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Christene,

You are describing what I also go through. Having to have left my job where I was highly organized and in charge of many things now it's an effort to pay bills and keep the checkbook balanced. I know that my thinking gets confused if I am around odors such as perfume, household cleaners, smoke, almost anything brand new. Their are many things you can do but I think the best advise is to drink bottled water (in glass) eat healthy organic foods. Stay away from sugar (it really blurs my thinking) and buy a FIR Sauna. I bought mine from Arizona Sun. It's portable, kinda made from high tech material and cost me $600.00. When I first got it I turned it on OUTSIDE as many times as I could remember for about 2 days. It had then outgassed enough so that I could bring it in and use it. It helps me so much and it is not uncomfortably hot like a regular sauna is. Also I would recommend going to www.flylady.net this lady really helps me in keeping myself better organized and my home as well. I am also a perfectionist but you have to let that go so that you can get better. Hope this helps.

Penni

Re: side effects

Cognitive effects are prominent among we survivors. I had a truck load of those. Sometimes when I am tired or eat something I should not be eating, they return.LyndaAt 09:21 AM 3/5/2006, you wrote:>Hi Ladies>I was just wondering about something. Mostly we talk about the >physical adverse effects of implants. Am I the only one who has >cognitive adverse effects? Surely I can't be. Aside of t>e fatigue and malaise, I'm totally unmotivated to do daily living >tasks. I'm highly unorganized, have no concept of time or time >mgmt., attention span is zero. I can't stay focused on anything >long enough to complete it, easily distracted, memory is toast, etc. >etc. Anybody else deal with this? Does anybody know what will help >until I can scrounge up the thousands needed for explant (which is >so far away it scares me).>I'm a type A chronic overachieving perfectionist gone awry. I want >to be me again!>And this infrared sauna thing...where can I find one?>>Christene>>>>>>>>Opinions expressed are NOT meant to take the place of advice given >by licensed health care professionals. Consult your physician or >licensed health care professional before commencing any medical treatment.>>"Do not let either the medical authorities or the politicians >mislead you. Find out what the facts are, and make your own >decisions about how to live a happy life and how to work for a >better world." - Linus ing, two-time Nobel Prize Winner (1954, >Chemistry; 1963, Peace)>>See our photos website! Enter "implants" for access at this link:><http://.shutterfly.com/action/>http://.shutterfly.com/action/>>

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Hi Christene,

Do not dispair, you are not alone! I'm four months post-op and feel

like I'm just starting to get my act together again as far as

organizational skills. I lost my job last year and am attending

school full time, and what was a tremendous struggle for me last

semester is coming to me much easier this semester. In fact I'm

getting 100% and 96%, etc., on my tests, whereas last semester (when

I still had the implants) I was getting 65% and 70% (luckily I

brought those numbers up and got A's and B's, but it was much harder

than normal). During that time, I couldn't keep up around the house

and my checkbook was a total disaster, which was not like me at

all. I'm still suffering from joint pain and health issues, however

I do notice that my cognitive skills are improving. My checkbook is

once again balanced, and this past week I've been going through the

stacks of papers that I wasn't filing. I think the best thing for

you to do while you're gathering funds for the explant is to eat

properly, drink alot of water, and if you are able to, try to get

some sleep. You might want to try some detoxing, I've heard some

say that they noticed improvement before explant - although it's

harder because the implants are still in your body. I still

struggle with sleep issues, although it seems to go in phases - I'm

having a good phase these past few weeks where I'm actually getting

more than 4 hours of sleep a night. Now I think I'm actually up to

6 or 7.

Sis

>

> Hi Ladies

> I was just wondering about something. Mostly we talk about the

physical adverse effects of implants. Am I the only one who has

cognitive adverse effects? Surely I can't be. Aside of t

> e fatigue and malaise, I'm totally unmotivated to do daily living

tasks. I'm highly unorganized, have no concept of time or time

mgmt., attention span is zero. I can't stay focused on anything

long enough to complete it, easily distracted, memory is toast, etc.

etc. Anybody else deal with this? Does anybody know what will help

until I can scrounge up the thousands needed for explant (which is

so far away it scares me).

> I'm a type A chronic overachieving perfectionist gone awry. I want

to be me again!

> And this infrared sauna thing...where can I find one?

>

> Christene

>

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Penni, What a wonderful website. I look forward to some light and enjoyable reading, as well as insighful too. Penni Pitre <penniquilts@...> wrote: Christene, You are describing what I also go through. Having to have left my job where I was highly organized and in charge of many things now it's an effort to pay bills and keep the checkbook balanced. I know that my thinking gets confused if I am around odors such as perfume, household cleaners, smoke, almost anything brand new. Their are many things you can do but I think the best advise is to drink bottled water (in glass) eat healthy

organic foods. Stay away from sugar (it really blurs my thinking) and buy a FIR Sauna. I bought mine from Arizona Sun. It's portable, kinda made from high tech material and cost me $600.00. When I first got it I turned it on OUTSIDE as many times as I could remember for about 2 days. It had then outgassed enough so that I could bring it in and use it. It helps me so much and it is not uncomfortably hot like a regular sauna is. Also I would recommend going to www.flylady.net this lady really helps me in keeping myself better organized and my home as well. I am also a perfectionist but you have to let that go so that you can get better. Hope this helps. Penni Re: side effects Cognitive effects are prominent among we survivors. I had a truck load of those. Sometimes when I am tired or eat something I should not be eating, they return.LyndaAt 09:21 AM 3/5/2006, you wrote:>Hi Ladies>I was just wondering about something. Mostly we talk about the >physical adverse effects of implants. Am I the only one who has

>cognitive adverse effects? Surely I can't be. Aside of t>e fatigue and malaise, I'm totally unmotivated to do daily living >tasks. I'm highly unorganized, have no concept of time or time >mgmt., attention span is zero. I can't stay focused on anything >long enough to complete it, easily distracted, memory is toast, etc. >etc. Anybody else deal with this? Does anybody know what will help >until I can scrounge up the thousands needed for explant (which is >so far away it scares me).>I'm a type A chronic overachieving perfectionist gone awry. I want >to be me again!>And this infrared sauna thing...where can I find one?>>Christene>>>>>>>>Opinions expressed are NOT meant to take the place of advice given >by licensed health care professionals. Consult your physician or >licensed health care

professional before commencing any medical treatment.>>"Do not let either the medical authorities or the politicians >mislead you. Find out what the facts are, and make your own >decisions about how to live a happy life and how to work for a >better world." - Linus ing, two-time Nobel Prize Winner (1954, >Chemistry; 1963, Peace)>>See our photos website! Enter "implants" for access at this link:><http://.shutterfly.com/action/>http://.shutterfly.com/action/>>

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Oh, yes, I had to use a calculator to balance my checkbook (even to

add or subtract) for years and still I had to try to balance it three

or four times. You are so the norm.

Lynda

At 08:50 PM 3/5/2006, you wrote:

>Gosh everybody....Thank you soooo much!

>;;)

>

>

>So I'm really not the loser I thought I was becoming?

>

>I had to laugh when I saw everybody with the checkbook

>difficulties! That is so me! I just can't keep all of those

>numbers straight! It's such a chore I just avoid it like the plague!

>

>Well, I have a doc appt in the morning with my primary because Derm

>is about useless! He keeps telling me he wants me to undergo " light

>therapy " for my skin. He thinks it will help the itching. My chest

>(the skin) has gotten so much worse in the last couple of

>weeks. I'm horrified at the thought of leaving these stupid things

>in, but I'm hoping that the doctor tomorrow will help me out. If my

>insurance company will pay for any part or all of it, then I need to

>do it now while I still have insurance. Who knows when this divorce

>will be final....If I dont get any answers from my primary, then I

>guess I'll have to go see Dr. Kolb and dish out more money I really

>don't have, but I'm scared not to dish out the money...does anybody

>know anything about this light therapy stuff?

>

>Christene

>

>

>

>

>Opinions expressed are NOT meant to take the place of advice given

>by licensed health care professionals. Consult your physician or

>licensed health care professional before commencing any medical treatment.

>

> " Do not let either the medical authorities or the politicians

>mislead you. Find out what the facts are, and make your own

>decisions about how to live a happy life and how to work for a

>better world. " - Linus ing, two-time Nobel Prize Winner (1954,

>Chemistry; 1963, Peace)

>

>See our photos website! Enter " implants " for access at this link:

><http://.shutterfly.com/action/>http://.shutterfly.co\

m/action/

>

>

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Gosh everybody....Thank you soooo much!

So I'm really not the loser I thought I was becoming?

I had to laugh when I saw everybody with the checkbook difficulties! That is so me! I just can't keep all of those numbers straight! It's such a chore I just avoid it like the plague!

Well, I have a doc appt in the morning with my primary because Derm is about useless! He keeps telling me he wants me to undergo "light therapy" for my skin. He thinks it will help the itching. My chest (the skin) has gotten so much worse in the last couple of weeks. I'm horrified at the thought of leaving these stupid things in, but I'm hoping that the doctor tomorrow will help me out. If my insurance company will pay for any part or all of it, then I need to do it now while I still have insurance. Who knows when this divorce will be final....If I dont get any answers from my primary, then I guess I'll have to go see Dr. Kolb and dish out more money I really don't have, but I'm scared not to dish out the money...does anybody know anything about this light therapy stuff?

Christene

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Christene,

I've never heard of light therapy helping implanted

women. . . That's not to say that it won't. But, from

what we've seen, the surest way to get better is to

get the implants out.

The body will try to get rid of toxins by any means

possible. Rashes and boils are just one of the ways.

Hugs,

Rogene

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and Christene . . .

IMHO, even crueler that what implants do the body, is

what they do to the mind! . . .

I could go on and on about the horrible, embarassing,

dangerous things I've done . . . some are funny too. .

..

Just know that, as you detox, you will get better. You

may always have a degree of cognitive problems though.

The positive thing is that they now know that we grow

new brain cells throughout our lives. (They used to

think we had a lifetime supply at birth.) . . . Your

job is to train the new ones.

Suggestions . . . Do mentally stimulating things. . .

Puzzles - (crossword puzzles, picture puzzles,

3-dimensional puzzles), computer games - especially

those that challenge you! Work on your math . . . get

some math workbooks at a used book store and work them

from front to back. Read, read, read ... take classes

if possible . . . Challenge yourself to do things

you've never done. It will be frustrating, but you'll

soon be doing better!

Avoid mind-numbing drugs! . . . anti-anxiety,

anti-depressants . . . some anti-seizure meds do the

same thing. If you've been taking these, it may takes

weeks of being off of them before you have them out of

your system completely. . . But if you do stop taking

them, talk to your doctor about it first, then do it

gradually.

Here again, eating an excellent diet is very

important. . . No junk food, no processed food, no

sugar!

All this stuff takes time, patience and discipline!

There's no easy route . . . When you cheat, the only

person you're cheating on is yourself!

Hugs and prayers,

Rogene

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Christene,

You can learn a lot about " far infrared saunas " by

doing a web search for the term. The various

manufacturer's have more or less information - so even

if you're not interested in their particular sauna,

read through their website. . . . The prices vary

widely . . . Patty and I have a HealthMate.

I've been enjoying mine for several years! . . . There

are times when my sweat has a really awful odor! . .

One old book to read is " Clear Body, Clear Mind " by

L.Ron Hubbard . . . the Scientology guy . . . I can't

go along with his religious beliefs, but I figure

everybody is entitled to one good idea. He has a detox

program outlined that is very good. I would caution

anyone from trying to do it without supervision

though. You reach a point where you're pretty much out

of it and need someone to make decisions for you -

like when to get out of the sauna, take supplements

and drink water.

Hugs,

Rogene

--- Christene <prettypinkprincess_p3@...> wrote:

> Hi Ladies

> I was just wondering about something. Mostly we

> talk about the physical adverse effects of implants.

> Am I the only one who has cognitive adverse

> effects? Surely I can't be. Aside of t

> e fatigue and malaise, I'm totally unmotivated to do

> daily living tasks. I'm highly unorganized, have no

> concept of time or time mgmt., attention span is

> zero. I can't stay focused on anything long enough

> to complete it, easily distracted, memory is toast,

> etc. etc. Anybody else deal with this? Does anybody

> know what will help until I can scrounge up the

> thousands needed for explant (which is so far away

> it scares me).

> I'm a type A chronic overachieving perfectionist

> gone awry. I want to be me again!

> And this infrared sauna thing...where can I find

> one?

>

> Christene

>

>

>

>

>

>

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Speaking of using a calculator to balance checkbooks - I was going through my bank statement and marking the checks and so on that had cleared when I cam across a HUGE mistake pre-explant. I subracted $63 twice after I had gone to see the dentist. Luckily this was in my favor and I now how $63 dollars that I didnt know I had, but what a scary mistake to make and yet how simple. I always double check and I still missed it. Hopefully this won't happen again!Lynda <coss@...> wrote: Oh, yes, I had to use a calculator to balance my checkbook (even to add or subtract) for years and still I had to try to balance it three or four times. You are so the norm.LyndaAt 08:50 PM 3/5/2006, you wrote:>Gosh everybody....Thank you soooo much!>;;)>>>So I'm really not

the loser I thought I was becoming?>>I had to laugh when I saw everybody with the checkbook >difficulties! That is so me! I just can't keep all of those >numbers straight! It's such a chore I just avoid it like the plague!>>Well, I have a doc appt in the morning with my primary because Derm >is about useless! He keeps telling me he wants me to undergo "light >therapy" for my skin. He thinks it will help the itching. My chest >(the skin) has gotten so much worse in the last couple of >weeks. I'm horrified at the thought of leaving these stupid things >in, but I'm hoping that the doctor tomorrow will help me out. If my >insurance company will pay for any part or all of it, then I need to >do it now while I still have insurance. Who knows when this divorce >will be final....If I dont get any answers from my primary, then I >guess I'll

have to go see Dr. Kolb and dish out more money I really >don't have, but I'm scared not to dish out the money...does anybody >know anything about this light therapy stuff?>>Christene>>>>>Opinions expressed are NOT meant to take the place of advice given >by licensed health care professionals. Consult your physician or >licensed health care professional before commencing any medical treatment.>>"Do not let either the medical authorities or the politicians >mislead you. Find out what the facts are, and make your own >decisions about how to live a happy life and how to work for a >better world." - Linus ing, two-time Nobel Prize Winner (1954, >Chemistry; 1963, Peace)>>See our photos website! Enter "implants" for access at this link:><http://.shutterfly.com/action/>http://.shutterfly.com/action/>>

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Ro,

I've done some looking on the net. What did I find out? Hmmm...I found out I

can't afford one. I thought somebody might have the inside story of a " public "

one.

About the diaphoresis...

(that's sweating)that's me all spring,summer, and early fall long! It's an

unfortunate fact that I live in Georgia. I'm originally from SoCal. So I pretty

much smell weird year round. BUT, deductive reasoning tells me that I'm

sweating because my body is trying to free itself of this poison, the poison goe

to the surface of the skin causing the eruptions, the eruptions then release

even more poison released onto the surface of the skin, which is why I itch so

much. So the whole sauna/sweating thing is not very appealing to me. But i've

already been looking into the detox. I'm thinking about a body wrap, but also

reading a detox protocol by Dr. Ann Louise Gittelman. Very valuable info!

>

> > Hi Ladies

> > I was just wondering about something. Mostly we

> > talk about the physical adverse effects of implants.

> > Am I the only one who has cognitive adverse

> > effects? Surely I can't be. Aside of t

> > e fatigue and malaise, I'm totally unmotivated to do

> > daily living tasks. I'm highly unorganized, have no

> > concept of time or time mgmt., attention span is

> > zero. I can't stay focused on anything long enough

> > to complete it, easily distracted, memory is toast,

> > etc. etc. Anybody else deal with this? Does anybody

> > know what will help until I can scrounge up the

> > thousands needed for explant (which is so far away

> > it scares me).

> > I'm a type A chronic overachieving perfectionist

> > gone awry. I want to be me again!

> > And this infrared sauna thing...where can I find

> > one?

> >

> > Christene

> >

> >

> >

> >

> >

> >

>

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Truthfully, I don't think he knew what he was doing. I think it was just something to say to make it look like he was doing something. It's the same as the military handing out Motrin for anything that ails you. It's the cure-all in the military.

In the civilian world it's like this "Oh it must be viral." That's their answer when they don't have a clue. Whatever....I ditched his butt today! Incompetent providers are not easily tolerated by me.

Christene

>> Christene,> > I've never heard of light therapy helping implanted> women. . . That's not to say that it won't. But, from> what we've seen, the surest way to get better is to> get the implants out.> > The body will try to get rid of toxins by any means> possible. Rashes and boils are just one of the ways.> > Hugs,> > Rogene>

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Gosh, Christene, you made me flash back to my college years -- eons ago lol

I remember we used to joke about the campus health center. We just called it

CC - the

docs there could only diagnose Colds & Clap. If you didn't have a cold, watch

out.

They were that bad!! Boy was that a blast from the past@@

> >

> > Christene,

> >

> > I've never heard of light therapy helping implanted

> > women. . . That's not to say that it won't. But, from

> > what we've seen, the surest way to get better is to

> > get the implants out.

> >

> > The body will try to get rid of toxins by any means

> > possible. Rashes and boils are just one of the ways.

> >

> > Hugs,

> >

> > Rogene

> >

>

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Christene .. .

I'm thrilled to hear you have the backing of your

doctor now. That's a big first step!

It's wonderful that you do sweat. So many sick women

can't - when they get hot, they get sick! So they

avoid sweating and gradually get worse.

Drinking copious amounts of water will go a long way

in helping you dump the toxins! Minimum 1/2 ounce per

pound of body weight daily. Skip all the empty drinks

- coffee, cold drinks, sugary juices, etc. Tea is

usually good. Eat fresh fruit rather than juices -

unless you're drinking a 100% organic juice.

You can also dump toxins by soaking in hot Epsom Salt

baths . . . However, anyone with diabetes, poor

circulation in their legs, or open wounds should avoid

Epsom salt baths.

Hugs and prayers,

Rogene

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Christene,

Oh my, cognitive adverse effects are rampant amongst us!

It was my first alarming symptom along with the fatigue. I remember

the first night it hit me....I was scared out of my mind. I sat

down to read my Bible, desperate for some comfort, but that only

made it worse as I realized that I could not comprehend the words

that I read on the page. It was like Greek to me!

I ran to the den to sit with my kids and watch some mindless TV, but

then realized I could not follow the television plot. I thought I

was losing my mind completely. I was never so scared in all my

life. From that day forward, I could not function like I used to.

And I was a straight A college graduate, with a brain that didn't

quit. I wanted my old brain back in a really bad way!

The good news is that you can overcome this in time. While my brain

fog and cognitive dysfunction hung on for a very long time, they

slowly resolved. I really worked hard at making myself use my

brain. I read tons of books. I stayed active in our business

pursuits, writing business plans and working the numbers and

expecting nothing less than perfection from myself. My accountant

confirms my efforts, saying our books are some of the cleanest she's

seen. Now I hardly notice any cognitive deficits, although there

are times where I feel like I am having brain farts! But I won't

complain! I can do everything I used to. Those few brain farts I

have are just a little reminder of what I have been through.

Infrared saunas are great. I bought mine through the internet and

phone, after seeing a friend with one. (It's a Healthmate.) I am

not sure who sells them in local areas, so that is something you

will have to research, but they are well worth the cost as they will

last a lifetime.

Patty

>

> Hi Ladies

> I was just wondering about something. Mostly we talk about the

physical adverse effects of implants. Am I the only one who has

cognitive adverse effects? Surely I can't be. Aside of t

> e fatigue and malaise, I'm totally unmotivated to do daily living

tasks. I'm highly unorganized, have no concept of time or time

mgmt., attention span is zero. I can't stay focused on anything

long enough to complete it, easily distracted, memory is toast, etc.

etc. Anybody else deal with this? Does anybody know what will help

until I can scrounge up the thousands needed for explant (which is

so far away it scares me).

> I'm a type A chronic overachieving perfectionist gone awry. I want

to be me again!

> And this infrared sauna thing...where can I find one?

>

> Christene

>

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Christene,

I don't know alot about light therapy, although I have read some

stuff that indicates that getting sunlight is healthy for our

bloodstream in moderate doses. (Helps cleanse the blood?) Sunlight

also helps us make Vitamin D, and so is a good thing, not a bad

thing if not overdone.

I know that heat, light and oxygen can cause oils to go rancid

quickly, and at the same time, heat kills pathogens in our bodies,

cancer cells cannot survive in an oxygen-rich environment, and that

certain light rays work beneficially. I mean it makes sense that

light therapy could be beneficial just as ozone and infrared are

beneficial to health.

Let us know what you find out.

Patty

>

>

> Gosh everybody....Thank you soooo much! [;;)]

>

> So I'm really not the loser I thought I was becoming?

>

> I had to laugh when I saw everybody with the checkbook

difficulties!

> That is so me! I just can't keep all of those numbers straight!

It's

> such a chore I just avoid it like the plague!

>

> Well, I have a doc appt in the morning with my primary because

Derm is

> about useless! He keeps telling me he wants me to undergo " light

> therapy " for my skin. He thinks it will help the itching. My

chest

> (the skin) has gotten so much worse in the last couple of weeks.

I'm

> horrified at the thought of leaving these stupid things in, but I'm

> hoping that the doctor tomorrow will help me out. If my insurance

> company will pay for any part or all of it, then I need to do it

now

> while I still have insurance. Who knows when this divorce will be

> final....If I dont get any answers from my primary, then I guess

I'll

> have to go see Dr. Kolb and dish out more money I really don't

have, but

> I'm scared not to dish out the money...does anybody know anything

about

> this light therapy stuff?

>

> Christene

>

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Hehehehe! That's good though....at least I got your mind off of this other junk even if only momentarily. I hope they weren't handing out Motrin for "the clap!"Molly Bloom <mollyb54@...> wrote: Gosh, Christene, you made me flash back to my college years -- eons ago lolI remember we used to joke about the campus health center. We just called it CC - the docs there could only diagnose Colds & Clap. If you didn't have a cold, watch out.They were that bad!! Boy was that a blast from the past@@> >> > Christene,> >> > I've never heard of light therapy helping implanted> > women. . . That's not to say that it won't. But, from>

> what we've seen, the surest way to get better is to> > get the implants out.> >> > The body will try to get rid of toxins by any means> > possible. Rashes and boils are just one of the ways.> >> > Hugs,> >> > Rogene> >>

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  • 2 weeks later...
Guest guest

Im going to see the endo tomorrow...and want to be prepared for the 'side

effects' conversation to the stimulation test.

i know there are side effects from Clomid...but those are over long term usage

correct? is there any known side effects from the clomiphene stim test? also,

HCG side effects. other than high dosage HCG causing the testicles to get

overworked...there's not much to it is there?

i know most endos/drs don't appreciate HCG....im not looking for positives but

rather side effects. i don't want to be surprised to hear HCG causes something

when in fact this group knows for sure what the side effects really are.

thanks

---------------------------------

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  • 1 month later...
Guest guest

Hi ,

I can only speak for myself here. I was in the rhuemys office

saying there was no way I was going to take Enbrel because of the

POTENTIAL side affects. then I thought of the pain and lack of

movement I had and that I wanted to enjoy my Grand-children and be

more of a husband to my wife and could my children remember me when

I was more active, would somebody always have to put my socks and

underwear on in the morning and night, it's not as sexy as you might

think, and would I always have to use a bath lift and need a special

bed so I could move in the middle of the night, oh and the pain in

my toes, legs, feet, ankles, achilles tendon, knees, hips, fingers,

wrists hands, elbows shoulders, all my spine, neck, oh yes my ribs,

psoriasis flaking everywhere from my scalp, my slipped halo was not

a pretty one, knees, elbows, all that in a millisecond. (If I've

missed anything please feel free to add to the list)

I knew that I had to give it a go, to see if I could be more like

the old very active me. I will keep a constant check on all blood

works, etc. Oh, I'm listening to Bob Catley as I type, " The Moment

of Truth " , I went to see him in concert about three weeks ago, sat

on a chair at the back of the hall, next time I want to be at the

front banging my head to the heavy metal thunder. Put all that

against something that may well not happen and probably only in a

minority of cases and there we are. Soldiers of the line.

Keep the light shining,

Ian.

>

> How do some cope with potential " side effects, " which are quite

severe and

> even include warnings of death in some cases, over some of the

medications

> prescribed for RA. I know after being on Arava and having

developed kidney

> disease, I have refused other treatments and cope as best I can

with pain,

> etc.

>

>

>

>

>

> _____

>

>

>

>

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Gosh you always crack me up Ian. But you hit it right on the head all of these

things are potential side effects. The drug companies are required to list every

single, symptom that was founded during testing, it might have nothing to do

with the drug itself actually.

, you have to make the choice that all of us have made. Do you want the

QUALITY of life or the QUANTITY of life? Yes we are most likely cutting a few

years off of our lives by taking such strong drugs, but in my case I think what

the hell will I be missing, a couple of years in a wheelchair, in pain, in some

nursing home somewhere? No thanks! This was not an easy decision for me either

because I am so young and have three, devilish, blonde daughter to live for. You

have to ask yourself the question and you have to really consider what is right

for you.

As for you Ian, keep it up, and I'll see you in the front row, head banging!

Love and life,

in Chicago

viking_warlock <viking_warlock@...> wrote:

Hi ,

I can only speak for myself here. I was in the rhuemys office

saying there was no way I was going to take Enbrel because of the

POTENTIAL side affects. then I thought of the pain and lack of

movement I had and that I wanted to enjoy my Grand-children and be

more of a husband to my wife and could my children remember me when

I was more active, would somebody always have to put my socks and

underwear on in the morning and night, it's not as sexy as you might

think, and would I always have to use a bath lift and need a special

bed so I could move in the middle of the night, oh and the pain in

my toes, legs, feet, ankles, achilles tendon, knees, hips, fingers,

wrists hands, elbows shoulders, all my spine, neck, oh yes my ribs,

psoriasis flaking everywhere from my scalp, my slipped halo was not

a pretty one, knees, elbows, all that in a millisecond. (If I've

missed anything please feel free to add to the list)

I knew that I had to give it a go, to see if I could be more like

the old very active me. I will keep a constant check on all blood

works, etc. Oh, I'm listening to Bob Catley as I type, " The Moment

of Truth " , I went to see him in concert about three weeks ago, sat

on a chair at the back of the hall, next time I want to be at the

front banging my head to the heavy metal thunder. Put all that

against something that may well not happen and probably only in a

minority of cases and there we are. Soldiers of the line.

Keep the light shining,

Ian.

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Hi Mrs. Jeff,

This will really crack you up then. You know I keep harking on

aboput Bob Catley and Magnum, blah, blah, blah, turns out that Patty

Smyth did a cover of " Les Mort Dansant " , called " Call to Heaven " on

her " Never Enough " album, you were about three years old at the

time, I hope you can remember it!!!!!!

Keep the light shining,

Ian.

>

> Gosh you always crack me up Ian. But you hit it right on the head

all of these things are potential side effects. The drug companies

are required to list every single, symptom that was founded during

testing, it might have nothing to do with the drug itself actually.

> , you have to make the choice that all of us have made.

Do you want the QUALITY of life or the QUANTITY of life? Yes we are

most likely cutting a few years off of our lives by taking such

strong drugs, but in my case I think what the hell will I be

missing, a couple of years in a wheelchair, in pain, in some nursing

home somewhere? No thanks! This was not an easy decision for me

either because I am so young and have three, devilish, blonde

daughter to live for. You have to ask yourself the question and you

have to really consider what is right for you.

> As for you Ian, keep it up, and I'll see you in the front row,

head banging!

> Love and life,

> in Chicago

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Testify ! And for you and Ian and all the rest of the " head bangers " on

here who will probably loose your hearing on top of your mobility....don't ya

know there's nothing worse than a deaf person with a limp who cannot even hear

you when you say " Get out of my way! " ? Ah....something to annoy the little

blondies with someday. You gotta love it. I listened to Barry Manilow and

Denver so I'll be able to hear just fine....and I'll have your back. Read the

side effects on ANY drug. On one of my daughters medications, sneezing was

listed as a possible side effect. My guess is that the testing was done in

Holland during tulip season. The information the general poplulation gets is the

cliff notes version. I'd like to read the whole thing but probably don't have

the time and might understand half of it. If God explained the universe to me

and told me why I have this disease, I more than likely would not understand

that either. So I just keep on living....and you guys

just keep on banging heads. -Betz

JEFF DELAZZER <jdelazzer@...> wrote: Gosh you always crack me up Ian. But

you hit it right on the head all of these things are potential side effects. The

drug companies are required to list every single, symptom that was founded

during testing, it might have nothing to do with the drug itself actually.

, you have to make the choice that all of us have made. Do you want the

QUALITY of life or the QUANTITY of life? Yes we are most likely cutting a few

years off of our lives by taking such strong drugs, but in my case I think what

the hell will I be missing, a couple of years in a wheelchair, in pain, in some

nursing home somewhere? No thanks! This was not an easy decision for me either

because I am so young and have three, devilish, blonde daughter to live for. You

have to ask yourself the question and you have to really consider what is right

for you.

As for you Ian, keep it up, and I'll see you in the front row, head banging!

Love and life,

in Chicago

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I don't know if my question was misunderstood. Why would I think that the

results of PA are in any way satisfying (in your words " as sexy as you might

think:). I have been plagued for many years and have joints from my neck to

my toes affected.

I certainly am happy for your and your " success " with treatment. Thanks.

Fr.

[ ] Re: Side effects

Hi ,

I can only speak for myself here. I was in the rhuemys office

saying there was no way I was going to take Enbrel because of the

POTENTIAL side affects. then I thought of the pain and lack of

movement I had and that I wanted to enjoy my Grand-children and be

more of a husband to my wife and could my children remember me when

I was more active, would somebody always have to put my socks and

underwear on in the morning and night, it's not as sexy as you might

think, and would I always have to use a bath lift and need a special

bed so I could move in the middle of the night, oh and the pain in

my toes, legs, feet, ankles, achilles tendon, knees, hips, fingers,

wrists hands, elbows shoulders, all my spine, neck, oh yes my ribs,

psoriasis flaking everywhere from my scalp, my slipped halo was not

a pretty one, knees, elbows, all that in a millisecond. (If I've

missed anything please feel free to add to the list)

I knew that I had to give it a go, to see if I could be more like

the old very active me. I will keep a constant check on all blood

works, etc. Oh, I'm listening to Bob Catley as I type, " The Moment

of Truth " , I went to see him in concert about three weeks ago, sat

on a chair at the back of the hall, next time I want to be at the

front banging my head to the heavy metal thunder. Put all that

against something that may well not happen and probably only in a

minority of cases and there we are. Soldiers of the line.

Keep the light shining,

Ian.

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Well I guess it is how we define quantity and quality.

As someone who has a disease that may have been caused by an arthritis

drug, I have to make other considerations. A worsening of my kidney disease

would see me headed for a more restrictive lifestyle as well as other

adverse effects, which is something I would like to avoid, and thus have

made the choice to suffer with my arthritis, and try to remain as active as

I can even with the constant pain and stiffness. Thanks be to God that I

have been able to do much of my work as a priest, although I am finding it

more difficult and face the prospects of early retirement. Also I don't

think we need to dismiss life for those who are forced to use a

wheelchair-they can have a lot of quality in their life in many, many

activities, and can enjoy many things as has been noted by someone on this

list-yes some doors are closed, but others are opened.

Thanks for your input. I would only add that many of the severe side effects

do seem related to the drugs themselves although fortunately not all of the

users suffer them.

And thanks be to God that some persons can benefit from treatments and not

be adversely affected.

My best...

Fr.

Re: [ ] Re: Side effects

Gosh you always crack me up Ian. But you hit it right on the head all of

these things are potential side effects. The drug companies are required to

list every single, symptom that was founded during testing, it might have

nothing to do with the drug itself actually.

, you have to make the choice that all of us have made. Do you want

the QUALITY of life or the QUANTITY of life? Yes we are most likely cutting

a few years off of our lives by taking such strong drugs, but in my case I

think what the hell will I be missing, a couple of years in a wheelchair, in

pain, in some nursing home somewhere? No thanks! This was not an easy

decision for me either because I am so young and have three, devilish,

blonde daughter to live for. You have to ask yourself the question and you

have to really consider what is right for you.

As for you Ian, keep it up, and I'll see you in the front row, head

banging!

Love and life,

in Chicago

_____

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God be with you, Father. The methotrexate that I take leaves me feeling

sick most of the time, and if my lab reports were to show any kidney problems I

would forgo the meds also. My dad had kidney problems most of his life (that

ended when he was only 53) so I would not be surprised if mine won't

tolerate the chemicals. We tend to pray for each other on this site, so with

this

many requests going to God, He can't help but keep you safe.

Janet in Ca

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Hi ,

Please take my post in the spirit it was meant, as did, to

give you a laugh at my expense, maybe that didn't come across in my

post as it was meant. I am sorry to here of your predicament, you

are in my thoughts and prayers.

Keep the light shining,

Ian.

>

> I don't know if my question was misunderstood. Why would I think

that the

> results of PA are in any way satisfying (in your words " as sexy as

you might

> think:). I have been plagued for many years and have joints from

my neck to

> my toes affected.

>

> I certainly am happy for your and your " success " with treatment.

Thanks.

>

> Fr.

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