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Resident Training - Project DOCC

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Hey guys - Are any of you familiar with Project DOCC? We have a chapter here locally doing training for peds and family practice residents at TC Children's Hospital. For a list of other hospitals doing Project DOCC, see below. It's awesome...I've been a part of it for about 6 years now and the other parents have become my mentors (A nice bonus) :), including a mom on this list! Before you start your own organization, you may want to check on just expanding a program to your area that already exists elsewhere...it will be much easier! :) We're still trying to figure out how to hit all the specialty residents too, but we're making progress...one doc at a time :) And we've even done our panel presentations for local and state organizations, early intervention, nurse training, etc. etc. etc....There's no limit to what you can do with it if you get started and get a core team of 4-5 families together...

Project DOCC Project DOCC (Delivery of Chronic Care) improves the quality of care for severely chronically ill children by educating pediatricians-in-training about their special needs from a parent's perspective.

Founded in 1994 by Maggie Hoffman, Donna Appell, and Speller-- themselves parents of disabled children--Project DOCC brings doctors out of the hospital and into the home to learn first-hand how families deal with the long-term care of chronically ill children. Project DOCC is now a part of the training of over 800 medical residents at 20 hospitals in the United States and Australia. It has trained hundreds of family members to act as “family faculty,” educating young physicians through home visits, parent interviews, and grand rounds presentations. Beginning in 2003, Project DOCC will work with the United Hospital Fund, which provided early grant support for the program, to

refine and evaluate the current pediatric program; develop, test, and launch a similar program for children with special health care needs who are aging out of the pediatric system and into adult medicine; and devise an independent, long-term organizational structure to increase Project DOCC's national prominence and effectiveness; and seek significant foundation grants to support these efforts.

For more information or to learn how to participate in Project DOCC, contact Maggie Hoffman at mhoffman@...

Mission How Project DOCC Works Pediatric ProgramTransitions ProgramParticipating Organizations

MissionProject DOCC's mission is to promote an understanding of the issues involved in caring for a family living with special health care needs regardless of age, diagnosis, or prognosis; to put the family at the center of the health care system.

How Project DOCC WorksMedical centers and family members form teams to implement Project DOCC. The curriculum is integrated into an existing rotation (e.g., general pediatrics or internal medicine) and is required for all residents and/or medical students during their training. Teaching videos, manuals, and slides are free. Each team must complete a two-day training workshop. Project DOCC encourages each hospital to pay a stipend to every family member who participates in teaching.

Pediatric ProgramThe Project DOCC curriculum is taught by parent teachers and made up of three components:

Grand rounds panel presentation (one hour) Home visit (two hours) Parent interview using the Chronic Illness History (two hours)

Transitions CurriculumProject DOCC is developing a transitions curriculum, which will focus on children with special needs as they mature into adulthood, and prepare doctors and nurses, parents, and the young adults themselves for the transition to adult medical and community services. The curriculum's target audiences are pediatricians and pediatric nurses; parents of emerging adults; teens and young adults; and physicians in adult medicine.

Participating Organizations, 2004Children's Hospital at Montefiore, New York, NYChildren's Hospital of New York – Presbyterian, New York, NYChildren's Memorial Hospital, Chicago, ILDriscoll Children's Hospital, Corpus Cristi, TXEmory University School of Medicine, Atlanta, GAGood Samaritan Hospital Medical Center, West Islip, NYMaimonides Medical Center, New York, NYMarshall University, Huntington, WVMassachusetts General Hospital for Children, Boston, MANYU Medical Center/Bellevue Hospital, New York, NYNorth Shore University Hospital, Manhasset, NYSchneider Children's Hospital, New York, NYT. C. Children's Hospital, Chattanooga, TNTexas Children's Hospital, Houston, TXThe Canberra Hospital, Canberra, AustraliaUniversity of Arkansas for Medical Sciences, Little Rock, AKUniversity of Nebraska Medical Center, Omaha, KSUniversity of Tennessee Health Science Center, Memphis, TNUniversity of Tennessee Medical Center, Knoxville, TNUniversity of Texas Health Science Center (CAMP), San , TX

http://www.uhfnyc.org/pubs-stories3220/pubs-stories_list.htm?attrib_id=7687 Mattheiss, Executive DirectorLifeLine, Inc.Reaching Families of Those with Special Needs With Support, Education, and Respitewww.LifeLineFamilies.org

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