Re: This is Official--My son is a PANDAS Kid!!!

September 13, 2008

We were told by more than one doctor that IVIG is only covered for about a dozen very specific diagnoses.

Our insurance denied it outright, but for some strange reason when I resubmit the bills after they are paid they reimburse me about $900 out of the $2280 a month that we pay

Kerrie

hum, buie had mentioned it would be even by state insurence about 6 months ago when I mentioned we had a PANDAS dxPsssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com.

September 13, 2008

are you doing probotics then still just with out strep? are you doing GSE to fight any yeast that will flare with doing OLE? I will need more info on what suppliments you are doing, as well as what foods you are eating. have you had him IGE tested? those foods for SURE need to be out, the foods you have left you need to rotate so you don't develope new ones. with SEEING new ones developing to me that suggests high yeast

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

This is Official--My son is a PANDAS > > > Kid!!!> > > > > > > > > > > > > > > > I have been on this group for more than 8 months, and my > > > son has been diagnosed with autism for 7 years, and yesterday > > was > > > the first time we were told by DAN officially that our son is > > > suffering from chronic strep infection, and his is one of the > > PANDAS > > > kids. Join the club. I can't imagine that why the heck it takes > > us 7 > > > years to figure it out. All these doctors in his life time that > > we > > > have been seen, none of them has discovered it, until we saw > Dr. > > > Baptist... My son has never had any GI problems, if he does, > > just > > > few minor gas or diaherria in his whole life time, who knows > > strep > > > infection, yeast overgrowth, metabism dysfunction has never > been > > > picked up by other docs....Luckily that i have been educated by > > all > > > of you from the group for 8 months and well prepared for the > bad > > > news... We pretty much are on the right diet, and right supps, > > just > > > need to boost up volume, add few more supp..... I want to say > > thank > > > you to all of you who have been sharing and mentoring me on > this > > > forum... Now, it is official, join the club--PANDAS, and a lot > > of > > > work ahead of us... and keep rolling....> > > > > > > > Sincerely, > > > > > > > > Rei > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > ---------> > > > size=2 width="100%" align=center> > > > > > > > > No virus found in this incoming message.> > > > Checked by AVG - http://www.avg. com > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > -----------> > > > > > > > > > > > > > > > No virus found in this incoming message.> > > > Checked by AVG - http://www.avg. com > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > Date: > > > 9/12/2008 2:18 PM> > > >> > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- ----------> > -----------> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: > > 9/12/2008 2:18 PM> > >> > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> ----------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM> >> > > > > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM> > > > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: 9/12/2008 2:18 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM

September 13, 2008

Ok, thanks! I will let him know.

Is the Anti antibodies test something that insurance would recognize

as valid? I am just asking because we are trying to get insurance

coverage for IVIG and trying to find something that the insurance

company will cover.

Thanks

> >

> > You can run ASO and Anti DNase B titers and also run a PANDAS

> profile

> > through _www.neurorelief.com_ (http://www.neurorelief.com)

> >

> > Kerrie

> >

> > In a message dated 9/12/2008 2:32:27 P.M. Eastern Daylight

Time,

> > milesfunding@ writes:

> >

> > I know I¢ve asked this before but what is the simple bloodwork

to

> run to

> > check for PANDAS?

> >

> > **************Psssst...Have you heard the news? There's a new

> fashion blog,

> > plus the latest fall trends and hair styles at StyleList.com.

> > (http://www.stylelist.com/trends?ncid=aolsty00050000000014)

> >

>

> --------------------------------------------------------------------

----------

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date:

9/13/2008 12:50 PM

>

September 13, 2008

, we did our anti-body test for finding out whether my son has strep or PANDAS through blood work, it is partial covered by our insurance--blue cross blue shied. we only need to pay for very minimum copay. The blood test was done by Quest Diagnotisic lab.

Sincerely, Rei Branch Manager

Network Funding, LP

6070 Gateway East, Suite 509 El Paso, TX 79905 Phone: Fax: Cell:

Less in Debt. More in Life.

Ask me about debt consolidation loans.

Subject: Re: This is Official--My son is a PANDAS Kid!!!To: mb12 valtrex Date: Saturday, September 13, 2008, 12:04 PM

Ok, thanks! I will let him know.Is the Anti antibodies test something that insurance would recognize as valid? I am just asking because we are trying to get insurance coverage for IVIG and trying to find something that the insurance company will cover.Thanks> >> > You can run ASO and Anti DNase B titers and also run a PANDAS > profile > > through _www.neurorelief. com_ (http://www.neurorel ief.com) > > > > > > Kerrie> > > > > > > > In a message dated 9/12/2008 2:32:27 P.M. Eastern Daylight Time, > > milesfunding@ writes:> > > > I know I¢ve asked this before but what is the simple bloodwork to > run to

> > check for PANDAS? > > > > > > > > > > > > ************ **Psssst. ..Have you heard the news? There's a new > fashion blog, > > plus the latest fall trends and hair styles at StyleList.com. > > (http://www.stylelis t.com/trends? ncid=aolsty00050 000000014)> >> > > > > > > ------------ --------- --------- --------- --------- --------- -----------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM>

September 13, 2008

Yes, it's covered by insurance and your local lab can pull it. Cheryl~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!http://astore.amazon.com/grystai-20~Check out my blog: http://www.gryffins-tail.blogspot.com/ Ok, thanks! I will let him know.Is the Anti antibodies test something that insurance would recognize as valid? I am just asking because we are trying to get insurance coverage for IVIG and trying to find something that the insurance company will cover.Thanks You can run ASO and Anti DNase B titers and also run a PANDAS profile through _www.neurorelief.com_ (http://www.neurorelief.com) KerrieIn a message dated 9/12/2008 2:32:27 P.M. Eastern Daylight Time, milesfunding@ writes:I know I¢ve asked this before but what is the simple bloodwork to run to check for PANDAS? **************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014) -------------------------------------------------------------------- ---------- No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM ------------------------------------

September 13, 2008

PANDAS testing is recongnized by the NIMH which is the nation institue of mental health. they talk about it online. which is the two tests mentioned. not all dr's are very educated about it

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: This is Official--My son is a PANDAS Kid!!!

Ok, thanks! I will let him know.Is the Anti antibodies test something that insurance would recognize as valid? I am just asking because we are trying to get insurance coverage for IVIG and trying to find something that the insurance company will cover.Thanks> >> > You can run ASO and Anti DNase B titers and also run a PANDAS > profile > > through _www.neurorelief.com_ (http://www.neurorelief.com) > > > > > > Kerrie> > > > > > > > In a message dated 9/12/2008 2:32:27 P.M. Eastern Daylight Time, > > milesfunding@ writes:> > > > I know I¢ve asked this before but what is the simple bloodwork to > run to > > check for PANDAS? > > > > > > > > > > > > **************Psssst...Have you heard the news? There's a new > fashion blog, > > plus the latest fall trends and hair styles at StyleList.com. > > (http://www.stylelist.com/trends?ncid=aolsty00050000000014)> >> > > > > > > --------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM

September 13, 2008

hum, buie had mentioned it would be even by state insurence about 6 months ago when I mentioned we had a PANDAS dx

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: Re: This is Official--My son is a PANDAS Kid!!!

Insurance will not cover IVIG for PANDAS. You would have to run a complete immune panel including titers and hope to find something just wrong enough there to warrant coverage.

Kerrie

In a message dated 9/13/2008 1:04:56 P.M. Eastern Daylight Time, kwass01gmail writes:

Ok, thanks! I will let him know.Is the Anti antibodies test something that insurance would recognize as valid? I am just asking because we are trying to get insurance coverage for IVIG and trying to find something that the insurance company will cover.Thanks

Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com.

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM

September 13, 2008

My son was on Keto for about 2 months. He did very badly on it. He

is on the following suppliments

5HTP

Theanine

Zinc

Selenium

Minerall

Ora adrenal

Chromium Picolinate

Vitamin b6

Neem

Tulasi(Holy Basil)

Liv 52

DMG

folinic/folate

mb12 tablets

Vitamnic C

bh4

Cod Liver Oil.

Grapeseed Extract/Oil of Oregano/Garlic ( he showed igg/ige to

garlic and grapefruit.I did not test him for oregano!)

I recently did IGE for him for 55 foods. He turned out to be

allergic to about 45 of them. He was not allergic to Lamb. Whenever

I give him Lamb he complains his neck is hurting. I tried it 3

times. He turned out to be allergic to chicken on the test. He

tolerates chicken ok. I question the validity of the test. His yeast

was quite high when the test was done. I did OAt also on the same

day and that is how I know. His oxalates were also high. He was also

allergic to turkey. These are the 3 meats I tested.

The foods he was not allergic to were mostly spices. I do not know

how to feed him without giving him allergic foods. My strategy is to

avoid the foods which cause his neck to hurt. And give him the rest.

It elimates a lot of food but we do have some foods which I can give

him. I give him XYMOGEN to help him with the allergies.

I also do mb12 shots and chelation with suppositories which I have

recently stopped. They make him a nervous wreck. He has recently

been mainstreamed with an aide and I cannot have him have temper

tantrums in the mainstream classroom. He literally cries for 5-6

hours after chelation. We give him charcoal/magnesium flush and it

helps a little bit but mostly he's a nervous wreck for that weekend.

Regards,

Neelam

> > > > >

> > > > > PANDAS, is an abbreviation for Pediatric Autoimmune

> > > > Neuropsychiatric Disorders Associated with Streptococcal

> > > Infections.

> > > > The term is used to describe a subset of children who have

> > > Obsessive

> > > > Compulsive Disorder (OCD) and/or tic disorders such as

> > > Tourette's

> > > > Syndrome, and in whom symptoms worsen following strep.

> > > infections

> > > > such as " Strep throat " and Scarlet Fever.

> > > > >

> > > > > The children usually have dramatic, " overnight " onset of

> > > symptoms,

> > > > including motor or vocal tics, obsessions, and/or

compulsions.

> > > In

> > > > addition to these symptoms, children may also become moody,

> > > > irritable or show concerns about separating from parents or

> > > loved

> > > > ones. This abrupt onset is generally preceeded by a Strep.

> > > throat

> > > > infection.

> > > > >

> > > > > PANDAS is similar to that of Rheumatic Fever, an

autoimmune

> > > > disorder triggered by strep. throat infections. In every

> > > bacterial

> > > > infection, the body produces antibodies against the invading

> > > > bacteria, and the antibodies help eliminate the bacteria

from

> > > the

> > > > body. However in Rheumatic Fever, the antibodies mistakenly

> > > > recognize and " attack " the heart valves, joints, and/or

> certain

> > > > parts of the brain. This phenomenon is called " molecular

> > > mimicry " ,

> > > > which means that proteins on the cell wall of the strep.

> > > bacteria

> > > > are similar in some way to the proteins of the heart valve,

> > > joints,

> > > > or brain

> > > > >

> > > > > One part of the brain that is affected in PANDAS is the

> Basal

> > > > Ganglia, which is believed to be responsible for movement

and

> > > > behavior. Thus, the antibodies interact with the brain to

> cause

> > > tics

> > > > and/or OCD

> > > > >

> > > > > clinicians use 5 diagnostic criteria for the diagnosis of

> > > PANDAS

> > > > (see below). At the present time the clinical features of

the

> > > > illness are the only means of determining whether or not a

> > child

> > > > might have PANDAS.

> > > > >

> > > > > Q. What are the diagnostic criteria for PANDAS?

> > > > >

> > > > > A. They are:

> > > > >

> > > > > 1.. Presence of Obsessive-compulsiv e disorder and/or a

tic

> > > > disorder

> > > > > 2.. Pediatric onset of symptoms (age 3 years to puberty)

> > > > > 3.. Episodic course of symptom severity

> > > > > 4.. Association with group A Beta-hemolytic streptococcal

> > > > infection (a positive throat culture for strep. or history

of

> > > > Scarlet Fever.)

> > > > > 5.. Association with neurological abnormalities (motoric

> > > > hyperactivity, or adventitious movements, such as choreiform

> > > > movements)

> > > > > Q. What is an episodic course of symptoms?

> > > > >

> > > > > A. Children with PANDAS seem to have dramatic ups and

downs

> > in

> > > > their OCD and/or tic severity. Tics or OCD which are almost

> > > always

> > > > present at a relatively consistent level do not represent an

> > > > episodic course. Many kids with OCD or tics have good days

and

> > > bad

> > > > days, or even good weeks and bad weeks. However, patients

with

> > > > PANDAS have a very sudden onset or worsening of their

> symptoms,

> > > > followed by a slow, gradual improvement. If they get another

> > > strep.

> > > > infection, their symptoms suddenly worsen again. The

increased

> > > > symptom severity usually persists for at least several

weeks,

> > > but

> > > > may last for several months or longer. The tics or OCD then

> > seem

> > > to

> > > > gradually fade away, and the children often enjoy a few

weeks

> > or

> > > > several months without problems. When they have another

strep.

> > > > throat infection the tics or OCD return just as suddenly and

> > > > dramatically as they did previously.

> > > > >

> > > > > Q. Are there any other symptoms associated with PANDAS

> > > episodes?

> > > > >

> > > > > A. Yes. Children with PANDAS often experience one or more

of

> > > the

> > > > following symptoms in conjunction with their OCD and/or

tics:

> > > > > 1.. ADHD symptoms (hyperactivity, inattention, fidgety)

> > > > > 2.. Separation anxiety (Child is " clingy " and has

difficulty

> > > > separating from his/her caregivers. For example, the child

may

> > > not

> > > > want to be in a different room in the house from his/her

> > > parents.)

> > > > > 3.. Mood changes (irritability, sadness, emotional

lability)

> > > > > 4.. Sleep disturbance

> > > > > 5.. Night- time bed wetting and/or day- time urinary

> > frequency

> > > > > 6.. Fine/gross motor changes (e.g. changes in handwriting)

> > > > > 7.. Joint pains

> > > > > here is another list from another site

> > > > >

> > > > > Red flags

> > > > > The biggest difference between regular OCD and PANDAS OCD

is

> > > the

> > > > sudden onset. OCD usually develops slowly over weeks, months

> or

> > > even

> > > > years; however, PANDAS OCD seems to come out of the blue

with

> > > > parents saying one day their child woke up a different kid.

> > > There

> > > > are also other symptoms that help differentiate the 2 types

of

> > > OCD.

> > > > PANDAS OCD is also characterized by:

> > > > >

> > > > > a.. Choreiform movements: involuntary or irregular

writhing

> > > > movements of the legs, arm or face

> > > > > b.. Presence of tics and/or hyperactivity

> > > > > c.. Irritability, temper tantrums, or mood lability

> > > > > d.. Nighttime difficulties

> > > > > e.. Severe nightmares and new bedtime rituals or fears

> > > > > f.. Separation anxiety

> > > > > g.. Age regression: going back to younger developmental

stage

> > > > > h.. New handwriting problems, loss of math skills, sensory

> > > > sensitivities

> > > > >

> > > > > Q. My child has had strep. throat before, and he has tics

> > > and/or

> > > > OCD. Does that mean he has PANDAS?

> > > > >

> > > > > A. No. Many children have OCD and/or tics, and almost all

> > > school

> > > > aged children get strep. throat at some point in their

lives.

> > In

> > > > fact, the average grade-school student will have 2 - 3

strep.

> > > throat

> > > > infections each year. PANDAS is considered when there is a

> very

> > > > close relationship between the abrupt onset or worsening or

> OCD

> > > > and/or tics, and a preceding strep. infection. If strep. is

> > > found in

> > > > conjunction with two or three episodes of OCD/tics, then it

> may

> > > be

> > > > that the child has PANDAS

> > > > >

> > > > > What to do if you suspect your child has PANDAS

> > > > >

> > > > > a.. Contact your pediatrician. Advocate for your child by

> > > being

> > > > clear about what you want your doctor to do. In some cases,

> you

> > > may

> > > > have to find a sympathetic doctor who is willing to learn

> about

> > > > PANDAS. The PANDAS Clinic at NIMH may be willing to consult

> > with

> > > > doctors.

> > > > > b.. Have your pediatrician do a throat culture of group A

B-

> > > > hemolytic strep. Ask that the specimen be cultured, not just

> > the

> > > > rapid test.

> > > > > c.. Your doctor may also do a blood test to assess

elevated

> > > > streptococcal antibodies (Anti-DNAse B and Antistreptolysin

> > > titers

> > > > (ASO)).

> > > > > d.. You and/or your doctor can get information and

treatment

> > > > guidelines from the National Institute of Mental Health

> > > > (www.nih.gov) ; type in PANDAS to access the appropriate

link.

> > > > > e.. Contact the OC Foundation to help locate an expert in

> OCD

> > > in

> > > > your area.

> > > > > f.. Have your child retested if there is a resurgence in

OCD

> > > > symptoms.

> > > > > yes my son and best friend both have PANDAS< my son had

> > > scarlet

> > > > fever and strep throat and deteriorated what felt like over

> > > night

> > > > almost 2 years ago, which we have then seen a pattern with 3

> > > other

> > > > episodes, which gives him the dx of PANDAS, he gets very OCD

> > > over

> > > > letter and turns extreamly hyperlexic, his hand writting

goes,

> > > he

> > > > has melt downs over nothings, lots of tantrums, gets mean

and

> > > will

> > > > hurt his sisters for no reason ect. my aspie friend well get

> > > really

> > > > depressed, and emotional, have melt downs, becomes

> > > unfunctionable,

> > > > her immune system crashes and she will over night new

> allergies

> > > to

> > > > the place she can bearly eat. (she is an adult and it looks

a

> > > bit

> > > > different) she was previously dxed with tourettes which I

> > pushed

> > > > her to get tested as I saw it come and go like my son with

his

> > > > PANDAS flares and sure enough she tested possitive, so now

> with

> > > > treatment OLE (olive leaf extract) she is tic free as well.

> she

> > > has

> > > > the history of tons of strep infection as a child and being

on

> > > > spectrum as well but wasn't caught till this last year. so

her

> > > > peices are coming together now.

> > > > >

> > > > > I hope this helps you some with examples of both a child

and

> > > an

> > > > adult, If I can help you futher please don't hesitate to

> > contact

> > > me

> > > > agian

> > > > > Recovering from Autism is a marathon

> > > > > NOT a sprint, but FULLY possible!

> > > > > Read more about it on my BLOGs at

> > > > > http://www.myspace. com/christelking

> > > > > http://foggyrock. com/MyPage/ recoveringwishes

> > > > > http://www.facebook .com/profile. php?id=677063169

> > > > >

> > > > > This is Official--My son is a

PANDAS

> > > > Kid!!!

> > > > >

> > > > > I have been on this group for more than 8 months, and my

> > > > son has been diagnosed with autism for 7 years, and

yesterday

> > > was

> > > > the first time we were told by DAN officially that our son

is

> > > > suffering from chronic strep infection, and his is one of

the

> > > PANDAS

> > > > kids. Join the club. I can't imagine that why the heck it

> takes

> > > us 7

> > > > years to figure it out. All these doctors in his life time

> that

> > > we

> > > > have been seen, none of them has discovered it, until we saw

> > Dr.

> > > > Baptist... My son has never had any GI problems, if he does,

> > > just

> > > > few minor gas or diaherria in his whole life time, who knows

> > > strep

> > > > infection, yeast overgrowth, metabism dysfunction has never

> > been

> > > > picked up by other docs....Luckily that i have been educated

> by

> > > all

> > > > of you from the group for 8 months and well prepared for the

> > bad

> > > > news... We pretty much are on the right diet, and right

supps,

> > > just

> > > > need to boost up volume, add few more supp..... I want to

say

> > > thank

> > > > you to all of you who have been sharing and mentoring me on

> > this

> > > > forum... Now, it is official, join the club--PANDAS, and a

lot

> > > of

> > > > work ahead of us... and keep rolling....

> > > > >

> > > > > Sincerely,

> > > > >

> > > > > Rei

> > > > >

> > > > > ------------ --------- --------- --------- --------- ------

--

> - -

> > > > ---------

> > > > > size=2 width= " 100% " align=center>

> > > > >

> > > > > No virus found in this incoming message.

> > > > > Checked by AVG - http://www.avg. com

> > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> > > > Date: 9/12/2008 2:18 PM

> > > > >

> > > > > ------------ --------- --------- --------- --------- ------

--

> - -

> > > > -----------

> > > > >

> > > > > No virus found in this incoming message.

> > > > > Checked by AVG - http://www.avg. com

> > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> > > Date:

> > > > 9/12/2008 2:18 PM

> > > > >

> > > >

> > > > ------------ --------- --------- --------- --------- --------

-

> -

> > > -----------

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG - http://www.avg. com

> > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> > Date:

> > > 9/12/2008 2:18 PM

> > > >

> > >

> > > ------------ --------- --------- --------- --------- ---------

-

> > ----------

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg. com

> > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

Date:

> > 9/12/2008 2:18 PM

> > >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg. com

> > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date:

> 9/12/2008 2:18 PM

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg. com

> > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date:

> 9/12/2008 2:18 PM

> >

>

September 13, 2008

In xymogen we use the igG 2000 df formula to heal allergies i

believe.

> > > > > >

> > > > > > PANDAS, is an abbreviation for Pediatric Autoimmune

> > > > > Neuropsychiatric Disorders Associated with Streptococcal

> > > > Infections.

> > > > > The term is used to describe a subset of children who have

> > > > Obsessive

> > > > > Compulsive Disorder (OCD) and/or tic disorders such as

> > > > Tourette's

> > > > > Syndrome, and in whom symptoms worsen following strep.

> > > > infections

> > > > > such as " Strep throat " and Scarlet Fever.

> > > > > >

> > > > > > The children usually have dramatic, " overnight " onset of

> > > > symptoms,

> > > > > including motor or vocal tics, obsessions, and/or

> compulsions.

> > > > In

> > > > > addition to these symptoms, children may also become

moody,

> > > > > irritable or show concerns about separating from parents

or

> > > > loved

> > > > > ones. This abrupt onset is generally preceeded by a Strep.

> > > > throat

> > > > > infection.

> > > > > >

> > > > > > PANDAS is similar to that of Rheumatic Fever, an

> autoimmune

> > > > > disorder triggered by strep. throat infections. In every

> > > > bacterial

> > > > > infection, the body produces antibodies against the

invading

> > > > > bacteria, and the antibodies help eliminate the bacteria

> from

> > > > the

> > > > > body. However in Rheumatic Fever, the antibodies

mistakenly

> > > > > recognize and " attack " the heart valves, joints, and/or

> > certain

> > > > > parts of the brain. This phenomenon is called " molecular

> > > > mimicry " ,

> > > > > which means that proteins on the cell wall of the strep.

> > > > bacteria

> > > > > are similar in some way to the proteins of the heart

valve,

> > > > joints,

> > > > > or brain

> > > > > >

> > > > > > One part of the brain that is affected in PANDAS is the

> > Basal

> > > > > Ganglia, which is believed to be responsible for movement

> and

> > > > > behavior. Thus, the antibodies interact with the brain to

> > cause

> > > > tics

> > > > > and/or OCD

> > > > > >

> > > > > > clinicians use 5 diagnostic criteria for the diagnosis

of

> > > > PANDAS

> > > > > (see below). At the present time the clinical features of

> the

> > > > > illness are the only means of determining whether or not a

> > > child

> > > > > might have PANDAS.

> > > > > >

> > > > > > Q. What are the diagnostic criteria for PANDAS?

> > > > > >

> > > > > > A. They are:

> > > > > >

> > > > > > 1.. Presence of Obsessive-compulsiv e disorder and/or a

> tic

> > > > > disorder

> > > > > > 2.. Pediatric onset of symptoms (age 3 years to puberty)

> > > > > > 3.. Episodic course of symptom severity

> > > > > > 4.. Association with group A Beta-hemolytic

streptococcal

> > > > > infection (a positive throat culture for strep. or history

> of

> > > > > Scarlet Fever.)

> > > > > > 5.. Association with neurological abnormalities (motoric

> > > > > hyperactivity, or adventitious movements, such as

choreiform

> > > > > movements)

> > > > > > Q. What is an episodic course of symptoms?

> > > > > >

> > > > > > A. Children with PANDAS seem to have dramatic ups and

> downs

> > > in

> > > > > their OCD and/or tic severity. Tics or OCD which are

almost

> > > > always

> > > > > present at a relatively consistent level do not represent

an

> > > > > episodic course. Many kids with OCD or tics have good days

> and

> > > > bad

> > > > > days, or even good weeks and bad weeks. However, patients

> with

> > > > > PANDAS have a very sudden onset or worsening of their

> > symptoms,

> > > > > followed by a slow, gradual improvement. If they get

another

> > > > strep.

> > > > > infection, their symptoms suddenly worsen again. The

> increased

> > > > > symptom severity usually persists for at least several

> weeks,

> > > > but

> > > > > may last for several months or longer. The tics or OCD

then

> > > seem

> > > > to

> > > > > gradually fade away, and the children often enjoy a few

> weeks

> > > or

> > > > > several months without problems. When they have another

> strep.

> > > > > throat infection the tics or OCD return just as suddenly

and

> > > > > dramatically as they did previously.

> > > > > >

> > > > > > Q. Are there any other symptoms associated with PANDAS

> > > > episodes?

> > > > > >

> > > > > > A. Yes. Children with PANDAS often experience one or

more

> of

> > > > the

> > > > > following symptoms in conjunction with their OCD and/or

> tics:

> > > > > > 1.. ADHD symptoms (hyperactivity, inattention, fidgety)

> > > > > > 2.. Separation anxiety (Child is " clingy " and has

> difficulty

> > > > > separating from his/her caregivers. For example, the child

> may

> > > > not

> > > > > want to be in a different room in the house from his/her

> > > > parents.)

> > > > > > 3.. Mood changes (irritability, sadness, emotional

> lability)

> > > > > > 4.. Sleep disturbance

> > > > > > 5.. Night- time bed wetting and/or day- time urinary

> > > frequency

> > > > > > 6.. Fine/gross motor changes (e.g. changes in

handwriting)

> > > > > > 7.. Joint pains

> > > > > > here is another list from another site

> > > > > >

> > > > > > Red flags

> > > > > > The biggest difference between regular OCD and PANDAS

OCD

> is

> > > > the

> > > > > sudden onset. OCD usually develops slowly over weeks,

months

> > or

> > > > even

> > > > > years; however, PANDAS OCD seems to come out of the blue

> with

> > > > > parents saying one day their child woke up a different

kid.

> > > > There

> > > > > are also other symptoms that help differentiate the 2

types

> of

> > > > OCD.

> > > > > PANDAS OCD is also characterized by:

> > > > > >

> > > > > > a.. Choreiform movements: involuntary or irregular

> writhing

> > > > > movements of the legs, arm or face

> > > > > > b.. Presence of tics and/or hyperactivity

> > > > > > c.. Irritability, temper tantrums, or mood lability

> > > > > > d.. Nighttime difficulties

> > > > > > e.. Severe nightmares and new bedtime rituals or fears

> > > > > > f.. Separation anxiety

> > > > > > g.. Age regression: going back to younger developmental

> stage

> > > > > > h.. New handwriting problems, loss of math skills,

sensory

> > > > > sensitivities

> > > > > >

> > > > > > Q. My child has had strep. throat before, and he has

tics

> > > > and/or

> > > > > OCD. Does that mean he has PANDAS?

> > > > > >

> > > > > > A. No. Many children have OCD and/or tics, and almost

all

> > > > school

> > > > > aged children get strep. throat at some point in their

> lives.

> > > In

> > > > > fact, the average grade-school student will have 2 - 3

> strep.

> > > > throat

> > > > > infections each year. PANDAS is considered when there is a

> > very

> > > > > close relationship between the abrupt onset or worsening

or

> > OCD

> > > > > and/or tics, and a preceding strep. infection. If strep.

is

> > > > found in

> > > > > conjunction with two or three episodes of OCD/tics, then

it

> > may

> > > > be

> > > > > that the child has PANDAS

> > > > > >

> > > > > > What to do if you suspect your child has PANDAS

> > > > > >

> > > > > > a.. Contact your pediatrician. Advocate for your child

by

> > > > being

> > > > > clear about what you want your doctor to do. In some

cases,

> > you

> > > > may

> > > > > have to find a sympathetic doctor who is willing to learn

> > about

> > > > > PANDAS. The PANDAS Clinic at NIMH may be willing to

consult

> > > with

> > > > > doctors.

> > > > > > b.. Have your pediatrician do a throat culture of group

A

> B-

> > > > > hemolytic strep. Ask that the specimen be cultured, not

just

> > > the

> > > > > rapid test.

> > > > > > c.. Your doctor may also do a blood test to assess

> elevated

> > > > > streptococcal antibodies (Anti-DNAse B and

Antistreptolysin

> > > > titers

> > > > > (ASO)).

> > > > > > d.. You and/or your doctor can get information and

> treatment

> > > > > guidelines from the National Institute of Mental Health

> > > > > (www.nih.gov) ; type in PANDAS to access the appropriate

> link.

> > > > > > e.. Contact the OC Foundation to help locate an expert

in

> > OCD

> > > > in

> > > > > your area.

> > > > > > f.. Have your child retested if there is a resurgence in

> OCD

> > > > > symptoms.

> > > > > > yes my son and best friend both have PANDAS< my son had

> > > > scarlet

> > > > > fever and strep throat and deteriorated what felt like

over

> > > > night

> > > > > almost 2 years ago, which we have then seen a pattern with

3

> > > > other

> > > > > episodes, which gives him the dx of PANDAS, he gets very

OCD

> > > > over

> > > > > letter and turns extreamly hyperlexic, his hand writting

> goes,

> > > > he

> > > > > has melt downs over nothings, lots of tantrums, gets mean

> and

> > > > will

> > > > > hurt his sisters for no reason ect. my aspie friend well

get

> > > > really

> > > > > depressed, and emotional, have melt downs, becomes

> > > > unfunctionable,

> > > > > her immune system crashes and she will over night new

> > allergies

> > > > to

> > > > > the place she can bearly eat. (she is an adult and it

looks

> a

> > > > bit

> > > > > different) she was previously dxed with tourettes which I

> > > pushed

> > > > > her to get tested as I saw it come and go like my son with

> his

> > > > > PANDAS flares and sure enough she tested possitive, so now

> > with

> > > > > treatment OLE (olive leaf extract) she is tic free as

well.

> > she

> > > > has

> > > > > the history of tons of strep infection as a child and

being

> on

> > > > > spectrum as well but wasn't caught till this last year. so

> her

> > > > > peices are coming together now.

> > > > > >

> > > > > > I hope this helps you some with examples of both a child

> and

> > > > an

> > > > > adult, If I can help you futher please don't hesitate to

> > > contact

> > > > me

> > > > > agian

> > > > > > Recovering from Autism is a marathon

> > > > > > NOT a sprint, but FULLY possible!

> > > > > > Read more about it on my BLOGs at

> > > > > > http://www.myspace. com/christelking

> > > > > > http://foggyrock. com/MyPage/ recoveringwishes

> > > > > > http://www.facebook .com/profile. php?id=677063169

> > > > > >

> > > > > > This is Official--My son is a

> PANDAS

> > > > > Kid!!!

> > > > > >

> > > > > > I have been on this group for more than 8 months, and my

> > > > > son has been diagnosed with autism for 7 years, and

> yesterday

> > > > was

> > > > > the first time we were told by DAN officially that our son

> is

> > > > > suffering from chronic strep infection, and his is one of

> the

> > > > PANDAS

> > > > > kids. Join the club. I can't imagine that why the heck it

> > takes

> > > > us 7

> > > > > years to figure it out. All these doctors in his life time

> > that

> > > > we

> > > > > have been seen, none of them has discovered it, until we

saw

> > > Dr.

> > > > > Baptist... My son has never had any GI problems, if he

does,

> > > > just

> > > > > few minor gas or diaherria in his whole life time, who

knows

> > > > strep

> > > > > infection, yeast overgrowth, metabism dysfunction has

never

> > > been

> > > > > picked up by other docs....Luckily that i have been

educated

> > by

> > > > all

> > > > > of you from the group for 8 months and well prepared for

the

> > > bad

> > > > > news... We pretty much are on the right diet, and right

> supps,

> > > > just

> > > > > need to boost up volume, add few more supp..... I want to

> say

> > > > thank

> > > > > you to all of you who have been sharing and mentoring me

on

> > > this

> > > > > forum... Now, it is official, join the club--PANDAS, and a

> lot

> > > > of

> > > > > work ahead of us... and keep rolling....

> > > > > >

> > > > > > Sincerely,

> > > > > >

> > > > > > Rei

> > > > > >

> > > > > > ------------ --------- --------- --------- --------- ----

--

> --

> > - -

> > > > > ---------

> > > > > > size=2 width= " 100% " align=center>

> > > > > >

> > > > > > No virus found in this incoming message.

> > > > > > Checked by AVG - http://www.avg. com

> > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 -

Release

> > > > > Date: 9/12/2008 2:18 PM

> > > > > >

> > > > > > ------------ --------- --------- --------- --------- ----

--

> --

> > - -

> > > > > -----------

> > > > > >

> > > > > > No virus found in this incoming message.

> > > > > > Checked by AVG - http://www.avg. com

> > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 -

Release

> > > > Date:

> > > > > 9/12/2008 2:18 PM

> > > > > >

> > > > >

> > > > > ------------ --------- --------- --------- --------- ------

--

> -

> > -

> > > > -----------

> > > > >

> > > > > No virus found in this incoming message.

> > > > > Checked by AVG - http://www.avg. com

> > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> > > Date:

> > > > 9/12/2008 2:18 PM

> > > > >

> > > >

> > > > ------------ --------- --------- --------- --------- --------

-

> -

> > > ----------

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG - http://www.avg. com

> > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> Date:

> > > 9/12/2008 2:18 PM

> > > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg. com

> > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

Date:

> > 9/12/2008 2:18 PM

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg. com

> > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

Date:

> > 9/12/2008 2:18 PM

> > >

> >

>

September 13, 2008

so are you doing GSE with what showed on the IGE test? how was the test done? was it a RAST< scratch skin, elisa panel??? can you do coconut as that is also a yeast fighter, so are things like caprilic acid and biotin, and high dose probotics. if you type out what you can't have I can help you come up with a plan on what you CAN have. if it's IGG this is this a whole different ball game. so make sure it says IGE and not IGG. (my guess would be it's the later with what you are discribing but that you also have IGE that is acting up as well) what have you done to address the yeast and oxilates? b6 can help with the oxylates.

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

This is Official--My son is a PANDAS > > > > Kid!!!> > > > > > > > > > > > > > > > > > > > I have been on this group for more than 8 months, and my > > > > son has been diagnosed with autism for 7 years, and yesterday > > > was > > > > the first time we were told by DAN officially that our son is > > > > suffering from chronic strep infection, and his is one of the > > > PANDAS > > > > kids. Join the club. I can't imagine that why the heck it > takes > > > us 7 > > > > years to figure it out. All these doctors in his life time > that > > > we > > > > have been seen, none of them has discovered it, until we saw > > Dr. > > > > Baptist... My son has never had any GI problems, if he does, > > > just > > > > few minor gas or diaherria in his whole life time, who knows > > > strep > > > > infection, yeast overgrowth, metabism dysfunction has never > > been > > > > picked up by other docs....Luckily that i have been educated > by > > > all > > > > of you from the group for 8 months and well prepared for the > > bad > > > > news... We pretty much are on the right diet, and right supps, > > > just > > > > need to boost up volume, add few more supp..... I want to say > > > thank > > > > you to all of you who have been sharing and mentoring me on > > this > > > > forum... Now, it is official, join the club--PANDAS, and a lot > > > of > > > > work ahead of us... and keep rolling....> > > > > > > > > > Sincerely, > > > > > > > > > > Rei > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------> - -> > > > ---------> > > > > size=2 width="100%" align=center> > > > > > > > > > > No virus found in this incoming message.> > > > > Checked by AVG - http://www.avg. com > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > > > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------> - -> > > > -----------> > > > > > > > > > > > > > > > > > > > No virus found in this incoming message.> > > > > Checked by AVG - http://www.avg. com > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > > Date: > > > > 9/12/2008 2:18 PM> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- ---------> -> > > -----------> > > > > > > > > > > > > > > > No virus found in this incoming message.> > > > Checked by AVG - http://www.avg. com > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > Date: > > > 9/12/2008 2:18 PM> > > >> > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- ----------> > ----------> > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > > 9/12/2008 2:18 PM> > >> > > > > > > > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM> > > > > > > > > > > > No virus found in this incoming message.> > Checked by AVG - http://www.avg. com > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > 9/12/2008 2:18 PM> >>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM

September 13, 2008

My son was tested for IGE. The IGG was only for 35 odd foods out of

99. The IGE was for 45 of 55 foods.

In vegetables he can have only cabbage,cauliflower.

In grains he can't have anything.

(quinoa,wheat,rice,buckwheat,millet)

In meats he could supposedly have beef and lamb both of which he

complains about neck hurting. I got him tested to

lamb,beef,chicken,turkey.

He can tolerate goat milk ok I think.

He's allergic to coconut both IGE/IGG.

He's allergic to grapefruit both IGG/IGE.

He's allergic to garlic both IGG/IGE. I am not doing much to address

the yeast right now. I do give him grapefruit extract though. I try

giving him low oxalate diet. It's not always possible because I want

to rotate the vegetables.

Regards,

Neelam

> > > > > >

> > > > > > PANDAS, is an abbreviation for Pediatric Autoimmune

> > > > > Neuropsychiatric Disorders Associated with Streptococcal

> > > > Infections.

> > > > > The term is used to describe a subset of children who

have

> > > > Obsessive

> > > > > Compulsive Disorder (OCD) and/or tic disorders such as

> > > > Tourette's

> > > > > Syndrome, and in whom symptoms worsen following strep.

> > > > infections

> > > > > such as " Strep throat " and Scarlet Fever.

> > > > > >

> > > > > > The children usually have dramatic, " overnight " onset

of

> > > > symptoms,

> > > > > including motor or vocal tics, obsessions, and/or

> compulsions.

> > > > In

> > > > > addition to these symptoms, children may also become

moody,

> > > > > irritable or show concerns about separating from parents

or

> > > > loved

> > > > > ones. This abrupt onset is generally preceeded by a

Strep.

> > > > throat

> > > > > infection.

> > > > > >

> > > > > > PANDAS is similar to that of Rheumatic Fever, an

> autoimmune

> > > > > disorder triggered by strep. throat infections. In every

> > > > bacterial

> > > > > infection, the body produces antibodies against the

invading

> > > > > bacteria, and the antibodies help eliminate the bacteria

> from

> > > > the

> > > > > body. However in Rheumatic Fever, the antibodies

mistakenly

> > > > > recognize and " attack " the heart valves, joints, and/or

> > certain

> > > > > parts of the brain. This phenomenon is called " molecular

> > > > mimicry " ,

> > > > > which means that proteins on the cell wall of the strep.

> > > > bacteria

> > > > > are similar in some way to the proteins of the heart

valve,

> > > > joints,

> > > > > or brain

> > > > > >

> > > > > > One part of the brain that is affected in PANDAS is

the

> > Basal

> > > > > Ganglia, which is believed to be responsible for

movement

> and

> > > > > behavior. Thus, the antibodies interact with the brain

to

> > cause

> > > > tics

> > > > > and/or OCD

> > > > > >

> > > > > > clinicians use 5 diagnostic criteria for the diagnosis

of

> > > > PANDAS

> > > > > (see below). At the present time the clinical features

of

> the

> > > > > illness are the only means of determining whether or not

a

> > > child

> > > > > might have PANDAS.

> > > > > >

> > > > > > Q. What are the diagnostic criteria for PANDAS?

> > > > > >

> > > > > > A. They are:

> > > > > >

> > > > > > 1.. Presence of Obsessive-compulsiv e disorder and/or

a

> tic

> > > > > disorder

> > > > > > 2.. Pediatric onset of symptoms (age 3 years to

puberty)

> > > > > > 3.. Episodic course of symptom severity

> > > > > > 4.. Association with group A Beta-hemolytic

streptococcal

> > > > > infection (a positive throat culture for strep. or

history

> of

> > > > > Scarlet Fever.)

> > > > > > 5.. Association with neurological abnormalities

(motoric

> > > > > hyperactivity, or adventitious movements, such as

choreiform

> > > > > movements)

> > > > > > Q. What is an episodic course of symptoms?

> > > > > >

> > > > > > A. Children with PANDAS seem to have dramatic ups and

> downs

> > > in

> > > > > their OCD and/or tic severity. Tics or OCD which are

almost

> > > > always

> > > > > present at a relatively consistent level do not

represent an

> > > > > episodic course. Many kids with OCD or tics have good

days

> and

> > > > bad

> > > > > days, or even good weeks and bad weeks. However,

patients

> with

> > > > > PANDAS have a very sudden onset or worsening of their

> > symptoms,

> > > > > followed by a slow, gradual improvement. If they get

another

> > > > strep.

> > > > > infection, their symptoms suddenly worsen again. The

> increased

> > > > > symptom severity usually persists for at least several

> weeks,

> > > > but

> > > > > may last for several months or longer. The tics or OCD

then

> > > seem

> > > > to

> > > > > gradually fade away, and the children often enjoy a few

> weeks

> > > or

> > > > > several months without problems. When they have another

> strep.

> > > > > throat infection the tics or OCD return just as suddenly

and

> > > > > dramatically as they did previously.

> > > > > >

> > > > > > Q. Are there any other symptoms associated with PANDAS

> > > > episodes?

> > > > > >

> > > > > > A. Yes. Children with PANDAS often experience one or

more

> of

> > > > the

> > > > > following symptoms in conjunction with their OCD and/or

> tics:

> > > > > > 1.. ADHD symptoms (hyperactivity, inattention,

fidgety)

> > > > > > 2.. Separation anxiety (Child is " clingy " and has

> difficulty

> > > > > separating from his/her caregivers. For example, the

child

> may

> > > > not

> > > > > want to be in a different room in the house from his/her

> > > > parents.)

> > > > > > 3.. Mood changes (irritability, sadness, emotional

> lability)

> > > > > > 4.. Sleep disturbance

> > > > > > 5.. Night- time bed wetting and/or day- time urinary

> > > frequency

> > > > > > 6.. Fine/gross motor changes (e.g. changes in

handwriting)

> > > > > > 7.. Joint pains

> > > > > > here is another list from another site

> > > > > >

> > > > > > Red flags

> > > > > > The biggest difference between regular OCD and PANDAS

OCD

> is

> > > > the

> > > > > sudden onset. OCD usually develops slowly over weeks,

months

> > or

> > > > even

> > > > > years; however, PANDAS OCD seems to come out of the blue

> with

> > > > > parents saying one day their child woke up a different

kid.

> > > > There

> > > > > are also other symptoms that help differentiate the 2

types

> of

> > > > OCD.

> > > > > PANDAS OCD is also characterized by:

> > > > > >

> > > > > > a.. Choreiform movements: involuntary or irregular

> writhing

> > > > > movements of the legs, arm or face

> > > > > > b.. Presence of tics and/or hyperactivity

> > > > > > c.. Irritability, temper tantrums, or mood lability

> > > > > > d.. Nighttime difficulties

> > > > > > e.. Severe nightmares and new bedtime rituals or fears

> > > > > > f.. Separation anxiety

> > > > > > g.. Age regression: going back to younger

developmental

> stage

> > > > > > h.. New handwriting problems, loss of math skills,

sensory

> > > > > sensitivities

> > > > > >

> > > > > > Q. My child has had strep. throat before, and he has

tics

> > > > and/or

> > > > > OCD. Does that mean he has PANDAS?

> > > > > >

> > > > > > A. No. Many children have OCD and/or tics, and almost

all

> > > > school

> > > > > aged children get strep. throat at some point in their

> lives.

> > > In

> > > > > fact, the average grade-school student will have 2 - 3

> strep.

> > > > throat

> > > > > infections each year. PANDAS is considered when there is

a

> > very

> > > > > close relationship between the abrupt onset or worsening

or

> > OCD

> > > > > and/or tics, and a preceding strep. infection. If strep.

is

> > > > found in

> > > > > conjunction with two or three episodes of OCD/tics, then

it

> > may

> > > > be

> > > > > that the child has PANDAS

> > > > > >

> > > > > > What to do if you suspect your child has PANDAS

> > > > > >

> > > > > > a.. Contact your pediatrician. Advocate for your child

by

> > > > being

> > > > > clear about what you want your doctor to do. In some

cases,

> > you

> > > > may

> > > > > have to find a sympathetic doctor who is willing to

learn

> > about

> > > > > PANDAS. The PANDAS Clinic at NIMH may be willing to

consult

> > > with

> > > > > doctors.

> > > > > > b.. Have your pediatrician do a throat culture of

group A

> B-

> > > > > hemolytic strep. Ask that the specimen be cultured, not

just

> > > the

> > > > > rapid test.

> > > > > > c.. Your doctor may also do a blood test to assess

> elevated

> > > > > streptococcal antibodies (Anti-DNAse B and

Antistreptolysin

> > > > titers

> > > > > (ASO)).

> > > > > > d.. You and/or your doctor can get information and

> treatment

> > > > > guidelines from the National Institute of Mental Health

> > > > > (www.nih.gov) ; type in PANDAS to access the appropriate

> link.

> > > > > > e.. Contact the OC Foundation to help locate an expert

in

> > OCD

> > > > in

> > > > > your area.

> > > > > > f.. Have your child retested if there is a resurgence

in

> OCD

> > > > > symptoms.

> > > > > > yes my son and best friend both have PANDAS< my son

had

> > > > scarlet

> > > > > fever and strep throat and deteriorated what felt like

over

> > > > night

> > > > > almost 2 years ago, which we have then seen a pattern

with 3

> > > > other

> > > > > episodes, which gives him the dx of PANDAS, he gets very

OCD

> > > > over

> > > > > letter and turns extreamly hyperlexic, his hand writting

> goes,

> > > > he

> > > > > has melt downs over nothings, lots of tantrums, gets

mean

> and

> > > > will

> > > > > hurt his sisters for no reason ect. my aspie friend well

get

> > > > really

> > > > > depressed, and emotional, have melt downs, becomes

> > > > unfunctionable,

> > > > > her immune system crashes and she will over night new

> > allergies

> > > > to

> > > > > the place she can bearly eat. (she is an adult and it

looks

> a

> > > > bit

> > > > > different) she was previously dxed with tourettes which

I

> > > pushed

> > > > > her to get tested as I saw it come and go like my son

with

> his

> > > > > PANDAS flares and sure enough she tested possitive, so

now

> > with

> > > > > treatment OLE (olive leaf extract) she is tic free as

well.

> > she

> > > > has

> > > > > the history of tons of strep infection as a child and

being

> on

> > > > > spectrum as well but wasn't caught till this last year.

so

> her

> > > > > peices are coming together now.

> > > > > >

> > > > > > I hope this helps you some with examples of both a

child

> and

> > > > an

> > > > > adult, If I can help you futher please don't hesitate to

> > > contact

> > > > me

> > > > > agian

> > > > > > Recovering from Autism is a marathon

> > > > > > NOT a sprint, but FULLY possible!

> > > > > > Read more about it on my BLOGs at

> > > > > > http://www.myspace. com/christelking

> > > > > > http://foggyrock. com/MyPage/ recoveringwishes

> > > > > > http://www.facebook .com/profile. php?id=677063169

> > > > > >

> > > > > > This is Official--My son is a

> PANDAS

> > > > > Kid!!!

> > > > > >

> > > > > > I have been on this group for more than 8 months, and

my

> > > > > son has been diagnosed with autism for 7 years, and

> yesterday

> > > > was

> > > > > the first time we were told by DAN officially that our

son

> is

> > > > > suffering from chronic strep infection, and his is one

of

> the

> > > > PANDAS

> > > > > kids. Join the club. I can't imagine that why the heck

it

> > takes

> > > > us 7

> > > > > years to figure it out. All these doctors in his life

time

> > that

> > > > we

> > > > > have been seen, none of them has discovered it, until we

saw

> > > Dr.

> > > > > Baptist... My son has never had any GI problems, if he

does,

> > > > just

> > > > > few minor gas or diaherria in his whole life time, who

knows

> > > > strep

> > > > > infection, yeast overgrowth, metabism dysfunction has

never

> > > been

> > > > > picked up by other docs....Luckily that i have been

educated

> > by

> > > > all

> > > > > of you from the group for 8 months and well prepared for

the

> > > bad

> > > > > news... We pretty much are on the right diet, and right

> supps,

> > > > just

> > > > > need to boost up volume, add few more supp..... I want

to

> say

> > > > thank

> > > > > you to all of you who have been sharing and mentoring me

on

> > > this

> > > > > forum... Now, it is official, join the club--PANDAS, and

a

> lot

> > > > of

> > > > > work ahead of us... and keep rolling....

> > > > > >

> > > > > > Sincerely,

> > > > > >

> > > > > > Rei

> > > > > >

> > > > > > ------------ --------- --------- --------- --------- --

----

> --

> > - -

> > > > > ---------

> > > > > > size=2 width= " 100% " align=center>

> > > > > >

> > > > > > No virus found in this incoming message.

> > > > > > Checked by AVG - http://www.avg. com

> > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 -

Release

> > > > > Date: 9/12/2008 2:18 PM

> > > > > >

> > > > > > ------------ --------- --------- --------- --------- --

----

> --

> > - -

> > > > > -----------

> > > > > >

> > > > > > No virus found in this incoming message.

> > > > > > Checked by AVG - http://www.avg. com

> > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 -

Release

> > > > Date:

> > > > > 9/12/2008 2:18 PM

> > > > > >

> > > > >

> > > > > ------------ --------- --------- --------- --------- ----

----

> -

> > -

> > > > -----------

> > > > >

> > > > > No virus found in this incoming message.

> > > > > Checked by AVG - http://www.avg. com

> > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 -

Release

> > > Date:

> > > > 9/12/2008 2:18 PM

> > > > >

> > > >

> > > > ------------ --------- --------- --------- --------- ------

---

> -

> > > ----------

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG - http://www.avg. com

> > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

> Date:

> > > 9/12/2008 2:18 PM

> > > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg. com

> > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

Date:

> > 9/12/2008 2:18 PM

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg. com

> > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release

Date:

> > 9/12/2008 2:18 PM

> > >

> >

>

> -------------------------------------------------------------------

-----------

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date:

9/13/2008 12:50 PM

>

September 13, 2008

Which is which?

Re: Re: This is Official--My son is a PANDAS Kid!!!

not really true. one of them DOES show recent exposure the other however shows ANTI ANTIBODIES to strep meaning autoimmune form of it, which is what defines PANDAS as those anti antibodies then attack the wrong things, like the brain, heart ect THINKING IT is strep

Recovering from Autism is a marathon

NOT a sprint, but FULLY possible!

Read more about it on my BLOGs at

http://www.myspace.com/christelking

http://foggyrock.com/MyPage/recoveringwishes

http://www.facebook.com/profile.php?id=677063169

Re: This is Official--My son is a PANDAS Kid!!!

I am confused and hope someone can clear this up for me. Our

immunologist (who thank God has a lot of knowledge about Autism and

PANDAS from what I can tell) said there is no definitive test for

PANDAS. He said the ASO and Anti DNase titers just tells you that he

has/had strep but doesn't confirm PANDAS. Is that the case? He is

very open so if that isn't correct I would love to know more.

Also, has anyone done IVIG for PANDAS?

>

> You can run ASO and Anti DNase B titers and also run a PANDAS

profile

> through _www.neurorelief.com_ (http://www.neurorelief.com)

>

> Kerrie

>

> In a message dated 9/12/2008 2:32:27 P.M. Eastern Daylight Time,

> milesfunding@... writes:

>

> I know IÂ¢ve asked thi

s before but what is the simple bloodwork to

run to

> check for PANDAS?

>

> **************Psssst...Have you heard the news? There's a new

fashion blog,

> plus the latest fall trends and hair styles at StyleList.com.

> (http://www.stylelist.com/trends?ncid=aolsty00050000000014)

>

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM

Looking for spoilers and reviews on the new TV season? Get AOL's ultimate guide to fall TV.

September 13, 2008

this doesn't help me, i need to know exactly what he can't have, the list, so I can give you ideas that aren't on there. I would NOT Be doing the GSE. if you give things that show up on the list you will burn out the immune system.

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

This is Official--My son is a > PANDAS > > > > > Kid!!!> > > > > > > > > > > > > > > > > > > > > > > > I have been on this group for more than 8 months, and my > > > > > son has been diagnosed with autism for 7 years, and > yesterday > > > > was > > > > > the first time we were told by DAN officially that our son > is > > > > > suffering from chronic strep infection, and his is one of > the > > > > PANDAS > > > > > kids. Join the club. I can't imagine that why the heck it > > takes > > > > us 7 > > > > > years to figure it out. All these doctors in his life time > > that > > > > we > > > > > have been seen, none of them has discovered it, until we saw > > > Dr. > > > > > Baptist... My son has never had any GI problems, if he does, > > > > just > > > > > few minor gas or diaherria in his whole life time, who knows > > > > strep > > > > > infection, yeast overgrowth, metabism dysfunction has never > > > been > > > > > picked up by other docs....Luckily that i have been educated > > by > > > > all > > > > > of you from the group for 8 months and well prepared for the > > > bad > > > > > news... We pretty much are on the right diet, and right > supps, > > > > just > > > > > need to boost up volume, add few more supp..... I want to > say > > > > thank > > > > > you to all of you who have been sharing and mentoring me on > > > this > > > > > forum... Now, it is official, join the club--PANDAS, and a > lot > > > > of > > > > > work ahead of us... and keep rolling....> > > > > > > > > > > > Sincerely, > > > > > > > > > > > > Rei > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- ------> --> > - -> > > > > ---------> > > > > > size=2 width="100%" align=center> > > > > > > > > > > > > No virus found in this incoming message.> > > > > > Checked by AVG - http://www.avg. com > > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > > > > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- ------> --> > - -> > > > > -----------> > > > > > > > > > > > > > > > > > > > > > > > No virus found in this incoming message.> > > > > > Checked by AVG - http://www.avg. com > > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > > > Date: > > > > > 9/12/2008 2:18 PM> > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------> -> > -> > > > -----------> > > > > > > > > > > > > > > > > > > > No virus found in this incoming message.> > > > > Checked by AVG - http://www.avg. com > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > > Date: > > > > 9/12/2008 2:18 PM> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- ---------> -> > > ----------> > > > > > > > > > > > > > > > No virus found in this incoming message.> > > > Checked by AVG - http://www.avg. com > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: > > > 9/12/2008 2:18 PM> > > >> > > > > > > > > > > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > > 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > > 9/12/2008 2:18 PM> > >> >> > > > > > > ---------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM

September 13, 2008

Neelam,

My son's oxalate level from the test is high, too. Our DAN told us to take Calcium Citrate 1000mg per day, and Magnesium Citrate 500mg ( both have to be in Citrate form), and Lot of fish oil ( omega 3, 6, 9). These three items play the most important role to metablize oxalate. He did not receommend low oxalate diet, it is too harsh to young kid...

Sincerely, Rei Branch Manager

Network Funding, LP

6070 Gateway East, Suite 509 El Paso, TX 79905 Phone: Fax: Cell:

Less in Debt. More in Life.

Ask me about debt consolidation loans.

Subject: Re: This is Official--My son is a PANDAS Kid!!!To: mb12 valtrex Date: Saturday, September 13, 2008, 3:59 PM

My son was tested for IGE. The IGG was only for 35 odd foods out of 99. The IGE was for 45 of 55 foods.In vegetables he can have only cabbage,cauliflower .In grains he can't have anything. (quinoa,wheat, rice,buckwheat, millet)In meats he could supposedly have beef and lamb both of which he complains about neck hurting. I got him tested to lamb,beef,chicken, turkey.He can tolerate goat milk ok I think.He's allergic to coconut both IGE/IGG.He's allergic to grapefruit both IGG/IGE.He's allergic to garlic both IGG/IGE. I am not doing much to address the yeast right now. I do give him grapefruit extract though. I try giving him low oxalate diet. It's not always possible because I want to rotate the vegetables.Regards,Neelam> > > > > >> > > > > > PANDAS, is an abbreviation for Pediatric Autoimmune > > > > > Neuropsychiatric Disorders Associated with Streptococcal > > > > Infections. > > > > > The term is used to describe a subset of children who have > > > > Obsessive > > > > > Compulsive Disorder (OCD) and/or tic disorders such as > > > > Tourette's > > > > > Syndrome, and in whom symptoms worsen following strep. > > > > infections > > > > > such as "Strep throat" and Scarlet Fever. > > > > > > > > > > > > The children usually have dramatic, "overnight" onset of > > > > symptoms, > > > > > including motor or vocal tics, obsessions, and/or > compulsions. >

> > > In > > > > > addition to these symptoms, children may also become moody, > > > > > irritable or show concerns about separating from parents or > > > > loved > > > > > ones. This abrupt onset is generally preceeded by a Strep. > > > > throat > > > > > infection.> > > > > > > > > > > > PANDAS is similar to that of Rheumatic Fever, an > autoimmune > > > > > disorder triggered by strep. throat infections. In every > > > > bacterial > > > > > infection, the body produces antibodies against the invading > > > > > bacteria, and the antibodies help eliminate the bacteria > from > > > > the > > > > > body. However in Rheumatic Fever, the antibodies mistakenly

> > > > > recognize and "attack" the heart valves, joints, and/or > > certain > > > > > parts of the brain. This phenomenon is called "molecular > > > > mimicry", > > > > > which means that proteins on the cell wall of the strep. > > > > bacteria > > > > > are similar in some way to the proteins of the heart valve, > > > > joints, > > > > > or brain> > > > > > > > > > > > One part of the brain that is affected in PANDAS is the > > Basal > > > > > Ganglia, which is believed to be responsible for movement > and > > > > > behavior. Thus, the antibodies interact with the brain to > > cause > > > > tics > > > > > and/or OCD> > > > >

> > > > > > > clinicians use 5 diagnostic criteria for the diagnosis of > > > > PANDAS > > > > > (see below). At the present time the clinical features of > the > > > > > illness are the only means of determining whether or not a > > > child > > > > > might have PANDAS. > > > > > > > > > > > > Q. What are the diagnostic criteria for PANDAS? > > > > > > > > > > > > A. They are: > > > > > > > > > > > > 1.. Presence of Obsessive-compulsiv e disorder and/or a > tic > > > > > disorder > > > > > > 2.. Pediatric onset of symptoms (age 3 years to puberty) > > > > > > 3.. Episodic course of symptom severity > > >

> > > 4.. Association with group A Beta-hemolytic streptococcal > > > > > infection (a positive throat culture for strep. or history > of > > > > > Scarlet Fever.) > > > > > > 5.. Association with neurological abnormalities (motoric > > > > > hyperactivity, or adventitious movements, such as choreiform > > > > > movements) > > > > > > Q. What is an episodic course of symptoms? > > > > > > > > > > > > A. Children with PANDAS seem to have dramatic ups and > downs > > > in > > > > > their OCD and/or tic severity. Tics or OCD which are almost > > > > always > > > > > present at a relatively consistent level do not represent an > > > > > episodic course. Many kids

with OCD or tics have good days > and > > > > bad > > > > > days, or even good weeks and bad weeks. However, patients > with > > > > > PANDAS have a very sudden onset or worsening of their > > symptoms, > > > > > followed by a slow, gradual improvement. If they get another > > > > strep. > > > > > infection, their symptoms suddenly worsen again. The > increased > > > > > symptom severity usually persists for at least several > weeks, > > > > but > > > > > may last for several months or longer. The tics or OCD then > > > seem > > > > to > > > > > gradually fade away, and the children often enjoy a few > weeks > > > or > > > > > several months without

problems. When they have another > strep. > > > > > throat infection the tics or OCD return just as suddenly and > > > > > dramatically as they did previously. > > > > > > > > > > > > Q. Are there any other symptoms associated with PANDAS > > > > episodes? > > > > > > > > > > > > A. Yes. Children with PANDAS often experience one or more > of > > > > the > > > > > following symptoms in conjunction with their OCD and/or > tics: > > > > > > 1.. ADHD symptoms (hyperactivity, inattention, fidgety) > > > > > > 2.. Separation anxiety (Child is "clingy" and has > difficulty > > > > > separating from his/her caregivers. For example, the child > may > > > > not

> > > > > want to be in a different room in the house from his/her > > > > parents.) > > > > > > 3.. Mood changes (irritability, sadness, emotional > lability) > > > > > > 4.. Sleep disturbance > > > > > > 5.. Night- time bed wetting and/or day- time urinary > > > frequency > > > > > > 6.. Fine/gross motor changes (e.g. changes in handwriting) > > > > > > 7.. Joint pains > > > > > > here is another list from another site> > > > > > > > > > > > Red flags> > > > > > The biggest difference between regular OCD and PANDAS OCD > is > > > > the > > > > > sudden onset. OCD usually develops slowly over weeks, months > > or > > > > even

> > > > > years; however, PANDAS OCD seems to come out of the blue > with > > > > > parents saying one day their child woke up a different kid. > > > > There > > > > > are also other symptoms that help differentiate the 2 types > of > > > > OCD. > > > > > PANDAS OCD is also characterized by:> > > > > > > > > > > > a.. Choreiform movements: involuntary or irregular > writhing > > > > > movements of the legs, arm or face> > > > > > b.. Presence of tics and/or hyperactivity> > > > > > c.. Irritability, temper tantrums, or mood lability> > > > > > d.. Nighttime difficulties> > > > > > e.. Severe nightmares and new bedtime rituals or fears> > > > > > f..

Separation anxiety> > > > > > g.. Age regression: going back to younger developmental > stage> > > > > > h.. New handwriting problems, loss of math skills, sensory > > > > > sensitivities> > > > > > > > > > > > > > > > > > Q. My child has had strep. throat before, and he has tics > > > > and/or > > > > > OCD. Does that mean he has PANDAS? > > > > > > > > > > > > A. No. Many children have OCD and/or tics, and almost all > > > > school > > > > > aged children get strep. throat at some point in their > lives. > > > In > > > > > fact, the average grade-school student will have 2 - 3 > strep. > > > > throat > > > > >

infections each year. PANDAS is considered when there is a > > very > > > > > close relationship between the abrupt onset or worsening or > > OCD > > > > > and/or tics, and a preceding strep. infection. If strep. is > > > > found in > > > > > conjunction with two or three episodes of OCD/tics, then it > > may > > > > be > > > > > that the child has PANDAS> > > > > > > > > > > > What to do if you suspect your child has PANDAS> > > > > > > > > > > > a.. Contact your pediatrician. Advocate for your child by > > > > being > > > > > clear about what you want your doctor to do. In some cases, > > you > > > > may > > > > > have to find

a sympathetic doctor who is willing to learn > > about > > > > > PANDAS. The PANDAS Clinic at NIMH may be willing to consult > > > with > > > > > doctors.> > > > > > b.. Have your pediatrician do a throat culture of group A > B-> > > > > hemolytic strep. Ask that the specimen be cultured, not just > > > the > > > > > rapid test.> > > > > > c.. Your doctor may also do a blood test to assess > elevated > > > > > streptococcal antibodies (Anti-DNAse B and Antistreptolysin > > > > titers > > > > > (ASO)).> > > > > > d.. You and/or your doctor can get information and > treatment > > > > > guidelines from the National Institute of Mental Health > > > > >

(www.nih.gov) ; type in PANDAS to access the appropriate > link. > > > > > > e.. Contact the OC Foundation to help locate an expert in > > OCD > > > > in > > > > > your area.> > > > > > f.. Have your child retested if there is a resurgence in > OCD > > > > > symptoms. > > > > > > yes my son and best friend both have PANDAS< my son had > > > > scarlet > > > > > fever and strep throat and deteriorated what felt like over > > > > night > > > > > almost 2 years ago, which we have then seen a pattern with 3 > > > > other > > > > > episodes, which gives him the dx of PANDAS, he gets very OCD > > > > over > > > > > letter and turns extreamly hyperlexic,

his hand writting > goes, > > > > he > > > > > has melt downs over nothings, lots of tantrums, gets mean > and > > > > will > > > > > hurt his sisters for no reason ect. my aspie friend well get > > > > really > > > > > depressed, and emotional, have melt downs, becomes > > > > unfunctionable, > > > > > her immune system crashes and she will over night new > > allergies > > > > to > > > > > the place she can bearly eat. (she is an adult and it looks > a > > > > bit > > > > > different) she was previously dxed with tourettes which I > > > pushed > > > > > her to get tested as I saw it come and go like my son with > his > > > > > PANDAS

flares and sure enough she tested possitive, so now > > with > > > > > treatment OLE (olive leaf extract) she is tic free as well. > > she > > > > has > > > > > the history of tons of strep infection as a child and being > on > > > > > spectrum as well but wasn't caught till this last year. so > her > > > > > peices are coming together now.> > > > > > > > > > > > I hope this helps you some with examples of both a child > and > > > > an > > > > > adult, If I can help you futher please don't hesitate to > > > contact > > > > me > > > > > agian> > > > > > Recovering from Autism is a marathon> > > > > > NOT a sprint, but FULLY

possible!> > > > > > Read more about it on my BLOGs at> > > > > > http://www.myspace. com/christelking> > > > > > http://foggyrock. com/MyPage/ recoveringwishes> > > > > > http://www.facebook .com/profile. php?id=677063169> > > > > > > > > > > > This is Official--My son is a > PANDAS > > > > > Kid!!!> > > > > > > > > > > > > > > > > > > > > > > > I have been on this group for more than 8 months, and my > > > > > son has been diagnosed with autism for 7 years, and > yesterday > > > > was > > > > > the first time we were told by DAN officially that our son > is > > > > > suffering from chronic strep infection, and his is one

of > the > > > > PANDAS > > > > > kids. Join the club. I can't imagine that why the heck it > > takes > > > > us 7 > > > > > years to figure it out. All these doctors in his life time > > that > > > > we > > > > > have been seen, none of them has discovered it, until we saw > > > Dr. > > > > > Baptist... My son has never had any GI problems, if he does, > > > > just > > > > > few minor gas or diaherria in his whole life time, who knows > > > > strep > > > > > infection, yeast overgrowth, metabism dysfunction has never > > > been > > > > > picked up by other docs....Luckily that i have been educated > > by > > > > all > > >

> > of you from the group for 8 months and well prepared for the > > > bad > > > > > news... We pretty much are on the right diet, and right > supps, > > > > just > > > > > need to boost up volume, add few more supp..... I want to > say > > > > thank > > > > > you to all of you who have been sharing and mentoring me on > > > this > > > > > forum... Now, it is official, join the club--PANDAS, and a > lot > > > > of > > > > > work ahead of us... and keep rolling....> > > > > > > > > > > > Sincerely, > > > > > > > > > > > > Rei > > > > > > > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > ------------ --------- --------- --------- --------- ------> --> > - -> > > > > ---------> > > > > > size=2 width="100%" align=center> > > > > > > > > > > > > No virus found in this incoming message.> > > > > > Checked by AVG - http://www.avg. com > > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > > > > Date: 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- ---------

------> --> > - -> > > > > -----------> > > > > > > > > > > > > > > > > > > > > > > > No virus found in this incoming message.> > > > > > Checked by AVG - http://www.avg. com > > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > > > Date: > > > > > 9/12/2008 2:18 PM> > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------> -> > -> > > > -----------> > > > > > > >

> > > > > > > > > > > > No virus found in this incoming message.> > > > > Checked by AVG - http://www.avg. com > > > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > > > Date: > > > > 9/12/2008 2:18 PM> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- ---------> -> > > ----------> > > > > > > > > > > > > > > > No virus found in this incoming message.> > > > Checked by AVG - http://www.avg. com > > >

> Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release > Date: > > > 9/12/2008 2:18 PM> > > >> > > > > > > > > > > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > > 9/12/2008 2:18 PM> > > > > > > > > > > > > > > > > > No virus found in this incoming message.> > > Checked by AVG - http://www.avg. com > > > Version: 8.0.169 / Virus Database: 270.6.21/1669 - Release Date: > > 9/12/2008 2:18 PM> > >>

>> > > > > > > ------------ --------- --------- --------- --------- --------- ------------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.169 / Virus Database: 270.6.21/1670 - Release Date: 9/13/2008 12:50 PM>

September 14, 2008

Interesting about the calcium citrate. We were told similar. If we

miss the cal citrate, my son will have many, many urine accidents in a

day. The Cal citrate keeps this problem away.

Anyone else???

Sign In

Re: This is Official--My son is a PANDAS Kid!!!

Recommended Posts

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Join the conversation

Activity