New member with questions

[Guest guest]

--- Bee <beeisbuzzing2003@...> wrote:

> ==>Debby & , clove oil is not safe for

> pregnancy - this is in

> the clove oil article:

>

http://www.healingnaturallybybee.com/articles/anti1.php

>

> Cautions:

> Clove oil is not recommended for pregnant or nursing

> mothers.

Does that apply to externally too.. as in using to

soothe skin from vaginal yeast?

Luv,

Debby

San , CA

380/242/170

-------------

Character cannot be developed in ease and quiet. Only through experiences of

trial and suffering can the soul be strengthened, vision cleared, ambition

inspired and success achieved. --Helen Keller

My son Hunter Hudson (10/11/04) http://debbypadilla.0catch.com/hunter/

Heal yourself with nutrition: http://www.healingnaturallybybee.com

[Guest guest]

> > ==>Debby & , clove oil is not safe for

> > pregnancy - this is in

> > the clove oil article:

> >

> http://www.healingnaturallybybee.com/articles/anti1.php

> >

> > Cautions:

> > Clove oil is not recommended for pregnant or nursing

> > mothers.

>

> Does that apply to externally too.. as in using to

> soothe skin from vaginal yeast?

==>Hi Debby. Applying anything to the skin is just as effective as

taking it internally, so no, pregnant and nursing mothers shouldn't

use clove oil on the skin either.

Bee

[Guest guest]

Vicki Eisen <vickieisen@...> wrote: Hi

I have a 9 year old son who has autism and pandas/pitands. The pandas/pitands

diagnosis is what has led me to this group and neuroimmune disorder. I have an

appointment with a DAN nutritionist who treats pandas in January. In the

meantime I am looking for suggestions and direction on what to do now.

I have been riding the rollercoaster dealing with psychiatrists, infectious

disease and medical doctors for the past two years. I know more then them and I

certainly don't have all the right answers. I appreciate any guidance that can

be given, I realize I am finally on the right path with a very long journey

ahead.

Vicki Eisen

__________________________________________________

[Guest guest]

HI

You need to get a referral to a physc for a proper dx.

Praying you get the dx that is right for her.

hugs

brenda

Wags! Wags! Wags!

Lowry

"There is no psychiatrist in the world like a puppy licking your face."

Author Ben

Aspergers Treatment From: wisebonzai@...Date: Sun, 9 Dec 2007 11:29:29 -0800Subject: ( ) New Member with questions

Hi. I'm . I have a daughter, 17, and I live in a community of back-hills people and practices and am having a very hard time getting my daughter diagnosed with something.

I have been to many websites. She has all the behaviors/symptoms of Asperger's and I believe she not only has it, but I believe my sister, Scarlette (who died), my sister Penny (who died), and my brothers also have it, and I may very well have had it.

The Psychologist treated my daughter for bi-polar disorder and ADHD and was put on medication that really made her a mess (which I took her off), but it's so much more than that. She can't function in social environments and she is abnormal, even to me. My daughter does not misbehave, but she does things that are abnormal, causing school to call me all the time. She has Indian Ed and goes in to see Josie (her teacher in there who tutors and does extra things for students who are part American Indian), and doesn't go back to the main classroom. They will send someone to go get her. She says she forgot, but she doesn't forget. She just doesn't want to go into the full classroom. I understand that completely! She also cannot follow directions, but we are working on that. She does try. I've seen her with my paper in her hand, trying desperately to get all the right groceries, however always shows up without something. She's a blond, in the fullest meaning of it.

After seeing America's Top Model, and , I realize my own daughter indeed is just like her. Same walk, figure, height, expression...in fact, my daughter will be interviewing for Top Model in 2 years, if all goes well, and we can get her brades changed to the Invisiline.

I also believe my nephew, Devon, has this disorder. He will never be diagnosed, as he is being raised by my mother and she refuses to admit something is wrong . Like my daughter, she is now getting called once a week about his behavior.

I, personally, have been diagnosed with shronic severe depression, CSAD (Chronic Social Anxiet Disorder - to the point I got Agoraphobia, and I cannot figure out how to act in public, and something is always wrong with me when everyone else seems so normal) and I have never belonged anywhere, am brilliant about the things I do know (ie: technology), and test high on IQ tests, but people don't treat me like they understand me. I do not fit in either. Not by any small tidbit of the faction of normal society. I am not the type of person who would project someone else's illness onto myself, however, I do feel that there may be a possibility that my daughter inherited this disorder from me, and that I have been un-diagnosed my entire 42 years of life.

My daughter is exactly the same, but worse, because she's so young and a bit slower than I am, although brilliant about some subjects, such as animal life, the cockatoo, things she has studied in-depth. She has a deficit. She has an IEP at school and she's doing well, and is less than 50 points from passing the Highschool Exit Exam. However, she still has one friend she clings to and gets along with who understands her (a friend who is just like she is) and she has no boyfriends (even though she is gorgeous) and isn't interested in dating, or anything like that. She likes boys, but she doesn't get along with them. She thinks they are cute, but won't talk much about it. She won't talk for long periods of time, but then rambles on and on and on once she does, all by herself, when nobody is listening.

She is not the type of child who acts out, however she cannot function in a social environment and reacts incorrectly. I do it also. I cannot find the right way to react to many situations, and I think everyone knows I am a bit different, and they treat me differently because of it. I feel it's much the same for my daughter.

Where would we go to get a proper diagnosis? I do not want to have my child mis-diagnosed anymore.

It's nice to meet you all.

Thanks,

HO HO HO, if you've been nice this year, email Santa! Visit asksanta.ca to learn more!

[Guest guest]

, I think you're on the right track. There is also something

called Nonverbal Learning Disorder (NLD or NVLD) that is really

similar to Aspergers; you might want to look at that also. I'm not

saying that Aspergers doesn't fit though, just that I was also

looking at NLD when I was trying to decide where my son fits.

Where do you live (state/region), maybe someone here can guide you

as to where to get her evaluated.

single mom, 3 sons

, almost 19, with OCD, dysgraphia and HFA/Aspergers

>

> Hi. I'm . I have a daughter, 17, and I live in a community

of back-hills people and practices and am having a very hard time

getting my daughter diagnosed with something.

>

> I have been to many websites. She has all the behaviors/symptoms

of Asperger's and I believe she not only has it, but I believe my

sister, Scarlette (who died), my sister Penny (who died), and my

[Guest guest]

Hi. I took a test online last night with my daughter. Her score was

Your Aspie score: 136 of 200

Your neurotypical (non-autistic) score: 87 of 200

You are very likely an Aspie

and mine was really suprising

Your Aspie score: 167 of 200

Your neurotypical (non-autistic) score: 36 of 200

You are very likely an Aspie

I know it is an online test, meaning it could be garbage. I am taking it to the local psychologist to find out what he says.

My daughter and I are both verbal. We are able to hold conversations, but I didn't learn till I was much older, in my 20s, how to begin talking with other people. It is like I don't fit into their criteria of socialization, and so it is a bit difficult.

It was put well in one test question, where it asks if I felt like I have to play their game in order to fit in during conversations. This is very typical for me.

My daughter's IEP clearly states that because of her high functioning oral capabilities (she converses well), it would be easy to confuse her with a girl who just doesn't "try" in school, however, her IQ scores are somewhere between 70 and 85, ranging in the lower spectrum of intelligence.

Thankyou,

( ) Re: New Member with questions

, I think you're on the right track. There is also something called Nonverbal Learning Disorder (NLD or NVLD) that is really similar to Aspergers; you might want to look at that also. I'm not saying that Aspergers doesn't fit though, just that I was also looking at NLD when I was trying to decide where my son fits. Where do you live (state/region), maybe someone here can guide you as to where to get her evaluated.single mom, 3 sons, almost 19, with OCD, dysgraphia and HFA/Aspergers>> Hi. I'm . I have a daughter, 17, and I live in a community of back-hills people and practices and am having a very hard time getting my daughter diagnosed with something.> > I have been to many websites. She has all the behaviors/symptoms of Asperger's and I believe she not only has it, but I believe my sister, Scarlette (who died), my sister Penny (who died), and my

[Guest guest]

In a message dated 5/23/2008 5:19:31 P.M. Central Daylight Time,

jvanvelsor@... writes:

my name is Joan, I'm 63, have just had a blood test that indicated RA.

I've had osteoarthritis for a number of years, but in the last 6

months have gotten suddenly much worse. I'm waiting for the

rheumatologist appointment, but am wondering about pain medication.

I've been prescribed vicodin by my primary care Dr., which works

fairly well, but does make me sleepy and changes my moods. Is it

common for people with RA to take pain medications routinely? I don't

want to be in pain, but hate to think I'd have to take pain

medications in addition to whatever RA medication might be

appropriate. What are your experiences? I'd sure like to have some

feedback. I read the list posts and they are helpful to help me

understand better.

Joan,

My story is almost exactly like yours, except I'm 64 --although technically,

it started last November when i was 63.

When I saw the rheumatologist first, he didn't know which of three things I

had, but said the beginning treatment for all three was the same --

Prednisone. He started me on 25 mg a day. I took my first dose at 3:30 and was

able to

teach my dance class at 6:00. It took the pain away. I had been hardly able

to walk that morning. After two weeks. I went back for the results of the

tests and it was RA. So then he started me on MTX -- 6 pills. I'm having quite

a

few side-effects from them and next week am going to try 4 pills.

But the short answer is that I really have no need for pain medication at

this point.

I had told my friends the night before that all I wanted was a magic pill

and it felt like I had been given one --one with side-effects to be sure, but

as far as the pain goes, it was magic.

I still have twinges from the osteo -- but even that feels better.

dd

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

[Guest guest]

Hi Joan, I've had RA for 8 years now, I'm 52. My mtx and remicade handle my RA

pretty well, I take nothing for pain, I don't really have any pain other than

walking after getting up in the morning but that only lasts a minute or two. I

may take 2 tylenol occasionally but that's it. mary in pa

[ ] new member with questions

my name is Joan, I'm 63, have just had a blood test that indicated RA.

I've had osteoarthritis for a number of years, but in the last 6

months have gotten suddenly much worse. I'm waiting for the

rheumatologist appointment, but am wondering about pain medication.

I've been prescribed vicodin by my primary care Dr., which works

fairly well, but does make me sleepy and changes my moods. Is it

common for people with RA to take pain medications routinely? I don't

want to be in pain, but hate to think I'd have to take pain

medications in addition to whatever RA medication might be

appropriate. What are your experiences? I'd sure like to have some

feedback. I read the list posts and they are helpful to help me

understand better.

Thanks

Joan in Fair Oaks.

[Guest guest]

Hi,

When you are prescribed your RA medications ask you dr to wean you off

of prednisone. It can thin your bones out, put weight on you and give

you a moon shaped face. I felt ok while I was taking it but it made

me have Osteoporosis. Prednisone is ok for short term but not for

long term as far as I'm concerned, unless there is nothing else that

can help. As for pain meds, only ibuprofin when I really can't manage.

But Vicodin, I think that it's too heavy duty and addictive.

I try to be a minimalist in drugs...only what is absolutely necessary.

I hope you dr will be working with you for your best interest.

Stella

[Guest guest]

I would really recommend NAE, Nutri adrenal extra, it contains all the B vits and other stuff and i think it really works. You can buy it from yournutritionshop online, I really wouldnt bother with the doc as mine had no idea what I was on about and didnt reacognise the salivary profile I had done, he said it was something he couldnt deal with!!

You can take up to 6 NAE a day but might not need that much, I started on 1 for 5 days then upped it 2 and on the advice of Dr P I have just started 3 a day, they help with the low blood sugar symptoms you seem to have, I had the same and felt sick and as if i needed to eat, I felt wobbly and shaky on my feel. That has got so much better now and has nearly gone infact, but please do read everthing on the TPA site, it will give you loads of infornmation and ways to help yourself

From: Cleave <nautipuss@...>Subject: New member with questionsthyroid treatment Date: Wednesday, 23 July, 2008, 12:20 PM

Hi all, I was recently diagnosed with under-active thyroid and joinedyour group to try and work out what it was all about!I'm a 38 year-old male, living in London. I have a history ofdepression (under control for the last few years) and anxiety (out ofcontrol right now) going back to the mid-nineties.After a routine blood test (supposedly for liver function, apsychiatrist thought I was an alcoholic) I was told that I had an"abnormal" TSH - a follow-up test confirmed TSH of 6.83 mIU/L (0.27 -4.20). When I asked my doctor what that meant he said "you should beon medication", wrote me a script for Levothyroxine 25mcg and told meto book another appointment for 6 weeks time. I was in and out of thesurgery in 10 minutes.This has been the only contact with the medical profession in regardto this, so the rest of the information I have garnered from sitessuch as TPA-UK and some US

sites.The psychiatrist I saw has convinced my doctor to let me see anEndocrinologist, which I'm happy to do as I might be able to get somemore questions answered! I should be seeing them in the next couple ofweeks.I had a couple of questions that I wondered if anyone here couldanswer? Apologies for rambling but I feel a little in the dark right now...

Not happy with your email address?

Get the one you really want - millions of new email addresses available now at

[Guest guest]

Hi , welcome to the forum *hugs* :-). Have you read up on

adrenal fatigue? There's info on the TPA website, also

www.stopthethyroidmadness.com It might be a reason why you are

feeling like that. Also hypoglycemia may be to blame which is often a

symptom of adrenal fatigue and/or hypothyroidism. Do you eat fairly

well? The needing to eat so often, nausea, dizziness etc sounds like

hypoglycemia. You'll need to eat regularly and try to avoid eating

things high in sugar (low GI foods) to keep you blood sugar as

constant as possible so you do get to the point where you 'crash'.

Also your history of high anxiety sounds adrenal related. The adrenal

glands help you cope with stress. Check for signs of adrenal fatigue

(see TPA website), also check your basal pulse and basal temp. Ruth x

PS you're not rambling at all :-)

>

> Hi all, I was recently diagnosed with under-active thyroid and

joined

> your group to try and work out what it was all about!

>

> I'm a 38 year-old male, living in London. I have a history of

> depression (under control for the last few years) and anxiety (out

of

> control right now) going back to the mid-nineties.

>

> After a routine blood test (supposedly for liver function, a

> psychiatrist thought I was an alcoholic) I was told that I had an

> " abnormal " TSH - a follow-up test confirmed TSH of 6.83 mIU/L

(0.27 -

> 4.20). When I asked my doctor what that meant he said " you should be

> on medication " , wrote me a script for Levothyroxine 25mcg and told

me

> to book another appointment for 6 weeks time. I was in and out of

the

> surgery in 10 minutes.

>

> This has been the only contact with the medical profession in regard

> to this, so the rest of the information I have garnered from sites

> such as TPA-UK and some US sites.

>

> The psychiatrist I saw has convinced my doctor to let me see an

> Endocrinologist, which I'm happy to do as I might be able to get

some

> more questions answered! I should be seeing them in the next couple

of

> weeks.

>

> I had a couple of questions that I wondered if anyone here could

> answer? I've been taking the Levothyroxine for 4 weeks now, 25mcg a

> day in the morning with plenty of water. Even so I've been,

> particularly in the last week or so, feeling very nauseous. My

anxiety

> is as bad as ever and I now find myself with the most amazing hunger

> pangs, indigestion and wind. I have to eat within minutes of waking

in

> the morning or I get nauseous, dizzy, flushed, chest pain down my

left

> side and basically " crash " . Food and water seem to help and turn me

> around often with 15 minutes or so. I'm having to eat every couple

of

> hours all day, right up to about 10 at night. The chest pain in my

> side is nasty and not helping my anxiety, even though I know it's

> indigestion related (or anxiety related).

>

> Is this normal? I was hoping that I would start to feel better but

for

> some parts of the day I feel absolutely terrible, it's becoming

quite

> hard to function at my job like this. I have no idea whether it's

the

> anxiety causing it, or the Levothyroxine, or both! I have no idea

what

> I'm going to feel like hour-to-hour (sometimes I feel great, but not

> very often), I think I felt better before the Levothyroxine!

>

> Apologies for rambling but I feel a little in the dark right now...

>

[Guest guest]

Hi ,

Are you doing anything to help with the anxiety? You may find that

once you sort out your thyroid that things may improve, but until

then have you got any strategies in place to help with the anxiety?

If not, I have a couple of good books that I could recommend to

you. Perhaps you could see if your local library has them. I found

that I felt a lot better after I used some of the techniques in one

of the books. My anxiety levels decreased A LOT when I eliminated

gluten from my diet.

Let me know if you are interested in knowing about the books.

P

>

Hi all, I was recently diagnosed with under-active thyroid and

joined your group to try and work out what it was all about!

I'm a 38 year-old male, living in London. I have a history of

depression (under control for the last few years) and anxiety (out

of control right now) going back to the mid-nineties.

[Guest guest]

Hi Ruth

When you took the nutri thyroid did you slowly increase up to 4 a day or just start on 4?

I have just took one for the last 2 days and was wondering when to up it?

From: lostgirl7784 <ruthmillward77@...>Subject: Re: New member with questionsthyroid treatment Date: Wednesday, 23 July, 2008, 6:08 PM

Hi , you're getting there then?! Cool :-) hugs, Ruth x>That has got so much better now and has nearly gone infact, but please >do read everthing on the TPA site, it will give you loads of >infornmation and ways to help yourself

Not happy with your email address?

Get the one you really want - millions of new email addresses available now at

[Guest guest]

Hi again

You really need to make sure you are taking a good dose and a good brand of vits, some arent even worth taking, NAE is good for that. Vit C needs to be 1000mg or more and the indegestion could be caused by candida albicans, again look in the files. Dr P has suggested I do a candida albican salivary profile which I am doing, if you have this it stops the thyroxine being absorbed properly, you need to rule all the things out and of course treat your adrenals, I am slowly getting there with this and will have done all the tests soon!!

From: Cleave <nautipuss@...>Subject: Re: New member with questionsthyroid treatment Date: Wednesday, 23 July, 2008, 5:18 PM

Thanks for the advice Bob, I'll make sure I ask the endocrinologistfor the adrenal test. I noticed adrenals are talked about a lot on here but can't say I'vefully understood what they're about, other than they could beaffecting my anxiety levels. I've been taking vitamin B supplements for the last week or so, andvitamin C on and off. I'll make sure I continue these. I got someLansoprozole from the chemist for my indigestion so hopefully thatwill feel a bit better.Waiting for my doctor to get back off holiday so he can refer me tothe endocrinologist, apparently he has someone in mind.Thanks again for the advice,>> > Hi ,> > You may need to follow up

with the endocrinologist and ask about your > adrenal function ~ which they'll test and say it's perfectly OK by > their test (short synacthen test?).

Not happy with your email address?

Get the one you really want - millions of new email addresses available now at

[Guest guest]

Hi , I started taking it two weeks after starting the NAE,

started on 3 per day for 4 weeks then 6 for a couple of weeks with

one grain of Armour then Armour on its own. Dr P didn't want to start

me on Armour till I'd seen him which is fair enough. My temp rose

over the weeks whilst only on the nutri thyroid so was doing

something! How are you getting on with thyroxine or Armour? How long

do you have to wait before you up the dosage again? Ruth x

>

> From: lostgirl7784 <ruthmillward77@...>

> Subject: Re: New member with questions

> thyroid treatment

> Date: Wednesday, 23 July, 2008, 6:08 PM

>

>

>

>

>

>

> Hi , you're getting there then?! Cool :-) hugs, Ruth x

>

> >That has got so much better now and has nearly gone infact, but

please

> >do read everthing on the TPA site, it will give you loads of

> >infornmation and ways to help yourself

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________________

> Not happy with your email address?.

> Get the one you really want - millions of new email addresses

available now at http://uk.docs./ymail/new.html

>

[Guest guest]

Thanks.. I will probably up it to 2 then, I just didnt want to start on too many.

I am actually on Thyroxine only at a dose of 150mcg and Ithink I am one of the lucky ones that it is working for! Since I have been treating my adrenals with NAE I feel a whole lot better, if only the docs knew to test adrenals before starting thyroid treatment, I would have probably got better quicker than I have. I am due another blood test in a weeks time as I will have been on 150mcg for 6 weeks so we shall see what happens after that, I dont think I will need another increase but not sure

Thanks for your replies

From: lostgirl7784 <ruthmillward77@...>Subject: Re: New member with questionsthyroid treatment Date: Wednesday, 23 July, 2008, 8:56 PM

Hi , I started taking it two weeks after starting the NAE, started on 3 per day for 4 weeks then 6 for a couple of weeks with one grain of Armour then Armour on its own. Dr P didn't want to start me on Armour till I'd seen him which is fair enough. My temp rose over the weeks whilst only on the nutri thyroid so was doing something! How are you getting on with thyroxine or Armour? How long do you have to wait before you up the dosage again? Ruth x > > From: lostgirl7784 <ruthmillward77@ ...>> Subject: [thyroidpatientadvo cacy] Re: New member with questions> thyroidpatientadvoc acygroups (DOT) com> Date: Wednesday, 23 July, 2008, 6:08 PM> > > > > > > Hi , you're getting there then?! Cool :-) hugs, Ruth x> > >That has got so much better now and has nearly gone infact, but please > >do read everthing on the TPA site, it will give you loads of > >infornmation and ways to help yourself> > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> Not happy with your email

address?.> Get the one you really want - millions of new email addresses available now at http://uk.docs. / ymail/new. html>

Not happy with your email address?

Get the one you really want - millions of new email addresses available now at

[Guest guest]

I felt loads better, in fact 'new woman' better on 150mcg but my doctor

felt it was too high a dose, and the diabetologist who also masqurades

as an endo wanted to reduce it even further siteing thinnning bones and

other horror stories on a high dose.

>

> Thanks.. I will probably up it to 2 then, I just didnt want to start

on too many.

> I am actually on Thyroxine only at a dose of 150mcg and Ithink I am

one of the lucky ones that it is working for! Since I have been

treating my adrenals with NAE I feel a whole lot better, if only the

docs knew to test adrenals before starting thyroid treatment, I would

have probably got better quicker than I have. I am due another blood

test in a weeks time as I will have been on 150mcg for 6 weeks so we

shall see what happens after that, I dont think I will need another

increase but not sure

> Thanks for your replies

>

>

[Guest guest]

PLEASE DELETE MOST OF THE MESSAGE YOU ARE RESPONDING TO AND LEAVE ONLY A SMALL

PORTION BEFORE CLICKING 'SEND' . LUV - SHEILA

________________________________________

Hi ,

I'm 3 weeks into levothyroxine and generally feel ok when I take the

meds. I take it as soon as I wake and then try and give myself 20mins

before getting up. My only mistake one day was to take all my meds on

an empty stomach and then I felt very nauseous.

Aside from the time of taking the thyroxine I do feel nauseous at

other times, such as lunchtime or mid afternoon if I have managed to

get past lunch without eating. I do find I need to eat lunch or I

feel nauseous and shaky. A friend said I was actually shaking by the

time we got our lunchbreak when we were at a meeting we both attend

when I was a week on the thyroxine.

Best of luck getting everything sorted.

Jen

>

> The psychiatrist I saw has convinced my doctor to let me see an

> Endocrinologist, which I'm happy to do as I might be able to get

some more questions answered! I should be seeing them in the next couple of

weeks.

>

> I had a couple of questions that I wondered if anyone here could

> answer? I've been taking the Levothyroxine for 4 weeks now, 25mcg a

> day in the morning with plenty of water. Even so I've been,

> particularly in the last week or so, feeling very nauseous.

I have no idea whether it's the anxiety causing it, or the Levothyroxine, or

both! I have no idea

what I'm going to feel like hour-to-hour (sometimes I feel great, but not very

often), I think I felt better before the Levothyroxine!

[Guest guest]

Hi

Welcome to our forum and I hope you get the help and support you so obviously need.

After a routine blood test (supposedly for liver function, apsychiatrist thought I was an alcoholic) I was told that I had an"abnormal" TSH - a follow-up test confirmed TSH of 6.83 mIU/L (0.27 -4.20). When I asked my doctor what that meant he said "you should beon medication", wrote me a script for Levothyroxine 25mcg and told meto book another appointment for 6 weeks time. I was in and out of thesurgery in 10 minutes.

Was your TSH the ONLY thyroid function test they did? You should have had your Free T4 and Free T3 tested and also they should have tested your blood to see if you had antibodies to your thyroiod. It is quite often that a psychiatrist is the one who diagnosis hypothyroidism in their patients who present with depression - as depression is one of the symptoms that having low thyroid reserve causes.The psychiatrist I saw has convinced my doctor to let me see anEndocrinologist, which I'm happy to do as I might be able to get somemore questions answered! I should be seeing them in the next couple ofweeks.

Before you see the endocrinologist, write down all your symptoms and signs www.tpa-uk.org.uk Check under Hypothyroidism and then click on Symptoms and Signs in the drop down Menu. List these. Take your basal temperature every morning for 4 to 5 days before getting out of bed and before eating or drinking anything. Write these results down. Normal temperature is 98.4. If yours is 97.8 or it could be very much less, this is an indication you have low metabolism. Write down all the questions you need answers to and make sure your endo. DOES give you answers and not fob you off. Ask for a FULL thyroid function test and also ask that your ferrition level (stored iron) is tested too. Low iron will stop thyroid hormones from being absorbed by your body.

If you have anybody in your family who has a thyroid problem or sufferers with an autoimmune disease, tell the endocrinologist.I had a couple of questions that I wondered if anyone here couldanswer? I've been taking the Levothyroxine for 4 weeks now, 25mcg aday in the morning with plenty of water. Even so I've been,particularly in the last week or so, feeling very nauseous. My anxietyis as bad as ever and I now find myself with the most amazing hungerpangs, indigestion and wind. I have to eat within minutes of waking inthe morning or I get nauseous, dizzy, flushed, chest pain down my leftside and basically "crash". Food and water seem to help and turn mearound often with 15 minutes or so. I'm having to eat every couple ofhours all day, right up to about 10 at night. The chest pain in myside is nasty and not helping my anxiety, even though I know it'sindigestion related (or anxiety related).

This could be another condition such as hypoglyceamia and perhaps you ened to look at the foods you are actually consuming. However, when anybody starts taking thyroid hormone replacement, it usually means that their adrenals have become pretty worn out in trying to do the job that your lack of thyroid hormones should have been doing and become completely exhausted.

Go to our FILES (you will find these on the home page of this forum website in the Menu column on the left of your screen) Click on that and scroll down until you see the file "Adrenal Questionnaire". Go and answer all the questions that are there and tell us how you score. If high, this is an indication you are suffering with low adrenal reserve. Mention this to your endocrinologist, though to be quite honest, the NHS never appreciate that this problem is rife in those suffering with low thyroid reserve. If he doesn't do anything, you order a 24 hour adrenal profile from Lab 21 (tel: 01223 029618 or write to ron.turner@... and ask him for to send you the kit to test this possibility. it is called the 24 hour salivary adrenal profile. He will give you the details of this. However, it is fairly expensive. You will get the results after they have received them in about a week. Depending upon the results, we can tell you what is recommended to boost your adrenals.

Again, go to our website and under Hypothyroidism, click on 'Related conditions' and then click on Adrenals. Right at the top of the page that opens is an excellent paper written by our own Dr Barry Peatfield on the adrenal/thyroid connection. Read that and it will help you understand what might be happening.Is this normal? I was hoping that I would start to feel better but forsome parts of the day I feel absolutely terrible, it's becoming quitehard to function at my job like this. I have no idea whether it's theanxiety causing it, or the Levothyroxine, or both! I have no idea whatI'm going to feel like hour-to-hour (sometimes I feel great, but notvery often), I think I felt better before the Levothyroxine!

My guess is that your problem is adrenal related. Get them boosted if your private results show low, or you score very high on the adrenal questionnaire (even though the endocrinologist might deny this is a problem. You would need to stop the L-thyroxine while you do this so your adrenals are not being put through extra strain of coping with this new thyroid hormone as well. Once they have been boosted, say a couple of weeks, you can start your L-thyroxine again. While looking at the 'Associated Conditions' that can go hand in hand with hypothyroidism, look also at the other related conditions too and see whether you have one or more of them too.

Apologies for rambling but I feel a little in the dark right now...

Don't apologise , people do need to get out in writing all their problems, especially when you are not being helped by the NHS. You are welcome to ramble on as much as you wish if you need to find answers to your problems.

Luv - Sheila

.. No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.5/1568 - Release Date: 23/07/2008 06:55

[Guest guest]

Hi martin

Here is the link to Dr Peatfield's paper on the adrenal/thyroid connection and after reading this, you will understand so much better what the connection is and why it is SO important to check out your adrenal status and if necessary, get the right treatment before you start on thyroid hormone replacement. If you look at the Patient Information Leaflet (PIL) that is in with your box of Levothyroxine, you might notice that it tells you to tell your doctor before taking Levothyroxine if you have an adrenal problem and that this should be treated first. It is not on all brands of levothyroxine, but it is on most. Doctors will tell you this means 's disease, it doesn't, it means anybody who has low adrenal reserve, however low or high. Point this out to your endocrinologist if he won't agree that hypothyroid sufferers usually also have low adrenal reserve.

http://www.tpa-uk.org.uk/thyroid_adrenal_dysfunction.pdf

Luv - Sheila

Thanks for the advice Bob, I'll make sure I ask the endocrinologistfor the adrenal test. I noticed adrenals are talked about a lot on here but can't say I'vefully understood what they're about, other than they could beaffecting my anxiety levels.

.. No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.5/1568 - Release Date: 23/07/2008 06:55

[Guest guest]

#eri8ka

If your two endocrinoloigst are concerned that you will (or are) get thinning of the bones, why won't they send you for a bone scan to check this out. If your body functions using 150 mcgs, it is less likely to function at a lower dose.

Luv - Sheila

I felt loads better, in fact 'new woman' better on 150mcg but my doctor felt it was too high a dose, and the diabetologist who also masqurades as an endo wanted to reduce it even further siteing thinnning bones and other horror stories on a high dose.>> Thanks.. I will probably up it to 2 then, I just didnt want to start on too many.> I am actually on Thyroxine only at a dose of 150mcg and Ithink I am one of the lucky ones that it is working for! Since I have been treating my adrenals with NAE I feel a whole lot better, if only the docs knew to test adrenals before starting thyroid treatment, I would have probably got better quicker than I have. I am due another blood test in a weeks time as I will have been on 150mcg for 6 weeks so we shall see what happens after that, I dont think I will need another increase but not sure> Thanks for your replies> > No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.5/1568 - Release Date: 23/07/2008 06:55

[Guest guest]

If you feel so well on 150mcg then I wouldnt reduce it, doctors seem to think its a really high dose but it isnt really as some people take 200+. Its all about how you feel at the end of the day, my doctor actually told me that he takes thyroxine and never has blood tests!!!

From: sheilaturner <sheilaturner@...>Subject: Re: Re: New member with questionsthyroid treatment Date: Thursday, 24 July, 2008, 7:31 AM

#eri8ka

If your two endocrinoloigst are concerned that you will (or are) get thinning of the bones, why won't they send you for a bone scan to check this out. If your body functions using 150 mcgs, it is less likely to function at a lower dose.

Luv - Sheila

I felt loads better, in fact 'new woman' better on 150mcg but my doctor felt it was too high a dose, and the diabetologist who also masqurades as an endo wanted to reduce it even further siteing thinnning bones and other horror stories on a high dose.>> Thanks.. I will probably up it to 2 then, I just didnt want to start on too many.> I am actually on Thyroxine only at a dose of 150mcg and Ithink I am one of the lucky ones that it is working for! Since I have been treating my adrenals with NAE I feel a whole lot better, if only the docs knew to test adrenals before starting thyroid treatment, I would have probably got better quicker than I have. I am due another blood test in a weeks time as I

will have been on 150mcg for 6 weeks so we shall see what happens after that, I dont think I will need another increase but not sure> Thanks for your replies> > No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.5/1568 - Release Date: 23/07/2008 06:55

Not happy with your email address?

Get the one you really want - millions of new email addresses available now at

[Guest guest]

Hi , do you feel you're on too high a dose? Any signs of hyper? Is

endo saying this because of blood results? What were they? Ruth x PS

good to hear you're feeling well :-)

>

> I felt loads better, in fact 'new woman' better on 150mcg but my

doctor

> felt it was too high a dose, and the diabetologist who also

masqurades

> as an endo wanted to reduce it even further siteing thinnning bones

and

> other horror stories on a high dose.

>

>

[Guest guest]

I've been popping Boots Vit B pills as well as the (admittedly

infrequent) Boots 1000mg Vit C chewable. i'll definitely look into the

NAE as that seems to be where everyone is saying I should be looking.

Thanks for the advice!

m

>

> Hi again

> You really need to make sure you are taking a good dose and a good

brand of vits, some arent even worth taking, NAE is good for that. Vit

C needs to be 1000mg or more...

[Guest guest]

Thanks Sheila, I'm starting to know understand the role that adrenals

are playing in all this, I'll be sure to ask the endo to do the

appropriate tests and see if that's where the problem is. The TPA site

has been invaluable as well!

Thank you for the support, everyone's been lovely!

>

> Hi martin

>

> Here is the link to Dr Peatfield's paper on the adrenal/thyroid

connection and after reading this, you will understand so much better

what the connection is and why it is SO important to check out your

adrenal status and if necessary, get the right treatment before you

start on thyroid hormone replacement.