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Re: The waiting game...

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Correct about the Fibro, I can't recall the other autoimmune

disorders I have other than the TTP, Raynauds, etc...I thought that

Chronic Fatigue was classified as autoimmune but I lose track.

The clubbed fingers can also be caused by Liver or Kidney disease too

which is why I assume he noticed it.

The AFP test is the one I'm worried about though. Also, I so don't

want to have another liver biopsy but since reading the posts about

it here...I may go ahead and do it with " conscious sedation "

I told him that I am in a different " place " in my life now than

before when I tried treatment for the second/third time. I feel that

I could handle the psychiatric sides but he thinks it's not worth

the " risk " if the HepC isn't doing any damage.

> I finally went to the gastro last week...it's been

several years

> since I've seen him although the internists have always check my

> liver enzymes and all has been fine.

>

> I've had HepC for 20yrs now along with the other fun autoimmune

> illnesses...Fibro/CFIDS, etc.

>

> It's funny how things change with each year of research and patient

> experience (I guess). I've always told all my docs about the Mixed

> Cryo but none of them have seemed to know what it is or didn't care

> about it...now the Gastro seems as, if not more concerned about the

> Cryo than the HepC.

>

> Then he notices that my fingers are " clubbed " ...could be because of

> the HepC or having to do with the kidneys, circulatory/heart,

pretty

> much anything. Has anyone had this clubbed fingers and/or toes?

>

> Also, he did a viral count, still at 1 million as I was 10 years

> ago. He also did a AFP test (? fetal protein) which is a tumor

> marker test...for cancer? Has anyone had this test done?

>

> He doesn't want to treat me without another biopsy (it's been 10

> years since the last one) because he's worried about the

psychiatric

> issues...

>

> I'm still waiting for the blood test results that were supposed to

be

> back last week...I hate the wait!!!

>

>

>

>

>

>

> Jackie

>

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