3 Qs

[Guest guest]

Yesterday I took my son Umar to a non profit clinic in Bahrain where we were taught some physical activities to do with my son. The man is not a Dr. but a special education teacher who used to work w/ the local Down Syndrome Association who now has his own center that focuses on infants and physical exercises. I have two qs about some things he said

1. He said due to Umars appearance he would consider him as having Mosaic DS unless told otherwise. We actually don't know either way because our DR never told us any differences, or specifics. I've read that with Mosaic DS children tend to have less physical features but can that be said of children with regular (don't know the term to use here) DS ? I mean should I expect all children with regular DS to have the single line across their palm?

2. The man made the suggestion that Umar should be put to sleep on his back at night and to ensure his head is straight w/ the rest of his body. How we would ensure he doesn't move his head is any ones guess, but is there some reason for this? Or is this just this guys suggestion?At this point I place Umar on his side as I'm paranoid that he will vomit and difficulties will arise from that. (I''ve been like this with all my children, especially since my first son had reflux problems that freaked me out especially when it came to sleeping and being able to spit up w/ no difficulty) Not that Umar spits up much at all, but this is my hang up. Is there something to the head being kept straight w/ the body as he sleeps?

3. Beyond my visit to this clinic I've been wondering what to tell my other children. No I haven't told them anything yet and I'm really not sure what to say at this point. A friend suggested that the moment will present itself. But I'd hate for a lot of time to go by waiting for a moment and than it becomes too much of a shock for my children. Especially my oldest daughter who is highly sensitive (she'll be the nurse in the family) to medical problems which she equates with death due to events in her young life. Eventually I have to say something but in a way I don't want it to be a major issue, or something which changes their interaction with Umar. So any thoughts on this would be great.

Ann

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