Advice Needed

[Guest guest]

Bill, was specific testing done for pragmatic speech? I would request an independant speech evaluation be done by someone with extensive knowledge of children and the autism spectrum. Let the outside evaluator know that you are very concerned regarding pragmatic or social speech and how that will impact your son in his educational environment. Write a letter to the school district "following up" your eligiblity meeting. Request that they put their refusal to provide services (with reasons why) in writing. You need that papertrail. Pam :)See AOL's top rated recipes and easy ways to stay in shape for winter.

[Guest guest]

I think you did a good thing by requesting an IEE.

RoxannaAutism Happens

( ) Advice Needed

I'm wondering if you or anyone in the group has any ideas as about this. I just finished my first IEP eligibility meeting and they say my 1st grade Son does not qualify for special services... I'm only asking he be put into social skills group with an emphasis on pragmatics and social communication as well as coping skills for sensory overload. During school testing he was in the 97% for verbal and suprisingly did fairly well on problem solving (although he is having trouble in math, spelling and class participation). He keeps it together all day and has a tantrum(s) when he gets home. Shows atypical behaviors like topic perserverance and hand flapping especially when anxious or stressed. Says he wishes he was not alive every couple of weeks during a tantrum and for a week straight when bullied on the bus by older kids early in the year (1st grade) and last year. Had issues with hypersensitivity to smell and noise... threw up before going on the bus and after getting off due to nerves and I later found because he was sitting near the garbage can as they sat him in the front of the bus to avoid bullying.I stated that I have been doing role playing at home with social skills, but cannot do a group of peers scenario. Teacher said he talks to whichever child sits directly across from him and usually when it's a boy, but doesn't talk to the children on the sides. Is this common and does it have to do with sensory issues or something else?I'd narrowed down my requests to very reasonable ones and have been treating him during the IEP evaluation process (GFCF, suppliments, ThreeLac, role playing social skills, treadmill/PT, handwriting practice, etc...) and he has been improving. The Pediatric Neurology Doctor only met him once, but made some suggestions and mentioned she didn't think the school assessment seemed acurate. I've requested an IEE at public expense so we'll see what they say.Thanks for any input you have,Bill

[Guest guest]

>

> Hi everyone, I don't know if this is alright for me to ask this

kind of

> thing on this forum, but I value so much of the advice here so I'm

> giving it a shot.

>

> I just got a ton of dental work done recently. I dont have

amalgams,

> but I had the white plastics and they were old and needed redoing.

So

> I got them replaced. It was a big job and I was in the chair for

hours.

>

> I didnt seem to really notice anything worse at first but now I

feel

> like Ive been pounded by a sledge hammer. Im almost tasting

something

> weird in the mouth like how it felt at the time the dental work was

> being done (anasthetic?). Now I'm getting weird stuff like wanting

to

> sleep a lot and drooling out the side of my mouth. Why is this

> happening now? Why not right after the dental work?

>

> Im feeling very drugged and weird. Can a lot of dental work with

local

> anesthetic do this to someone? Its kind of weird that this

reaction

> has been delayed and now Im being hit all at once. I can barely

> function at the moment and just trying to keep halfway alert. I

feel

> like Im ready to be put in a home. I just sleep and drool a lot.

>

> Is there anything someone can take to help this? Or is it a case of

> just waiting it out?

>

==>Hi Adam. What you are experiencing is retracing symptoms of your

dental procedures and anesthetics, which means your body is trying to

detoxify. It was probably delayed because right after the dental

work your body was overwhelmed, so it took awhile before it could

muster up the strength to detoxify. During retracing you will feel

the affects of the anesthetic as your body cleans it out, i.e.

feeling drugged and weird, and the excess saliva helps clean out your

mouth.

==>It will help to do the treatments listed in this Thrush Treatments

Article: http://www.healingnaturallybybee.com/articles/treat18.php

==>Also help your body detoxify with some of these suggestions:

http://www.healingnaturallybybee.com/articles/detox.php

The best, Bee

>

[Guest guest]

Hey Adam,

I forgot to mention that you can find all the info you need on this subject @

mercury talk.

Go to the forum, they are very helpful.

Thank's,

Treva

adam_antics34 <adam_antics34@...> wrote:

Hi everyone, I don't know if this is alright for me to ask this kind

of

thing on this forum, but I value so much of the advice here so I'm

giving it a shot.

I just got a ton of dental work done recently. I dont have amalgams,

but I had the white plastics and they were old and needed redoing. So

I got them replaced. It was a big job and I was in the chair for hours.

I didnt seem to really notice anything worse at first but now I feel

like Ive been pounded by a sledge hammer. Im almost tasting something

weird in the mouth like how it felt at the time the dental work was

being done (anasthetic?). Now I'm getting weird stuff like wanting to

sleep a lot and drooling out the side of my mouth. Why is this

happening now? Why not right after the dental work?

Im feeling very drugged and weird. Can a lot of dental work with local

anesthetic do this to someone? Its kind of weird that this reaction

has been delayed and now Im being hit all at once. I can barely

function at the moment and just trying to keep halfway alert. I feel

like Im ready to be put in a home. I just sleep and drool a lot.

Is there anything someone can take to help this? Or is it a case of

just waiting it out?

Thanx for your time.

Treva Shay Spence

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

Thanx Bee, it really helps to hear this! Not easy feeling like I've

been pumped full of drugs at the moment and sleeping a lot. It sure

does feel like a delayed response. i had the dental work done about

a month ago and the symptoms hit in the last week or so.

The body is a funny thing and obviously mine, as you said, was

overwhelmed at the time but has now decided to get to work so its

knocking me out.

Thanx for the helpful tips :-)

>

> > >

> ==>Hi Adam. What you are experiencing is retracing symptoms of

your

> dental procedures and anesthetics, which means your body is trying

to

> detoxify. It was probably delayed because right after the dental

> work your body was overwhelmed, so it took awhile before it could

> muster up the strength to detoxify. During retracing you will feel

> the affects of the anesthetic as your body cleans it out, i.e.

> feeling drugged and weird, and the excess saliva helps clean out

your

> mouth.

>

> ==>It will help to do the treatments listed in this Thrush

Treatments

> Article: http://www.healingnaturallybybee.com/articles/treat18.php

>

> ==>Also help your body detoxify with some of these suggestions:

> http://www.healingnaturallybybee.com/articles/detox.php

>

> The best, Bee

> >

>

[Guest guest]

Hi Treva thanx. Im on a few of mercury forums already, so I could just

ask there too. But I appreciate the down to earth health advice on

this group and the explanations as well. I think Bee answered my

question. The retracing sounds about right. I feel like now Ive been

pumped full of some drug!

But thank you for suggesting that. All helps. I just think its going

to be a case of waiting it out with doing all the right things for my

health along the way.

> Hey Adam,

> I forgot to mention that you can find all the info you need on this

subject @ mercury talk.

> Go to the forum, they are very helpful.

> Thank's,

> Treva

>

>

[Guest guest]

I have teeth proplems too. I had Zoom teeth whitening in june. I was ok until

sept when i got strep throat and took antibiotics. Then my teeth started

hurting. I dont know if the whitening Caused my problem or the antibiotics. I am

doing the diet in hope of a cure, nothing else has worked.

Matt

adam_antics34 <adam_antics34@...> wrote:

Hi everyone, I don't know if this is alright for me to ask this kind

of

thing on this forum, but I value so much of the advice here so I'm

giving it a shot.

I just got a ton of dental work done recently. I dont have amalgams,

but I had the white plastics and they were old and needed redoing. So

I got them replaced. It was a big job and I was in the chair for hours.

I didnt seem to really notice anything worse at first but now I feel

like Ive been pounded by a sledge hammer. Im almost tasting something

weird in the mouth like how it felt at the time the dental work was

being done (anasthetic?). Now I'm getting weird stuff like wanting to

sleep a lot and drooling out the side of my mouth. Why is this

happening now? Why not right after the dental work?

Im feeling very drugged and weird. Can a lot of dental work with local

anesthetic do this to someone? Its kind of weird that this reaction

has been delayed and now Im being hit all at once. I can barely

function at the moment and just trying to keep halfway alert. I feel

like Im ready to be put in a home. I just sleep and drool a lot.

Is there anything someone can take to help this? Or is it a case of

just waiting it out?

Thanx for your time.

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

DON"T IGNORE!!First, I'd go to the coaches...or at least HIS coach and tell him that your son has a disability. Maybe have some literature to give him. Then tell him that "others" heard commnents from "HIM???" and/or 3 other coaches. Something needs to be done and there has to be understanding. Please go talk to them. And,,,,next time you hear that in the stands, say, "that's my son you're talking about"..."he has a form of autism that causes him to do that" or whatever...... Watch them grovel....watch them become embarrassed.... But don't back down. No.....they may not become your friends after that,,,,but they wouldn't have either. You WILL start some awareness, though. PLEASE let us know how it goes. Have a super day. Robin Normal is just a cycle on a

washing machine!! Powered by CafeMom Toolbar - Get yours today! janiemop30 <jsilance@...> wrote: My son Garrett is 9 years old and playing on a baseball team with typical 9 and 10 year olds. Today was there first scrimmage game and the first inning that Garrett was in the game, playing left field, I was hearing negative statements about him. One child in the stands

remarked that his Grandma could have caught a ball that Garrett missed, a parent then remarked that his dead Grandma could have caught the ball. The banter continued on and on between them while my temper flared. I can excuse the child due to ignorance, but any parent should be ashamed to talk about another child in that manner. This Gentleman did not know that Garrett has aspergers and has trouble catching, however how would he feel if it was his child that was getting slammed. After the Game my other son who is 10 told me that during the game there were three of their coaches talking poorly about Garrett's preformance and making jokes about his chin tapping and lack of attention skills. I ask my son if he stuck up for Garrett and he said no. I got mad and told him he should have said something. Looking back I realize now that I did the same thing with the man on the bleachers. How should we as family members of a

aspergers child react when we hear these things? Is it best to ignore it, or should we explain our child? I am really not sure what to do. All I know is that it hurts when people are ignorant and say mean things. Thanks for your advice in advance,Janie

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

> ... After the Game my other son who is 10 told me

> that during the game there were three of their coaches talking poorly

> about Garrett's preformance and making jokes about his chin tapping

> and lack of attention skills.

Hi Janie. I have a 13yo son with AS. What I do is meet/e-mail/phone

with the coach/activity leader of any prospective activity my son is

going to be in and give her/him a heads up on my son's issues and ask

if this will work for them. I tell them a little about AS, and I tell

them what other people have had problems with and what works and what

is counterproductive. After you have such a conversation with

someone, you will most likely know if they are someone you want your

child to be spending time with. I haven't found that there is a lot

of middle ground. People are usually either very gracious, flexible

and accommodating or very snooty, inflexible and competitive.

IMHO, it is worth it to search out the leagues that focus on

supporting ALL the kids to help them attain their personal bests,

where ever they are at, instead of just counting scores.

As far as the tacky parents go--I think they are always going to be

with you in any kids' activity. Personally, I ignore them as long as

they are not doing anything within earshot of whatever kids they are

commenting on. If something needs to be said, I let the coach/leader

handle it. If the coach/leader doesn't want to handle it, I would not

consider that an appropriate group for my child to be in. There are

too many other fish in the sea, as the saying goes.

[Guest guest]

Kandee,

The BED suggests that what we call sickness is really a cleansing.

The body goes through these functions to rid itself of the offending

microbials. Some who follow DAN research (for autism) talk about

chronic infections that the body's immune system is not recognizing

and fighting. This leads to chronic immune dysregulation and

inflamation. Recently, my 10 year old son had an all-out sickness

(fever, coughing and sneezing). I was thrilled! His immune system

seemed to be lack-luster previously. Some autistic kids have

actually improved after illnesses. We saw an increase in language.

I say all this because when I hear of kids who have mild fevers

regularly, I wonder if their bodies are trying to get rid of

something, but not quite able to do the job. That's where things

like the GAPS diet can help, though it does take time. Four day old

food doesn't sound good. The body should have done its business with

that food already.

BED recommends enemas, and I think they can be helpful in some

cases. If you feel your child is detoxing due to the new diet, but

the path is blocked, the enema may be helpful. But if the food is

not even being digested, I am wondering more about probiotic

activity!!! Is your little one on probiotics of any kind? Is she

eating any cultured food??? It seems something is missing that

should be digesting the food. Also, BED talks a lot about food

combining. It suggests that things like starches should not be eaten

with protien. The reasoning is that Donna Gates believes it is

necessary to speed up the digestive process and the combination of

the foods slows it down. I don't know that I think this is necessary

for all. Our digestion seemed too fast. But many have found this to

be a critical part of the process.

Connie

>

> My 2 year old daughter periodically goes through a couple of days

of diarrhea and fever. This is the 3rd time it's happened in the

last 6 months. I am beginning to realize what is going on and wanted

advice from anyone that may know what to do. I started the GAPS diet

with both my girls and they've been eating better than they ever

have, however, my 2 year old has had diarrhea with undigested food

and I was able to see that it was a meal she had 4 days earlier.

This is not normal right? Her stools will harden some, then go back

to diarrhea, then harden all the while having a mild to high fever.

She did this before we started the diet and is still doing this. Is

an enema something I should consider with her? My oldest is on the

diet because of allergies, eczema, asthma, etc but my 2 year old has

rarely been sick, never had an ear infection and only catches an

occasional cold other than this diarrhea thing. I'm fortunate she

did not inherit the

> problems my 5 year old has, but I'm afraid she is showing signs of

malnourishment. Is there anything I should be doing besides

following this diet to help her?

>

> Kandee

>

[Guest guest]

Thanks for the info. I've been giving my daughter BioKult for almost 2 months now, and we started using kefir a couple of weeks ago. I haven't yet introduced cultured veggies and I try my best to keep starches out of the diet at this point since it seemed she wasn't digesting them very well even before the diet. Not to mention my 5 year old doesn't tolerate wheat, so our diet has basically been meats, fruits and veggies. We eat eggs and I also have them taking cod liver oil, vit c. and the biokult probiotics. I do have some digestive enzymes that might do the trick, but I'm having a tough time disguising the flavor...and she won't take it in food or drink. I have also been introducing nut butters and almond flour recipes. We haven't had any nuts since

starting the kefir, because I'm trying to find the best place to buy them...that's another story, but both girls did fine with the nuts when they did eat them.

My kids have been hungry non stop, with the exception of my 2 year old this past week because of the diarrhea. Just before the diarrhea started, she had a long night of vomiting. I think that was partially due to the fact that she at "illegal" foods at supper that night, but I can't prove that. She's still having diarrhea and I hope it ends soon.

Kandee

[ ] Re: advice needed

Kandee,The BED suggests that what we call sickness is really a cleansing. The body goes through these functions to rid itself of the offending microbials. Some who follow DAN research (for autism) talk about chronic infections that the body's immune system is not recognizing and fighting. This leads to chronic immune dysregulation and inflamation. Recently, my 10 year old son had an all-out sickness (fever, coughing and sneezing). I was thrilled! His immune system seemed to be lack-luster previously. Some autistic kids have actually improved after illnesses. We saw an increase in language.I say all this because when I hear of kids who have mild fevers regularly, I wonder if their bodies are trying to get rid of something, but not quite able to do the job. That's where things like the GAPS diet can help, though it does take time. Four day old food doesn't sound good. The body should have

done its business with that food already.BED recommends enemas, and I think they can be helpful in some cases. If you feel your child is detoxing due to the new diet, but the path is blocked, the enema may be helpful. But if the food is not even being digested, I am wondering more about probiotic activity!!! Is your little one on probiotics of any kind? Is she eating any cultured food??? It seems something is missing that should be digesting the food. Also, BED talks a lot about food combining. It suggests that things like starches should not be eaten with protien. The reasoning is that Donna Gates believes it is necessary to speed up the digestive process and the combination of the foods slows it down. I don't know that I think this is necessary for all. Our digestion seemed too fast. But many have found this to be a critical part of the process.Connie>> My 2 year old daughter periodically goes through a couple of days of diarrhea and fever. This is the 3rd time it's happened in the last 6 months. I am beginning to realize what is going on and wanted advice from anyone that may know what to do. I started the GAPS diet with both my girls and they've been eating better than they ever have, however, my 2 year old has had diarrhea with undigested food and I was able to see that it was a meal she had 4 days earlier. This is not normal right? Her stools will harden some, then go back to diarrhea, then harden all the while having a mild to high fever. She did this before we started the diet and is still doing this. Is an enema something I should

consider with her? My oldest is on the diet because of allergies, eczema, asthma, etc but my 2 year old has rarely been sick, never had an ear infection and only catches an occasional cold other than this diarrhea thing. I'm fortunate she did not inherit the> problems my 5 year old has, but I'm afraid she is showing signs of malnourishment. Is there anything I should be doing besides following this diet to help her?> > Kandee>

[Guest guest]

I think every kid deserves to be stuck up for against people like that.

I wouldn't even bother mentioning that he has AS. He doesn't need an

excuse, plenty of no-AS kids can't catch a ball and are inattentive.

These adults need to be taught a lesson. I wouldn't put up with it.

They are setting a bad example. I would call the head of the league,

tell him the situation, and maybe offer to write a league policy for

all players, coaches, parents, etc. to sign.

[Guest guest]

Cultured veggies need to be for *now*, not later!  These are the key to digesting the foods we eat, as well as providing natural probiotics to inhabit the digestive tract.  Enzymes are not an adequate replacement, nor are packaged probiotics.  Sometimes we need all of these, but we *always* need the cultured vegetables and dairy (where dairy is tolerated)!  Please don't overlook this!MaureenI haven't yet introduced cultured veggies and I try my best to keep starches out of the diet at this point since it seemed she wasn't digesting them very well even before the diet.

[Guest guest]

Thanks, I guess I need to focus on how to make cultured veggies.

Kandee

Re: [ ] Re: advice needed

Cultured veggies need to be for *now*, not later! These are the key to digesting the foods we eat, as well as providing natural probiotics to inhabit the digestive tract. Enzymes are not an adequate replacement, nor are packaged probiotics. Sometimes we need all of these, but we *always* need the cultured vegetables and dairy (where dairy is tolerated)! Please don't overlook this!

Maureen

I haven't yet introduced cultured veggies and I try my best to keep starches out of the diet at this point since it seemed she wasn't digesting them very well even before the diet.

[Guest guest]

I think I would explain it and let the gentleman and

the coaches know. They are grown men....they should

know better...let them be embarrassed. They should be

teaching their children and students the correct way

to behave!!!!!! It is so sad....would they made fun of

a child with downs or something else...I doubt it...it

is just that " our " children look normal. But, they

should even make such RUDE comments about ANY Child!

Just my thoughts!

Jan

--- janiemop30 <jsilance@...> wrote:

> My son Garrett is 9 years old and playing on a

> baseball team with

> typical 9 and 10 year olds. Today was there first

> scrimmage game and

> the first inning that Garrett was in the game,

> playing left field, I

> was hearing negative statements about him. One child

> in the stands

> remarked that his Grandma could have caught a ball

> that Garrett

> missed, a parent then remarked that his dead Grandma

> could have

> caught the ball. The banter continued on and on

> between them while my

> temper flared. I can excuse the child due to

> ignorance, but any

> parent should be ashamed to talk about another child

> in that manner.

> This Gentleman did not know that Garrett has

> aspergers and has

> trouble catching, however how would he feel if it

> was his child that

> was getting slammed. After the Game my other son who

> is 10 told me

> that during the game there were three of their

> coaches talking poorly

> about Garrett's preformance and making jokes about

> his chin tapping

> and lack of attention skills. I ask my son if he

> stuck up for Garrett

> and he said no. I got mad and told him he should

> have said something.

> Looking back I realize now that I did the same thing

> with the man on

> the bleachers. How should we as family members of a

> aspergers child

> react when we hear these things? Is it best to

> ignore it, or should

> we explain our child? I am really not sure what to

> do. All I know is

> that it hurts when people are ignorant and say mean

> things.

>

> Thanks for your advice in advance,

>

> Janie

>

>

Janice Rushen

Mom, Mentor, Wife, Teacher, Advocate, Accountant,

Maid, Taxi, Shopper, Bulletin Board Artist

Nanny, Crafter, Therapist, Friend, Sister, Aunt,

Daughter, Grand-daughter, Personal Care Aide,

Student, Believer, and Giver.

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Is there another league you can join in your area? Seems like here where I live, there are several different leagues. Anyway, I don't think this is an "AS" specific problem - I mean to say that no matter why he didn't catch the ball, they were rude to mouth off about ANY child like that. This does not promote team playing or improve anyone's skills. I don't know how people would expect children to be pro players right out of the box. It would really make me crazy to have to sit in the stands with such obnoxious and rude people. Ugh!

I have also been there - I have yelled at my youngest for not sticking up for his brother. But I'm not always the best at it either. It depends on my mood and energy at the time. So we should probably also consider that our kids are kids still and do not know how to confront rude people either. I try to remember that myself but it is hard.

I probably would have commented loudly that he's a kid and he is learning how to play and leave it at that. If the coaches were doing it, wow, I would really worry about leaving my kid with coaches like that. You might want to talk to them and ask them for ideas to help improve his game and explain that while he isn't the most coordinated, he has the best team spirit and he really wants to learn. I would probably come up with something along that line to discuss with the coaches. The best idea is to work on his playing skills so he can do better. But I don't know how you can fix stupid people who are so rude. Don't start a fight in the stands, lol, or we'll be watching you on the news, but cheering you on! <GG>

RoxannaAutism Happens

( ) Advice needed

My son Garrett is 9 years old and playing on a baseball team with typical 9 and 10 year olds. Today was there first scrimmage game and the first inning that Garrett was in the game, playing left field, I was hearing negative statements about him. One child in the stands remarked that his Grandma could have caught a ball that Garrett missed, a parent then remarked that his dead Grandma could have caught the ball. The banter continued on and on between them while my temper flared. I can excuse the child due to ignorance, but any parent should be ashamed to talk about another child in that manner. This Gentleman did not know that Garrett has aspergers and has trouble catching, however how would he feel if it was his child that was getting slammed. After the Game my other son who is 10 told me that during the game there were three of their coaches talking poorly about Garrett's preformance and making jokes about his chin tapping and lack of attention skills. I ask my son if he stuck up for Garrett and he said no. I got mad and told him he should have said something. Looking back I realize now that I did the same thing with the man on the bleachers. How should we as family members of a aspergers child react when we hear these things? Is it best to ignore it, or should we explain our child? I am really not sure what to do. All I know is that it hurts when people are ignorant and say mean things. Thanks for your advice in advance,Janie

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.2/1389 - Release Date: 4/21/2008 8:34 AM

[Guest guest]

I found that I had to take probiotics for a while before I could tolerate cultured dairy or vegetables. Otherwise they just gave me diarrhea

Re: [ ] Re: advice needed

Cultured veggies need to be for *now*, not later! These are the key to digesting the foods we eat, as well as providing natural probiotics to inhabit the digestive tract. Enzymes are not an adequate replacement, nor are packaged probiotics. Sometimes we need all of these, but we *always* need the cultured vegetables and dairy (where dairy is tolerated)! Please don't overlook this!

Maureen

I haven't yet introduced cultured veggies and I try my best to keep starches out of the diet at this point since it seemed she wasn't digesting them very well even before the diet.

[Guest guest]

My DS is sports obsessed and thinks he's the best. Whne he started

baseball we had similar situations with the coaches. I made sure the

coaches knew he had AS and we told if they though my DS had

misunderstood something it was there " opportunity " to find better

words to express themselves. I always gave the exapmle of when he

began T-ball and the coach told the kids to " take the field' My poor

child looked at the field and didn't move. His coach had to

explain... so they can handle it.

Next I told them they would have to help the players to accept him..

while I will help the parents in the stands.

I then proceeded to ask the parents in the stands to try to be quiet

when he was at bat. Due to his disability of autism it distacted him

and caused him to make mistakes when they call out to him. Ifthey

wanted the team to lose then yell at him whne he is at bat....

Eventually they all got to know him and would cheer him on as he went

to bat and afterward but was always quiet when he batted and nothing

was said when he played. YET each seasom we'd start again.

He did not wanto to go to another " possible " more understanding

league since this was where his " friends " from school played.

Unfortunalty we must become teachers.... keep it sweet, clear and

firm... the " your child does so well you are so lucky " line...

sometimes does well if yu find the right parent she'll spread the

word for you faster...

in NJ

> > ... After the Game my other son who is 10 told me

> > that during the game there were three of their coaches talking

poorly

> > about Garrett's preformance and making jokes about his chin

tapping

> > and lack of attention skills.

>

> Hi Janie. I have a 13yo son with AS. What I do is meet/e-

mail/phone

> with the coach/activity leader of any prospective activity my son is

> going to be in and give her/him a heads up on my son's issues and

ask

> if this will work for them. I tell them a little about AS, and I

tell

> them what other people have had problems with and what works and

what

> is counterproductive. After you have such a conversation with

> someone, you will most likely know if they are someone you want your

> child to be spending time with. I haven't found that there is a lot

> of middle ground. People are usually either very gracious, flexible

> and accommodating or very snooty, inflexible and competitive.

>

> IMHO, it is worth it to search out the leagues that focus on

> supporting ALL the kids to help them attain their personal bests,

> where ever they are at, instead of just counting scores.

>

> As far as the tacky parents go--I think they are always going to be

> with you in any kids' activity. Personally, I ignore them as long

as

> they are not doing anything within earshot of whatever kids they are

> commenting on. If something needs to be said, I let the

coach/leader

> handle it. If the coach/leader doesn't want to handle it, I would

not

> consider that an appropriate group for my child to be in. There are

> too many other fish in the sea, as the saying goes.

>

[Guest guest]

You got it, woman. Saying nothing isn't ok. Dx or no dx,,,,,,,,,it's not ok to talk about a kid like that. What's wrong with them?Adrienne <clc_drie@...> wrote: I think every kid deserves to be stuck up for against people like that. I wouldn't even bother mentioning that he has AS. He doesn't need an excuse, plenty of no-AS kids can't catch a ball and are inattentive. These adults need to be taught a lesson. I wouldn't put up with it. They are setting a bad example. I

would call the head of the league, tell him the situation, and maybe offer to write a league policy for all players, coaches, parents, etc. to sign.

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[Guest guest]

You got it, woman. Saying nothing isn't ok. Dx or no dx,,,,,,,,,it's not ok to talk about a kid like that. What's wrong with them?Adrienne <clc_drie@...> wrote: I think every kid deserves to be stuck up for against people like that. I wouldn't even bother mentioning that he has AS. He doesn't need an excuse, plenty of no-AS kids can't catch a ball and are inattentive. These adults need to be taught a lesson. I wouldn't put up with it. They are setting a bad example. I

would call the head of the league, tell him the situation, and maybe offer to write a league policy for all players, coaches, parents, etc. to sign.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

What a shame for Garrett! I'm sorry that you and he had to go thru that. Reminds me of when my son as on his first soccer team in the first grade. Long before any thought of AS. He knew nothing about the sport and the team was made up of an age range where some kids had already been playing a couple years. One game, I was standing behind my neighbors mother who did nothing but ridicule my son thru the whole game. When my neighbor saw me, she elbowed the mother to keep quiet. I simply said that he was new to the team and just learning.

I really wish I had said something more, because it really irks me when people are so competitive with sports. Whatever happened to kids going out and playing for the sake of having fun, getting exercise and learning teamwork?

To this day, my son doesn't like team sports. He's hard on himself and never thinks he's as good as the others on the team. He will do individual sports, like golf and swimming.

I would suggest you speak to Garrett's coach and let him know how unacceptable the comments were. I'd also say something to parents if you should over hear them again. You may also want to contact whoever heads the league and suggest they educate their staff about promoting good sportsmanship. Whether or not a child has a disability, the behavior of the adults and kids was not acceptable.

Mims

From: janiemop30 <jsilance@...>Subject: ( ) Advice needed Date: Monday, April 21, 2008, 6:53 AM

My son Garrett is 9 years old and playing on a baseball team with typical 9 and 10 year olds. Today was there first scrimmage game and the first inning that Garrett was in the game, playing left field, I was hearing negative statements about him. One child in the stands remarked that his Grandma could have caught a ball that Garrett missed, a parent then remarked that his dead Grandma could have caught the ball. The banter continued on and on between them while my temper flared. I can excuse the child due to ignorance, but any parent should be ashamed to talk about another child in that manner. This Gentleman did not know that Garrett has aspergers and has trouble catching, however how would he feel if it was his child that was getting slammed. After the Game my other son who is 10 told me that during the game there were three of their coaches talking poorly about Garrett's preformance and making

jokes about his chin tapping and lack of attention skills. I ask my son if he stuck up for Garrett and he said no. I got mad and told him he should have said something. Looking back I realize now that I did the same thing with the man on the bleachers. How should we as family members of a aspergers child react when we hear these things? Is it best to ignore it, or should we explain our child? I am really not sure what to do. All I know is that it hurts when people are ignorant and say mean things. Thanks for your advice in advance,Janie

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[Guest guest]

Debbie,

First, take a deep breath.

Yes, CT has a great reputation, but there are those on the board that have also had success with Hanger bands. In theory, your specialist is probably correct, but the reality is that the expertise of the orthos vary widely.

I would suggest two things. I don't remember Jack's age, but you could:

1. Start a post asking if anyone has experience using the Hanger at your location (the experience of your ortho will be key in getting results).

2. Give it a month to see if you are getting changes. Take pictures now and then at that time. If they scan, that'll give you information also.

If you find out that others have not had good experiences OR you are not seeing any kind of change after a month, then call CT and go back.

We went with a STARband for several reasons, but the main one was that I could get the band the quickest from them. For a little while, I was also worried that I hadn't made the right choice, but after we saw changes, I relaxed and knew that we would be fine.

, mom to , 20 months 1 week

23.5 weeks in STARband plus CST

land

Advice Needed

Hi everyone. I'm in need of some good advice. Jack got his Hanger Helmet on Thursday. I have been very stressed since this all began and I'm worried that I am not making sound decisions. Now that he has it, I'm worried that I made the wrong choice and that we should have used Cranial Technologies. My husband wanted to use Hanger because our insurance covers them 100%. He also wanted to use Hanger because we went to a craniofacial specialist (Dr. Graham at Cedars) and he said that it did not matter which company we used. He said CT is the most parent friendly, but the end product is no different than the other companies. He said if our insurance covered Hanger, he thought we should use them. I of course am having a panic attack and want to go back to CT. I'm worried about the Helmet not working and/or making Jack's head worse. I'm worried that this is our one chance to correct his head and I don't want to mess it up.Again, I'm extremely emotional right now. Seeing Jack in his helmet and having a hard time adjusting is not helping. Am I crazy? Has anyone else worked themselves up like this? Any advice would be greatly appreciated.Jack's Cephalic Index is 104% and his Cranial Vault Asymmetry is 14mmThanks,Debbie

[Guest guest]

What is making you worried about Jacks band? Is it fitting ok? Are there other issues?

Cranial Tech is not that far from where you are. They do free evals and you could go in and see what they say about your babies head and even the band that you have.

I already told you about our experience and band from Hanger - it wouldn't hurt to get a 2nd opinion. ALSO - make sure Dad goes with you so that you both are informed the same.

Jen

Mom to Luli - 3 yrs old

Torticollis, Plagio, Syringomyelia

Advice Needed

Hi everyone. I'm in need of some good advice. Jack got his Hanger Helmet on Thursday. I have been very stressed since this all began and I'm worried that I am not making sound decisions. Now that he has it, I'm worried that I made the wrong choice and that we should have used Cranial Technologies. My husband wanted to use Hanger because our insurance covers them 100%. He also wanted to use Hanger because we went to a craniofacial specialist (Dr. Graham at Cedars) and he said that it did not matter which company we used. He said CT is the most parent friendly, but the end product is no different than the other companies. He said if our insurance covered Hanger, he thought we should use them.

I of course am having a panic attack and want to go back to CT. I'm worried about the Helmet not working and/or making Jack's head worse. I'm worried that this is our one chance to correct his head and I don't want to mess it up.

Again, I'm extremely emotional right now. Seeing Jack in his helmet and having a hard time adjusting is not helping. Am I crazy? Has anyone else worked themselves up like this? Any advice would be greatly appreciated.

Jack's Cephalic Index is 104% and his Cranial Vault Asymmetry is 14mm

Thanks,

Debbie

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[Guest guest]

DO take a deep breath and try to calm down a bit, I know this all a bit nerve

racking in the beginning and hard for parents and the kids to adjust too (i

really think its the hardest for the moms than anyone else!). We had a STARband

and excellent results, but we also had a great ortho. Lucy started at 11mm

plagio and went down to 0mm in 6 weeks and she started at 5.5 months of age.

I would agree that you should give it 1 month to see how things go and if you

see any changes. Also, most kids have a few day adjustment period to any helmet

- STARband, CT, etc.

I also remember feeling like maybe I should have gone to CT after we had already

been fitted with the STARband after finding this chat group and reading all the

praise for CT - but I am VERY happy with Hanger and the results we had there and

would recommend them (as long as the orho is good) to anyone, hands down.

I know it is hard in the beginning.... but it does get easier, promise!

Hang in there - Meg

>

> Hi everyone. I'm in need of some good advice. Jack got his Hanger Helmet on

Thursday. I have been very stressed since this all began and I'm worried that I

am not making sound decisions. Now that he has it, I'm worried that I made the

wrong choice and that we should have used Cranial Technologies. My husband

wanted to use Hanger because our insurance covers them 100%. He also wanted to

use Hanger because we went to a craniofacial specialist (Dr. Graham at Cedars)

and he said that it did not matter which company we used. He said CT is the

most parent friendly, but the end product is no different than the other

companies. He said if our insurance covered Hanger, he thought we should use

them.

>

> I of course am having a panic attack and want to go back to CT. I'm worried

about the Helmet not working and/or making Jack's head worse. I'm worried that

this is our one chance to correct his head and I don't want to mess it up.

>

> Again, I'm extremely emotional right now. Seeing Jack in his helmet and

having a hard time adjusting is not helping. Am I crazy? Has anyone else

worked themselves up like this? Any advice would be greatly appreciated.

>

> Jack's Cephalic Index is 104% and his Cranial Vault Asymmetry is 14mm

>

> Thanks,

> Debbie

>

[Guest guest]

Hi Debbie-

Are you feeling any better today? You've gotten some good advice so far. I hate

to think of you stressing out like this. I agree that you should give it just a

little time to see how the Hanger helmet goes. How old is Jack? It seems like

his numbers are pretty severe (at least when they're combined). I think you'd be

able to see a difference pretty quickly if he's growing at a good pace, and if

you have a good fit with this band. I would definitely take pictures weekly to

try to capture your progress. Best of luck!

Jake-2.5 (DOCBand Grad 9/08)

Jordan-5

>

> Hi everyone. I'm in need of some good advice. Jack got his Hanger Helmet on

Thursday. I have been very stressed since this all began and I'm worried that I

am not making sound decisions. Now that he has it, I'm worried that I made the

wrong choice and that we should have used Cranial Technologies. My husband

wanted to use Hanger because our insurance covers them 100%. He also wanted to

use Hanger because we went to a craniofacial specialist (Dr. Graham at Cedars)

and he said that it did not matter which company we used. He said CT is the

most parent friendly, but the end product is no different than the other

companies. He said if our insurance covered Hanger, he thought we should use

them.

>

> I of course am having a panic attack and want to go back to CT. I'm worried

about the Helmet not working and/or making Jack's head worse. I'm worried that

this is our one chance to correct his head and I don't want to mess it up.

>

> Again, I'm extremely emotional right now. Seeing Jack in his helmet and

having a hard time adjusting is not helping. Am I crazy? Has anyone else

worked themselves up like this? Any advice would be greatly appreciated.

>

> Jack's Cephalic Index is 104% and his Cranial Vault Asymmetry is 14mm

>

> Thanks,

> Debbie

>