Guest guest Posted June 28, 2008 Report Share Posted June 28, 2008 -I think citing a lack of studies is a very good reason to question a treatment even if there are no studies as you say on ANY of them...that does not mean we give an auto pass on all of them. " generally " safe gives me the chills - bc that is what they say of vaccines, frankly, and there are no long term studies on THEIR safety either..and I think it is MORE than reasonable to bitch about the lack of them...it is LAME what has been perpetrated on our children and our families...even Goldberg, who does vaccinate, does not do a bunch at a time, VERY conservatively spaced, some dropped al together bc the diseases are not serious enough or really a statistical threat...sanity in medicine seems a good choice...and I think the remark posted about Dr. N not counting the unfortunates is something that we should all pay attention to...Dr.G went to UCLA and knew Lovass and one of his issues with the research supporting ABA that everyone cites and uses to get funding just for ABA at the expense of other approaches is, according to him, based on a lie...he knows that kids were turned down to particiape in that study bc they were too affected and low functioning, hence the end results were manipulated to make the approach seem more effective than it may actually be...there is a lot of monkey business even in the research end of things...G's attitude is blood panels, scans, hard scientific proof that a kid is well AND I want to see that kid jump up, play, perform as expected in school and social situations - no visible signs of illness or psychiatirc distress and no signs of it in all the labs and other tests work either - THAT is rehabilitated, per him, and recovered from this thing...that is what it should always look like...Di He ahs not seen that with the HBOT kids and he has seen spec scans that confirm his worst fears of parts of the brain " lighting up " thjat should just NOT as well as immune issues presenting that were not there BEFORE HBOT in some of his patients...his dislike is not one based on theoretical misgivings it is based on his own case experiences of kids in his practice who is treating who have been harmed by this specific intervention...that was what he recounted to us anyway....Di-- In mb12 valtrex , " natasa778 " wrote: > > , I am very well aware of many independent studies on many aspects > of autism, including relevant treatments, and I am very well aware of > many studies on HBO, which are relevant to some of the " autisms " . > > When you say that " think the jury is still out on HBOT as a treatment > for ASD. We certainly do not have enough detailed studies to be sure " , > (your words) then you can certainly apply that statement to ANY other > treatment for autism. That is all I'm trying to say. > > There is absolutely NOTHING in autism that the jury has has reached an > anonymous decision on!!! There isn't even one aspect of autism - > etiological, pathological, clinical or therapeutic, that everyone agrees > on. > > It is just not right to cite the lack of studies as evidence that > treatment may not be suitable. > > Natasa > > > > > > > > > > > > > > > > > > > I just saw my DAN! and my son has PANDAS and there seems to > be > > > no > > > > > > > change in him after IVIG..supplements..she suggested > HBOT..I'd > > > > > like > > > > > > > tohear from others if this is worth the $$$ or just a way to > get > > > > > > folks > > > > > > > to use her chamber in her office? > > > > > > > > > > > > > > > > > > > > > > > > > We did 200 dives of soft chamber mild HBOT 1-1 1/2 hrs./day he > was > > > > > > doing great more eye contact, awareness better, skin color > good,a > > > > > happy > > > > > > child then started valtrex while doing HBOT he then got > chronic > > > > > strep > > > > > > (2-3 different kinds of strep in his gut. > > > > > > now he has all symptoms of PANDAS he continued getting worse > we > > > > > found > > > > > > out oxygen was feeding the strep so we immediately stopped. > Now he > > > > > is > > > > > > on zithro. > > > > > > How many IVIG treatments did he have? I read sometimes several > > > > > > treatments before seeing positives with some kids. > > > > > > We are staying away from the HBOT while battling strep. > > > > > > Carole > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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