RE: Eye Problems

[Guest guest]

Hi Dorothy I CAN relate to the fear you are now experiencing. When the Sarcoidosis errupted in my right eye, it didnt take long for my vision to become really bad in that eye.. I sought out care from my local eye doc and after his trying to fix it with special drops etc, he drew every lab possible to check for everything he could think of that might have caused my problem,, they even did the Sarcoidosis chest exray and it was negative,, so it wasnt in my chest but ended up in my eye... So I had the surgery and it seemed ok for about 3-4 weeks and then it started growing back again.. the pathologist report said it was a sarcoid membrane.. so I had it removed again.. so I KNOW

what you are feeling.. I too was very afraid that I'd go blind, and I could relate to the sentence you said about being able to handle being disabled or crippled but not blind too.. They sent me to UC- to the eye clinic there and they helped a lot.. After the second surgery, and after having my eye injected with the steroid, so far,, knock on wood, it has not come back... but it was so scary,, so go to whatever eye specialist they want you to go to... and try to trust that they know what they are doing and will help you! I know you are worried,, I was too, but try to relax,, and remember that what is "is".... hugs, jax Dorothy wrote: I just saw ONE of my eye specialists today. This first turned up last May during a regular visit with my ophthalmologist – some sort of optic nerve problem. One of my doctors believes that it’s another problem stemming from the HCV and cryo along with my neuropathy and

RA. I believe him. The threat of losing my sight back in May is what drove me back to the liver doc for tx. It took several months for me to get an ophthalmic clearance to start tx and I thought things were going well. I see 2 specialists regularly – one for the retinas and the other for optic nerves. Today, I had another visual acuity test and it showed the problem still exists and perhaps I need to see an ophthalmic neurologist next. This scares the crap out of

me and I’m wondering if anyone else has experienced similar eye problems. Not retinal problems from interferon tx, but eye problems existing probably prior to tx. God knows, if I’m crippled the rest of my life, I’ll get by……but going blind is terrifying to me at 55 years old and being alone. I know there are worse things that could happen, but it’s scary. Dorothy Jackie

[Guest guest]

Yes, of course, I’ll see any doctor

I have to. It’s just something else to worry about when I don’t

need any more to worry about………When this came up last year, I

got so worked up that I broke out in shingles! I’m not going to do that

this time. Too many other things going on to put that on the top of my “worry

list” right now. I see my optic nerve doctor on February 1 so we’ll

see what he thinks and what he suggests next.

I’m not familiar with sarcoidosis,

but it’s wonderful that you’ve had great success with the tx.

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on

Sent: Monday, January 21, 2008

4:31 PM

To: Hepatitis_C_Central

Subject: Re:

Eye Problems

Hi Dorothy

I CAN relate to the fear you are now experiencing.

When the Sarcoidosis errupted in my right eye, it didnt take long for my

vision to become really bad in that eye.. I sought out care from my local eye

doc and after his trying to fix it with special drops etc, he drew every lab

possible to check for everything he could think of that might have caused my

problem,, they even did the Sarcoidosis chest exray and it was negative,, so

it wasnt in my chest but ended up in my eye... So I had the surgery and it seemed

ok for about 3-4 weeks and then it started growing back again.. the

pathologist report said it was a sarcoid membrane.. so I had it removed

again. so I KNOW what you are feeling.. I too was very afraid that I'd go

blind, and I could relate to the sentence you said about being able to handle

being disabled or crippled but not blind too.. They sent me to UC- to

the eye clinic there and they helped a lot.. After the second surgery, and

after having my eye injected with the steroid, so far,, knock on wood, it has

not come back... but it was so scary,, so go to whatever eye specialist they

want you to go to... and try to trust that they know what they are doing and

will help you!

I know you are worried,, I was too, but try to

relax,, and remember that what is " is " ....

hugs,

jax