Our experience with the Glutathione patch so far...

[Guest guest]

My son Josh last night put on his pajama pants on all on his own, came in to my room and said: Sleep!!! This morning he put on his backpack on his back and said bye bye school bus!!! And was pointing to the door!! A while ago at the store he put the safety belt form the cart seat and snapped it on and said Seat belt, so we can be safe!!! (from Dora the explorer) LOL!!! His language is more spontaneous and appropriate... This is a child that I thought he would never talk!!! He is going to be 5 on Oct. 27th. We had been using the cream and had gains too... but not like this!!! I love this patches!!!

Love, Gabby. :0)

http://stemcellforautism.blogspot.com/

[Guest guest]

where did you buy them and did you need a distributor code?

Subject: Our experience with the Glutathione patch so far...To: mb12 valtrex Date: Thursday, September 11, 2008, 9:39 PM

My son Josh last night put on his pajama pants on all on his own, came in to my room and said: Sleep!!! This morning he put on his backpack on his back and said bye bye school bus!!! And was pointing to the door!! A while ago at the store he put the safety belt form the cart seat and snapped it on and said Seat belt, so we can be safe!!! (from Dora the explorer) LOL!!! His language is more spontaneous and appropriate. .. This is a child that I thought he would never talk!!! He is going to be 5 on Oct. 27th. We had been using the cream and had gains too... but not like this!!! I love this patches!!!

Love, Gabby. :0)

http://stemcellfora utism.blogspot. com/

[Guest guest]

Can I have more info. on this. My son is low glutathione since we

started. The patch stays on the belly for how long? How much are

they?

thanks

>

> My son Josh last night put on his pajama pants on all on his own,

came in to my room and said: Sleep!!! This morning he put on his

backpack on his back and said bye bye school bus!!! And was pointing

to the door!! A while ago at the store he put the safety belt form

the cart seat and snapped it on and said Seat belt, so we can be

safe!!! (from Dora the explorer) LOL!!! His language is more

spontaneous and appropriate... This is a child that I thought he

would never talk!!! He is going to be 5 on Oct. 27th. We had been

using the cream and had gains too... but not like this!!! I love this

patches!!!  

>

>

> Love, Gabby. :0)

> http://stemcellforautism.blogspot.com/

>  

>  

>  

>

[Guest guest]

You get them cheaper whether you sell any or not. I am also a waiora distributor to get NCD cheaper. I get it cheaper than the retail customer but never sold a single bottle as a distributor

KerrieSHOP AMAZON HELP PAUL

-If you get them cheaply then you do have a vested interest in selling more of them of coursePsssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com.

[Guest guest]

--

- Hi,

You can go to Lifewave.com/tmish, that's me......or you can

check out some posts from Sue within the past week (sorry, don't have

them) that contain other ways to get the patches. Tons of info on

these has been posted over the past couple weeks...but if you'd like

to start with some specifics feel free to e mail me and I can get you

started with some general info. (ekogurl@...) They are approx.

100.00,(unless you sign up as a " distributor " , which means nothing

more than it saves you money ea. time you order...I did it because I

knew I was going to give this a real try...three months at least) and

if used the full 12 hours per night, which most don't start out at,

last two months. However, for example, you use them six hours every

other night because of detox, they'd last much longer. I think they

are extremely affordable...and I may personally be one of

the " brokest " people in our group (my husband had a renal transplant

about the same time we got the autism diagnosis and between his

antirejection meds and Austin and Jakes PDD and ADHD, we are

struggling). I have to pay 110.00 EVERY month for Austin's Td DMPS,

and hundreds more for his minerals,biocorcuma, PS, DMAE, Omega's,

Multi, melatonin, etc. And, for us, nothing since he was four years

old and we started Mb12 cream and folic acid, has been as obvious in

that it is working. HTH

[Guest guest]

-If you get them cheaply then you do have a vested interest in

selling more of them of course. If they are so good then why don't

the makers give them to the ARI to test them out double-blind placebo

and all that? I may be unpopular in this group for saying this but I

have seen these " wonder " treatments come and go and there is nothing

new here or the DAN! movement would be talking about it and they are

not.

-- In mb12 valtrex , " ekogurl " wrote:

>

> --

> - Hi,

>

> You can go to Lifewave.com/tmish, that's me......or you can

> check out some posts from Sue within the past week (sorry, don't

have

> them) that contain other ways to get the patches. Tons of info on

> these has been posted over the past couple weeks...but if you'd

like

> to start with some specifics feel free to e mail me and I can get

you

> started with some general info. (ekogurl@...) They are approx.

> 100.00,(unless you sign up as a " distributor " , which means nothing

> more than it saves you money ea. time you order...I did it because

I

> knew I was going to give this a real try...three months at least)

and

> if used the full 12 hours per night, which most don't start out at,

> last two months. However, for example, you use them six hours every

> other night because of detox, they'd last much longer. I think they

> are extremely affordable...and I may personally be one of

> the " brokest " people in our group (my husband had a renal

transplant

> about the same time we got the autism diagnosis and between his

> antirejection meds and Austin and Jakes PDD and ADHD, we are

> struggling). I have to pay 110.00 EVERY month for Austin's Td

DMPS,

> and hundreds more for his minerals,biocorcuma, PS, DMAE, Omega's,

> Multi, melatonin, etc. And, for us, nothing since he was four years

> old and we started Mb12 cream and folic acid, has been as obvious

in

> that it is working. HTH

>

[Guest guest]

there are many good and potentially great treatments out there that DAN

hasn't got a clue about.

whether or not DAN uses or knows about anything is no measure of its

effectiveness!!!!!!!! and I cannot stress this strongly enough.

I can understand that someone is dubious about this or any other

treatment, this DAN approval argument is worthless

natasa

> >

> > --

> > - Hi,

> >

> > You can go to Lifewave.com/tmish, that's me......or you can

> > check out some posts from Sue within the past week (sorry, don't

> have

> > them) that contain other ways to get the patches. Tons of info on

> > these has been posted over the past couple weeks...but if you'd

> like

> > to start with some specifics feel free to e mail me and I can get

> you

> > started with some general info. (ekogurl@) They are approx.

> > 100.00,(unless you sign up as a " distributor " , which means nothing

> > more than it saves you money ea. time you order...I did it because

> I

> > knew I was going to give this a real try...three months at least)

> and

> > if used the full 12 hours per night, which most don't start out at,

> > last two months. However, for example, you use them six hours every

> > other night because of detox, they'd last much longer. I think they

> > are extremely affordable...and I may personally be one of

> > the " brokest " people in our group (my husband had a renal

> transplant

> > about the same time we got the autism diagnosis and between his

> > antirejection meds and Austin and Jakes PDD and ADHD, we are

> > struggling). I have to pay 110.00 EVERY month for Austin's Td

> DMPS,

> > and hundreds more for his minerals,biocorcuma, PS, DMAE, Omega's,

> > Multi, melatonin, etc. And, for us, nothing since he was four years

> > old and we started Mb12 cream and folic acid, has been as obvious

> in

> > that it is working. HTH

> >

>

[Guest guest]

What other regulating body do we have then? I have tremendous respect

for the DAN! leaders and without them we would still be accused of

being refrigerator mothers. There are a lot of vunerable parents out

there and I think that the ARI is at the epicentre of the biomedical

approach. You haven't responded to my question about the double blind

studies, NOT the ones created by the manufacturers.

DAN! could never be accused of being mainstream, they put their necks

on the line re; vaccination and mercury and the gut connection, so

why would they ignore such a potentially helpful thing? Glutathione

is an incredibly unstable compound. I have spoken to many compounding

pharmacies who cannot make the stuff without it oxidising. We must

help the children to detox so their bodies are more able to cope with

the demands being made on it. Why don't you email ARI tommorow and

ask them what they know about this product and if it is plausible

that it would increase glutathione and let us all know, all the

cynics like me.

s.com, " natasa778 " wrote:

>

> there are many good and potentially great treatments out there that

DAN

> hasn't got a clue about.

>

> whether or not DAN uses or knows about anything is no measure of its

> effectiveness!!!!!!!! and I cannot stress this strongly enough.

>

> I can understand that someone is dubious about this or any other

> treatment, this DAN approval argument is worthless

>

> natasa

>

>

>

>

> > >

> > > --

> > > - Hi,

> > >

> > > You can go to Lifewave.com/tmish, that's me......or you can

> > > check out some posts from Sue within the past week (sorry, don't

> > have

> > > them) that contain other ways to get the patches. Tons of info

on

> > > these has been posted over the past couple weeks...but if you'd

> > like

> > > to start with some specifics feel free to e mail me and I can

get

> > you

> > > started with some general info. (ekogurl@) They are approx.

> > > 100.00,(unless you sign up as a " distributor " , which means

nothing

> > > more than it saves you money ea. time you order...I did it

because

> > I

> > > knew I was going to give this a real try...three months at

least)

> > and

> > > if used the full 12 hours per night, which most don't start out

at,

> > > last two months. However, for example, you use them six hours

every

> > > other night because of detox, they'd last much longer. I think

they

> > > are extremely affordable...and I may personally be one of

> > > the " brokest " people in our group (my husband had a renal

> > transplant

> > > about the same time we got the autism diagnosis and between his

> > > antirejection meds and Austin and Jakes PDD and ADHD, we are

> > > struggling). I have to pay 110.00 EVERY month for Austin's Td

> > DMPS,

> > > and hundreds more for his minerals,biocorcuma, PS, DMAE,

Omega's,

> > > Multi, melatonin, etc. And, for us, nothing since he was four

years

> > > old and we started Mb12 cream and folic acid, has been as

obvious

> > in

> > > that it is working. HTH

> > >

> >

>

[Guest guest]

I have to agree with Natasa on this one.  DAN isn't the end all be all of biomedical treatment.  We saw Dr. Goldberg for almost 2 years and antivirals have been his thing for over 10 years.  DAN has only recently picked that up in the last few years and there are *still* many DANs that don't do antivirals.  Yasko is also *not* a DAN protocol.  Neither is Pfeiffer.  Neither is Homeopathy.  And yet all of these are effective for some children.  I love DAN but that doesn't mean I don't continue to do my own research.  And the argument of double blind placebo studies doesn't hold water because the same can be said for many DAN treatments.  I'm not advocating any particular product - I'm simply saying that the argument you are presenting is akin to crying for ones own freedom of speech without fighting for someone else's right for the same freedom of speech even if you don't agree with them.  And please note, this was just a comparison - I'm not saying anyone is talking about freedom of speech.  I completely agree that there are a lot of vulnerable parents out there and there are scheisters but we also need to temper that fear of being "had" with our own ability to think for ourselves and research.  No one, ever again, will completely lead my view of medical care. I let doctors do that to me once and now I have a son with autism.  I'm not letting someone else treat me like a sheep in the herd and that includes DAN or any other "regulating body".  We can't throw all the responsibility of learning what's best for our children on to someone else.  At some point, the parent needs to take some responsibility, too.  Parent involvement is critical to understanding our individual children.  My DAN does not control my son's care.  She doesn't live with him every day and know what he does or does not respond to.  She doesn't see him when he is not doing well on something.  She relies on me to tell her what's going on with my son.  What works for my son isn't necessarily going to work for another and what works for another isn't necessarily going to be what my son needs.  I don't adhere to anyone's "rules" of what my son needs or has.  The first time around when I tried DAN I learned this very quickly because it failed to work with him.  That's why I sought out another protocol.  But I never continued to learn about DAN or other protocols.  Now that I'm much more aware of his needs, I'm better able to use DAN effectively with my son and it's going well.  But he would have floundered for a long time if I had remained with DAN in the beginning.I'm probably going to regret getting involved in this debate. Cheryl~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!http://astore.amazon.com/grystai-20~Check out my blog:  http://www.gryffins-tail.blogspot.com/ What other regulating body do we have then? I have tremendous respect for the DAN! leaders and without them we would still be accused of being refrigerator mothers. There are a lot of vunerable parents out there and I think that the ARI is at the epicentre of the biomedical approach. You haven't responded to my question about the double blind studies, NOT the ones created by the manufacturers. DAN! could never be accused of being mainstream, they put their necks on the line re; vaccination and mercury and the gut connection, so why would they ignore such a potentially helpful thing?  Glutathione is an incredibly unstable compound. I have spoken to many compounding pharmacies who cannot make the stuff without it oxidising. We must help the children to detox so their bodies are more able to cope with the demands being made on it. Why don't you  email ARI tommorow and ask them what they know about this product and if it is plausible that it would increase glutathione and let us all know, all the cynics like me.s.com, "natasa778" wrote: there are many good and potentially great treatments out there that  DAN hasn't got a clue about.whether or not DAN uses or knows about anything is no measure of itseffectiveness!!!!!!!! and I cannot stress this strongly enough.I can understand that someone is dubious about this or any othertreatment, this DAN approval argument is worthlessnatasa --- Hi,You can go to Lifewave.com/tmish, that's me......or you cancheck out some posts from Sue within the past week (sorry, don't have them) that contain other ways to get the patches. Tons of info  on these has been posted over the past couple weeks...but if you'd like to start with some specifics feel free to e mail me and I can  get you started with some general info. (ekogurl@) They are approx.100.00,(unless you sign up as a "distributor", which means  nothing more than it saves you money ea. time you order...I did it  because I knew I was going to give this a real try...three months at  least) and if used the full 12 hours per night, which most don't start out  at, last two months. However, for example, you use them six hours  every other night because of detox, they'd last much longer. I think  they are extremely affordable...and I may personally be one ofthe "brokest" people in our group (my husband had a renal transplant about the same time we got the autism diagnosis and between hisantirejection meds and Austin and Jakes PDD and ADHD, we arestruggling).  I have to pay 110.00 EVERY month for Austin's Td DMPS, and hundreds more for his minerals,biocorcuma, PS, DMAE,  Omega's, Multi, melatonin, etc. And, for us, nothing since he was four  years old and we started Mb12 cream and folic acid, has been as  obvious in that it is working. HTH ------------------------------------

[Guest guest]

if there is a DAN that is interested in studying this double blind as well, ARI has funding to do such a thing in scholarship grant form. I would be interested in this as well.

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: Our experience with the Glutathione patch so far...

What other regulating body do we have then? I have tremendous respect for the DAN! leaders and without them we would still be accused of being refrigerator mothers. There are a lot of vunerable parents out there and I think that the ARI is at the epicentre of the biomedical approach. You haven't responded to my question about the double blind studies, NOT the ones created by the manufacturers. DAN! could never be accused of being mainstream, they put their necks on the line re; vaccination and mercury and the gut connection, so why would they ignore such a potentially helpful thing? Glutathione is an incredibly unstable compound. I have spoken to many compounding pharmacies who cannot make the stuff without it oxidising. We must help the children to detox so their bodies are more able to cope with the demands being made on it. Why don't you email ARI tommorow and ask them what they know about this product and if it is plausible that it would increase glutathione and let us all know, all the cynics like me.s.com, "natasa778" wrote:>> there are many good and potentially great treatments out there that DAN> hasn't got a clue about.> > whether or not DAN uses or knows about anything is no measure of its> effectiveness!!!!!!!! and I cannot stress this strongly enough.> > I can understand that someone is dubious about this or any other> treatment, this DAN approval argument is worthless> > natasa> > > > > > >> > > --> > > - Hi,> > >> > > You can go to Lifewave.com/tmish, that's me......or you can> > > check out some posts from Sue within the past week (sorry, don't> > have> > > them) that contain other ways to get the patches. Tons of info on> > > these has been posted over the past couple weeks...but if you'd> > like> > > to start with some specifics feel free to e mail me and I can get> > you> > > started with some general info. (ekogurl@) They are approx.> > > 100.00,(unless you sign up as a "distributor", which means nothing> > > more than it saves you money ea. time you order...I did it because> > I> > > knew I was going to give this a real try...three months at least)> > and> > > if used the full 12 hours per night, which most don't start out at,> > > last two months. However, for example, you use them six hours every> > > other night because of detox, they'd last much longer. I think they> > > are extremely affordable...and I may personally be one of> > > the "brokest" people in our group (my husband had a renal> > transplant> > > about the same time we got the autism diagnosis and between his> > > antirejection meds and Austin and Jakes PDD and ADHD, we are> > > struggling). I have to pay 110.00 EVERY month for Austin's Td> > DMPS,> > > and hundreds more for his minerals,biocorcuma, PS, DMAE, Omega's,> > > Multi, melatonin, etc. And, for us, nothing since he was four years> > > old and we started Mb12 cream and folic acid, has been as obvious> > in> > > that it is working. HTH > > >> >>

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.6.21/1671 - Release Date: 9/14/2008 7:16 AM

[Guest guest]

Sue, Cheryl said it all so nicely so I am not going to elaborate

further.

Natasa

> >>>>

> >>>> --

> >>>> - Hi,

> >>>>

> >>>> You can go to Lifewave.com/tmish, that's me......or you can

> >>>> check out some posts from Sue within the past week (sorry, don't

> >>> have

> >>>> them) that contain other ways to get the patches. Tons of info

> > on

> >>>> these has been posted over the past couple weeks...but if you'd

> >>> like

> >>>> to start with some specifics feel free to e mail me and I can

> > get

> >>> you

> >>>> started with some general info. (ekogurl@) They are approx.

> >>>> 100.00,(unless you sign up as a " distributor " , which means

> > nothing

> >>>> more than it saves you money ea. time you order...I did it

> > because

> >>> I

> >>>> knew I was going to give this a real try...three months at

> > least)

> >>> and

> >>>> if used the full 12 hours per night, which most don't start out

> > at,

> >>>> last two months. However, for example, you use them six hours

> > every

> >>>> other night because of detox, they'd last much longer. I think

> > they

> >>>> are extremely affordable...and I may personally be one of

> >>>> the " brokest " people in our group (my husband had a renal

> >>> transplant

> >>>> about the same time we got the autism diagnosis and between his

> >>>> antirejection meds and Austin and Jakes PDD and ADHD, we are

> >>>> struggling). I have to pay 110.00 EVERY month for Austin's Td

> >>> DMPS,

> >>>> and hundreds more for his minerals,biocorcuma, PS, DMAE,

> > Omega's,

> >>>> Multi, melatonin, etc. And, for us, nothing since he was four

> > years

> >>>> old and we started Mb12 cream and folic acid, has been as

> > obvious

> >>> in

> >>>> that it is working. HTH

> >>>>

> >>>

> >>

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

yasko has been doing DAN education for the last year through autism one, and is brain storm with them, same with homeopathy, all that is UNDER The umberella of DAN. not all DAN's are created equal and are open to ALL things biomedical., there is a DAN in our state who ONLY does homeopathy, another that is an allergist background wise who will do and has done natural antivirals and script ones for over 30 year due to his background in immunology....to each there cup of tea, that is why there areas of interest are on a check list with DAN so you can find one that lines up to your thinking and your childs needs of treatment. yet still all DAN.

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: Re: Our experience with the Glutathione patch so far...

I have to agree with Natasa on this one. DAN isn't the end all be all of biomedical treatment. We saw Dr. Goldberg for almost 2 years and antivirals have been his thing for over 10 years. DAN has only recently picked that up in the last few years and there are *still* many DANs that don't do antivirals. Yasko is also *not* a DAN protocol. Neither is Pfeiffer. Neither is Homeopathy. And yet all of these are effective for some children. I love DAN but that doesn't mean I don't continue to do my own research. And the argument of double blind placebo studies doesn't hold water because the same can be said for many DAN treatments. I'm not advocating any particular product - I'm simply saying that the argument you are presenting is akin to crying for ones own freedom of speech without fighting for someone else's right for the same freedom of speech even if you don't agree with them. And please note, this was just a comparison - I'm not saying anyone is talking about freedom of speech. I completely agree that there are a lot of vulnerable parents out there and there are scheisters but we also need to temper that fear of being "had" with our own ability to think for ourselves and research. No one, ever again, will completely lead my view of medical care. I let doctors do that to me once and now I have a son with autism. I'm not letting someone else treat me like a sheep in the herd and that includes DAN or any other "regulating body". We can't throw all the responsibility of learning what's best for our children on to someone else. At some point, the parent needs to take some responsibility, too. Parent involvement is critical to understanding our individual children. My DAN does not control my son's care. She doesn't live with him every day and know what he does or does not respond to. She doesn't see him when he is not doing well on something. She relies on me to tell her what's going on with my son. What works for my son isn't necessarily going to work for another and what works for another isn't necessarily going to be what my son needs. I don't adhere to anyone's "rules" of what my son needs or has. The first time around when I tried DAN I learned this very quickly because it failed to work with him. That's why I sought out another protocol. But I never continued to learn about DAN or other protocols. Now that I'm much more aware of his needs, I'm better able to use DAN effectively with my son and it's going well. But he would have floundered for a long time if I had remained with DAN in the beginning.

I'm probably going to regret getting involved in this debate.

Cheryl

~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!

http://astore.amazon.com/grystai-20

~Check out my blog: http://www.gryffins-tail.blogspot.com/

What other regulating body do we have then? I have tremendous respect

for the DAN! leaders and without them we would still be accused of

being refrigerator mothers. There are a lot of vunerable parents out

there and I think that the ARI is at the epicentre of the biomedical

approach. You haven't responded to my question about the double blind

studies, NOT the ones created by the manufacturers.

DAN! could never be accused of being mainstream, they put their necks

on the line re; vaccination and mercury and the gut connection, so

why would they ignore such a potentially helpful thing? Glutathione

is an incredibly unstable compound. I have spoken to many compounding

pharmacies who cannot make the stuff without it oxidising. We must

help the children to detox so their bodies are more able to cope with

the demands being made on it. Why don't you email ARI tommorow and

ask them what they know about this product and if it is plausible

that it would increase glutathione and let us all know, all the

cynics like me.

s.com, "natasa778" wrote:

there are many good and potentially great treatments out there that

DAN

hasn't got a clue about.

whether or not DAN uses or knows about anything is no measure of its

effectiveness!!!!!!!! and I cannot stress this strongly enough.

I can understand that someone is dubious about this or any other

treatment, this DAN approval argument is worthless

natasa

--

- Hi,

You can go to Lifewave.com/tmish, that's me......or you can

check out some posts from Sue within the past week (sorry, don't

have

them) that contain other ways to get the patches. Tons of info

on

these has been posted over the past couple weeks...but if you'd

like

to start with some specifics feel free to e mail me and I can

get

you

started with some general info. (ekogurl@) They are approx.

100.00,(unless you sign up as a "distributor", which means

nothing

more than it saves you money ea. time you order...I did it

because

I

knew I was going to give this a real try...three months at

least)

and

if used the full 12 hours per night, which most don't start out

at,

last two months. However, for example, you use them six hours

every

other night because of detox, they'd last much longer. I think

they

are extremely affordable...and I may personally be one of

the "brokest" people in our group (my husband had a renal

transplant

about the same time we got the autism diagnosis and between his

antirejection meds and Austin and Jakes PDD and ADHD, we are

struggling). I have to pay 110.00 EVERY month for Austin's Td

DMPS,

and hundreds more for his minerals,biocorcuma, PS, DMAE,

Omega's,

Multi, melatonin, etc. And, for us, nothing since he was four

years

old and we started Mb12 cream and folic acid, has been as

obvious

in

that it is working. HTH

------------------------------------

[Guest guest]

It may all be DAN *now* but it hasn't always been and that's my point.  Dr. Baptist may have been doing antivirals for 30 years but that doesn't mean that DAN (the organization) subscribed to it 30 years ago.  Not all homeopaths are DANs and not all DANs are homeopaths.  Giving someone or some organization full control over how you choose to treat doesn't leave much room for learning about something on your own.  I remember a time when DAN thought Yasko was a nutcase and a scheister herself.  It wasn't that long ago. Cheryl~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!http://astore.amazon.com/grystai-20~Check out my blog:  http://www.gryffins-tail.blogspot.com/ yasko has been doing DAN education for the last year through autism one, and is brain storm with them, same with homeopathy, all that is UNDER The umberella of DAN.  not all DAN's are created equal and are open to ALL things biomedical.,  there is a DAN in our state who ONLY does homeopathy, another that is an allergist background wise who will do and has done natural antivirals and script ones for over 30 year due to his background in immunology....to each there cup of tea, that is why there areas of interest are on a check list with DAN so you can find one that lines up to your thinking and your childs needs of treatment.  yet still all DAN.   Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169 Re: Re: Our experience with the Glutathione patch so far... I have to agree with Natasa on this one.  DAN isn't the end all be all of biomedical treatment.  We saw Dr. Goldberg for almost 2 years and antivirals have been his thing for over 10 years.  DAN has only recently picked that up in the last few years and there are *still* many DANs that don't do antivirals.  Yasko is also *not* a DAN protocol.  Neither is Pfeiffer.  Neither is Homeopathy.  And yet all of these are effective for some children.  I love DAN but that doesn't mean I don't continue to do my own research.  And the argument of double blind placebo studies doesn't hold water because the same can be said for many DAN treatments.  I'm not advocating any particular product - I'm simply saying that the argument you are presenting is akin to crying for ones own freedom of speech without fighting for someone else's right for the same freedom of speech even if you don't agree with them.  And please note, this was just a comparison - I'm not saying anyone is talking about freedom of speech.  I completely agree that there are a lot of vulnerable parents out there and there are scheisters but we also need to temper that fear of being "had" with our own ability to think for ourselves and research.  No one, ever again, will completely lead my view of medical care. I let doctors do that to me once and now I have a son with autism.  I'm not letting someone else treat me like a sheep in the herd and that includes DAN or any other "regulating body".  We can't throw all the responsibility of learning what's best for our children on to someone else.  At some point, the parent needs to take some responsibility, too.  Parent involvement is critical to understanding our individual children.  My DAN does not control my son's care.  She doesn't live with him every day and know what he does or does not respond to.  She doesn't see him when he is not doing well on something.  She relies on me to tell her what's going on with my son.  What works for my son isn't necessarily going to work for another and what works for another isn't necessarily going to be what my son needs.  I don't adhere to anyone's "rules" of what my son needs or has.  The first time around when I tried DAN I learned this very quickly because it failed to work with him.  That's why I sought out another protocol.  But I never continued to learn about DAN or other protocols.  Now that I'm much more aware of his needs, I'm better able to use DAN effectively with my son and it's going well.  But he would have floundered for a long time if I had remained with DAN in the beginning. I'm probably going to regret getting involved in this debate. Cheryl ~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more! http://astore.amazon.com/grystai-20 ~Check out my blog:  http://www.gryffins-tail.blogspot.com/ What other regulating body do we have then? I have tremendous respect  for the DAN! leaders and without them we would still be accused of  being refrigerator mothers. There are a lot of vunerable parents out  there and I think that the ARI is at the epicentre of the biomedical  approach. You haven't responded to my question about the double blind  studies, NOT the ones created by the manufacturers.  DAN! could never be accused of being mainstream, they put their necks  on the line re; vaccination and mercury and the gut connection, so  why would they ignore such a potentially helpful thing?  Glutathione  is an incredibly unstable compound. I have spoken to many compounding  pharmacies who cannot make the stuff without it oxidising. We must  help the children to detox so their bodies are more able to cope with  the demands being made on it. Why don't you  email ARI tommorow and  ask them what they know about this product and if it is plausible  that it would increase glutathione and let us all know, all the  cynics like me. s.com, "natasa778" wrote: there are many good and potentially great treatments out there that  DAN hasn't got a clue about. whether or not DAN uses or knows about anything is no measure of its effectiveness!!!!!!!! and I cannot stress this strongly enough. I can understand that someone is dubious about this or any other treatment, this DAN approval argument is worthless natasa -- - Hi, You can go to Lifewave.com/tmish, that's me......or you can check out some posts from Sue within the past week (sorry, don't have them) that contain other ways to get the patches. Tons of info  on these has been posted over the past couple weeks...but if you'd like to start with some specifics feel free to e mail me and I can  get you started with some general info. (ekogurl@) They are approx. 100.00,(unless you sign up as a "distributor", which means  nothing more than it saves you money ea. time you order...I did it  because I knew I was going to give this a real try...three months at  least) and if used the full 12 hours per night, which most don't start out  at, last two months. However, for example, you use them six hours  every other night because of detox, they'd last much longer. I think  they are extremely affordable...and I may personally be one of the "brokest" people in our group (my husband had a renal transplant about the same time we got the autism diagnosis and between his antirejection meds and Austin and Jakes PDD and ADHD, we are struggling).  I have to pay 110.00 EVERY month for Austin's Td DMPS, and hundreds more for his minerals,biocorcuma, PS, DMAE,  Omega's, Multi, melatonin, etc. And, for us, nothing since he was four  years old and we started Mb12 cream and folic acid, has been as  obvious in that it is working. HTH ------------------------------------

[Guest guest]

I remember a time when DAN thought Yasko was a nutcase and a scheister herself.

Many still do and rightfully so, if I say so myself. We have to discriminate within our group to gain legitimacy and respect. Not everyone involved means well.

there are many good and potentially great treatments out there that

DAN

hasn't got a clue about.

whether or not DAN uses or knows about anything is no measure of its

effectiveness! !!!!!!! and I cannot stress this strongly enough.

I can understand that someone is dubious about this or any other

treatment, this DAN approval argument is worthless

natasa

--

- Hi,

You can go to Lifewave.com/ tmish, that's me..... .or you can

check out some posts from Sue within the past week (sorry, don't

have

them) that contain other ways to get the patches. Tons of info

on

these has been posted over the past couple weeks...but if you'd

like

to start with some specifics feel free to e mail me and I can

get

you

started with some general info. (ekogurl@) They are approx.

100.00,(unless you sign up as a "distributor" , which means

nothing

more than it saves you money ea. time you order...I did it

because

I

knew I was going to give this a real try...three months at

least)

and

if used the full 12 hours per night, which most don't start out

at,

last two months. However, for example, you use them six hours

every

other night because of detox, they'd last much longer. I think

they

are extremely affordable.. .and I may personally be one of

the "brokest" people in our group (my husband had a renal

transplant

about the same time we got the autism diagnosis and between his

antirejection meds and Austin and Jakes PDD and ADHD, we are

struggling). I have to pay 110.00 EVERY month for Austin's Td

DMPS,

and hundreds more for his minerals,biocorcuma , PS, DMAE,

Omega's,

Multi, melatonin, etc. And, for us, nothing since he was four

years

old and we started Mb12 cream and folic acid, has been as

obvious

in

that it is working. HTH

------------ --------- --------- ------

[Guest guest]

Dear ALL,

I think that autism is certainly guaranteed to create polarised

viewpoints but we need to be mindful of those who have a hidden

agenda. I came on this site to research Valtrex and usually keep my

opinions to myself and let everyone else do battle. I feel very

strongly about this though. I feel it is unproven and if it sounds

too good to be true it usually is.

We live in the UK and we have to buy and ship every single medication

and pay every single minute of the doctor's time. No insurance. I

think a bit of British cynicism is healthy when every pound you spend

is out of your own pocket. It costs us $120 just to ship each pack of

meds...

Without our DAN! doctors, and their knowledge, we would not have got

as far as we have but like the other members here I have researched

it up intenseively myself of course.

Wishing you all success in whatever you find works !

Sue

>

>

> --

> - Hi,

>

>

> You can go to Lifewave.com/tmish, that's me......or

you can

> check out some posts from Sue within the past week

(sorry, don't

> have

> them) that contain other ways to get the patches. Tons of

info

> on

> these has been posted over the past couple weeks...but if

you'd

> like

> to start with some specifics feel free to e mail me and I

can

> get

> you

> started with some general info. (ekogurl@) They are

approx.

> 100.00,(unless you sign up as a " distributor " , which

means

> nothing

> more than it saves you money ea. time you order...I did

it

> because

> I

> knew I was going to give this a real try...three months

at

> least)

> and

> if used the full 12 hours per night, which most don't

start out

> at,

> last two months. However, for example, you use them six

hours

> every

> other night because of detox, they'd last much longer. I

think

> they

> are extremely affordable...and I may personally be one of

> the " brokest " people in our group (my husband had a renal

> transplant

> about the same time we got the autism diagnosis and

between his

> antirejection meds and Austin and Jakes PDD and ADHD, we

are

> struggling). I have to pay 110.00 EVERY month for

Austin's Td

> DMPS,

> and hundreds more for his minerals,biocorcuma, PS, DMAE,

> Omega's,

> Multi, melatonin, etc. And, for us, nothing since he was

four

> years

> old and we started Mb12 cream and folic acid, has been as

> obvious

> in

> that it is working. HTH

>

>

>

>

>

>

>

>

>

>

>

>

> ------------------------------------

>

>

>

[Guest guest]

I certainly agree that legitimacy is needed (I'm leaving the Yasko debate alone).  Just because someone is using biomedical/alternative practices to treat autism doesn't put them in the DAN category and DAN isn't just an umbrella term for any biomedical practice which is how many try to make it seem.   Cheryl~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!http://astore.amazon.com/grystai-20~Check out my blog:  http://www.gryffins-tail.blogspot.com/ I remember a time when DAN thought Yasko was a nutcase and a scheister herself.Many still do and rightfully so, if I say so myself. We have to discriminate within our group to gain legitimacy and respect.  Not everyone involved means well.  --- On Sun, 9/14/08, cher.lowrance  wrote:Subject: Re: Re: Our experience with the Glutathione patch so far...To: mb12 valtrex Date: Sunday, September 14, 2008, 4:45 PMIt may all be DAN *now* but it hasn't always been and that's my point.  Dr. Baptist may have been doing antivirals for 30 years but that doesn't mean that DAN (the organization) subscribed to it 30 years ago.  Not all homeopaths are DANs and not all DANs are homeopaths.  Giving someone or some organization full control over how you choose to treat doesn't leave much room for learning about something on your own.  I remember a time when DAN thought Yasko was a nutcase and a scheister herself.  It wasn't that long ago.Cheryl~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!http://astore. amazon.com/ grystai-20~Check out my blog:  http://www.gryffins -tail.blogspot. com/yasko has been doing DAN education for the last year through autism one, and is brain storm with them, same with homeopathy, all that is UNDER The umberella of DAN.  not all DAN's are created equal and are open to ALL things biomedical.,  there is a DAN in our state who ONLY does homeopathy, another that is an allergist background wise who will do and has done natural antivirals and script ones for over 30 year due to his background in immunology.. ..to each there cup of tea, that is why there areas of interest are on a check list with DAN so you can find one that lines up to your thinking and your childs needs of treatment.  yet still all DAN. Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace. com/christelkinghttp://foggyrock. com/MyPage/ recoveringwisheshttp://www.facebook .com/profile. php?id=677063169 Re: Re: Our experience with the Glutathione patch so far...I have to agree with Natasa on this one.  DAN isn't the end all be all of biomedical treatment.  We saw Dr. Goldberg for almost 2 years and antivirals have been his thing for over 10 years.  DAN has only recently picked that up in the last few years and there are *still* many DANs that don't do antivirals.  Yasko is also *not* a DAN protocol.  Neither is Pfeiffer.  Neither is Homeopathy.  And yet all of these are effective for some children.  I love DAN but that doesn't mean I don't continue to do my own research.  And the argument of double blind placebo studies doesn't hold water because the same can be said for many DAN treatments.  I'm not advocating any particular product - I'm simply saying that the argument you are presenting is akin to crying for ones own freedom of speech without fighting for someone else's right for the same freedom of speech even if you don't agree with them.  And please note, this was just a comparison - I'm not saying anyone is talking about freedom of speech.  I completely agree that there are a lot of vulnerable parents out there and there are scheisters but we also need to temper that fear of being "had" with our own ability to think for ourselves and research.  No one, ever again, will completely lead my view of medical care. I let doctors do that to me once and now I have a son with autism.  I'm not letting someone else treat me like a sheep in the herd and that includes DAN or any other "regulating body".  We can't throw all the responsibility of learning what's best for our children on to someone else.  At some point, the parent needs to take some responsibility, too.  Parent involvement is critical to understanding our individual children.  My DAN does not control my son's care.  She doesn't live with him every day and know what he does or does not respond to.  She doesn't see him when he is not doing well on something.  She relies on me to tell her what's going on with my son.  What works for my son isn't necessarily going to work for another and what works for another isn't necessarily going to be what my son needs.  I don't adhere to anyone's "rules" of what my son needs or has.  The first time around when I tried DAN I learned this very quickly because it failed to work with him.  That's why I sought out another protocol.  But I never continued to learn about DAN or other protocols.  Now that I'm much more aware of his needs, I'm better able to use DAN effectively with my son and it's going well.  But he would have floundered for a long time if I had remained with DAN in the beginning.I'm probably going to regret getting involved in this debate.Cheryl~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!http://astore. amazon.com/ grystai-20~Check out my blog:  http://www.gryffins -tail.blogspot. com/What other regulating body do we have then? I have tremendous respect for the DAN! leaders and without them we would still be accused of being refrigerator mothers. There are a lot of vunerable parents out there and I think that the ARI is at the epicentre of the biomedical approach. You haven't responded to my question about the double blind studies, NOT the ones created by the manufacturers. DAN! could never be accused of being mainstream, they put their necks on the line re; vaccination and mercury and the gut connection, so why would they ignore such a potentially helpful thing?  Glutathione is an incredibly unstable compound. I have spoken to many compounding pharmacies who cannot make the stuff without it oxidising. We must help the children to detox so their bodies are more able to cope with the demands being made on it. Why don't you  email ARI tommorow and ask them what they know about this product and if it is plausible that it would increase glutathione and let us all know, all the cynics like me.s.com, "natasa778" wrote:there are many good and potentially great treatments out there that DANhasn't got a clue about.whether or not DAN uses or knows about anything is no measure of itseffectiveness! !!!!!!! and I cannot stress this strongly enough.I can understand that someone is dubious about this or any othertreatment, this DAN approval argument is worthlessnatasa--- Hi,You can go to Lifewave.com/ tmish, that's me..... .or you cancheck out some posts from Sue within the past week (sorry, don'thavethem) that contain other ways to get the patches. Tons of info onthese has been posted over the past couple weeks...but if you'dliketo start with some specifics feel free to e mail me and I can getyoustarted with some general info. (ekogurl@) They are approx.100.00,(unless you sign up as a "distributor" , which means nothingmore than it saves you money ea. time you order...I did it becauseIknew I was going to give this a real try...three months at least)andif used the full 12 hours per night, which most don't start out at,last two months. However, for example, you use them six hours everyother night because of detox, they'd last much longer. I think theyare extremely affordable.. .and I may personally be one ofthe "brokest" people in our group (my husband had a renaltransplantabout the same time we got the autism diagnosis and between hisantirejection meds and Austin and Jakes PDD and ADHD, we arestruggling).  I have to pay 110.00 EVERY month for Austin's TdDMPS,and hundreds more for his minerals,biocorcuma , PS, DMAE, Omega's,Multi, melatonin, etc. And, for us, nothing since he was four yearsold and we started Mb12 cream and folic acid, has been as obviousinthat it is working. HTH ------------ --------- --------- ------

[Guest guest]

> > > > > > --> > - Hi,> > > > > > You can go to Lifewave.com/tmish, that's me......or > you can> > check out some posts from Sue within the past week > (sorry, don't> > have> > them) that contain other ways to get the patches. Tons of > info > > on> > these has been posted over the past couple weeks...but if > you'd> > like> > to start with some specifics feel free to e mail me and I > can > > get> > you> > started with some general info. (ekogurl@) They are > approx.> > 100.00,(unless you sign up as a "distributor", which > means > > nothing> > more than it saves you money ea. time you order...I did > it > > because> > I> > knew I was going to give this a real try...three months > at > > least)> > and> > if used the full 12 hours per night, which most don't > start out > > at,> > last two months. However, for example, you use them six > hours > > every> > other night because of detox, they'd last much longer. I > think > > they> > are extremely affordable...and I may personally be one of> > the "brokest" people in our group (my husband had a renal> > transplant> > about the same time we got the autism diagnosis and > between his> > antirejection meds and Austin and Jakes PDD and ADHD, we > are> > struggling). I have to pay 110.00 EVERY month for > Austin's Td> > DMPS,> > and hundreds more for his minerals,biocorcuma, PS, DMAE, > > Omega's,> > Multi, melatonin, etc. And, for us, nothing since he was > four > > years> > old and we started Mb12 cream and folic acid, has been as > > obvious> > in> > that it is working. HTH > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------> > > > > >

[Guest guest]

yes but that isn't DAN now. the patches you are talking about are around NOW< you arguement is that if ARI isn't interested then it's because they are behind the time, I just debunked that. they ARE all of those things you said they aren't. DAN wasn't around for 30 years. they aren't that old, ORGANIZATION wise. but that doesn't mean there weren't those great dr's that long ago doing those things

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: Re: Our experience with the Glutathione patch so far...

I have to agree with Natasa on this one. DAN isn't the end all be all of biomedical treatment. We saw Dr. Goldberg for almost 2 years and antivirals have been his thing for over 10 years. DAN has only recently picked that up in the last few years and there are *still* many DANs that don't do antivirals. Yasko is also *not* a DAN protocol. Neither is Pfeiffer. Neither is Homeopathy. And yet all of these are effective for some children. I love DAN but that doesn't mean I don't continue to do my own research. And the argument of double blind placebo studies doesn't hold water because the same can be said for many DAN treatments. I'm not advocating any particular product - I'm simply saying that the argument you are presenting is akin to crying for ones own freedom of speech without fighting for someone else's right for the same freedom of speech even if you don't agree with them. And please note, this was just a comparison - I'm not saying anyone is talking about freedom of speech. I completely agree that there are a lot of vulnerable parents out there and there are scheisters but we also need to temper that fear of being "had" with our own ability to think for ourselves and research. No one, ever again, will completely lead my view of medical care. I let doctors do that to me once and now I have a son with autism. I'm not letting someone else treat me like a sheep in the herd and that includes DAN or any other "regulating body". We can't throw all the responsibility of learning what's best for our children on to someone else. At some point, the parent needs to take some responsibility, too. Parent involvement is critical to understanding our individual children. My DAN does not control my son's care. She doesn't live with him every day and know what he does or does not respond to. She doesn't see him when he is not doing well on something. She relies on me to tell her what's going on with my son. What works for my son isn't necessarily going to work for another and what works for another isn't necessarily going to be what my son needs. I don't adhere to anyone's "rules" of what my son needs or has. The first time around when I tried DAN I learned this very quickly because it failed to work with him. That's why I sought out another protocol. But I never continued to learn about DAN or other protocols. Now that I'm much more aware of his needs, I'm better able to use DAN effectively with my son and it's going well. But he would have floundered for a long time if I had remained with DAN in the beginning.

I'm probably going to regret getting involved in this debate.

Cheryl

~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!

http://astore.amazon.com/grystai-20

~Check out my blog: http://www.gryffins-tail.blogspot.com/

What other regulating body do we have then? I have tremendous respect

for the DAN! leaders and without them we would still be accused of

being refrigerator mothers. There are a lot of vunerable parents out

there and I think that the ARI is at the epicentre of the biomedical

approach. You haven't responded to my question about the double blind

studies, NOT the ones created by the manufacturers.

DAN! could never be accused of being mainstream, they put their necks

on the line re; vaccination and mercury and the gut connection, so

why would they ignore such a potentially helpful thing? Glutathione

is an incredibly unstable compound. I have spoken to many compounding

pharmacies who cannot make the stuff without it oxidising. We must

help the children to detox so their bodies are more able to cope with

the demands being made on it. Why don't you email ARI tommorow and

ask them what they know about this product and if it is plausible

that it would increase glutathione and let us all know, all the

cynics like me.

s.com, "natasa778" wrote:

there are many good and potentially great treatments out there that

DAN

hasn't got a clue about.

whether or not DAN uses or knows about anything is no measure of its

effectiveness!!!!!!!! and I cannot stress this strongly enough.

I can understand that someone is dubious about this or any other

treatment, this DAN approval argument is worthless

natasa

--

- Hi,

You can go to Lifewave.com/tmish, that's me......or you can

check out some posts from Sue within the past week (sorry, don't

have

them) that contain other ways to get the patches. Tons of info

on

these has been posted over the past couple weeks...but if you'd

like

to start with some specifics feel free to e mail me and I can

get

you

started with some general info. (ekogurl@) They are approx.

100.00,(unless you sign up as a "distributor", which means

nothing

more than it saves you money ea. time you order...I did it

because

I

knew I was going to give this a real try...three months at

least)

and

if used the full 12 hours per night, which most don't start out

at,

last two months. However, for example, you use them six hours

every

other night because of detox, they'd last much longer. I think

they

are extremely affordable...and I may personally be one of

the "brokest" people in our group (my husband had a renal

transplant

about the same time we got the autism diagnosis and between his

antirejection meds and Austin and Jakes PDD and ADHD, we are

struggling). I have to pay 110.00 EVERY month for Austin's Td

DMPS,

and hundreds more for his minerals,biocorcuma, PS, DMAE,

Omega's,

Multi, melatonin, etc. And, for us, nothing since he was four

years

old and we started Mb12 cream and folic acid, has been as

obvious

in

that it is working. HTH

------------------------------------

[Guest guest]

DAN Is open to many of the things you listed, it's a grouping of biomedical, things that are working to help our kids

if you look at there mission statement you will see that. there is even know a board of americian biomedial that will be certifing people put together to help some of this, DAN as a fellowship has done great things to get the attention of even main medicine as of this summer with the progress they have been able to make where others have not. so it's a growing revolution we will all be thankful for down the road, hopefully to even get some of the things we are all doing to be covered by insurence to help all our pocket books out

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: Re: Our experience with the Glutathione patch so far...

I certainly agree that legitimacy is needed (I'm leaving the Yasko debate alone). Just because someone is using biomedical/alternative practices to treat autism doesn't put them in the DAN category and DAN isn't just an umbrella term for any biomedical practice which is how many try to make it seem.

Cheryl

~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!

http://astore.amazon.com/grystai-20

~Check out my blog: http://www.gryffins-tail.blogspot.com/

I remember a time when DAN thought Yasko was a nutcase and a scheister herself.

Many still do and rightfully so, if I say so myself. We have to discriminate within our group to gain legitimacy and respect. Not everyone involved means well.

there are many good and potentially great treatments out there that

DAN

hasn't got a clue about.

whether or not DAN uses or knows about anything is no measure of its

effectiveness! !!!!!!! and I cannot stress this strongly enough.

I can understand that someone is dubious about this or any other

treatment, this DAN approval argument is worthless

natasa

--

- Hi,

You can go to Lifewave.com/ tmish, that's me..... .or you can

check out some posts from Sue within the past week (sorry, don't

have

them) that contain other ways to get the patches. Tons of info

on

these has been posted over the past couple weeks...but if you'd

like

to start with some specifics feel free to e mail me and I can

get

you

started with some general info. (ekogurl@) They are approx.

100.00,(unless you sign up as a "distributor" , which means

nothing

more than it saves you money ea. time you order...I did it

because

I

knew I was going to give this a real try...three months at

least)

and

if used the full 12 hours per night, which most don't start out

at,

last two months. However, for example, you use them six hours

every

other night because of detox, they'd last much longer. I think

they

are extremely affordable.. .and I may personally be one of

the "brokest" people in our group (my husband had a renal

transplant

about the same time we got the autism diagnosis and between his

antirejection meds and Austin and Jakes PDD and ADHD, we are

struggling). I have to pay 110.00 EVERY month for Austin's Td

DMPS,

and hundreds more for his minerals,biocorcuma , PS, DMAE,

Omega's,

Multi, melatonin, etc. And, for us, nothing since he was four

years

old and we started Mb12 cream and folic acid, has been as

obvious

in

that it is working. HTH

------------ --------- --------- ------

[Guest guest]

DAN!s are great - but their treatments DEFINITELY vary, we have to

use 2 DAN's (luckily their are 2 in our area) because one does

homeopathy and BioSET/NAET but does NOT and will NOT prescribe an

antiviral. The other is more medical minded. Between them both I

feel that our son is getting good care and many people in our area

use both of them. The one that does prescribe the antivirals does

prescribe compounded Glutathione Cream from Lee Silsy - (which did

NOT work for us)

I recently ordered the patches myself (have not received them yet)

because I find it hard to believe that all of the women on here

sharing their success stories with them are lying, the only reason

that they became distributors (as well as myself) is because it is

just a few dollars more and then you get money off of your next

order (whether anyone orders under you or not) you get the

distributor pricing. Compared to what we had to pay the compounding

pharmacy these are significantly cheaper and I think they would be

less irritating.

We are on these message boards to learn what is working for others

and sometimes it is the parents who find things and then tell their

doctors about them. Whether the patches will work for my son or not

is to be determined, but I personally feel that it is worth trying

and am happy when people share their successes. I would hate for

them to stop because of some skeptics.

> > > >

> > > > --

> > > > - Hi,

> > > >

> > > > You can go to Lifewave.com/tmish, that's me......or you

can

> > > > check out some posts from Sue within the past week (sorry,

don't

> > > have

> > > > them) that contain other ways to get the patches. Tons of

info

> on

> > > > these has been posted over the past couple weeks...but if

you'd

> > > like

> > > > to start with some specifics feel free to e mail me and I

can

> get

> > > you

> > > > started with some general info. (ekogurl@) They are approx.

> > > > 100.00,(unless you sign up as a " distributor " , which means

> nothing

> > > > more than it saves you money ea. time you order...I did it

> because

> > > I

> > > > knew I was going to give this a real try...three months at

> least)

> > > and

> > > > if used the full 12 hours per night, which most don't start

out

> at,

> > > > last two months. However, for example, you use them six

hours

> every

> > > > other night because of detox, they'd last much longer. I

think

> they

> > > > are extremely affordable...and I may personally be one of

> > > > the " brokest " people in our group (my husband had a renal

> > > transplant

> > > > about the same time we got the autism diagnosis and between

his

> > > > antirejection meds and Austin and Jakes PDD and ADHD, we are

> > > > struggling). I have to pay 110.00 EVERY month for Austin's

Td

> > > DMPS,

> > > > and hundreds more for his minerals,biocorcuma, PS, DMAE,

> Omega's,

> > > > Multi, melatonin, etc. And, for us, nothing since he was

four

> years

> > > > old and we started Mb12 cream and folic acid, has been as

> obvious

> > > in

> > > > that it is working. HTH

> > > >

> > >

> >

>

[Guest guest]

No, if you read my original reply, it has nothing at all to do with the patches but rather her argument that if it isn't DAN or have a double blind placebo study about it, then it isn't worth doing (not a direct quote).  I've not said a word about the patches other than to say I'm not talking about them. Cheryl~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!http://astore.amazon.com/grystai-20~Check out my blog:  http://www.gryffins-tail.blogspot.com/ yes but that isn't DAN now.  the patches you are talking about are around NOW< you arguement is that if ARI isn't interested then it's because they are behind the time, I just debunked that.  they ARE all of those things you said they aren't.  DAN wasn't around for 30 years.  they aren't that old, ORGANIZATION wise.  but that doesn't mean there weren't those great dr's that long ago doing those things   Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169 Re: Re: Our experience with the Glutathione patch so far... I have to agree with Natasa on this one.  DAN isn't the end all be all of biomedical treatment.  We saw Dr. Goldberg for almost 2 years and antivirals have been his thing for over 10 years.  DAN has only recently picked that up in the last few years and there are *still* many DANs that don't do antivirals.  Yasko is also *not* a DAN protocol.  Neither is Pfeiffer.  Neither is Homeopathy.  And yet all of these are effective for some children.  I love DAN but that doesn't mean I don't continue to do my own research.  And the argument of double blind placebo studies doesn't hold water because the same can be said for many DAN treatments.  I'm not advocating any particular product - I'm simply saying that the argument you are presenting is akin to crying for ones own freedom of speech without fighting for someone else's right for the same freedom of speech even if you don't agree with them.  And please note, this was just a comparison - I'm not saying anyone is talking about freedom of speech.  I completely agree that there are a lot of vulnerable parents out there and there are scheisters but we also need to temper that fear of being "had" with our own ability to think for ourselves and research.  No one, ever again, will completely lead my view of medical care. I let doctors do that to me once and now I have a son with autism.  I'm not letting someone else treat me like a sheep in the herd and that includes DAN or any other "regulating body".  We can't throw all the responsibility of learning what's best for our children on to someone else.  At some point, the parent needs to take some responsibility, too.  Parent involvement is critical to understanding our individual children.  My DAN does not control my son's care.  She doesn't live with him every day and know what he does or does not respond to.  She doesn't see him when he is not doing well on something.  She relies on me to tell her what's going on with my son.  What works for my son isn't necessarily going to work for another and what works for another isn't necessarily going to be what my son needs.  I don't adhere to anyone's "rules" of what my son needs or has.  The first time around when I tried DAN I learned this very quickly because it failed to work with him.  That's why I sought out another protocol.  But I never continued to learn about DAN or other protocols.  Now that I'm much more aware of his needs, I'm better able to use DAN effectively with my son and it's going well.  But he would have floundered for a long time if I had remained with DAN in the beginning. I'm probably going to regret getting involved in this debate. Cheryl ~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more! http://astore.amazon.com/grystai-20 ~Check out my blog:  http://www.gryffins-tail.blogspot.com/ What other regulating body do we have then? I have tremendous respect  for the DAN! leaders and without them we would still be accused of  being refrigerator mothers. There are a lot of vunerable parents out  there and I think that the ARI is at the epicentre of the biomedical  approach. You haven't responded to my question about the double blind  studies, NOT the ones created by the manufacturers.  DAN! could never be accused of being mainstream, they put their necks  on the line re; vaccination and mercury and the gut connection, so  why would they ignore such a potentially helpful thing?  Glutathione  is an incredibly unstable compound. I have spoken to many compounding  pharmacies who cannot make the stuff without it oxidising. We must  help the children to detox so their bodies are more able to cope with  the demands being made on it. Why don't you  email ARI tommorow and  ask them what they know about this product and if it is plausible  that it would increase glutathione and let us all know, all the  cynics like me. s.com, "natasa778" wrote: there are many good and potentially great treatments out there that  DAN hasn't got a clue about. whether or not DAN uses or knows about anything is no measure of its effectiveness!!!!!!!! and I cannot stress this strongly enough. I can understand that someone is dubious about this or any other treatment, this DAN approval argument is worthless natasa -- - Hi, You can go to Lifewave.com/tmish, that's me......or you can check out some posts from Sue within the past week (sorry, don't have them) that contain other ways to get the patches. Tons of info  on these has been posted over the past couple weeks...but if you'd like to start with some specifics feel free to e mail me and I can  get you started with some general info. (ekogurl@) They are approx. 100.00,(unless you sign up as a "distributor", which means  nothing more than it saves you money ea. time you order...I did it  because I knew I was going to give this a real try...three months at  least) and if used the full 12 hours per night, which most don't start out  at, last two months. However, for example, you use them six hours  every other night because of detox, they'd last much longer. I think  they are extremely affordable...and I may personally be one of the "brokest" people in our group (my husband had a renal transplant about the same time we got the autism diagnosis and between his antirejection meds and Austin and Jakes PDD and ADHD, we are struggling).  I have to pay 110.00 EVERY month for Austin's Td DMPS, and hundreds more for his minerals,biocorcuma, PS, DMAE,  Omega's, Multi, melatonin, etc. And, for us, nothing since he was four  years old and we started Mb12 cream and folic acid, has been as  obvious in that it is working. HTH ------------------------------------

[Guest guest]

Am I just not communicating well?  It seems my point has been missed entirely. Cheryl~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!http://astore.amazon.com/grystai-20~Check out my blog:  http://www.gryffins-tail.blogspot.com/ yes but that isn't DAN now.  the patches you are talking about are around NOW< you arguement is that if ARI isn't interested then it's because they are behind the time, I just debunked that.  they ARE all of those things you said they aren't.  DAN wasn't around for 30 years.  they aren't that old, ORGANIZATION wise.  but that doesn't mean there weren't those great dr's that long ago doing those things   Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169 Re: Re: Our experience with the Glutathione patch so far... I have to agree with Natasa on this one.  DAN isn't the end all be all of biomedical treatment.  We saw Dr. Goldberg for almost 2 years and antivirals have been his thing for over 10 years.  DAN has only recently picked that up in the last few years and there are *still* many DANs that don't do antivirals.  Yasko is also *not* a DAN protocol.  Neither is Pfeiffer.  Neither is Homeopathy.  And yet all of these are effective for some children.  I love DAN but that doesn't mean I don't continue to do my own research.  And the argument of double blind placebo studies doesn't hold water because the same can be said for many DAN treatments.  I'm not advocating any particular product - I'm simply saying that the argument you are presenting is akin to crying for ones own freedom of speech without fighting for someone else's right for the same freedom of speech even if you don't agree with them.  And please note, this was just a comparison - I'm not saying anyone is talking about freedom of speech.  I completely agree that there are a lot of vulnerable parents out there and there are scheisters but we also need to temper that fear of being "had" with our own ability to think for ourselves and research.  No one, ever again, will completely lead my view of medical care. I let doctors do that to me once and now I have a son with autism.  I'm not letting someone else treat me like a sheep in the herd and that includes DAN or any other "regulating body".  We can't throw all the responsibility of learning what's best for our children on to someone else.  At some point, the parent needs to take some responsibility, too.  Parent involvement is critical to understanding our individual children.  My DAN does not control my son's care.  She doesn't live with him every day and know what he does or does not respond to.  She doesn't see him when he is not doing well on something.  She relies on me to tell her what's going on with my son.  What works for my son isn't necessarily going to work for another and what works for another isn't necessarily going to be what my son needs.  I don't adhere to anyone's "rules" of what my son needs or has.  The first time around when I tried DAN I learned this very quickly because it failed to work with him.  That's why I sought out another protocol.  But I never continued to learn about DAN or other protocols.  Now that I'm much more aware of his needs, I'm better able to use DAN effectively with my son and it's going well.  But he would have floundered for a long time if I had remained with DAN in the beginning. I'm probably going to regret getting involved in this debate. Cheryl ~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more! http://astore.amazon.com/grystai-20 ~Check out my blog:  http://www.gryffins-tail.blogspot.com/ What other regulating body do we have then? I have tremendous respect  for the DAN! leaders and without them we would still be accused of  being refrigerator mothers. There are a lot of vunerable parents out  there and I think that the ARI is at the epicentre of the biomedical  approach. You haven't responded to my question about the double blind  studies, NOT the ones created by the manufacturers.  DAN! could never be accused of being mainstream, they put their necks  on the line re; vaccination and mercury and the gut connection, so  why would they ignore such a potentially helpful thing?  Glutathione  is an incredibly unstable compound. I have spoken to many compounding  pharmacies who cannot make the stuff without it oxidising. We must  help the children to detox so their bodies are more able to cope with  the demands being made on it. Why don't you  email ARI tommorow and  ask them what they know about this product and if it is plausible  that it would increase glutathione and let us all know, all the  cynics like me. s.com, "natasa778" wrote: there are many good and potentially great treatments out there that  DAN hasn't got a clue about. whether or not DAN uses or knows about anything is no measure of its effectiveness!!!!!!!! and I cannot stress this strongly enough. I can understand that someone is dubious about this or any other treatment, this DAN approval argument is worthless natasa -- - Hi, You can go to Lifewave.com/tmish, that's me......or you can check out some posts from Sue within the past week (sorry, don't have them) that contain other ways to get the patches. Tons of info  on these has been posted over the past couple weeks...but if you'd like to start with some specifics feel free to e mail me and I can  get you started with some general info. (ekogurl@) They are approx. 100.00,(unless you sign up as a "distributor", which means  nothing more than it saves you money ea. time you order...I did it  because I knew I was going to give this a real try...three months at  least) and if used the full 12 hours per night, which most don't start out  at, last two months. However, for example, you use them six hours  every other night because of detox, they'd last much longer. I think  they are extremely affordable...and I may personally be one of the "brokest" people in our group (my husband had a renal transplant about the same time we got the autism diagnosis and between his antirejection meds and Austin and Jakes PDD and ADHD, we are struggling).  I have to pay 110.00 EVERY month for Austin's Td DMPS, and hundreds more for his minerals,biocorcuma, PS, DMAE,  Omega's, Multi, melatonin, etc. And, for us, nothing since he was four  years old and we started Mb12 cream and folic acid, has been as  obvious in that it is working. HTH ------------------------------------

[Guest guest]

Hi,

I thought that same thing...about how much can I trust someone who

is " selling " these things?...I can understand what you are saying.

Before I try anything, I worry about what it will cost and will it

work, I have a naturally suspicious nature. I feel like there's a

difference here from someone " selling " something. The reason you sign

up to be a distributor is to save some on your own patches...hence,

you are buying this product because you like it... " Would you buy the

product over and over if it didn't help you or your family in the

first place? " No way, money would be better used elsewhere. It is

because I have been using them for almost eight months now, I can

speak from actual results. You don't know me personally so it's

harder to believe, but I would never lie to grow some company that

I'd never heard of prior to eight months ago, who is cheating people

with sick little children out of their money. Many have been seeing

the same things I am seeing, which makes me feel great in knowing I

am not alone. In the meantime, all of us that are currently using

them can keep everyone posted for all of you who are taking a " wait

and see approach " . There's certainly nothing wrong with that! Maybe

some of the new people to the patches won't become distributors so

that their results are " more believable " ...I don't know how else to

remedy that one.

[Guest guest]

I agree with Cheryl that it doesn't HAVE to be a double-blind,

placebo-controlled study to prove that it works. Heck, as one poster

said, her child asking for it was enough for her to know they work.

I've been in that boat with other protocols, it was good enough for

me, too.

But, the study that says they took blood & urine & showed increases in

glutathione over periods of time concerns me because it does not

specifically address whether or not the kids were taking any other

supplements. If the children were also using td-glutathione patches,

taking precursors to selenium, etc. They could have been doing HBOT

while using the patches. They could have had increased in glutathione

and made it appear to be the patches at work. Perhaps the test

subjects were not taking any other treatments, but I think it should

have been clearly stated whether or not they were. Since it wasn't

journal-published article, which can obviously have its own issues,

and was a study done for the manufacturer, clarifying these issues can

make a big difference in their claims.

Debi

>

> No, if you read my original reply, it has nothing at all to do with

> the patches but rather her argument that if it isn't DAN or have a

> double blind placebo study about it, then it isn't worth doing (not a

> direct quote). I've not said a word about the patches other than to

> say I'm not talking about them.

>

> Cheryl

[Guest guest]

There was a study that tested children doing DMSA oral chelation

and their glutathione levels normalized really fast.

38 and Mom to threeTasha 23..new Mommy ( means I am a Grammy )Casey-Mae 13..sweet as pieElijah 2.. ASD and beautiful

Re: Our experience with the Glutathione patch so far...

I agree with Cheryl that it doesn't HAVE to be a double-blind,placebo-controlled study to prove that it works. Heck, as one postersaid, her child asking for it was enough for her to know they work.I've been in that boat with other protocols, it was good enough forme, too.But, the study that says they took blood & urine & showed increases inglutathione over periods of time concerns me because it does notspecifically address whether or not the kids were taking any othersupplements. If the children were also using td-glutathione patches,taking precursors to selenium, etc. They could have been doing HBOTwhile using the patches. They could have had increased in glutathioneand made it appear to be the patches at work. Perhaps the testsubjects were not taking any other treatments, but I think it shouldhave been clearly stated whether or not they were. Since it wasn'tjournal-published

article, which can obviously have its own issues,and was a study done for the manufacturer, clarifying these issues canmake a big difference in their claims. Debi>> No, if you read my original reply, it has nothing at all to do with > the patches but rather her argument that if it isn't DAN or have a > double blind placebo study about it, then it isn't worth doing (not a > direct quote). I've not said a word about the patches other than to > say I'm not talking about them.> > Cheryl