What is going on in my kid's body?

September 14, 2008

Let me preface with we have been GFCFSF for1 1/2 years, alternating

probiotics, and we've tried anti-yeast meds 3 times now, all 3 of my

kids are " gut " kids:

So about two weeks before we started SCD, the boys were on Diflucan. It

took up until the 3rd to last day of dosage for us to see any die off.

So obviously, we ran out of Difulacan and the die-off stopped. We

started a new probiotic a few days later and the die-off restarted.

Then, Brae (my middle boy, 3yo) started refusing all meats. The only

protien he would eat was eggs, and those (we discovered later) in large

amounts cause him to break out. So when we started SCD, he only ate

eggs and fruit. at the tail end of our SCD attempt, he'd eat the

chicken soup I made. Now that we're back to a GFCFSF diet but trying

to " monitor " the carb intake, he is STILL refusing protein, and won't

even eat hot dogs (he will go hungry all night in protest). He's

sleeping less and less each night, I think he's malabsorbing all his

supplements despite the enzymes I'm giving him. The last few night

he's been acting like he hurts everywhere. Like he's dehydrated, but

he's getting PLENTY to drink. He was up ALL night last night and

complaining that his mouth and head and legs hurt.. It's taking

longer and longer to get him DOWN to sleep too, despite increasing his

melatonin. Sleeping wise, he's back to waking every 1/2 hour or so

(and taking HOURS to get to sleep) like he did before we started the

melatonin and 5htp. That's why I think he's malabsorbing. (well that

and the PICA has returned despite mineral supplements)

My gut tells me we have BAD yeast and bacteria again, maybe beyond his

gut now What do you all think? (I know you are doctors, just

looking for some parent insight). We have a new DAN appt this coming

Thursday.. Just not sure if I'm going to MAKE it to Thursday w/ the

lack of sleep Any ideas???

Thanks,

Mel Shaw

Aspie mom to Connor (4yo pddnos) Braeden (3yo pddnos spd adhd) and Morri

(15 mo asd?)

September 14, 2008

I suggest to taper off everything you are doing. I think some of

your supplements are causing these problems. I have had to do this

many times because either I introduced more than one at a time or my

son didn't need a supplement anymore. I do this at least once every

two months. As the body adjusts/heals, there will be changes. Look

out for Lactobacillus Casei in your probiotics. The casei is derived

from casein (or milk protien). My son takes Kyodophilus without

issues, maybe you could try that. What is in the Diflucan/nystatin?

Make sure there are no additives.

Remember too that not every bad tummy ache, pain, is die-off. It can

also be an intolerance to an ingredient in your supplements or to a

food. Look out for niacin, some cannot tolerate it at all. Is your

child on a multivitamin? If so, I would try all the

vitamins/minerals separately, 1 by 1.

Wow, it sounds rough for you. I am going to say a prayer for you and

your family.

Hugs,

Liz

>

> Let me preface with we have been GFCFSF for1 1/2 years, alternating

> probiotics, and we've tried anti-yeast meds 3 times now, all 3 of

my

> kids are " gut " kids:

>

> So about two weeks before we started SCD, the boys were on

Diflucan. It

> took up until the 3rd to last day of dosage for us to see any die

off.

> So obviously, we ran out of Difulacan and the die-off stopped. We

> started a new probiotic a few days later and the die-off

restarted.

> Then, Brae (my middle boy, 3yo) started refusing all meats. The

only

> protien he would eat was eggs, and those (we discovered later) in

large

> amounts cause him to break out. So when we started SCD, he only

ate

> eggs and fruit. at the tail end of our SCD attempt, he'd eat the

> chicken soup I made. Now that we're back to a GFCFSF diet but

trying

> to " monitor " the carb intake, he is STILL refusing protein, and

won't

> even eat hot dogs (he will go hungry all night in protest). He's

> sleeping less and less each night, I think he's malabsorbing all

his

> supplements despite the enzymes I'm giving him. The last few

night

> he's been acting like he hurts everywhere. Like he's dehydrated,

but

> he's getting PLENTY to drink. He was up ALL night last night and

> complaining that his mouth and head and legs hurt.. It's

taking

> longer and longer to get him DOWN to sleep too, despite increasing

his

> melatonin. Sleeping wise, he's back to waking every 1/2 hour or

so

> (and taking HOURS to get to sleep) like he did before we started

the

> melatonin and 5htp. That's why I think he's malabsorbing. (well

that

> and the PICA has returned despite mineral supplements)

>

> My gut tells me we have BAD yeast and bacteria again, maybe beyond

his

> gut now What do you all think? (I know you are doctors, just

> looking for some parent insight). We have a new DAN appt this

coming

> Thursday.. Just not sure if I'm going to MAKE it to Thursday w/

the

> lack of sleep Any ideas???

>

> Thanks,

> Mel Shaw

> Aspie mom to Connor (4yo pddnos) Braeden (3yo pddnos spd adhd) and

Morri

> (15 mo asd?)

>

September 14, 2008

Thanks for the reply! The diflucan was not called into a compounding pharmacy (I expected it to be though... hrmm) just the regular stuff. They were only on it for 2 weeks. I really do not like their old DAN very much any more, she seemed to know her stuff at first, but things are very lacking now. I pulled their multi about 4 weeks ago (DRN) because they were really hyper and " touchy " and it helped. They are both on the Minerall still, I may start with that one. Brae is on a pretty " bare " list of supplements. Calcium, magzinc cream, MB12 cream, phenol assist and enzymes (from Kirkmans), Duo Lacto (from kirkmans.. I know it doesn't have casein in it), Taurine (250mg) and the 5HTP and melatonin at night. I've not changed anything other than pulling their multi really. I'll try pulling out the other non-essentials slowly and see if we see any relief. Thanks for the advice. I just hope I can get this solved!

Mel