Re: Re: Informal poll...other therapies

[Guest guest]

none....he mixes it himself

AndyCutler@... wrote:

> Find out what the preservative in the allergy shots is - and don't

> take their word for it, make them show you the vial and let you read

> it.

>

> Andy

>

>

> > We are on the GF/CF diet, with corn and soy also

> removed....effective

> > ABA 25 hours a week....very effective

> > allergy shots....haven't seen improvement yet

> > supliments........effective

> >

> > have in the past done a combination Touch For Health and cranial

> > sacral...first time done was the first time he ever slept through

> the

> > night....at age 4.

> > Had to discontinue because we moved away. I just finished the class

> Touch For

> > Health 2, and will be taking 3 in 1 1/2 weeks, and have just started

> working

> > on him myself. I'll be taking cranial sacral as soon as I can find a

> place to

> > take it.

> >

> > We're still in the DMSA only stage of chelation, and have seen just

> a little

> > improvement....better attention span at school, and more aware of

> his

> > surroundings.

> >

> >

> > Blessings,

>

>

>

[Guest guest]

We also did (and still do, but not as regularly) the Wilbarger Brushing

Protocol. I find it is very calming for my son and he gets a bit more hyper

when we skip a few days.

The hyperness you saw was probably due to the Ease disc. We've seen brief

increases in hyperness or sensativity each time we've done a round of

auditory therapies. It usually subsides as you move on in the program.

Since the Ease disc is only part of the AIT music, it's possible it could be

shaking up some stuff but not evening it out. My son has done really well

with the Samonas Sound Therapy and The Listening Program. Samonas damped his

auditory sensativities and his being overwhelmed by the world, while TLP

brought better focus, auditory processing and conversational language.

Gaylen

[Guest guest]

Terri,

Have't heard of fastforward. Please let me know how to find out more. Thanks,

--------------------------------------------------------------

Interesting thread. Here's our entry:

We have done the following:

ABA -- very effective. Did 3 years of 15 hours/wk or so, year round, starting

at age 4. He is now fully included in a 2nd grade with an aide, doing all

grade level work with minor modifications, has a close friend, gets 2 hours/wk

resource room time for math, but no ABA

Vitamin/ supplements: very effective (Super Nu Thera for 3 years, then

Brainchild SSIII for 1 yr)

Chelation Therapy: only 4 cycles into phase I, but seeing good signs - less

" brain fog " while on DMSA.

GFCF diet: not effective; tried twice, but only for 3 months or so - saw

absolutely no signs of improvement either time

EaseDisk - somewhat effective - at the time we did it a lot of sensory type

problems cleared up, including sound sensitivity oral sensitivity to touch.

Don't know if it helped, but certainly didn't hurt!

DMG - not effective (just made him hyper)

" Headstart " type early learning preschool - not effective - at age 3, a group

of 15 kids, some hfa, some normal, was just a living hell for him - no learning

possible because he was always shut down.

Speech therapy - Somewhat effective - at times, well done speech therapy seems

to kickstart certain skills, but generally, not as effective as ABA for skill

development.

Wilbarger Brushing/Joint compression - Somewhat effective - Done at same time

as EaseDisk, was very sensorily overwhelming for him, bad enough that we

discontinued ABA entirely, as he couldn't cope with it at all. However, at

the same time, the abovementioned sensory issues cleared up. so who knows

exactly what helped?

Craniosacral therapy - Somewhat effective - seemed to give him " smoother "

functioning when he was getting these treatments - less 'up and down' days. I

stopped when we moved, because it's a little hard to find good craniosacral

therapists. I'd love to find one here and start up again.

Digestive Enzymes - can't tell, will know more in a few months. He's taking

Creon with every meal.

Fast Forword - somewhat effective - Couldn't tell while he was doing it, but he

had a great year at school right afterwards, and I think some of the increased

success at listening was due to fastforword.

What a long road. One I never would have predicted, if you'd asked me what I'd

be doing with my life. It's interesting to reflect on these things, and the

past 4 1/2 years since dx.

Terri

***

[This message has been truncated.]

[Guest guest]

Hi Gaylen,

How do I find out more about Samonas and the Listening Program?

S

--------------------------------------------------------------

We also did (and still do, but not as regularly) the Wilbarger Brushing

Protocol. I find it is very calming for my son and he gets a bit more hyper

when we skip a few days.

The hyperness you saw was probably due to the Ease disc. We've seen brief

increases in hyperness or sensativity each time we've done a round of auditory

therapies. It usually subsides as you move on in the program. Since the Ease

disc is only part of the AIT music, it's possible it could be shaking up some

stuff but not evening it out. My son has done really well with the Samonas

Sound Therapy and The Listening Program. Samonas damped his auditory

sensativities and his being overwhelmed by the world, while TLP brought better

focus, auditory processing and conversational language. Gaylen

[Guest guest]

Terri, That's interesting about your child's treatments that you did

because two of the same things occurred with our son (6 yrs.) We did

the Wilbarger protocol at the same time as Ease disc as well as trying

DMG and both interventions made him HYPER as well. I have to itemize our

treatments that we've done when I have more time and I'll post .

________________________________________________________________

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[Guest guest]

FastForword, (which is now being called FastForword

Language), is a computer program used for improving receptive

language. Their website is

www.scientificlearning.com.

Feel free to email me if you have more questions.

Terri

At 10:30 PM 2/14/01 -0400, you wrote:

Terri,

Have't heard of fastforward. Please let me know how to find out

more. Thanks,

--------------------------------------------------------------

Interesting thread. Here's our entry:

We have done the following:

ABA -- very effective. Did 3 years of 15 hours/wk or so, year

round, starting at age 4. He is now fully included in a 2nd

grade with an aide, doing all grade level work with minor

modifications, has a close friend, gets 2 hours/wk resource room

time for math, but no ABA

Vitamin/ supplements: very effective (Super Nu Thera

for 3 years, then Brainchild SSIII for 1 yr)

Chelation Therapy: only 4 cycles into phase I, but seeing good

signs - less " brain fog " while on DMSA.

GFCF diet: not effective; tried twice, but only for 3 months or so

- saw absolutely no signs of improvement either time

EaseDisk - somewhat effective - at the time we did it a lot

of sensory type problems cleared up, including sound sensitivity

oral sensitivity to touch. Don't know if it helped, but

certainly didn't hurt!

DMG - not effective (just made him hyper)

" Headstart " type early learning preschool - not effective - at

age 3, a group of 15 kids, some hfa, some normal, was just a living

hell for him - no learning possible because he was always shut

down.

Speech therapy - Somewhat effective - at times, well done speech

therapy seems to kickstart certain skills, but generally, not as

effective as ABA for skill development.

Wilbarger Brushing/Joint compression - Somewhat effective - Done at

same time as EaseDisk, was very sensorily overwhelming for him, bad

enough that we discontinued ABA entirely, as he couldn't cope with

it at all. However, at the same time, the

abovementioned sensory issues cleared up. so who knows exactly what

helped?

Craniosacral therapy - Somewhat effective - seemed to give him

" smoother " functioning when he was getting these

treatments - less 'up and down' days. I stopped when we

moved, because it's a little hard to find good craniosacral

therapists. I'd love to find one here and start up again.

Digestive Enzymes - can't tell, will know more in a few months.

He's taking Creon with every meal.

Fast Forword - somewhat effective - Couldn't tell while he was doing

it, but he had a great year at school right afterwards, and I think

some of the increased success at listening was due to

fastforword.

What a long road. One I never would have predicted, if you'd asked

me what I'd be doing with my life. It's interesting to

reflect on these things, and the past 4 1/2 years since dx.

Terri

***

[This message has been truncated.]