Lyme Disease

[Guest guest]

Wow, that is scary. Hope Skye will be o.k. I will keep him in my prayers.

I love dogs. I hope none of this effects your health either.

Joy

stephanie <stephieann2@...> wrote:

Hello everyone!

Today I took my Shetland Sheepdog, Skye to the vet for

his annual exam and vaccine boosters. He had tested

positive for Lyme disease a little over a year ago.

He was put on antibiotic treatment. Today when they

did the test, the vet tech came in to give the results

to the vet while she was examining Skye. She said the

Lyme test was positive and that there was neuroplasma.

I don't know what this means but it sounds scary!

They have to send the blood off to a lab for a C6

ELISA test. Then they will know the titer and call to

do antibiotic treatment again. He isn't symptomatic

and he is very healthy which she said was a good

thing. I don't know if anyone else has ever

experienced anything like this? I was wondering if I

have to be worried about my health as I am on

immunosuppressants and DMARDS? The vet had stated that

a friend of hers had a dog with Lyme disease and a few

months later her friend had cyclical fevers and Lyme

symptoms. She now has Lupus, and her Dr. thinks that

most likely she was infected by her dog. The vet told

me that in order for me to get Lyme disease I would

have to get a bite from the same deer tick that had

bitten Skye. She said the chance of that happening

was very very rare. We think that he got this when he

lived in Connecticut as they have a lot of ticks

there. It is only recently that our area on Lake

Michigan have began to have outbreaks. Only 2 dogs

have Lyme disease, so we conclude that he probably had

it even before they began testing the dogs here. My

other dogs have tested negative thus far and am hoping

when the black lab goes next month she is fine as

well. My rheumatologist did do a Lyme test on myself

last year after I advised that one of my dogs had come

down with the disease.

________________________________________________________________________________\

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[Guest guest]

Thank you so much Joy!! It is scary! I know he

tested positive for Lyme I believe last year, but they

did not mention anything about neuroplasma this time.

Today when she came in to tell the vet she said it was

positive and there was neuroplasma. The vet asked her

if it had sat for longer than the 15 minutes and it

hadn't. I should have asked what neuroplasma was so I

didn't worry!! The good thing as she stated though, is

that he is eating well, running all over the place and

doesn't seem to be symptomatic. I love dogs too! It's

so hard that they cannot tell us something is wrong,

and there have been no warning signs so I hope he

hasn't been suffering at all!

--- Joy <jhoorm01@...> wrote:

> Wow, that is scary. Hope Skye will be o.k. I will

> keep him in my prayers.

> I love dogs. I hope none of this effects your

> health either.

> Joy

>

> stephanie <stephieann2@...> wrote:

> Hello everyone!

> Today I took my Shetland Sheepdog, Skye to the vet

> for

> his annual exam and vaccine boosters. He had tested

> positive for Lyme disease a little over a year ago.

> He was put on antibiotic treatment. Today when they

> did the test, the vet tech came in to give the

> results

> to the vet while she was examining Skye. She said

> the

> Lyme test was positive and that there was

> neuroplasma.

> I don't know what this means but it sounds scary!

> They have to send the blood off to a lab for a C6

> ELISA test. Then they will know the titer and call

> to

> do antibiotic treatment again. He isn't symptomatic

> and he is very healthy which she said was a good

> thing. I don't know if anyone else has ever

> experienced anything like this? I was wondering if I

> have to be worried about my health as I am on

> immunosuppressants and DMARDS? The vet had stated

> that

> a friend of hers had a dog with Lyme disease and a

> few

> months later her friend had cyclical fevers and Lyme

> symptoms. She now has Lupus, and her Dr. thinks that

> most likely she was infected by her dog. The vet

> told

> me that in order for me to get Lyme disease I would

> have to get a bite from the same deer tick that had

> bitten Skye. She said the chance of that happening

> was very very rare. We think that he got this when

> he

> lived in Connecticut as they have a lot of ticks

> there. It is only recently that our area on Lake

> Michigan have began to have outbreaks. Only 2 dogs

> have Lyme disease, so we conclude that he probably

> had

> it even before they began testing the dogs here. My

> other dogs have tested negative thus far and am

> hoping

> when the black lab goes next month she is fine as

> well. My rheumatologist did do a Lyme test on myself

> last year after I advised that one of my dogs had

> come

> down with the disease.

>

>

>

________________________________________________________________________________\

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> Find them fast with Search.

>

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>

> ------------------------------------

>

>

[Guest guest]

Hi Sam, doxy is doxycycline, an antibiotic. I took the csm 2xday, and

sometimes 3x/day. I was able to take other supplements with it. I

just didn't take them at the same time. I took a multi, Vitamin D3,

iodine (idorol), Indol 3 carbinol, a vitamin supplement from Life

Extension, vitamin C, zinc, a supplement from Life Extension for

sugar control, probiotics (very important and necessary with the

antibiotic doxy), CoQ10, and Omega 3's and I can't remember what

else. I did not have any side effects from the csm, but I eventually

did from the doxy. I got cramping right under my rib cage, which went

away after stopping the doxy. I continued on with the csm for a

couple of months though with no problems. I did get liver profiles

done throughout the protocol about every 3 months, which turned out

normal. I also have intestinal issues as I also have celiac disease.

I am also on thyroid meds and I have hashimotos thyroiditis. Both

celiac and hashimotos are autoimmune diseases. The burning pricklies

were sort of just as you described. A burning sensation at times and

other times I would get like pin pricks all the time. For me, the pin

prick feelings were everywhere, not in just one area. Any more

questions, feel free to ask. V

> Hi , all my lyme symptoms went away, but arthritic. I had

mainly

> burning, pricklies as I call them, numbness, tingling, and joint

> pain.

>

> ---------------------------------

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>

[Guest guest]

hi stephanie, im sorry to hear about your dog. i HOPE he gets better soon & you

TAKE CARE OF YOURSELF AS WELL.. god bless, melyndagamez 3/29/08 5:07p.m.central

time

[ ] Lyme Disease

Hello everyone!

Today I took my Shetland Sheepdog, Skye to the vet for

his annual exam and vaccine boosters. He had tested

positive for Lyme disease a little over a year ago.

He was put on antibiotic treatment. Today when they

did the test, the vet tech came in to give the results

to the vet while she was examining Skye. She said the

Lyme test was positive and that there was neuroplasma.

I don't know what this means but it sounds scary!

They have to send the blood off to a lab for a C6

ELISA test. Then they will know the titer and call to

do antibiotic treatment again. He isn't symptomatic

and he is very healthy which she said was a good

thing. I don't know if anyone else has ever

experienced anything like this? I was wondering if I

have to be worried about my health as I am on

immunosuppressants and DMARDS? The vet had stated that

a friend of hers had a dog with Lyme disease and a few

months later her friend had cyclical fevers and Lyme

symptoms. She now has Lupus, and her Dr. thinks that

most likely she was infected by her dog. The vet told

me that in order for me to get Lyme disease I would

have to get a bite from the same deer tick that had

bitten Skye. She said the chance of that happening

was very very rare. We think that he got this when he

lived in Connecticut as they have a lot of ticks

there. It is only recently that our area on Lake

Michigan have began to have outbreaks. Only 2 dogs

have Lyme disease, so we conclude that he probably had

it even before they began testing the dogs here. My

other dogs have tested negative thus far and am hoping

when the black lab goes next month she is fine as

well. My rheumatologist did do a Lyme test on myself

last year after I advised that one of my dogs had come

down with the disease.

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Search.

http://tools.search./newsearch/category.php?category=shopping

------------------------------------

[Guest guest]

Hi, I hope Skye continues to feel healthy. My Golden

who died in June from Lymphoma had Lyme for years--no

evidence of it except initial right front lameness.

You cannot get Lyme Disease except from an infected

tick. It is also fairly well accepted now that the

tick needs to be attached for 24-48 hours to pass the

infection. My new Golden I rescued last summer has

Ehrlichiosis--another tick born disease. She just

finished 5 weeks of high dose Doxycycline. Louise

________________________________________________________________________________\

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[Guest guest]

>

> SO I have hit a exhaustion wall! I am sore and in pain. I am going

to the dr tues and expect to get a nex dx of chronic fatigue or have

him say my lyme disease is acting up

==>However, I think that tests would show you do not have Lyme's

Disease. That is because during natural healing your body will retrace

previous symptoms, diseases, injuries, etc. per Hering's Law of Cures:

http://www.healingnaturallybybee.com/articles/heal7.php

==>My brother cured his candida, including Crohn's Disease (diarrhea,

etc.) recently and during the 2 years he's been on the program his body

retraced his Lyme's Disease.

>

> Will this program cure the lyme and any co-infections that came with

> it? I did a month or two religiously of antibiotics when I found the

> target spot on my leg. I know the currect treatment for lyme is

still antibiotics which I do not want to do with the yeast. Or do I

just add in the salt protocol for lyme to this diet?

==>The correct treatment for Lyme's by doctors is antibiotics, because

they have very little knowledge about nutrition, supplements, herbs,

etc. which heal the body naturally. But antibiotics are

toxic/poisonous to the body and they suppress illnesses rather than

cure them.

Yes, this program corrects many health problems, in addition to

candida, and it will also cure Lyme's or co-infections that can come

with candida and/or Lyme's disases.

Over the years I found so many people having miraculous healing on this

program, so I called my website Healing Naturally by Bee. Nutrition

is the key to health, plus eliminating toxins, which includes all

drugs, antibiotics, over-the-counter medicine, etc.

We must follow Nature's laws regarding nutrition and health. Give your

body what it needs and it will heal itself naturally.

The best, Bee

[Guest guest]

-

THANK YOU !

Thank you SO VERY MUCH FOR POINTING THIS EMERGING ISSUE OUT TO US....

Of course, yes yes.. its disturbingly familiar. Its the same thing that is

happening to us.

WHAT the hell is going on in this country!!?

MAN, if we could only get a national commitment to properly address mold

illness, Lyme - and all the stealth illnesses and toxic exposures,

systematically, using a rules based approach to identify and PROPERLY

diagnose ill people and get them treatment BEFORE they were seriously

incapacitated.

Regular neuro, VCS and inflammatory mediator testing would identify these

problems AND THEIR CAUSES!

IN THE LONG RUN THAT WOULD SAVE A LOT OF MONEY..

Improved Health IT makes sense for EVERYBODY if we have universal

healthcare.

IF we had decent *universal* healthcare that did not have caps, large

deductibles, that was NOT priced by risk and was not limited to those in

group plans or those without chronic illness then they could NOT, would not,

use that information to deny people insurance..

Pretending the problem doesn't exist I think is absolutely CRIMINAL.

_______

*http://www.ct.gov/AG/cwp/view.asp?a=2795 & q=414284

Connecticut Attorney General's Office

Press Release:

Attorney General's Investigation Reveals Flawed Lyme Disease Guideline

Process,

IDSA Agrees To Reassess Guidelines, Install Independent Arbiter

May 1, 2008

Attorney General Blumenthal today announced that his antitrust

investigation has uncovered serious flaws in the Infectious Diseases Society

of America's (IDSA) process for writing its 2006 Lyme disease guidelines and

the IDSA has agreed to reassess them with the assistance of an outside

arbiter.

The IDSA guidelines have sweeping and significant impacts on Lyme disease

medical care. They are commonly applied by insurance companies in

restricting coverage for long-term antibiotic treatment or other medical

care and also strongly influence physician treatment decisions.

Insurance companies have denied coverage for long-term antibiotic treatment

relying on these guidelines as justification. The guidelines are also widely

cited for conclusions that chronic Lyme disease is nonexistent.

" This agreement vindicates my investigation -- finding undisclosed financial

interests and forcing a reassessment of IDSA guidelines, " Blumenthal said.

" My office uncovered undisclosed financial interests held by several of the

most powerful IDSA panelists. The IDSA's guideline panel improperly ignored

or minimized consideration of alternative medical opinion and evidence

regarding chronic Lyme disease, potentially raising serious questions about

whether the recommendations reflected all relevant science.

" The IDSA's Lyme guideline process lacked important procedural safeguards

requiring complete reevaluation of the 2006 Lyme disease guidelines -- in

effect a comprehensive reassessment through a new panel. The new panel will

accept and analyze all evidence, including divergent opinion. An independent

neutral ombudsman -- expert in medical ethics and conflicts of interest,

selected by both the IDSA and my office -- will assess the new panel for

conflicts of interests and ensure its integrity. "

Blumenthal's findings include the following:

* The IDSA failed to conduct a conflicts of interest review for any of

the panelists prior to their appointment to the 2006 Lyme disease guideline

panel;

* Subsequent disclosures demonstrate that several of the 2006 Lyme

disease panelists had conflicts of interest;

* The IDSA failed to follow its own procedures for appointing the 2006

panel chairman and members, enabling the chairman, who held a bias regarding

the existence of chronic Lyme, to handpick a likeminded panel without

scrutiny by or formal approval of the IDSA's oversight committee;

* The IDSA's 2000 and 2006 Lyme disease panels refused to accept or

meaningfully consider information regarding the existence of chronic Lyme

disease, once removing a panelist from the 2000 panel who dissented from the

group's position on chronic Lyme disease to achieve " consensus " ;

* The IDSA blocked appointment of scientists and physicians with

divergent views on chronic Lyme who sought to serve on the 2006 guidelines

panel by informing them that the panel was fully staffed, even though it was

later expanded;

* The IDSA portrayed another medical association's Lyme disease

guidelines as corroborating its own when it knew that the two panels shared

several authors, including the chairmen of both groups, and were working on

guidelines at the same time. In allowing its panelists to serve on both

groups at the same time, IDSA violated its own conflicts of interest policy.

IDSA has reached an agreement with Blumenthal's office calling for creation

of a review panel to thoroughly scrutinize the 2006 Lyme disease guidelines

and update or revise them if necessary. The panel -- comprised of

individuals without conflicts of interest -- will comprehensively review

medical and scientific evidence and hold a scientific hearing to provide a

forum for additional evidence. It will then determine whether each

recommendation in the 2006 Lyme disease guidelines is justified by the

evidence or needs revision or updating.

Blumenthal added, " The IDSA's 2006 Lyme disease guideline panel undercut its

credibility by allowing individuals with financial interests -- in drug

companies, Lyme disease diagnostic tests, patents and consulting

arrangements with insurance companies -- to exclude divergent medical

evidence and opinion. In today's healthcare system, clinical practice

guidelines have tremendous influence on the marketing of medical services

and products, insurance reimbursements and treatment decisions. As a result,

medical societies that publish such guidelines have a legal and moral duty

to use exacting safeguards and scientific standards.

" Our investigation was always about the IDSA's guidelines process -- not the

science. IDSA should be recognized for its cooperation and agreement to

address the serious concerns raised by my office. Our agreement with IDSA

ensures that a new, conflicts-free panel will collect and review all

pertinent information, reassess each recommendation and make necessary

changes.

" This Action Plan -- incorporating a conflicts screen by an independent

neutral expert and a public hearing to receive additional evidence -- can

serve as a model for all medical organizations and societies that publish

medical guidelines. This review should strengthen the public's confidence in

such critical standards. "

THE GUIDELINE REVIEW PROCESS

Under its agreement with the Attorney General's Office, the IDSA will create

a review panel of eight to 12 members, none of whom served on the 2006 IDSA

guideline panel. The IDSA must conduct an open application process and

consider all applicants.

The agreement calls for the ombudsman selected by Blumenthal's office and

the IDSA to ensure that the review panel and its chairperson are free of

conflicts of interest.

Blumenthal and IDSA agreed to appoint Dr. A. Brody as the ombudsman.

Dr. Brody is a recognized expert and author on medical ethics and conflicts

of interest and the director of the Institute for Medical Humanities at the

University of Texas Medical Branch. Brody authored the book, " Hooked:

Ethics, the Medical Profession and the Pharmaceutical Industry. "

To assure that the review panel obtains divergent information, the panel

will conduct an open scientific hearing at which it will hear scientific and

medical presentations from interested parties. The agreement requires the

hearing to be broadcast live to the public on the Internet via the IDSA's

website. The Attorney General's Office, Dr. Brody and the review panel will

together finalize the list of presenters at the hearing.

Once it has collected information from its review and open hearing, the

panel will assess the information and determine whether the data and

evidence supports each of the recommendations in the 2006 Lyme disease

guidelines.

The panel will then vote on each recommendation in the IDSA's 2006 Lyme

disease guidelines on whether it is supported by the scientific evidence. At

least 75 percent of panel members must vote to sustain each recommendation

or it will be revised.

Once the panel has acted on each recommendation, it will have three options:

make no changes, modify the guidelines in part or replace them entirely.

The panel's final report will be published on the IDSA's website.

ADDITIONAL FINDINGS OF BLUMENTHAL'S INVESTIGATION

IDSA convened panels in 2000 and 2006 to research and publish guidelines for

the diagnosis and treatment of Lyme disease. Blumenthal's office found that

the IDSA disregarded a 2000 panel member who argued that chronic and

persistent Lyme disease exists. The 2000 panel pressured the panelist to

conform to the group consensus and removed him as an author when he refused.

IDSA sought to portray a second set of Lyme disease guidelines issued by the

American Academy of Neurology (AAN) as independently corroborating its

findings. In fact, IDSA knew that the two panels shared key members,

including the respective panel chairmen and were working on both sets of

guidelines a the same time -- a violation of IDSA's conflicts of interest

policy.

The resulting IDSA and AAN guidelines not only reached the same conclusions

regarding the non-existence of chronic Lyme disease, their reasoning at

times used strikingly similar language. Both entities, for example, dubbed

symptoms persisting after treatment " Post-Lyme Syndrome " and defined it the

same way.

When IDSA learned of the improper links between its panel and the AAN's

panel, instead of enforcing its conflict of interest policy, it aggressively

sought the AAN's endorsement to " strengthen " its guidelines' impact. The AAN

panel -- particularly members who also served on the IDSA panel -- worked

equally hard to win AAN's backing of IDSA's conclusions.

The two entities sought to portray each other's guidelines as separate and

independent when the facts call into question that contention.

The IDSA subsequently cited AAN's supposed independent corroboration of its

findings as part of its attempts to defeat federal legislation to create a

Lyme disease advisory committee and state legislation supporting antibiotic

therapy for chronic Lyme disease.

In a step that the British Medical Journal deemed " unusual, " the IDSA

included in its Lyme guidelines a statement calling them " voluntary " with

" the ultimate determination of their application to be made by the physician

in light of each patient's individual circumstances. " In fact, United

Healthcare, Health Net, Blue Cross of California, Kaiser Foundation Health

Plan and other insurers have used the guidelines as justification to deny

reimbursement for long-term antibiotic treatment.

Blumenthal thanked members his office who worked on the investigation --

Assistant Attorney General , former Assistant Attorney General

Rutstein and Paralegal Lorraine Measer under the direction of

Assistant Attorney General Cole, Chief of the Attorney General's

Antitrust Department.

View the entire IDSA

agreement<http://www.ct.gov/ag/lib/ag/health/idsaagreement.pdf>-

(PDF-2,532KB)

*

Link:

http://www.ct.gov/ag/lib/ag/health/idsaagreement.pdf

[Guest guest]

I saw part of a very heated discussion between a congressman from NJ the

other from VA I think. Don't know how to hear or see the whole debate.

On Friday, November 14th, Chronicle (WCVB-Channel 5) in Boston aired a

half-hour expose on Lyme Disease and the conflicts of interest in treating

this

widespread disease

[Guest guest]

Maybe CSPAN.org ?

On Sun, Nov 16, 2008 at 11:31 AM, <ssr3351@...> wrote:

>

> I saw part of a very heated discussion between a congressman from NJ the

> other from VA I think. Don't know how to hear or see the whole debate.

>

> On Friday, November 14th, Chronicle (WCVB-Channel 5) in Boston aired a

> half-hour expose on Lyme Disease and the conflicts of interest in treating

> this

> widespread disease

>

>

[Guest guest]

Wow, I was just curious and visiting this morning between cups of

coffee. Didn't expect this much interest in Lyme. I'm not going to

horde the info as it wouldn't do any good that way.

I've been in the " valley of the shadow of death " for the past 8 months

and basically bedridden. This was expected starting the antibiotic

treatment for Lyme. It certainly wasn't comprehended, until now.

After eight (8) months on various antibiotics, I'm beginning to walk

short distances (10 feet) in the kitchen without ANY canes!

I've let all of my other treatments go away. None of my treatments

seem to be doing anything positive anyway. Why keep doing them?

My Lyme doc isn't overly excited about LDN. When directly asked about

LDN during our first appointment in March 08, He said " these things

have their time in the sun " or something about like that.

I weaned myself off the intravenous EAP from March 08 until about May 08.

>

> Alright guy,

> How have you been doing? Before your lyme diagnosis, I remember

> you doing CAEAP, and LDN. Are any of those treatments compatible with

> your lyme treament?

>

[Guest guest]

>

> hi, i don't mean to be complicating things but i just found out lyme

> symptoms are virtually the same as candida. and i assume you can have

> both. i guess it is hard to know for sure if you have lyme.

>

> the problem is the protocol for lyme is different than that of

> candida. has this board had any experience with lyme? or does

> anyone know anything?

+++Hi. What is your name? This protocol improves anyone health,

whether it is caused by candida, " the supposed " lyme bugs, etc. since

it is a healing program that builds up the immune system. The only

reasons a person get Lyme's, Candida or other health problems is

because they are lacking nutrients, have an imbalance in nutrients, get

too many toxins, or have serious stresses which all depress the immune

system.

My brother had Crohn's Disease (diarrhea) for over 20 years, and during

that 20 years time he also had West Nile virus, Lyme's Disease,

psoriasis and many other health problems and ailments. He's 61 years

old, and cured himself completely on this program after doing it for 20

months. See these many Success Stories, which include curing many

things other than candida;

http://www.healingnaturallybybee.com/success/index.php

If you give your body what it needs it will heal itself naturally.

That is what this program is all about.

The best to you, Bee

[Guest guest]

I was told I had " chronic lyme " and was given months of antibiotics!!!! 

I was a total mess.....However, there is nothing CHRONIC since I have followed

this

plan.  all symptoms are GONE.

Debra

 

_

[Guest guest]

Hi, Debra,

I was just wondering what symptoms you had?

 

Christie Lynn

 

" It is not good for all our wishes to be filled; through sickness we recognize

the value of health; through evil, the value of good; through hunger, the value

of food; through exertion, the value of rest. "   Dorothy Canfield Fisher

________________________________

From: debra bel osborn <nuagain101@...>

Sent: Sunday, February 1, 2009 4:02:36 PM

Subject: Re: [ ] Re: lyme disease

I was told I had " chronic lyme " and was given months of antibiotics! !!! 

I was a total mess.....However, there is nothing CHRONIC since I have followed

this

plan.  all symptoms are GONE.

Debra

 

_

[Guest guest]

Hi Chrisitie,

my symptoms began as severe fatigue, then joint pain-especially elbows and

wrists.  I am

a massage therapist so that was REALLY rough.  I started scheduling clients so

that I could nap during the day.  I finally went to a dr. when a client came in

and woke me up.

I also had muscle pain, flu like feeling, headache....so exhausted I reminded

myself of a sloth.  According to the dr. with the blood work, I had it about 3

months before diagnosis.  Then 3 months of antibiotics.  I never felt good until

I started this diet.  I was really told that with celiac disease I would

eventually have a mesh netting in my gut, and that the lymes would never go

away.  HMMMMMMMMMMMMMM........

I still sent emails to the dr.  He is in NY, I am now happy in FL.

HTH.   How are you feeling?

debra

[Guest guest]

I am new here, I'm getting my prescription filed now. I also have Lyme

Disease and co-infections. I took antibiotics for several months and am

definitely better. My ND's hope is that low dose naltrexone will help my

immune system kick the LD. I also have IC and am genetically very

inflammatory so naltrexone could do me good, aside from the Lyme.

I have a good LLMD in Missouri if you would like his name.

Kenda

>

> ,

> I also have cfs from borrelia, babesia, mycoplasma and a few viruses and

> cpn. One of my sons lives in Albuquerque. He seems to be healthy, but the

> rest of us have Lyme disease. Do you have a good doctor there?

>

> You can email me off list at pj7@... if you don't want to put your

> doctor's name on the list.

>

> a

>

> Hi Jayne,

>

> I'm taking LDN for chronic fatigue (includes various viral and bacterial

> infections, candida, low thyroid, adrenal fatigue, back and joint pain,

> heavy metal toxicity - been detoxing and treating for all with alternative

> treatments).

>

> Just two and a half weeks and I already feel like I've got my life back.

> I've not worked in almost two years. I updated my resume the second week on

> LDN and applied for a job. If anyone had told me a month ago that I would be

> doing that I would have told them they were crazy! I've had alot more

> energy, no brain fog, and sweet moods. For the first time in years Life

> feels possible. Still dealing with pain and shingles but it feels manageable

> now.

>

> Thanks for the diet info. I'll check it out. I've been following the

> Genotype Diet by D'Adamo (his evolved version of his blood type diet)

> but recently tested with a kinesiologist and narrowed down more specifics

> for me.

>

> I'm on 3 mg of LDN and taking it at 9:30ish pm. Seems to work for me. Sleep

> hasn't been changed much. Sometimes I feel a bit buzzy around 3 am. Must be

> the endorphins kicking in. I am to increase to 4.5 after a month.

>

> I've enjoyed the discussions on daytime vs nightime dosing. Confirms for me

> that there are no absolutes when it comes to human beings. There's no " one

> size fits all " for anything. We have to take responsibility for finding what

> works for each of us. The big picture would look pretty strange if all the

> puzzle pieces were identical.

> <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/03.gif> It helps to

> have a basic road map, but how we get there depends on the vehicle.

>

> in Albuquerque

>

[Guest guest]

Kenda, I'm new here, too, and still looking into this. I would

appreciate you sending me the name of your doc in MO. You can e-mail

me offline if you prefer.

Thanks, ka

>

> I am new here, I'm getting my prescription filed now. I also have

Lyme

> Disease and co-infections. I took antibiotics for several months and

am

> definitely better. My ND's hope is that low dose naltrexone will

help my

> immune system kick the LD. I also have IC and am genetically very

> inflammatory so naltrexone could do me good, aside from the Lyme.

>

> I have a good LLMD in Missouri if you would like his name.

>

> Kenda

[Guest guest]

Hi, ka,

His name is Crist in Springfield, Missouri. His website is

drcharlescrist.com. Some LLMD's do not like their names mentioned publicly

but Dr. Crist does not mind. If you would like more information regarding

his treatment methods feel free to email me at lovegoldens@....

Kenda

On 3/1/09 10:01 AM, " ejojunk " <ejojunk@...> wrote:

> Kenda, I'm new here, too, and still looking into this. I would

> appreciate you sending me the name of your doc in MO. You can e-mail

> me offline if you prefer.

>

> Thanks, ka

>

>

>>

>> I am new here, I'm getting my prescription filed now. I also have

> Lyme

>> Disease and co-infections. I took antibiotics for several months and

> am

>> definitely better. My ND's hope is that low dose naltrexone will

> help my

>> immune system kick the LD. I also have IC and am genetically very

>> inflammatory so naltrexone could do me good, aside from the Lyme.

>>

>> I have a good LLMD in Missouri if you would like his name.

>>

>> Kenda

>

>

[Guest guest]

For me, I have been diagnosed with MS by a two neurologists and then

Lyme and many coinfections by a lyme literate medical doctor (LLMD).

The LDN 3mg then 4.5mg / day did not seem to help. That is what drove

me towards EAP then my Lyme diagnosis.

Make sure your LLMD knows of your use of LDN.

www.underourskin.com

www.CanLyme.com

finally a cool video

http://vimeo.com/2354218

>

> I am new here, I'm getting my prescription filed now. I also have Lyme

> Disease and co-infections. I took antibiotics for several months and am

> definitely better. My ND's hope is that low dose naltrexone will

help my

> immune system kick the LD. I also have IC and am genetically very

> inflammatory so naltrexone could do me good, aside from the Lyme.

>

> I have a good LLMD in Missouri if you would like his name.

>

> Kenda

>

> >

> > ,

> > I also have cfs from borrelia, babesia, mycoplasma and a few

viruses and

> > cpn. One of my sons lives in Albuquerque. He seems to be healthy,

but the

> > rest of us have Lyme disease. Do you have a good doctor there?

> >

> > You can email me off list at pj7@... if you don't want to put your

> > doctor's name on the list.

> >

> > a

> >

> > Hi Jayne,

> >

> > I'm taking LDN for chronic fatigue (includes various viral and

bacterial

> > infections, candida, low thyroid, adrenal fatigue, back and joint

pain,

> > heavy metal toxicity - been detoxing and treating for all with

alternative

> > treatments).

> >

> > Just two and a half weeks and I already feel like I've got my life

back.

> > I've not worked in almost two years. I updated my resume the

second week on

> > LDN and applied for a job. If anyone had told me a month ago that

I would be

> > doing that I would have told them they were crazy! I've had alot more

> > energy, no brain fog, and sweet moods. For the first time in

years Life

> > feels possible. Still dealing with pain and shingles but it feels

manageable

> > now.

> >

> > Thanks for the diet info. I'll check it out. I've been following the

> > Genotype Diet by D'Adamo (his evolved version of his blood

type diet)

> > but recently tested with a kinesiologist and narrowed down more

specifics

> > for me.

> >

> > I'm on 3 mg of LDN and taking it at 9:30ish pm. Seems to work for

me. Sleep

> > hasn't been changed much. Sometimes I feel a bit buzzy around 3

am. Must be

> > the endorphins kicking in. I am to increase to 4.5 after a month.

> >

> > I've enjoyed the discussions on daytime vs nightime dosing.

Confirms for me

> > that there are no absolutes when it comes to human beings. There's

no " one

> > size fits all " for anything. We have to take responsibility for

finding what

> > works for each of us. The big picture would look pretty strange if

all the

> > puzzle pieces were identical.

> > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/03.gif> It

helps to

> > have a basic road map, but how we get there depends on the vehicle.

> >

> > in Albuquerque

> >

>

[Guest guest]

My llmd does not know that I will be taking ldn but I'll advise him. I've only been off antibiotics for under a week. I treated for Lyme within three weeks of my tick bite which should make of easier to "cure"KendaSent from my iPhoneOn Mar 1, 2009, at 3:57 PM, alrightguy123 <alrightguy123@...> wrote:

For me, I have been diagnosed with MS by a two neurologists and then

Lyme and many coinfections by a lyme literate medical doctor (LLMD).

The LDN 3mg then 4.5mg / day did not seem to help. That is what drove

me towards EAP then my Lyme diagnosis.

Make sure your LLMD knows of your use of LDN.

www.underourskin.com

www.CanLyme.com

finally a cool video

http://vimeo.com/2354218

>

> I am new here, I'm getting my prescription filed now. I also have Lyme

> Disease and co-infections. I took antibiotics for several months and am

> definitely better. My ND's hope is that low dose naltrexone will

help my

> immune system kick the LD. I also have IC and am genetically very

> inflammatory so naltrexone could do me good, aside from the Lyme.

>

> I have a good LLMD in Missouri if you would like his name.

>

> Kenda

>

> >

> > ,

> > I also have cfs from borrelia, babesia, mycoplasma and a few

viruses and

> > cpn. One of my sons lives in Albuquerque. He seems to be healthy,

but the

> > rest of us have Lyme disease. Do you have a good doctor there?

> >

> > You can email me off list at pj7@... if you don't want to put your

> > doctor's name on the list.

> >

> > a

> >

> > Hi Jayne,

> >

> > I'm taking LDN for chronic fatigue (includes various viral and

bacterial

> > infections, candida, low thyroid, adrenal fatigue, back and joint

pain,

> > heavy metal toxicity - been detoxing and treating for all with

alternative

> > treatments).

> >

> > Just two and a half weeks and I already feel like I've got my life

back.

> > I've not worked in almost two years. I updated my resume the

second week on

> > LDN and applied for a job. If anyone had told me a month ago that

I would be

> > doing that I would have told them they were crazy! I've had alot more

> > energy, no brain fog, and sweet moods. For the first time in

years Life

> > feels possible. Still dealing with pain and shingles but it feels

manageable

> > now.

> >

> > Thanks for the diet info. I'll check it out. I've been following the

> > Genotype Diet by D'Adamo (his evolved version of his blood

type diet)

> > but recently tested with a kinesiologist and narrowed down more

specifics

> > for me.

> >

> > I'm on 3 mg of LDN and taking it at 9:30ish pm. Seems to work for

me. Sleep

> > hasn't been changed much. Sometimes I feel a bit buzzy around 3

am. Must be

> > the endorphins kicking in. I am to increase to 4.5 after a month.

> >

> > I've enjoyed the discussions on daytime vs nightime dosing.

Confirms for me

> > that there are no absolutes when it comes to human beings. There's

no "one

> > size fits all" for anything. We have to take responsibility for

finding what

> > works for each of us. The big picture would look pretty strange if

all the

> > puzzle pieces were identical.

> > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/03.gif> It

helps to

> > have a basic road map, but how we get there depends on the vehicle.

> >

> > in Albuquerque

> >

>

[Guest guest]

Phew! You got it treated within 3 weeks! That's awesome. Mine was

closer to eight years. I went from being very active to using two

canes to get around. " Retired " from my job. The fiance' ran away.

My dog died. I need to start writing Country Western songs ;-)

I always tell the docs what I'm doing. Only once that has had a

comical edge to it. My first neurologist had a resident / assistant

taking a history. When I mentioned taking marijuana brownies for the

pain she started cracking up. It was humorous watching her try to

stifle the response. by gawd, the doc knew what I was taking.

Telling my docs / health car providers about the shift in diagnoses

has been interesting. I love these people. Most really don't want to

talk to me any longer :-(

> > >

> > > I am new here, I'm getting my prescription filed now. I also have

> > Lyme

> > > Disease and co-infections. I took antibiotics for several months

> > and am

> > > definitely better. My ND's hope is that low dose naltrexone will

> > help my

> > > immune system kick the LD. I also have IC and am genetically very

> > > inflammatory so naltrexone could do me good, aside from the Lyme.

> > >

> > > I have a good LLMD in Missouri if you would like his name.

> > >

> > > Kenda

> > >

> > > >

> > > > ,

> > > > I also have cfs from borrelia, babesia, mycoplasma and a few

> > viruses and

> > > > cpn. One of my sons lives in Albuquerque. He seems to be healthy,

> > but the

> > > > rest of us have Lyme disease. Do you have a good doctor there?

> > > >

> > > > You can email me off list at pj7@ if you don't want to put your

> > > > doctor's name on the list.

> > > >

> > > > a

> > > >

> > > > Hi Jayne,

> > > >

> > > > I'm taking LDN for chronic fatigue (includes various viral and

> > bacterial

> > > > infections, candida, low thyroid, adrenal fatigue, back and joint

> > pain,

> > > > heavy metal toxicity - been detoxing and treating for all with

> > alternative

> > > > treatments).

> > > >

> > > > Just two and a half weeks and I already feel like I've got my life

> > back.

> > > > I've not worked in almost two years. I updated my resume the

> > second week on

> > > > LDN and applied for a job. If anyone had told me a month ago that

> > I would be

> > > > doing that I would have told them they were crazy! I've had alot

> > more

> > > > energy, no brain fog, and sweet moods. For the first time in

> > years Life

> > > > feels possible. Still dealing with pain and shingles but it feels

> > manageable

> > > > now.

> > > >

> > > > Thanks for the diet info. I'll check it out. I've been following

> > the

> > > > Genotype Diet by D'Adamo (his evolved version of his blood

> > type diet)

> > > > but recently tested with a kinesiologist and narrowed down more

> > specifics

> > > > for me.

> > > >

> > > > I'm on 3 mg of LDN and taking it at 9:30ish pm. Seems to work for

> > me. Sleep

> > > > hasn't been changed much. Sometimes I feel a bit buzzy around 3

> > am. Must be

> > > > the endorphins kicking in. I am to increase to 4.5 after a month.

> > > >

> > > > I've enjoyed the discussions on daytime vs nightime dosing.

> > Confirms for me

> > > > that there are no absolutes when it comes to human beings. There's

> > no " one

> > > > size fits all " for anything. We have to take responsibility for

> > finding what

> > > > works for each of us. The big picture would look pretty strange if

> > all the

> > > > puzzle pieces were identical.

> > > > <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/03.gif> It

> > helps to

> > > > have a basic road map, but how we get there depends on the

> > vehicle.

> > > >

> > > > in Albuquerque

> > > >

> > >

> >

> >

>

[Guest guest]

Oh, don't feel bad. My PCP actually fired me as a patient after 16 years

when I told him that I thought I had Lyme Disease. He thought I had lost my

marbles. I have been tempted to write him a letter and enclose my positive

lab results but there's no point. He was extremely rude and hateful,

threatening to have security remove all 95 pounds of me!

I got sick exactly three weeks after the bite. I didn't have the rash but

had classic Lyme symptoms. After two weeks on Doxy, I was fine, only to

have symptoms return three weeks later much worse than the first time. I

ended up having Babesia as well as Lyme plus was under treated with Doxy.

What should have been an easy case to clear up hasn't been. I have an

appointment tomorrow to visit a HBOT. Don't know if I'll do it or not but

they have been successful with Lyme. Hopefully LDN will help too.

Kenda

> Phew! You got it treated within 3 weeks! That's awesome. Mine was

> closer to eight years. I went from being very active to using two

> canes to get around. " Retired " from my job. The fiance' ran away.

> My dog died. I need to start writing Country Western songs ;-)

>

> I always tell the docs what I'm doing. Only once that has had a

> comical edge to it. My first neurologist had a resident / assistant

> taking a history. When I mentioned taking marijuana brownies for the

> pain she started cracking up. It was humorous watching her try to

> stifle the response. by gawd, the doc knew what I was taking.

>

> Telling my docs / health car providers about the shift in diagnoses

> has been interesting. I love these people. Most really don't want to

> talk to me any longer :-(

>

>

>>>>

>>>> I am new here, I'm getting my prescription filed now. I also have

>>> Lyme

>>>> Disease and co-infections. I took antibiotics for several months

>>> and am

>>>> definitely better. My ND's hope is that low dose naltrexone will

>>> help my

>>>> immune system kick the LD. I also have IC and am genetically very

>>>> inflammatory so naltrexone could do me good, aside from the Lyme.

>>>>

>>>> I have a good LLMD in Missouri if you would like his name.

>>>>

>>>> Kenda

>>>>

>>>>>

>>>>> ,

>>>>> I also have cfs from borrelia, babesia, mycoplasma and a few

>>> viruses and

>>>>> cpn. One of my sons lives in Albuquerque. He seems to be healthy,

>>> but the

>>>>> rest of us have Lyme disease. Do you have a good doctor there?

>>>>>

>>>>> You can email me off list at pj7@ if you don't want to put your

>>>>> doctor's name on the list.

>>>>>

>>>>> a

>>>>>

>>>>> Hi Jayne,

>>>>>

>>>>> I'm taking LDN for chronic fatigue (includes various viral and

>>> bacterial

>>>>> infections, candida, low thyroid, adrenal fatigue, back and joint

>>> pain,

>>>>> heavy metal toxicity - been detoxing and treating for all with

>>> alternative

>>>>> treatments).

>>>>>

>>>>> Just two and a half weeks and I already feel like I've got my life

>>> back.

>>>>> I've not worked in almost two years. I updated my resume the

>>> second week on

>>>>> LDN and applied for a job. If anyone had told me a month ago that

>>> I would be

>>>>> doing that I would have told them they were crazy! I've had alot

>>> more

>>>>> energy, no brain fog, and sweet moods. For the first time in

>>> years Life

>>>>> feels possible. Still dealing with pain and shingles but it feels

>>> manageable

>>>>> now.

>>>>>

>>>>> Thanks for the diet info. I'll check it out. I've been following

>>> the

>>>>> Genotype Diet by D'Adamo (his evolved version of his blood

>>> type diet)

>>>>> but recently tested with a kinesiologist and narrowed down more

>>> specifics

>>>>> for me.

>>>>>

>>>>> I'm on 3 mg of LDN and taking it at 9:30ish pm. Seems to work for

>>> me. Sleep

>>>>> hasn't been changed much. Sometimes I feel a bit buzzy around 3

>>> am. Must be

>>>>> the endorphins kicking in. I am to increase to 4.5 after a month.

>>>>>

>>>>> I've enjoyed the discussions on daytime vs nightime dosing.

>>> Confirms for me

>>>>> that there are no absolutes when it comes to human beings. There's

>>> no " one

>>>>> size fits all " for anything. We have to take responsibility for

>>> finding what

>>>>> works for each of us. The big picture would look pretty strange if

>>> all the

>>>>> puzzle pieces were identical.

>>>>> <http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/03.gif> It

>>> helps to

>>>>> have a basic road map, but how we get there depends on the

>>> vehicle.

>>>>>

>>>>> in Albuquerque

>>>>>

>>>>

>>>

>>>

>>

>

>

[Guest guest]

Kenda,

I would be interested in knowing your doctor in Missouri. I live in Mo and could possible have Lyme. Thanks, Becky

[Guest guest]

His name is Crist and is in Springfield, MO. His website is

drcharlescrist.com

Kenda

> Kenda, 

> I would be interested in knowing your doctor in Missouri.  I live in Mo and

> could possible have Lyme.  Thanks, Becky

>

>

>

[Guest guest]

Kenda, is he still practicing? I thought I heard he had retired. I hope I am

wrong.

a

His name is Crist and is in Springfield, MO. His website is

drcharlescrist.com

Kenda

[Guest guest]

My doc who had treated my " MS " with EAP doesn't want to talk about MY

Lyme Disease. I tried to give him a factory copy of " Under Our Skin " .

He refused saying it was a conflict. He rather dislikes the FDA. I

tried to entice him by saying it highlighted the short comings of the

LYME tests and IDSA. He still refused.

I still love him and hope he is a part of my life for the foreseeable

future. I just didn't want him treating my Lyme disease.

I was quite excited to start LDN. TWO neurologists had turned down my

request for the stuff. Then via the LDN board I found my physician,

code named " Dr. Al Ternative MD " . We explored many alternative

therapies. Diet, Candida, chelation, LDN, and even EAP. I was sad

when the LDN was not stopping or providing any benefit for my sickness.

When my right hand quit working Dr. Ternative signed for THREE Lyme

tests for me. That was all sort of a topsy-turvy time in Dec 07. I

had selected TWO tests, then found out the LLMD like a third (Fry

Laboratories)

(My first neuro, Dr. Clinical Trial MD PhD, sent me to a NMSS shrink.

I mentioned my old house on top of the landfill. The shrink

immediately launched into a sales pitch, including the research he did

for his wife's breast cancer diagnosis, on how my sickness was ONLY

multiple sclerosis. Then I was charged for the hour :-(( The local

tavern bar tender would have been better money spent.)

PHEW.....had to vent

my next LLMD appt is in three weeks

>

> Oh, don't feel bad. My PCP actually fired me as a patient after 16

years

> when I told him that I thought I had Lyme Disease. He thought I had

lost my

> marbles. I have been tempted to write him a letter and enclose my

positive

> lab results but there's no point. He was extremely rude and hateful,

> threatening to have security remove all 95 pounds of me!

>