. And a photo of my son..... Also I had 2 Louisiana masons sign the bottom of the form. What do you suppose my chances are of someone even looking at it? Who should I address it to? The doctor? I'm scared they will see the outa state address and not even look at it. I know they treat out of state kids. Even ones with scoliosis. Will they call me? Should I call them? I am going to over nite the pkg. My ortho will call in a referral next Thursday (part of priceedure) I also got 4 more disks of MRI s and xrays made but can't pick themup until Friday. I'm sending oUggggh! I wanna pull my hair out somedays. I wish I didn't have to work AND had a personal helicopter with a big fat bank account to options didn't feel so limited sometimes. Today at school I was observing a student who has some pretty serious issues. He hasn't had any early intervention, he's barely speaking, he drools alot and has decayed teeth... Not to mention obvious delays. I'm watching him thinking thus could be ben Iif we had not have worked our butt off with him since he was small. I wondered how the mom could let this little boy come to school in a learning enviro that doesn't suit his needs. I felt sorry for him. He's getting help as far as evaluations ect since it's obvious there are issues... After watching him in my library I kinda got a little mad. Not at him, since it isn't his fault. But the whole screwy mess. Wth who are his pediatritions and what kind of drugs are they on? Maybe his mom asked for help and no one listened maybe shedidn't know any better and didn'tTame

September 9, 2010

Hello All.

I just joined this group today. My son is 15 months with ideopathic infantile scoliosis and we are going to have him casted at Utah Shriners in the next month so I am looking for any advise or tips. This group is wonderful.

From: Alyssa <rogersalyssa12@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Thu, September 9, 2010 6:29:05 AMSubject: Re: Plan of attack

Tame,

Again I'm so sorry Dr K's nurse said no. Even though I know it is not my fault I still feel guilty. There is another doctor listed on the website, Dr D, that is at Children's in Birmingham. I'm not sure if he actually cast patients because I've never heard anyone say they see him. He's in the same group as Dr K so maybe that is an option. You said once before that the syndrome your son has causes rapid growth, did you tell Dr K's nurse that b/c that might be the reason that they don't want to try at his age b/c they don't think he will grow enough to warrant the effects of the cast.

I would send the images anyway. It can't hurt to keep trying.

Again I'm sorry. If it was up to me I would do it!

AlyssaSent from my iPhone 4

On Sep 8, 2010, at 9:25 PM, "Tame" <dazies2001@...> wrote:

Hello to all and thanks in advance for any input you can give ...Tomorrow my ortho surgeon will be in so he's filling out the recomendation I need for ish rite. I hope to finally get the package mailed tomorrow! When I called the hospital they said they only accept non Texas residence for learning programs. I am sending the packet anyway. I included the MRI and xrays, a letter from my family giving a little background (aka a plea fir help), recommendation from my pediatrition and ortho. And a photo of my son..... Also I had 2 Louisiana masons sign the bottom of the form. What do you suppose my chances are of someone even looking at it? Who should I address it to? The doctor? I'm scared they will see the outa state address and not even look at it. I know they treat out of state kids. Even ones with scoliosis. Will they call me? Should I call them? I am going to over nite the pkg. My ortho will call in a referral next Thursday (part of

priceedure) I also got 4 more disks of MRI s and xrays made but can't pick them up until Friday. I'm sending one to Austin and one to Birmingham. Burmingham said they wouldn't accept him due to age since he's 3 1/2 but maybe if I can just get someone to LOOK at his info I can get in on a wing and a prayer? I read before u should call before sending records but if I keep getting denied on the phone and taking the "standard policy" laying down then I will get no closer to helping Ben. There are exeptions to every policy. His curves aren't nearly as bad as they could be.... I am not getting my hopes up since it was distressing when burmingham hands down said no... But still I think we should persue treatment in mehta casting.Uggggh! I wanna pull my hair out somedays. I wish I didn't have to work AND had a personal helicopter with a big fat bank account to options didn't feel so limited sometimes. Today at school I was observing a student who has some

pretty serious issues. He hasn't had any early intervention, he's barely speaking, he drools alot and has decayed teeth... Not to mention obvious delays. I'm watching him thinking thus could be ben Iif we had not have worked our butt off with him since he was small. I wondered how the mom could let this little boy come to school in a learning enviro that doesn't suit his needs. I felt sorry for him. He's getting help as far as evaluations ect since it's obvious there are issues... After watching him in my library I kinda got a little mad. Not at him, since it isn't his fault. But the whole screwy mess. Wth who are his pediatritions and what kind of drugs are they on? Maybe his mom asked for help and no one listened maybe she didn't know any better and didn't push. I just don't get people or big beurocratic systems and I am sick of jumping through all these hoops. I wanna help my baby and ot shouldn't be so hard. I'm a mom not a doctor. Sorry, I'm now

rambling : ) okay Tame stuff it already. Gosh that's the longest I've ever typed on my iPhone! Stress can do that to you. Tame

September 9, 2010

Hello, , welcome!You are in the right place! If you haven't already, it's a good idea to check out the ISOP website, www.infantilescoliosis.org - on the home page on the left upper side in blue, there is a link you can click on "What to Expect..." on the first casting day.My son's story is on my website www.girltomom.com - on the top of the home page, click on Bexon's Story. Ask any and all questions you have of this great group! P.S. I'm sure you are much, much younger, but my Mom's name is - so I love your name. Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently

down from 62 degrees to 20 in cast)From: Yassin <yassin_nancy@...>infantile scoliosis treatment Sent: Thu, September 9, 2010 11:29:08 AMSubject: Re: Plan of attack

Hello All.

I just joined this group today. My son is 15 months with ideopathic infantile scoliosis and we are going to have him casted at Utah Shriners in the next month so I am looking for any advise or tips. This group is wonderful.

From: Alyssa <rogersalyssa12@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Thu, September 9, 2010 6:29:05 AMSubject: Re: Plan of attack

Tame,

Again I'm so sorry Dr K's nurse said no. Even though I know it is not my fault I still feel guilty. There is another doctor listed on the website, Dr D, that is at Children's in Birmingham. I'm not sure if he actually cast patients because I've never heard anyone say they see him. He's in the same group as Dr K so maybe that is an option. You said once before that the syndrome your son has causes rapid growth, did you tell Dr K's nurse that b/c that might be the reason that they don't want to try at his age b/c they don't think he will grow enough to warrant the effects of the cast.

I would send the images anyway. It can't hurt to keep trying.

Again I'm sorry. If it was up to me I would do it!

AlyssaSent from my iPhone 4

On Sep 8, 2010, at 9:25 PM, "Tame" <dazies2001@...> wrote:

Hello to all and thanks in advance for any input you can give ...Tomorrow my ortho surgeon will be in so he's filling out the recomendation I need for ish rite. I hope to finally get the package mailed tomorrow! When I called the hospital they said they only accept non Texas residence for learning programs. I am sending the packet anyway. I included the MRI and xrays, a letter from my family giving a little background (aka a plea fir help), recommendation from my pediatrition and ortho. And a photo of my son..... Also I had 2 Louisiana masons sign the bottom of the form. What do you suppose my chances are of someone even looking at it? Who should I address it to? The doctor? I'm scared they will see the outa state address and not even look at it. I know they treat out of state kids. Even ones with scoliosis. Will they call me? Should I call them? I am going to over nite the pkg. My ortho will call in a referral next Thursday (part of

priceedure) I also got 4 more disks of MRI s and xrays made but can't pick them up until Friday. I'm sending one to Austin and one to Birmingham. Burmingham said they wouldn't accept him due to age since he's 3 1/2 but maybe if I can just get someone to LOOK at his info I can get in on a wing and a prayer? I read before u should call before sending records but if I keep getting denied on the phone and taking the "standard policy" laying down then I will get no closer to helping Ben. There are exeptions to every policy. His curves aren't nearly as bad as they could be.... I am not getting my hopes up since it was distressing when burmingham hands down said no... But still I think we should persue treatment in mehta casting.Uggggh! I wanna pull my hair out somedays. I wish I didn't have to work AND had a personal helicopter with a big fat bank account to options didn't feel so limited sometimes. Today at school I was observing a student who has some

pretty serious issues. He hasn't had any early intervention, he's barely speaking, he drools alot and has decayed teeth... Not to mention obvious delays. I'm watching him thinking thus could be ben Iif we had not have worked our butt off with him since he was small. I wondered how the mom could let this little boy come to school in a learning enviro that doesn't suit his needs. I felt sorry for him. He's getting help as far as evaluations ect since it's obvious there are issues... After watching him in my library I kinda got a little mad. Not at him, since it isn't his fault. But the whole screwy mess. Wth who are his pediatritions and what kind of drugs are they on? Maybe his mom asked for help and no one listened maybe she didn't know any better and didn't push. I just don't get people or big beurocratic systems and I am sick of jumping through all these hoops. I wanna help my baby and ot shouldn't be so hard. I'm a mom not a doctor. Sorry, I'm now

rambling : ) okay Tame stuff it already. Gosh that's the longest I've ever typed on my iPhone! Stress can do that to you. Tame

September 10, 2010

Why are you sorry silly? I think I give toooooo much info on the phone. She said they don't cast kids with muscle tone issues which isn't true. His syndrome is an overgrowth syndromeAnd he's growing fast which is why the cast should work fir him! It's also probably why his back is so haywire right now. He should grow alot during 2 and 5. His scoliosis has only been an issue for the last year which is about when he really started growing faster than normal. After 5 the pace will slow and if we can hold his back curve till then hopefully it will even out. His muscle tine isn't that bad I don't think. He walks runs hops whatever but has lots of trouble with his finger muscles. My new plan is not to offer any info unless asked. Lots of times doctors with hold info from us..... I want him to be evaluated in person before he's denied that's all. If no one looks at his records than how can they deny him? If there is a

specific reaso other than the fact he's 3 then I'm okay with that. We will find another route of treatment. Besides the people on the other end of the phone aren't the doc so how can they be the only decision maker? Don't feel guilty. Shoot, I feel guilty any of our kids have bad backs!TameSent from my iPhoneOn Sep 9, 2010, at 7:29 AM, Alyssa <rogersalyssa12@...> wrote:

Tame, Again I'm so sorry Dr K's nurse said no. Even though I know it is not my fault I still feel guilty. There is another doctor listed on the website, Dr D, that is at Children's in Birmingham. I'm not sure if he actually cast patients because I've never heard anyone say they see him. He's in the same group as Dr K so maybe that is an option. You said once before that the syndrome your son has causes rapid growth, did you tell Dr K's nurse that b/c that might be the reason that they don't want to try at his age b/c they don't think he will grow enough to warrant the effects of the cast. I would send the images anyway. It can't hurt to keep trying. Again I'm sorry. If it was up to me I would do it!AlyssaSent from my iPhone 4On Sep 8, 2010, at 9:25 PM, "Tame" <dazies2001@...> wrote:

Hello to all and thanks in advance for any input you can give ...

Tomorrow my ortho surgeon will be in so he's filling out the recomendation I need for ish rite. I hope to finally get the package mailed tomorrow! When I called the hospital they said they only accept non Texas residence for learning programs. I am sending the packet anyway. I included the MRI and xrays, a letter from my family giving a little background (aka a plea fir help), recommendation from my pediatrition and ortho. And a photo of my son..... Also I had 2 Louisiana masons sign the bottom of the form. What do you suppose my chances are of someone even looking at it? Who should I address it to? The doctor? I'm scared they will see the outa state address and not even look at it. I know they treat out of state kids. Even ones with scoliosis. Will they call me? Should I call them? I am going to over nite the pkg. My ortho will call in a referral next Thursday (part of priceedure) I also got 4 more disks of MRI s and xrays made but can't pick them

up until Friday. I'm sending one to Austin and one to Birmingham. Burmingham said they wouldn't accept him due to age since he's 3 1/2 but maybe if I can just get someone to LOOK at his info I can get in on a wing and a prayer? I read before u should call before sending records but if I keep getting denied on the phone and taking the "standard policy" laying down then I will get no closer to helping Ben. There are exeptions to every policy. His curves aren't nearly as bad as they could be.... I am not getting my hopes up since it was distressing when burmingham hands down said no... But still I think we should persue treatment in mehta casting.

Uggggh! I wanna pull my hair out somedays. I wish I didn't have to work AND had a personal helicopter with a big fat bank account to options didn't feel so limited sometimes. Today at school I was observing a student who has some pretty serious issues. He hasn't had any early intervention, he's barely speaking, he drools alot and has decayed teeth... Not to mention obvious delays. I'm watching him thinking thus could be ben Iif we had not have worked our butt off with him since he was small. I wondered how the mom could let this little boy come to school in a learning enviro that doesn't suit his needs. I felt sorry for him. He's getting help as far as evaluations ect since it's obvious there are issues... After watching him in my library I kinda got a little mad. Not at him, since it isn't his fault. But the whole screwy mess. Wth who are his pediatritions and what kind of drugs are they on? Maybe his mom asked for help and no one listened maybe she

didn't know any better and didn't push. I just don't get people or big beurocratic systems and I am sick of jumping through all these hoops. I wanna help my baby and ot shouldn't be so hard. I'm a mom not a doctor. Sorry, I'm now rambling : ) okay Tame stuff it already. Gosh that's the longest I've ever typed on my iPhone! Stress can do that to you.

Tame

September 10, 2010

-

I learned something interesting about autism today. Does your child make eye

contact with you? I know you said he was mild on the spectrum.... Anyway you

probably already know this but most kids with autism have peripheral vision (is

that how it's spelled?) so when communicating it helps to stand along side of

them instead of directly in front of them. Dunno if that helps you any - but

food for thought.

Tame

Sent from my iPhone

On Sep 9, 2010, at 8:03 AM, <missikay10@...> wrote:

Tame,

I totally feel your pain. If you want to address your packet to a specific dr

at scottish my dr is daniel sucato.

I don't understand why middle class can't get any services. Our ins won't cover

anything for autism and we don't qualify for medicaid so we are just left out

with no help. Its so not fair!

Good luck!

Tame <dazies2001@...> wrote:

Hello to all and thanks in advance for any input you can give ...

Tomorrow my ortho surgeon will be in so he's filling out the recomendation I