Where to start?

January 14, 2002

Shari,

Here are some web sites and books that might be helpful to you as you are

learning about VB.

Order the books " Teaching Language to children with Autism and related

Disorders " and " The Assessment of Basic Language and Learner Skills " by Drs.

Partington and Sundberg. You can order both of those from Different Roads to

Learning. (www.difflearn.com)

Also, look into attending an Intro to Verbal Behavior workshop. Below is the

contact info for some professionals who are doing those types of workshops

across the US.

Dr. Vince Carbone: www.drcarbone.net

Drs. Sundberg and Partington: www.behavioranalysts.com

Dr. Pat McGreevy: www.behaviorchange.com

You might also want to get in touch with the Association for Behavior

Analysis to see if they can help you as well. They might be about to help

you find a certified behavior analyst or an associate behavior analyst in

your area. There web site is: <A

HREF= " http://www.wmich.edu.aba/ " >www.wmich.edu.aba</A>

Hope this helps.

Jenn

January 14, 2002

Hi everyone, I am new to the list and to this method of treatment.

Where do we start? Our son, n, is 4 yrs old, diagnosed PDD-

NOS, ASD, High functioning Autism, you know the drill. He has some

speech (can verbalize requests very well, and that is about the

limit) and attends a PPI program 4 days a week, plus OT 1 x/week, is

part of a Play therapy program. At PPI he gets some DTT but maybe

for only 20 minutes. What is the first step in starting ?

Verbal behavior is the direction I'd like to head, that seems to be

where he is truly lacking. I live in Southeast Michigan (a suburb of

Detroit) and would appreciate any hints on starting this up. Thanks

in advance to everyone, I look forward to participating on this list.

Shari (and Jim) Murray

November 9, 2005

You will find all the info you need at the nids or Dr. Goldberg website. They

have a list of typical symptoms and the recommended therapy.

Good luck,CW

Kim GIll <kim.gill@...> wrote:

This is all very overwhelming to me. I have a son who is 5-1/2 years

old, diagnosed with atypical autism. We have been following the DAN

protocol for a year now with not many advancements. That right there

bothers me.

I have for a long year wondered about a viral/immune aspect to our

son's diagnosis. I never pursued the protocol, I was just

looking at DAN. But, after researching more of the viral components

to the disorder, it seemed to relate to my son even more.

Can someone point me in the right direction so that I can see what

the Protocol is? Specifically, what steps need to be done?

I recently saw a video of a boy diagnosed with autism. He did anti-

viral meds and within 21 days...the improvement was dramatic. I

noted on our test results from a year ago viral problems, but nothing

was ever looked at in terms of treating the viral issues with our son.

Where to I begin? Please?

Thanks. Kim

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November 9, 2005

Hi Kim,

Welcome. The DAN approach tends to look more into metabolic anomalies in

our kids while the philosophy is immune based and deals with viral,

allergies and yeast to begin with. Dr. Goldberg varies the protocol

somewhat depending on the child's lab work which is done extensively to

begin with and then monthly. We had started seeing a DAN doctor for a very

short while early in our journey with our then 3 year old son. We didn't

go far with the protocol as it didn't seem to fit my son. Luckily we found

out about and went to see Dr. Goldberg just before my sons 4th

Birthday. My son's HHV6 titer (Herpes virus 6) was 1:1280 with a range

reference of <1:20. His IgE (measure of allergens in the blood) was 2680

with a range reference of 0-144. We had already started the GFCF diet, so

we continued and Dr. G started my son on an antiviral, then an antifungal.

We saw HUGE gains right off the start. I wish the success continued to be

that quick however, in the 3 years my son has been a patient he has gone

from an echolailic boy with poor eye contact to a nearly 7 year old who is

academically at the top of his class, plays hockey, goes to Beavers and

plays piano all without an aid. His language is age appropriate although he

still at times struggles with word retrieval. His journey continues although

he is quite indistinguishable from his peers. Sometimes it felt like one

step forward 2 steps back, but each and every back peddle I trusted Dr.

Goldberg when he assured me my son would be brighter on the other side. He

hasn't been wrong yet. We continue with Dr. Goldberg via a monthly phone

conference and my local pediatrician rewrites any prescriptions as we are in

Canada. I have not regretted for one second the chance we gave my son by

following my gut instincts of what made sense and didn't for my son. While

we do without alot of things to continue to afford Dr. Goldberg's care, I

can't begin to put a price on seeing my son play appropriately with peers in

the school yard at recess. Not to mention he is a heck of alot healthier

then he ever was!

Best of luck to you as you venture into perhaps a new path for your son.