Guest guest Posted January 28, 2012 Report Share Posted January 28, 2012 My membership preferences somehow changed to only being notified of certain events, not all emails, so I've changed that back to normal, I hope. I haven't been here for over a year I guess. I had a tp in 9/08 with some problems with infections afterwards for about a year, in and out of the hospital. All's been decent until this past November, when I had an abnormal chest x-ray. End result was type 1A lung cancer, so they removed upper lobe of right lung. No chemo/radiation needed! Now my chest and stomach areas look like I brought a BIC pen to a knife fight - and lost big time! My oncologist thinks that my immune system is being highly effected due to the Prograf treatment, which is necessary to avoid liver rejection. I'm still on 8 mg Prograf per day and was wondering if Penny, Butch or anyone else who has had a transplant would respond. I'm wondering what levels others are on per day. I feel like I could get a terminal cancer type at any moment, and will be trying to lower the Prograf level slowly, hopefully increasing my immune system. Just a mess for now, but my Doc doesn't want me to do another treatment yet. (I've been on 3, all unsuccessful). My love to everyone here! I see lots of new names, which means that this great forum is still working and providing support and answers to all of our questions. At any rate, I'm back, I hope, and look forward to reading all the new emails and getting back in touch with some dear friends here who have helped me and my wife a great amount. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2012 Report Share Posted January 29, 2012 Hi Rick, I thought you were just busy with life. Kinda like me now. I should be here more since I am a Owner. LOL But been busy working.(Got a new job) I am working for Medco Health Solutions. But I have missed your wonderful,helpful and inspiring emails. We love you too and your wonderful family. Glad to see you back. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: Hepatitis_C_Central Sent: Saturday, January 28, 2012 4:42 PMSubject: Wow, it's been too long! My membership preferences somehow changed to only being notified of certain events, not all emails, so I've changed that back to normal, I hope. I haven't been here for over a year I guess. I had a tp in 9/08 with some problems with infections afterwards for about a year, in and out of the hospital. All's been decent until this past November, when I had an abnormal chest x-ray. End result was type 1A lung cancer, so they removed upper lobe of right lung. No chemo/radiation needed! Now my chest and stomach areas look like I brought a BIC pen to a knife fight - and lost big time! My oncologist thinks that my immune system is being highly effected due to the Prograf treatment, which is necessary to avoid liver rejection. I'm still on 8 mg Prograf per day and was wondering if Penny, Butch or anyone else who has had a transplant would respond. I'm wondering what levels others are on per day. I feel like I could get a terminal cancer type at any moment, and will be trying to lower the Prograf level slowly, hopefully increasing my immune system. Just a mess for now, but my Doc doesn't want me to do another treatment yet. (I've been on 3, all unsuccessful). My love to everyone here! I see lots of new names, which means that this great forum is still working and providing support and answers to all of our questions. At any rate, I'm back, I hope, and look forward to reading all the new emails and getting back in touch with some dear friends here who have helped me and my wife a great amount. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2012 Report Share Posted January 29, 2012 Hi Rick, I'm so sorry to hear you had lung cancer, but am glad they took care of that without any chemo or radiation. I take 2mg of Prograf daily. I get checked once a year for different types of cancer, as you are too, I'm sure. Do you think that taking Prograf caused the lung cancer? I hope you can get to taking less. Take care of yourself. Penny > > My membership preferences somehow changed to only being notified of certain events, not all emails, so I've changed that back to normal, I hope. I haven't been here for over a year I guess. I had a tp in 9/08 with some problems with infections afterwards for about a year, in and out of the hospital. All's been decent until this past November, when I had an abnormal chest x-ray. End result was type 1A lung cancer, so they removed upper lobe of right lung. No chemo/radiation needed! Now my chest and stomach areas look like I brought a BIC pen to a knife fight - and lost big time! My oncologist thinks that my immune system is being highly effected due to the Prograf treatment, which is necessary to avoid liver rejection. I'm still on 8 mg Prograf per day and was wondering if Penny, Butch or anyone else who has had a transplant would respond. I'm wondering what levels others are on per day. I feel like I could get a terminal cancer type at any moment, and will be trying to lower the Prograf level slowly, hopefully increasing my immune system. Just a mess for now, but my Doc doesn't want me to do another treatment yet. (I've been on 3, all unsuccessful). > > My love to everyone here! I see lots of new names, which means that this great forum is still working and providing support and answers to all of our questions. At any rate, I'm back, I hope, and look forward to reading all the new emails and getting back in touch with some dear friends here who have helped me and my wife a great amount. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2012 Report Share Posted January 29, 2012 Glad to see you back. I just assumed you were busy...I don't post nearly as often as I used to. I have left my webpage up, for everyone to use. It is updated automatically through Medical News Today, which I set up the automatic update widget some time ago (over two years ago). It's hard to believe it's been over two years since my brother, died from Hep C and Cirrosis of the Liver. The docs never did start him on a treatment. I wonder if it was becuase of all the chemo he had for his Leukemia treatment. My membership preferences somehow changed to only being notified of certain events, not all emails, so I've changed that back to normal, I hope. I haven't been here for over a year I guess. I had a tp in 9/08 with some problems with infections afterwards for about a year, in and out of the hospital. All's been decent until this past November, when I had an abnormal chest x-ray. End result was type 1A lung cancer, so they removed upper lobe of right lung. No chemo/radiation needed! Now my chest and stomach areas look like I brought a BIC pen to a knife fight - and lost big time! My oncologist thinks that my immune system is being highly effected due to the Prograf treatment, which is necessary to avoid liver rejection. I'm still on 8 mg Prograf per day and was wondering if Penny, Butch or anyone else who has had a transplant would respond. I'm wondering what levels others are on per day. I feel like I could get a terminal cancer type at any moment, and will be trying to lower the Prograf level slowly, hopefully increasing my immune system. Just a mess for now, but my Doc doesn't want me to do another treatment yet. (I've been on 3, all unsuccessful). My love to everyone here! I see lots of new names, which means that this great forum is still working and providing support and answers to all of our questions. At any rate, I'm back, I hope, and look forward to reading all the new emails and getting back in touch with some dear friends here who have helped me and my wife a great amount. -- Bill Eastman www.ke5asu.com/links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Wow, I can't believe it's been 2 years since passed either. I wouldn't be surprised if they wouldn't treat him due to the leukemia treatment. I have some strange malady called " Sarcoid " , which I still can't figure out, even though I've Googled it many times. My Doc will absolutely not treat me again, so my lowered immune system is going to remain a problem. Good to hear from you again, Bill! > > My membership preferences somehow changed to only being notified of certain events, not all emails, so I've changed that back to normal, I hope. I haven't been here for over a year I guess. I had a tp in 9/08 with some problems with infections afterwards for about a year, in and out of the hospital. All's been decent until this past November, when I had an abnormal chest x-ray. End result was type 1A lung cancer, so they removed upper lobe of right lung. No chemo/radiation needed! Now my chest and stomach areas look like I brought a BIC pen to a knife fight - and lost big time! My oncologist thinks that my immune system is being highly effected due to the Prograf treatment, which is necessary to avoid liver rejection. I'm still on 8 mg Prograf per day and was wondering if Penny, Butch or anyone else who has had a transplant would respond. I'm wondering what levels others are on per day. I feel like I could get a terminal cancer type at any moment, and will be trying to lower the Prograf level slowly, hopefully increasing my immune system. Just a mess for now, but my Doc doesn't want me to do another treatment yet. (I've been on 3, all unsuccessful). > > > > My love to everyone here! I see lots of new names, which means that this great forum is still working and providing support and answers to all of our questions. At any rate, I'm back, I hope, and look forward to reading all the new emails and getting back in touch with some dear friends here who have helped me and my wife a great amount. > > > > > > > > > -- > Bill Eastman > www.ke5asu.com/links.html <http://www.ke5asu.com/links.html> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 got Leukemia in the summer of 1977, and received a blood transfusion during the treatment. That is how he got Hepatitis C. After the initial chemo induction treatment, he was in borderline remission, and his doc did the induction a second time. He was considered "cured" of Leukemia by the time he ended up getting diagnosed with Hepatisis C. Maybe the body can only have so much of those powerful drugs. He already had stage 4 cirohsis when he got diagnosed, so he would have needed a liver transplant and was already starting to buy things for when he went in the hospital for his transplant. His number was not bad enough for a transplant. He had genotype 1. Wow, I can't believe it's been 2 years since passed either. I wouldn't be surprised if they wouldn't treat him due to the leukemia treatment. I have some strange malady called "Sarcoid", which I still can't figure out, even though I've Googled it many times. My Doc will absolutely not treat me again, so my lowered immune system is going to remain a problem. Good to hear from you again, Bill! My membership preferences somehow changed to only being notified of certain events, not all emails, so I've changed that back to normal, I hope. I haven't been here for over a year I guess. I had a tp in 9/08 with some problems with infections afterwards for about a year, in and out of the hospital. All's been decent until this past November, when I had an abnormal chest x-ray. End result was type 1A lung cancer, so they removed upper lobe of right lung. No chemo/radiation needed! Now my chest and stomach areas look like I brought a BIC pen to a knife fight - and lost big time! My oncologist thinks that my immune system is being highly effected due to the Prograf treatment, which is necessary to avoid liver rejection. I'm still on 8 mg Prograf per day and was wondering if Penny, Butch or anyone else who has had a transplant would respond. I'm wondering what levels others are on per day. I feel like I could get a terminal cancer type at any moment, and will be trying to lower the Prograf level slowly, hopefully increasing my immune system. Just a mess for now, but my Doc doesn't want me to do another treatment yet. (I've been on 3, all unsuccessful). My love to everyone here! I see lots of new names, which means that this great forum is still working and providing support and answers to all of our questions. At any rate, I'm back, I hope, and look forward to reading all the new emails and getting back in touch with some dear friends here who have helped me and my wife a great amount. -- Bill Eastman www.ke5asu.com/links.html <http://www.ke5asu.com/links.html> -- Bill Eastman www.ke5asu.com/links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 Hi rick jackie here. I have Sarcoidosis which is what I think youAre speaking about. It can attack any organ but usually attacks theLungs or heart. I have it in my right eye and have had 2 surgeriesTo remove the sarcoid membrane on my eye. I would look upSarcoidosis and see if that makes sense in relationship to whatYour doc says, Im fairly sure that this is what your talking about.Nice to see you posting!HugsJaxSent from my iPhone Wow, I can't believe it's been 2 years since passed either. I wouldn't be surprised if they wouldn't treat him due to the leukemia treatment. I have some strange malady called "Sarcoid", which I still can't figure out, even though I've Googled it many times. My Doc will absolutely not treat me again, so my lowered immune system is going to remain a problem. Good to hear from you again, Bill! > > My membership preferences somehow changed to only being notified of certain events, not all emails, so I've changed that back to normal, I hope. I haven't been here for over a year I guess. I had a tp in 9/08 with some problems with infections afterwards for about a year, in and out of the hospital. All's been decent until this past November, when I had an abnormal chest x-ray. End result was type 1A lung cancer, so they removed upper lobe of right lung. No chemo/radiation needed! Now my chest and stomach areas look like I brought a BIC pen to a knife fight - and lost big time! My oncologist thinks that my immune system is being highly effected due to the Prograf treatment, which is necessary to avoid liver rejection. I'm still on 8 mg Prograf per day and was wondering if Penny, Butch or anyone else who has had a transplant would respond. I'm wondering what levels others are on per day. I feel like I could get a terminal cancer type at any moment, and will be trying to lower the Prograf level slowly, hopefully increasing my immune system. Just a mess for now, but my Doc doesn't want me to do another treatment yet. (I've been on 3, all unsuccessful). > > > > My love to everyone here! I see lots of new names, which means that this great forum is still working and providing support and answers to all of our questions. At any rate, I'm back, I hope, and look forward to reading all the new emails and getting back in touch with some dear friends here who have helped me and my wife a great amount. > > > > > > > > > -- > Bill Eastman > www.ke5asu.com/links.html <http://www.ke5asu.com/links.html> > Quote Link to comment Share on other sites More sharing options...
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