Guest guest Posted October 13, 2003 Report Share Posted October 13, 2003 Well, very nice that you'd share your information for free. I have difficulty with your statement that lemons are acidic. It is my understanding that in the body, they contribute greatly to alkalinity. Also, I don't consider Paxil to be a very good long term fix at all. And is dangerous for many PWC/FMS. What you've got looks like a symptom control program, but not a cure. How long have you been symptom free? penny > Please read my personal web page at: > > http://www.fibrofix.com > > Let me know if I can be of help in any way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2003 Report Share Posted October 13, 2003 Hi, Penny. Thanks for writing back! I've been symptom free for 36 months (since the last week of October, 2000). As far as we can learn this is the first time anyone has legitimately beaten all symptoms of severe Fibromyalgia using a prescription-based treatment. I work full time and have a happy married life. We think it will be another 3 to 5 years before this treatment is generally accepted, and possibly another 3 to 5 before it is readily accessible to most sufferers. No one should have to wait that long. All info IS absolutely free. My husband and I foot the bill for the web site, phone calls, email, etc. It takes between 75 to 100 hours after my regular job to keep up the site, answer emails worldwide, inquiries, etc. We are working people and it takes all my spare time and way too much of our personal resources, but if you were me, wouldn't you do the same thing? We are just so grateful to have my life back. I answer all email and phone calls personally. We are just so grateful. We are not medical people, but if you want to have a real life again, I will email or phone back and forth with you until you get from where you are to where I am. I do this day in and day out for anyone who asks. Thanks again for writing, Penny. Anne Hillebrand Orlando, FL 1st of 5,000,000 by the unlimited grace of my almighty God. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 What I understood, she is symptom free as long as she stays on the protocol. I also disagree using Paxil, I'm trapped with Zoloft myself, trying VERY SLOWLY to wean off of it...And I can tell you, it is difficult... Maarit... > > Please read my personal web page at: > > > > http://www.fibrofix.com > > > > Let me know if I can be of help in any way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Now that we know the cause of symptoms, and there is treatment that works, the next step will be for someone to find a cure. That is still a long way away. But in the meantime, the treatment is simple enough and it has given me my life back. Without pain pills or sleep tablets. The Paxil (an SSRI) is not being used because of depression - I didn't have a problem with that. I take it at night only - to keep the body's signals going correctly. I have not heard of any other way to do this. A lot of people don't even have to change or start meds to feel great again - just use the little " tricks and tips " . Please let me know if there is anything I can do to help you. Sincerely, Anne Hillebrand Orlando, FL 1st of 5,000,000 by the unlimited grace of my almighty God. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Anne, I use l-tryptophan at bedtime to increase serotonin-and it works like a dream. Have used it for many years and it has made all the difference in the world. Adrienne Re: Re: Fibromyalgia treatment Now that we know the cause of symptoms, and there is treatment that works, the next step will be for someone to find a cure. That is still a long way away. But in the meantime, the treatment is simple enough and it has given me my life back. Without pain pills or sleep tablets. The Paxil (an SSRI) is not being used because of depression - I didn't have a problem with that. I take it at night only - to keep the body's signals going correctly. I have not heard of any other way to do this. A lot of people don't even have to change or start meds to feel great again - just use the little " tricks and tips " . Please let me know if there is anything I can do to help you. Sincerely, Anne Hillebrand Orlando, FL 1st of 5,000,000 by the unlimited grace of my almighty God. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 A few years ago when I was extremely depleted and bedridden, depression certainly became a factor. I tried Wellbutrin, which did nothing, Zoloft, which made me feel like a zombie, totally uninterested in life, and too apathetic to consider death, and then Paxil made me feel like a human being again. A very tiny dosage worked for me. 5mg regularly, 15mg during times of great stress. When I started the Neurontin for the chronic pain and sleeplessness, the 5mg of Paxil reacted with it and made me completely manic. I had to wean off it in a hurry. (10 days) I'm off both meds now. Still doing fine, considering. Jane Also, I don't consider Paxil to be a very good long term _______________________________________________ No banners. No pop-ups. No kidding. Introducing My Way - http://www.myway.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Thanks for that info. It's the first time I have heard of it. We are always looking for different ways to do the same thing, in case an alternative is needed for anyone. I should have a chance later this evening to read up on it. So many emails every day now, but that's good. Keep in touch. Let me know if there is anything I can do to help you. There is no reason anyone has to suffer from this any more. Am afraid it will be a few more years and more of their money wasted before they all get the right help, though. Hope you will help us spread the word. Anne Hillebrand p.s. I'm sending you a funny - so beware! Thanks again for your info. -- Can't go to sleep or back to sleep? Tired, stiff, in terrible pain? Can't think clearly? Weight gain? Acid reflux? Tingling? Fatigue? Read about Fibromyalgia and the first ever completely effective treatment. All info is free. http://www.fibrofix.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Hi , Thanks for this information. Is the raw apple cider vinegar to help with pain? We have a health store near us I can check for the ones you mention. Not familar with how almonds and virgen olive oil helps get rid body fat. Willing to try that since everything my trainer at the gym tells me to change, doesn't work. I no longer have constipation problems so I won't need that. My GI system is sensitive so I probably can't use the detox one either. Do you know of anything to help with sleep? Another group told be about Valerian root. It stinks and leaves after taste. hugs, Debbie L > > hi all, > I have been taking raw apple cider vingar tonic drink. for almost a > month now. drink it twice a day, > (you have to get the raw apple cider vingar from the health food store, > cause the reg stores have watered down the apple cider vingar, so it > does not work). > I do not hurt near as much. have been able to cut one of my pain pills > out completely. > the fatgue has cut way down. > I have also started drinking a mixture of flax seed, & the tonic. for > the bad constapation that I have. > also have started adding raw oat bran & psyllium husk power, once a day > to detox my digestive system. > also been adding amond & or virgin olive oil to my food to reduce the > fat in my body. > I can see a big change in my body, and the way that I feel. > hope what is helping me, will help some of you that are suffering. > mary w. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Odyssey Spirit ~~tina~~ Date: Sep 14, 2007 7:37 PM Subject: Fibromyalgia ~Treatment FibromyalgiaProvided by: Last Updated: November 10, 2005Treatment OverviewCurrently, there is no cure for fibromyalgia, but there are many steps you can take to understand your condition and manage your symptoms. Treatment is focused on managing pain, fatigue, depression, and other symptoms common in fibromyalgia in an attempt to break the cycle of increased sensitivity to pain and decreased physical activity. Every person may respond to a different combination of treatments.Treatment may include:Medicines to help you sleep better, relax muscles, or relieve muscle and joint pain. Medicines your doctor may suggest include tricyclic antidepressants, SSRIs, muscle relaxants such as cyclobenzaprine (Flexeril), anticonvulsants (also called antiepileptics), mixed (or dual) reuptake inhibitors or, less often, nonprescription pain relievers. Exercise therapy to relieve sore muscles and increase energy. Cognitive-behavioral therapy to help you learn to manage your pain. Home treatment is also a vital part of managing fibromyalgia. Your efforts to get regular exercise, improve your sleep habits, and reduce stress are as important to your treatment as any medication your doctor may prescribe.Initial treatmentIf you have just been diagnosed with fibromyalgia, your initial treatment goals might include:Starting a program of regular physical exercise. Getting consistent exercise, especially cardiovascular exercise, is one of the best ways to manage fibromyalgia. Pool exercise has been found to be particularly effective for many people. 5 It's important to progress your exercise program slowly so you don't get sore muscles that cause you to want to stop exercising; working with a physical therapist familiar with fibromyalgia is helpful. 1 Identifying sleep problems, if you have them, and learning about ways to get more restful sleep. Relieving pain and stiffness with medicines and heat. Identifying "triggers" that seem to make your symptoms worse and learning to avoid or manage them. A trigger can be anything you've noticed that increases your symptoms. Triggers may relate to the weather, particular activities, stressful events, or lack of sleep. Starting a program of cognitive-behavioral therapy to help you learn to relax, reduce stress, and manage your pain. This can help decrease pain and fatigue, and it can improve your mood and ability to function. 5 With some guidance and instruction, you will be able to start working on most of these goals at home. You may have a team of health professionals to help you. The team may include your family medicine doctor, a rheumatologist or endocrinologist, a physical therapist, and a psychologist.Ongoing treatmentExercise, sleep, and stress reduction can be extremely helpful in controlling your symptoms. Symptoms of fibromyalgia come and go repeatedly, so it is important to maintain your home treatment efforts over the long term.Prescription medicines can be helpful for certain symptoms, including pain and sleep problems. Talk with your doctor if you think the medicines you are taking are not helping. There may be other alternatives. Remember that your need for medication may change over time.Another important part of ongoing treatment for fibromyalgia is, when possible, avoiding or limiting your exposure to "triggers" or "stressors" that make your symptoms worse. Cold or damp weather, poor sleep, fatigue, physical or emotional stress, and overexertion seem to be common stressors for people with fibromyalgia. It may not be possible to avoid these things completely, but you can learn ways to reduce stress, practice better sleep habits, and avoid overexerting yourself.Watch for signs of depression or anxiety; they are common in people with fibromyalgia and can make problems with sleep and feelings of pain even worse. 1 These can often be successfully treated as long as you recognize them and discuss them with your doctor.Many people with fibromyalgia have other joint or muscle diseases (such as rheumatoid arthritis or lupus) that need to be treated as well. Make sure you report any new symptoms or worsening problems to your doctor.Treatment if the condition gets worseFibromyalgia is not a progressive disease and causes no permanent physical damage. But the symptoms can be debilitating, and you may experience periods of time when you feel worse than usual.If new symptoms develop or if existing symptoms get worse, discuss your concerns with your doctor. He or she may need to reassess your treatment. Your doctor may need to adjust your medicines or prescribe different ones. Or perhaps you are exercising too much or not enough. It's also possible that new or worsening symptoms could be related to a condition other than fibromyalgia. Your doctor can evaluate this possibility as well, but only if you let him or her know that you are having problems. What To Think AboutAlthough exercise seems to help most people with fibromyalgia, no one particular treatment stands out as the most effective. The kind of treatment you need or want may be based on:The severity of your symptoms. Whether the condition is disrupting your daily life. What kinds of changes in your life you are willing and able to make. Because the symptoms of fibromyalgia can come and go, you may find it difficult to judge whether a particular treatment is really working. Different people may respond differently to each type of treatment. It can take time, and you may have to try several different treatments, to find an approach that works for you.Author: Erstad, MBA/MPH posted by odyssey spirit~christina Quote Link to comment Share on other sites More sharing options...
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