Re: Chelation progress -- 3rd cycle, phase II

[Guest guest]

-

Does your son have apraxia? If so has it gotten any better with

chelation?

[Guest guest]

Yes, he has apraxia big-time. And yes, he's gone from being

non-verbal to verbal since July 2000. I've posted about this on the

list several times, so if you go back and look in the archives, you

can get more details. (So I don't bore everybody with this again.)

(Cary, NC)

persistentC@...

Re: [ ] Chelation progress -- 3rd cycle, phase

II

> -

> Does your son have apraxia? If so has it gotten any better with

> chelation?

>

>

>

[Guest guest]

, Thanks for the update. It gives me such hope. My son is

also globally apraxic. I started on LA alone had one round and I am

already seeing a difference. The T sound and the W. We are still at

one syllable, sometime two. Good luck to you. nne

-- In @y..., " s " <persistentC@b...> wrote:

> Friends,

>

> I wanted to post an update on Kenny's progress...

>

> We are now on our 3rd cycle of phase II. (Protocol information at

the bottom of this post.)

>

> I was pretty alarmed at the beginning of phase II, as I was

observing a return of behaviors that we hadn't seen since before

phase I. However, ONCE AGAIN, on the third cycle, just as we saw in

phase I, there has been a significant change for the better.

>

> Kenny seems calmer again, and his articulation, which seemed to be

deteriorating, has gotten much better. He is attempting lots of new

words (remember, this is a child who was non-verbal before chelation)

and they are actually understandable when he says them. I just

finished doing one of his two daily 30-minute articulation drills

with him, and was amazed at some of the sounds that came out.

>

> Motor planning is also improving. He is actually putting his

shoulder belt on in the car without help now. This is quite an

accomplishment -- dealing with a retractable belt is really quite

tough for a child with dyspraxia.

>

> Eye contact is still not as good as it had gotten. We are seeing a

lot more covering of his eyes as if he is getting some sort of visual

stimulation that is overwhelming to him.

>

> We are also seeing a LOT of " rash " (for lack of a better term) on

his face and bottom, and more eczema type problems on the rest of his

body. His face is quite red on his cheeks and splotchy looking, and

there are some well defined pimples that come and go usually in about

the span of a day.

>

> We have started giving him Kava around 6PM in the evening. This

does seem to help with sleep. We had previously tried melatonin,

which was a disaster for Kenny -- sleep issues were MUCH worse.

>

> He is still having some occasional outbursts of crying, which seem

to occur right before the next dosing of ALA/DMSA. It could be that

we need to switch to a 3-hour protocol during the day, as it does

seem to occur within the last 30 minutes of the 4-hour cycle.

>

> ****************************************

> Background chelation info:

>

> Treating doctor: Dr. Amy Holmes

>

> Treatment began: Last week of July 2000

>

> Age at time treatment began: 7 years, 2 months

>

> Protocol Used:

> Phase I:DMSA-SR (slow release) 100mg, 3 times a day, with 7 on

/ 7 off cycle

>

> Phase II: Began January 2001 with 8 hour dosing on first

cycle. Switched to 4 hour dosing due to negative side effects.

Ratio of DMSA:ALA 4:1

> 3 days on/ 11 days off

>

> Toxic Metals being excreted (as measured in urine by Doctors Data

Inc.)

>

> Arsenic, Cadmium, Lead, Mercury, Nickel, Tin, Tungsten

>

> (Cary, NC)

> persistentC@b...

[Guest guest]

It's called Kava Kava from the Vitamin Shoppe (online ordering) and

appears to be 300mg.

(Cary, NC)

persistentC@...

http://www.rtphome.org/mariposa

Re: [ ] Chelation progress -- 3rd cycle, phase

II

> ,

> My son had the same problem with Melatonin. What brand and dose are

you

> giving your son of Kava?

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>

[Guest guest]

,

My son had the same problem with Melatonin. What brand and dose are you

giving your son of Kava?

________________________________________________________________

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