Guest guest Posted May 30, 2008 Report Share Posted May 30, 2008 Hi Tara, My child hasn't done a sleep study, but I have. My experience was very nice, actually. I had mine done at a clinic, and it was only me and the technician there. They gave me a private room, that was more like a bedroom than a hospital room. The technician attached several electrodes, then showed me my room and I went to sleep. I was going for sleep apnea, so halfway through the night, she woke me so I could put on a CPAP machine. I'm very picky and can't get to sleep in the wrong environment. So, what I did was bring my own pillows in their pillow case, and I was prepared to bring a small lamp (the clinic had one) because overhead lighting really bothers me. My advice is to make your daughter's environment as homelike as you can. Make sure she wears 2 piece PJs, because they put electrodes in several places, and a nightie would ride up because of this. If her normal bedtime is different from the time the clinic expects her to go to sleep, so if you can adjust her bedtime a little at a time till she's keeping the same schedule as the clinic. I would also prepare her by talking about it in advance, and would even go so far as to see if you could spend 20 min or so in the room she'll sleep in, a few days before, and also see if they'll attach an electrode on her, so when the sleep study comes, none of this will be new. Lastly, I'd talk to her doctor and ask if you could give her 1-3 mg of melatonin the night of the study. This will help her go to sleep easily, and since it's the same substance your body produces at bedtime, shouldn't interfere with the study. I hope this helps, Kim --- Tara Romanowich wrote: > Hi , My daughetr is 3 and has a diagnosis of > Cerebal Palsey and is up very often at > night. & nbsp; We are planning on doing a sleep > study with her. & nbsp; Can anyone share their > experience about this if their child has done > it? & nbsp; I'm wondering if it will be > traumatic. She's already had a 24 hour EEG and > that was pretty bad. & nbsp; Thanks so > much. & nbsp; Tara in NJ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Changing diet and addressing bowel issues and food sensitivities and dealing wtih yeast that was a result of the first things mentioned...got my kids sleeping through the night with no assistance. Try an experiment of removing gluten and sasein temporarily as tehy are the hardest to digest, pull sugar - this was MAJOR in our house and try to eat fresh and whole for two weeks...veggies cooked fork tender to break them down and make them easier to digest. Meats, esp slow cooked stes and the like, if there is no known csein intolerance and you have access to raw butter use that on veggies and eggs etc, not veg oils as they are inflammatory...but pull all liquid milks and try goat yogurt instead of cows for a bit...with UNHEATED honey drizzled as the Greeks and other Europeans do. The sugar and additives and preservatives - natural flavorings are a big culprit in sleep disorders...may have a big impact. She needs to have BMs within 2-3 hours after each meal and the stools should be the consistency of toothpaste no wider than two or three fingers - and that is starting to get to be too big apparently...and brown unless you have eaten something that you know would later the color. She could have some yeast issues -that causes insomnia or she could have specific vitamin and mineral deficiencies that cause a white powdery tongue ALSO...but both are caused by gut and bowel issues and both are healed through diet changes primarily and then appropriate supplementation. Once those changes are in place...you takenotes for a week on her sleep to determine how many hours she seems to NEED/will sleep for....if only 6 for example then do not put her down until 1 am, KEEP HER UP, but the last hour needs to be very quiet time reading soft music, no stimulating play...WAKE HER UP AT 7AM - she gets her needed six, no more no less, and NO naps...put her to bed at midnight...if she sleeps till seven you are on your way...if not, back to 1 am, and up at seven, retry midnight, then move to eleven, then to ten pm...you get the idea. My Matt who didn;t sleep through the night for almost a year now goes down like a sweetie at 8:30 pm - says " nigh nigh " no issues most nights ( sick changes everything of course) and sleeps til at least seven or even later when allowed> No melatonin, no big battles - that's it. THough when you rae establishing this, once you put them dwon per your notes...it is DOWN for the night, a gentle pat on the back, but no talking or reinforcing their calling you in...and then you are done. It works. Good luck. Di > > Hi , My daughetr is 3 and has a diagnosis of Cerebal Palsey and is up very often at night. & nbsp; We are planning on doing a sleep study with her. & nbsp; Can anyone share their experience about this if their child has done it? & nbsp; I'm wondering if it will be traumatic. She's already had a 24 hour EEG and that was pretty bad. & nbsp; Thanks so much. & nbsp; Tara in NJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Gabby, may I know what glutathione brand/amount do you use with MSM+ on your child? thanks. Ann a DeVelbiss wrote: For us removing SOY did it!!! They slept all night after that!!! Love, Gabby. :0) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Gabby, may I know what glutathione brand/amount do you use with MSM+ on your child? thanks. Ann a DeVelbiss wrote: For us removing SOY did it!!! They slept all night after that!!! Love, Gabby. :0) Quote Link to comment Share on other sites More sharing options...
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