Day from hell for 24 hr EEG HELP

[Guest guest]

Went to Childrens Med in Cincinnati (which we have been very happy with). Signed in @ 10am. Dr. Came in asked some questions, explained minimal. My husband and I suggested "soft" arm restraints (which we had from Childrens Med from Dayton) so he would NOT remove electrodes or cap, & .....He said "NO, we will wrap him, put on the electrodes w/a cap, then remove the body wrap. I do not believe in restraints"

We tried to explain to him our sons first response would be to remove all on his head!!!

4 hours later as we waited very nicely, the child across the hall (getting his EEG) DISTROYED the room & all equipment DUE TO NO RESTRAINTS.

Dr. Returned to our room, still would not allow soft arm restraints......SO.....WE LEFT!!!!! 4 hours later!

I WAS NOT GOING TO PUT OUR SON THROUGH THIS, KNOWING WHAT THE OUTCOME WAS GOING TO BE. Not successful.

So our Dr. Called while in route home and suggested a medication called 'Trileptal' (combination similar to Depakote & Tegratol)

Please...Please, has anyone used this medication????

Our son is now 16.5, 5'7", 150 lbs. Me.....old & 110 lbs.

Anyone have any info on this please, you can respond to me at imokru2@...

Thanks,

DKW

[Guest guest]

My boys are scheduled to have EEG's, but since I know they will not cooperate, they will be sedated. Is there a reason you didn't choose to sedate your son, during the proceedure?

Sara

Day from hell for 24 hr EEG HELP

Went to Childrens Med in Cincinnati (which we have been very happy with). Signed in @ 10am. Dr. Came in asked some questions, explained minimal. My husband and I suggested "soft" arm restraints (which we had from Childrens Med from Dayton) so he would NOT remove electrodes or cap, & .....He said "NO, we will wrap him, put on the electrodes w/a cap, then remove the body wrap. I do not believe in restraints"

We tried to explain to him our sons first response would be to remove all on his head!!!

4 hours later as we waited very nicely, the child across the hall (getting his EEG) DISTROYED the room & all equipment DUE TO NO RESTRAINTS.

Dr. Returned to our room, still would not allow soft arm restraints......SO.....WE LEFT!!!!! 4 hours later!

I WAS NOT GOING TO PUT OUR SON THROUGH THIS, KNOWING WHAT THE OUTCOME WAS GOING TO BE. Not successful.

So our Dr. Called while in route home and suggested a medication called 'Trileptal' (combination similar to Depakote & Tegratol)

Please...Please, has anyone used this medication????

Our son is now 16.5, 5'7", 150 lbs. Me.....old & 110 lbs.

Anyone have any info on this please, you can respond to me at imokru2erinet

Thanks,

DKW

[Guest guest]

My son,now 11yrs,has had to be sedated for them to put the electrodes

on.Once done then they basically wrap his head with gauze covering the

wires and electrodes so he cannot get to them ,let alone pull them

off.We used chloralhydrate(sp?)when he was younger ,he was around 7

when we had the last one.Our kids tend to be very " resistant " to the

" normal " doses for children so being that he's older,stronger they may

need to put him completely out .My son did well with " laughing gas " at

the dentist.It's quick..just need to breathe it in for a few

seconds..then he's out.Then they start the IV.He had his teeth pulled

this way so maybe this would be just the thing.

As for the

trileptal,http://www.trileptal.com/index.jsp?usertrack.filter_applied=true & NovaI\

d=7852773795532706207

I don't have personal experience with it but my son was dx'd with

complex partial seizures and the 1st med we tried was tegretol.It

worked well for a while but then we ended up having to change meds.We

finally ended up with a combo-depakote/klonopin.Took this for several

years and it worked.If this med is similar then that may be a good

thing but I caution you that all meds have different side effects and

tolerance levels from one individual to another so what works well for

one may not for someone else.

stacey

>

> My boys are scheduled to have EEG's, but since I know they will not

cooperate, they will be sedated. Is there a reason you didn't choose

to sedate your son, during the proceedure?

>

> Sara

>

> Day from hell for 24 hr EEG HELP

>

>

> Went to Childrens Med in Cincinnati (which we have been very

happy with). Signed in @ 10am. Dr. Came in asked some questions,

explained minimal. My husband and I suggested " soft " arm restraints

(which we had from Childrens Med from Dayton) so he would NOT remove

electrodes or cap, & .....He said " NO, we will wrap him, put on the

electrodes w/a cap, then remove the body wrap. I do not believe in

restraints "

> We tried to explain to him our sons first response would be

to remove all on his head!!!

>

> 4 hours later as we waited very nicely, the child across the

hall (getting his EEG) DISTROYED the room & all equipment DUE TO NO

RESTRAINTS.

>

> Dr. Returned to our room, still would not allow soft arm

restraints......SO.....WE LEFT!!!!! 4 hours later!

> I WAS NOT GOING TO PUT OUR SON THROUGH THIS, KNOWING WHAT

THE OUTCOME WAS GOING TO BE. Not successful.

>

> So our Dr. Called while in route home and suggested a

medication called 'Trileptal' (combination similar to Depakote &

Tegratol)

>

> Please...Please, has anyone used this medication????

>

> Our son is now 16.5, 5'7 " , 150 lbs. Me.....old & 110 lbs.

>

> Anyone have any info on this please, you can respond to me

at imokru2@...

> Thanks,

> DKW

>

[Guest guest]

Sedation was not spoken of. Would have had to have been oral....No restraint....NO NEEDLE

-- Re: Day from hell for 24 hr EEG HELP

My boys are scheduled to have EEG's, but since I know they will not cooperate, they will be sedated. Is there a reason you didn't choose to sedate your son, during the proceedure?

Sara

Day from hell for 24 hr EEG HELP

Went to Childrens Med in Cincinnati (which we have been very happy with). Signed in @ 10am. Dr. Came in asked some questions, explained minimal. My husband and I suggested "soft" arm restraints (which we had from Childrens Med from Dayton) so he would NOT remove electrodes or cap, & .....He said "NO, we will wrap him, put on the electrodes w/a cap, then remove the body wrap. I do not believe in restraints"

We tried to explain to him our sons first response would be to remove all on his head!!!

4 hours later as we waited very nicely, the child across the hall (getting his EEG) DISTROYED the room & all equipment DUE TO NO RESTRAINTS.

Dr. Returned to our room, still would not allow soft arm restraints......SO.....WE LEFT!!!!! 4 hours later!

I WAS NOT GOING TO PUT OUR SON THROUGH THIS, KNOWING WHAT THE OUTCOME WAS GOING TO BE. Not successful.

So our Dr. Called while in route home and suggested a medication called 'Trileptal' (combination similar to Depakote & Tegratol)

Please...Please, has anyone used this medication????

Our son is now 16.5, 5'7", 150 lbs. Me.....old & 110 lbs.

Anyone have any info on this please, you can respond to me at imokru2erinet

Thanks,

DKW

[Guest guest]

If sedation wasn't discussed, how do you know what manner in which the sedation would be delivered - oral or injection?

Sara

Day from hell for 24 hr EEG HELP

Went to Childrens Med in Cincinnati (which we have been very happy with). Signed in @ 10am. Dr. Came in asked some questions, explained minimal. My husband and I suggested "soft" arm restraints (which we had from Childrens Med from Dayton) so he would NOT remove electrodes or cap, & .....He said "NO, we will wrap him, put on the electrodes w/a cap, then remove the body wrap. I do not believe in restraints"

We tried to explain to him our sons first response would be to remove all on his head!!!

4 hours later as we waited very nicely, the child across the hall (getting his EEG) DISTROYED the room & all equipment DUE TO NO RESTRAINTS.

Dr. Returned to our room, still would not allow soft arm restraints......SO.....WE LEFT!!!!! 4 hours later!

I WAS NOT GOING TO PUT OUR SON THROUGH THIS, KNOWING WHAT THE OUTCOME WAS GOING TO BE. Not successful.

So our Dr. Called while in route home and suggested a medication called 'Trileptal' (combination similar to Depakote & Tegratol)

Please...Please, has anyone used this medication????

Our son is now 16.5, 5'7", 150 lbs. Me.....old & 110 lbs.

Anyone have any info on this please, you can respond to me at imokru2erinet

Thanks,

DKW

[Guest guest]

Firt thing I would like to say is that I am not a doctor and that no

one is in a position to tell you, the reader, what is best for your

child. Each of us all has to make some difficult decsions concerning

our childrens' care that are often unique to the child.

We had an experience with attempting an EEG when our son started

having nocturnal epileptic siezures a couple of years ago.

A couple of things come to mind when I think back on the experience.

1) Attempting to get our son to sit with that many electrodes on in a

waking state was impossible to achieve.

2) In discussing sedation one of the problems I recall was that it

might limit the success of the EEG as the brain is in a different

state while sedated.

3) Depending on the nature of the seizure, the results may not be

definative. The reason for this, as I recall, had to do with looking

for the readings of a seizure when he wasn't having an active

seizure. (hope that made sense) The fact is that he was only having

seizures at night so if they were attempting to get a reading of the

seizure itself then it would not be likely to happen during the day

at the hospital.

We did end up going with Depakote as a solution to the seizures, and

we have been fortunate enough to say that he hasn't had any since

that decision.

We still aren't sure what brought his threshold down to the point

that he started having seizures, but..after the shock of it all

passed.. we began to think that it was possible he had been having

minor nocturnal seizures for quite some time prior to them presenting.

There are reasons I say this that I won't go into at the moment.

I guess my point is, stick to your guns and don't let doctors do

anything that you don't agree with unless you truly trust them that

much. In addition, it sounds like they need to discuss the options

with you and how those options might impact the testing, as well as

how much success they expect from the testing in the first place.

Good Luck in your efforts.

> >

> > My boys are scheduled to have EEG's, but since I know they will

not

> cooperate, they will be sedated. Is there a reason you didn't

choose

> to sedate your son, during the proceedure?

> >

> > Sara

> >

> > Day from hell for 24 hr EEG HELP

> >

> >

> > Went to Childrens Med in Cincinnati (which we have been

very

> happy with). Signed in @ 10am. Dr. Came in asked some questions,

> explained minimal. My husband and I suggested " soft " arm restraints

> (which we had from Childrens Med from Dayton) so he would NOT remove

> electrodes or cap, & .....He said " NO, we will wrap him, put on the

> electrodes w/a cap, then remove the body wrap. I do not believe in

> restraints "

> > We tried to explain to him our sons first response would

be

> to remove all on his head!!!

> >

> > 4 hours later as we waited very nicely, the child across

the

> hall (getting his EEG) DISTROYED the room & all equipment DUE TO NO

> RESTRAINTS.

> >

> > Dr. Returned to our room, still would not allow soft arm

> restraints......SO.....WE LEFT!!!!! 4 hours later!

> > I WAS NOT GOING TO PUT OUR SON THROUGH THIS, KNOWING WHAT

> THE OUTCOME WAS GOING TO BE. Not successful.

> >

> > So our Dr. Called while in route home and suggested a

> medication called 'Trileptal' (combination similar to Depakote &

> Tegratol)

> >

> > Please...Please, has anyone used this medication????

> >

> > Our son is now 16.5, 5'7 " , 150 lbs. Me.....old & 110

lbs.

> >

> > Anyone have any info on this please, you can respond to me

> at imokru2@

> > Thanks,

> > DKW

> >

>

[Guest guest]

My son had a regular EEG in Oct and he was 4 then and I did not know how they were going to keep him still without sedation! He can be out of control sometimes and also not knowing what is going on is scary to him! I asked for sedation and they said they could not give him that for this and we would do the best we could! He was sedated for his MRI though! Anyhow I could not believe this and still can't but he actually fell asleep! They let me stay in with him and we brought his blanket and his doggie and they put all the stuff on his doggie too! I just calmed him and rubbed his back and could not believe he fell asleep! I am stiil amazed when I think about it! Why do drs decide to do the 24 hour eeg instead of the regular one anyhow? I am just wondering. Stacie BAurora ILSent via BlackBerry by AT&TDate: Tue, 08 Jul 2008 04:56:16 -0000To: <AutismBehaviorProblems >Subject: Re: Day from hell for 24 hr EEG HELP Firt thing I would like to say is that I am not a doctor and that no one is in a position to tell you, the reader, what is best for your child. Each of us all has to make some difficult decsions concerning our childrens' care that are often unique to the child. We had an experience with attempting an EEG when our son started having nocturnal epileptic siezures a couple of years ago. A couple of things come to mind when I think back on the experience. 1) Attempting to get our son to sit with that many electrodes on in a waking state was impossible to achieve. 2) In discussing sedation one of the problems I recall was that it might limit the success of the EEG as the brain is in a different state while sedated. 3) Depending on the nature of the seizure, the results may not be definative. The reason for this, as I recall, had to do with looking for the readings of a seizure when he wasn't having an active seizure. (hope that made sense) The fact is that he was only having seizures at night so if they were attempting to get a reading of the seizure itself then it would not be likely to happen during the day at the hospital. We did end up going with Depakote as a solution to the seizures, and we have been fortunate enough to say that he hasn't had any since that decision. We still aren't sure what brought his threshold down to the point that he started having seizures, but..after the shock of it all passed.. we began to think that it was possible he had been having minor nocturnal seizures for quite some time prior to them presenting. There are reasons I say this that I won't go into at the moment. I guess my point is, stick to your guns and don't let doctors do anything that you don't agree with unless you truly trust them that much. In addition, it sounds like they need to discuss the options with you and how those options might impact the testing, as well as how much success they expect from the testing in the first place. Good Luck in your efforts. > > > > My boys are scheduled to have EEG's, but since I know they will not > cooperate, they will be sedated. Is there a reason you didn't choose > to sedate your son, during the proceedure? > > > > Sara > > > > Day from hell for 24 hr EEG HELP > > > > > > Went to Childrens Med in Cincinnati (which we have been very > happy with). Signed in @ 10am. Dr. Came in asked some questions, > explained minimal. My husband and I suggested " soft " arm restraints > (which we had from Childrens Med from Dayton) so he would NOT remove > electrodes or cap, & .....He said " NO, we will wrap him, put on the > electrodes w/a cap, then remove the body wrap. I do not believe in > restraints " > > We tried to explain to him our sons first response would be > to remove all on his head!!! > > > > 4 hours later as we waited very nicely, the child across the > hall (getting his EEG) DISTROYED the room & all equipment DUE TO NO > RESTRAINTS. > > > > Dr. Returned to our room, still would not allow soft arm > restraints......SO.....WE LEFT!!!!! 4 hours later! > > I WAS NOT GOING TO PUT OUR SON THROUGH THIS, KNOWING WHAT > THE OUTCOME WAS GOING TO BE. Not successful. > > > > So our Dr. Called while in route home and suggested a > medication called 'Trileptal' (combination similar to Depakote & > Tegratol) > > > > Please...Please, has anyone used this medication???? > > > > Our son is now 16.5, 5'7 " , 150 lbs. Me.....old & 110 lbs. > > > > Anyone have any info on this please, you can respond to me > at imokru2@ > > Thanks, > > DKW > > >