Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 have you ever tried taking pepcid ac for the nausea associated with methotrexate I was on methotrexate for 7 years . I found that taking pepcid ac [the chewable kind and hour before methotrexate helped a lot . also drinking gingerale [not diet -that amde me nauseated] ]helped me feel better. cathy from ma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Mr. Ian, My mother was a 70's rockin' roll teenager when I was born so I was raised on all this kind of music. I might be young but when mommy sings Led Zepplin songs instead of rock a bye baby you remember the stuff fondly. LOL Love, Mrs. Jeff viking_warlock <viking_warlock@...> wrote: Hi Mrs. Jeff, This will really crack you up then. You know I keep harking on aboput Bob Catley and Magnum, blah, blah, blah, turns out that Patty Smyth did a cover of " Les Mort Dansant " , called " Call to Heaven " on her " Never Enough " album, you were about three years old at the time, I hope you can remember it!!!!!! Keep the light shining, Ian. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 He He Betsy your so funny! I'm picturing my daughters' being terribly embarassed because someone said " hey gimp out of the way " and I can't hear them. It's good to make fun of yourself, it helps you to feel better. I put on some of the cards I write to close friends and relatives, LOVE GIMP. Take care and keep laughing and head banging, LOVE, Gimp Betsy Jack <itsbetsy@...> wrote: Testify ! And for you and Ian and all the rest of the " head bangers " on here who will probably loose your hearing on top of your mobility....don't ya know there's nothing worse than a deaf person with a limp who cannot even hear you when you say " Get out of my way! " ? Ah....something to annoy the little blondies with someday. You gotta love it. I listened to Barry Manilow and Denver so I'll be able to hear just fine....and I'll have your back. Read the side effects on ANY drug. On one of my daughters medications, sneezing was listed as a possible side effect. My guess is that the testing was done in Holland during tulip season. The information the general poplulation gets is the cliff notes version. I'd like to read the whole thing but probably don't have the time and might understand half of it. If God explained the universe to me and told me why I have this disease, I more than likely would not understand that either. So I just keep on living....and you guys just keep on banging heads. -Betz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Fr. , Ian was just kidding with you, he said before treatment he couldn't even put his own socks and underwear on and his wife had to help him and there was nothing " sexy " about her helping him. He was just being funny. We try to keep a sense of humour with all of this. Love, <asorthodox@...> wrote: I don't know if my question was misunderstood. Why would I think that the results of PA are in any way satisfying (in your words " as sexy as you might think:). I have been plagued for many years and have joints from my neck to my toes affected. I certainly am happy for your and your " success " with treatment. Thanks. Fr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Fr. , I am not by an means insulting anyone who has to live in a wheelchair. But at 29 if there is something else available such as drugs I'll try it. Like I have mentioned in the past I work in an ER and see WAY too many elderly patients who no one bothers to visit anymore and wish they were dead years ago but can't see to die. As a priest I'm sure you see this as well. They tell me they wished they were a long time ago, so I've become hardened by that, I don't want to be that old lady ever no matter what the cost. Of course with your problem you have to chose the lesser of two evils, and that of course is the arthritis. Best of luck to you! in Chicago [Editor's Note: Old ladies in wheelchairs don't have to be bitter, lonely, despondent people. They can be interesting, warm, wonderful people that folks love to be around. I grew up with one of my grandmother's cousins being wheelchair-bound and Cousin Frances was one of the most adored people in the family (and her neighborhood) because she never wrapped herself in self-pity but was someone everyone enjoyed spending time with. Kathy F.] <asorthodox@...> wrote: Well I guess it is how we define quantity and quality. As someone who has a disease that may have been caused by an arthritis drug, I have to make other considerations. A worsening of my kidney disease would see me headed for a more restrictive lifestyle as well as other adverse effects, which is something I would like to avoid, and thus have made the choice to suffer with my arthritis, and try to remain as active as I can even with the constant pain and stiffness. Thanks be to God that I have been able to do much of my work as a priest, although I am finding it more difficult and face the prospects of early retirement. Also I don't think we need to dismiss life for those who are forced to use a wheelchair-they can have a lot of quality in their life in many, many activities, and can enjoy many things as has been noted by someone on this list-yes some doors are closed, but others are opened. Thanks for your input. I would only add that many of the severe side effects do seem related to the drugs themselves although fortunately not all of the users suffer them. And thanks be to God that some persons can benefit from treatments and not be adversely affected. My best... Fr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 OK I give up appearently nobody understands what I'm saying here. People are acting like I am an old lady in wheelchair hater and I'm not. [Editor's Note: I don't believe that's what you were doing for a second. I was merely pointing out that people in wheelchairs can be really nifty so it shouldn't be something we necessarily view as awful. I'm totally with you in that I would rather try medications that may help me stave off being in a wheelchair than go down without a fight. There are despondent people in wheelchairs, to be sure, but there are also plenty of miserable folks who've never been near a wheelchair, too. Kathy F.] JEFF DELAZZER <jdelazzer@...> wrote: Fr. , I am not by an means insulting anyone who has to live in a wheelchair. But at 29 if there is something else available such as drugs I'll try it. Like I have mentioned in the past I work in an ER and see WAY too many elderly patients who no one bothers to visit anymore and wish they were dead years ago but can't see to die. As a priest I'm sure you see this as well. They tell me they wished they were a long time ago, so I've become hardened by that, I don't want to be that old lady ever no matter what the cost. Of course with your problem you have to chose the lesser of two evils, and that of course is the arthritis. Best of luck to you! in Chicago [Editor's Note: Old ladies in wheelchairs don't have to be bitter, lonely, despondent people. They can be interesting, warm, wonderful people that folks love to be around. I grew up with one of my grandmother's cousins being wheelchair-bound and Cousin Frances was one of the most adored people in the family (and her neighborhood) because she never wrapped herself in self-pity but was someone everyone enjoyed spending time with. Kathy F.] <asorthodox@...> wrote: Well I guess it is how we define quantity and quality. As someone who has a disease that may have been caused by an arthritis drug, I have to make other considerations. A worsening of my kidney disease would see me headed for a more restrictive lifestyle as well as other adverse effects, which is something I would like to avoid, and thus have made the choice to suffer with my arthritis, and try to remain as active as I can even with the constant pain and stiffness. Thanks be to God that I have been able to do much of my work as a priest, although I am finding it more difficult and face the prospects of early retirement. Also I don't think we need to dismiss life for those who are forced to use a wheelchair-they can have a lot of quality in their life in many, many activities, and can enjoy many things as has been noted by someone on this list-yes some doors are closed, but others are opened. Thanks for your input. I would only add that many of the severe side effects do seem related to the drugs themselves although fortunately not all of the users suffer them. And thanks be to God that some persons can benefit from treatments and not be adversely affected. My best... Fr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Gimp...I'm reading all of the posts from today. Mercy! I have learned so much today. The wheelchair saga....I spent the whole day with my friend who fell off of a rock he was not supposed to climb when he was 17. Fell 80 feet. He's in a chair. He calls me gimp. I put a stick in his wheels. He has an energy I will never be able to match. Many times I just shake my head and mumble " He must have landed on his head " . I sometimes wonder one of the reasons he was put in my life was to remind me that if I end up in a chair, I'll be ok. But if he was just put in my life to make me laugh, that's ok too. He's a joy. I think it's great that we can all read and write and learn on here....and grow. But I think that not all of us are going to be able to " laugh it off " . For some people, it's just not the way they deal with it. I used to expect everyone to deal with pain the way I do but I grew up (a little) and learned that my way is just one of many coping mechanisms. And from what I read on here today, everyone is tolerant and loving of each other's " ways " . What a beautiful, inspiring, interesting group this is. I like you people. Then I read about TMJ. Well, I had that too. I could not open my mouth (much to my sisters delight) at times when I was a teenager. She would buy me a 's burger and pound it with her fist for me though. That way I could shimmy it in. I wore a splint at night for years. I had one dentist refuse to work on me out of fear that my jaw would lock wide open. I had the kind of friends who would have thrown things in my mouth for fun so that would never have worked out too well for me. I never even thought of TMJ being a PA thing. This gets better and better. I am getting an MRI next week to make sure that my back pain is not a herniated disc. Maybe it's from the PA. Whatever it is, it hurts. Today I had to do laundry out. Ouch. That's all I can say about that. There is no easy way to do it. I no long fold sheets. I wad them. And I don't care. Then I went to Wal Mart while they dried. I almost used the little motorized cart. I don't know why I didn't. I scooted along and the shopping cart held me up because my legs were so wobbly by that time. I did too much. I tell myself that the motorized cart will slow me down. What a joke. I could not have been any slower than I was pushing that dang cart along. After reading all of this today, I'm over it. I'm motorized the next time I go to Wal Mart. Enough of my silliness. I'm still waiting for approval for Enbrel from Medicaid. My Rhuemy says they will approve it. But 2 weeks? What's up with that? Does anyone know anything about Medicaid's ways? The sooner I get this going, the sooner I can be a productive citizen and I'm ready for that. So is my bank account. I am barely making it. But I'm making it. I just want to work. Hard to believe that I of all people can't. There was a time I worked 16 hours a day and loved it. I've always been a worker. But I'm going to work my mind until I can work my bones. I read some very inspirational things on here today. Sandy's got it figured out and is a great example of what we should be doing. We CAN brighten the world...or darken it. What power we have. I for one am going to use my powers for good, not for evil. -Super Betz (aka Super Gimp) PS Anyone care to be my side-kick? Every good super hero needs a side kick! JEFF DELAZZER <jdelazzer@...> wrote: He He Betsy your so funny! I'm picturing my daughters' being terribly embarassed because someone said " hey gimp out of the way " and I can't hear them. It's good to make fun of yourself, it helps you to feel better. I put on some of the cards I write to close friends and relatives, LOVE GIMP. Take care and keep laughing and head banging, LOVE, Gimp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 I am into my 3rd week taking 4.5 mg of LDN. I am actually become more emotional and depressed in the AM and now have a bit of eczema. Am I taking too much or is this the initial side effect? I am taking it for cancer not MS. I think the pain in my tumor is less but I'm not totally sure yet. Thanks for any advice. ne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Hi ne, I would hang in there a bit and see if it works its way through. If you do not have high blood pressure, or one type of cancer (I think it is melanoma) you might want to try DLP. It was a lifesaver for my husband taking LDN and getting rid of depression. It works for many people and Dr. Bihari recommends it. Just make sure to read any warnings. I will send you a copy of e-mails privately in regards to DLP. My best Aletha Re: [low dose naltrexone] side effects I am into my 3rd week taking 4.5 mg of LDN. I am actually become more emotional and depressed in the AM and now have a bit of eczema. Am I taking too much or is this the initial side effect? I am taking it for cancer not MS. I think the pain in my tumor is less but I'm not totally sure yet. Thanks for any advice.ne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Aletha - I am combating depression right now. Could you send me that info privately also? nstubbs1@.... Thanks so much. This one has been brutal for me. I need all the help I can get. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Also you can not take DLP if you are on any kind of anti- depressant/anti-anxiety meds. So many don't realize that. I have an article about it somewhere. If I can find it I will post it. Health to all, Donna www.freewebs.com/lovelaugh/ > > Hi ne, > > I would hang in there a bit and see if it works its way through. If you do not have high blood pressure, or one type of cancer (I think it is melanoma) you might want to try DLP. It was a lifesaver for my husband taking LDN and getting rid of depression. It works for many people and Dr. Bihari recommends it. Just make sure to read any warnings. I will send you a copy of e-mails privately in regards to DLP. > > My best > Aletha > Re: [low dose naltrexone] side effects > > > I am into my 3rd week taking 4.5 mg of LDN. I am actually become more emotional and depressed in the AM and now have a bit of eczema. Am I taking too much or is this the initial side effect? I am taking it for cancer not MS. I think the pain in my tumor is less but I'm not totally sure yet. Thanks for any advice. > ne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 You can't??? I am on LDN, taking DLP AND Paxil!!!!! I though t it was ok...... Nola Re: [low dose naltrexone] side effects> > > I am into my 3rd week taking 4.5 mg of LDN. I am actually become more emotional and depressed in the AM and now have a bit of eczema. Am I taking too much or is this the initial side effect? I am taking it for cancer not MS. I think the pain in my tumor is less but I'm not totally sure yet. Thanks for any advice.> ne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Thanks Donna, You may be right, but for what ever reason my husband had been on Wilburton(sp?) and Pixel and he started DLP and got off the others a week later when he felt so great. The antidepressants never did him any good. Also, his friend followed his lead and was on similar meds, and just took the morning pill of DLP and cut her other meds in half and did fine. By the end of the month she had gotten off of the Wilburton(sp?) and went completely on the DLP and did great. I think I researched the warnings at the beginning before putting my husband on LDN and it said just don't use opulent drugs (what ever that means) and the anti depressants he was using were not listed on there. So, you may be right I don't know for sure, but so far and seemed to have done great and they were not willing to just get completely off of their anti-depressants while first trying out the DLP. But they both did absolutely great switching over and getting much better success with DLP in getting rid of their depression. My best Aletha Re: [low dose naltrexone] side effects >> >> >> I am into my 3rd week taking 4.5 mg of LDN. I am actually become > more emotional and depressed in the AM and now have a bit of eczema. > Am I taking too much or is this the initial side effect? I am taking > it for cancer not MS. I think the pain in my tumor is less but I'm > not totally sure yet. Thanks for any advice. >> ne >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Dear , The brand that Dr. Bihari recommends is Solaray. You take 500mg in the morning a half hour before eating. Then take 500mg in the afternoon before eating. We buy ours off of the internet. It has been so great for him. I will send you a copy of the " welcome e-mail " which talks just a bit about it. My best Aletha Re: [low dose naltrexone] side effects > Aletha - I am combating depression right > now. Could you send me that info > privately also? nstubbs1@.... > Thanks so much. This one has been brutal > for me. I need all the help I can get. > Thanks. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 > > I am into my 3rd week taking 4.5 mg of LDN. I am actually become more > emotional and depressed in the AM and now have a bit of eczema. Am I taking too > much or is this the initial side effect? I am taking it for cancer not MS. I > think the pain in my tumor is less but I'm not totally sure yet. Thanks for > any advice. > ne > ======== Make sure your LDN capsules contain no calcium carbonate as a filler. Dr. Mcandless who uses LDN with autistic patients has had LDN to bring to the forefront underlying yeasty gut symptoms in a form of hives, eczema, fever, etc. Sounds as though the LDN is bringing out a yeast problem. McCandless puts them on diet and supplements. You need to be on a sugar free, wheat free, dairy free, soy free, gluten free diet. Supplements needed along with diet are: A good quality probiotic(acidophilus)-dairy free--take 4 capsules per day Lauricidin(do a google search) Oil of Oregano Olive Leaf Extract ViraStop or L-Lysine 500mg take as directed. Stay on 4.5mg LDN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 > > Thanks Donna, > > You may be right, but for what ever reason my husband had been on > Wilburton(sp?) and Pixel and he started DLP and got off the others a week > later when he felt so great. The antidepressants never did him any good. > Also, his friend followed his lead and was on similar meds, and just > took the morning pill of DLP and cut her other meds in half and did fine. > By the end of the month she had gotten off of the Wilburton(sp?) and went > completely on the DLP and did great. I think I researched the warnings at > the beginning before putting my husband on LDN and it said just don't use > opulent drugs (what ever that means) and the anti depressants he was using > were not listed on there. So, you may be right I don't know for sure, but > so far and seemed to have done great and they were not willing to > just get completely off of their anti-depressants while first trying out the > DLP. But they both did absolutely great switching over and getting much > better success with DLP in getting rid of their depression. > > My best > Aletha > -- http://www.drugs.com/wellbutrin.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 Althea - Do I need to stop my Lexapro to use it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2006 Report Share Posted August 20, 2006 do you think that included 5-htp?? cyndi [low dose naltrexone] Re: side effects > >Also you can not take DLP if you are on any kind of anti- >depressant/anti-anxiety meds. So many don't realize that. I have an >article about it somewhere. If I can find it I will post it. > >Health to all, Donna > >www.freewebs.com/lovelaugh/ > > > > > > > >> >> Hi ne, >> >> I would hang in there a bit and see if it works its way through. >If you do not have high blood pressure, or one type of cancer (I >think it is melanoma) you might want to try DLP. It was a lifesaver >for my husband taking LDN and getting rid of depression. It works >for many people and Dr. Bihari recommends it. Just make sure to read >any warnings. I will send you a copy of e-mails privately in regards >to DLP. >> >> My best >> Aletha >> Re: [low dose naltrexone] side effects >> >> >> I am into my 3rd week taking 4.5 mg of LDN. I am actually become >more emotional and depressed in the AM and now have a bit of eczema. >Am I taking too much or is this the initial side effect? I am taking >it for cancer not MS. I think the pain in my tumor is less but I'm >not totally sure yet. Thanks for any advice. >> ne >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 , Thank you for responding to my side effects. ne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 YOU will ALWAYS show positive for Hep c,, all that means is that you had seroconverted,, but having no viral load means its in remission.. but you will always test positive!fruitforlife2004 <fruitforlife2004@...> wrote: I started drinking mangosteen 3 months into the Interferon. It literally took away all of the side effects. I was and still am drinking 6oz per day. I really think the key is to drink as much water as possible during your treatment. I have continued to drink 6oz per day over the past 2 years. My 3mo, 6mo blood panels show no trace of viral load also my enzymes are back to normal. My 1yr and 2yr blood panels show NO TRACE even though I still show positive for Hep C. I believe that the mangosteen has made the difference. I also believe you have to choose a mangosteen beverage that is a whole fruit puree so that the Xanthone rich pericarp is in the beverage.I will add that I had a friend with HepC and he did not want to take the mangosteen. Three months after he finished the Interferon he viral load was back to 1million +. I believe the mangosteen made the difference. Please get in touch for more info.Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 I try to search them all, both pros and cons.. Friendly Skeptic Looks at Mangosteen: http://chetday.com/mangosteen.htm Money is a bit tight and I am already now on many supplements, I hope this one works for you, we sure all need all the help we can get.. Sheena Nikki Cowan <nikkicowan@...> wrote: Check out this website. http://www.oilpulling.com/ I am going to give thisa try. If it doesn't work it won't hurt you, but what if it does? Be sureand check out the page on user experiences. Cheap, too.NikkiI started drinking mangosteen 3 months into the Interferon. It literally took away all of the side effects. I was and still am drinking 6oz per day. I really think the key is to drink as much water as possible during your treatment. I have continued to drink 6oz per day over the past 2 years. My 3mo, 6mo blood panels show no trace of viral load also my enzymes are back to normal. My 1yr and 2yr blood panels show NO TRACE even though I still show positive for Hep C. I believe that the mangosteen has made the difference. I also believe you have to choose a mangosteen beverage that is a whole fruit puree so that the Xanthone rich pericarp is in the beverage.I will add that I had a friend with HepC and he did not want to take the mangosteen. Three months after he finished the Interferon he viral load was back to 1million +. I believe the mangosteen made the difference. Please get in touch for more info.It's a pleasure having you join in our conversations. We hope you have foundthe support you need with us. If you are using email for your posts, for easy access to our group, justclick the link-- Hepatitis C/Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 Sheena, I KNOW that you are going to start feeling better soon! I am about a month or two ahead of you as far as the " supplement regime " , and I feel a whole lot better. The COQ10 will really help with the fatigue, and I just started using something called " Fatigue Relief " that I got from the Natural Wellness company that distributes the Maximum Milk Thistle. What a difference! I don't need a nap after work anymore...last night I even went to Target after a 9 hour work day! It's not that expensive either. When I see you at the support group meeting on the 16th I will give you some to try if you like. Also - my detox process is pretty much complete, meaning I have cleansed my system of a lot of the vestiges of fatty food, fast food, processed foods, soda and of course alcohol. I know the effects linger in the form of my steatosis (fatty liver), but I know my liver function is improving just by how I feel. And my skin has cleared up. One thing I have noticed and it beginning to frighten me...the brain fog. I had to dig deep on Monday to remember what I did the previous Saturday! I am now exercising my memory by trying to remember - what did I wear yesterday, eat for breakfast, etc? I use my brain for my job (not to mention just getting from point A to , so this is concenring me. What does everyone do to counteract the brain fog?!!! > > > Check out this website. http://www.oilpulling.com/ I am going to give this > a try. If it doesn't work it won't hurt you, but what if it does? Be sure > and check out the page on user experiences. Cheap, too. > > Nikki > > I started drinking mangosteen 3 months into the Interferon. It > literally took away all of the side effects. I was and still am > drinking 6oz per day. I really think the key is to drink as much water > as possible during your treatment. I have continued to drink 6oz per > day over the past 2 years. My 3mo, 6mo blood panels show no trace of > viral load also my enzymes are back to normal. My 1yr and 2yr blood > panels show NO TRACE even though I still show positive for Hep C. I > believe that the mangosteen has made the difference. I also believe > you have to choose a mangosteen beverage that is a whole fruit puree so > that the Xanthone rich pericarp is in the beverage. > I will add that I had a friend with HepC and he did not want to take > the mangosteen. Three months after he finished the Interferon he viral > load was back to 1million +. I believe the mangosteen made the > difference. Please get in touch for more info. > > It's a pleasure having you join in our conversations. We hope you have found > the support you need with us. > > If you are using email for your posts, for easy access to our group, just > click the link-- Hepatitis C/ > > Happy Posting > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 Hi, for the brain fog and forgetfullness, I keep a journal, and I e-mail myself reminders and use sticky notes, and make a weekly to do list. I also have to write down whenever I take medication or i forget i took it and then end up taking double. i think i may have done that with the ribaviran and that was not good. > > > > > > Check out this website. http://www.oilpulling.com/ I am going to > give this > > a try. If it doesn't work it won't hurt you, but what if it does? > Be sure > > and check out the page on user experiences. Cheap, too. > > > > Nikki > > > > I started drinking mangosteen 3 months into the Interferon. It > > literally took away all of the side effects. I was and still am > > drinking 6oz per day. I really think the key is to drink as much > water > > as possible during your treatment. I have continued to drink 6oz > per > > day over the past 2 years. My 3mo, 6mo blood panels show no trace > of > > viral load also my enzymes are back to normal. My 1yr and 2yr blood > > panels show NO TRACE even though I still show positive for Hep C. I > > believe that the mangosteen has made the difference. I also believe > > you have to choose a mangosteen beverage that is a whole fruit > puree so > > that the Xanthone rich pericarp is in the beverage. > > I will add that I had a friend with HepC and he did not want to > take > > the mangosteen. Three months after he finished the Interferon he > viral > > load was back to 1million +. I believe the mangosteen made the > > difference. Please get in touch for more info. > > > > It's a pleasure having you join in our conversations. We hope you > have found > > the support you need with us. > > > > If you are using email for your posts, for easy access to our > group, just > > click the link-- Hepatitis C/ > > > > Happy Posting > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 , I need directions for the 16th when you have time! You can e-mail me privately, unless someone else wants them. I am coming South on the 405 from HB to Irvine. I will be there this time, one way or the other.. I have been on all but 3 supplements since last Saturday, still waiitng for those last 3 to arrive, and do know you generally feel worse before you start to feel better, but I was sure glad to hear that you are feeling some better! I am already using CoQ10 and the Maximum Milk Thistle, but I'll sure have to look into the "Fatique Relief"! I wish there were something more to help with the brain fog, I just write down everything that seems really important.. I've gotten better about taking my supplements on time, am generally not more than 20 minutes late, and was thinking of setting an alarm.. Where there's a will, there has to be a way.. Sheena <marvindamartian05@...> wrote: Sheena,I KNOW that you are going to start feeling better soon! I am about a month or two ahead of you as far as the "supplement regime", and I feel a whole lot better. The COQ10 will really help with the fatigue, and I just started using something called "Fatigue Relief" that I got from the Natural Wellness company that distributes the Maximum Milk Thistle. What a difference! I don't need a nap after work anymore...last night I even went to Target after a 9 hour work day!It's not that expensive either. When I see you at the support group meeting on the 16th I will give you some to try if you like.Also - my detox process is pretty much complete, meaning I have cleansed my system of a lot of the vestiges of fatty food, fast food, processed foods, soda and of course alcohol. I know the effects linger in the form of my steatosis (fatty liver), but I know my liver function is improving just by how I feel. And my skin has cleared up.One thing I have noticed and it beginning to frighten me...the brain fog. I had to dig deep on Monday to remember what I did the previous Saturday! I am now exercising my memory by trying to remember - what did I wear yesterday, eat for breakfast, etc? I use my brain for my job (not to mention just getting from point A to , so this is concenring me.What does everyone do to counteract the brain fog?!!!> > > Check out this website. http://www.oilpulling.com/ I am going to give this> a try. If it doesn't work it won't hurt you, but what if it does? Be sure> and check out the page on user experiences. Cheap, too.> > Nikki> > I started drinking mangosteen 3 months into the Interferon. It > literally took away all of the side effects. I was and still am > drinking 6oz per day. I really think the key is to drink as much water > as possible during your treatment. I have continued to drink 6oz per > day over the past 2 years. My 3mo, 6mo blood panels show no trace of > viral load also my enzymes are back to normal. My 1yr and 2yr blood > panels show NO TRACE even though I still show positive for Hep C. I > believe that the mangosteen has made the difference. I also believe > you have to choose a mangosteen beverage that is a whole fruit puree so > that the Xanthone rich pericarp is in the beverage.> I will add that I had a friend with HepC and he did not want to take > the mangosteen. Three months after he finished the Interferon he viral > load was back to 1million +. I believe the mangosteen made the > difference. Please get in touch for more info.> > It's a pleasure having you join in our conversations. We hope you have found> the support you need with us. > > If you are using email for your posts, for easy access to our group, just> click the link-- Hepatitis C/> > Happy Posting > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 Thanks! I use so many sticky notes that Post It Corp. has endowed a scholarship in my honor! Besides keeping journals and to do's (which I already do as I have always had a hectic professional and home life schedule), are there any other suggesions? I do crossword puzzles to keep my mind sharp, but are there are supplements or foods that are known to help with this? I can't take SAMe because I am on Zoloft and they don't play well together. I hear Ginkgo Biloba harms the liver, so that's out too. > > > > > > > > > Check out this website. http://www.oilpulling.com/ I am going to > > give this > > > a try. If it doesn't work it won't hurt you, but what if it > does? > > Be sure > > > and check out the page on user experiences. Cheap, too. > > > > > > Nikki > > > > > > I started drinking mangosteen 3 months into the Interferon. It > > > literally took away all of the side effects. I was and still am > > > drinking 6oz per day. I really think the key is to drink as much > > water > > > as possible during your treatment. I have continued to drink 6oz > > per > > > day over the past 2 years. My 3mo, 6mo blood panels show no > trace > > of > > > viral load also my enzymes are back to normal. My 1yr and 2yr > blood > > > panels show NO TRACE even though I still show positive for Hep > C. I > > > believe that the mangosteen has made the difference. I also > believe > > > you have to choose a mangosteen beverage that is a whole fruit > > puree so > > > that the Xanthone rich pericarp is in the beverage. > > > I will add that I had a friend with HepC and he did not want to > > take > > > the mangosteen. Three months after he finished the Interferon he > > viral > > > load was back to 1million +. I believe the mangosteen made the > > > difference. Please get in touch for more info. > > > > > > It's a pleasure having you join in our conversations. We hope > you > > have found > > > the support you need with us. > > > > > > If you are using email for your posts, for easy access to our > > group, just > > > click the link-- > Hepatitis C/ > > > > > > Happy Posting > > > Quote Link to comment Share on other sites More sharing options...
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