Advice Needed

July 1, 2002

Kate's advice is pretty good, Gill. All our individual experiences will be

different, that's why we share the info. I always ask my hepatologist

what's plan B if plan A doesn't work - eg. if it flares up (though I pray

not) after you're off Imuran, what's his plan - is he putting you back on

Imuran, or on something else like what Kate is taking. Perhaps the other

drug has less side effects.

aisha

>From: " Brent Forbis " <bforbis@...>

>Reply-

>< >

>Subject: Re: [ ] advice needed

>Date: Mon, 1 Jul 2002 09:42:33 -0400

>

>Hey Gill,

>I was on Imuran for over a year. I can't remember now if it was tapered

>off

>but I sure was glad to get off of it! It is a pretty scary drug and I was

>afraid of the side effects if I stayed on too long. You will probably feel

>better when you are off of it. I know I did. It is not like coming down

>off of a high dose of prednisone. I did, however, have to go on another

>drug called cyclosporin. This enabled me to taper down to 5mg of

>prednisone

>daily. Try to think in positive terms: if you lab work looks good, it's a

>great sign. Tape a picture of a healthy liver to your mirror and look at

>it

>every morning. Start doing little things to get your energy level up like

>a

>walk around the block - but listen to your body and rest when you need to.

>Take care,

>kate

> [ ] advice needed

>

> > Hi Everyone

> >

> > Hope you are all okay today. Im having a tired day

> > today (again) and have no energy at all. I have my

> > appointment with the doctor at the end of the month

> > and he said that at this appointment if all of my labs

> > were okay he was going to take me off my Imuran (I

> > dont know if it has to be tapered down like the

> > prednisolone was) I am dreading it. He said because

> > of the possible side effects that he would like to try

> > me off the drug. Im so scared of getting sick again

> > and would like to hear from anyone who has came off

> > Imuran whether it be good or bad I need to prepare.

> > Also I would like to ask about dietry advice, my

> > doctor has never said anything about this and Id like

> > information on food/drinks etc.

> >

> > Take care all of you,

> >

> > Gill

> > AIH 99

> > UK

> > e-mail furg@...

> >

> > __________________________________________________

> >

October 26, 2002

lie, Dr. Brown wrote that it is well known that people with rheumatoid disease experience a higher incidence of flareups in the late spring and early fall.

According to a study done some years ago by Dr. ph Hollander, head rheumatologist at the Univ. of PA in Philadelphia, "Two factors were found to cause flare-ups: a sudden drop in barometric pressure, and the presence of high humidity in conjunction with such a drop. Both of them are common atmospheric characteristics prior to a storm. The barometric effect fits our concept perfectly by promoting a sudden release of antigen to a sensitized area."

It is vitally important that you drink loooots of water - a minimum of 1/2 your weight in ounces - and keep that colon cleaned out on a daily basis. Taking 1 rounded tsp. of pysillium in a glass of water once or twice daily is very helpful in avoiding constipation. Generic brands are available at Walmart, Target, etc.

You might want to cut back on your doxy until the flare subsides.

Ethel

rheumatic advice needed

I appreciate this group and now I need some help. I started AP in JAN.2002and had 4-5 months of HERX. Then I started to improve and I felt GREAT inJuly and August. Since Sept. it seems like I have been slipping back. Now Ihave awful joint pain again, weakness and fatigue (I spend most of themorning in bed). Every movement is an effort and painful. It is not asintense as before I started AP but it reminds me of it TOO much! I wastaking DOXY 100mg/day for 5 days a week. I recently switched to 100mg am & pm MWF. For awhile I was sure it was a flare-up now I think it is HERXagain. Maybe I should go down to 50mg in the evening . . . I also havegotten off kilter with elimination which may be part of the problem. I usedColon Cleanser from the Health Food store and it worked real well for acouple years and now seems to do nothing. Any suggestions would beappreciated.lieRA 2 yrs, AP 10 monthsDoxy, Vioxx, Plaquenil, Rheumax, Claritin(helps cut down reactions)Other Supplements (Vit/Min)To unsubscribe, email: rheumatic-unsubscribeegroups

November 11, 2002

-

Welcome to the group!

Sorry to hear your treatment options are limited. Are you in India

now?

Does Melora have torticollis (tight neck muscle that is often

accompanied with limited range of motion and/or tilting)? My son

had tort along with the facial distortions you mentioned you notice

Melora has along with significant ear asymmetry. Tort can aggravate

the plagio because the child prefers to stay on that spot due to the

tight neck muscle.

Try to keep her off that flat spot as much as you can. You can get

some great tips at http://www.plagiocephaly.org/support/repotech.htm

I don't know how much correction you will receive at 10 months, but

it can only help matters!

It may be a long shot, but I would suggest seeing if anyone near you

does cranial sacral therapy. You can get more information on it

here: http://www.upledger.com/therapies/cst.htm

Please let us know how she preogresses.

Dane's mom DOC Grad

> Hi

> I have a baby girl Melora 10 months old whom we suspect of having

> plagiocephaly. We showed her to 2 pediatrics in India and 3

> pediatrics in Kuwait. All of them say that she has a prominent

> forehead. But I am not satisfied. She has a ridge on the center of

> her forehead. Although doctors said they don't required x'ray we

> forced them to do it so that we are sure that the sutures are

> prematurely not closed. And we found it they are still open. I

wrote

> to cranialtech about this and they said their facility is only

> available in Spain and America. Here the doctors are not aware

about

> Plagocephaly and the method of treatment.

> As per our observation we have noticed that her left cheek is

fuller

> than right one and she has little projection on forehead. But her

> right eye is smaller than the left and cheek is flat. When seen in

> the mirror only we notice all these misalignment. Please let me

know

> as per your experience which side is effected and what corrective

> measures should be taken to bring alignment to her face? Which

side

> do you suggest she should lie down when sleeping

>

> stephen

November 11, 2002

Hi & welcome to our group:

Lie Melora down on the opposite side of her flatness to sleep. From

yuor description, it sounds like her flatness & assymmetries on on

her left side, if that's the case, than try to keep her off the left

side while sleeping.

Check out the link gave you for repositioning tips & such.

Hopefully you can get some correction there. The good news, is that

she's old enough now and spends far less time on her back so she

should'nt get any additional flattneing or assymetries.

It is a shame your country doesn't have any helmet treatment

options. Hopefully they will someday. I am very happy though that

you pushed to get her Xrays that did in fact rule out

craniosynostotis. That'a relief.

Good luck - please keep us updated - I hope her pretty head rounds

out soon

Debbie Abby's mom DOCGrad

MI USA

>

> > Hi

> > I have a baby girl Melora 10 months old whom we suspect of

having

> > plagiocephaly. We showed her to 2 pediatrics in India and 3

> > pediatrics in Kuwait. All of them say that she has a prominent

> > forehead. But I am not satisfied. She has a ridge on the center

of

> > her forehead. Although doctors said they don't required x'ray we

> > forced them to do it so that we are sure that the sutures are

> > prematurely not closed. And we found it they are still open. I

> wrote

> > to cranialtech about this and they said their facility is only

> > available in Spain and America. Here the doctors are not aware

> about

> > Plagocephaly and the method of treatment.

> > As per our observation we have noticed that her left cheek is

> fuller

> > than right one and she has little projection on forehead. But her

> > right eye is smaller than the left and cheek is flat. When seen

in

> > the mirror only we notice all these misalignment. Please let me

> know

> > as per your experience which side is effected and what corrective

> > measures should be taken to bring alignment to her face? Which

> side

> > do you suggest she should lie down when sleeping

> >

> > stephen

November 11, 2002

,

I'm so sorry to hear that knowledge of plagio is so limited in

India. I see that gave you some good links to check out.

At 10 months I'm not sure how well Melora will adapt to

repositioning, but it is worth a try. Try to put her to sleep on the

non-flat side. You might check out our " bookmarks " section for

some good repositioning products.

I'm glad you pushed for the x-rays to rule out cranio. Good for you

- that is very important.

I hope you will keep us posted on Melora and how she is doing.

Marci (Mom to )

Oklahoma

> Hi

> I have a baby girl Melora 10 months old whom we suspect of

having

> plagiocephaly. We showed her to 2 pediatrics in India and 3

> pediatrics in Kuwait. All of them say that she has a prominent

> forehead. But I am not satisfied. She has a ridge on the center

of

> her forehead. Although doctors said they don't required x'ray we

> forced them to do it so that we are sure that the sutures are

> prematurely not closed. And we found it they are still open. I

wrote

> to cranialtech about this and they said their facility is only

> available in Spain and America. Here the doctors are not

aware about

> Plagocephaly and the method of treatment.

> As per our observation we have noticed that her left cheek is

fuller

> than right one and she has little projection on forehead. But her

> right eye is smaller than the left and cheek is flat. When seen

in

> the mirror only we notice all these misalignment. Please let

me know

> as per your experience which side is effected and what

corrective

> measures should be taken to bring alignment to her face?

Which side

> do you suggest she should lie down when sleeping

>

> stephen

November 11, 2002

tort stretches

whats tort

babymassage

files

head shapes

Butterfly Support Pillow, positioning aid for premature infants

Baby Pillow, Baby Gift, Prevent Flat head, Baby Gear, Infant Pillow

Boppy Nursing and Infant Support Pillows, Play Mats and Activity Gyms

repostiioing

DOC

Orthomerica

SAFETSLEEP Repositioning Techniques

Baby Slings, Baby rs from Maya Wrap

Snuglbuds Inc., Innovative Infant and Toddler Products

Click here: FAQ

here are some links that might be helpful has she been assessed for torticollis? I wish you lots of luck.

beck

November 29, 2002

,

Remember that some of the people you are dealing with are either sick, or

taking care of someone who is sick and there fore " out of control " of the

situation and tend to take that out on the person behind the counter. In

retail we can become targets (no pun intended there) for the public, being

ill can make some folks unpleasant~ just remember it isn't personal.

Rule #1 Bleeders and Babies first.

And sadly Rule #2 is if someone comes into your store to rob it ...Give

them what they want, you, your coworkers and your customers are more

valuable than a few pills. In the past year it is becoming dangerous to

be a retail pharmacy employee, thankfully no one has been killed yet, but

things are getting more and more dangerous all the time.

Good luck, retail is tough but very rewarding.

MsBeth

>

> Dear group,

>

> Im might get hired at the target pharmacy, can anyone give me some

> advice on retail pharmacy? & nbsp;

>

> Can anyone tell me the technicalities of the retail pharmacy process?

> Any advice and/or links would help.

>

> -kevin

>

November 29, 2002

Hi Beth-

OK, maybe I've been out of retail too long... I get the baby part,

but bleeders? What kind of bleeders are you talking about? Post

miscarriage or abortion patients in need of methergine? Those having

an adverse reaction to anticoagulants and in need of Vit K? If a

person has an active GI bleed they should be in the ER. Please

refresh my memory.

Great reminder for us to remember the population we are dealing with.

Chances are they have spent the better part of the day waiting for

medical attention. They are probably at their wits end by the time

they reach the pharmacy.

You also brought up a very good point on robberies.

Our pharmacy(hospital) was held up at gun point a couple of years

ago. We are located in the middle of the hospital, security cameras

are everywhere, we have bullet a bullet proof window, silent alarms,

a steel door and it STILL happened.

A guy had a rifle wrapped up like a Christmas present. When one of

the techs returning from a delivery opened the door, he strong armed

his way into the pharmacy. If it weren't for a cool headed pharmacist

and quick but calm thinking from the techs it could have been a

massacre. NO kidding!

Sincerely,

Dora

" Beth " <beth@b...> wrote:

> ,

>

> Remember that some of the people you are dealing with are either

sick, or

> taking care of someone who is sick and there fore " out of control "

of the

> situation and tend to take that out on the person behind the

counter. In

> retail we can become targets (no pun intended there) for the

public, being

> ill can make some folks unpleasant~ just remember it isn't

personal.

>

> Rule #1 Bleeders and Babies first.

>

> And sadly Rule #2 is if someone comes into your store to rob

it ...Give

> them what they want, you, your coworkers and your customers are more

> valuable than a few pills. In the past year it is becoming

dangerous to

> be a retail pharmacy employee, thankfully no one has been killed

yet, but

> things are getting more and more dangerous all the time.

>

> Good luck, retail is tough but very rewarding.

>

> MsBeth

>

> >

> > Dear group,

> >

> > Im might get hired at the target pharmacy, can anyone give me some

> > advice on retail pharmacy? & nbsp;

> >

> > Can anyone tell me the technicalities of the retail pharmacy

process?

> > Any advice and/or links would help.

> >

> > -kevin

> >

November 30, 2002

Dear ,

Congratulations! Hope you get the job.

Routinely the Rx Tech:

1. Greets pt at window accepts the Rx

2. Gets pertainent info from pt allergies, DOB, insurance etc

3. Enters data into pt profile/computer system

4. Generates a compute made label.

4. Pulls the drug from shelf

5. Counts, weighs, prepares drug

6. Places meds in appropriate size container/bottle

7. Places Lable asthetically on the bottle/container

8. Places the labeled drug with the drug pulled from the shelf with

the Rx in the correct orgainzed line up to be checked.

9. Places checked ( by RPh) filled drugs in some type of holding area

by last name/alphabetically or some other method.

10. When the pt comes to pick up med, the Rx tech makes sure that the

pt has signed the correct log books or other papers, and 'sees' the

pharmacist for counseling as required/necessary.

11. Along the way if there is a problem with the insurance NOT

accepting the Rx then the Rx tech helps to adjudicate the process by

calling/contacting the insurance company and following the advice

given to him/her.

12. Continually orders meds as meds get low on shelf.

13. Continually calls back doctor's offices for clarification of

orders and for okays on refills.

There is much MORE and I am sure we will hear from some practicing

technicians.....

TIPS: Much of the Retail work centers around customer service.

Some things to remember:

1. Always greet the customer with a smile

2. Always answer the phone with a smile, which will change your tone

of your voice automatically.

3. The customer is a patient and needs to be treated with warmth,

respect and kid gloves. The pt may have just come from the doctor's

office and just been given some devastating news of his/her health

(Cancer, long term recovery etc).

4. Your job is mainly to get the right drug to the right patient in

the right dose (strength and form) and for the right route in the

shortest amount of time and with a great attitude.

a. Be sure it is the right patient by double checking address, phone

number or date of birth when the patient has a common name (or any

other identifying info).

b. Double check the order/prescription for the right dose/strength

and route. Learn how to use the NDC Codes to check correct drug also.

i. Remember if the Rx does not state it, then it is an oral route

unless the drug does not come orally.

ii. Remember if the Rx does not state it then the tablet dosage form

is ordered, unless the drug does not come in tablet form.

(example: Dalmane 20 mg i qhs prn insomnia, this drug comes capsule

only)

c. Make sure that you ask for allergies and double check the

patient's profile to be sure that the allergies are listed and

UPDATED EACH time the patient comes in to the pharmacy. Know what

drugs not to give for which allergy.

i. example for an allergy of sulfa do not give 'azo' drugs such as

sulfmethoxazole/trimethoprim = Septra ® = Bactrim ®

ii. Learn which auxiliary stickers go with which drugs or warnings.

The computer will print out a sticker which may tell you this, but

you also need to know them by heart (most common ones).

d. Report any unusual information to the pharmacist to alert him/her

asap

e. Know abbreviations and transcription process.

f. Learn the computer codes as fast as you can and TAKE NOTES while

learning and being trained by the Target staff. They do not have time

to train and retrain. You will keep the job in this way.

g. Learn the adjudication process: getting a prescription accepted by

the insurance company. Learn the ins and outs of what helps an Rx get

passed/accepted, as well as processed as quickly as possible.

h. Learn your company's call back procedure(s) and always be

courteous to the doctor's office assistant/nurse, who is the one who

will help get info back to you as fast as possible. Always get a

contact phone number and Person's Name!!!!

i. Above all be a team player and help out as much as possible.Do not

stand around for something to do.When not doing anything else always

clean shelves, check for out dates. Be sure to stock the drugs on the

shelf correctly so that the pharmacist and the techs can all find

them according to the chosen method. Usually by generic and

combination/compound drugs by Trade name.But there are varous other

methods.

j. Second to that KNOW YOUR TRADE/GENERICS/CLASSIFCATIONS, be able to

go to the shelf and pull the correct med/strength/dosage form

quickly and accurately count out by 'fives' using the counting tray

or use the electronic counter/equipment, place is the correct size

bottles.

k. Learn Target's way of dispensing via priority: first come-first

serve? or is it pts with crying babies first served? or elderly

waiting pts first served? or pts in pain first served? Meaning if you

take everyone's Rx in line in order in which they were in line, do

you then reorganize the order in which you will fill them, by some

specific pre-determined reasoning or prioritizing method? Or will you

fill as first come first served?

l. Learn as much as you can about availability of the different drugs.

m. Learn as much as you can about the various insurance plans to help

adjudicate (process) the Rx expediently.

n. Third most important: be sure to learn how and when to order a

drug when it is getting low or before it is out of stock. Yet do not

over order and put the pharmacy in debt. (Remember they do not have a

lot of shelving space.)

Hope this helps you.

Respectfully,

Jeanetta Mastron CPhT BS Chemistry

Pharmacy Technician Educator

Founder/Owner

> Dear group,

>

> Im might get hired at the target pharmacy, can anyone give me some

> advice on retail pharmacy?

>

> Can anyone tell me the technicalities of the retail pharmacy

process?

> Any advice and/or links would help.

>

> -kevin

November 30, 2002

Dear Dora,

I think that this (bleeders) is more prevalent or seen in pharmacies

that are located close to hospitals or traige centers. " Bleeders " is

another way of saying someone " Obviously Bandaged " and in pain or an

Emergency situation. Of course on crutches also is in this category.

It is " said " in the Retail Field as a way of calling attention to

those who have just left ER for treament and are now picking up meds

for that ER treatment or trying to do their own Emergency Treatment.

You will see bandages, splints and crutces as things to alert you

that you may need to pay attention to them first.

I do realize that you meant literally that if we someone bleeding

that they need medical attention and should not be in the pharmacy,

but in ER. But the TRUTH is many people do not have insurance and

there may be an occasion where someone goes to the retail Rx in such

a state and asks for help. This happens in big cities more often than

you might expect!

I recall when I was first on my own, I had a lot of dinner guests

comming within the hour. I burned my hand with at least 2 degree

burns on a frying pan. I went across the street to ask what to put on

it. ASAP the RPh told me about this product that I can't find any

more called Follie and it was the greatest. That night I ended up in

ER AFTER my guests ate the spiced carrots, apricot chicken and twice

cooked stuffed potatoes that I had made. Out of pocket about $150.

So in retail we see things that ER should have. So " Bleeders " is a

metaphor for Emergency Cases of all TYPES and is not to be taken

literally, yet you will see some real bleeding cases from time to

time.

I hope this helps you understand where Beth is coming from.

Thanks for your input.

Respectfully,

Jeanetta Mastron CPhT

> > ,

> >

> > Remember that some of the people you are dealing with are either

> sick, or

> > taking care of someone who is sick and there fore " out of

control "

> of the

> > situation and tend to take that out on the person behind the

> counter. In

> > retail we can become targets (no pun intended there) for the

> public, being

> > ill can make some folks unpleasant~ just remember it isn't

> personal.

> >

> > Rule #1 Bleeders and Babies first.

> >

> > And sadly Rule #2 is if someone comes into your store to rob

> it ...Give

> > them what they want, you, your coworkers and your customers are

more

> > valuable than a few pills. In the past year it is becoming

> dangerous to

> > be a retail pharmacy employee, thankfully no one has been killed

> yet, but

> > things are getting more and more dangerous all the time.

> >

> > Good luck, retail is tough but very rewarding.

> >

> > MsBeth

> >

> > >

> > > Dear group,

> > >

> > > Im might get hired at the target pharmacy, can anyone give me

some

> > > advice on retail pharmacy? & nbsp;

> > >

> > > Can anyone tell me the technicalities of the retail pharmacy

> process?

> > > Any advice and/or links would help.

> > >

> > > -kevin

> > >

November 30, 2002

> Dear group,

>

> Im might get hired at the target pharmacy, can anyone give me some

> advice on retail pharmacy?

>

> Can anyone tell me the technicalities of the retail pharmacy

process?

> Any advice and/or links would help.

>

> -kevin

also learn everything you can about the different insurance plans,

co-pays and formularys when they tell " you my co-pay should only be

$10.00 " have an answer for them regarding their particular insurance,

co-pays increase all the time and the customers either are not

notified or they don't take the time to read the information sent to

them by the insurance company, usually it is the latter, and learn

the differnt day supply for the insurance plans some allow 90 days

and some allow 30 days, hope this helps a little

November 30, 2002

Excellent advice Judi! I tried to cover this in the bit about

adjudication but not with your specific words.

Jeanetta

> > Dear group,

> >

> > Im might get hired at the target pharmacy, can anyone give me

some

> > advice on retail pharmacy?

> >

> > Can anyone tell me the technicalities of the retail pharmacy

> process?

> > Any advice and/or links would help.

> >

> > -kevin

> also learn everything you can about the different insurance

plans,

> co-pays and formularys when they tell " you my co-pay should only

be

> $10.00 " have an answer for them regarding their particular

insurance,

> co-pays increase all the time and the customers either are not

> notified or they don't take the time to read the information sent

to

> them by the insurance company, usually it is the latter, and learn

> the differnt day supply for the insurance plans some allow 90 days

> and some allow 30 days, hope this helps a little

December 1, 2002

Dear ,

Use my links section to help you with various advanced studies.

I placed the following in the links section several weeks ago. I

suggest you study the prescription transcription, which will help you

to decipher and to type labels.

" " " Prescriptions Galore!

Actual 'copies' of prescriptions and how to dechiper /translate them.

good for practice and for study for PTCB exam!

http://pharmsci.buffalo.edu/courses/phc311/lecturekeys/dosing.pdf

rxjm2002 " " "

Hope this helps you out!

Respectfully,

Jeanetta Mastron CPhT

Founder/Owner

> Dear group,

>

> Im might get hired at the target pharmacy, can anyone give me some

> advice on retail pharmacy?

>

> Can anyone tell me the technicalities of the retail pharmacy

process?

> Any advice and/or links would help.

>

> -kevin

May 1, 2003

hi debbie

i live in australia to, and have been on this list for about 1 month as

well. our son has been gfcf since xmas and i to would live to use the

enzymes , but have had problems getting them... so if anybody can help...it

would be great.

gaye

Advice needed

>Hi all. I have just joined this group. I have a five year old son

>with high functioning Aspergers. We have been trialing a gf diet for

>a month now. I have recently heard about products that can eliminate

>the need for a gf diet or at the very least pick up 'accidental'

>gluton foods. My son has severe and sometimes violent tantrums and I

>would have to say that behavoural concerns are the main reason why we

>went gf.

>I would really appreciate any advice on products. I live in Australia.

>Debbie

>

May 1, 2003

How is the gfcf going?

Debbie

Advice needed

>Hi all. I have just joined this group. I have a five year old son

>with high functioning Aspergers. We have been trialing a gf diet for

>a month now. I have recently heard about products that can eliminate

>the need for a gf diet or at the very least pick up 'accidental'

>gluton foods. My son has severe and sometimes violent tantrums and I

>would have to say that behavoural concerns are the main reason why we

>went gf.

>I would really appreciate any advice on products. I live in Australia.

>Debbie

>

May 1, 2003

australia doesn't have the population for sophisticated supplements

like this, you have to order from the usa. (i am in tasmania)

i just ordered some today from www.houstonni.com

pep, zyme and no fenol.

takes about one and a half to two weeks. credit card seems to be

quite safe.

> hi debbie

> i live in australia to, and have been on this list for about 1

month as

> well. our son has been gfcf since xmas and i to would live to use

the

> enzymes , but have had problems getting them... so if anybody can

help...it

> would be great.

> gaye

> Advice needed

>

> >Hi all. I have just joined this group. I have a five year old son

> >with high functioning Aspergers. We have been trialing a gf diet

for

> >a month now. I have recently heard about products that can

eliminate

> >the need for a gf diet or at the very least pick up 'accidental'

> >gluton foods. My son has severe and sometimes violent tantrums and

I

> >would have to say that behavoural concerns are the main reason why

we

> >went gf.

> >I would really appreciate any advice on products. I live in

Australia.

> >Debbie

> >

May 1, 2003

Just got my first order of peptizide, I live in Sydney and it took 3 1/2

weeks. It was opened by postal customs. Has Dr Devin thought of expanding??

PS Adam is day 6 on the enzymes (mild AS) and going well.

Trish (Aus)......Probably have to order my next lot tomorrow.

Advice needed

> >

> > >Hi all. I have just joined this group. I have a five year old son

> > >with high functioning Aspergers. We have been trialing a gf diet

> for

> > >a month now. I have recently heard about products that can

> eliminate

> > >the need for a gf diet or at the very least pick up 'accidental'

> > >gluton foods. My son has severe and sometimes violent tantrums and

> I

> > >would have to say that behavoural concerns are the main reason why

> we

> > >went gf.

> > >I would really appreciate any advice on products. I live in

> Australia.

> > >Debbie

> > >

May 1, 2003

>>>We have been trialing a gf diet for a month now.

How is that going? What have you seen so far...or what are the

problems you encountered?

>>>I have recently heard about products that can eliminate the need

for a gf diet or at the very least pick up 'accidental' gluton

foods.

Peptizyde may eliminate the need for a GFCF diet. Most people can do

that if they like. It has been quite successful for 2 years now. If

you are celiac though, there are not any known enzymes for that at

the moment.

There are an assortment of enzymes that can be used with a GFCF for

trace accidental things. Different enzymes are pretty picky about

what they work on. Often a certain blend is more effective where as

the individual enzymes are not. Here is a list of which enzymes tend

to target which foods:

http://www.enzymestuff.com/basicswhichenzyme.htm

>>>My son has severe and sometimes violent tantrums and I would have

to say that behavoural concerns are the main reason why we went gf.

Has it helped any? How is his sleeping? And what types of foods does

he eat most? one more question, LOL: does he much artificial

colorings, flavorings, or preservatives? The real aggressive type

behavior and hyperness seems to be tied to those for many people. No-

Fenol from www.houstonni.com may help. The site on feingold has

information on symptoms and what may trigger them. You can look at

this site and see if anything there sounds familiar:

www.feingold.org

Also, epsom salts are pretty cheap and easy to do, and this might

help:

www.enzymestuff.com/epsomsalts.htm

>>>> I would really appreciate any advice on products. I live in

Australia.

While you are waiting for the Pep and possibly No-Fenol, you want to

see what enzyme products are available in your area.

You have some great resources in Australia. The Royal Something

Something Place (someone help me out here) has done a lot of work on

food chemicals, both artificial and naturally occurring. They have

the Failsafe program.

.

May 1, 2003

Hi debbie

You might find it useful to browse around at www.enzymestuff.com, info on

lots of stuff there Epsom salts is under related therapies I think

Absolutley I can vouch for HNI prodcuts my son Sam is off the CFGF diet with

them for nearly 2 years now We used Petizyde and HN Zyme for that. Late

last year we got onboard with the No Fenol with great success, not only with

phenols but for yeast too.

Happy reading

MAndi in UK

> I'll get back to you later today with answers to your questions. So you are

> saying that Peptizyde we could go off the diet (don't know if I would

> though

> but it is a huge pain with him) and that No-fenal may help with the

> tantrums. I have read about the Peptizyde but would love a users opinion,

> it

> is safe and what are the side effects? I have never heard of No-fenal. Do

> you use it? What does the Epson Salts do. So many questions....

> Thanks in advance.

> Debbie

>

May 1, 2003

I'll get back to you later today with answers to your questions. So you are

saying that Peptizyde we could go off the diet (don't know if I would though

but it is a huge pain with him) and that No-fenal may help with the

tantrums. I have read about the Peptizyde but would love a users opinion, it

is safe and what are the side effects? I have never heard of No-fenal. Do

you use it? What does the Epson Salts do. So many questions....

Thanks in advance.

Debbie

Re: Advice needed