Our experience with the Glutathione patch so far...

[Guest guest]

There are also studies (may be only one, not sure) by Dr. Geier

showing lupron lowered testosterone and subsequently raised

glutathione. Evidently there are numerous ways to " skin a cat " but

some kids after much chelation still can't rid themselves of the

mercury and get normalized glut. I think these kids are the ones who

tend to have testosterone/glut issues, but I could be wrong on that.

Debi

>

> There was a study that tested children doing DMSA oral chelation

> and their glutathione levels normalized really fast.

>

[Guest guest]

Yes, but sometimes the " skeptics " are the necessary evil in this

world. All of us wondering out loud whether or not these are

worthwhile are doing everyone a service. We get to ask valid

questions, you get to provide your opinion. NOT questioning anything,

new or not, is the road to failure with any program.

BTW, not a single person during this " debate " thread has said the

moms who are distributors are lying about their success, like you

seem to think. I personally have posted at least twice that I believe

the testimonials, whether they are distributors or not. That an

irritating thing to say, seeing as everyone else also has been going

out of their way to tell the people who it's working for that they

are happy for them and to keep up the success stories. That comment

was meant only to be inflammatory. :-(

>

> DAN!s are great - but their treatments DEFINITELY vary, we have to

> use 2 DAN's (luckily their are 2 in our area) because one does

> homeopathy and BioSET/NAET but does NOT and will NOT prescribe an

> antiviral. The other is more medical minded. Between them both I

> feel that our son is getting good care and many people in our area

> use both of them. The one that does prescribe the antivirals does

> prescribe compounded Glutathione Cream from Lee Silsy - (which did

> NOT work for us)

>

> I recently ordered the patches myself (have not received them yet)

> because I find it hard to believe that all of the women on here

> sharing their success stories with them are lying, the only reason

> that they became distributors (as well as myself) is because it is

> just a few dollars more and then you get money off of your next

> order (whether anyone orders under you or not) you get the

> distributor pricing. Compared to what we had to pay the compounding

> pharmacy these are significantly cheaper and I think they would be

> less irritating.

>

> We are on these message boards to learn what is working for others

> and sometimes it is the parents who find things and then tell their

> doctors about them. Whether the patches will work for my son or not

> is to be determined, but I personally feel that it is worth trying

> and am happy when people share their successes. I would hate for

> them to stop because of some skeptics.

>

[Guest guest]

yes my view is if it's real science backing it and so many people seeing good things on it, some DAN somewhere would do some sort of study weither just using there patients using it with watching or monitoring raises in glutathione or metal dump increases ect to report the change, that is how these things come into being in DAN. HBOT worked this way, as well as other things. if you guys again believe so much in it, i ENCOURAGE you to contact ARI and find a DAN and ask that something like that be done, that is part of what they are there for, to EVALUTATE things like this to find merit in them and incourage there use.

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169

Re: Re: Our experience with the Glutathione patch so far...

I have to agree with Natasa on this one. DAN isn't the end all be all of biomedical treatment. We saw Dr. Goldberg for almost 2 years and antivirals have been his thing for over 10 years. DAN has only recently picked that up in the last few years and there are *still* many DANs that don't do antivirals. Yasko is also *not* a DAN protocol. Neither is Pfeiffer. Neither is Homeopathy. And yet all of these are effective for some children. I love DAN but that doesn't mean I don't continue to do my own research. And the argument of double blind placebo studies doesn't hold water because the same can be said for many DAN treatments. I'm not advocating any particular product - I'm simply saying that the argument you are presenting is akin to crying for ones own freedom of speech without fighting for someone else's right for the same freedom of speech even if you don't agree with them. And please note, this was just a comparison - I'm not saying anyone is talking about freedom of speech. I completely agree that there are a lot of vulnerable parents out there and there are scheisters but we also need to temper that fear of being "had" with our own ability to think for ourselves and research. No one, ever again, will completely lead my view of medical care. I let doctors do that to me once and now I have a son with autism. I'm not letting someone else treat me like a sheep in the herd and that includes DAN or any other "regulating body". We can't throw all the responsibility of learning what's best for our children on to someone else. At some point, the parent needs to take some responsibility, too. Parent involvement is critical to understanding our individual children. My DAN does not control my son's care. She doesn't live with him every day and know what he does or does not respond to. She doesn't see him when he is not doing well on something. She relies on me to tell her what's going on with my son. What works for my son isn't necessarily going to work for another and what works for another isn't necessarily going to be what my son needs. I don't adhere to anyone's "rules" of what my son needs or has. The first time around when I tried DAN I learned this very quickly because it failed to work with him. That's why I sought out another protocol. But I never continued to learn about DAN or other protocols. Now that I'm much more aware of his needs, I'm better able to use DAN effectively with my son and it's going well. But he would have floundered for a long time if I had remained with DAN in the beginning.

I'm probably going to regret getting involved in this debate.

Cheryl

~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!

http://astore.amazon.com/grystai-20

~Check out my blog: http://www.gryffins-tail.blogspot.com/

What other regulating body do we have then? I have tremendous respect

for the DAN! leaders and without them we would still be accused of

being refrigerator mothers. There are a lot of vunerable parents out

there and I think that the ARI is at the epicentre of the biomedical

approach. You haven't responded to my question about the double blind

studies, NOT the ones created by the manufacturers.

DAN! could never be accused of being mainstream, they put their necks

on the line re; vaccination and mercury and the gut connection, so

why would they ignore such a potentially helpful thing? Glutathione

is an incredibly unstable compound. I have spoken to many compounding

pharmacies who cannot make the stuff without it oxidising. We must

help the children to detox so their bodies are more able to cope with

the demands being made on it. Why don't you email ARI tommorow and

ask them what they know about this product and if it is plausible

that it would increase glutathione and let us all know, all the

cynics like me.

s.com, "natasa778" wrote:

there are many good and potentially great treatments out there that

DAN

hasn't got a clue about.

whether or not DAN uses or knows about anything is no measure of its

effectiveness!!!!!!!! and I cannot stress this strongly enough.

I can understand that someone is dubious about this or any other

treatment, this DAN approval argument is worthless

natasa

--

- Hi,

You can go to Lifewave.com/tmish, that's me......or you can

check out some posts from Sue within the past week (sorry, don't

have

them) that contain other ways to get the patches. Tons of info

on

these has been posted over the past couple weeks...but if you'd

like

to start with some specifics feel free to e mail me and I can

get

you

started with some general info. (ekogurl@) They are approx.

100.00,(unless you sign up as a "distributor", which means

nothing

more than it saves you money ea. time you order...I did it

because

I

knew I was going to give this a real try...three months at

least)

and

if used the full 12 hours per night, which most don't start out

at,

last two months. However, for example, you use them six hours

every

other night because of detox, they'd last much longer. I think

they

are extremely affordable...and I may personally be one of

the "brokest" people in our group (my husband had a renal

transplant

about the same time we got the autism diagnosis and between his

antirejection meds and Austin and Jakes PDD and ADHD, we are

struggling). I have to pay 110.00 EVERY month for Austin's Td

DMPS,

and hundreds more for his minerals,biocorcuma, PS, DMAE,

Omega's,

Multi, melatonin, etc. And, for us, nothing since he was four

years

old and we started Mb12 cream and folic acid, has been as

obvious

in

that it is working. HTH

------------------------------------

[Guest guest]

>

>

> --

> - Hi,

>

>

> You can go to Lifewave.com/tmish, that's

me......or you can

> check out some posts from Sue within the past

week (sorry, don't

> have

> them) that contain other ways to get the

patches. Tons of info

> on

> these has been posted over the past couple

weeks...but if you'd

> like

> to start with some specifics feel free to e mail

me and I can

> get

> you

> started with some general info. (ekogurl@) They

are approx.

> 100.00,(unless you sign up as a " distributor " ,

which means

> nothing

> more than it saves you money ea. time you

order...I did it

> because

> I

> knew I was going to give this a real try...three

months at

> least)

> and

> if used the full 12 hours per night, which most

don't start out

> at,

> last two months. However, for example, you use

them six hours

> every

> other night because of detox, they'd last much

longer. I think

> they

> are extremely affordable...and I may personally

be one of

> the " brokest " people in our group (my husband

had a renal

> transplant

> about the same time we got the autism diagnosis

and between his

> antirejection meds and Austin and Jakes PDD and

ADHD, we are

> struggling). I have to pay 110.00 EVERY month

for Austin's Td

> DMPS,

> and hundreds more for his minerals,biocorcuma,

PS, DMAE,

> Omega's,

> Multi, melatonin, etc. And, for us, nothing

since he was four

> years

> old and we started Mb12 cream and folic acid,

has been as

> obvious

> in

> that it is working. HTH

>

>

>

>

>

>

>

>

>

>

>

>

> ------------------------------------

>

>

>

[Guest guest]

Well said Cheryl. Saying something isn't used by DAN doctors is a silly argument. Alot of what DAN uses today are things parents brought to their attention. My DAN had never heard of the MB12/valtrex protocol, but we have developed a partnership of trust and because of this, she wrote the script for me, trusting my research.

I, for one, would never go back to a doctor as dictator relationship ever again. I think that type of thinking is what got alot of us here in the first place.

As far as saying that someone who signs on as a distributor (in order to receive a discount for themselves) has a vested interest is also a weak argument. After all, I haven't heard one person on here advertise their LW site, which is the only way they would get the "sale", so how do they benefit if others buy the product?

I've used the product and it worked for my son, but I am not a distributor or affiliated with LW in any way.

Kim

there are many good and potentially great treatments out there that

DAN

hasn't got a clue about.

whether or not DAN uses or knows about anything is no measure of its

effectiveness! !!!!!!! and I cannot stress this strongly enough.

I can understand that someone is dubious about this or any other

treatment, this DAN approval argument is worthless

natasa

--

- Hi,

You can go to Lifewave.com/ tmish, that's me..... .or you can

check out some posts from Sue within the past week (sorry, don't

have

them) that contain other ways to get the patches. Tons of info

on

these has been posted over the past couple weeks...but if you'd

like

to start with some specifics feel free to e mail me and I can

get

you

started with some general info. (ekogurl@) They are approx.

100.00,(unless you sign up as a "distributor" , which means

nothing

more than it saves you money ea. time you order...I did it

because

I

knew I was going to give this a real try...three months at

least)

and

if used the full 12 hours per night, which most don't start out

at,

last two months. However, for example, you use them six hours

every

other night because of detox, they'd last much longer. I think

they

are extremely affordable.. .and I may personally be one of

the "brokest" people in our group (my husband had a renal

transplant

about the same time we got the autism diagnosis and between his

antirejection meds and Austin and Jakes PDD and ADHD, we are

struggling). I have to pay 110.00 EVERY month for Austin's Td

DMPS,

and hundreds more for his minerals,biocorcuma , PS, DMAE,

Omega's,

Multi, melatonin, etc. And, for us, nothing since he was four

years

old and we started Mb12 cream and folic acid, has been as

obvious

in

that it is working. HTH

------------ --------- --------- ------

[Guest guest]

I called this company for more information. They said the patch actually DOES NOT contain glutathione, but it rechannels energy within your own body to stimulate your body to produce the glutathione itself. I'm not sure how a patch can cause metabolic changes but I'd like some more information from anyone who has it.

Amy

Subject: Re: Re: Our experience with the Glutathione patch so far...To: mb12 valtrex Date: Monday, November 10, 2008, 10:34 PM

Are you both referring to the Lifewave glutathione patches?

Re: Our experience with the Glutathione patch so far...

That sounds like a wow to me! My son started his patches right off the bat at 12 hours every other night (I know, thought about going slower, but decided to wait and see if it would be a problem first...why go slow if he was okay with it?) So, he did the same things...runny nose, tired...appearance of being sick...but I figured out quickly...He wasn't sick! He was detoxing! That was huge and meant that these patches were not hocus pocus...they were without a doubt doing something. He went thru several bought of "illnesses" that eventually stopped....aside from being very infrequent now at almost eight months on patches. Gains in language and the ability to "connect" with people just keep coming! Good luck to all who try them. >> The first 2 days that I put them on my daughter, I put them below her > belly button as instructed. I really didn't see much to report. Then > I read on the group here that others were putting it also on the > sternum. I did that and within an hour, she started showing signs of > runny nose, lethargy, sleepy (this was the afternoon and she never > takes naps). By 3 hours later, her urine was clear for the first time > since we returned from HBOT. I took it off at bedtime and put a new > one on the next day. She had clear urine again which I thought was a > good sign and continued with the runny nose and telling me that she > was sick. So, on Monday, she went without having any. She had a > fantastic day and the teacher even called me to report > something "new" she was doing that hadn't been doing. She also was > talking

fantastic with me. Oh, and Monday her urine returned to dark. > This is odd because this is on the "OFF" day from wearing the patch. > Tuesday, I put the patch on her again. After school she was > connecting with me so much. I sorta couldn't believe she wanted to > laugh and talk with me. She never wears shoes with laces because she > never would learn to tie them. Today because she has been to > horseback therapy she had her shoes on and the laces were untied. I > told her (testing) to come here and try to tie her laces (normally > this would get a big no). She came over and without any prompting > whatsoever, she tied her shoelaces perfectly! It was a loose tie but > I couldnt stop smiling and she looked me square in the eye as if to > say how proud she was too! > Those were my pretty much UPs. Today was a down. Her teacher wrote > that she

bit/hit her today! SO, something is going on. I can only say > to others on here thinking of trying this patch, to get prepared. I > cannot tell you exactly without going and look just how many years > the shoe tying was on the IEP but it has been off for the past 4 > years at least (she is 14). This was a big thing for us!> Shanna>

[Guest guest]

Are you both referring to the Lifewave glutathione patches?

Re: Our experience with the Glutathione patch so far...

That sounds like a wow to me! My son started his patches right off the bat at 12 hours every other night (I know, thought about going slower, but decided to wait and see if it would be a problem first...why go slow if he was okay with it?) So, he did the same things...runny nose, tired...appearance of being sick...but I figured out quickly...He wasn't sick! He was detoxing! That was huge and meant that these patches were not hocus pocus...they were without a doubt doing something. He went thru several bought of "illnesses" that eventually stopped....aside from being very infrequent now at almost eight months on patches. Gains in language and the ability to "connect" with people just keep coming! Good luck to all who try them. >> The first 2 days that I put them on my daughter, I put them below her > belly button as instructed. I really didn't see much to report. Then > I read on the group here that others were putting it also on the > sternum. I did that and within an hour, she started showing signs of > runny nose, lethargy, sleepy (this was the afternoon and she never > takes naps). By 3 hours later, her urine was clear for the first time > since we returned from HBOT. I took it off at bedtime and put a new > one on the next day. She had clear urine again which I thought was a > good sign and continued with the runny nose and telling me that she > was sick. So, on Monday, she went without having any. She had a > fantastic day and the teacher even called me to report > something "new" she was doing that hadn't been doing. She also was > talking fantastic with me. Oh, and Monday her urine returned to dark. > This is odd because this is on the "OFF" day from wearing the patch. > Tuesday, I put the patch on her again. After school she was > connecting with me so much. I sorta couldn't believe she wanted to > laugh and talk with me. She never wears shoes with laces because she > never would learn to tie them. Today because she has been to > horseback therapy she had her shoes on and the laces were untied. I > told her (testing) to come here and try to tie her laces (normally > this would get a big no). She came over and without any prompting > whatsoever, she tied her shoelaces perfectly! It was a loose tie but > I couldnt stop smiling and she looked me square in the eye as if to > say how proud she was too! > Those were my pretty much UPs. Today was a down. Her teacher wrote > that she bit/hit her today! SO, something is going on. I can only say > to others on here thinking of trying this patch, to get prepared. I > cannot tell you exactly without going and look just how many years > the shoe tying was on the IEP but it has been off for the past 4 > years at least (she is 14). This was a big thing for us!> Shanna>