Re: OT: Is anyone following a Myelin Sheath repair protocol?

[Guest guest]

I have added CLO and omega 3 6 9 and vitamin E. I read about the mylein

sheath repair info from the Cherub site for children with childhood

apraxia/dsypraxia. Many kids with autism have apraxia of speech and or

dsyparxia. This protocol helped with speech for our one twin (speech

came within a few days of implementing the protocol) and hopefully is

repairing the myelin sheath. We added coconut oil to our diet too. On

Zurama's new group, she has lots of helpful links.

Nickerson

buddybearsmom wrote:

> I've been reading up on some info out there relating to how the Mylein

> Sheath may be damaged in children with Autism as well as other

> disorders. Is anyone following a protocol within their biomedical

> program to address just that - Myelin Sheath Repair? If so, what is

> your protocol and how did you come about it?

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Years ago I did a myelin/neuron repair protocol with . It included Dmae, lecithin granules (95% phosphatides) a few select oils including salmon oil, wheat free octacosonol, and l-glutamine. While I do believe it helped a great deal, the lecithin currently available in this country is contaminated with GMO soybeans, and I have not seen any company guarantee the phosphatide content or purity of their lecithin in years. You can find detailed information on some supplements that are supposed to assist in myelin repair on the Life extension Foundation websitebuddybearsmom wrote: I've been reading up on some info out there relating to how the Mylein Sheath may be damaged in children with Autism as well as other disorders. Is anyone following a protocol within their biomedical program to address just that - Myelin Sheath Repair? If so, what is your protocol and how did you come about it?

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[Guest guest]

Years ago I did a myelin/neuron repair protocol with . It included Dmae, lecithin granules (95% phosphatides) a few select oils including salmon oil, wheat free octacosonol, and l-glutamine. While I do believe it helped a great deal, the lecithin currently available in this country is contaminated with GMO soybeans, and I have not seen any company guarantee the phosphatide content or purity of their lecithin in years. You can find detailed information on some supplements that are supposed to assist in myelin repair on the Life extension Foundation websitebuddybearsmom wrote: I've been reading up on some info out there relating to how the Mylein Sheath may be damaged in children with Autism as well as other disorders. Is anyone following a protocol within their biomedical program to address just that - Myelin Sheath Repair? If so, what is your protocol and how did you come about it?

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Yasko has a myelin sheath repair protocol. It's stage 3 of her program.

Haven't gotten

there yet. MB12 shots are also supposed to help repair the myelin sheath.

I've been reading up on some

info

out there relating to how the Mylein

> Sheath may be damaged in children with Autism as well as other

> disorders. Is anyone following a protocol within their biomedical

> program to address just that - Myelin Sheath Repair? If so, what is

> your protocol and how did you come about it?

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo! Search.

>

[Guest guest]

- What is this new group that Zurama has started? Could you post

a link maybe? Thanks much in advance!

[Guest guest]

http://health.groups.yahoo.com/group/MyelinSheathProtein/messages

allgfcf wrote:

> - What is this new group that Zurama has started? Could you post

> a link maybe? Thanks much in advance!

>

>

> ------------------------------------

>

>

[Guest guest]

I am starting to focus on Myelin Sheath repair with Mickie, now that I

have all the other protocols in place. I heard about this years ago,

but Mickie was doing so poorly and I had no money to invest in this,

plus I had his chronic diahrrea to deal with too, so any supplements

were going to go through him anyways.

If you are doing MB12 shots and or MB12 Nasal spray, then you have

already started. There is also Myelin Basic Protein which you can buy

for 10.00 dollars a bottle from a company here in California., their

phone number is and ask for Ms. Lee at extension 112. The

product is from Ecological formulas. It is called Sphingolin Myelin

Basic Protein. It's not a support for Myelin sheath, but the actual

Myelin protein.

Here is one article on this subject. Zurama

Autism May be Caused by an Immune System Response to a Virus

Autism is a developmental disorder that affects brain function,

interfering with reasoning ability, imagination, communication, and

social interaction. Children with autism start talking later than

other children and when they do speak, their communication skills are

extremely limited. They often avoid looking at other people and don't

learn to read others' faces for signs of emotion or other cues. These

children typically are unable to play creatively and some engage in

repetitive, sometimes self-destructive, behavior, such as rocking,

hand flapping or head-banging.

Antibodies found in the blood of autistic children suggest that at

least SOME cases of autism are caused by a misguided immune response,

triggered by exposure to a virus, researchers in the University of

Michigan's College of Pharmacy report. The researchers found that

autistic children who had been exposed to certain viruses in the past

showed unusually high levels of antibodies to brain proteins,

suggesting an autoimmune response.

No single cause of autism has been found and researchers believe that

genes and environmental factors (such as viruses or chemicals) both

may contribute. The kinds of brain abnormalities found in people with

autism suggest that the disorder arises when something disrupts normal

brain development. One possibility is that early exposure to a virus

prods the body into mounting an immune response that somehow goes

awry. In addition to producing antibodies against the virus, the body

makes antibodies against itself, resulting in damage to tissues and

organs.

This autoimmune response is what happens in autoimmune diseases such

as lupus and some researchers think a similar response may account for

the brain abnormalities found in people with autism. In their study of

48 autistic children and 34 normal children and adults, the

researchers measured levels of antibodies to two viruses -- measles

virus and human herpes virus-6 -- in the subjects' blood. These

antibodies were chosen because they are often used in research on

known autoimmune diseases.

The researchers also measured levels of two brain autoantibodies

(antibodies to brain tissue). One, anti-MBP, is an antibody to myelin

basic protein, a protein found in the protective sheaths around nerve

fibers in the brain. The other, anti-NAFP, is an antibody to

neuron-axon filament protein, a protein that makes up the nerve fibers

themselves. Virus antibody levels were essentially the same in

autistic and non-autistic subjects, as the researchers expected. But

the majority of autistic children who had virus antibodies also had

brain autoantibodies. The higher the level of virus antibodies, the

more likely an autistic child was to have brain autoantibodies. NONE

of the NON-AUTISTIC subjects HAD BRAIN AUTOANTIBODIES.

The strongest link found in the autistic children was between measles

virus antibodies and anti-MBP, suggesting that exposure to the measles

virus may trigger an autoimmune response that interferes with the

development of myelin, Singh said. If myelin in the brain doesn't

develop properly, nerve fibers won't work as they should. This could

be one way that the brain abnormalities associated with autism arise.

The question of how exposure to measles virus occurs raises a

controversial issue. Parents of children with autism OFTEN report that

the children STARTED SHOWING SIGNS of the disorder SHORTLY after being

immunized with measles-mumps-rubella (MMR) or

diphtheria-pertussis-tetanus (DPT) vaccine, but no scientific studies

have shown a link between vaccines and autism. In the U-M study,

almost all the subjects had had MMR immunizations and NONE had ever

had a case of measles.

Clinical Immunology and Immunopathology October 1998

COMMENT: No one has studied or is studying these vaccines for safety

or effectiveness! As I have said before, nearly one-third of my new

patients have autism. It is absolutely amazing to me how many of these

children have a clear-cut, obvious development of their autism shortly

after their immunization. There are one half million children affected

with this illness. Clearly, not all of them were induced by

immunizations. But even if it were a minority (though I fully believe

it to be the majority), it would be a crime against humanity to induce

this type of damage into children and their families. I believe autism

is one of the worst medical nightmares a family could have inflicted

on them. Fortunately, optimized nutrition, and in many cases IV

secretin, help to repair the brain injury that causes the problem.

>

> I've been reading up on some info out there relating to how the Mylein

> Sheath may be damaged in children with Autism as well as other

> disorders. Is anyone following a protocol within their biomedical

> program to address just that - Myelin Sheath Repair? If so, what is

> your protocol and how did you come about it?

>

[Guest guest]

Thanks !