Guest guest Posted April 14, 1999 Report Share Posted April 14, 1999 Lv Laboratorios wrote: > > Hello everybody > Debra I visit also my ob/gyn and he told me the same that it is not a > relation between the athibiotics and your normal period; i asked that > question to himbecause I was having a lot of problems but he told me > that is also because of the birth problems that everything has to get > normal inside and that i kept loosing weigth and until I get to my > weight I`ll be totaly perfect Hi Rocio, Thanks for the info, but I'm not sure that is the problem. My youngest is now 3 years old, so I doubt it has to do with getting back in shape. I'm not overweight, weigh 132 and am 5'7 " . Weird thing is I'm constantly bleeding. I never seem to go off my period! I'm not bleeding bad, but steady. My Ob/gyn said not to worry, but I was wondering if others are having this problem since being on the antibiotic. I was always very regular and very predictable in this area. I go in to my ob/gyn end of June, and will ask the other stuff then, Thanks again, Debra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 In a message dated 7/29/00 6:27:41 PM Pacific Daylight Time, egroups writes: << It's really scarey how some of these drugs can be so wrong or different for one of our kids and great for another. >> Yes, , I agree....I also wonder what they're REALLY doing to our kids, even though no apparent side effects are seen! Sometimes, the cure is worse than the illness...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2000 Report Share Posted July 30, 2000 In a message dated 7/30/00 3:35:58 AM Pacific Daylight Time, egroups writes: << I've learned to ask the PHARMACIST, not the doctor about side effects, or to look myself on the web. I also have the advantage of having a nurse for a mother (even though she told me I'd have to institutionalize him) and she has a Physician's Desk Reference (PDR). Loriann >> Good point, Loriann......hah...that'll be the day when I ask my brother the doctor anything.....he said the same thing about , as you all remember...I have to get a new PDR....some of the newer med's aren't in the one I've got...... Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 Dear All: While there are some symptoms that everyone under treatments gets, it can vary in how bad it is, your sensitivity in general, (like some people tolerate pain better than others), and your mind frame. If you sit and wait, and have told yourself you will have major side effects, it can make it worse. Don't misunderstand me, I am not saying someone is making up how bad or good they might feel, but, one thing that has been shown in any medical treatment is if someone waits until they have pain, they will usually tense up, which will tighten your muscles, increase your adrenaline, and create a snowball effect. For example, when someone has surgery, and we know that they are going to be in some degree of discomfort, you usually order pain meds, anti-inflammatory meds, and whatever you think the surgery will signal the body to do. It has been documented, that if the problems that are known to be usual, are addressed at the earlier stage, at least for the first day or so, you medicate them at the beginning of when the discomfort might start, on a regular basis. If, this is not done, by the time someone is aware of their discomfort, the medicine is given and gets a chance to act, because of the way your body may react, it can take a much higher dose to get the same relief. Also, if someone can be " distracted " , and does not think about their discomfort, they may not have as much problem(s) as someone who sits around and just focuses on the time and expectation of a problem. It is always recommended that, at least at the early times of treatment, that you take something for the possible problems caused by the interferon. Most people experience problems, at least at the beginning, 3 to 6 hours after getting the shot. That is why one of the reasons it is usually suggested to start at night, when you should be sleeping, is to minimize the other things that may increase your discomfort. IT doesn't always work for everyone, and every person is an individual and has their own body chemistry, which will effect how you feel, or what, if any problems you have. The other thing is that many, not all, people on treatment, after they have stabilized, may be able to rearrange their timing of when they take the medications. There is no way to predict how and when you will, or will not, have any problems. Again, there are some things that are seen in just about everyone, but do vary to a greater or lesser degree, and the only one who can know how you do, will be you. Unfortunately, you are you are your own " guinea pig " , because of it is your body and everyone is different. While you should talk to your provider about any changes, you are still the one that is getting the medication, and only you can say what is best. You may have to experiment with times, foods, etc. to find what is best for you. But, just let your provider know if you want to try some different times or whatever, because you don't want to be changing your schedule where it will result in " double dosing " because your body still has the first dose actively circulating. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 good advice as always Marty moving my shot to the mornings now is working great. The interferon seems to make me " up " a bit, so why not make the best use of that energy at work? Lord knows I'm not gonna get any energy anywhere else! hahahaha I know I was scared to death before I started treatment. I begged hubby to promise me he won't leave me while I'm on the meds. He promised. (thankfully!hhahahaha) Let us know how it goes! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 Marty, Thanks for the explanation and encouraging words. I am, of course, going into treatment thinking/hoping that the sides will be minimal. I feel that I am at a good spot both physically and mentally to begin. Will keep you posted. Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 lora... what provisions have you made for when you feel bad? Gotta think about things both ways. Hubby is my helper and I depend on him a whole lot cause tho I don't have a lot of sides, I'm awfully tired. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 AlleyPat, haven't given it a whole lot of thought. I have a lot of friends who have offered to ANYTHING I need. My husband tries to help, but he is going to be gone most of September and October with his job. I am extremely thankful that I have this group of " hepper friends " . I feel that you all understand what is going on and have lots of great information! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2001 Report Share Posted May 2, 2001 Hey Matt, Sleepless nights are a definite side-effect but the leg pain I haven't had. That doesn't mean it isn't. Debbie > Hi, > > Does any know anything about the long term effects on > pred, like getting osteoporosis. I've just come back > from hospital and I told my doc that my leg has been > hurting for almost 2 weeks, constant pain and > sleepless nights so does anyone know anything about > this if so please let me know. > > Thanks for your help > > Matt Hastings > http://www.autoimmunehepatitis.com > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2001 Report Share Posted May 2, 2001 Hi Matt, It's good that you're on top of the situation. If you click on http://www.rxlist.com/frame/display.cgi?drug=DELTASONE They do list muscle weakness and joint pain. Osteoporosis is also mentioned as a 'rare' side effect among other things. I took pred for two years (12/94-12/96) and got osteopenia. A friend of mine took it for 10years 2.5 mg and had two hip replacements last year (he's only 38). You might ask your doctor for a bone density scan. My doctor wants his patients on pred to have one every year. If you don't mind a suggestion, be sure to have your eyes examined every year as well. Best Wishes, Barbara Ann AIH TX 12/94 BE AN ORGAN DONOR - OVER 75,600 WAITING (U.S.) > Hi, > > Does any know anything about the long term effects on > pred, like getting osteoporosis. I've just come back > from hospital and I told my doc that my leg has been > hurting for almost 2 weeks, constant pain and > sleepless nights so does anyone know anything about > this if so please let me know. > > Thanks for your help > > Matt Hastings > http://www.autoimmunehepatitis.com > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2001 Report Share Posted May 2, 2001 Matt: All I know is that all the drug info references says that is a long term effect. Also my hept. told me I will be geting bone density test every year, because of being on prednisone. -Clyde =========================================================+ Help save a life, become an organ and tissue donor today.| =========================================================+ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2001 Report Share Posted May 2, 2001 My legs bother me so much at night I wish I could take then off and put them back on in the morning. But with my luck and brain fog I would forget where I put them. heidi > >From: dfisher4140@... >Date: Wed, 02 May 2001 19:49:36 -0000 >Reply- >SUBJECT >Hey Matt, >Sleepless nights are a definite side-effect but the leg pain I >haven't had. That doesn't mean it isn't. >Debbie > > > > > > >> Hi, >> >> Does any know anything about the long term effects on >> pred, like getting osteoporosis. I've just come back >> from hospital and I told my doc that my leg has been >> hurting for almost 2 weeks, constant pain and >> sleepless nights so does anyone know anything about >> this if so please let me know. >> >> Thanks for your help >> >> Matt Hastings >> http://www.autoimmunehepatitis.com >> >> >> >> >> __________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 Prednisone use can well lead to osteoporosis, as calcium is leached from the bone. Bone density scans can let you know if this is happening. You need to be taking calcium with vitamin D added. 1500 mg's a day is typical. Also, drugs such as Fosamax (other versions exist) can help repair bone loss, working over a long period of time. Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 I hope this goes thru ...there seems to be alot of trouble with e-mails going thru lately..... Anyways...about the side effects of Pred.... Tyler was started on them when he was 9...high doses...for his Crohns...by the time he was 13 he was having terrible knee problems...there were days he would get out of bed and fall down in pain....screaming....for those who don't know Ty he is a very strong kid...now 18 dealing with alot of auto-immune diseases...He was a soccer goalie at the time and this was very difficult...he loved playing any sports....Well they did xrays of his knees....the muscles on the sides of both his knees were too weak to hold his knee cap in place...so it sat outside of where it belongs a...which means bone on bone...very painful....He had to be put in braces on both legs for whenever he was up and walking around...He also was having trouble growing...very short....these braces covered almost his entire leg....he had to give up being goalie...can't move very fast in them...so then he started playing the field...but was mostly on the bench...he stayed with his team throughout the season and then decided he didn't want to go back... He doesn't wear the braces anymore...but they also took him off the pred and has been off for years....Until this last fall when he started having all the spleen problems...so he is still on pred....from 20 up to 40 then down to 20...now at 15...with all out fingers crossed he should be able to continue coming down and be off by this coming fall.... He also gets the bone denisty test done....He does not have a very good score..so he takes extra calcium... Even though Pred has caused him alot of trouble it has also saved him at many different times... My other son was started on Pred at 3 yr old for his UC....he is 23 and takes no medication and is very active person....and has no problems.... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 In a message dated 5/4/2001 2:48:23 AM Central Daylight Time, matt_1066@... writes: << Does any know anything about the long term effects on pred, like getting osteoporosis. I've just come back from hospital and I told my doc that my leg has been hurting for almost 2 weeks, constant pain and sleepless nights >> I had leg pain also when I was on the prednisone...it felt like my bones were aching, and I had radiating pain throughout my legs. I'm off prednisone now, but I did have a bone density scan done when I was on it to check for osteoporosis...which turned out fine. I think that any doctor will probably recommend bone density scans every year if a patient is on long-term prednisone. If your doctor hasn't recommended one, you should probably mention it to him/her. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 Clyde, you say that the Prednisone/osteoporosis effect is long-term. A bone density test showed me to be at "immediate risk of fracture" three months after I began taking 80 mg of prednisone. Of course, I can't be sure I didn't have a problem before, but six months earlier I'd been told I was in a very low risk group for osteoporosis. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 Thanks 4 the support and advice. I managed to have a good nites sleep last nite but I'm still very tired. I e-mailed my question to Kings College Hospital in London (the hospital I go to), and I got this reply: 'Osteoporosis due to pred is something that happens usually either in the very long term (many, many years), or when people are taking very high doses (more than 40 mg per day) for long periods, and is more likely to develop in women than in men. My clinical colleagues tell me that, at the doses you are taking and in view of your age and the fact that you're a man, it is very unlikely that your leg problem is due to osteoporosis' Iam on 10mg of pred a day and have been on it for 6 years. Thanks again Matt ==================================================== --- HEIDI SCOTT wrote: > My legs bother me so much at night I wish I could > take then off and put them back on in the morning. > But with my luck and brain fog I would forget where > I put them. > heidi > > > > >From: dfisher4140@... > >Date: Wed, 02 May 2001 19:49:36 -0000 > >Reply- > >SUBJECT > >Hey Matt, > >Sleepless nights are a definite side-effect but the > leg pain I > >haven't had. That doesn't mean it isn't. > >Debbie > > > > > > > > > > > > > >> Hi, > >> > >> Does any know anything about the long term > effects on > >> pred, like getting osteoporosis. I've just come > back > >> from hospital and I told my doc that my leg has > been > >> hurting for almost 2 weeks, constant pain and > >> sleepless nights so does anyone know anything > about > >> this if so please let me know. > >> > >> Thanks for your help > >> > >> Matt Hastings > >> http://www.autoimmunehepatitis.com > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 In a message dated 6/11/01 5:36:13 PM Pacific Daylight Time, writes: > JJ's blood test for pancreatic function(amyles{sp?} ) was WAY out opf wack. > His reading was 243---max should be about 130. If it is permanent damage > we are in trouble. Can cause him to be insulant depandant, and sone other > things I understand. > , I know what you mean! Last winter, was on Librium and it caused his thyroid to go out of whack! Don't know if I told anyone, but we put him on Synthroid for just one month, and then we had his blood checked every two wks. after that for about a month, and his thyroid has now regulated and back to normal! Sometimes, it's the lesser of two evils, you take one med to cure one thing, and it causes a whole myriad of other problems! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2001 Report Share Posted June 26, 2001 Re: DMSA Side Effects Just be careful with tylenol, as it is rough on the liver. We use motrin instead. Kathy ************* Motrin is also toxic and has significant side effects. some mainstream editorials have warned against its use. Bernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2001 Report Share Posted June 26, 2001 Bernie, Could you refer me to the mainstream editorials that you refer to regarding Motrin? Or could you briefly explain the bad side effects that it has? I give my son Motrin all of the time! ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2001 Report Share Posted June 26, 2001 Hello Bernie and Kathy: Everything has a risk to it. I'm using the tylenol because I believe that the kidney's are being taxed enough with the detox and the bum kidney. In Christ's love and mine...Jen : ) On Mon, 25 Jun 2001 21:02:59 -0400 Bernard Windham <berniew1@...> writes: Re: DMSA Side Effects Just be careful with tylenol, as it is rough on the liver. We use motrin instead. Kathy ************* Motrin is also toxic and has significant side effects. some mainstream editorials have warned against its use. Bernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2001 Report Share Posted June 27, 2001 Bernie, What is safe to give a child for fever or aches? Is plain old asprin o.k.? MJW Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2001 Report Share Posted November 22, 2001 In a message dated 11/21/01 9:52:47 PM Pacific Standard Time, tlknj@... writes: Cellcept is an anti~rejection drug mainly used in kidney transplant, now approved in the last couple years for livers. It works well but has nasty side effects. I try to constantly remind myself that the most notable side effect for Prednisone (and CellCept) is that we stay alive! Imagine how hopeless our situation would be if we'd developed this disease a few decades ago! AIH wasn't even identified until the 1950's. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2001 Report Share Posted November 22, 2001 In a message dated 11/22/01 8:13:20 AM Pacific Standard Time, tdcc2000@... writes: And Harper, you have a good point...the sides might be bad, but the choices without are not real good! debby We're lucky. We're incredibly lucky, viewed on a world-wide scale. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2001 Report Share Posted November 22, 2001 My doctor told me that Cellcept was the drug of choice for heart transplants too. Yes, the side effects are hard....I hope I can take it fine. And Harper, you have a good point...the sides might be bad, but the choices without are not real good! debby Re: [ ] side effects In a message dated 11/21/01 9:52:47 PM Pacific Standard Time, tlknj@... writes: Cellcept is an anti~rejection drug mainly used in kidney transplant, now approved in the last couple years for livers. It works well but has nasty side effects.I try to constantly remind myself that the most notable side effect for Prednisone (and CellCept) is that we stay alive! Imagine how hopeless our situation would be if we'd developed this disease a few decades ago! AIH wasn't even identified until the 1950's. Harper Quote Link to comment Share on other sites More sharing options...
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