Advice Needed

[Guest guest]

We use Houston's enzymes Zyme Pryme for the gluten issues. Works great for us.

However, reading DeFelice's book or Lipski or McCandless or Seroussi will

provide immense insight as to what you are experiencing, may experience and how

to counter act it, when to wait it out. I wish you lots of luck.

Advice needed

Hi all. I have just joined this group. I have a five year old son

with high functioning Aspergers. We have been trialing a gf diet for

a month now. I have recently heard about products that can eliminate

the need for a gf diet or at the very least pick up 'accidental'

gluton foods. My son has severe and sometimes violent tantrums and I

would have to say that behavoural concerns are the main reason why we

went gf.

I would really appreciate any advice on products. I live in Australia.

Debbie

[Guest guest]

Hi Debbie

We use AFP, Zyme prime and No Fenol all from Devin Houston. We are still

partially GFCF but slowly adding foods. Dairy tolerance is slower than

gluten in our case.

There is an increasing number of Australian families using these enzymes, so

good luck. The delivery is reliable and payment can be arranged via credit

card safely. You can email or 'phone Devin Houston with particular queries

and he is prompt to reply/return calls.

fee free to contact offlist if you would like to chat.

Fran

Melbourne

Australia

[Guest guest]

Thanks for that info Fran. If you don't mind I have a few more questions.

Do you have a web address or contact details for Devin Houston.

Would you mind telling me what each product is for and whether they are safe

to use for a 6 year old.

A lot of people seem to use Peptizyde as well, is AFP the same thing?

Is one of those products an enzyme?

Have you seen improvement since using the products, particularly in the area

of behaviour.

Thanks in advance. It is all a bit confusing.

Debbie

Re:Advice needed

Hi Debbie

We use AFP, Zyme prime and No Fenol all from Devin Houston. We are still

partially GFCF but slowly adding foods. Dairy tolerance is slower than

gluten in our case.

There is an increasing number of Australian families using these enzymes, so

good luck. The delivery is reliable and payment can be arranged via credit

card safely. You can email or 'phone Devin Houston with particular queries

and he is prompt to reply/return calls.

fee free to contact offlist if you would like to chat.

Fran

Melbourne

Australia

[Guest guest]

> These are my questions exactly. I've ordered the Peptizyde and I

> understand that (although I'm not 100% on dosage and how to go about

> weaning her back on to wheat). I could use some really basic info

> on leaky gut and yeast and also on exactly whan No-fenal is supposed

> to address. And the whole Epsom salt thing is totally new to me.

Phenol info

http://www.danasview.net/phenol.htm

Dana

[Guest guest]

Thanks .

Debbie

Re: Advice needed

We use Houston's enzymes Zyme Pryme for the gluten issues. Works great for

us. However, reading DeFelice's book or Lipski or McCandless or

Seroussi will provide immense insight as to what you are experiencing, may

experience and how to counter act it, when to wait it out. I wish you lots

of luck.

Advice needed

Hi all. I have just joined this group. I have a five year old son

with high functioning Aspergers. We have been trialing a gf diet for

a month now. I have recently heard about products that can eliminate

the need for a gf diet or at the very least pick up 'accidental'

gluton foods. My son has severe and sometimes violent tantrums and I

would have to say that behavoural concerns are the main reason why we

went gf.

I would really appreciate any advice on products. I live in Australia.

Debbie

[Guest guest]

Fran, I hope you don't mind but I have a couple more questions

How long does the order take to get here if you use your credit card and

order online?

I am guessing that you about double the online cost, is that right?

What sort of dosage should I start with. I ordered the three that you use.

Can I mix them in a drink or similar before school for him to have at snack

and lunch time or do they deteriate over that time.

Thanks again. Please tell me if I am being a pain. It is all very confusing.

Debbie

Re:Advice needed

Hi Debbie

We use AFP, Zyme prime and No Fenol all from Devin Houston. We are still

partially GFCF but slowly adding foods. Dairy tolerance is slower than

gluten in our case.

There is an increasing number of Australian families using these enzymes, so

good luck. The delivery is reliable and payment can be arranged via credit

card safely. You can email or 'phone Devin Houston with particular queries

and he is prompt to reply/return calls.

fee free to contact offlist if you would like to chat.

Fran

Melbourne

Australia

[Guest guest]

, Did you have any symptoms of overstimulation? Rapid heart beat,

dizziness upon rising, sweaty palms, Or did she just go by the numbers?

My doctor does not just look at numbers, she keeps track of my symptoms.

She allowed me increases in medication until my symptoms began to subside.

Watching for signs of overstimulation. I really did not begin to feel like

myself

again until I reached 200mcg of Synthroid. I also take 25mcg of T3 daily.

I was on Armour first a year ago. It was too irregular for me. The fatigue

never really was resolved either. I have also been sleeping much

better on the increased amount. Probably because more seratonin gets

where it is supposed to now. Anyway, have you discussed symtom

resolution with your doctor at all?

I dont see how taking you off medication all together is going to benefit you.

Unless you were really over the edge with it.

Chriss.

[Guest guest]

She wants to clean you out of all your hormones that she overdosed on

you and start fresh with new tests---boy from 15mg to 150mg is a big

jump--she totally messed up here, so she has no choice but to take

you off of it and get all new numbers to go by. (lab results)

If you start to get really sick before this time limit--call her and

get in sooner and or ask to go back on armour but at a low dose and

then titrate upward ---increasing slowly and then backing down when

you have symptoms of too much---I just posted that a few posts ago---

print it so you know what to expect.

With any drugs even asprin you can have side effects---anytime you

guys feel anything funny call the doctor---stop taking whatever it is

and call----it's not your imagination--these drugs can do damage if

you overdose on them ---Just my opinion---read the labels as

well!!!!!!

tina

-- In hypothyroidism , " " <blondiewolf2000@h...>

wrote:

> I was wondering if anyone may know if what my doctor has done with

my

> medication is common...

>

> I have been struggling with a low thyroid for some time and started

> with a new doc who I thought really knew how to help me. At first I

> was on too low of a dose of Armour when I started with this doctor.

> She put me on a higher dose because it was too low. I was on 15mg

of

> Armour then she put me on 120mg. After blood work the results came

> back that it was too high. So she cut me back to 90mg. Then after

> another blood test, that came back too high also. So now my doctor

> has taken me completely OFF of medication for 6 to 8 weeks and then

> another blood test will be taken at that time to see where I am at.

>

> Is that common to take you off of medication completely?

>

> If anyone can help me with this that would be great!

> Thank You!

>

>

[Guest guest]

My first visit with her she said she wanted to see how I feel before

really looking at the numbers. Then later she seemed more interested

in the numbers. She was concerned about my pituitary gland shutting

down. When I was on a higher dose of 120 I did have rapid heart

beat. When I went down to 90 I don't remember having a rapid heart

beat. But, something didn't feel right? I don't know how to explain

it. I was putting weight on too. Maybe the Armour was causing some

side effects? I don't know?

This past week I have been getting a deeper voice, having chills,

putting weight on, losing eyelashes and hair. I also have been a very

bad emotional wreck! Like I am losing it! Today I took some of my

armour and this evening I felt maybe a little better, unless it was

my imagination. It is hard to say...I may need more than one day to

start to feel better. I have been off of the meds for a little over

two weeks now.

I don't know what the numbers are from the tests, I still need to get

them.

I am planning on maybe seeing a new doctor in December who is suppose

to be good. It looks like he does other tests, not just the TSH.

Thanks for your help.

> , Did you have any symptoms of overstimulation? Rapid heart

beat,

> dizziness upon rising, sweaty palms, Or did she just go by the

numbers?

> My doctor does not just look at numbers, she keeps track of my

symptoms.

> She allowed me increases in medication until my symptoms began to

subside.

> Watching for signs of overstimulation. I really did not begin to

feel like

> myself

> again until I reached 200mcg of Synthroid. I also take 25mcg of T3

daily.

> I was on Armour first a year ago. It was too irregular for me.

The fatigue

> never really was resolved either. I have also been sleeping much

> better on the increased amount. Probably because more seratonin

gets

> where it is supposed to now. Anyway, have you discussed symtom

> resolution with your doctor at all?

> I dont see how taking you off medication all together is going to

benefit you.

> Unless you were really over the edge with it.

> Chriss.

>

>

>

[Guest guest]

Please give us all your symptoms and anything else you could tell the

group---low tempertures?? low blood pressure--I am just confused at

how she would say your pituitary gland is shutting down?? It could

malfunction but it would not shut down. Get all your tests results

tell them you want them or will pick them up or fax them --anything

and get to another doctor right away--you can't go on living like

this.

Don't wait another day.

tina

> > , Did you have any symptoms of overstimulation? Rapid

heart

> beat,

> > dizziness upon rising, sweaty palms, Or did she just go by the

> numbers?

> > My doctor does not just look at numbers, she keeps track of my

> symptoms.

> > She allowed me increases in medication until my symptoms began to

> subside.

> > Watching for signs of overstimulation. I really did not begin to

> feel like

> > myself

> > again until I reached 200mcg of Synthroid. I also take 25mcg of

T3

> daily.

> > I was on Armour first a year ago. It was too irregular for me.

> The fatigue

> > never really was resolved either. I have also been sleeping

much

> > better on the increased amount. Probably because more seratonin

> gets

> > where it is supposed to now. Anyway, have you discussed symtom

> > resolution with your doctor at all?

> > I dont see how taking you off medication all together is going to

> benefit you.

> > Unless you were really over the edge with it.

> > Chriss.

> >

> >

> >

[Guest guest]

I think your doctor is an idiot.

Val in Boulder, CO

-----Original Message-----

From: [mailto:blondiewolf2000@...]

I was wondering if anyone may know if what my doctor has done with my

medication is common...

I have been struggling with a low thyroid for some time and started

with a new doc who I thought really knew how to help me. At first I

was on too low of a dose of Armour when I started with this doctor.

She put me on a higher dose because it was too low. I was on 15mg of

Armour then she put me on 120mg. After blood work the results came

back that it was too high. So she cut me back to 90mg. Then after

another blood test, that came back too high also. So now my doctor

has taken me completely OFF of medication for 6 to 8 weeks and then

another blood test will be taken at that time to see where I am at.

Is that common to take you off of medication completely?

If anyone can help me with this that would be great!

Thank You!

[Guest guest]

I don't know what my temperatures are. I will start taking them

again. They used to be low. Some of my symptoms are: tired, but not

extremely, but I always want to drink coffee to get me going. I don't

have the desire to do things, not much of an appetite, dry skin,

forgetful, weight gain, swollen feet, emotional, and depressed. But I

also do suffer from depression and I am on medication for that. I

think I might be starting to get irritable. I have always had low

blood pressure.

I can't get the test results till next week. The new doctor I want to

see is booked and I have to wait till Dec. when I have my appointment.

I don't know if this helps. I will start taking the temps.

Thanks for your help!

> > > , Did you have any symptoms of overstimulation? Rapid

> heart

> > beat,

> > > dizziness upon rising, sweaty palms, Or did she just go by the

> > numbers?

> > > My doctor does not just look at numbers, she keeps track of my

> > symptoms.

> > > She allowed me increases in medication until my symptoms began

to

> > subside.

> > > Watching for signs of overstimulation. I really did not begin

to

> > feel like

> > > myself

> > > again until I reached 200mcg of Synthroid. I also take 25mcg

of

> T3

> > daily.

> > > I was on Armour first a year ago. It was too irregular for

me.

> > The fatigue

> > > never really was resolved either. I have also been sleeping

> much

> > > better on the increased amount. Probably because more

seratonin

> > gets

> > > where it is supposed to now. Anyway, have you discussed symtom

> > > resolution with your doctor at all?

> > > I dont see how taking you off medication all together is going

to

> > benefit you.

> > > Unless you were really over the edge with it.

> > > Chriss.

> > >

> > >

> > >

[Guest guest]

LOL! I agree!

> I think your doctor is an idiot.

>

> Val in Boulder, CO

>

> -----Original Message-----

> From: [mailto:blondiewolf2000@h...]

>

>

> I was wondering if anyone may know if what my doctor has done

with my

> medication is common...

>

> I have been struggling with a low thyroid for some time and

started

> with a new doc who I thought really knew how to help me. At first

I

> was on too low of a dose of Armour when I started with this

doctor.

> She put me on a higher dose because it was too low. I was on 15mg

of

> Armour then she put me on 120mg. After blood work the results

came

> back that it was too high. So she cut me back to 90mg. Then after

> another blood test, that came back too high also. So now my

doctor

> has taken me completely OFF of medication for 6 to 8 weeks and

then

> another blood test will be taken at that time to see where I am

at.

>

> Is that common to take you off of medication completely?

>

> If anyone can help me with this that would be great!

> Thank You!

>

>

>

[Guest guest]

My temperature this morning was 97.1

> > Please give us all your symptoms and anything else you could tell

> the

> > group---low tempertures?? low blood pressure--I am just confused

at

> > how she would say your pituitary gland is shutting down?? It

could

> > malfunction but it would not shut down. Get all your tests

results

> > tell them you want them or will pick them up or fax them --

anything

> > and get to another doctor right away--you can't go on living like

> > this.

> >

> > Don't wait another day.

> >

> > tina

> >

> >

]

[Guest guest]

wrote:

>I was wondering if anyone may know if what my doctor has done with my

>medication is common...

>

>

Various conditions related to pregnancy or high levels of stress can

cause a temporary version of hypothyroidism. When the stressors or

conditions go away, the blood work and corresponding medication levels

change. This happened to my daughter. Her OBGYN eventually took her off

the medications completely. She is now asymptomatic and unmedicated.

Chuck

[Guest guest]

Too much testosterone will cause your voice to deepen, which is why

she thinks you have a pituitary problem, most likely. As well as it

sounds like you have adrenal fatigue as well, also relates to

pituitary. Look into www.adrenalfatigue.org

We have a lot of sites on this illness that can be mixed into thyroid

symptoms. And many here have both adrenal and hypo together. It's

very common but ususally missed by a doctor.

Your depression can also be a side effect from these illnesses. You

need to educate yourself on your health so you can talk to your

doctor especially if you are stuck with her. Read as many posts as

you can, it will sink in sooner or later.

and you need to find out what kind of thyroid problem you have---

Everyone here will help, so many here have a lot of knowledge and

experience!!!

take care---tina

> > , Did you have any symptoms of overstimulation? Rapid

heart

> beat,

> > dizziness upon rising, sweaty palms, Or did she just go by the

> numbers?

> > My doctor does not just look at numbers, she keeps track of my

> symptoms.

> > She allowed me increases in medication until my symptoms began to

> subside.

> > Watching for signs of overstimulation. I really did not begin to

> feel like

> > myself

> > again until I reached 200mcg of Synthroid. I also take 25mcg of

T3

> daily.

> > I was on Armour first a year ago. It was too irregular for me.

> The fatigue

> > never really was resolved either. I have also been sleeping

much

> > better on the increased amount. Probably because more seratonin

> gets

> > where it is supposed to now. Anyway, have you discussed symtom

> > resolution with your doctor at all?

> > I dont see how taking you off medication all together is going to

> benefit you.

> > Unless you were really over the edge with it.

> > Chriss.

> >

> >

> >

[Guest guest]

sounds adrenal. Doctors do love those antidepressants but you wouldn't need

them if you got good treatment for thyroid/adrenals.

GRacia

> I don't know what my temperatures are. I will start taking them

> again. They used to be low. Some of my symptoms are: tired, but not

> extremely, but I always want to drink coffee to get me going. I don't

> have the desire to do things, not much of an appetite, dry skin,

> forgetful, weight gain, swollen feet, emotional, and depressed. But I

> also do suffer from depression and I am on medication for that. I

> think I might be starting to get irritable. I have always had low

> blood pressure.

>

> I can't get the test results till next week. The new doctor I want to

> see is booked and I have to wait till Dec. when I have my appointment.

>

> I don't know if this helps. I will start taking the temps.

>

> Thanks for your help!

>

>

>

>

> ---

[Guest guest]

You cannot dose to the TSH test, it's ridiculous, you need to go by how you

feel, especially on Armour. Anyway needs adrenal support.

Gracia

> She wants to clean you out of all your hormones that she overdosed on

> you and start fresh with new tests---boy from 15mg to 150mg is a big

> jump--she totally messed up here, so she has no choice but to take

> you off of it and get all new numbers to go by. (lab results)

>

[Guest guest]

Well you know the doctor here is just protecting herself since she

gave you too much thyroid--I don't think you should go without if you

become very sick--better to get a new doctor and start over.

-- In hypothyroidism , " Gracia " <circe@g...> wrote:

>

> You cannot dose to the TSH test, it's ridiculous, you need to go by

how you

> feel, especially on Armour. Anyway needs adrenal support.

> Gracia

>

> > She wants to clean you out of all your hormones that she

overdosed on

> > you and start fresh with new tests---boy from 15mg to 150mg is a

big

> > jump--she totally messed up here, so she has no choice but to take

> > you off of it and get all new numbers to go by. (lab results)

> >

[Guest guest]

Hi Nikki;

If you think it's the band causing the eye problems, definitely keep

it off him until it's better and/or until you can get into see your

orthotist for an adjustment. There's noone else at the clinic who

could see Connor??

Debbie Abby's mom

--- In Plagiocephaly , " dnajtc99 " <dnajtc99@y...>

wrote:

> I wrote yesterday about my son Connor's first day wearing his

> Starband and having his right eye pushed almost shut. Today, it

> seemed even worse to where he couldn't open it. I called and

cannot

> get in to see the orthotist until next Tues. One orthotist is

> leaving the company tomorrow and a new one starts on Tues. In the

> meantime, do I discontinue use of the helmet until then? By Sat.

we

> will be up to the 23 hours and I hate to do more damage then good,

> but I also hate to get delayed on everything. Because the orthotist

> is leaving tomorrow he is not able to talk to me on the phone or

give

> any advice. Very frustrating! What would you do?

>

> Thanks so much in advance!

> Nikki

[Guest guest]

Nikki - That really sucks that they have noone to help you out right

now, you would thinkg they would have considered that when your son

for his helmet! I am sorry! If I were you I would leave the helmet

off until you go back next week. Keep us updated.

Donna and Xavier DOCband 7/25 and 10/8

--- In Plagiocephaly , " dnajtc99 " <dnajtc99@y...>

wrote:

> I wrote yesterday about my son Connor's first day wearing his

> Starband and having his right eye pushed almost shut. Today, it

> seemed even worse to where he couldn't open it. I called and

cannot

> get in to see the orthotist until next Tues. One orthotist is

> leaving the company tomorrow and a new one starts on Tues. In the

> meantime, do I discontinue use of the helmet until then? By Sat.

we

> will be up to the 23 hours and I hate to do more damage then good,

> but I also hate to get delayed on everything. Because the orthotist

> is leaving tomorrow he is not able to talk to me on the phone or

give

> any advice. Very frustrating! What would you do?

>

> Thanks so much in advance!

> Nikki

[Guest guest]

Nikki -

I'm sorry, I didn't see your other post - is Connor's eye pushed shut because of the band hindering it? Or when you take the band off is it still shut?? Definitely sounds like you need an adjustment. If it is that uncomfortable for Connor so that he can't even see, I would leave it off until you can get yourself in for an adjustment.

I cannot believe that no one is there to help you - that's awful. I'm not sure what others would do, but if it were me, I would discontinue the use until it can be fixed. If it doesn't seem to be bothering him, then I'm sure it's okay to leave it on (he'll just have a squished eye). I still feel like if the band is that much "ill-fitting" than it's probably not doing as much good as it should be, so keep it off...

I'm sure others will chime in. Let us know if they get you in earlier -

Rhonda

Collin-DOC*14wks-NJ-7mos

www.collingillespie.com

www.preciousbambino.com

NJ/NY Plagio Jamboree-Dec. 7, 2003 (click for more info)

-----Original Message-----From: dnajtc99 [mailto:dnajtc99@...] Sent: Thursday, November 13, 2003 4:03 PMPlagiocephaly Subject: Advice neededI wrote yesterday about my son Connor's first day wearing his Starband and having his right eye pushed almost shut. Today, it seemed even worse to where he couldn't open it. I called and cannot get in to see the orthotist until next Tues. One orthotist is leaving the company tomorrow and a new one starts on Tues. In the meantime, do I discontinue use of the helmet until then? By Sat. we will be up to the 23 hours and I hate to do more damage then good, but I also hate to get delayed on everything. Because the orthotist is leaving tomorrow he is not able to talk to me on the phone or give any advice. Very frustrating! What would you do?Thanks so much in advance!NikkiFor more plagio info

[Guest guest]

My son had trouble w/ his eye swelling for a few days in his DOC

Band. But it was only after sleeping and it went away when he was up

and around. Our OT at Cranial Tech said this was actually a pretty

normal thing, as long as it was going away. If your son's swelling

is going away when he is up, I would probably leave on the band. But

if it is there all the time and seems to be getting even worse while

he is up, I would take off the band. Good luck!!

Kim--Gus' mom

DOC Band 8/21/03

--- In Plagiocephaly , " dnajtc99 " <dnajtc99@y...>

wrote:

> I wrote yesterday about my son Connor's first day wearing his

> Starband and having his right eye pushed almost shut. Today, it

> seemed even worse to where he couldn't open it. I called and

cannot

> get in to see the orthotist until next Tues. One orthotist is

> leaving the company tomorrow and a new one starts on Tues. In the

> meantime, do I discontinue use of the helmet until then? By Sat.

we

> will be up to the 23 hours and I hate to do more damage then good,

> but I also hate to get delayed on everything. Because the orthotist

> is leaving tomorrow he is not able to talk to me on the phone or

give

> any advice. Very frustrating! What would you do?

>

> Thanks so much in advance!

> Nikki

[Guest guest]

Nikki,

If the helmet is pushing the eye shut, I would keep it off until you can see the new orthotist. That is not the best way to start treatment. At the site where my son receives treatment, there are 2 ladies who work with the helmets, but there are a few others who can help with emergency adjustments. I am surprised that they do not have a backup/emergency plan.

-----Original Message-----From: dnajtc99 [mailto:dnajtc99@...]Sent: Thursday, November 13, 2003 4:03 PMPlagiocephaly Subject: Advice neededI wrote yesterday about my son Connor's first day wearing his Starband and having his right eye pushed almost shut. Today, it seemed even worse to where he couldn't open it. I called and cannot get in to see the orthotist until next Tues. One orthotist is leaving the company tomorrow and a new one starts on Tues. In the meantime, do I discontinue use of the helmet until then? By Sat. we will be up to the 23 hours and I hate to do more damage then good, but I also hate to get delayed on everything. Because the orthotist is leaving tomorrow he is not able to talk to me on the phone or give any advice. Very frustrating! What would you do?Thanks so much in advance!NikkiFor more plagio info

[Guest guest]

Hi Nikki,

I am so sorry you are going through this at the beginning.If it were

me I would leave it off. Why don't you do another post with where you

are going to get Connor's band and see if any other members have an

inside track on that facility. Good Luck! Kathy (mom to JT DOC

10/30@9mos NJ)

--- In Plagiocephaly , " dnajtc99 " <dnajtc99@y...>

wrote:

> I wrote yesterday about my son Connor's first day wearing his

> Starband and having his right eye pushed almost shut. Today, it

> seemed even worse to where he couldn't open it. I called and

cannot

> get in to see the orthotist until next Tues. One orthotist is

> leaving the company tomorrow and a new one starts on Tues. In the

> meantime, do I discontinue use of the helmet until then? By Sat.

we

> will be up to the 23 hours and I hate to do more damage then good,

> but I also hate to get delayed on everything. Because the orthotist

> is leaving tomorrow he is not able to talk to me on the phone or

give

> any advice. Very frustrating! What would you do?

>

> Thanks so much in advance!

> Nikki