Re: Question for group

[Guest guest]

Hi Molly,

My doctor isn't up for any nobel prizes in medicine either but he expressed

concern over my wanting to cut back on the Vioxx I take. He told me that

very often once you make progress and cut back on the meds if you notice a

change for the worse and don't do anything about it sometimes what worked

before doesn't work anymore. Maybe it's just the nature of RA or maybe he's

completely off base but that was his opinion. I have also heard of people

not getting their RA back after a pregnancy. Hope you're one of the lucky

ones!

Best Wishes,

Dee

[Guest guest]

Hi Sherry,

Tetracyclines are capable of causing major deformities in fetuses especially

in the early months of pregnancy. There isn't any level that's considered

safe as far as I know. I hope the AP works for you and Molly when you start

up again.

Health and happiness to you,

Dee

[Guest guest]

I dont really have an answer, but I am wondering why you would have to go off of it completely. Like maybe you could just take a very low dose just enough to keep it in your system. I do not see though why it would not work still if you go off of it for awhile and then back on. You will have a herx from it again and that might last awhile but I would think it would be just the same as it was when you started it the first time. I have been off of the AP for a year now I am assuming that when I go back on it that it will work the same.

Either way I would not let it stop me from having a baby!

Hope everything works out well for you!!

Peace,

SherryHey group...I have asked this before but didn't get much feedback....thoughtI would try again. I have RA and have been on minocycline for almost 2years with HUGH success!!! My husband and I are considering another babybut we are worried that when I go off the mino it may not have the samesuccess once I go back on after the baby. Seems to me I have read aboutsome of you going off and then when you have tried the therapy again ithasn't worked. Does this really happen? Anyone have any theories why thiswould happen? Anyone had to take a break from the AP and gone back onwithout any change in its effectiveness?I am going to my doctor in a couple of weeks but I find this site to be abetter resource then my rheumy.ThanksMolly

[Guest guest]

Didn't someone on here just have a baby? I am wondering how she is doing. Maybe some input from her would help I am sorry that I do not remember the name. Just a thought!

Peace,

SherryHi Molly,My doctor isn't up for any nobel prizes in medicine either but he expressed concern over my wanting to cut back on the Vioxx I take. He told me that very often once you make progress and cut back on the meds if you notice a change for the worse and don't do anything about it sometimes what worked before doesn't work anymore. Maybe it's just the nature of RA or maybe he's completely off base but that was his opinion. I have also heard of people not getting their RA back after a pregnancy. Hope you're one of the lucky ones! Best Wishes,DeeTo unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Hi Molly,

My understanding is that you can remain on the AP during a pregnancy,

however, your antibiotic should be switched to erythromycin. I believe

the chief risk of taking mino while pregnant is that it can cause damage

to your child's teeth while erythromycin does not have that problem. I

would definitely ask your doctor and particularly your ob/gyn about

whether being on erythromycin would be okay but I'm pretty sure it is.

Best of luck and happy gestating. :}

Hugs

a

Mike Schroeder wrote:

>

> Hey group...I have asked this before but didn't get much feedback....thought

> I would try again. I have RA and have been on minocycline for almost 2

> years with HUGH success!!! My husband and I are considering another baby

> but we are worried that when I go off the mino it may not have the same

> success once I go back on after the baby...

[Guest guest]

Try Ceralyte,

<A HREF= " http://www.ceralyte.com/ " >Cera Products, LLC</A>

It has a brown rice syrup in it instead of glucose

I have severe MCS & food allergies & I cannot tolerate sugar or glucose at

all. But this works great for me.

[Guest guest]

The Gookinaid sweetener is based on corn products (corn syrup). You

may have an intolerance to that. Try looking for something without it.

I've use a product called " Recharge " which I get at my local Whole

Foods store. I like it's taste better.

You can also try licorice extract. It increases blood pressure and

salt retention. It tastes awful to me, but works really well. You can

find licorice products at Whole Foods too.

I doubt that your hypothalamus is damaged. I think you need more time

to stabilize after having such problems. High protein diet can help.

This is just based on my personal experiences, not on any science or

medical basis. So please be careful whatever you choose to do.

Cheryl

> I have posted a few times concerning gookinaid, but didn't get much

> response, but I am hoping those who are on it or who have tried it

> could post their responses.

>

> The reason I ask is that I have been on it for about 8 months and it

> has helped tremendously with blood volume problems, but over that

> time my food allergies and hypoglycemic type symptoms have gotten

> worse. I am not tolerating it well at all and have stopped. The

> problem is that without it, my blood volume problems are so much

> worse than before I started it at all (dizziness, tire easily, POTS,

> etc). I have only been off about 1 week. I am wondering if my body

> was just so used to it that it has to adjust to not having it, or if

> my hypothalamus is just more impaired now and unable to regulate

> blood volume.

>

> I am thinking about going back on it, but sipping it very slowly over

> the course of the day to avoid the spikes in blood glucose. I am

> wondering if others who have hypoglycemic problems have been been

> able to use gookinaid by sipping it slowly. I am just wondering if I

> am being paranoid about it, or if it is a problem for others as

> well. I have been doing a lot of other treatments over the past 8

> months that may been the cause of the food allergies and other

> problems.

>

> In a post of Cheney's notes on gookinaid, he said that he only had

> one or a few patients that had a problem with it, but that by sipping

> it slowly they were able to take it.

>

> If not gookinaid any other suggestions? I tried the homemade

> gookinad drink, but it killed my stomach as do salt tabs. I wish

> they would make a sugar free gookinaid. It may not be as effective,

> but it would provide the salt and other electrolytes in a buffered

> solution.

>

> Sorry so long.

>

> Ron Z.

[Guest guest]

Lois, My son has a shunt for hydrocephalus. I don't know TOO much about them,

enough to know signs of malfunction. In fact I JUST joined an EMAIL list for

hydrocephalus, where I ask questions about shunts and neurosurgery.

Can I help?

Tammy & Nate

[Guest guest]

Kathie

I am on the Duragesic Patch and for me it has really helped. Every once in

awhile when I over do I still use my Lortabs and am also on Soma 4x daily. Ive

had no side effects. Im only on 25mg on the Duragesic. Think maybe if I got

boosted up to 50mg I could delete the Lortabs. Hope this helps. You can email me

privately if you have other questions at john.kammerer@...

in Florida

Question for Group

I have had a total of ten back surgeries over the past 13 years and

so far all of my surgeries have been failures to some extent. I am in

constant pain which has effected every part of my daily life. I

currently take Lortab and Soma to help control my pain and muscle

spasms. I have tried just about every other type of medication to

help control my pain and the medications have either made me very...

ill or they didn't help at all.

Today I saw my doctor and he suggested that I try a Duragesic patch

in combination with the Lortab and Soma. My question to the group is

has anyone ever used the Duragesic patch and if so did it help. If it

did help how did it help and if it didn't did the patch cause any

side effects?

Any help on this would be greatly appreciated.

Kathie

[Guest guest]

Kathie,

Spend a few dollars and read a book by Dr. E Sarno or borrow

from the library. He's dealt with many patients with repeatedly

failed remedies with success because he's found a source most

doctors won't acknowledge...'stress', believe it or not. Anyway, I

am gonna see him the end of Sept for my problem. See my post

titled 'Dr. Sarno'.

Ricky

raguas@...

> I have had a total of ten back surgeries over the past 13 years

and

> so far all of my surgeries have been failures to some extent. I am

in

> constant pain which has effected every part of my daily life. I

> currently take Lortab and Soma to help control my pain and muscle

> spasms. I have tried just about every other type of medication to

> help control my pain and the medications have either made me

very...

> ill or they didn't help at all.

>

> Today I saw my doctor and he suggested that I try a Duragesic

patch

> in combination with the Lortab and Soma. My question to the group

is

> has anyone ever used the Duragesic patch and if so did it help. If

it

> did help how did it help and if it didn't did the patch cause any

> side effects?

>

> Any help on this would be greatly appreciated.

>

> Kathie

[Guest guest]

> He's dealt with many patients with repeatedly

failed remedies with success because he's found a source most doctors won't

acknowledge...'stress', believe it or not. <

It is not as uncommon as you think. All of my docs have asked me in their own

way if I was stressed out. One even asked me how my marriage was. Hello...I am a

newlywed and still in the blissful honeymoon stage. Really pissed me off as I

felt he was minimizing my problem.

Viv

[Guest guest]

I was walking bent over and now am stick straight, except for my new bum which I

love.

>

> From: Diane1B@...

> Date: 2004/08/08 Sun PM 01:37:04 EDT

>

> Subject: QUESTION FOR GROUP

>

> To All Flat Backers, I would really like to know how many members that

> had Flat Back & were walking all bent over before Revision Surgery are

> now Erect???

> I would not have surgery just to rid myself of pain because I know it is

> not going to happen. I have already had 4 Laminectomies & 2 fusion ( one

> an A/P Fusion with bone grafts, Harrington Rods & 3 mts in a body cast

> but was not any better.

> Then I had the Posterior Fusion in 92, ans in 95 herniated the 2 disks

> above my L4 Fusion. Both Revision Drs I have seen have said I need

> Revision Surgery with Osteotomies. I see Dr Boachie & when I read

> s post saying he has done over 500 of these I decided I am going to

> let him do it.

> The reason I ask how many people are erect after Revision Surgery is

> that is " THE ONLY REASON I WOULD HAVE THE SURGERY " I know my pain

> level may only drop a little if at all but OH to only be abel to be

> erect again would be worth having the surgery for.

> I appreciate anyones input.

> Warm Hugs To All,

> Diane B

>

>

>

>

> Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

>

[Guest guest]

I had my revision in January. I feel pretty good - I have pain on one side that

is primarily muscular. It is at the level of the osteotomy. I control it mainly

with Lidocaine patches and the occasional Percocet or Oxycodone if necessary.

I still get v.tired in the afternoons but I do have 3 boys under 9 and the

fatigue may not have anything to do with my back!!!

I just drove 5 hours to NC and back and was able to drive comfortably. I can

probably sit for an hour tho I need a straight back chair- nothing low and

cushy. I am returning to work in Sept. I might have been able to sooner but do

not think I would have healed as quickly had I pushed myself, and my husband

works so I was able to take the summer to devote to healing.

I can pick up things off the floor but cannot lift heavy things. I, too, amn

happiest when waiting (and had to go on disability for a yr when I was

undergoing a debilitating treatment for hepatitis C) so I sympathize with your

desire to stay productive as much as possible.

I do not know your personal circumstances but for me at least I think the

revision has helped my ability to do things.

>

> From: " Floyd Theriot " <labsol@...>

> Date: 2004/08/10 Tue AM 08:30:47 EDT

> < >

> Subject: Re: QUESTION FOR GROUP

>

> ,

>

> How long ago was your revision and how do you feel? If you still have pain,

> are you taking narcotics or something else? Can you pick something up from

> the floor? Can you sit for an hour with out pain? Are you able to work?

>

> I will be having revision in the next few years. I am thinking about going

> back to school. I am a nurse (RN)and may need an advanced degree to be able

> to work in the future. I don't know if the time and money invested in a BSN

> or Masters would be worth it at this point. I love working with people and I

> feel that I would be pretty depressed if I had to take disability and stay

> at home.

>

> Thanks,

>

> HR 1977, HARMS NOW.

> QUESTION FOR GROUP

> > >

> > > To All Flat Backers, I would really like to know how many members that

> > > had Flat Back & were walking all bent over before Revision Surgery are

> > > now Erect???

> > > I would not have surgery just to rid myself of pain because I know it is

> > > not going to happen. I have already had 4 Laminectomies & 2 fusion ( one

> > > an A/P Fusion with bone grafts, Harrington Rods & 3 mts in a body cast

> > > but was not any better.

> > > Then I had the Posterior Fusion in 92, ans in 95 herniated the 2 disks

> > > above my L4 Fusion. Both Revision Drs I have seen have said I need

> > > Revision Surgery with Osteotomies. I see Dr Boachie & when I read

> > > s post saying he has done over 500 of these I decided I am going to

> > > let him do it.

> > > The reason I ask how many people are erect after Revision Surgery is

> > > that is " THE ONLY REASON I WOULD HAVE THE SURGERY " I know my pain

> > > level may only drop a little if at all but OH to only be abel to be

> > > erect again would be worth having the surgery for.

> > > I appreciate anyones input.

> > > Warm Hugs To All,

> > > Diane B

> > >

> > >

> > >

> > >

> > > Support for scoliosis-surgery veterans with Harrington Rod Malalignment

> Syndrome. Not medical advice. Group does not control ads or endorse any

> advertised products.

> > >

[Guest guest]

Dear Diane,

I had revision surgery in February of 2004. I now stand very straight.

Everyone is impressed with my posture, as am I. However, I do notice that

my muscles at times still want me to lean forward and to the left. I do

need to intentionally stand up straight regardless of what my muscles

naturally do. I hope this will gradually change over time. Before surgery

I could not stand up straight without nerve pain in my left leg and right

groin area, muscle spasms in my back and arthritic bone to bone pain in the

spine. Now I still have nerve pain in my left foot/leg, but much less, and

some occasional pain in my back. I still take hydrocodone two to four times

a day. But I can stand and walk straight and I do feel stronger every week,

although it is more like a few days forward and a couple of days back as I

progress. A few days of low atmospheric pressure leading to damp rainy

weather does not help. Sunshine and in the eighties is wonderful. I have

never been so sensitive to the weather before.

Two new symptoms appeared since surgery: an inability to clentch my fists

and a torn ligament in my left shoulder rotator cuff. How did this happen?

I don't know and the three doctors I have seen so far have yet to figure it

out. I see my fourth doctor tomorrow. Possiblities: reaction to

antibiotics while I was in the hospital and alergy to metal (not good news

now that I have so much metal in me). These are both remote possibilities.

What has been ruled out by blood test? Rheumatoid arthritis, diabetes and

pernicious anemia. What has been ruled out by hand x-ray? Any injury to

bones of the hands. The results of my left shoulder MRI will be in later

this week.

I share this information about my symptoms because, although these are not

back pains, these all occured shortly after surgery as a side effect of

temporary atrophy or reaction to anti-biotics or anesthesia or alergy to

metal or ....?? It is all very strange, unexpected and baffling.

DESPITE THESE ODD SENSATIONS I AM GLAD TO HAVE HAD THE REVISION SURGERY AND

I DO NOT REGRET MY DECISION AND I WILL SING PRAISES OF MY DOCTOR, DR. RAND

FOREVER. HE DID HIS BEST. THERE IS NO DOUBT ABOUT THAT, AND HE IS THE BEST

I KNOW.

That's all for now.

>From: Diane1B@...

>Reply-

>

>Subject: QUESTION FOR GROUP

>Date: Sun, 8 Aug 2004 13:37:04 -0400

>

>To All Flat Backers, I would really like to know how many members that

>had Flat Back & were walking all bent over before Revision Surgery are

>now Erect???

>I would not have surgery just to rid myself of pain because I know it is

>not going to happen. I have already had 4 Laminectomies & 2 fusion ( one

>an A/P Fusion with bone grafts, Harrington Rods & 3 mts in a body cast

>but was not any better.

>Then I had the Posterior Fusion in 92, ans in 95 herniated the 2 disks

>above my L4 Fusion. Both Revision Drs I have seen have said I need

>Revision Surgery with Osteotomies. I see Dr Boachie & when I read

>s post saying he has done over 500 of these I decided I am going to

>let him do it.

>The reason I ask how many people are erect after Revision Surgery is

>that is " THE ONLY REASON I WOULD HAVE THE SURGERY " I know my pain

>level may only drop a little if at all but OH to only be abel to be

>erect again would be worth having the surgery for.

>I appreciate anyones input.

>Warm Hugs To All,

>Diane B

>

[Guest guest]

,

How long ago was your revision and how do you feel? If you still have pain,

are you taking narcotics or something else? Can you pick something up from

the floor? Can you sit for an hour with out pain? Are you able to work?

I will be having revision in the next few years. I am thinking about going

back to school. I am a nurse (RN)and may need an advanced degree to be able

to work in the future. I don't know if the time and money invested in a BSN

or Masters would be worth it at this point. I love working with people and I

feel that I would be pretty depressed if I had to take disability and stay

at home.

Thanks,

HR 1977, HARMS NOW.

QUESTION FOR GROUP

> >

> > To All Flat Backers, I would really like to know how many members that

> > had Flat Back & were walking all bent over before Revision Surgery are

> > now Erect???

> > I would not have surgery just to rid myself of pain because I know it is

> > not going to happen. I have already had 4 Laminectomies & 2 fusion ( one

> > an A/P Fusion with bone grafts, Harrington Rods & 3 mts in a body cast

> > but was not any better.

> > Then I had the Posterior Fusion in 92, ans in 95 herniated the 2 disks

> > above my L4 Fusion. Both Revision Drs I have seen have said I need

> > Revision Surgery with Osteotomies. I see Dr Boachie & when I read

> > s post saying he has done over 500 of these I decided I am going to

> > let him do it.

> > The reason I ask how many people are erect after Revision Surgery is

> > that is " THE ONLY REASON I WOULD HAVE THE SURGERY " I know my pain

> > level may only drop a little if at all but OH to only be abel to be

> > erect again would be worth having the surgery for.

> > I appreciate anyones input.

> > Warm Hugs To All,

> > Diane B

> >

> >

> >

> >

> > Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

> >

[Guest guest]

,

Might I suggest the possibility that your two new symptoms could be the

result of positioning during the surgery?

Donna

..>

>Two new symptoms appeared since surgery: an inability to clentch my fists

>and a torn ligament in my left shoulder rotator cuff. How did this happen?

>I don't know and the three doctors I have seen so far have yet to figure it

>out. .>

_________________________________________________________________

Don’t just search. Find. Check out the new MSN Search!

http://search.msn.click-url.com/go/onm00200636ave/direct/01/

[Guest guest]

ASHLEY AND ERIC,

THANKS FOR THE FEEDBACK. YOUR COMMENTS ARE VERY ENCOURAGING FOR THOSE OF US

WHO HAVE NOT HAD REVISION SURGERY.

CINDY HR 1977. HARMS NOW.

QUESTION FOR GROUP

> > > >

> > > > To All Flat Backers, I would really like to know how many members

that

> > > > had Flat Back & were walking all bent over before Revision Surgery

are

> > > > now Erect???

> > > > I would not have surgery just to rid myself of pain because I know

it is

> > > > not going to happen. I have already had 4 Laminectomies & 2 fusion

( one

> > > > an A/P Fusion with bone grafts, Harrington Rods & 3 mts in a body

cast

> > > > but was not any better.

> > > > Then I had the Posterior Fusion in 92, ans in 95 herniated the 2

disks

> > > > above my L4 Fusion. Both Revision Drs I have seen have said I need

> > > > Revision Surgery with Osteotomies. I see Dr Boachie & when I read

> > > > s post saying he has done over 500 of these I decided I am

going to

> > > > let him do it.

> > > > The reason I ask how many people are erect after Revision Surgery is

> > > > that is " THE ONLY REASON I WOULD HAVE THE SURGERY " I know my pain

> > > > level may only drop a little if at all but OH to only be abel to be

> > > > erect again would be worth having the surgery for.

> > > > I appreciate anyones input.

> > > > Warm Hugs To All,

> > > > Diane B

> > > >

> > > >

> > > >

> > > >

> > > > Support for scoliosis-surgery veterans with Harrington Rod

Malalignment

> > Syndrome. Not medical advice. Group does not control ads or endorse any

> > advertised products.

> > > >

[Guest guest]

Hi, --

I would likewise encourage anyone who has not had

revisin surgery to consider it seriously for

persistent problems from previous spinal fusion(s).

Thanks to Dr. Rand and Dr. Ondra, my life is livable.

I am finding the recovery from these last operations

long and somewhat challenging (in part because of an

unexpected complication or two, previously detailed at

length here at " Feisty " ) -- but can hardly imagine

what condition I would be in after NO revision.

I understand how very hard it is to take the plunge

and sign on for the revision. This is a highly

personal decision that can ultimately only be made in

your own heart and gut, as well as with your " higher

reasoning faculties. " My profound best wishes to you

and everyone else in this group who is facing this

momentous decision.

As ever,

--- Floyd Theriot <labsol@...> wrote:

---------------------------------

ASHLEY AND ERIC,

THANKS FOR THE FEEDBACK. YOUR COMMENTS ARE VERY

ENCOURAGING FOR THOSE OF US

WHO HAVE NOT HAD REVISION SURGERY.

CINDY HR 1977. HARMS NOW.

QUESTION FOR GROUP

> > > >

> > > > To All Flat Backers, I would really like to

know how many members

that

> > > > had Flat Back & were walking all bent over

before Revision Surgery

are

> > > > now Erect???

> > > > I would not have surgery just to rid myself of

pain because I know

it is

> > > > not going to happen. I have already had 4

Laminectomies & 2 fusion

( one

> > > > an A/P Fusion with bone grafts, Harrington

Rods & 3 mts in a body

cast

> > > > but was not any better.

> > > > Then I had the Posterior Fusion in 92, ans in

95 herniated the 2

disks

> > > > above my L4 Fusion. Both Revision Drs I have

seen have said I need

> > > > Revision Surgery with Osteotomies. I see Dr

Boachie & when I read

> > > > s post saying he has done over 500 of

these I decided I am

going to

> > > > let him do it.

> > > > The reason I ask how many people are erect

after Revision Surgery is

> > > > that is " THE ONLY REASON I WOULD HAVE THE

SURGERY " I know my pain

> > > > level may only drop a little if at all but OH

to only be abel to be

> > > > erect again would be worth having the surgery

for.

> > > > I appreciate anyones input.

> > > > Warm Hugs To All,

> > > > Diane B

> > > >

> > > >

> > > >

> > > >

> > > > Support for scoliosis-surgery veterans with

Harrington Rod

Malalignment

> > Syndrome. Not medical advice. Group does not

control ads or endorse any

> > advertised products.

> > > >

[Guest guest]

Dear Diane B.,

I am a lurker in the group and only chime in when asked or if I feel I can help.

I have had three revisions with a great surgeon in Denver Colorado. I am totally

upright now after years of looking at the carpet. I have level shoulders, the

thing I am most pleased with, after years of pulling up my right shoulder so I

didn't draw attention to myself. With the exception of a bout of hardware

irratation, I am pain free. I walk two miles a day, shop for as long as I want,

hike and play with my kids. I had awful pain pre revision, in my low back and

right hip and leg. I couldn't walk more than a few feet before I had to sit

down. I thank God daily for my surgeon Dr. Anant Kumar, who stuck with me, and

got me to pain free land. It is good to see the sky! I wish you luck with your

next surgery, I know it's a hard decision, but being upright is great!

Colorado Springs

QUESTION FOR GROUP

To All Flat Backers, I would really like to know how many members that

had Flat Back & were walking all bent over before Revision Surgery are

now Erect???

I would not have surgery just to rid myself of pain because I know it is

not going to happen. I have already had 4 Laminectomies & 2 fusion ( one

an A/P Fusion with bone grafts, Harrington Rods & 3 mts in a body cast

but was not any better.

Then I had the Posterior Fusion in 92, ans in 95 herniated the 2 disks

above my L4 Fusion. Both Revision Drs I have seen have said I need

Revision Surgery with Osteotomies. I see Dr Boachie & when I read

s post saying he has done over 500 of these I decided I am going to

let him do it.

The reason I ask how many people are erect after Revision Surgery is

that is " THE ONLY REASON I WOULD HAVE THE SURGERY " I know my pain

level may only drop a little if at all but OH to only be abel to be

erect again would be worth having the surgery for.

I appreciate anyones input.

Warm Hugs To All,

Diane B

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

[Guest guest]

Diane B., I do not know how bent-over you may be, but I myself had one

of the very worst cases of hunched-over-sidewalk-gazing four years

ago. I had revision surgery with Rand in Boston in 2001, and

the difference was astounding. People could not believe the change

when they saw me -- to the average observer, I was completely erect.

I needed additional revision surgery this past year, which I underwent

with Ondra in Chicago. The esthetic results are excellent, and

I seem to have had at least some improvement in pain (so far, at least

-- lost some old pains, acquired some new ones!).

I'm sure you know that no one can promise you 100 percent success, and

the surgery is not without complications. I am not entirely sure what

I would have decided myself if pain had not been such a major,

consuming issue for me. I think I would have had the revision -- the

deformity is a bad one to live with, as you certainly know. It only

gets worse, and it causes all kinds of additional physical problems

with time.

I am impressed with your realism when it comes to the pain-issue.

, I am also impressed with your freedom from pain -- what a

wonderful outcome. I can identify with much else that you wrote about

your experience. I'm glad you " came out of hiding " to share your

comments with us.

Best,

> Dear Diane B.,

>

> I am a lurker in the group and only chime in when asked or if I feel

I can help. I have had three revisions with a great surgeon in Denver

Colorado. I am totally upright now after years of looking at the

carpet. I have level shoulders, the thing I am most pleased with,

after years of pulling up my right shoulder so I didn't draw attention

to myself. With the exception of a bout of hardware irratation, I am

pain free. I walk two miles a day, shop for as long as I want, hike

and play with my kids. I had awful pain pre revision, in my low back

and right hip and leg. I couldn't walk more than a few feet before I

had to sit down. I thank God daily for my surgeon Dr. Anant Kumar, who

stuck with me, and got me to pain free land. It is good to see the

sky! I wish you luck with your next surgery, I know it's a hard

decision, but being upright is great!

>

>

> Colorado Springs

> QUESTION FOR GROUP

>

>

> To All Flat Backers, I would really like to know how many members

that

> had Flat Back & were walking all bent over before Revision Surgery are

> now Erect???

> I would not have surgery just to rid myself of pain because I know

it is

> not going to happen. I have already had 4 Laminectomies & 2 fusion

( one

> an A/P Fusion with bone grafts, Harrington Rods & 3 mts in a body cast

> but was not any better.

> Then I had the Posterior Fusion in 92, ans in 95 herniated the 2

disks

> above my L4 Fusion. Both Revision Drs I have seen have said I need

> Revision Surgery with Osteotomies. I see Dr Boachie & when I read

> s post saying he has done over 500 of these I decided I am

going to

> let him do it.

> The reason I ask how many people are erect after Revision Surgery is

> that is " THE ONLY REASON I WOULD HAVE THE SURGERY " I know my pain

> level may only drop a little if at all but OH to only be abel to be

> erect again would be worth having the surgery for.

> I appreciate anyones input.

> Warm Hugs To All,

> Diane B

>

>

>

> Support for scoliosis-surgery veterans with Harrington Rod

Malalignment Syndrome. Not medical advice. Group does not control ads

or endorse any advertised products.

>

>

>

[Guest guest]

>

> Before you had the Conns Syndrome treated did you feel like their

> were burst of adrenaline, kind of like you were scared. Because

now

> that the gland is gone I don't have it at all I wondered if it was

> anything to do with it.

I had that too, still do (but severely reduced). It would last 2-3

days... sucked! Since other endocrine tumors do this, I am in

grave disagreement with Dr. Grim that we don't get " bursts " of

aldosterone. Why would conn's be any different?

Thanks,

Mike

[Guest guest]

---

That is why I asked because my doctor would say that I was'nt (like

he was in here with me) Maybe it is not the aldostorone but perhaps

the aldostorone is stimulating something else " adrenaline? " But

sucked is right, I never had it again after the surgery, maybe that

is why I am fat and deal with depression because I have the

metabalisum of a snail

In hyperaldosteronism , " lord_mike_the_great "

<lord_mike_the_great@y...> wrote:

>

>

> >

> > Before you had the Conns Syndrome treated did you feel like

their

> > were burst of adrenaline, kind of like you were scared. Because

> now

> > that the gland is gone I don't have it at all I wondered if it

was

> > anything to do with it.

>

> I had that too, still do (but severely reduced). It would last 2-

3

> days... sucked! Since other endocrine tumors do this, I am in

> grave disagreement with Dr. Grim that we don't get " bursts " of

> aldosterone. Why would conn's be any different?

>

> Thanks,

>

> Mike

[Guest guest]

Bill here is a Rural Canadian medical clinic guideline. I found it when I

was doing research for setting up the level of care and procedures for the

middle east. You should be able to find support for your argument on this

page. You may have to type the rest of the link in sometimes the group site

chops the link off

http://www.caep.ca/002.policies/002-01.guidelines/recommendations/recommenda

tions.htm

Dan Dittfurth

_____

From:

[mailto: ] On Behalf Of Bill Witmer

Sent: Friday, June 17, 2005 8:56 PM

Subject: question for group

-I have a question I know this is not an American

group per SE but what is the level of care most of the

places you work at? Like I work at a remote Gold Mine

here in Alaska and it is currently a Paramedic level

care but they feel that EMT3 level care is good enough

so I am trying to put together a argument that

standard of care is Paramedic care or higher is

standard. But I need proof, this is a Canadian based

company that I work for and so maybe I am wrong. Is

Canada rated at Paramedic or do they have a different

system..

thanks

Bill Witmer

NREMTP, RT

>

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_____

[Guest guest]

Hi bill

Most if not all of us whom work offhsore and on remote sites function at a

level above " paramedic " as it what a paramedic does ona ambulance we all

tend to have very liberal protocals and routinely provide primary care to

our patient load. such as antibodics, dental care, basicly the same stuff

that your aver GP sees in his office. We also dela with other issues a

paramedic never deals with...health and hygenie. occ heath issues and a pile

of other crap. Ranging form inventory to advisng the client on equipment,

training ERT teams etc;

If I remenber correctly EMT 3 is basicly trauma related or should I say

orientated. So the issues of cardiac and the like are out of thier scope.

Would submit that any remote site needs staff at the very least staff by

paramedics ( or as in the case of some of our fellow providers on the list)

staff with ED, ICU nursing background) this is a profession where paramedic

is where your start.

Regards

Tom g

Sakhalin island

>From: Bill Witmer <billemtp2000@...>

>Reply-

>

>Subject: question for group

>Date: Fri, 17 Jun 2005 10:55:36 -0700 (PDT)

>

>

>

>-I have a question I know this is not an American

>group per SE but what is the level of care most of the

>places you work at? Like I work at a remote Gold Mine

>here in Alaska and it is currently a Paramedic level

>care but they feel that EMT3 level care is good enough

>so I am trying to put together a argument that

>standard of care is Paramedic care or higher is

>standard. But I need proof, this is a Canadian based

>company that I work for and so maybe I am wrong. Is

>Canada rated at Paramedic or do they have a different

>system..

>

>

>thanks

>

>Bill Witmer

>NREMTP, RT

> >

>

>

>

>

[Guest guest]

I agree but I am trying to put proof together that

there needs to be a change. As it is now we are now

running as emt 3 and only allowed lido bolus and epi

nothing else. Nearest hospital 3 hours by ground

> >

> >

> >

> >

> >

>

>

>

Bill Witmer

NREMTP,CCEMTP,FP-C