advice please

[Guest guest]

alice..................thanks for the advice.......

lenny

[Guest guest]

Lenny,

Please go to Cochlear.com and hit the link for shop online and then store. Then

go to Accessories for ESPrit 3G. This is what you want to order.

Product ID: Z60520 Category: ESPrit 3G, Accessories

Esprit 3G

Jacket<http://www.cochlearamericas.com/storefront/detail.asp?product_id=Z60520>

Description: Specifically designed for the 3G systems, the Esprit 3G jacket is a

custom-fit cover that slides over the earhook of the processor. It provides

increased moisture and perspiration resistance in active situations.

I'm giving up trying to just send links.

Alice

hello.........I received my implant on aug 9 at beth israel medical center in

nyc and am anxiously awaiting my turn on date which is sept 1

when i wore 2 hearing aids and exercised, i used a sweat

band inside a hat to keep the sweat from affecting the hearing aids....what do

you recommend to protect the speech processor?? i have read about covers to

put

on the processor.........

any recommendations would be greatly appreciated

Lenny

[Guest guest]

" .......I am a 30 year female from scotland and I have been

diagnosed with

> cholesteatoma.........

>

Hi Vicki

You have every reason to feel apprehensive and nervous with your

problem, particularly as you say you are " new " to the surgery

routine. You should talk over your worries with your surgeon on the

22nd - be totally open and frank: you will learn a great deal to

your advantage, I am sure. What you may discover is that the

planned surgery is less invasive than you've been fearing all along.

So far as the anaesthetic procedure is concerned, well it's really a

breeze so you shouldn't worry unduly about that either, and as for

post-op pain, if it's any consolation I had " the works " when I had

my operation last year (in Surrey) Not only was it all totally pain

free, I was home within 24 hours!

I'm afraid the discharge from your affected ear is par for the

course - well it was for me and I think most folk have it as well.

My ear discharged for a good many months (and smelt positively

dreadful too) so there's certainly nothing unusal in that occurring,

so again, try not to be too concerned.

One thing is for certain. Once the presence of a cholesteatoma has

been established (and the CT scan you've had is one of the ways the

surgeon corroborates his suspicion this is what may be wrong)

there's only one safe option, and that is to have it removed, and

the quicker the better.

Hang on in there, and keep us all informed how you get on. Ask as

many questions as you like and, by the way, Oodles of luck in the

forthcoming weeks.

[Guest guest]

Thanks

I will let you know how I get on.

Fingers crossed

Vicki

>

> " .......I am a 30 year female from scotland and I have been

> diagnosed with

> > cholesteatoma.........

> >

> Hi Vicki

>

> You have every reason to feel apprehensive and nervous with your

> problem, particularly as you say you are " new " to the surgery

> routine. You should talk over your worries with your surgeon on

the

> 22nd - be totally open and frank: you will learn a great deal to

> your advantage, I am sure. What you may discover is that the

> planned surgery is less invasive than you've been fearing all along.

>

> So far as the anaesthetic procedure is concerned, well it's really

a

> breeze so you shouldn't worry unduly about that either, and as for

> post-op pain, if it's any consolation I had " the works " when I had

> my operation last year (in Surrey) Not only was it all totally pain

> free, I was home within 24 hours!

>

> I'm afraid the discharge from your affected ear is par for the

> course - well it was for me and I think most folk have it as well.

> My ear discharged for a good many months (and smelt positively

> dreadful too) so there's certainly nothing unusal in that

occurring,

> so again, try not to be too concerned.

>

> One thing is for certain. Once the presence of a cholesteatoma has

> been established (and the CT scan you've had is one of the ways the

> surgeon corroborates his suspicion this is what may be wrong)

> there's only one safe option, and that is to have it removed, and

> the quicker the better.

>

> Hang on in there, and keep us all informed how you get on. Ask as

> many questions as you like and, by the way, Oodles of luck in the

> forthcoming weeks.

>

>

[Guest guest]

I'm still looking for one in Nashville. MOST ARE

IGNORANT. I'm sure we'll both find one, just a matter

of time. I fear that travel might be involved to find

one that cares, is knowledgeable, and has common

sense. I might be asking too much. lol.

BTW, this sarcastic views of docs come from many, many

years of hunting good ones down. I get most of my good

information from here and curezone.com.

Good luck, I'll post the name of the doc I'll be

seeing when a good one is found.

--- strafmeister <strafmeister@...> wrote:

>

> My lab results showed the following:

>

> T 3 Uptake 28.1 %

> TSH 1.10 uIU/ml

> Free T4 ng/dl

>

> Along with not properly treated Lyme

> Disease/Babesiosis I have very

> little energy. Anyone know of a good Thyroid Doc in

> N. Central Tn.

> Any help would be greatly apreciated. R. Wolff

>

>

>

>

__________________________________

Mobile

Take with you! Check email on your mobile phone.

http://mobile./learn/mail

[Guest guest]

Hello everyone -

I need some advice. As of Monday night my husband and I have decided to

divorce and are currently working on visitation and financial matters. Josh is

in 2d grade, verbal/oral apraxia, global dyspraxia, hypotonia, and sensory

integration dysfunction - we've been around this email line for 3 years now, if

I am counting right. I have contacted the adoption caseworker who handled our

adoption of Josh when he was 4 days old, and I have contacted a few other people

who are professionals dealing with special needs kids (and who also happen to

know Josh and us quite well) so I will be getting advice from them. But, I need

practical advice on how, when, what, etc. to tell Josh. I also need advice on

how to handle what may be difficult for him (not that it's not difficult for

other kids without these needs) in terms of his ability to express his feelings

about what will be going on.

He's quite a kid. Tuesday night - after a day of crying at the office a lot

- I came home and was trying to be strong in front of him (giving myself the out

that, after he went to bed, I could fall apart). We were doing dinner and he

was telling me all the different colors on the plate and I lost it - just

started sobbing as I recalled when hubbie and I bought the dishes. Josh put his

hand on my arm and said, " Mommy hurt. " Just made me sob all the more so I went

into the bathroom to try and get some control. He followed me in, repeating,

" Mommy hurt. " I looked at him and just smiled, said I wasn't hurt but was very

sad. So he gave me a hug and just started doing goofy things, as if to try to

make me feel better.

I don't want to have him in that position of feeling like he needs to make

me feel better and I know that, mostly, that is going to be my thing of trying

to hold it together while with him. On the other hand, one of our friends who

is a LCSW, said it's OK to let him do that a little bit (emphasis on the little)

- that it gives him some control over his own feelings as well and let's him

know that families stick together to help each other out in hard times. What's

everyone's opinion on that?

I contacted school two days ago - called Josh's teacher at home and told her

about all of this. She said that explains, maybe, his behavior on Tuesday

during the day - could have been that our feelings had projected through and he

wound up have a very rough day (could also have been other things, though).

She's wonderful - she said she will work into his daily schedule some extra down

time that he can have a bit more choice on what he wants to do so that he can

have some control over his little world (while ours is coming apart). She's

going to keep her eye on him and watch for any regression or behavior issues, as

are the folks at Easter Seals.

Hubbie has said he wants to have two mornings a week that he can help get

Josh ready for school and off on the bus (he does help with that currently), and

then one night a week for dinner and whatever (probably on a night that I will

have symphony rehearsals). We'll likely do alternating weekends and the rest of

visitation is currently under negotiation. Hubbie will be looking for his own

place (he's still in our house for the month) - he's going to look in our town

but also in a couple of towns about 40 minutes east of us (closer to his work) -

my guess is he's going to look more in those towns than here (for many reasons).

We've always been very united on the Josh-front and I don't see that stopping

so I am not too concerned about that. I am concerned about how to tell him,

what to tell him, when to tell him, and how to help Josh in his ability to

express his feelings.

Any advice is appreciated and, if you want, you can email me offline.

Thanks, Sherry

[Guest guest]

Sherry,

Everyone's divorce is unique in itself, but they all hurt. You might feel a lot

of pain and be very sad. You might also feel like you're going through this all

alone. Some children feel it is their fault that their parents no longer want

to stay together.

It is vey important to answer the questions without emotion and agitation. Some

books I would recommend to you is

Divorce: Good Answers to Tough Questions About (Good Answers to Tough Questions,

16) (Paperback)

by Joy Berry, Bartholomew (Illustrator)

It's Not Your Fault, Koko Bear: Osread-Together Book for Parents & Young

Children During Divorce (Paperback)

by Vicki Lansky, Jane Prince (Illustrator)

Children will go through shock, confusion, guilt, anger and sadness.

Some questions may be

They weren't getting along, but why separate? "

a.. " Why can't Dad just live in the basement? "

a.. " Will I see him anymore? "

a.. " What will it be like without him at home? "

a.. " Where's he gonna live? "

a.. " Who will I live with? "

You may also want to find a divorce support group in your area. Some religious

organizations and wellness centers offer these programs.

Art therapy has always been available to the child with special needs who has a

hard time expressing his emotions. It is easier for a nonverbal child to answer

a multiple choice question rather than an open ended one. I wish I had more

advice, but take one day at a time and some days may be worse than others, but

be strong for you and your son.

I wish you well . . .

Joanne Mulholland

[Guest guest]

Hi yes I have talked to men in the UK on a shot that lasts 12 weeks and

they are not happy on it it is driving up there E2 and does not last 12 weeks

they feel down in 2 weeks. It is called Nebido and you can read this posts at

this link.

http://www.globalandropause.com/forum/disc6_frm.htm

Phil

billyboy20012002 <billyboy20012002@...> wrote:

My doctor has suggested I consider the test shot which lasts 12 weeks

Currently Im on Sustanon250 every 3 weeks which doesnt inconvenience me

in any way.

Anyone had any problems with this 12 week shot which i think is test

undeconate suspended in oil which i guess must be a lot of both.

Personally id like to stay with the Sustanon but im open minded to a

degree.

Also when i take sustanon the test reaches a peak within 24 /48 hours

then tapers off.Would you advise taking an anti estrogen like Clomid

say for a week (3 days prior to injection and 4 days after) until

levels moderate

Regards

[Guest guest]

I didn't know back problems can cause dizzyness. Heart problems such as SVT

can cause all of those symptoms your daughter is experiencing, especially

dizzyness. Have her check herself for a rapid pulse the next time she feels

dizzy. Does she have any chest pain?

Advice Please

Hi I am just posting for a little advice. My 15 yr old daughter had

been suffering with back, right arm pain, headaches, numbness in

hands and other weird things. We went to Suburban Hospital here in

land in friday. They did a MRI on her and found c-5,6,and7 were

bulging and pressing on her nerves to cause these problems for her.

They are having us follow up wiyh a Nerosurgeon sometime next week.

They placed her a steriods and Flexeril for 5 days to start. She has

never had any injury to cause a spine problem. She did have a very

bad spell last year with Lymes menigitis. She has had so much going

on we are very confused. I want the best Nerosurgeon in the area

Washington,Baltimore and even Va. area. I do not want anyone

operating on here until I have all the facts clear. She is so young

to have to deal with this. She is a singer who sings alot, she now

is even having problems with that because she becomes dizzy and

say's it's hard for her to sing even. Just thought I would try and

see if anyone has any ideas.

Thanks,

Sue

[Guest guest]

I know thats why her DR. had her tested for a possible stroke. But

all they came up with was bulging Disc (5,6 and 7). They did check

her pluse and BP laying flat, sitting up and standing. Her pulse did

jump up when she sat up and then againg when she stood. I am just so

scared and confused. I was in the nursing feild for a while and I to

know that being dizzy like that is not just bulging disc. But she

did have MRI and other x-rays a little over a year ago when she had

Lyme's Meningitis and no disc problems appered then.I to am worried

with the heart issue. I am going to talk more with her DR. tommorrow

about doing a EKG also. But why would the disc bulg? Just real shook

up because we almost lost her last year to Lyme's. She had one of

the worst case's they had seen yet. She was very close to

encepilitis (sorry spelling on that!). She is 5' 7 " and is 220, she

has always been a big girl 9 1/2 lbs when born all my others were

7lbs. She does not eat much and tries to walk eveyday. She is home

schooled now because the kids are mean about not being a perfect 10.

She is so talented and beautiful to boot just a little heavier then

others her age. I know she needs to watch how she eats and that has

become eaiser now that she is at home. I am at a complete lose. All

her labs at the hospital came back in the normal ranges. Sorry so

long but I am very worried for her.

Sue

>

> I didn't know back problems can cause dizzyness. Heart problems

such as SVT

> can cause all of those symptoms your daughter is experiencing,

especially

> dizzyness. Have her check herself for a rapid pulse the next time

she feels

> dizzy. Does she have any chest pain?

>

> Advice Please

>

> Hi I am just posting for a little advice. My 15 yr old daughter

had

> been suffering with back, right arm pain, headaches, numbness in

> hands and other weird things. We went to Suburban Hospital here in

> land in friday. They did a MRI on her and found c-5,6,and7

were

> bulging and pressing on her nerves to cause these problems for

her.

> They are having us follow up wiyh a Nerosurgeon sometime next

week.

> They placed her a steriods and Flexeril for 5 days to start. She

has

> never had any injury to cause a spine problem. She did have a very

> bad spell last year with Lymes menigitis. She has had so much

going

> on we are very confused. I want the best Nerosurgeon in the area

> Washington,Baltimore and even Va. area. I do not want anyone

> operating on here until I have all the facts clear. She is so

young

> to have to deal with this. She is a singer who sings alot, she now

> is even having problems with that because she becomes dizzy and

> say's it's hard for her to sing even. Just thought I would try and

> see if anyone has any ideas.

>

> Thanks,

> Sue

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Sue,

My doc at the Jewish Hosp. pain clinic explained to me that

the problems in my C-spine are causing my 'dizzyness'. My

pain/cramp problems cause my heart to sometimes race/palpatate. It

all gets soooo confusing sometimes! My cramp pattern includes my

left arm and neck! Yup! My doc constantly checks for heart

problems- he even had an ultrasounddone on it last year. C-spine

problems do cause a lot of things to happen that are 'false'

indicators of other things.

You may want to look at:

http://newyorker.com/printables/fact/020408fa_FACT

It's kinda long, but well worth the read for anybody considering

surgery. Remember- if you see a surgeon, he will recommend surgery.

A neurologist (non-surgeon type) might be a good place to start your

search. He will know about alternative treatments, and perhaps not

be in a rush for surgery. Surgery is so 'final' and unreversable.

There are lots of things non-surgical that can be done to help

bulging discs. You might see if you can get your doc to Rx some

physical therapy. Those folks can do wonders, but it takes time to

get results. Your daughter may need to do PT the rest of her life-

daily, to handle her problem. If the PT does traction, and it

helps, ask your doc about a homeunit. I use mine 3 or 4 times a day

(C-spine stenosis, pinch nerve, bulging dics, etc.- yeah, I'm a

mess!).

I hope some of this helps.

GBY

>

> Hi I am just posting for a little advice. My 15 yr old daughter

had

> Thanks,

> Sue

>

[Guest guest]

Hi Sue,

I'm in Northern VA. I've gone to town U, Washington U,

private practice, and s Hopkins. My experience, is that

neurologists are a cockey lot. They think very highly of themselves,

and sometimes it is hard to get them to act nice.

It is very strange that your daughter would have so many problems in

her spine, without any injury. Maybe she has some kind of genetic

predisposition, or something happened as a result of the Lymes

meningitis, but I can't, for the life of me, think of what.

There are connective tissue problems that can play into such

troubles, and you need to find out where all this is coming

from...what if they fix this bit, but there is something else

actually going on?

If it were my daughter, I'd go to town or s Hopkins. Then,

if a few different specialists are needed to figure out what is going

on, they are all right there. s Hopkins, in particular, has

extensive pediatric expertise. I didn't see that many kids at

town.

It must be so scary for you and your daughter, having all these

things going on, and not knowing what is happening, or where it will

all lead to.

When I had my c-5/6 surgery, I was having some similar symptoms in my

hands and arms, but not the headaches or dizziness. I went to see the

neurosurgeon, and right that appointment, he set a date the next week

for me to have surgery! It all went really FAST! But I was in a car

accident years ago, and this was a long time coming on.

Before they do any surgery on your daughter, make sure they have a

cogent explanation for why she is getting dizzy, and what may have

caused the disk problems. And the recovery time for two disks can be

longer than just one. Your daughter will need the school to provide

some kind of at-home tutoring, or something, while she recovers.

Goodness...first being sick, and now this. It is a lot to deal with.

Oh, and I also sing...after the surgery, singing is not going to

happen for a while, but I promise, it does come back. But the

breathing tube they put down there, and the swelling, definitely put

a crimp in the singing for a while. When I woke up after the surgery,

the sore throat I had was worse than the surgery pain.

Finally, be very careful with the meds that doctor put her on. Watch

for any side effects, and tell the doc immediately if her dizziness

or headaches get worse. Flexeril can definitely make a person

woozy/tired, but I don't remember getting dizzy on it. And steroids

can work miracles, but they also can have lots of side-effects. The

most common, is when a person gets off of them, sometimes they have a

" rebound " effect, and swell up more than they were before they

started the meds. Both of those medicines are very potent, and often

useful. But they aren't without risk.

Take care. Let us know what you find out. Now I'm curious.

Shulamit

--- sue <sues8550@...> wrote:

> Hi I am just posting for a little advice. My 15 yr old daughter had

>

> been suffering with back, right arm pain, headaches, numbness in

> hands and other weird things. We went to Suburban Hospital here in

> land in friday. They did a MRI on her and found c-5,6,and7 were

>

> bulging and pressing on her nerves to cause these problems for her.

>

> They are having us follow up wiyh a Nerosurgeon sometime next week.

>

> They placed her a steriods and Flexeril for 5 days to start. She

> has

> never had any injury to cause a spine problem. She did have a very

> bad spell last year with Lymes menigitis. She has had so much going

>

> on we are very confused. I want the best Nerosurgeon in the area

> Washington,Baltimore and even Va. area. I do not want anyone

> operating on here until I have all the facts clear. She is so young

>

> to have to deal with this. She is a singer who sings alot, she now

> is even having problems with that because she becomes dizzy and

> say's it's hard for her to sing even. Just thought I would try and

> see if anyone has any ideas.

>

> Thanks,

> Sue

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

We did get one of her Lyme's test back and once again she is

positive. We have an appointment with a nerologist on Friday. I am

not so sure now that this is not something to do with her Lyme's. I

am really considering going the Hopkins route. I also want to

consult with an infectious dieseas doctor and a Nurosurgeon. She is

home schooled so schooling is good. And the meds are making her a

mess. She is moody and just very lazy I guess from the Flexeral.

This all stinks. We are still waiting on even more blood work.

Hospital said by Thursday we should have all labs in. We are just

hanging in there. Thanks for your advice.

Sue

>

> > Hi I am just posting for a little advice. My 15 yr old daughter

had

> >

> > been suffering with back, right arm pain, headaches, numbness in

> > hands and other weird things. We went to Suburban Hospital here

in

> > land in friday. They did a MRI on her and found c-5,6,and7

were

> >

> > bulging and pressing on her nerves to cause these problems for

her.

> >

> > They are having us follow up wiyh a Nerosurgeon sometime next

week.

> >

> > They placed her a steriods and Flexeril for 5 days to start. She

> > has

> > never had any injury to cause a spine problem. She did have a

very

> > bad spell last year with Lymes menigitis. She has had so much

going

> >

> > on we are very confused. I want the best Nerosurgeon in the area

> > Washington,Baltimore and even Va. area. I do not want anyone

> > operating on here until I have all the facts clear. She is so

young

> >

> > to have to deal with this. She is a singer who sings alot, she

now

> > is even having problems with that because she becomes dizzy and

> > say's it's hard for her to sing even. Just thought I would try

and

> > see if anyone has any ideas.

> >

> > Thanks,

> > Sue

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I am introducing myself for the moment, just hello, I'm Jennette from OH. Read

about your daughter Sue and want to say this little bit I've learned. If you

want to have surgery, go to a surgeon. I hope this neurosurgeon is the type to

investigate all options and recommend according to all that is discovered.

Otherwise he's likely to recommend surgery. After an automobile accident in 91

my neck took a turn for the worse and I was sent to a neurosurgeon after a pain

clinic had discovered how bad my damages were. I opted not to have surgery

after researching. Surgery is always an option, but I know it's not always a

cure and often causes more problems. I don't regret my decision. I have discs

that are ruptured, not bulging, but I know the horrible symptoms of compressed

nerves. When I was 15 years old I was riding horses every day and had several

" mishaps " which did a number on my neck and lower back. 10 years later I was

showing signs of degenerative disc disease,

arthritic changes, muscle atrophy and I was diagnosed with Fibromyalgia which I

have to this day along with a bad back. I'm 50 yr old now. Does your

daughter have any back pain? Like you, I wonder why the bulging discs in her

neck. It will be something for me to do some research on. I wonder if she

could be showing signs of Fibromyalgia or Chronic Fatigue Syndrome. Does anyone

in your family have either? There are many safe alternative medicines that you

might try... Acupuncture has helped many people with similar symptoms. I hope

the doctors find something very treatable and the issue of bulging discs is a

thing of the past very soon. Tell your daughter that I have gone through a

similar thing at her age and that she's young and her body can heal so hang in

there and believe. JennetteFrom: sue [mailto: sues8550@...]To:

spinal problems@...: Tue, 06 Dec 2005 23:45:40

-0000Subject: Re: Advice PleaseWe did get one of her

Lyme's test back and once again she is positive. We have an appointment with a

nerologist on Friday. I am not so sure now that this is not something to do with

her Lyme's. I am really considering going the Hopkins route. I also want to

consult with an infectious dieseas doctor and a Nurosurgeon. She is home

schooled so schooling is good. And the meds are making her a mess. She is moody

and just very lazy I guess from the Flexeral. This all stinks. We are still

waiting on even more blood work. Hospital said by Thursday we should have all

labs in. We are just hanging in there. Thanks for your advice.Sue

_______________________________________________

No banners. No pop-ups. No kidding.

Make My Way your home on the Web - http://www.myway.com

[Guest guest]

I'm sorry that the message ran on together.. it didn't look that way on my mail

as I was composing it. Does anyone know why or how I can prevent that in the

future? I'm using web based e-mail at myway.com. Jennette

_______________________________________________

No banners. No pop-ups. No kidding.

Make My Way your home on the Web - http://www.myway.com

[Guest guest]

TY for yor response. We are goning to do all we can for her. She has

been through way to much in the past year. I will let you all know

how my baby is after Friday's appointment. I will have her read your

response. TY for the encouragement!

Sue

From: sue [mailto: sues8550@y...]To:

spinal problems@y...: Tue, 06 Dec 2005 23:45:40

> -0000Subject: Re: Advice PleaseWe did

get one of her Lyme's test back and once again she is positive. We

have an appointment with a nerologist on Friday. I am not so sure

now that this is not something to do with her Lyme's. I am really

considering going the Hopkins route. I also want to consult

with an infectious dieseas doctor and a Nurosurgeon. She is home

schooled so schooling is good. And the meds are making her a mess.

She is moody and just very lazy I guess from the Flexeral. This all

stinks. We are still waiting on even more blood work. Hospital said

by Thursday we should have all labs in. We are just hanging in

there. Thanks for your advice.Sue

>

>

> _______________________________________________

> No banners. No pop-ups. No kidding.

> Make My Way your home on the Web - http://www.myway.com

>

>

>

[Guest guest]

That's normal when you are depressed. I experience every time I'm faced with

depression. I'm going through it now.

Are you taking Lexapro?

advice PLEASE

> Well i went to the doctor and complained to him about not being able

> to think of things to say and hold conversations well anymore. LIke i

> barely think.(its extreme) I mind used to race all the time. Now its

> literallly like crickets in my head.My doctor thinks that it may be

> mild depression. I've been on an antipsychotics for a few months. I

> guess it could be a side effect of that, though my doctor says

> otherwise. Did anyone experience this during their " depression phase " ?

> DO you think that this drug will bring my thoughts back and possibly

> some aspects of my personality???? Please write back and let me know

> ANY thoughts on this.

>

>

>

>

>

>

>

>

[Guest guest]

Howdy,

I know EXACTLY what you are speaking about when you say you cannot hold

a conversation anymore... it is worse then being at a loss for words, there just

aren't any! I have often wondered myself if this was a side-effect of Lexapro,

or Depression itself, but I oftentimes find myself outcast in social situations

because the cat has my tongue. I have been on Lex for almost 3 years for

severe chronic nerve pain, and the depression of becoming disabled so soon, I'm

only 41.

I used to talk to myself, but now I don't even do that much anymore.

peace be with you always

michael

tobin_kershaw <tobin2007@...> wrote:

Well i went to the doctor and complained to him about not being able

to think of things to say and hold conversations well anymore. LIke i

barely think.(its extreme) I mind used to race all the time. Now its

literallly like crickets in my head.My doctor thinks that it may be

mild depression. I've been on an antipsychotics for a few months. I

guess it could be a side effect of that, though my doctor says

otherwise. Did anyone experience this during their " depression phase " ?

DO you think that this drug will bring my thoughts back and possibly

some aspects of my personality???? Please write back and let me know

ANY thoughts on this.

[Guest guest]

Toby,

Is this how you are reacting to the meds? My daughter has been acting crazy,

but she's only been on them for a week for anorexia.

tobin_kershaw <tobin2007@...> wrote: Well i went to the doctor

and complained to him about not being able

to think of things to say and hold conversations well anymore. LIke i

barely think.(its extreme) I mind used to race all the time. Now its

literallly like crickets in my head.My doctor thinks that it may be

mild depression. I've been on an antipsychotics for a few months. I

guess it could be a side effect of that, though my doctor says

otherwise. Did anyone experience this during their " depression phase " ?

DO you think that this drug will bring my thoughts back and possibly

some aspects of my personality???? Please write back and let me know

ANY thoughts on this.

[Guest guest]

The Endo you saw is not up on low T and you should have asked him how many men

he treats for low T. You 200 range is normal for a man 100 yrs. old. The

longer your not on TRT the worse it is going to get for you. Try to have your

Primary Dr. get you a second opinion. And don't use an Endo. Go to

www.allthingsmale.com and read TRT: A Recipe for Success and the HCG update.

See if your can get your Dr. to work with Dr. over the phone. The tests

you need are in the links. This link has a chart in it showing T levels by age.

http://www.natural-hrt.com/andropause04.html

Phil

aliveagain67 <aliveagain67@...> wrote:

Hi, it's been a while since I posted here, please share your opinion

if you would.

I'm hypogonadic, began seeing symptoms about a year and a half ago,

had my T level checked for the first time just over a year ago. My

total T is right around 200 on a scale of 300-1000, this has been

confirmed three seperate times. I've had E2 checked, also ferritin,

thyroid, prolactin, FSH, LH, etc, had a pituitary MRI. Ferritin is

somewhat elevated, but not above the normal range for my lab, SHBG is

low, everything else is fine.

My gp sent me to an endo, he told me to lose weight and relax, said

he didn't believe I was hypogonadic. My insurance company jumped on

that and said since the expert in the situation didn't see a problem,

they're done paying for testing, etc. This has left me hanging for

the last year. My gp treated lots of women with estrogen therapy,

and was not pleased with the results, with the exception of treatment

of osteoporosis. She's not totally against hormone therapy, just

skeptical, and very cautious with it.

I had some issues with ED, that's what sent me to the doctor in the

first place, that has improved, I'm not sure why. Now, the two

obvious symptoms I've got are the large belly I gained in a short

time, and fatigue......not incapacitating fatigue, but definitely

more tired than I think I should be.

My doctor is hoping that increasing exercise, losing weight, etc,

will correct my problem.

Is that really possible? Could it be that I just became too much of

a couch potato and screwed up my T level, or is this just wasted

time? What should I do, should I push for T therapy, or leave things

as they are?

Thanks for your input.

[Guest guest]

>

> Hi Phil-

>

> Really, at this point, it's about my MD signing off on it. Her

> first

> move on the phone yesterday was to suggest going back to the

> endo....I have no interest in that. She's been open minded, has

> reviewed Dr 's site, has listened to what I've had to say about

> this group, etc. The issue is, she was not satisfied with the

> results many of her female patients got when she put them on

> Premarin.

Has she noticed that you are not female and that you don't want Premarin?

> She sees that hormone therapy has its place, but she's not

> convinced it can do everything some people claim.

I'm not convinced it can do everything some people claim either. You

could the same thing about any treatment. It doesn't have to do

everything some people claim. It need only do the things important to

you. I have no idea if it will do what you need. I am reasonably

convinced that failed treatments can be discontinued. I see that diet

and exercise changes have their place, but I'm not convinced they can

do everything some people claim.

> She mentioned to me once that there's a risk of stroke when trying

> to raise T levels to normal levels.

Does she routinely recommend castration to eugonadal men in order to

mitigate this risk? If not, what about men perceived to be at high

risk for stroke? Are we talking about the normal risk facing

eugonadal males generally?

Can we assess the quality of the evidence of this risk? Can the risk

be mitigated in any way? Is monitoring lipids or hematocrit of any

value here?

> She was hoping a change in diet and exercise habits would cause my

> T level to rise.

I'm hoping for a pony. So far, no luck. What is the nature of the

change in diet? Eating the testes of deceased beasts? Are you

supposed to exercise more or less?

What evidence supports changes in diet and exercise as a treatment for

hypogonadism in anyone other than those suffering starvation?

> I'm sure we'll check total T

> one more time, I'm also sure it's still in the basement.

>

The definition of insanity is doing the same thing over and over and

expecting different results.

Bon chance,

Brad

[Guest guest]

Hi,

You are in the same town as Dr. Bihari. He charges $500. but it is well

worth it. Do you have a copy of the welcome e-mail. If not please let us

know. Also, if you would not minding telling us your name (or just make us

a nick name), it makes it easier to address you and to feel like we know you

more.

Kindest of regards

Aletha

[low dose naltrexone] Advice Please

>I went to see my neurolosist about two hours ago and inquired about a

> prescription for LDN. Well, my doc said that she had never heard of

> Naltrexone let alone low dose naltrexone and its use in relation to MS

> thereby refusing my request for the presciption. I am in NYC, where

> else can I go to get LDN prescribed. ( I am very new to MS, i just got

> diagnosed in January and am currently on Copaxone).

>

> Thanks in advance for all of the help.

>

>

>

>

>

>

>

>

[Guest guest]

Trish,

As you know, most of us on this group would think you have good

reason to avoid high doses such as the one your DAN! is recommending.

My son weighs 35 pounds. I give him about 8 mg of DMSA and 12 mg of

ALA. The last time we measured urine and fecal metals, we had many

metals being excreted (nickel, aluminum, antimony, arsenic, lead,

cadmium, and others that were at fairly low levels), including

mercury just at the yellow. I certainly don't feel like I'm wasting

my time chelating at that dose, regardless of what any doctor says.

My son is happy during chelation rounds. Comfortable. Safe.

Excreting the poisons that damaged him.

Lots of us got into our situation trust doctors implicitly, many

times going against our gut feeling. Your gut and your brain seem

to be telling you don't risk it. As you said, even at 1/4 the dose

your DAN is recommending your son had problems. Andy has explained

the science behind the fact that you can double the chelator, but

you won't double the pull of metals. You can always up the dose

later if that seems appropriate--but that certainly doesn't seem

appropriate right now.

Hope this helps,

Anita

>> His dr. wanted to give him 200mg every 8 hours to begin with but

I

> told her that I wasn't comfortable with that high of a dosage and

> she said I could do 100mg every 4 hours. And she also said that if

I

> were to give him less than that, I might as well not even bother

> with chelation.

> I am not even comfortable with giving him 50mg yet! Even with 25mg

> every 4 hours he had behavior problems.

Any advice is good right now.

>

> Thanks,

> Trish

>

[Guest guest]

If this were transdermal DMSA, I might say OK. If this is oral...

stick with the 25 mgs.

Pam

>

> My son's DAN dr. just approved chelation for my 5, almost 6 year

old

> son. She said to give him 100mg of dmsa every 4 hours and he only

> weighs 50 lbs! What do you all think? I had started chelation

before

> she okay'd it and am only giving him 25mg every 4 hours. I am

> following Andy Cutler's protocol. I find his protocol to be

logical

> and safe, especially for children.

> His dr. wanted to give him 200mg every 8 hours to begin with but I

> told her that I wasn't comfortable with that high of a dosage and

> she said I could do 100mg every 4 hours. And she also said that if

I

> were to give him less than that, I might as well not even bother

> with chelation.

> I am not even comfortable with giving him 50mg yet! Even with 25mg

> every 4 hours he had behavior problems. I couldn't imagine how he

> would act with 100mg.

> Have any of you given a child the same weight as mine 100mg every

4

> hours? And if so, what happened? Did it work just fine? Or did you

> have big problem in behavior, yeast...? fever?

>

> I just want to be cautious with my son and not overwhelm his

little

> body. Any advice is good right now.

>

> Thanks,

> Trish

>

[Guest guest]

- are you taking any selenium along with your iodine

supplementation? I recently came across a bunch of research that

it's important to keep selenium & iodine in balance or over-

supplementing iodine can worsen goiters. I just posted a bunch of

links on it a couple of days ago if you search. If you can't find

them, let me known, I'll dig them up.

Standard ranges for selenium supplementation are 200-400mcg, with

most sources conservatively recommending 200mcg. Standard medicine

is of the opinion that doses over 1000mcg/day may cause side effects

or toxicity.

My personal opinion, after researching the topic, is that

supplementing with at least 400mcg/day while on high iodine

supplementation seems reasonable. 400mcg is the US FDA UTL (Upper

Tolerable Level). I would then drop down to 200mcg/day when on a

maintenance dose. I started with 200mcg when I started Lugol's 3

weeks ago. I just increased to 400mcg yesterday.

This study seems to indicate that levels of 1600-3200mcg can be well-

tolerated in cancer patients over a 1-year course, with minimal side

effects and toxicity, although the 3200mcg group reported more

symptoms. As a caveat, I would say this level is not recommended as

a daily long-term in a healthy person:

http://www.findarticles.com/p/articles/mi_m0FDN/is_4_9/ai_n9480681

More info on selenium:

http://lpi.oregonstate.edu/infocenter/minerals/selenium/

http://orthomolecular.org/nutrients/micronutrients.shtml

> I started Iodoral therapy 3 months ago and reported to this group

the other day that my cysts on my ovaries are gone. Now I have

another concern and want some advice. I have been doing this on my

own/no doc. I was found to have a small " multinodular goiter " 6

months ago per ultrasound. Since the Iodoral therapy, my throat

area feels more uncomfortable and it feels to me like the goiter has

gotten bigger. What do doctors flechas, Abraham etc. say to do if

your goiter gets bigger on iodine therapy? Should I just stop it?

>

> Thanks for any help

>

>