Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Have you tested for PANDAS? It's probably not something you should test for right now since she just had strep but it sounds like she may have PANDAS. Does she have any ocd issues or tics? My son has been on a long term abx for over a year as he has chronic bronchitis and that seems to be the only thing that keeps it away. He doesn't have PANDAS, though. You may want to consider going on some abx for a while. What does your DAN say?CherylHi Listmates,Looking for some input. My daughter has lost her Autism diagnosis, but she still has attention issues, some speech delay, and random gut issues. I call it "Autism Light". Anyway, 2 weeks ago she got strep throat. We've chelated for 3 years and done biomed for almost 4. During that entire time, we went from a child who was always, ALWAYS sick, to a child who has gotten sick twice in 4 years.This recent bout of strep was her first of the kind and it was nasty. She was very sick, high fever and all.We went on antibiotics. I was convinced we would have all of our gut problems back since she is and was such a yeasty kid.But in fact, just the opposite happened! Her BM's became perfect! And her attention was fabulous, receptive skills unparalleled. She lost her quick temper and actually shared with her sister (sharing is not easy for her at all).We've been off the antibiotics for almost a week now and all of the old behaviors are returning.She was treated with vancomycin for clostridia years ago. Does anyone think or have any experience with an underlying bacterial infection causing this kind of behavior?Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 We absolutely had those kind of behaviors with Clostridia. aggression, irritability, etc. We began SCD in december. did vancomycin/flagyl in January. we've seen improvement. The concern about treating these kids with antibiotics is that the clostridia can often come back. we attempted to keep this from happening by having SCD going before/during/after the antibiotics and we're also using S. boulardii. I think we're winning, but time will tell Our little guy's belly is still distended at times and when we brought that up to the DAN! last week, she suggested doing the abx again at some point in the future if antifungals don't resolve the bloating. Congrats on losing the diagnosis...that's great! Kari -- In mb12 valtrex , " julieobradovic " wrote: > > Hi Listmates, > > Looking for some input. My daughter has lost her Autism diagnosis, > but she still has attention issues, some speech delay, and random gut > issues. I call it " Autism Light " . > > Anyway, 2 weeks ago she got strep throat. We've chelated for 3 years > and done biomed for almost 4. During that entire time, we went from a > child who was always, ALWAYS sick, to a child who has gotten sick > twice in 4 years. > > This recent bout of strep was her first of the kind and it was nasty. > She was very sick, high fever and all. > > We went on antibiotics. I was convinced we would have all of our gut > problems back since she is and was such a yeasty kid. > > But in fact, just the opposite happened! Her BM's became perfect! And > her attention was fabulous, receptive skills unparalleled. She lost > her quick temper and actually shared with her sister (sharing is not > easy for her at all). > > We've been off the antibiotics for almost a week now and all of the > old behaviors are returning. > > She was treated with vancomycin for clostridia years ago. Does anyone > think or have any experience with an underlying bacterial infection > causing this kind of behavior? > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 , what are you doing to replenish gut flora? What is her diet like currently? Congrats on losing autism diagnosis. I bet there are lots of kids walking around like your daughter right now who never had a diagnosis, but with a gut profile similar. They have the bac infections but didn't cross blood brain barrier, maybe they are infected but didn't suffer brain inflammation causing autism symptoms. I think my son had infections from birth but at 18 months after a strong reaction to MMR and then another to flu shot he was gone. I think for him his brain became infected at this point. In any case, we need to continue to support immune system to bring things into balance. Strong diet will help. I think it's great that during strep treatment she seemed to handle the infection normally as the immune system should. However something can break the camels back again. As soon as we see behaviors return I think it's so important to get full force again with diet, antifungal, antiviral, antibiodic if necessary. Lots of probiotics through foods, capsules to replenish gut to try to bring balance to the system. We're all pushing for recovery and improvement, and as more kids recover I think the focus will shift to what you are experiencing. On going care. > > Hi Listmates, > > Looking for some input. My daughter has lost her Autism diagnosis, > but she still has attention issues, some speech delay, and random gut > issues. I call it " Autism Light " . > > Anyway, 2 weeks ago she got strep throat. We've chelated for 3 years > and done biomed for almost 4. During that entire time, we went from a > child who was always, ALWAYS sick, to a child who has gotten sick > twice in 4 years. > > This recent bout of strep was her first of the kind and it was nasty. > She was very sick, high fever and all. > > We went on antibiotics. I was convinced we would have all of our gut > problems back since she is and was such a yeasty kid. > > But in fact, just the opposite happened! Her BM's became perfect! And > her attention was fabulous, receptive skills unparalleled. She lost > her quick temper and actually shared with her sister (sharing is not > easy for her at all). > > We've been off the antibiotics for almost a week now and all of the > old behaviors are returning. > > She was treated with vancomycin for clostridia years ago. Does anyone > think or have any experience with an underlying bacterial infection > causing this kind of behavior? > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 My son has horrible problems with his bowel movements. In his whole life he has never had solid bm's. When he was on Augmentin a few years ago, for the first time he had solid bm's and was also very pleasant and cooperative. Once off, the bm's were back to the way they were before. I couldn't figure it out either. Dianne > > > > Hi Listmates, > > > > Looking for some input. My daughter has lost her Autism diagnosis, > > but she still has attention issues, some speech delay, and random gut > > issues. I call it " Autism Light " . > > > > Anyway, 2 weeks ago she got strep throat. We've chelated for 3 years > > and done biomed for almost 4. During that entire time, we went from a > > child who was always, ALWAYS sick, to a child who has gotten sick > > twice in 4 years. > > > > This recent bout of strep was her first of the kind and it was nasty. > > She was very sick, high fever and all. > > > > We went on antibiotics. I was convinced we would have all of our gut > > problems back since she is and was such a yeasty kid. > > > > But in fact, just the opposite happened! Her BM's became perfect! And > > her attention was fabulous, receptive skills unparalleled. She lost > > her quick temper and actually shared with her sister (sharing is not > > easy for her at all). > > > > We've been off the antibiotics for almost a week now and all of the > > old behaviors are returning. > > > > She was treated with vancomycin for clostridia years ago. Does anyone > > think or have any experience with an underlying bacterial infection > > causing this kind of behavior? > > > > Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
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