Guest guest Posted March 16, 2000 Report Share Posted March 16, 2000 Hi all, You have touched on another topic that I know too much about. First let me tell you about the best site I know www.Lymenet.org. Secondly, Yes I have had lyme and was treated not once but three times on IV antibiotics. The symptoms are alarmingly similar to the psoriatic arthritis, and thus the confusion. In my case, however, I have had the psoriasis for so long, I do not doubt I have PA- but I also had Lyme too. The current blood tests for Lyme are not accurate. The diagnosis for Lyme is a CLINICAL one. In otherwords- the doc assesses everything- even if your test is negative- you could still have Lyme disease. It is a spirochete like its famous cousin syphilis. It apparently hides inside nerve cells - in the brain and can sneak out and become active again- even when you have been supposedly " cured " for a while. There are some doctors who feel there is no cure for Lyme, and there are others who feel that the patients who have " chronic Lyme " are just malingerers. It is quite a huge debate- let me tell you. If at all possible, I try to avoid arguing on the list about Lyme, Chronic Fatigue and Fibromyalgia- these three topics are very controversial. I do support getting checked out for Lyme disease- absolutely- especially if you are in an endemic area and especially if you never had psoriasis, let alone PA before. Once you start reading up on Lyme, you will soon figure out that there are what are called " Lyme Literate doctors " and most other doctors are considered in the dark (or denial) with regards to Lyme. How you are treated depends largely on who you decide to see regarding whether you have Lyme. It is no way as simple as " I will just get a blood test... " Good Luck to all who have to travel down this very thorny path-- I did a few years ago and it was no fun!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2000 Report Share Posted May 1, 2000 This is my letter to the writer of the Phila Inquirer and his reply to me. Think he got the message about the ALDF??? Dear Ms. Dickey, Thanks for your note and the additional information about Lyme disease. I've gotten several e-mail messages critical of the ALDF. I don't know if the allegations against it are true, but you should know that the enthusiastic endorsement of exercise is pure Ed Angelo. It's not ALDF propaganda because I never spoke to anyone there. I appreciate your taking the time to write and your cautionary words about aerobic exercise. Sincerely, Art Carey LYME DISEASE Mr. Carey I was so happy to see your article on Lyme Disease and exercise.....until I read your recommendation to see the ALDF! Not everyone is as lucky as Mr. Angleo and exercise can be detrimental to those folks with Lyme Disease that have severe fatigue and heart complications. Exercise is important for those recovering but should be supervised by a Physical Therapist, and must not involve any aerobic activity until a certain state of wellness has been achieved. Your article makes it sound as if one only needs the " desire " to get well and they will. More erroneous propaganda by the ADLF. If you would like to get the real scoop on Lyme Disease see: <A HREF= " http://www.lyme.org/ " >Lyme Disease Foundation, Inc.</A> http://www.lyme.org/index2.html <A HREF= " http://www2.lymenet.org/domino/file.nsf/UID/guidelines " >Burrascano Guidelines The New Lyme Disease</A> http://www2.lymenet.org/domino/file.nsf/UID/guidelines Maybe you will see some of the headlines regarding the March on Washington on 5/3/00 and understand what a financial and political mess Lyme Disease is. Constance Dickey RN Hampden, Maine 04444 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2000 Report Share Posted May 2, 2000 This is my letter to the writer of the Phila Inquirer and his reply to me. Think he got the message about the ALDF??? Dear Ms. Dickey, Thanks for your note and the additional information about Lyme disease. I've gotten several e-mail messages critical of the ALDF. I don't know if the allegations against it are true, but you should know that the enthusiastic endorsement of exercise is pure Ed Angelo. It's not ALDF propaganda because I never spoke to anyone there. I appreciate your taking the time to write and your cautionary words about aerobic exercise. Sincerely, Art Carey LYME DISEASE Mr. Carey I was so happy to see your article on Lyme Disease and exercise.....until I read your recommendation to see the ALDF! Not everyone is as lucky as Mr. Angleo and exercise can be detrimental to those folks with Lyme Disease that have severe fatigue and heart complications. Exercise is important for those recovering but should be supervised by a Physical Therapist, and must not involve any aerobic activity until a certain state of wellness has been achieved. Your article makes it sound as if one only needs the " desire " to get well and they will. More erroneous propaganda by the ADLF. If you would like to get the real scoop on Lyme Disease see: <A HREF= " http://www.lyme.org/ " >Lyme Disease Foundation, Inc.</A> http://www.lyme.org/index2.html <A HREF= " http://www2.lymenet.org/domino/file.nsf/UID/guidelines " >Burrascano Guidelines The New Lyme Disease</A> http://www2.lymenet.org/domino/file.nsf/UID/guidelines Maybe you will see some of the headlines regarding the March on Washington on 5/3/00 and understand what a financial and political mess Lyme Disease is. Constance Dickey RN Hampden, Maine 04444 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 Hap, Great letter, glad you explained the difference between ALDF & LDF - yes I think you got the point across, very well! Vicki, MD This is my letter to the writer of the Phila Inquirer and his reply to me. Think he got the message about the ALDF??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2000 Report Share Posted May 5, 2000 Hap, Great letter, glad you explained the difference between ALDF & LDF - yes I think you got the point across, very well! Vicki, MD This is my letter to the writer of the Phila Inquirer and his reply to me. Think he got the message about the ALDF??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2000 Report Share Posted May 30, 2000 In a message dated 5/30/00 2:22:25 AM Eastern Daylight Time, Loveyonlyme@... writes: << To Whom It May Concern: >> LOVEY, this was very well said and written. Good work. Carol F. in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2001 Report Share Posted January 7, 2001 Have you heard of Cecile Jadin in SA. She treats chronic Rickettsial infections (she thinks she doesn't treat Lyme but I think she does without knowing it), might be worth searching her out. She's in Randburg, I think. Nelly [ ] Lyme disease > I believe my wife to be suffering from Lyme disease (Lyme > neuroborreliosis) - acquired whilst staying with our daughter in > Hampshire, England. > Physicians here in South Africa have little knowledge or experience > of either diagnosing or treating this condition. > Can anyone give me the name & address (physical or e-mail) of a > specialist physician (consultant) in U.K. who has knowledge & > experience of Lyme disease. > > . > > > HAPPY NEW YEAR!!! > > Easy Reference: > Send a blank email message to: > > -Unsubscribeegroups - Unsubscribe from the list > -Digestegroups - Switch your subscription to a digest format > -Normalegroups - Switch your subscription to normal > > Please send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopicegroups > > Archives can be accessed at lyme-aid > > Please visit the sister site at > http://clubs./clubs/lymeaid > This is the primary chat site for . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Stick with it Roseanne! I've just come out of over 6 months of severe ankle pain so that I could hardly walk. Now I'm walking again and doing better all the time, (with a few minor downs on the way!) I've been on Minocycline and Doxycycline for 18 months. I was just on the Mino but halved it and added the doxy when I started getting black patches on my legs and teeth. (At least I know it's getting into the tissues!) Gail > From: Roseanne Omalacy <rosesattic1@...> > Date: Sat, 16 Jun 2001 06:00:20 -0700 (PDT) > rheumatic > Subject: rheumatic Lyme disease > > Hello, Anybody that has info on Lyme disease, feel > free to email the info to me personally if not posting > it on the board. I saw that Doxycycline is used for > Lyme treatment. I was just wondering if Minocycline > would have an effect on it as well since it is a > tetracycline. I couldn't find any info on why Doxy is > used. Makes you wonder when people switch to doxy > because Mino isn't working for them-maybe Lyme is a > possibility! I am still herxing from the Minocycline. > Anybody else herx for 6 months or more?? My doc said I > should know by now if it's helping but its just been 1 > big herx. Should that mean it is working and I should > just hold on or switch to doxy? Any opinions? I see > my doc Monday and he's not real happy about my herxing > for 6 months. He feels that I should be seeing some > improvement by now. He also leaves all decisions up > to me so, help! > ~Roseanne~ > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2001 Report Share Posted June 18, 2001 HI Roseanne, I was away for the weekend. There are three leading doctors in the treatment of lyme and one prefers Doxy, the other uses mino and the third uses tetracycline (least favored). I herxed with both but use doxy because of insurance. Rosemary, you are right to assume there is Lyme everywhere. Think of the multiple types of transmitssion: my husband and kids have lyme from me, ie human to human contact as well as congenital. Some researchers say it can be transmitted by flys and mosquetos, birds, fleas and mice...People may ask " If everyone has Lyme why donb't we know about it? " Testing is not good. HMOs and insurance companies DO NOT want a diagnosis because they will have to pay for treatments! Doctors are afraid of angering the establishment. Finally the system has no incentive to CURING autoimmune disorders with inexpensive antibiotics when they can develop patented immune suppressent drugs ie gravy train. SORRY FOR THE RANT!! What suprised me about the LYme is that it usually doesn't end there. I also have a number of tick-born co-infections like Ehrlichiosis, and Babesiosis, which are equally bad as Lyme. What is nice is that I believ tetracycline family should cover many of these....not the magic bullet and impossible to " cookbook " the recipe since each person is different and has different pathogens. The treatment protocal for Lyme and the AP protocal are very similar...except dosages and Lymies often use IV (intervenious quite often is its chronic) The aabx (antibioitic) might be biaxin, cefting, doxy, mino, zith, rocephin, cipro or a cocktail of these, and also flagyl. Flagyl is an interesting antiameobic that the Arthritis Trust Foundation recommends to treat RA. I find it interesting because many Lymies prefer (and claim to be cured) using flagyl. Some say it can have nasty side effects, but it is something I use from time to time (in my warchest). YOu may want to read that protocal. Look under Arthritis Trust Foundation of America and then Free Living Ameoba at the below link. This is an amazing website: 1. Alternative Groups & Organizations Organizations,Support Groups & Schools We present this data for your information only. A listing in this directory does not constitute an endorsement. The information a group provides is not a substitute for diagnosis and treatment by a www.garynull.com Gook luck. Sounds like the minocin is working. kathy rheumatic Lyme disease >> >> Hello, Anybody that has info on Lyme disease, feel >> free to email the info to me personally if not posting >> it on the board. I saw that Doxycycline is used for >> Lyme treatment. I was just wondering if Minocycline >> would have an effect on it as well since it is a >> tetracycline. I couldn't find any info on why Doxy is >> used. Makes you wonder when people switch to doxy >> because Mino isn't working for them-maybe Lyme is a >> possibility! I am still herxing from the Minocycline. >> Anybody else herx for 6 months or more?? My doc said I >> should know by now if it's helping but its just been 1 >> big herx. Should that mean it is working and I should >> just hold on or switch to doxy? Any opinions? I see >> my doc Monday and he's not real happy about my herxing >> for 6 months. He feels that I should be seeing some >> improvement by now. He also leaves all decisions up >> to me so, help! >> ~Roseanne~ >> >> __________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Hello everyone, I am in desprite need of any tetimonials or information concerning Lyme disease. My daughter was bitten by a tick and the area sure looks like Lyme to me. She had been on a parisite cleanse, before the bite, and still is. I'm thinking that is the reason why there are no symptoms, ie: tiredness, flu like symptoms. Has anyone out there experienced this disease or has worked with someone who has? I would like to follow a natural protocall if possible. Any help would be much appreciated. Thanks for reading my post. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 I have no experience, but there was a good article in one of the most recent issues of Alternative Health magazine that may be found on their website. Steve--- In Dr@y..., avens4@a... wrote: > Hello everyone, > I am in desprite need of any tetimonials or information concerning > Lyme disease. My daughter was bitten by a tick and the area sure > looks like Lyme to me. She had been on a parisite cleanse, before > the bite, and still is. I'm thinking that is the reason why there are > no symptoms, ie: tiredness, flu like symptoms. Has anyone out there > experienced this disease or has worked with someone who has? I would > like to follow a natural protocall if possible. Any help would be > much appreciated. Thanks for reading my post. > Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Hi! Are you a member of the Dr. Research Association? In the November, 2000 Bulletin, Amrein detailed plate-zapping. He illustratively gave the example of Lyme disease on page 4. " If he (your doctor) tells you that you have Borrelia (lyme Disease), you could place a Borrelia slide on the zapper plate and zap. " A slide of the bacterium, Borrelia, can be obtained at Carolina Biologicals or probably at Ward's. Hope you can annihilate Lyme disease!!! Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2002 Report Share Posted March 26, 2002 Rick-- Before I was pregnant, I had a telltale bite mark on my leg that developed the bullseye ring around it. I was put on antibiotics but only a two week course, and to be quite honest, I was only maybe 19 at the time, 21 at the oldest, and I was not diligent about taking those meds. I probably stretched it out to three weeks with all my forgetting to take the pills... Is there any chance that I could have latent Lyme disease, AND is it possible that I could have passed it on to my son. He is not autistic, but has sensory integration dysfunction, low muscle tone, hypersensitivities, and periodically goes through periods of high mood/activity--kinda " crazy " acting. I would appreciate your thoughts and where to go with this. I live in Western WA. W > Absolutely. Simple blood tests. Western blot comes to mind, but there are > several others. Find a LYME LITERATE doctor in your area. Do a google > search for the LYME 800 # and they should be able to help. > > What part of the world are you located? > > >zithromax?Lyme Disease > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Be sure that he was tested for co-infections....Babeiosis causes night sweats...There is a whole list of tick-borne co-infections and its important to treat them. Hang in there...hopefully things will get better now that you know about the Lyme. It may take a while. I would strongly advise that you make sure that your Doctors are Lyme Literate...and if not, change doctors!! Melina --------------------------------------------------------------------- Eliminate annoying spam! My mailbox is protected by iHateSpam, the #1-rated spam buster. HYPERLINK " http://www.ihatespam.net/ " \nhttp://www.ihatespam.net [ ] Lyme Disease My brother was diagnosed with Lyme disesae 3 weeks ago and is on 1500mg of Amoxcylian daily. He has been ill for 10 months with excrutiating pains and symptoms which I know you can all identify with. He was origionally treated with steroids for auto immune conditions such as temporal arterities, polymyaglia and vascilitis. And unfortunately has to be weaned off this medication slowly He is about to be admitted to hospital for tests as he has now developed aneurysms in his fore arm and neck. Scince April he has suffered with really big night sweats where he has to change his clothes and bed clothes several time a night- can any one identify with this symptom - it seems to puzzle the doctors? He thinks that the sweats precede a flare up, which happens about every 3 weeks and lasts for over 2 weeks so he has only a few days remission. Many thanks - we look forward to anyones comments, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 We are patients of Dr. C in MO. He is definitely lyme-literate, and we are addressing co-infections as well. Good job on the info though. I appreciate your taking the time to care. Later, Carol [ ] Lyme Disease My brother was diagnosed with Lyme disesae 3 weeks ago and is on 1500mg of Amoxcylian daily. He has been ill for 10 months with excrutiating pains and symptoms which I know you can all identify with. He was origionally treated with steroids for auto immune conditions such as temporal arterities, polymyaglia and vascilitis. And unfortunately has to be weaned off this medication slowly He is about to be admitted to hospital for tests as he has now developed aneurysms in his fore arm and neck. Scince April he has suffered with really big night sweats where he has to change his clothes and bed clothes several time a night- can any one identify with this symptom - it seems to puzzle the doctors? He thinks that the sweats precede a flare up, which happens about every 3 weeks and lasts for over 2 weeks so he has only a few days remission. Many thanks - we look forward to anyones comments, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2003 Report Share Posted October 26, 2003 Make sure they test for the other co-infections that go with Lyme Erlichiosis, and Babeosis. They both come from ticks, and are often passed along with Lyme. Babeosis frequently causes night sweats like that. b >From: " billybeau1987 " <billybeau1987@...> >Reply- > >Subject: [ ] Lyme Disease >Date: Thu, 23 Oct 2003 22:02:17 -0000 > >My brother was diagnosed with Lyme disesae 3 weeks ago and is on >1500mg of Amoxcylian daily. He has been ill for 10 months with >excrutiating pains and symptoms which I know you can all identify >with. > >He was origionally treated with steroids for auto immune conditions >such as temporal arterities, polymyaglia and vascilitis. And >unfortunately has to be weaned off this medication slowly > >He is about to be admitted to hospital for tests as he has now >developed aneurysms in his fore arm and neck. > >Scince April he has suffered with really big night sweats where he >has to change his clothes and bed clothes several time a night- can >any one identify with this symptom - it seems to puzzle the doctors? >He thinks that the sweats precede a flare up, which happens about >every 3 weeks and lasts for over 2 weeks so he has only a few days >remission. > >Many thanks - we look forward to anyones comments, > > > _________________________________________________________________ Surf and talk on the phone at the same time with broadband Internet access. Get high-speed for as low as $29.95/month (depending on the local service providers in your area). https://broadband.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 There is one in Mobile, AL which isn't very close. H. Does anyone know of any doctors in Alabama (around the Birmingham area) who specalize in Lyme Disease treatment? Or even close the this area? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 In a message dated 1/29/04 11:29:35 AM Pacific Standard Time, Tom.Paquette@... writes: Thank you for your interest in CT-N. Please note: this program should air on TV several times in the upcoming days as well. It should also be available on the website as an On Demand file within 24-48 hours, too. Good luck to you. Tom Paquette Information Technology Manager The Connecticut Network (CT-N) tom.paquette@... www.ct-n.com 860.246.1553 ext.108 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 send link to article mention below " Male Hypogonadism in Chronic Lyme Disease-Practical Office Evaluation, Testing, Treatment, and Results in 15 Patients " thanks TC Lyme Disease Came across this paper by Dr. Shippen while looking for his website. " Male Hypogonadism in Chronic Lyme Disease-Practical Office Evaluation, Testing, Treatment, and Results in 15 Patients " Anyone know anything about this? Is there a connection between Lyme and hypogonadism? I live in tick land and have been bitten several times. Once had some sort of reaction/rash but not a target pattern. Perhaps a Lyme disease test is in order for me as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 On Mon, 18 Oct 2004 20:19:23 -0000, you wrote: > >Came across this paper by Dr. Shippen while looking for his >website. " Male Hypogonadism in Chronic Lyme Disease—Practical >Office Evaluation, Testing, Treatment, and Results in 15 Patients " > >Anyone know anything about this? Is there a connection between Lyme >and hypogonadism? I live in tick land and have been bitten several >times. Once had some sort of reaction/rash but not a target >pattern. Perhaps a Lyme disease test is in order for me as well. Thanks for posting this. I had lyme and I've wondered if there's a connection. Have you got the paper of a link to it? I only find a reference to Shippen presenting it at a conference on the 23rd. (He's presenting it in Rye NY for those interested and close.) http://216.239.57.104/search?q=cache:tFR6XygmiNsJ:www.ilads.org/agenda_04.pdf+Ma\ le+Hypogonadism+in+Chronic+Lyme+Disease & hl=en - - - - Just another albino black sheep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 On Mon, 18 Oct 2004 14:57:15 -0700, you wrote: >send link to article mention below > > " Male Hypogonadism in Chronic Lyme Disease-Practical >Office Evaluation, Testing, Treatment, and Results in 15 Patients " > >thanks Perhaps someone with Shippen's e-mail address could ask him to forward a copy for posting in our files section? - - - - Just another albino black sheep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 On Mon, 18 Oct 2004 20:19:23 -0000, you wrote: > > > >Came across this paper by Dr. Shippen while looking for his >website. " Male Hypogonadism in Chronic Lyme Disease—Practical >Office Evaluation, Testing, Treatment, and Results in 15 Patients " In looking for this I find this article as well: Andrologia Vol. 34 Issue 3 Page 162 June 2002 Late Lyme disease masking a non-functioning adenoma of the anterior lobe of the pituitary gland M Möhrenschlager, F.-M Köhn, M Bauer, L Schaaf, H Hofmann, J Ring http://www.blackwell-synergy.com/links/doi/10.1046/j.1439-0272.2002.00483.x/abs/\ ;jsessionid=b5aFmsY9PAv- Unfortuantely it takes a subscription to read on line. - - - - Just another albino black sheep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi , You sound just like me! I was just diagnosed with Borrelia (Lyme Disease) and I am Hypothyroid (I had it removed about 6 years ago) and I have high levels of Epstein Barr Virus (CFS) showing up right now. That isn't even all I have going on, but a lot of the symptoms overlap. I almost didn't even get the Lyme test because it was so expensive and I had to pay for it upfront, but the dr thought I might have it and I do fit the description, so I got the Bowen test (not related to me). Very reliable and they test extensively! They found I have the worst case of it that you can have and that shows that I have had it at least 6 months but I could have had it for 10-15 years! That is how long I have had symptoms. Feel free to e-mail me off list if you like at trbowen@... Lyme Disease HI I know its not5 about hypothyroid stuff but I was wondering if any of you who hav been diagnosed with ME/CFS because tiyr thyroid result was normal have got this Lyme bug (Borrelia). This can cause neurological symptoms too as well as joint pain, fatigue and a host of other symptoms. Apparently it is har to diagnose as many people who have it still get a negative test as they are unreliable. A lot of doctors dont even test for it apparently either! So, for me I am trying to work out if I have a chronic infection going on such as Lyme or if it is my thyroid. It is difficult to try and puzzle out Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 tracy can you email me your email address to martinpianist@... I can't see all of your email. So, how did your CFS start? Were you in fact diagnosed with ME/CFS? And do you have any neurological symptoms like losing your balance and feeling a bit weird and brain fog? I don't have much pain or headaches but I can feel achey all over sometimes like when you have just had the flu for 3 or 4 days and you feel a bit better but you kind of feel a bit achey still all over. That is about as much pain as I get and sometimes I don't feel that even but I have these funny brain problems. It got a bit better recently and it may be because I took some metronidazole, but not sure. So whether it is infection or thyroid or something else I don't really know. I know I have some mycoplasma and chlamydia though as I took a PCR and it showed I had an old infection. Maybe this is the problem. But my GP is not really interested as he doesn't know what to do. martin martin > Hi , > You sound just like me! I was just diagnosed with Borrelia (Lyme Disease) and I am Hypothyroid (I had it removed about 6 years ago) and I have high levels of Epstein Barr Virus (CFS) showing up right now. That isn't even all I have going on, but a lot of the symptoms overlap. I almost didn't even get the Lyme test because it was so expensive and I had to pay for it upfront, but the dr thought I might have it and I do fit the description, so I got the Bowen test (not related to me). Very reliable and they test extensively! They found I have the worst case of it that you can have and that shows that I have had it at least 6 months but I could have had it for 10- 15 years! That is how long I have had symptoms. Feel free to e- mail me off list if you like at trbowen@c... > > > Lyme Disease > > > > HI > > I know its not5 about hypothyroid stuff but I was wondering if any > of you who hav been diagnosed with ME/CFS because tiyr thyroid > result was normal have got this Lyme bug (Borrelia). This can cause > neurological symptoms too as well as joint pain, fatigue and a host > of other symptoms. Apparently it is har to diagnose as many people > who have it still get a negative test as they are unreliable. A lot > of doctors dont even test for it apparently either! So, for me I am > trying to work out if I have a chronic infection going on such as > Lyme or if it is my thyroid. It is difficult to try and puzzle out > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2005 Report Share Posted January 9, 2005 Guptka mentioned that an unnamed person claimed that he used a $25 Radio Shack degausser to relieve back pain. Directions for degaussing say to use for 5 minutes and let cool for 30 minutes. Basically it is an electro magnet, don't know whether the current is converted to dc or not. Dick Lyme Disease > > > Thank you for your helpful replies. I am in relatively good shape for > a person with Lyme. All my training in natural health came in very > handy when I got sick, but it still has been a crazy grueling uphill > two year struggle to get as well as I am now. I read my tongue > regularly, as I have figured out that the location of the purple spots > I get on my tongue correlate with where the Lyme cysts seem to be > hiding in my body. If I am reading my tongue right, I probably still > have the bacteria hiding in my brain or region of the head. The > aromatherapy I use is supposed to cross the blood brain barrier, so it > is extremely helpful. I read a post about a tv degausser being used > similarly to a magnetic pulser somewhere on the internet, does anybody > have an opinion about that? Thank you for your feedback. I will be > sure to post any effects I get once I start using the godzilla machine. > > Farah > > > > > > > The group's main page has a menu to the left, with photos of Godzilla > devices and info. This is a discussion, free speech forum, not medical > advice. All info is free to members. Membership is free, but by joing, > you agree to hold harmless the posters, including moderator, from damages > from anything you find here whether jointly, severally, or individually. > We are interested in your results, but cannot say anything about > repeatability, or whether this might have medical benefits. Thanks, for > your understanding, good luck researching. --bG > Quote Link to comment Share on other sites More sharing options...
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