Re: This is Official--My son is a PANDAS Kid!!!

September 12, 2008

You can run ASO and Anti DNase B titers and also run a PANDAS profile through www.neurorelief.com

Kerrie

I know I¢ve asked this before but what is the simple bloodwork to run to check for PANDAS? Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com.

September 12, 2008

sorry you had to join the club but dr BAPTIST IS amazing, he caught our sons and an aspie friend of ours who had been dxed with tourettes her whole life, he ran the simple PANDAS blood work and dxed her differently with a treatment option and now it's not an issue. as simple as taking OLE> thank goodness for answers....that is one step closer to healing

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

This is Official--My son is a PANDAS Kid!!!

I have been on this group for more than 8 months, and my son has been diagnosed with autism for 7 years, and yesterday was the first time we were told by DAN officially that our son is suffering from chronic strep infection, and his is one of the PANDAS kids. Join the club. I can't imagine that why the heck it takes us 7 years to figure it out. All these doctors in his life time that we have been seen, none of them has discovered it, until we saw Dr. Baptist... My son has never had any GI problems, if he does, just few minor gas or diaherria in his whole life time, who knows strep infection, yeast overgrowth, metabism dysfunction has never been picked up by other docs....Luckily that i have been educated by all of you from the group for 8 months and well prepared for the bad news... We pretty much are on the right diet, and right supps, just need to boost up volume, add few more supp..... I want to say thank you to all of you who have been sharing and mentoring me on this forum... Now, it is official, join the club--PANDAS, and a lot of work ahead of us... and keep rolling....

Sincerely, Rei

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

I know I’ve asked this before but what

is the simple bloodwork to run to check for PANDAS?

" Three

grand essentials to happiness in this life are something to do, something to

love, and something to hope for... "

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Christel King

Sent: Friday, September 12, 2008

1:01 PM

To: mb12 valtrex

Subject: Re: This is

Official--My son is a PANDAS Kid!!!

sorry you had to join the club but dr

BAPTIST IS amazing, he caught our sons and an aspie friend of ours who had been

dxed with tourettes her whole life, he ran the simple PANDAS blood work and

dxed her differently with a treatment option and now it's not an issue.

as simple as taking OLE> thank goodness for answers....that is

one step closer to healing

Recovering from Autism is a marathon

NOT a sprint, but FULLY possible!

Read more about it on my BLOGs at

http://www.myspace.com/christelking

http://foggyrock.com/MyPage/recoveringwishes

http://www.facebook.com/profile.php?id=677063169

This

is Official--My son is a PANDAS Kid!!!

I have been on this

group for more than 8 months, and my son has been diagnosed with autism for 7

years, and yesterday was the first time we were told by DAN officially that

our son is suffering from chronic strep infection, and his is one of the

PANDAS kids. Join the club. I can't imagine that why the heck it takes us 7

years to figure it out. All these doctors in his life time that we have been

seen, none of them has discovered it, until we saw Dr. Baptist... My son has

never had any GI problems, if he does, just few minor gas or diaherria in his

whole life time, who knows strep infection, yeast overgrowth, metabism

dysfunction has never been picked up by other docs....Luckily that i

have been educated by all of you from the group for 8 months and well

prepared for the bad news... We pretty much are on the right diet, and right

supps, just need to boost up volume, add few more supp..... I want to say

thank you to all of you who have been sharing and mentoring me on this

forum... Now, it is official, join the club--PANDAS, and a lot of work ahead

of us... and keep rolling....

Sincerely,

Rei

size=2 width="100%" align=center>

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18

PM

September 12, 2008

PANDAS, is an abbreviation for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. The term is used to describe a subset of children who have Obsessive Compulsive Disorder (OCD) and/or tic disorders such as Tourette's Syndrome, and in whom symptoms worsen following strep. infections such as "Strep throat" and Scarlet Fever. The children usually have dramatic, "overnight" onset of symptoms, including motor or vocal tics, obsessions, and/or compulsions. In addition to these symptoms, children may also become moody, irritable or show concerns about separating from parents or loved ones. This abrupt onset is generally preceeded by a Strep. throat infection.

PANDAS is similar to that of Rheumatic Fever, an autoimmune disorder triggered by strep. throat infections. In every bacterial infection, the body produces antibodies against the invading bacteria, and the antibodies help eliminate the bacteria from the body. However in Rheumatic Fever, the antibodies mistakenly recognize and "attack" the heart valves, joints, and/or certain parts of the brain. This phenomenon is called "molecular mimicry", which means that proteins on the cell wall of the strep. bacteria are similar in some way to the proteins of the heart valve, joints, or brain

One part of the brain that is affected in PANDAS is the Basal Ganglia, which is believed to be responsible for movement and behavior. Thus, the antibodies interact with the brain to cause tics and/or OCD

clinicians use 5 diagnostic criteria for the diagnosis of PANDAS (see below). At the present time the clinical features of the illness are the only means of determining whether or not a child might have PANDAS. Q. What are the diagnostic criteria for PANDAS? A. They are:

Presence of Obsessive-compulsive disorder and/or a tic disorder Pediatric onset of symptoms (age 3 years to puberty) Episodic course of symptom severity Association with group A Beta-hemolytic streptococcal infection (a positive throat culture for strep. or history of Scarlet Fever.) Association with neurological abnormalities (motoric hyperactivity, or adventitious movements, such as choreiform movements)

Q. What is an episodic course of symptoms? A. Children with PANDAS seem to have dramatic ups and downs in their OCD and/or tic severity. Tics or OCD which are almost always present at a relatively consistent level do not represent an episodic course. Many kids with OCD or tics have good days and bad days, or even good weeks and bad weeks. However, patients with PANDAS have a very sudden onset or worsening of their symptoms, followed by a slow, gradual improvement. If they get another strep. infection, their symptoms suddenly worsen again. The increased symptom severity usually persists for at least several weeks, but may last for several months or longer. The tics or OCD then seem to gradually fade away, and the children often enjoy a few weeks or several months without problems. When they have another strep. throat infection the tics or OCD return just as suddenly and dramatically as they did previously. Q. Are there any other symptoms associated with PANDAS episodes? A. Yes. Children with PANDAS often experience one or more of the following symptoms in conjunction with their OCD and/or tics:

ADHD symptoms (hyperactivity, inattention, fidgety) Separation anxiety (Child is "clingy" and has difficulty separating from his/her caregivers. For example, the child may not want to be in a different room in the house from his/her parents.) Mood changes (irritability, sadness, emotional lability) Sleep disturbance Night- time bed wetting and/or day- time urinary frequency Fine/gross motor changes (e.g. changes in handwriting) Joint pains

here is another list from another site

Red flagsThe biggest difference between regular OCD and PANDAS OCD is the sudden onset. OCD usually develops slowly over weeks, months or even years; however, PANDAS OCD seems to come out of the blue with parents saying one day their child woke up a different kid. There are also other symptoms that help differentiate the 2 types of OCD. PANDAS OCD is also characterized by:

Choreiform movements: involuntary or irregular writhing movements of the legs, arm or face

Presence of tics and/or hyperactivity

Irritability, temper tantrums, or mood lability

Nighttime difficulties

Severe nightmares and new bedtime rituals or fears

Separation anxiety

Age regression: going back to younger developmental stage

New handwriting problems, loss of math skills, sensory sensitivities

Q. My child has had strep. throat before, and he has tics and/or OCD. Does that mean he has PANDAS? A. No. Many children have OCD and/or tics, and almost all school aged children get strep. throat at some point in their lives. In fact, the average grade-school student will have 2 – 3 strep. throat infections each year. PANDAS is considered when there is a very close relationship between the abrupt onset or worsening or OCD and/or tics, and a preceding strep. infection. If strep. is found in conjunction with two or three episodes of OCD/tics, then it may be that the child has PANDAS

What to do if you suspect your child has PANDAS

Contact your pediatrician. Advocate for your child by being clear about what you want your doctor to do. In some cases, you may have to find a sympathetic doctor who is willing to learn about PANDAS. The PANDAS Clinic at NIMH may be willing to consult with doctors.

Have your pediatrician do a throat culture of group A B-hemolytic strep. Ask that the specimen be cultured, not just the rapid test.

Your doctor may also do a blood test to assess elevated streptococcal antibodies (Anti-DNAse B and Antistreptolysin titers (ASO)).

You and/or your doctor can get information and treatment guidelines from the National Institute of Mental Health (www.nih.gov); type in PANDAS to access the appropriate link.

Contact the OC Foundation to help locate an expert in OCD in your area.

Have your child retested if there is a resurgence in OCD symptoms.

yes my son and best friend both have PANDAS< my son had scarlet fever and strep throat and deteriorated what felt like over night almost 2 years ago, which we have then seen a pattern with 3 other episodes, which gives him the dx of PANDAS, he gets very OCD over letter and turns extreamly hyperlexic, his hand writting goes, he has melt downs over nothings, lots of tantrums, gets mean and will hurt his sisters for no reason ect. my aspie friend well get really depressed, and emotional, have melt downs, becomes unfunctionable, her immune system crashes and she will over night new allergies to the place she can bearly eat. (she is an adult and it looks a bit different) she was previously dxed with tourettes which I pushed her to get tested as I saw it come and go like my son with his PANDAS flares and sure enough she tested possitive, so now with treatment OLE (olive leaf extract) she is tic free as well. she has the history of tons of strep infection as a child and being on spectrum as well but wasn't caught till this last year. so her peices are coming together now.

I hope this helps you some with examples of both a child and an adult, If I can help you futher please don't hesitate to contact me agian

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

This is Official--My son is a PANDAS Kid!!!

I have been on this group for more than 8 months, and my son has been diagnosed with autism for 7 years, and yesterday was the first time we were told by DAN officially that our son is suffering from chronic strep infection, and his is one of the PANDAS kids. Join the club. I can't imagine that why the heck it takes us 7 years to figure it out. All these doctors in his life time that we have been seen, none of them has discovered it, until we saw Dr. Baptist... My son has never had any GI problems, if he does, just few minor gas or diaherria in his whole life time, who knows strep infection, yeast overgrowth, metabism dysfunction has never been picked up by other docs....Luckily that i have been educated by all of you from the group for 8 months and well prepared for the bad news... We pretty much are on the right diet, and right supps, just need to boost up volume, add few more supp..... I want to say thank you to all of you who have been sharing and mentoring me on this forum... Now, it is official, join the club--PANDAS, and a lot of work ahead of us... and keep rolling....

Sincerely, Rei

size=2 width="100%" align=center>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

, I have to run, but will be back within an hour. When I am back, I will email you the info on blood work and what marker indicated strep and PANDAS. Cheer!

Sincerely, Rei Branch Manager

Network Funding, LP

6070 Gateway East, Suite 509 El Paso, TX 79905 Phone: Fax: Cell:

Less in Debt. More in Life.

Ask me about debt consolidation loans.

Subject: RE: This is Official--My son is a PANDAS Kid!!!To: mb12 valtrex Date: Friday, September 12, 2008, 12:10 PM

I know I¢ve asked this before but what is the simple bloodwork to run to check for PANDAS?

"Three grand essentials to happiness in this life are something to do, something to love, and something to hope for..."

From: mb12 valtrex@ yahoogroups. com [mailto: mb12 valtrex@ yahoogroups. com ] On Behalf Of Christel KingSent: Friday, September 12, 2008 1:01 PMTo: mb12 valtrex@ yahoogroups. comSubject: Re: This is Official--My son is a PANDAS Kid!!!

sorry you had to join the club but dr BAPTIST IS amazing, he caught our sons and an aspie friend of ours who had been dxed with tourettes her whole life, he ran the simple PANDAS blood work and dxed her differently with a treatment option and now it's not an issue. as simple as taking OLE> thank goodness for answers....that is one step closer to healing

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace. com/christelkinghttp://foggyrock. com/MyPage/ recoveringwisheshttp://www.facebook .com/profile. php?id=677063169

This is Official--My son is a PANDAS Kid!!!

I have been on this group for more than 8 months, and my son has been diagnosed with autism for 7 years, and yesterday was the first time we were told by DAN officially that our son is suffering from chronic strep infection, and his is one of the PANDAS kids. Join the club. I can't imagine that why the heck it takes us 7 years to figure it out. All these doctors in his life time that we have been seen, none of them has discovered it, until we saw Dr. Baptist... My son has never had any GI problems, if he does, just few minor gas or diaherria in his whole life time, who knows strep infection, yeast overgrowth, metabism dysfunction has never been picked up by other docs....Luckily that i have been educated by all of you from the group for 8 months and well prepared for the bad news... We pretty much are on the right diet, and right supps, just need to boost up volume,

add few more supp..... I want to say thank you to all of you who have been sharing and mentoring me on this forum... Now, it is official, join the club--PANDAS, and a lot of work ahead of us... and keep rolling....

Sincerely, Rei

size=2 width="100%" align=center>

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

Ia PANDAS contagious? I suspect my daughter has had it since she

fot the stomach flu in July. Our DAN said to take her regular

pedritrian. We have a family party this weekend and I certainly do

not want to expose anyone.

>

> PANDAS, is an abbreviation for Pediatric Autoimmune

Neuropsychiatric Disorders Associated with Streptococcal Infections.

The term is used to describe a subset of children who have Obsessive

Compulsive Disorder (OCD) and/or tic disorders such as Tourette's

Syndrome, and in whom symptoms worsen following strep. infections

such as " Strep throat " and Scarlet Fever.

>

> The children usually have dramatic, " overnight " onset of symptoms,

including motor or vocal tics, obsessions, and/or compulsions. In

addition to these symptoms, children may also become moody,

irritable or show concerns about separating from parents or loved

ones. This abrupt onset is generally preceeded by a Strep. throat

infection.

>

> PANDAS is similar to that of Rheumatic Fever, an autoimmune

disorder triggered by strep. throat infections. In every bacterial

infection, the body produces antibodies against the invading

bacteria, and the antibodies help eliminate the bacteria from the

body. However in Rheumatic Fever, the antibodies mistakenly

recognize and " attack " the heart valves, joints, and/or certain

parts of the brain. This phenomenon is called " molecular mimicry " ,

which means that proteins on the cell wall of the strep. bacteria

are similar in some way to the proteins of the heart valve, joints,

or brain

>

> One part of the brain that is affected in PANDAS is the Basal

Ganglia, which is believed to be responsible for movement and

behavior. Thus, the antibodies interact with the brain to cause tics

and/or OCD

>

> clinicians use 5 diagnostic criteria for the diagnosis of PANDAS

(see below). At the present time the clinical features of the

illness are the only means of determining whether or not a child

might have PANDAS.

>

> Q. What are the diagnostic criteria for PANDAS?

>

> A. They are:

>

> 1.. Presence of Obsessive-compulsive disorder and/or a tic

disorder

> 2.. Pediatric onset of symptoms (age 3 years to puberty)

> 3.. Episodic course of symptom severity

> 4.. Association with group A Beta-hemolytic streptococcal

infection (a positive throat culture for strep. or history of

Scarlet Fever.)

> 5.. Association with neurological abnormalities (motoric

hyperactivity, or adventitious movements, such as choreiform

movements)

> Q. What is an episodic course of symptoms?

>

> A. Children with PANDAS seem to have dramatic ups and downs in

their OCD and/or tic severity. Tics or OCD which are almost always

present at a relatively consistent level do not represent an

episodic course. Many kids with OCD or tics have good days and bad

days, or even good weeks and bad weeks. However, patients with

PANDAS have a very sudden onset or worsening of their symptoms,

followed by a slow, gradual improvement. If they get another strep.

infection, their symptoms suddenly worsen again. The increased

symptom severity usually persists for at least several weeks, but

may last for several months or longer. The tics or OCD then seem to

gradually fade away, and the children often enjoy a few weeks or

several months without problems. When they have another strep.

throat infection the tics or OCD return just as suddenly and

dramatically as they did previously.

>

> Q. Are there any other symptoms associated with PANDAS episodes?

>

> A. Yes. Children with PANDAS often experience one or more of the

following symptoms in conjunction with their OCD and/or tics:

> 1.. ADHD symptoms (hyperactivity, inattention, fidgety)

> 2.. Separation anxiety (Child is " clingy " and has difficulty

separating from his/her caregivers. For example, the child may not

want to be in a different room in the house from his/her parents.)

> 3.. Mood changes (irritability, sadness, emotional lability)

> 4.. Sleep disturbance

> 5.. Night- time bed wetting and/or day- time urinary frequency

> 6.. Fine/gross motor changes (e.g. changes in handwriting)

> 7.. Joint pains

> here is another list from another site

>

> Red flags

> The biggest difference between regular OCD and PANDAS OCD is the

sudden onset. OCD usually develops slowly over weeks, months or even

years; however, PANDAS OCD seems to come out of the blue with

parents saying one day their child woke up a different kid. There

are also other symptoms that help differentiate the 2 types of OCD.

PANDAS OCD is also characterized by:

>

> a.. Choreiform movements: involuntary or irregular writhing

movements of the legs, arm or face

> b.. Presence of tics and/or hyperactivity

> c.. Irritability, temper tantrums, or mood lability

> d.. Nighttime difficulties

> e.. Severe nightmares and new bedtime rituals or fears

> f.. Separation anxiety

> g.. Age regression: going back to younger developmental stage

> h.. New handwriting problems, loss of math skills, sensory

sensitivities

>

> Q. My child has had strep. throat before, and he has tics and/or

OCD. Does that mean he has PANDAS?

>

> A. No. Many children have OCD and/or tics, and almost all school

aged children get strep. throat at some point in their lives. In

fact, the average grade-school student will have 2 - 3 strep. throat

infections each year. PANDAS is considered when there is a very

close relationship between the abrupt onset or worsening or OCD

and/or tics, and a preceding strep. infection. If strep. is found in

conjunction with two or three episodes of OCD/tics, then it may be

that the child has PANDAS

>

> What to do if you suspect your child has PANDAS

>

> a.. Contact your pediatrician. Advocate for your child by being

clear about what you want your doctor to do. In some cases, you may

have to find a sympathetic doctor who is willing to learn about

PANDAS. The PANDAS Clinic at NIMH may be willing to consult with

doctors.

> b.. Have your pediatrician do a throat culture of group A B-

hemolytic strep. Ask that the specimen be cultured, not just the

rapid test.

> c.. Your doctor may also do a blood test to assess elevated

streptococcal antibodies (Anti-DNAse B and Antistreptolysin titers

(ASO)).

> d.. You and/or your doctor can get information and treatment

guidelines from the National Institute of Mental Health

(www.nih.gov); type in PANDAS to access the appropriate link.

> e.. Contact the OC Foundation to help locate an expert in OCD in

your area.

> f.. Have your child retested if there is a resurgence in OCD

symptoms.

> yes my son and best friend both have PANDAS< my son had scarlet

fever and strep throat and deteriorated what felt like over night

almost 2 years ago, which we have then seen a pattern with 3 other

episodes, which gives him the dx of PANDAS, he gets very OCD over

letter and turns extreamly hyperlexic, his hand writting goes, he

has melt downs over nothings, lots of tantrums, gets mean and will

hurt his sisters for no reason ect. my aspie friend well get really

depressed, and emotional, have melt downs, becomes unfunctionable,

her immune system crashes and she will over night new allergies to

the place she can bearly eat. (she is an adult and it looks a bit

different) she was previously dxed with tourettes which I pushed

her to get tested as I saw it come and go like my son with his

PANDAS flares and sure enough she tested possitive, so now with

treatment OLE (olive leaf extract) she is tic free as well. she has

the history of tons of strep infection as a child and being on

spectrum as well but wasn't caught till this last year. so her

peices are coming together now.

>

> I hope this helps you some with examples of both a child and an

adult, If I can help you futher please don't hesitate to contact me

agian

> Recovering from Autism is a marathon

> NOT a sprint, but FULLY possible!

> Read more about it on my BLOGs at

> http://www.myspace.com/christelking

> http://foggyrock.com/MyPage/recoveringwishes

> http://www.facebook.com/profile.php?id=677063169

>

> This is Official--My son is a PANDAS

Kid!!!

>

> I have been on this group for more than 8 months, and my

son has been diagnosed with autism for 7 years, and yesterday was

the first time we were told by DAN officially that our son is

suffering from chronic strep infection, and his is one of the PANDAS

kids. Join the club. I can't imagine that why the heck it takes us 7

years to figure it out. All these doctors in his life time that we

have been seen, none of them has discovered it, until we saw Dr.

Baptist... My son has never had any GI problems, if he does, just

few minor gas or diaherria in his whole life time, who knows strep

infection, yeast overgrowth, metabism dysfunction has never been

picked up by other docs....Luckily that i have been educated by all

of you from the group for 8 months and well prepared for the bad

news... We pretty much are on the right diet, and right supps, just

need to boost up volume, add few more supp..... I want to say thank

you to all of you who have been sharing and mentoring me on this

forum... Now, it is official, join the club--PANDAS, and a lot of

work ahead of us... and keep rolling....

>

> Sincerely,

>

> Rei

>

> -------------------------------------------------------------------

---------

> size=2 width= " 100% " align=center>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

Date: 9/12/2008 2:18 PM

>

> -------------------------------------------------------------------

-----------

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date:

9/12/2008 2:18 PM

>

September 12, 2008

STREP is contagious yes, but PANDAS is like autoimmune strep which you can't make someone autoimmune by catching it....

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

This is Official--My son is a PANDAS Kid!!!> > > > I have been on this group for more than 8 months, and my son has been diagnosed with autism for 7 years, and yesterday was the first time we were told by DAN officially that our son is suffering from chronic strep infection, and his is one of the PANDAS kids. Join the club. I can't imagine that why the heck it takes us 7 years to figure it out. All these doctors in his life time that we have been seen, none of them has discovered it, until we saw Dr. Baptist... My son has never had any GI problems, if he does, just few minor gas or diaherria in his whole life time, who knows strep infection, yeast overgrowth, metabism dysfunction has never been picked up by other docs....Luckily that i have been educated by all of you from the group for 8 months and well prepared for the bad news... We pretty much are on the right diet, and right supps, just need to boost up volume, add few more supp..... I want to say thank you to all of you who have been sharing and mentoring me on this forum... Now, it is official, join the club--PANDAS, and a lot of work ahead of us... and keep rolling....> > Sincerely, > > Rei > > > > > > -------------------------------------------------------------------> size=2 width="100%" align=center> > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM> > > > > > > ---------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

So she will not infect anyone unless their immune system is already

compromised?? I want to make sure I understand.

The only strange part is she has not had strept throat in her life.

We had a terrible case of the stomach flu with diaahrea and throwing

up over the fourth of July. Since then abrina will not ride her bike

anymore, she will stay on the porch rather than playing with her

sisters in the driveway, sleeping on the floor instead of her bed.

Very whiny. Always saying Mom come back and I am standing next to

her. Crying alot for no reason.

I thought it was the yeast back. Her DAN Dr put her back on diflucan

and thought adding Li might help. She also recommended putting her

back Adrenal Cortex might help. We had run out about 2 weeks before

we saw the doctor in August. Now I am wondering if she has Strep. I

have not given her any OLE in quite a while. Is there anything else

I should be looking for in her and any other things that may kill it

if it is Strep?

April

> >

> > PANDAS, is an abbreviation for Pediatric Autoimmune

> Neuropsychiatric Disorders Associated with Streptococcal

Infections.

> The term is used to describe a subset of children who have

Obsessive

> Compulsive Disorder (OCD) and/or tic disorders such as

Tourette's

> Syndrome, and in whom symptoms worsen following strep.

infections

> such as " Strep throat " and Scarlet Fever.

> >

> > The children usually have dramatic, " overnight " onset of

symptoms,

> including motor or vocal tics, obsessions, and/or compulsions.

In

> addition to these symptoms, children may also become moody,

> irritable or show concerns about separating from parents or

loved

> ones. This abrupt onset is generally preceeded by a Strep.

throat

> infection.

> >

> > PANDAS is similar to that of Rheumatic Fever, an autoimmune

> disorder triggered by strep. throat infections. In every

bacterial

> infection, the body produces antibodies against the invading

> bacteria, and the antibodies help eliminate the bacteria from

the

> body. However in Rheumatic Fever, the antibodies mistakenly

> recognize and " attack " the heart valves, joints, and/or certain

> parts of the brain. This phenomenon is called " molecular

mimicry " ,

> which means that proteins on the cell wall of the strep.

bacteria

> are similar in some way to the proteins of the heart valve,

joints,

> or brain

> >

> > One part of the brain that is affected in PANDAS is the Basal

> Ganglia, which is believed to be responsible for movement and

> behavior. Thus, the antibodies interact with the brain to cause

tics

> and/or OCD

> >

> > clinicians use 5 diagnostic criteria for the diagnosis of

PANDAS

> (see below). At the present time the clinical features of the

> illness are the only means of determining whether or not a child

> might have PANDAS.

> >

> > Q. What are the diagnostic criteria for PANDAS?

> >

> > A. They are:

> >

> > 1.. Presence of Obsessive-compulsive disorder and/or a tic

> disorder

> > 2.. Pediatric onset of symptoms (age 3 years to puberty)

> > 3.. Episodic course of symptom severity

> > 4.. Association with group A Beta-hemolytic streptococcal

> infection (a positive throat culture for strep. or history of

> Scarlet Fever.)

> > 5.. Association with neurological abnormalities (motoric

> hyperactivity, or adventitious movements, such as choreiform

> movements)

> > Q. What is an episodic course of symptoms?

> >

> > A. Children with PANDAS seem to have dramatic ups and downs in

> their OCD and/or tic severity. Tics or OCD which are almost

always

> present at a relatively consistent level do not represent an

> episodic course. Many kids with OCD or tics have good days and

bad

> days, or even good weeks and bad weeks. However, patients with

> PANDAS have a very sudden onset or worsening of their symptoms,

> followed by a slow, gradual improvement. If they get another

strep.

> infection, their symptoms suddenly worsen again. The increased

> symptom severity usually persists for at least several weeks,

but

> may last for several months or longer. The tics or OCD then seem

to

> gradually fade away, and the children often enjoy a few weeks or

> several months without problems. When they have another strep.

> throat infection the tics or OCD return just as suddenly and

> dramatically as they did previously.

> >

> > Q. Are there any other symptoms associated with PANDAS

episodes?

> >

> > A. Yes. Children with PANDAS often experience one or more of

the

> following symptoms in conjunction with their OCD and/or tics:

> > 1.. ADHD symptoms (hyperactivity, inattention, fidgety)

> > 2.. Separation anxiety (Child is " clingy " and has difficulty

> separating from his/her caregivers. For example, the child may

not

> want to be in a different room in the house from his/her

parents.)

> > 3.. Mood changes (irritability, sadness, emotional lability)

> > 4.. Sleep disturbance

> > 5.. Night- time bed wetting and/or day- time urinary frequency

> > 6.. Fine/gross motor changes (e.g. changes in handwriting)

> > 7.. Joint pains

> > here is another list from another site

> >

> > Red flags

> > The biggest difference between regular OCD and PANDAS OCD is

the

> sudden onset. OCD usually develops slowly over weeks, months or

even

> years; however, PANDAS OCD seems to come out of the blue with

> parents saying one day their child woke up a different kid.

There

> are also other symptoms that help differentiate the 2 types of

OCD.

> PANDAS OCD is also characterized by:

> >

> > a.. Choreiform movements: involuntary or irregular writhing

> movements of the legs, arm or face

> > b.. Presence of tics and/or hyperactivity

> > c.. Irritability, temper tantrums, or mood lability

> > d.. Nighttime difficulties

> > e.. Severe nightmares and new bedtime rituals or fears

> > f.. Separation anxiety

> > g.. Age regression: going back to younger developmental stage

> > h.. New handwriting problems, loss of math skills, sensory

> sensitivities

> >

> > Q. My child has had strep. throat before, and he has tics

and/or

> OCD. Does that mean he has PANDAS?

> >

> > A. No. Many children have OCD and/or tics, and almost all

school

> aged children get strep. throat at some point in their lives. In

> fact, the average grade-school student will have 2 - 3 strep.

throat

> infections each year. PANDAS is considered when there is a very

> close relationship between the abrupt onset or worsening or OCD

> and/or tics, and a preceding strep. infection. If strep. is

found in

> conjunction with two or three episodes of OCD/tics, then it may

be

> that the child has PANDAS

> >

> > What to do if you suspect your child has PANDAS

> >

> > a.. Contact your pediatrician. Advocate for your child by

being

> clear about what you want your doctor to do. In some cases, you

may

> have to find a sympathetic doctor who is willing to learn about

> PANDAS. The PANDAS Clinic at NIMH may be willing to consult with

> doctors.

> > b.. Have your pediatrician do a throat culture of group A B-

> hemolytic strep. Ask that the specimen be cultured, not just the

> rapid test.

> > c.. Your doctor may also do a blood test to assess elevated

> streptococcal antibodies (Anti-DNAse B and Antistreptolysin

titers

> (ASO)).

> > d.. You and/or your doctor can get information and treatment

> guidelines from the National Institute of Mental Health

> (www.nih.gov); type in PANDAS to access the appropriate link.

> > e.. Contact the OC Foundation to help locate an expert in OCD

in

> your area.

> > f.. Have your child retested if there is a resurgence in OCD

> symptoms.

> > yes my son and best friend both have PANDAS< my son had

scarlet

> fever and strep throat and deteriorated what felt like over

night

> almost 2 years ago, which we have then seen a pattern with 3

other

> episodes, which gives him the dx of PANDAS, he gets very OCD

over

> letter and turns extreamly hyperlexic, his hand writting goes,

he

> has melt downs over nothings, lots of tantrums, gets mean and

will

> hurt his sisters for no reason ect. my aspie friend well get

really

> depressed, and emotional, have melt downs, becomes

unfunctionable,

> her immune system crashes and she will over night new allergies

to

> the place she can bearly eat. (she is an adult and it looks a

bit

> different) she was previously dxed with tourettes which I pushed

> her to get tested as I saw it come and go like my son with his

> PANDAS flares and sure enough she tested possitive, so now with

> treatment OLE (olive leaf extract) she is tic free as well. she

has

> the history of tons of strep infection as a child and being on

> spectrum as well but wasn't caught till this last year. so her

> peices are coming together now.

> >

> > I hope this helps you some with examples of both a child and

an

> adult, If I can help you futher please don't hesitate to contact

me

> agian

> > Recovering from Autism is a marathon

> > NOT a sprint, but FULLY possible!

> > Read more about it on my BLOGs at

> > http://www.myspace.com/christelking

> > http://foggyrock.com/MyPage/recoveringwishes

> > http://www.facebook.com/profile.php?id=677063169

> >

> > This is Official--My son is a PANDAS

> Kid!!!

> >

> > I have been on this group for more than 8 months, and my

> son has been diagnosed with autism for 7 years, and yesterday

was

> the first time we were told by DAN officially that our son is

> suffering from chronic strep infection, and his is one of the

PANDAS

> kids. Join the club. I can't imagine that why the heck it takes

us 7

> years to figure it out. All these doctors in his life time that

we

> have been seen, none of them has discovered it, until we saw Dr.

> Baptist... My son has never had any GI problems, if he does,

just

> few minor gas or diaherria in his whole life time, who knows

strep

> infection, yeast overgrowth, metabism dysfunction has never been

> picked up by other docs....Luckily that i have been educated by

all

> of you from the group for 8 months and well prepared for the bad

> news... We pretty much are on the right diet, and right supps,

just

> need to boost up volume, add few more supp..... I want to say

thank

> you to all of you who have been sharing and mentoring me on this

> forum... Now, it is official, join the club--PANDAS, and a lot

of

> work ahead of us... and keep rolling....

> >

> > Sincerely,

> >

> > Rei

> >

> > ----------------------------------------------------------

> ---------

> > size=2 width= " 100% " align=center>

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com

> > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> Date: 9/12/2008 2:18 PM

> >

> > ----------------------------------------------------------

> -----------

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com

> > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

Date:

> 9/12/2008 2:18 PM

> >

>

> -------------------------------------------------------------------

-----------

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date:

9/12/2008 2:18 PM

>

September 12, 2008

You can look into treating srep with some nutrimedix products. The best one for strep (al strains) is samento. You can also use cumanda. These products also treat lyme which a lo of ASD kids have as well....my kiddo has both. I am using from nutrimedix samento, cumanda and burbur. I am also going to order the carnivora.

We have been doing IV chelation every week all year and my sons strep level (ASO titer) went from 267 to 132.....we have also been dumping a lot of aluminum. The strep and aluminum are bound to each other.

Subject: Re: This is Official--My son is a PANDAS Kid!!!To: mb12 valtrex Date: Friday, September 12, 2008, 4:06 PM

So she will not infect anyone unless their immune system is already compromised? ? I want to make sure I understand. The only strange part is she has not had strept throat in her life. We had a terrible case of the stomach flu with diaahrea and throwing up over the fourth of July. Since then abrina will not ride her bike anymore, she will stay on the porch rather than playing with her sisters in the driveway, sleeping on the floor instead of her bed. Very whiny. Always saying Mom come back and I am standing next to her. Crying alot for no reason.I thought it was the yeast back. Her DAN Dr put her back on diflucan and thought adding Li might help. She also recommended putting her back Adrenal Cortex might help. We had run out about 2 weeks before we saw the doctor in August. Now I am wondering if she has Strep. I have not given her any OLE in quite a while. Is there anything else I

should be looking for in her and any other things that may kill it if it is Strep? April> >> > PANDAS, is an abbreviation for Pediatric Autoimmune > Neuropsychiatric Disorders Associated with Streptococcal

Infections. > The term is used to describe a subset of children who have Obsessive > Compulsive Disorder (OCD) and/or tic disorders such as Tourette's > Syndrome, and in whom symptoms worsen following strep. infections > such as "Strep throat" and Scarlet Fever. > > > > The children usually have dramatic, "overnight" onset of symptoms, > including motor or vocal tics, obsessions, and/or compulsions. In > addition to these symptoms, children may also become moody, > irritable or show concerns about separating from parents or loved > ones. This abrupt onset is generally preceeded by a Strep. throat > infection.> > > > PANDAS is similar to that of Rheumatic Fever, an autoimmune > disorder triggered by strep. throat infections. In every bacterial > infection, the body produces antibodies against the

invading > bacteria, and the antibodies help eliminate the bacteria from the > body. However in Rheumatic Fever, the antibodies mistakenly > recognize and "attack" the heart valves, joints, and/or certain > parts of the brain. This phenomenon is called "molecular mimicry", > which means that proteins on the cell wall of the strep. bacteria > are similar in some way to the proteins of the heart valve, joints, > or brain> > > > One part of the brain that is affected in PANDAS is the Basal > Ganglia, which is believed to be responsible for movement and > behavior. Thus, the antibodies interact with the brain to cause tics > and/or OCD> > > > clinicians use 5 diagnostic criteria for the diagnosis of PANDAS > (see below). At the present time the clinical features of the > illness are the only means of determining

whether or not a child > might have PANDAS. > > > > Q. What are the diagnostic criteria for PANDAS? > > > > A. They are: > > > > 1.. Presence of Obsessive-compulsiv e disorder and/or a tic > disorder > > 2.. Pediatric onset of symptoms (age 3 years to puberty) > > 3.. Episodic course of symptom severity > > 4.. Association with group A Beta-hemolytic streptococcal > infection (a positive throat culture for strep. or history of > Scarlet Fever.) > > 5.. Association with neurological abnormalities (motoric > hyperactivity, or adventitious movements, such as choreiform > movements) > > Q. What is an episodic course of symptoms? > > > > A. Children with PANDAS seem to have dramatic ups and downs in > their OCD and/or tic severity. Tics or OCD which are almost always >

present at a relatively consistent level do not represent an > episodic course. Many kids with OCD or tics have good days and bad > days, or even good weeks and bad weeks. However, patients with > PANDAS have a very sudden onset or worsening of their symptoms, > followed by a slow, gradual improvement. If they get another strep. > infection, their symptoms suddenly worsen again. The increased > symptom severity usually persists for at least several weeks, but > may last for several months or longer. The tics or OCD then seem to > gradually fade away, and the children often enjoy a few weeks or > several months without problems. When they have another strep. > throat infection the tics or OCD return just as suddenly and > dramatically as they did previously. > > > > Q. Are there any other symptoms associated with PANDAS episodes? >

> > > A. Yes. Children with PANDAS often experience one or more of the > following symptoms in conjunction with their OCD and/or tics: > > 1.. ADHD symptoms (hyperactivity, inattention, fidgety) > > 2.. Separation anxiety (Child is "clingy" and has difficulty > separating from his/her caregivers. For example, the child may not > want to be in a different room in the house from his/her parents.) > > 3.. Mood changes (irritability, sadness, emotional lability) > > 4.. Sleep disturbance > > 5.. Night- time bed wetting and/or day- time urinary frequency > > 6.. Fine/gross motor changes (e.g. changes in handwriting) > > 7.. Joint pains > > here is another list from another site> > > > Red flags> > The biggest difference between regular OCD and PANDAS OCD is the > sudden onset. OCD usually

develops slowly over weeks, months or even > years; however, PANDAS OCD seems to come out of the blue with > parents saying one day their child woke up a different kid. There > are also other symptoms that help differentiate the 2 types of OCD. > PANDAS OCD is also characterized by:> > > > a.. Choreiform movements: involuntary or irregular writhing > movements of the legs, arm or face> > b.. Presence of tics and/or hyperactivity> > c.. Irritability, temper tantrums, or mood lability> > d.. Nighttime difficulties> > e.. Severe nightmares and new bedtime rituals or fears> > f.. Separation anxiety> > g.. Age regression: going back to younger developmental stage> > h.. New handwriting problems, loss of math skills, sensory > sensitivities> > > > > > Q. My child has had strep. throat

before, and he has tics and/or > OCD. Does that mean he has PANDAS? > > > > A. No. Many children have OCD and/or tics, and almost all school > aged children get strep. throat at some point in their lives. In > fact, the average grade-school student will have 2 - 3 strep. throat > infections each year. PANDAS is considered when there is a very > close relationship between the abrupt onset or worsening or OCD > and/or tics, and a preceding strep. infection. If strep. is found in > conjunction with two or three episodes of OCD/tics, then it may be > that the child has PANDAS> > > > What to do if you suspect your child has PANDAS> > > > a.. Contact your pediatrician. Advocate for your child by being > clear about what you want your doctor to do. In some cases, you may > have to find a sympathetic

doctor who is willing to learn about > PANDAS. The PANDAS Clinic at NIMH may be willing to consult with > doctors.> > b.. Have your pediatrician do a throat culture of group A B-> hemolytic strep. Ask that the specimen be cultured, not just the > rapid test.> > c.. Your doctor may also do a blood test to assess elevated > streptococcal antibodies (Anti-DNAse B and Antistreptolysin titers > (ASO)).> > d.. You and/or your doctor can get information and treatment > guidelines from the National Institute of Mental Health > (www.nih.gov) ; type in PANDAS to access the appropriate link. > > e.. Contact the OC Foundation to help locate an expert in OCD in > your area.> > f.. Have your child retested if there is a resurgence in OCD > symptoms. > > yes my son and best friend both have PANDAS< my son had scarlet >

fever and strep throat and deteriorated what felt like over night > almost 2 years ago, which we have then seen a pattern with 3 other > episodes, which gives him the dx of PANDAS, he gets very OCD over > letter and turns extreamly hyperlexic, his hand writting goes, he > has melt downs over nothings, lots of tantrums, gets mean and will > hurt his sisters for no reason ect. my aspie friend well get really > depressed, and emotional, have melt downs, becomes unfunctionable, > her immune system crashes and she will over night new allergies to > the place she can bearly eat. (she is an adult and it looks a bit > different) she was previously dxed with tourettes which I pushed > her to get tested as I saw it come and go like my son with his > PANDAS flares and sure enough she tested possitive, so now with > treatment OLE (olive leaf

extract) she is tic free as well. she has > the history of tons of strep infection as a child and being on > spectrum as well but wasn't caught till this last year. so her > peices are coming together now.> > > > I hope this helps you some with examples of both a child and an > adult, If I can help you futher please don't hesitate to contact me > agian> > Recovering from Autism is a marathon> > NOT a sprint, but FULLY possible!> > Read more about it on my BLOGs at> > http://www.myspace. com/christelking> > http://foggyrock. com/MyPage/ recoveringwishes> > http://www.facebook

..com/profile. php?id=677063169> > > > This is Official--My son is a PANDAS > Kid!!!> > > > > >

> > I have been on this group for more than 8 months, and my > son has been diagnosed with autism for 7 years, and yesterday was > the first time we were told by DAN officially that our son is > suffering from chronic strep infection, and his is one of the PANDAS > kids. Join the club. I can't imagine that why the heck it takes us 7 > years to figure it out. All these doctors in his life time that we > have been seen, none of them has discovered it, until we saw Dr. > Baptist... My son has never had any GI problems, if he does, just > few minor gas or diaherria in his whole life time, who knows strep > infection, yeast overgrowth, metabism dysfunction has never been > picked up by other docs....Luckily that i have been educated by all > of you from the group for 8 months and well prepared for the bad > news... We pretty much are on

the right diet, and right supps, just > need to boost up volume, add few more supp..... I want to say thank > you to all of you who have been sharing and mentoring me on this > forum... Now, it is official, join the club--PANDAS, and a lot of > work ahead of us... and keep rolling....> > > > Sincerely, > > > > Rei > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> ---------> > size=2 width="100%" align=center> > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: 9/12/2008 2:18 PM> > > > > > > > >

> > > > > ------------ --------- --------- --------- --------- --------- -> -----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM> >> > > > > > > ------------ --------- --------- --------- --------- --------- ------------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM>

September 12, 2008

OLE can kill strep, strep is contagious and it's not always strep throat, you can have strep in other places as well

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

This is Official--My son is a PANDAS > Kid!!!> > > > > > > > I have been on this group for more than 8 months, and my > son has been diagnosed with autism for 7 years, and yesterday was > the first time we were told by DAN officially that our son is > suffering from chronic strep infection, and his is one of the PANDAS > kids. Join the club. I can't imagine that why the heck it takes us 7 > years to figure it out. All these doctors in his life time that we > have been seen, none of them has discovered it, until we saw Dr. > Baptist... My son has never had any GI problems, if he does, just > few minor gas or diaherria in his whole life time, who knows strep > infection, yeast overgrowth, metabism dysfunction has never been > picked up by other docs....Luckily that i have been educated by all > of you from the group for 8 months and well prepared for the bad > news... We pretty much are on the right diet, and right supps, just > need to boost up volume, add few more supp..... I want to say thank > you to all of you who have been sharing and mentoring me on this > forum... Now, it is official, join the club--PANDAS, and a lot of > work ahead of us... and keep rolling....> > > > Sincerely, > > > > Rei > > > > > > > > > > > > ----------------------------------------------------------> ---------> > size=2 width="100%" align=center> > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg.com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > ----------------------------------------------------------> -----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg.com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM> >> > > > > > > ---------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

-

Hi

It's official for us too! My grandson, aged 10, ASD, high lead - has

just been diagnosed with PANDAS and high Candida.

He has had 2 courses of Penicillin for strep throat infection and

also Nystatin for yeast.

Will he always have PANDAS or can it be cured? He began OCD

behaviours last year and is still starting new OCD - tapping his

chest, noises in his throat etc. I personally think some of the

first OCD behaviours have diminished a little but his parents are

getting discouraged. He has been on chelation for 3 years and they

think he is regressing somewhat.

Jill

-- In mb12 valtrex , " Christel King "

wrote:

>

> OLE can kill strep, strep is contagious and it's not always strep

throat, you can have strep in other places as well

>

> Recovering from Autism is a marathon

> NOT a sprint, but FULLY possible!

> Read more about it on my BLOGs at

> http://www.myspace.com/christelking

> http://foggyrock.com/MyPage/recoveringwishes

> http://www.facebook.com/profile.php?id=677063169

>

> This is Official--My son is a PANDAS

> > Kid!!!

> > >

> > > I have been on this group for more than 8 months, and my

> > son has been diagnosed with autism for 7 years, and yesterday

> was

> > the first time we were told by DAN officially that our son is

> > suffering from chronic strep infection, and his is one of the

> PANDAS

> > kids. Join the club. I can't imagine that why the heck it takes

> us 7

> > years to figure it out. All these doctors in his life time that

> we

> > have been seen, none of them has discovered it, until we saw

Dr.

> > Baptist... My son has never had any GI problems, if he does,

> just

> > few minor gas or diaherria in his whole life time, who knows

> strep

> > infection, yeast overgrowth, metabism dysfunction has never

been

> > picked up by other docs....Luckily that i have been educated by

> all

> > of you from the group for 8 months and well prepared for the

bad

> > news... We pretty much are on the right diet, and right supps,

> just

> > need to boost up volume, add few more supp..... I want to say

> thank

> > you to all of you who have been sharing and mentoring me on

this

> > forum... Now, it is official, join the club--PANDAS, and a lot

> of

> > work ahead of us... and keep rolling....

> > >

> > > Sincerely,

> > >

> > > Rei

> > >

> > > ----------------------------------------------------------

> > ---------

> > > size=2 width= " 100% " align=center>

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg.com

> > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> > Date: 9/12/2008 2:18 PM

> > >

> > > ----------------------------------------------------------

> > -----------

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg.com

> > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> Date:

> > 9/12/2008 2:18 PM

> > >

> >

> > ----------------------------------------------------------

> -----------

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com

> > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

Date:

> 9/12/2008 2:18 PM

> >

>

> --------------------------------------------------------------------

----------

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date:

9/12/2008 2:18 PM

>

September 12, 2008

for us 3 rounds of antibotics didn't get it, we had to do OLE 500mgs 3 times a day till gone and make sure to not have ANY probotics with strep lines in it

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

This is Official--My son is a PANDAS > > Kid!!!> > > > > > > > > > > > I have been on this group for more than 8 months, and my > > son has been diagnosed with autism for 7 years, and yesterday > was > > the first time we were told by DAN officially that our son is > > suffering from chronic strep infection, and his is one of the > PANDAS > > kids. Join the club. I can't imagine that why the heck it takes > us 7 > > years to figure it out. All these doctors in his life time that > we > > have been seen, none of them has discovered it, until we saw Dr. > > Baptist... My son has never had any GI problems, if he does, > just > > few minor gas or diaherria in his whole life time, who knows > strep > > infection, yeast overgrowth, metabism dysfunction has never been > > picked up by other docs....Luckily that i have been educated by > all > > of you from the group for 8 months and well prepared for the bad > > news... We pretty much are on the right diet, and right supps, > just > > need to boost up volume, add few more supp..... I want to say > thank > > you to all of you who have been sharing and mentoring me on this > > forum... Now, it is official, join the club--PANDAS, and a lot > of > > work ahead of us... and keep rolling....> > > > > > Sincerely, > > > > > > Rei > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > ---------> > > size=2 width="100%" align=center> > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg.com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > -----------> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg.com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: > > 9/12/2008 2:18 PM> > >> > > > > > > > > > > > > > ----------------------------------------------------------> -----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg.com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM> >> > > > > > > --------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

Christel,

Can I ask which probiotics you have found to have strep lines and how they affected your PANDAS child???

>> OLE can kill strep, strep is contagious and it's not always strep throat, you can have strep in other places as well> >

Recovering from Autism is a marathon> NOT a sprint, but FULLY possible!> Read more about it on my BLOGs at> http://www.myspace. com/christelking> http://foggyrock. com/MyPage/ recoveringwishes> http://www.facebook .com/profile. php?id=677063169> > This is Official--My son is a PANDAS > > Kid!!!> > > > > > > > > > > > I have been on this group for more than 8 months, and my > > son has been diagnosed with autism for 7 years, and yesterday > was > > the first time we were told by DAN officially that our son is > > suffering from chronic strep infection, and his is one of the

> PANDAS > > kids. Join the club. I can't imagine that why the heck it takes > us 7 > > years to figure it out. All these doctors in his life time that > we > > have been seen, none of them has discovered it, until we saw Dr. > > Baptist... My son has never had any GI problems, if he does, > just > > few minor gas or diaherria in his whole life time, who knows > strep > > infection, yeast overgrowth, metabism dysfunction has never been > > picked up by other docs....Luckily that i have been educated by > all > > of you from the group for 8 months and well prepared for the bad > > news... We pretty much are on the right diet, and right supps, > just > > need to boost up volume, add few more supp..... I want to say > thank > > you to all of you who have been sharing and mentoring

me on this > > forum... Now, it is official, join the club--PANDAS, and a lot > of > > work ahead of us... and keep rolling....> > > > > > Sincerely, > > > > > > Rei > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > ---------> > > size=2 width="100%" align=center> > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > > > > ------------

--------- --------- --------- --------- --------- -> > -----------> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: > > 9/12/2008 2:18 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> -----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM>

>> > > > > > > ------------ --------- --------- --------- --------- --------- -----------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

probio gold

threelac

are two I know of, I know there are more that when I see them I'm like oh yeah those to.....for my son they trigger his body to see them like bad strep and make antibodies which is what a PANDAS flare is, so he will regress suddenly with OCD and ODD symptoms, loose his handwritting skills and get wild and uncontrolable

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

This is Official--My son is a PANDAS > > Kid!!!> > > > > > > > > > > > I have been on this group for more than 8 months, and my > > son has been diagnosed with autism for 7 years, and yesterday > was > > the first time we were told by DAN officially that our son is > > suffering from chronic strep infection, and his is one of the > PANDAS > > kids. Join the club. I can't imagine that why the heck it takes > us 7 > > years to figure it out. All these doctors in his life time that > we > > have been seen, none of them has discovered it, until we saw Dr. > > Baptist... My son has never had any GI problems, if he does, > just > > few minor gas or diaherria in his whole life time, who knows > strep > > infection, yeast overgrowth, metabism dysfunction has never been > > picked up by other docs....Luckily that i have been educated by > all > > of you from the group for 8 months and well prepared for the bad > > news... We pretty much are on the right diet, and right supps, > just > > need to boost up volume, add few more supp..... I want to say > thank > > you to all of you who have been sharing and mentoring me on this > > forum... Now, it is official, join the club--PANDAS, and a lot > of > > work ahead of us... and keep rolling....> > > > > > Sincerely, > > > > > > Rei > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > ---------> > > size=2 width="100%" align=center> > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > -----------> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: > > 9/12/2008 2:18 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> -----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM> >> > > > > > > ------------ --------- --------- --------- --------- --------- -----------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

Thanks Christel. I wonder if anyone else who has a child with PANDAS has the same problem with probiotics with strep lines in them?? I've been wondering in the back of my mind about my asperger daughter having PANDAS. We tried Threelac earlier in the summer twice with a bad experience both times. But I attributed that to die-off, and I've been scared of trying it again since. She's on VSL#3 right now, with no problems.

>> OLE can kill strep, strep is contagious and it's not always strep throat, you can have strep in other places as well> >

Recovering from Autism is a marathon> NOT a sprint, but FULLY possible!> Read more about it on my BLOGs at> http://www.myspace. com/christelking> http://foggyrock. com/MyPage/ recoveringwishes> http://www.facebook .com/profile. php?id=677063169> > This is Official--My son is a PANDAS > > Kid!!!> > > > > > > > > > > > I have been on this group for more than 8 months, and my > > son has been diagnosed with autism for 7 years, and yesterday > was > > the first time we were told by DAN officially that our son is > > suffering from chronic strep infection, and his is one of the

> PANDAS > > kids. Join the club. I can't imagine that why the heck it takes > us 7 > > years to figure it out. All these doctors in his life time that > we > > have been seen, none of them has discovered it, until we saw Dr. > > Baptist... My son has never had any GI problems, if he does, > just > > few minor gas or diaherria in his whole life time, who knows > strep > > infection, yeast overgrowth, metabism dysfunction has never been > > picked up by other docs....Luckily that i have been educated by > all > > of you from the group for 8 months and well prepared for the bad > > news... We pretty much are on the right diet, and right supps, > just > > need to boost up volume, add few more supp..... I want to say > thank > > you to all of you who have been sharing and mentoring

me on this > > forum... Now, it is official, join the club--PANDAS, and a lot > of > > work ahead of us... and keep rolling....> > > > > > Sincerely, > > > > > > Rei > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > ---------> > > size=2 width="100%" align=center> > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > > > > ------------

--------- --------- --------- --------- --------- -> > -----------> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: > > 9/12/2008 2:18 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> -----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM>

>> > > > > > > ------------ --------- --------- --------- --------- --------- -----------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

No, PANDAS is *not* contagious. PANDAS is the overproduction of antibodies. The stomach flu, on the other hand, *is* contagious! Cheryl~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!http://astore.amazon.com/grystai-20~Check out my blog: http://www.gryffins-tail.blogspot.com/ So she will not infect anyone unless their immune system is already compromised?? I want to make sure I understand. The only strange part is she has not had strept throat in her life. We had a terrible case of the stomach flu with diaahrea and throwing up over the fourth of July. Since then abrina will not ride her bike anymore, she will stay on the porch rather than playing with her sisters in the driveway, sleeping on the floor instead of her bed. Very whiny. Always saying Mom come back and I am standing next to her. Crying alot for no reason.I thought it was the yeast back. Her DAN Dr put her back on diflucan and thought adding Li might help. She also recommended putting her back Adrenal Cortex might help. We had run out about 2 weeks before we saw the doctor in August. Now I am wondering if she has Strep. I have not given her any OLE in quite a while. Is there anything else I should be looking for in her and any other things that may kill it if it is Strep? April PANDAS, is an abbreviation for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. The term is used to describe a subset of children who have Obsessive Compulsive Disorder (OCD) and/or tic disorders such as Tourette's Syndrome, and in whom symptoms worsen following strep. infections such as "Strep throat" and Scarlet Fever. The children usually have dramatic, "overnight" onset of symptoms, including motor or vocal tics, obsessions, and/or compulsions. In addition to these symptoms, children may also become moody, irritable or show concerns about separating from parents or loved ones. This abrupt onset is generally preceeded by a Strep. throat infection. PANDAS is similar to that of Rheumatic Fever, an autoimmune disorder triggered by strep. throat infections. In every bacterial infection, the body produces antibodies against the invading bacteria, and the antibodies help eliminate the bacteria from the body. However in Rheumatic Fever, the antibodies mistakenly recognize and "attack" the heart valves, joints, and/or certain parts of the brain. This phenomenon is called "molecular mimicry", which means that proteins on the cell wall of the strep. bacteria are similar in some way to the proteins of the heart valve, joints, or brain One part of the brain that is affected in PANDAS is the Basal Ganglia, which is believed to be responsible for movement and behavior. Thus, the antibodies interact with the brain to cause tics and/or OCD clinicians use 5 diagnostic criteria for the diagnosis of PANDAS (see below). At the present time the clinical features of the illness are the only means of determining whether or not a child might have PANDAS. Q. What are the diagnostic criteria for PANDAS? A. They are: 1.. Presence of Obsessive-compulsive disorder and/or a tic disorder 2.. Pediatric onset of symptoms (age 3 years to puberty) 3.. Episodic course of symptom severity 4.. Association with group A Beta-hemolytic streptococcal infection (a positive throat culture for strep. or history of Scarlet Fever.) 5.. Association with neurological abnormalities (motoric hyperactivity, or adventitious movements, such as choreiform movements) Q. What is an episodic course of symptoms? A. Children with PANDAS seem to have dramatic ups and downs in their OCD and/or tic severity. Tics or OCD which are almost always present at a relatively consistent level do not represent an episodic course. Many kids with OCD or tics have good days and bad days, or even good weeks and bad weeks. However, patients with PANDAS have a very sudden onset or worsening of their symptoms, followed by a slow, gradual improvement. If they get another strep. infection, their symptoms suddenly worsen again. The increased symptom severity usually persists for at least several weeks, but may last for several months or longer. The tics or OCD then seem to gradually fade away, and the children often enjoy a few weeks or several months without problems. When they have another strep. throat infection the tics or OCD return just as suddenly and dramatically as they did previously. Q. Are there any other symptoms associated with PANDAS episodes? A. Yes. Children with PANDAS often experience one or more of the following symptoms in conjunction with their OCD and/or tics: 1.. ADHD symptoms (hyperactivity, inattention, fidgety) 2.. Separation anxiety (Child is "clingy" and has difficulty separating from his/her caregivers. For example, the child may not want to be in a different room in the house from his/her parents.) 3.. Mood changes (irritability, sadness, emotional lability) 4.. Sleep disturbance 5.. Night- time bed wetting and/or day- time urinary frequency 6.. Fine/gross motor changes (e.g. changes in handwriting) 7.. Joint pains here is another list from another siteRed flagsThe biggest difference between regular OCD and PANDAS OCD is the sudden onset. OCD usually develops slowly over weeks, months or even years; however, PANDAS OCD seems to come out of the blue with parents saying one day their child woke up a different kid. There are also other symptoms that help differentiate the 2 types of OCD. PANDAS OCD is also characterized by: a.. Choreiform movements: involuntary or irregular writhing movements of the legs, arm or face b.. Presence of tics and/or hyperactivityc.. Irritability, temper tantrums, or mood labilityd.. Nighttime difficultiese.. Severe nightmares and new bedtime rituals or fearsf.. Separation anxietyg.. Age regression: going back to younger developmental stageh.. New handwriting problems, loss of math skills, sensory sensitivities Q. My child has had strep. throat before, and he has tics and/or OCD. Does that mean he has PANDAS? A. No. Many children have OCD and/or tics, and almost all school aged children get strep. throat at some point in their lives. In fact, the average grade-school student will have 2 - 3 strep. throat infections each year. PANDAS is considered when there is a very close relationship between the abrupt onset or worsening or OCD and/or tics, and a preceding strep. infection. If strep. is found in conjunction with two or three episodes of OCD/tics, then it may be that the child has PANDAS What to do if you suspect your child has PANDASa.. Contact your pediatrician. Advocate for your child by being clear about what you want your doctor to do. In some cases, you may have to find a sympathetic doctor who is willing to learn about PANDAS. The PANDAS Clinic at NIMH may be willing to consult with doctors. b.. Have your pediatrician do a throat culture of group A B- hemolytic strep. Ask that the specimen be cultured, not just the rapid test. c.. Your doctor may also do a blood test to assess elevated streptococcal antibodies (Anti-DNAse B and Antistreptolysin titers (ASO)). d.. You and/or your doctor can get information and treatment guidelines from the National Institute of Mental Health (www.nih.gov); type in PANDAS to access the appropriate link. e.. Contact the OC Foundation to help locate an expert in OCD in your area. f.. Have your child retested if there is a resurgence in OCD symptoms. yes my son and best friend both have PANDAS< my son had scarlet fever and strep throat and deteriorated what felt like over night almost 2 years ago, which we have then seen a pattern with 3 other episodes, which gives him the dx of PANDAS, he gets very OCD over letter and turns extreamly hyperlexic, his hand writting goes, he has melt downs over nothings, lots of tantrums, gets mean and will hurt his sisters for no reason ect. my aspie friend well get really depressed, and emotional, have melt downs, becomes unfunctionable, her immune system crashes and she will over night new allergies to the place she can bearly eat. (she is an adult and it looks a bit different) she was previously dxed with tourettes which I pushed her to get tested as I saw it come and go like my son with his PANDAS flares and sure enough she tested possitive, so now with treatment OLE (olive leaf extract) she is tic free as well. she has the history of tons of strep infection as a child and being on spectrum as well but wasn't caught till this last year. so her peices are coming together now. I hope this helps you some with examples of both a child and an adult, If I can help you futher please don't hesitate to contact me agian Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169 This is Official--My son is a PANDAS Kid!!! I have been on this group for more than 8 months, and my son has been diagnosed with autism for 7 years, and yesterday was the first time we were told by DAN officially that our son is suffering from chronic strep infection, and his is one of the PANDAS kids. Join the club. I can't imagine that why the heck it takes us 7 years to figure it out. All these doctors in his life time that we have been seen, none of them has discovered it, until we saw Dr. Baptist... My son has never had any GI problems, if he does, just few minor gas or diaherria in his whole life time, who knows strep infection, yeast overgrowth, metabism dysfunction has never been picked up by other docs....Luckily that i have been educated by all of you from the group for 8 months and well prepared for the bad news... We pretty much are on the right diet, and right supps, just need to boost up volume, add few more supp..... I want to say thank you to all of you who have been sharing and mentoring me on this forum... Now, it is official, join the club--PANDAS, and a lot of work ahead of us... and keep rolling.... Sincerely, Rei ---------------------------------------------------------- --------- size=2 width="100%" align=center> No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM ---------------------------------------------------------- ----------- No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM ------------------------------------------------------------------- ----------- No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM ------------------------------------

September 12, 2008

ALOT of kids have issues with it...Dana atti talks about it as well I think you can find stuff on it on dana'sview.com

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

This is Official--My son is a PANDAS > > Kid!!!> > > > > > > > > > > > I have been on this group for more than 8 months, and my > > son has been diagnosed with autism for 7 years, and yesterday > was > > the first time we were told by DAN officially that our son is > > suffering from chronic strep infection, and his is one of the > PANDAS > > kids. Join the club. I can't imagine that why the heck it takes > us 7 > > years to figure it out. All these doctors in his life time that > we > > have been seen, none of them has discovered it, until we saw Dr. > > Baptist... My son has never had any GI problems, if he does, > just > > few minor gas or diaherria in his whole life time, who knows > strep > > infection, yeast overgrowth, metabism dysfunction has never been > > picked up by other docs....Luckily that i have been educated by > all > > of you from the group for 8 months and well prepared for the bad > > news... We pretty much are on the right diet, and right supps, > just > > need to boost up volume, add few more supp..... I want to say > thank > > you to all of you who have been sharing and mentoring me on this > > forum... Now, it is official, join the club--PANDAS, and a lot > of > > work ahead of us... and keep rolling....> > > > > > Sincerely, > > > > > > Rei > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > ---------> > > size=2 width="100%" align=center> > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > -----------> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: > > 9/12/2008 2:18 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> -----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM> >> > > > > > > ------------ --------- --------- --------- --------- --------- -----------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

ps VSL3 has milk in it. not sure on the strep

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

This is Official--My son is a PANDAS > > Kid!!!> > > > > > > > > > > > I have been on this group for more than 8 months, and my > > son has been diagnosed with autism for 7 years, and yesterday > was > > the first time we were told by DAN officially that our son is > > suffering from chronic strep infection, and his is one of the > PANDAS > > kids. Join the club. I can't imagine that why the heck it takes > us 7 > > years to figure it out. All these doctors in his life time that > we > > have been seen, none of them has discovered it, until we saw Dr. > > Baptist... My son has never had any GI problems, if he does, > just > > few minor gas or diaherria in his whole life time, who knows > strep > > infection, yeast overgrowth, metabism dysfunction has never been > > picked up by other docs....Luckily that i have been educated by > all > > of you from the group for 8 months and well prepared for the bad > > news... We pretty much are on the right diet, and right supps, > just > > need to boost up volume, add few more supp..... I want to say > thank > > you to all of you who have been sharing and mentoring me on this > > forum... Now, it is official, join the club--PANDAS, and a lot > of > > work ahead of us... and keep rolling....> > > > > > Sincerely, > > > > > > Rei > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > ---------> > > size=2 width="100%" align=center> > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > -----------> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: > > 9/12/2008 2:18 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> -----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM> >> > > > > > > ------------ --------- --------- --------- --------- --------- -----------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

We're not CF, but thanks though >> OLE can kill strep, strep is contagious and it's not always strep throat, you can have strep in other places as well> >

Recovering from Autism is a marathon> NOT a sprint, but FULLY possible!> Read more about it on my BLOGs at> http://www.myspace. com/christelking> http://foggyrock. com/MyPage/ recoveringwishes> http://www.facebook .com/profile. php?id=677063169> > This is Official--My son is a PANDAS > > Kid!!!> > > > > > > > > > > > I have been on this group for more than 8 months, and my > > son has been diagnosed with autism for 7 years, and yesterday > was > > the first time we were told by DAN officially that our son is > > suffering from chronic strep infection, and his is one of the

> PANDAS > > kids. Join the club. I can't imagine that why the heck it takes > us 7 > > years to figure it out. All these doctors in his life time that > we > > have been seen, none of them has discovered it, until we saw Dr. > > Baptist... My son has never had any GI problems, if he does, > just > > few minor gas or diaherria in his whole life time, who knows > strep > > infection, yeast overgrowth, metabism dysfunction has never been > > picked up by other docs....Luckily that i have been educated by > all > > of you from the group for 8 months and well prepared for the bad > > news... We pretty much are on the right diet, and right supps, > just > > need to boost up volume, add few more supp..... I want to say > thank > > you to all of you who have been sharing and mentoring

me on this > > forum... Now, it is official, join the club--PANDAS, and a lot > of > > work ahead of us... and keep rolling....> > > > > > Sincerely, > > > > > > Rei > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > ---------> > > size=2 width="100%" align=center> > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > > > > ------------

--------- --------- --------- --------- --------- -> > -----------> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: > > 9/12/2008 2:18 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> -----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM>

>> > > > > > > ------------ --------- --------- --------- --------- --------- -----------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM

September 12, 2008

The PANDAS profile from neurorelief.com tests for specific antibodies that that are known to show brain inflammation. "anti-brain antibodies" These are antibodies present in cases of PANDAS. My son's were 200-400% elevated and no antibiotics or OLE did anything to help. After 4 months of treating this with antibiotics and OLE my son's numbers were worse.

We finally started IVIG. My son will get his 6th IVIG next. We've seen a slow but steady reduction of all the negatives we saw come with PANDAS. We've also seen some nice gains. Last year, before PANDAS, my son was on the brink of something big, so close. But we lost him again to PANDAS. With the changes we've seen lately I can tell he's on the brink of a major change again. I fell really positive for the first time in ages

Kerrie

Also, has anyone done IVIG for PANDAS?Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com.

September 12, 2008

Christel.

My son's autism was a late onset. We started noticing the

symptoms right about the time he was fascinated with alphabets and

numbers. He taught himself to read at 2. This continued till he was

4. Then he got fascinated by buttons/switches. He would switch on

and switch off button forever. That went away a month into OLE. Now

they are back. He's now into numbers. He's reciting his

multiplication tables as he goes up and down the slide. He's playing

hide and seek with numbers etc. The OCD's have changed over the

years since the onset of OCD's. The buttons was the worst of them.

He broke a lot of electronics in our house and others. He used to go

after fire alarms in the hallways.He has stoped the escalators in

manhattan subway. It was pretty intense. That is when I started OLE.

I continue to give him OLE 500 mg in morning and 500 mg at night. I

was giving him therabioc with strep lines in it which I stopped

after reading your email. I have stopped it since past 1 month. I

still don't see any lessening of symptoms. Besides the obivious

symptoms he has severe food allergies, developing new ones everyday.

I have no choice but to give him the allergic food. He's also always

complained of neck hurting. He complains soon after eating specific

foods. I stop giving him those foods. I used to think he's allergic

to them.

Do you have any advices for me. My son is nearly six and is 40 lbs.

I have asked my DAN and he's not given me any specific suggestion. I

have started OLE on my own and have informed him about it. He is

high functioning at home but outside at school he does not talk at

all. He has a lot of anxieties. Even in other people's house he

refuses to talk to me also.

Regards,

Neelam

> > > >

> > > > PANDAS, is an abbreviation for Pediatric Autoimmune

> > > Neuropsychiatric Disorders Associated with Streptococcal

> > Infections.

> > > The term is used to describe a subset of children who have

> > Obsessive

> > > Compulsive Disorder (OCD) and/or tic disorders such as

> > Tourette's

> > > Syndrome, and in whom symptoms worsen following strep.

> > infections

> > > such as " Strep throat " and Scarlet Fever.

> > > >

> > > > The children usually have dramatic, " overnight " onset of

> > symptoms,

> > > including motor or vocal tics, obsessions, and/or compulsions.

> > In

> > > addition to these symptoms, children may also become moody,

> > > irritable or show concerns about separating from parents or

> > loved

> > > ones. This abrupt onset is generally preceeded by a Strep.

> > throat

> > > infection.

> > > >

> > > > PANDAS is similar to that of Rheumatic Fever, an autoimmune

> > > disorder triggered by strep. throat infections. In every

> > bacterial

> > > infection, the body produces antibodies against the invading

> > > bacteria, and the antibodies help eliminate the bacteria from

> > the

> > > body. However in Rheumatic Fever, the antibodies mistakenly

> > > recognize and " attack " the heart valves, joints, and/or

certain

> > > parts of the brain. This phenomenon is called " molecular

> > mimicry " ,

> > > which means that proteins on the cell wall of the strep.

> > bacteria

> > > are similar in some way to the proteins of the heart valve,

> > joints,

> > > or brain

> > > >

> > > > One part of the brain that is affected in PANDAS is the

Basal

> > > Ganglia, which is believed to be responsible for movement and

> > > behavior. Thus, the antibodies interact with the brain to

cause

> > tics

> > > and/or OCD

> > > >

> > > > clinicians use 5 diagnostic criteria for the diagnosis of

> > PANDAS

> > > (see below). At the present time the clinical features of the

> > > illness are the only means of determining whether or not a

> child

> > > might have PANDAS.

> > > >

> > > > Q. What are the diagnostic criteria for PANDAS?

> > > >

> > > > A. They are:

> > > >

> > > > 1.. Presence of Obsessive-compulsiv e disorder and/or a tic

> > > disorder

> > > > 2.. Pediatric onset of symptoms (age 3 years to puberty)

> > > > 3.. Episodic course of symptom severity

> > > > 4.. Association with group A Beta-hemolytic streptococcal

> > > infection (a positive throat culture for strep. or history of

> > > Scarlet Fever.)

> > > > 5.. Association with neurological abnormalities (motoric

> > > hyperactivity, or adventitious movements, such as choreiform

> > > movements)

> > > > Q. What is an episodic course of symptoms?

> > > >

> > > > A. Children with PANDAS seem to have dramatic ups and downs

> in

> > > their OCD and/or tic severity. Tics or OCD which are almost

> > always

> > > present at a relatively consistent level do not represent an

> > > episodic course. Many kids with OCD or tics have good days and

> > bad

> > > days, or even good weeks and bad weeks. However, patients with

> > > PANDAS have a very sudden onset or worsening of their

symptoms,

> > > followed by a slow, gradual improvement. If they get another

> > strep.

> > > infection, their symptoms suddenly worsen again. The increased

> > > symptom severity usually persists for at least several weeks,

> > but

> > > may last for several months or longer. The tics or OCD then

> seem

> > to

> > > gradually fade away, and the children often enjoy a few weeks

> or

> > > several months without problems. When they have another strep.

> > > throat infection the tics or OCD return just as suddenly and

> > > dramatically as they did previously.

> > > >

> > > > Q. Are there any other symptoms associated with PANDAS

> > episodes?

> > > >

> > > > A. Yes. Children with PANDAS often experience one or more of

> > the

> > > following symptoms in conjunction with their OCD and/or tics:

> > > > 1.. ADHD symptoms (hyperactivity, inattention, fidgety)

> > > > 2.. Separation anxiety (Child is " clingy " and has difficulty

> > > separating from his/her caregivers. For example, the child may

> > not

> > > want to be in a different room in the house from his/her

> > parents.)

> > > > 3.. Mood changes (irritability, sadness, emotional lability)

> > > > 4.. Sleep disturbance

> > > > 5.. Night- time bed wetting and/or day- time urinary

> frequency

> > > > 6.. Fine/gross motor changes (e.g. changes in handwriting)

> > > > 7.. Joint pains

> > > > here is another list from another site

> > > >

> > > > Red flags

> > > > The biggest difference between regular OCD and PANDAS OCD is

> > the

> > > sudden onset. OCD usually develops slowly over weeks, months

or

> > even

> > > years; however, PANDAS OCD seems to come out of the blue with

> > > parents saying one day their child woke up a different kid.

> > There

> > > are also other symptoms that help differentiate the 2 types of

> > OCD.

> > > PANDAS OCD is also characterized by:

> > > >

> > > > a.. Choreiform movements: involuntary or irregular writhing

> > > movements of the legs, arm or face

> > > > b.. Presence of tics and/or hyperactivity

> > > > c.. Irritability, temper tantrums, or mood lability

> > > > d.. Nighttime difficulties

> > > > e.. Severe nightmares and new bedtime rituals or fears

> > > > f.. Separation anxiety

> > > > g.. Age regression: going back to younger developmental stage

> > > > h.. New handwriting problems, loss of math skills, sensory

> > > sensitivities

> > > >

> > > > Q. My child has had strep. throat before, and he has tics

> > and/or

> > > OCD. Does that mean he has PANDAS?

> > > >

> > > > A. No. Many children have OCD and/or tics, and almost all

> > school

> > > aged children get strep. throat at some point in their lives.

> In

> > > fact, the average grade-school student will have 2 - 3 strep.

> > throat

> > > infections each year. PANDAS is considered when there is a

very

> > > close relationship between the abrupt onset or worsening or

OCD

> > > and/or tics, and a preceding strep. infection. If strep. is

> > found in

> > > conjunction with two or three episodes of OCD/tics, then it

may

> > be

> > > that the child has PANDAS

> > > >

> > > > What to do if you suspect your child has PANDAS

> > > >

> > > > a.. Contact your pediatrician. Advocate for your child by

> > being

> > > clear about what you want your doctor to do. In some cases,

you

> > may

> > > have to find a sympathetic doctor who is willing to learn

about

> > > PANDAS. The PANDAS Clinic at NIMH may be willing to consult

> with

> > > doctors.

> > > > b.. Have your pediatrician do a throat culture of group A B-

> > > hemolytic strep. Ask that the specimen be cultured, not just

> the

> > > rapid test.

> > > > c.. Your doctor may also do a blood test to assess elevated

> > > streptococcal antibodies (Anti-DNAse B and Antistreptolysin

> > titers

> > > (ASO)).

> > > > d.. You and/or your doctor can get information and treatment

> > > guidelines from the National Institute of Mental Health

> > > (www.nih.gov) ; type in PANDAS to access the appropriate link.

> > > > e.. Contact the OC Foundation to help locate an expert in

OCD

> > in

> > > your area.

> > > > f.. Have your child retested if there is a resurgence in OCD

> > > symptoms.

> > > > yes my son and best friend both have PANDAS< my son had

> > scarlet

> > > fever and strep throat and deteriorated what felt like over

> > night

> > > almost 2 years ago, which we have then seen a pattern with 3

> > other

> > > episodes, which gives him the dx of PANDAS, he gets very OCD

> > over

> > > letter and turns extreamly hyperlexic, his hand writting goes,

> > he

> > > has melt downs over nothings, lots of tantrums, gets mean and

> > will

> > > hurt his sisters for no reason ect. my aspie friend well get

> > really

> > > depressed, and emotional, have melt downs, becomes

> > unfunctionable,

> > > her immune system crashes and she will over night new

allergies

> > to

> > > the place she can bearly eat. (she is an adult and it looks a

> > bit

> > > different) she was previously dxed with tourettes which I

> pushed

> > > her to get tested as I saw it come and go like my son with his

> > > PANDAS flares and sure enough she tested possitive, so now

with

> > > treatment OLE (olive leaf extract) she is tic free as well.

she

> > has

> > > the history of tons of strep infection as a child and being on

> > > spectrum as well but wasn't caught till this last year. so her

> > > peices are coming together now.

> > > >

> > > > I hope this helps you some with examples of both a child and

> > an

> > > adult, If I can help you futher please don't hesitate to

> contact

> > me

> > > agian

> > > > Recovering from Autism is a marathon

> > > > NOT a sprint, but FULLY possible!

> > > > Read more about it on my BLOGs at

> > > > http://www.myspace. com/christelking

> > > > http://foggyrock. com/MyPage/ recoveringwishes

> > > > http://www.facebook .com/profile. php?id=677063169

> > > >

> > > > This is Official--My son is a PANDAS

> > > Kid!!!

> > > >

> > > > I have been on this group for more than 8 months, and my

> > > son has been diagnosed with autism for 7 years, and yesterday

> > was

> > > the first time we were told by DAN officially that our son is

> > > suffering from chronic strep infection, and his is one of the

> > PANDAS

> > > kids. Join the club. I can't imagine that why the heck it

takes

> > us 7

> > > years to figure it out. All these doctors in his life time

that

> > we

> > > have been seen, none of them has discovered it, until we saw

> Dr.

> > > Baptist... My son has never had any GI problems, if he does,

> > just

> > > few minor gas or diaherria in his whole life time, who knows

> > strep

> > > infection, yeast overgrowth, metabism dysfunction has never

> been

> > > picked up by other docs....Luckily that i have been educated

by

> > all

> > > of you from the group for 8 months and well prepared for the

> bad

> > > news... We pretty much are on the right diet, and right supps,

> > just

> > > need to boost up volume, add few more supp..... I want to say

> > thank

> > > you to all of you who have been sharing and mentoring me on

> this

> > > forum... Now, it is official, join the club--PANDAS, and a lot

> > of

> > > work ahead of us... and keep rolling....

> > > >

> > > > Sincerely,

> > > >

> > > > Rei

> > > >

> > > > ------------ --------- --------- --------- --------- --------

- -

> > > ---------

> > > > size=2 width= " 100% " align=center>

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG - http://www.avg. com

> > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> > > Date: 9/12/2008 2:18 PM

> > > >

> > > > ------------ --------- --------- --------- --------- --------

- -

> > > -----------

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG - http://www.avg. com

> > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> > Date:

> > > 9/12/2008 2:18 PM

> > > >

> > >

> > > ------------ --------- --------- --------- --------- ---------

-

> > -----------

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg. com

> > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> Date:

> > 9/12/2008 2:18 PM

> > >

> >

> > ------------ --------- --------- --------- --------- --------- -

> ----------

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg. com

> > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date:

> 9/12/2008 2:18 PM

> >

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg. com

> Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date:

9/12/2008 2:18 PM

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg. com

> Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date:

9/12/2008 2:18 PM

>

September 12, 2008

I am confused and hope someone can clear this up for me. Our

immunologist (who thank God has a lot of knowledge about Autism and

PANDAS from what I can tell) said there is no definitive test for

PANDAS. He said the ASO and Anti DNase titers just tells you that he

has/had strep but doesn't confirm PANDAS. Is that the case? He is

very open so if that isn't correct I would love to know more.

Also, has anyone done IVIG for PANDAS?

>

> You can run ASO and Anti DNase B titers and also run a PANDAS

profile

> through _www.neurorelief.com_ (http://www.neurorelief.com)

>

> Kerrie

>

> In a message dated 9/12/2008 2:32:27 P.M. Eastern Daylight Time,

> milesfunding@... writes:

>

> I know I¢ve asked this before but what is the simple bloodwork to

run to

> check for PANDAS?

>

> **************Psssst...Have you heard the news? There's a new

fashion blog,

> plus the latest fall trends and hair styles at StyleList.com.

> (http://www.stylelist.com/trends?ncid=aolsty00050000000014)

>

September 13, 2008

We didn't have a PANDAS diagnosis officially but my son had a lot of the

symptoms. His

Dnase was 960; ASO normal. We did a course of penicillin that a DAN doctor

prescribed. His

symptoms improved around 2 weeks after we finished the course. I also gave him

adrenal

180, an adrenal cortex supplement, as OCD can sometimes be due to adrenal

weakness.

Another DAN doctor recommended Zithromax if the penicillin didn't work, as

Zithro gets the

gram negative bacs like strep. The dosage is two capsules once a week which is

nice, as you

could still keep up probiotic levels. We have that rx on standby in case.

My son definitely reacted horribly to anything with strep strains in it,

including threelac.

VSL#3 apparently does have one strep strain in it, so I have avoided that one

too.

Interestingly, many dairy products are cultured using strep thermophilus, and my

son did get

quite irritable and annoying after eating yogurt and cheese but that could also

be food

intolerance.

September 13, 2008

Insurance will not cover IVIG for PANDAS. You would have to run a complete immune panel including titers and hope to find something just wrong enough there to warrant coverage.

Kerrie

Ok, thanks! I will let him know.Is the Anti antibodies test something that insurance would recognize as valid? I am just asking because we are trying to get insurance coverage for IVIG and trying to find something that the insurance company will cover.ThanksPsssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com.

September 13, 2008

not really true. one of them DOES show recent exposure the other however shows ANTI ANTIBODIES to strep meaning autoimmune form of it, which is what defines PANDAS as those anti antibodies then attack the wrong things, like the brain, heart ect THINKING IT is strep

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: This is Official--My son is a PANDAS Kid!!!

I am confused and hope someone can clear this up for me. Our immunologist (who thank God has a lot of knowledge about Autism and PANDAS from what I can tell) said there is no definitive test for PANDAS. He said the ASO and Anti DNase titers just tells you that he has/had strep but doesn't confirm PANDAS. Is that the case? He is very open so if that isn't correct I would love to know more.Also, has anyone done IVIG for PANDAS?>> You can run ASO and Anti DNase B titers and also run a PANDAS profile > through _www.neurorelief.com_ (http://www.neurorelief.com) > > > Kerrie> > > > > > I know I¢ve asked this before but what is the simple bloodwork to run to > check for PANDAS? > > > > > > **************Psssst...Have you heard the news? There's a new fashion blog, > plus the latest fall trends and hair styles at StyleList.com. > (http://www.stylelist.com/trends?ncid=aolsty00050000000014)>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM

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Re: This is Official--My son is a PANDAS Kid!!!

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