a more positive survey...for those who have 8 -25yr old

[Guest guest]

Dear Parent,

We invite you to participate in an online survey about the positive

side of parenting a child

with a disability. The study is being conducted by Ulman,

M.S., as a dissertation

project under the direction of Dr. beth Dykens, Ph.D. through

the Vanderbilt Kennedy

Center. Eligibility requirements are as follows:

· The parent must be 18 years or older

· The parent must have a child between the ages of 8 and 25 with a

diagnosis of one

(and only one) of the following: Angelman syndrome, autism, Down

syndrome, Prader-

Willi syndrome, or syndrome.

We know parenting a child with a disability can be challenging at

times. But many people

find that the experience has led to personal growth in unexpected

ways. Surprisingly

there are almost no studies that look at the ways the experience can

strengthen people,

while there is plenty of research that looks at negative outcomes for

parents. This study

will provide for a more balanced understanding of how having a child

with a disability can

change a person's life.

Benefits of the study include an opportunity to reflect upon the

positive psychological

growth that you may have experienced following the birth of your

child with a disability.

The survey will take approximately 45-60 minutes to complete and

consists of a series of

questionnaires about you and your child. At the end of the study you

will have the

opportunity to write your thoughts in an unstructured format. For

further information, you

may contact Ulman by email at .ulman@ vanderbilt. edu or

by phone at

or 1..

**IF THE LINK DOES NOT WORK YOU CAN CUT AND PASTE THE WEB ADDRESS

INTO A NEW

WINDOW** You may begin participation in the study immediately by

clicking on of the

following link:

http://www.surveymo nkey.com/ s.aspx?sm= X2D00XX0zf2t2bfF SBg4zA_3d_

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