Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 I have been diagnosed with EN in the past few months. It started with swollen spots above my ankle bones and a few smaller ones on my feet and achilles tendon and knees. Now I have a large one on my calf. I've read a lot about this disease and I still don't quite understand it. I thought it was supposed to go away rather quickly but my first spots were last summer. Then in October I got horribly sick, collapsed a few times and had horrible joint pain. I thought it was a virus since it went away in a couple of weeks and my two small children had something also. One child had a rash that looked like fifth disease. Then a doctor said I had (have) epstein barr but the other dr is not so sure about that. So I'm not sure what the cause of this is but I still tire easily and need extra sleep. Is it normal for the bumps to go down and then flare up for no apparent reason? I don't take anything for it except I do wrap my legs with ace bandages which really helps a lot. My dr gave me " non steroidal anti-inflammatories " but they didn't help. Sometimes my hip joints still hurt. My rheumatologist has tested me for everything under the sun and my bloodwork is all " normal " with the exception of the epstein barr markers and a slightly elevated crp. It's my understanding that this is more of an annoying disease, rather than life threatening. Is this true? Thank you for your help anyone! Quote Link to comment Share on other sites More sharing options...
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