Side effects

[Guest guest]

Hi

Welcome to the group.There are a lot of great people here and I have

learned so much about taking care of my RA. Its also great for just talking

or venting. provides so much information and various web sites that are

also a great help. Again welcome

Heidi M

On Fri, May 23, 2008 at 6:19 AM, michellefollet <michellefollet@...>

wrote:

>

> Hi, my name is and I am new to the support group. I have

> suffered from RA for 3 and a half years now. Before being diagnosed

> with RA I suffered from ME/CFS (chronic fatique syndrome) I also

> suffered from fibromyalgia. May have had RA longer but had not been

> diagnosed. I have been on predisolone, plaquenil and methotrexiate,

> folic acid. Just about 6mths ago I had a severe reaction to my

> medication at first they thought it was the methotrexiate, so took me

> off it straight away. My liver was pickled (as the doctor pointed out

> to me) My liver function test was supposed to be 34 but had gone up

> to over 2000. It was still reacting while I was still on plaquenil

> and I got terribly itchy, like I had fleas !!! I had to go off that

> immediately as well. Thank goodness my liver function has finally

> gone back to normal, but my RA and fibromyalgia has flared up badly as

> I have only been on the predisolone.

> I have had to make a number of trips to emergency as the pain has been

> unbearably. I am now getting it in the front of my neck into my

> shoulder cap, back of neck (feels like it is in my ears) and cannot

> lift my right arm. I feel like I have no support for my neck when it

> reacts. I have also had days when I cannot walk on my leg, one time I

> passed out from the pain. And I consider myself to be a pretty strong

> person when it comes to tolerating pain, but when it gets to this

> stage it is just completely unbearable.

> The Rhematologist are going to try me on sulfasalazine (not sure if I

> am spelling it right) they need to moniture me closely to make sure

> my liver function test is still ok after using it. They also want to

> reduce my predislone right done, at the moment I am taking 15mg but

> have been up to 25mg when I have been really bad. I would love to

> hear from anyone who can give me thier story on how treatments have

> helped them and is there anyone out there that has had severe

> reactions to the drugs they have taking? I would appreciate any help

> you can offer me. Thanks .

>

>

>

[Guest guest]

Hi ,

Since last summer I've been on methotrexate, Plaquanil,

Sulfasalazine, and folic acid. Actually, Sulfasalazine was added

early fall of last year. I haven't had any side effects that I'm

aware of. I felt that after I got on Sulfasalazine that the pain was

less and I thought I was holding my own. But as time progressed, and

pain continues to worsen and then lessen with fatigue (FMS/CFS) I'm

not always sure what is causing what symptom. I don't know how I

would be feeling without any of these medications. I just wonder.

Several years ago, another rheumy put me on prednisone, 5-10 mg/day.

I was on it for 2 years at which time it was discovered by another

doctor that I had osteoporosis and weened me off of the prednisone.A

year and a half later I got breast cancer and the chemo had more

stroids in it. So now I'm strugling with trying not to get worse.

But, I haven't had symptoms like you describe you have. I hope you

investigate the repercussions of the meds for your body. Everyone is

different.

Good luck,

Stella

>

> >

> > Hi, my name is and I am new to the support group. I have

> > suffered from RA for 3 and a half years now. Before being

diagnosed

> > with RA I suffered from ME/CFS (chronic fatique syndrome) I also

> > suffered from fibromyalgia. May have had RA longer but had not

been

> > diagnosed. I have been on predisolone, plaquenil and

methotrexiate,

> > folic acid. Just about 6mths ago I had a severe reaction to my

> > medication at first they thought it was the methotrexiate, so

took me

> > off it straight away. My liver was pickled (as the doctor pointed

out

> > to me) My liver function test was supposed to be 34 but had gone

up

> > to over 2000. It was still reacting while I was still on plaquenil

> > and I got terribly itchy, like I had fleas !!! I had to go off

that

> > immediately as well. Thank goodness my liver function has finally

> > gone back to normal, but my RA and fibromyalgia has flared up

badly as

> > I have only been on the predisolone.

> > I have had to make a number of trips to emergency as the pain has

been

> > unbearably. I am now getting it in the front of my neck into my

> > shoulder cap, back of neck (feels like it is in my ears) and

cannot

> > lift my right arm. I feel like I have no support for my neck when

it

> > reacts. I have also had days when I cannot walk on my leg, one

time I

> > passed out from the pain. And I consider myself to be a pretty

strong

> > person when it comes to tolerating pain, but when it gets to this

> > stage it is just completely unbearable.

> > The Rhematologist are going to try me on sulfasalazine (not sure

if I

> > am spelling it right) they need to moniture me closely to make

sure

> > my liver function test is still ok after using it. They also want

to

> > reduce my predislone right done, at the moment I am taking 15mg

but

> > have been up to 25mg when I have been really bad. I would love to

> > hear from anyone who can give me thier story on how treatments

have

> > helped them and is there anyone out there that has had severe

> > reactions to the drugs they have taking? I would appreciate any

help

> > you can offer me. Thanks .

> >

> >

> >

>

>

>

[Guest guest]

Hi ,

Sorry to hear your having such a hard time with your meds. I can

totally understand. I have had RA for ten years and so far have had

allergic reactions to Enbrel and MTX and Arava caused my liver levels

to become so high that they are weaning me off. I currently take

Plaquenil, Arthrotec, flexoril, and requip. My current Rheumy has

referred me to another Rheumy to see if they can come up with a

solution. I will see him on June 5th. Let me know how you make out.

, " smf1mom " <smf1mom@...> wrote:

>

> Hi ,

> Since last summer I've been on methotrexate, Plaquanil,

> Sulfasalazine, and folic acid. Actually, Sulfasalazine was added

> early fall of last year. I haven't had any side effects that I'm

> aware of. I felt that after I got on Sulfasalazine that the pain

was

> less and I thought I was holding my own. But as time progressed,

and

> pain continues to worsen and then lessen with fatigue (FMS/CFS) I'm

> not always sure what is causing what symptom. I don't know how I

> would be feeling without any of these medications. I just wonder.

>

> Several years ago, another rheumy put me on prednisone, 5-10

mg/day.

> I was on it for 2 years at which time it was discovered by another

> doctor that I had osteoporosis and weened me off of the

prednisone.A

> year and a half later I got breast cancer and the chemo had more

> stroids in it. So now I'm strugling with trying not to get worse.

>

> But, I haven't had symptoms like you describe you have. I hope you

> investigate the repercussions of the meds for your body. Everyone

is

> different.

>

> Good luck,

> Stella

>

>

>

> >

> > >

> > > Hi, my name is and I am new to the support group. I

have

> > > suffered from RA for 3 and a half years now. Before being

> diagnosed

> > > with RA I suffered from ME/CFS (chronic fatique syndrome) I also

> > > suffered from fibromyalgia. May have had RA longer but had not

> been

> > > diagnosed. I have been on predisolone, plaquenil and

> methotrexiate,

> > > folic acid. Just about 6mths ago I had a severe reaction to my

> > > medication at first they thought it was the methotrexiate, so

> took me

> > > off it straight away. My liver was pickled (as the doctor

pointed

> out

> > > to me) My liver function test was supposed to be 34 but had

gone

> up

> > > to over 2000. It was still reacting while I was still on

plaquenil

> > > and I got terribly itchy, like I had fleas !!! I had to go off

> that

> > > immediately as well. Thank goodness my liver function has

finally

> > > gone back to normal, but my RA and fibromyalgia has flared up

> badly as

> > > I have only been on the predisolone.

> > > I have had to make a number of trips to emergency as the pain

has

> been

> > > unbearably. I am now getting it in the front of my neck into my

> > > shoulder cap, back of neck (feels like it is in my ears) and

> cannot

> > > lift my right arm. I feel like I have no support for my neck

when

> it

> > > reacts. I have also had days when I cannot walk on my leg, one

> time I

> > > passed out from the pain. And I consider myself to be a pretty

> strong

> > > person when it comes to tolerating pain, but when it gets to

this

> > > stage it is just completely unbearable.

> > > The Rhematologist are going to try me on sulfasalazine (not

sure

> if I

> > > am spelling it right) they need to moniture me closely to make

> sure

> > > my liver function test is still ok after using it. They also

want

> to

> > > reduce my predislone right done, at the moment I am taking 15mg

> but

> > > have been up to 25mg when I have been really bad. I would love

to

> > > hear from anyone who can give me thier story on how treatments

> have

> > > helped them and is there anyone out there that has had severe

> > > reactions to the drugs they have taking? I would appreciate any

> help

> > > you can offer me. Thanks .

> > >

> > >

> > >

> >

> >

> >

[Guest guest]

I have experienced walking issues & stiffness on my feet. Initially I was not suspicious about LDN, but then I read a few others in this list complaining about their leg.So I stopped taking LDN - for a month now to experiment- and I do see an improvement, though whenever the weather gets unstable - I get back some leg issues, but nowhere near as before when I thought I was going to loose my walking.I am not sure what my plans are w/ LDN, but if my legs do continue to improve it will be hard to justify to myself to jump back on it. From: biglovepress <biglovepress@...>Subject: [low dose naltrexone] Side Effectslow dose naltrexone Date: Saturday, May 24, 2008, 10:01 AM

I've read that some folks experience muscle cramps, etc - a general

worsening of symptoms short term when starting LDN.

I'm curious, if one experiences side effects would it likely be

several hours after dosing, or later than that?

I ask b/c for those taking other meds & supps it'd be nice to know

what's doing what. I know this can be tricky sometimes!

Thanks!

[Guest guest]

Hi Chuck,

Yes and they are also listed even with CORRECT

dose as ³will most likely go away after a week, etc.²

For instance, antibiotics can cause diahreah but will

stop in a few days or go away when drug is stop even for it¹s intended use.

And, for instance, someone mentioned aspirin,

it relieves headache. BUT ‹ it can also upset stomach and cause ulcers,

etc..

I think about 95% of us ³get² what side effects are --- not everyone can

understand.

sue

On 9/19/08 5:01 PM, " Chuck B " <gumboyaya@...> wrote:

>

>

>

> Gracia,

>

> You wrote:

>> >

>> > wrong dose is not a " side effect " .

>

> That is actually the patient information reporting standard. The effects

> of too much and too little are always included in the list of side

> effects for any medication.

>

> Chuck

>

[Guest guest]

Ok

Gracia,

You wrote:

>

> wrong dose is not a " side effect " .

That is actually the patient information reporting standard. The effects

of too much and too little are always included in the list of side

effects for any medication.

Chuck

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AM

[Guest guest]

and group;

Me too.. I heard so much about side effects;I was getting a little

scared so I looked up humira side effects.. I found a post on

remarks about humira... Out of 20 side effects two people had

problems and it was they was allergic to it,, also one had a

problem with infections,, so its very importaant if anyone gets sick

to stop the injections and see their doctors immediately..

Basically what I see it's like any medication you take.. The all

may have side effects,,, even the over the counter meds we take

could have side effects... It don't mean you will have them; It is

warning what can happen..

I developed an alergy to strong soaps when I was in my early 30s..

So it also can happen after many years... I have to use dove white

bars.. My favorite was irish spring.. I had to guit Irish spring..

It caused me to have itchy welps all over... I used it when it

first came out 30 years ago.. I had to quit it about 10 years

ago.. I even had to wash dishes with gloves because my hands would

itch from dish liguid..

I didnt ask about any side effects about my meds from the Ra doctor,

however;; she warned me that if I have any vision problems with

lyrcia or plaqunil to stop it right away.. I watced out for it and

had to go to they eye doctor every 6 months instead of every year..

gentle hugs

Clora

> I just have to post that it drives me crazy that so many from this

group give the impression that you are going to have side effects if

you take MTX and it's just not true for the majority of people out

there on it. I can't imagine how scared someone recently diagnosed

with RA must feel. I have been on it for 9 years now and my only

side effect is slight thinning of my hair on top, slight. It gave

me my life back. MTX is the standard of care for RA, don't be

afraid to give it a try. I know quite a few people on it presently

and I have had a discussion with my RA doc about how many of his

patients on it do well. in PA

>

[Guest guest]

First, people often develop dairy intolerance as they become older. This is

very common.

Here's another possibility. You might have developed another autoimmune

disorder, celiac disease. About half the people with CD have no obvious

symptoms

(such as diarrhea, vomiting, etc.) CD often is associated with

lactose/casein intolerance.

This dairy intolerance sometimes develops because CD damages the villii in

the small intestine. This can lead to an intolerance of dairy products. If CD is

treated an heals, then the dairy intolerance may go away.

I'm not saying you have celiac disease. This just one cause/effect

possibility, one you probably should investigate.

Celiac disease occurs in about 1% of the general population. It's more common

in those of us who already have another AD. It can occur at any time in

life. If you suspect you have it, educate yourself on the subject by going to a

site such as celiac.com. You'll see that it once was considered a rare

disease in the U.S., but that's not the case. It once was believed that only

very

thin people with severe GI symptoms could have CD, but that's not the case.

Treatment is complete, life-time avoidance of all gluten. Self-diagnosis has

several problems; a blood test and/or biopsy are better moves for most of us.

Any

untreated AD can trigger other ADs, so you want to take this seriously. You

might want to talk with your doctor about it.

On the other hand -- you may simply have plain old lactose intolerance, like

many another person without any AD.

Harper

AIH dx 2000

CD dx 2002

In a message dated 1/10/09 2:53:13 PM, karjah@... writes:

whatever's going on with me thse last few months is definitely centred on

malabsorption.

> I used a food diary and noticed stomach symptoms increased when i'd had ice

> cream so last week i cut out milk and dairy for the last 4 days and the

> stomach symptoms at least disappeared. this is great news because the

> dehydration on top of liver fatigue was exhausting me.

> what isn't great is the question of why this has suddenly happened, i've

> never had problems before now. . . . Does anyone know of malabsorption as a

> symptom or side effect? or lactose

> intolerance?

>

**************

New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

[Guest guest]

I too have developed this stomach cramping and narrowed it down to

dairy products. My GI said that I may have become lactose intolerant

and that some people do become intolerant as they get older. I'm 42.

My cramping has continued and not just from dairy anymore so when I

see her again in Feb I plan to ask her to test me for celiac.

You've narrowed it down to the dairy causing the problems so you

should now at least rule out celiac. I agree with the other post

that to let it go could be more harmful and don't diagnose yourself.

From reading these posts I've found that everyone feels their fatigue

is caused by something else. For me I know I had the fatigue long

before I was diagnosed so I feel my fatigue is from my liver disease

and not the URSO. But that's just me.

Good luck!

from Michigan

PBC/AIH dx 12/07

> I used a food diary and noticed stomach symptoms increased when i'd

had ice

> cream so last week i cut out milk and dairy for the last 4 days and

the

> stomach symptoms at least disappeared. this is great news because

the

> dehydration on top of liver fatigue was exhausting me.

> what isn't great is the question of why this has suddenly happened,

i've

> never had problems before now.

> Not a fan of unusual things happenning in my abdomen. have enough

of that

> The muscle cramps and bruising remain but i know they can simply

come from

> cyclosporine.

> Does anyone know of malabsorption as a symptom or side effect? or

lactose

> intolerance?

>

>

>

[Guest guest]

people with thyroid medication should go up vey slowly and check also with heart

rate that they not become hyper.you can go back to 1.5 and later go up

slowly.let a doctor that works with bio-identical check your adrenal

>

> Hi There

> I am wonderng if anyone has experienced the side effects that I am having on

the LDN. I am taking it for crohnès. I started out with 1.5 and moved to 3 a

couple of weeks ago. I take the dose before I go to bed.

> Noticed some trouble sleeping but the main thing that has been happening the

last week & half is that I am waking up with the shakes each morning. My heart

rate has been higher running btwn 100 -140 on a regular basis throughout the day

- definitely disconcerting.

> I am a bit aenemic my last test was 103 ( this could contribute to the heart

rate) and I am taking some natural iron supplements.

> I do have hypo thyroidism but I did a TSH test last week and all is normal.

> Thanks for any feedback

>

[Guest guest]

Welcome , I have been on LDN about three months, and have had some unusual things occur, nothing alarming though. I have not read nor heard of any sides like you describe, but if it does not go away in a week or two, I would be asking more questions.

I quit asking as it seems my body is going through some changes with LDN. I assume it is all for the best, so I am just coasting along and enjoying the ride. I had no clue LDN was a glucose moderator, that alone has been worth twice my effort.

kind regards david

[low dose naltrexone] side effects

Very new to this website and to LDN (started it last week) I am wondering if anyone else's arms from the shoulder to the fingers, are falling asleep at night while sleeping.. Is this a normal side effect? The numbness is so bad that I am constantly waking up and having to move them to get the blood moving again. Only other medication I take at night is klonapin along with 3 mg of naltrexone. By the way, I suffer from chronic fatigue and fibromyalgia. Does anyone have advice or tips? Thank you.-Mark

[Guest guest]

I experienced numb hands for 3 weeks after starting LDN, had extra stifness in

the calves of my legs for 3 solid months, twitching muscles on and off for

approx. 6 months but all this faded away.

, LDN user 6 years for progressive MS w/no disease worsening since

starting LDN.

=========

>

> Very new to this website and to LDN (started it last week) I am wondering if

anyone else's arms from the shoulder to the fingers, are falling asleep at night

while sleeping.. Is this a normal side effect? The numbness is so bad that I

am constantly waking up and having to move them to get the blood moving again.

Only other medication I take at night is klonapin along with 3 mg of naltrexone.

By the way, I suffer from chronic fatigue and fibromyalgia. Does anyone have

advice or tips? Thank you.-Mark

>

[Guest guest]

Hi ,

Could you elaborate on LDN being a glucose moderator? I have

not run across

this information. If you have links I would appreciate them.

For some people the side effects can last longer than two

weeks, some report

a period of months before adjusting totally.

Thanks,

Garnet

appreciative dAVId wrote:

>

>

> */Welcome , I have been on LDN about three months, and have had some

> unusual things occur, nothing alarming though. I have not read nor

> heard of any sides like you describe, but if it does not go away in a

> week or two, I would be asking more questions. /*

> */I quit asking as it seems my body is going through some changes with

> LDN. I assume it is all for the best, so I am just coasting along and

> enjoying the ride. I had no clue LDN was a glucose moderator, that

> alone has been worth twice my effort. /*

> */kind regards david/*

>

>

[Guest guest]

Garnet, Dr. Boyle, fertility dock, Ireland, in his interview with Bradley,

sister I think, told,,,, he gives LDN to his pg mothers as it acts as a

glucose moderator, instead of prescribing insulin. In my case a full

dinner, ie country fried steak, mashed potatoes and lots of gravy, will run

my glucose up to two hundred or two hundred fifty, and it will take 2-3

hours to return to normal, but the same meal...........now that I have been

on LDN, perhaps a hundred fifty, then an hour later back to hundred. Very

normal, in the european theatre, european MD's use a two hour after eating

glucose test, in the us, the medics use a fasting glucose tests. Here

idiot, drink this pint of poison, ie, sugar water. In europe, I am

classified as a type II diabetic, here in the us, not a problem. I have

been using insulin for ten or more years, I was taking 3 IU's " R " after each

meal, as I think high glucose, above one hundred, does surmountable damage

in the human body. Most US, MD's severely frown on taking insulin, but

they only know what AMA elects to tell them. They no think out of the box.

Anywho, I have been taking injectable insulin for ten years or more, and

nothing has changed in my body.

kind regards david

Re: [low dose naltrexone] side effects

> Hi ,

>

> Could you elaborate on LDN being a glucose moderator? I have not run

> across

> this information. If you have links I would appreciate them.

>

> For some people the side effects can last longer than two weeks, some

> report

> a period of months before adjusting totally.

>

> Thanks,

>

> Garnet

>

> appreciative dAVId wrote:

>> */Welcome , I have been on LDN about three months, and have had some

>> unusual things occur, nothing alarming though. I have not read nor heard

>> of any sides like you describe, but if it does not go away in a week or

>> two, I would be asking more questions. /*

>> */I quit asking as it seems my body is going through some changes with

>> LDN. I assume it is all for the best, so I am just coasting along and

>> enjoying the ride. I had no clue LDN was a glucose moderator, that alone

>> has been worth twice my effort. /*

>> */kind regards david/*

>>

[Guest guest]

Thanks for the information . I have only listened to

the interview once and must have missed that point. Also

very interesting about how the glucose testing is done. LDN

continues to be an amazing system modulator with far

reaching benefits.

Garnet

appreciative dAVId wrote:

>

>

> Garnet, Dr. Boyle, fertility dock, Ireland, in his interview with Bradley,

> sister I think, told,,,, he gives LDN to his pg mothers as it acts as a

> glucose moderator, instead of prescribing insulin. In my case a full

> dinner, ie country fried steak, mashed potatoes and lots of gravy, will run

> my glucose up to two hundred or two hundred fifty, and it will take 2-3

> hours to return to normal, but the same meal...........now that I have been

> on LDN, perhaps a hundred fifty, then an hour later back to hundred. Very

> normal, in the european theatre, european MD's use a two hour after eating

> glucose test, in the us, the medics use a fasting glucose tests. Here

> idiot, drink this pint of poison, ie, sugar water. In europe, I am

> classified as a type II diabetic, here in the us, not a problem. I have

> been using insulin for ten or more years, I was taking 3 IU's " R " after

> each

> meal, as I think high glucose, above one hundred, does surmountable damage

> in the human body. Most US, MD's severely frown on taking insulin, but

> they only know what AMA elects to tell them. They no think out of the box.

> Anywho, I have been taking injectable insulin for ten years or more, and

> nothing has changed in my body.

> kind regards david

>

[Guest guest]

I'm wondering if there is a body of LDN users who have added GABA with some

success for numbness, cramping, twitching?

I use GABA already, so when I am able to add LDN to my regimen, it will be

interesting to note whether I have any of these symptoms.

~ unity

I experienced numb hands for 3 weeks after starting LDN, had extra stifness in

the calves of my legs for 3 solid months, twitching muscles on and off for

approx. 6 months but all this faded away.

, LDN user 6 years for progressive MS w/no disease worsening since

starting LDN.

[Guest guest]

Hi Garnet,

From experience here, the most cited side effect of LDN is disrupted sleep

for up to a couple of weeks.

The cause of any extended side effects can't be known until all the

variables that could be contributing to the effects are investigated, eg;

long-term dependence and cessation of pain medications can result in

withdrawal symptoms, and different medication combinations result in

different effects, etc.

1.2. Re: side effects

Posted by: " Garnet " garnet@... garnetridge

Date: Mon Jul 27, 2009 9:00 pm ((PDT))

Hi ,

Could you elaborate on LDN being a glucose moderator? I have

not run across this information. If you have links I would appreciate them.

For some people the side effects can last longer than two

weeks, some report a period of months before adjusting totally.

Thanks,

Garnet

appreciative dAVId wrote:

>

>

> */Welcome , I have been on LDN about three months, and have had some

> unusual things occur, nothing alarming though. I have not read nor

> heard of any sides like you describe, but if it does not go away in a

> week or two, I would be asking more questions. /*

> */I quit asking as it seems my body is going through some changes with

> LDN. I assume it is all for the best, so I am just coasting along and

> enjoying the ride. I had no clue LDN was a glucose moderator, that

> alone has been worth twice my effort. /*

> */kind regards david/*

[Guest guest]

My wife has started with a sore back and I wonder if it's the LDN???

Mind you, she's never taken it but it's there in the fridge staring her

in the face every time she opens it.................. :-)

Baugh wrote:

Hi,

My left toes hurt and wonder if it might be caused by LDN?

Never mind, I remember running into the dresser last night.

[Guest guest]

>>My left toes hurt and wonder if it might be caused by LDN?Never mind, I remember running into the dresser last night.<<

LOL, LOL....Actually, you bring up a good point. So many times we ignore the obvious and look to blame some new treatment or drug. I think we are in higher tune to looking for symptoms when we start a new drug, and wind up chasing a lot of ghosts. Red Herrings for the most part. There is a lot of evidence on the side effects of LDN, I suspect there are only rare and MINOR side effects we haven't heard of.

From: Baugh <oldglory@...>Subject: [low dose naltrexone] Side effectslow dose naltrexone Date: Wednesday, August 12, 2009, 11:34 PM

Hi,My left toes hurt and wonder if it might be caused by LDN?Never mind, I remember running into the dresser last night.************ ********* ******On the other hand, I hear LDN helps the stiffness you have when sittingawhile. Can anyone verify this?Thank you,Jean

[Guest guest]

Woke up this morning and my left ear fell off.

Anyone think LDN caused this?

Art

--

>

> Hi,

>

> My left toes hurt and wonder if it might be caused by LDN?

>

> Never mind, I remember running into the dresser last night.

>

[Guest guest]

I agree that it isn't helpful whne people go on about what seem like

miniscule side effects after only a few days on LDN.

However what really annoys me is when some enjoy sneering at people who have

just joined the list and who are having a go at LDn. Yes we don't want to

scare anyone off. Surely you do not want to do that either, but the sneering

jokes have just that effect!

Isn't it possible that there are effects like depressive feelings which are

real LDN side effects where the endorphin blockade persists longer than 4 to

6 hours. Isnt it possible that for some daily dosing is too much?

Please guys, give people a break.

Nuala

[Guest guest]

LOL....That was great!!!!! I really needed a laugh this morning.

[low dose naltrexone] Re: Side effects

Woke up this morning and my left ear fell off.Anyone think LDN caused this?Art-->> Hi,> > My left toes hurt and wonder if it might be caused by LDN?> > Never mind, I remember running into the dresser last night.>

[Guest guest]

Well! That would explain finding my right ear under my pillow this morning;-) That does it, no more LDN... Seriously though, since getting back on LDN for a few days my fibro is all gone, along with my right ear but at least the nub doesn't hurt hehehehe.<<Posted by: "art_ldn" rtee54@... art_ldnThu Aug 13, 2009 4:04 am (PDT)Woke up this morning and my left ear fell off.Anyone think LDN caused this?Art-->> Kem in Eugene <º)))><

[Guest guest]

Hey Art, the link you posted says: HTTP 404The page you are looking for might have been removed, had its name changed, or is temporarily unavailable.<<Posted by: "art_ldn" rtee54@... art_ldnThu Aug 13, 2009 4:06 am (PDT)Side Effects Of Low Dose Naltrexone (LDN)http://www.webspawner.com/users/sideeffectsofldn/index.htm Kem in Eugene <º)))><

[Guest guest]

I think unlike most drugs, people who take LDN take a lot of time to consider it and research it, so anything that could possibly be related to the LDN is readily noticed. That said, most people with some knowledge of meds can appreciate the fact that there are the " common " side effects (the ones in the handouts, on the net, etc), the " rare " side effects (that you may still find in the brochures and prescribing info) and the " extremely rare " side effects that can and do happen to a small amount of people. If a side effect is really a concern, one could get off the drug, and then get back on and see if the side effect returns. Just because it's not printed in the literature doesn't mean it can't happen. Why should someone should be hesitant to discuss a possible effect because they might " scare off " a newbie?